Our names are Addison and Cassidy Hempel and we are 7 year old identical twin girls who live in Reno, Nevada. In October 2007, after a two year medical odyssey, we were diagnosed with a ultra rare and fatal cholesterol disease that affects only 500 people worldwide. The disease is called Niemann Pick Type C (NPC) and the condition is frequently referred to as “Childhood Alzheimer’s.” NPC is ultimately fatal in childhood and we are in a battle for our lives.
Addi & Cassi Fund
About the Author: Ollibean
Ollibean is a dynamic community of parents, families and advocates in the disability community working together for a more socially just, accessible and inclusive world.
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