Uncontainable Presence

2024-05-03T20:00:54+00:00By Amy Sequenzia|Amy Sequenzia, Author, blog, Lifestyle, Medical|1 Comment

You are anywhere
You are anytime
Daring and enticing
Changes unexpectedly predictable
The obstinate constant

I see your bright presence
Piercing my eyes
Crawling into my brain
The pain comes swiftly
And then, the deafening silence

My body shakes in your presence
Uncontrollable moves
A dance of two wills
The music is mute
Rhythmically disordered

Darkness and pain
I’m lost in a sea of dread
Forlorn as you carefully exit
Leaving behind misery
I tremble as the silence roars

As the pummeling beat of you presence leaves
The sky cracks open in blue
A blissful fatigue
Exhausted excitement
But your absence is not complete

You, the hidden presence, the foe
Imposing and demanding
I wish I could ignore
Your call to interact
My power vanishes as I face yours

Blood circles fast from heart
To body, to heart again
Slowly slowing, suave, stilling
The dark cloud that is you
High above, the bright light will come again

About the Author: Amy Sequenzia

Amy Sequenzia is a non-speaking Autistic, multiply disabled activist and writer. Amy writes about disability rights, civil rights and human rights. She also writes poetry. Amy has presented in several conferences in the US and abroad, and her work is featured in books about being Autistic and Disabled. Amy is deeply involved with the Neurodiversity Movement and has been outspoken about the rights and worthy of disabled people. Amy serves on the Board of Directors of the Autistic Self Advocacy Network (ASAN), and the Florida Alliance for Assistive Services and Technology (FAAST). http://nonspeakingautisticspeaking.blogspot.com and Autism Women’s Network. You can also follow Amy on Twitter at @AmySequenzia.