• What you see as “inspiring”, the way we do things, the way we lead our lives, is not a superpower. It is just our way of navigating this – still – very inaccessible world . Amy Sequenzia on Ollibean

Disabled Lives and Respect

I thought I wouldn't write about this case . I've been following it and the developments have been a sad reminder that disabled people are, in 2015, still seen, talked about and treated as less than human.   Emily Brooks has been writing about it and her analysis is so comprehensive, I don't have much to add. But the rhetoric used by people involved in the case is making my heart hurt.   If you don't know about it, you can read the articles linked above and here . I will not talk about Anna Stubblefield, if she raped an adult

  • Faded Image of ocean and waves and rocks. Text reads WILL THE SELF-ADVOCACY SKILLS WE TEACH OUR YOUTH TODAY SERVE THEM WELL IN THEIR ADULTHOOD? Judy Endow ,MSW, Ollibean logo

Autism, Transition Programs and the Impact of Poverty on Self-Advocacy

I am an autistic woman who has lived both in poverty and as a middle-income person during my adult life. I am noticing how self-advocacy is typically geared toward middle-income status. This could be problematic since many autistic adults live in poverty. Based upon my experience I have come to realize that middle class self-advocacy works fine if in fact you are a middle-income person, but doesn’t work well if you are a poor person.   I will explain this more using an example from my life as a poor person versus a middle class person.   Dental Experience as

On Not Being “Pretty”

My friend Cara wrote this awesome article about being "ugly" disabled. You should click on the link and read it. Go on, I'll wait.   Isn't it great? The article got me thinking.   Like Cara, I also have cerebral palsy. I sometimes use a transport wheelchair because I have poor balance and I can't stand for too long. When I sit down, my body "flops", or it slowly leans to my right side until I am almost lying down. When it doesn't lean to the side, it tends to relax too much, sliding down the chair. An upright position

Accommodations – They Make All The Difference

Accommodations are important and they work. I should not be making a big deal about it. The ADA is 25 years old. Sadly, getting the accommodations we, disable people need, is often the opposite of simple.   If you have been reading my posts, you know that I am very visibly disabled. I am also proud, and I don't try to be someone other than myself. I do require a lot of supports, and once I have them, I can do anything I set up as goals. I have goals, or simply things I want to do, that most people

  • Will Chuck Forget?

Will Chuck forget?

Will Chuck Forget? Chuck is terrified to go to school. He has stuttering. Others laugh when he says something. He has a breakdown at school. Some boys do feel bad but have no courage to tell and stand up for him. The teacher pretends nothing is wrong. Chuck went missing. Questions: Who is responsible? What can his friends do if he is found? What does it mean to watch and look the other way? Will his teachers take initiative and how? What can his family do? Will Chuck forget? End of  the story. I wrote this story when I

Autonomous Press

Autonomous Press (also known as AutPress) is an independent publisher focusing on works about disability, neurodivergence, and the various ways they can intersect with other aspects of identity and lived experience. We are a partnership of  disabled workers including writers, poets, artists, musicians, community scholars, and professors. Each partner takes on a share of the work of managing the press and production, and all of our workers are co-owners. Our Mission “Autonomous Press seeks to revolutionize academic access.” But what does that mean? Does it mean access to academic work, so that the public can better understand scholarship? Does it

  • Image of group of students and Professor standing with arms crossed looking at the camera.Text reads: "Princeton University students Stand By Henry. We are inspired by you and your family. Thanks. The Spring 2015 Student from Seminar "A History of Disability as Told By Personal Narratives" taught by Professor Wurzburg Anschutz Distinguished Fellow in American Studies."

Now you know . You cannot unknow .

I  told  Professor Wurzburg's class in March and April  about my life and advocacy for inclusion, communication and civil rights. The class asked me questions and I answered. On April 8 I talked to the class on Skype. "This is good. Princeton thank you for this class. Learning about disability experience and discrimination from people who are disabled is the only real way.   I share my experience to change my reality and the reality for my neurodivergent brothers and sisters. No person should experience the abuse. All people deserve respect, inclusion and communication.   Now you know . You cannot unknow

Ableism and Pity. Reject Them, Be Awesome

I have written about how I had to unlearn ableism.   I have written about my uncooperative body.   I always state how generally happy I am, and that I am comfortable being me.   All this is true but frustration shows up, and grows, every time I meet ableism.   I meet ableism a lot.   Ableism brought forth by pity. Pity directed at me by people who seem to believe I am “trapped” inside my body, that I suffer, or that my life is so hard, they can’t understand how I can even have goals and aspirations.  

Being Comfortable In My Skin

When I shared my post "Celebrating My Life" one commenter pointed out that “very few people are as comfortable in their skins” as I am. This got me thinking about what makes it possible for me to not only be ok being me, but to be proud of who I am. What makes me an unapologetic, unabashed, proud disabled woman? According to followers of the medical model of disability – most doctors and all the self-proclaimed “experts” – I have a long list of “devastating”, “severe” and even tragic deficits and impairments. Their “deficits list” would look like this: Non-speaking

Celebrating My Life

Celebrating My Life  Amy Sequenzia won't stop celebrating her autistic, disabled life. le I am writing this prompted by something John Elder Robison (I will refer to him by his initials, JER) wrote about Autism Awareness/Acceptance Month, in particular this quote:  “We may have gifts too, but disability remains the basis for diagnosis. Some autistic people are rendered non-speaking by their    condition, and I can’t imagine who would celebrate that. Others live with significant medical complications like epilepsy. I’ve yet to meet anyone who celebrates that either.” I commented that JER does not have to “imagine”. I am here, I celebrate being non-speaking, I celebrate

The Reason I Blog

This blog (The Autism Wars), and all the other blogs and projects associated with it, are for my autistic son, Mustafa. But this blog is actually not talking about him without him or about daily life with him with some rare exceptions for times when his daily displays of empathy, kindness, and love towards me move me to write. When I say it is for my son, I mean it is part of my activism and my exploration of what it means to try and ally myself to his cause. This cause is something that too many of us are aware of

I Don’t Want Your Awareness

I don’t want Autism Awareness. Actually, I fear Autism Awareness because it only makes the world fear, hate and ignore us, one blue light, one puzzle piece at a time.

Take ASAN’S Pledge to Include Autistic Voices

Please join us and take The Autistic Self Advocacy Network's pledge to include Autistic voices in organizations, conferences and panels on autism. Would you support an organization that advocated for women or attend conferences about women if they failed to include women ? Of course not. Then, please, take a minute, sign this pledge and share widely. Join: Colin Meloy, Lead Singer, The Decemberists, Linda Walker Fiddle, Executive Director, Daniel Jordan Fiddle Foundation Mike Elk, Labor Reporter, In These Times Magazine, Steve Silberman, Investigative Reporter and Author, Wired Magazine, Cecilia Breinbauer, Executive Director, Interdisciplinary Council on Developmental and Learning Disorders

Autism, Inflexibility and Diversity

A universal assumption about autism is that autistic people tend to be inflexible and it is NOT GOOD to be inflexible. Let’s take a look at that assumption. Neuro majority people talk a lot about the inflexibility and the rigidity of autistic people. Seems like they get stuck in that train of thought. Isn’t it quite a narrow perception to believe that everyone should be just like you and should conform to your ways? And yet, as an autistic, if I want to get anywhere in the world I need do just that - to conform to the ways of

“Autistic People Should…”

Feb. 23, 2013 was this flash blog day. Autistics were asked to complete the phrase "Autistic people should..." as a way to make a positive difference in light of the suggestions given by search engines when that phrase is typed in the search bar. This was my contribution: Autistic people should take and keep a seat on the bus, just like Rosa Parks did in 1955 when fighting for social justice for blacks. I was born in 1955. I am glad black people no longer have to fight so hard for the chance to be seen as part of the

Being

My life through the years I've been listening to this It's enough to bring out tears I need it to immediately cease.   They talk about my existence About my right to be I'm running out of patience I know who I am, I am me.   Cure, treat, fix, change Words that hurt deep in my soul If I do all that they demand My essence is lost, nowhere to go.   They know what to say to scare They do this intentionally But now it is my turn to dare I'm not backing down silently   Not backing

Drop, Settle + Train

The Supreme Court has a case that affects all disabled people, and the decision can be very damaging for us. We need to trust the police, and the police must “Connect, Respect, Protect” disabled people as they do with all people, not command, advance, hurt , kill.

Talking to Autism “Advocacy” Organizations

I had the opportunity to speak, as a public comment, during a meeting of the Autism Society, Florida Chapter. It applies mostly to the National leadership because I think it is past time for some things to change. What I said might not have pleased everyone, and it might have made some angry. But I stand by the words - compliance is not my goal. It needed to be said though, not only to the Autism Society but to all organizations that say they “advocate” for autism. If an organization wants to help, it should not advocate for things Autistics

  • #FreeNeli

#FreeNeli

by Amy Sequenzia  Reginald "Neli" Latson was an 18 year-old Autistic high school student, a good student, a wrestler, when he was arrested while waiting for the library he often visited to open.     Neli was, as teen fashion dictates, wearing a hoodie. He is black, and as bigotry, discrimination and ignorance dictate, he was profiled and reported as a criminal, "possibly carrying a gun".   He did not "comply" with the officer who approached him, already with baseless suspicion, since there was no gun. An altercation sent Neli to jail, trial and prison. He served his time, and

  • "I am more like you than autism can ever make me different." Judy Endow, MSW on Ollibean

An Autistic Weighs in on Friendship

I am a professional person who works as an autism consultant to various school districts when I am not speaking and writing. I have an autism neurology myself so I enjoy the privilege of being able to see and experience autism from a variety of viewpoints. One thing that greatly pains me is the continuing wrong assumptions professional people make about autistics and how those wrong assumptions often get interpreted as fact.

Autism and Sorting Out Sensory Snags

All my life I have been easily overwhelmed by sound and motion.  I can hear things nobody else even notices such as the hum of electric devices that are plugged in even when the appliance or device is not in use such as the coffee maker on my kitchen counter.  I can hear fluorescent lights hum, the steady grind of ventilation systems in buildings and the crackling from inside my television when it is muted. When I am in the midst of much movement I tend to get dizzy.  This is really distracting because I am in busy places when

Communication Supports for Speaking Autistics?

As an autistic, I know first hand how my communication abilities are different from the neuro-majority people around me. Most people do not understand my differences because I can speak. On the surface my communication abilities appear normal. This make it very difficult for people to understand when I need accommodations they are just that – accommodations – not personal preferences. For example, even though I can speak to crowds of thousands of people my neurology does not permit me to engage in telephone conference calls in a meaningful way. The most I can do is listen, but after a

Why I Don’t Like “Awareness”

Awareness campaigns of disabilities are only effective if they are planned and run primarily by the groups that are the subjects of the campaign. This is because such campaigns are not “awareness”, but “acceptance” campaigns. We welcome support, with focus on respect, equality and access. We don’t need “awareness” of deficits and tragic rhetoric.

Attitudes – Information and Education

This is especially directed at parents, family members and all who spend a lot of time with disabled children. It also applies to adults, even if the way things happen when an adult is diagnosed or needs supports are different from how they happen with children. But we, disabled adults, also deserve to have supportive and informed people assisting us in navigating and participating in the world. When a child is diagnosed with a disability, or born disabled, it is said that parents, and family members, grieve. That's probably because the general perception of any disability is a negative one.

Attitudes – Grading People

Parents and family of disabled people should start demanding that everyone who is part of their children lives stops using functioning labels. We don’t need to be graded. We already have value.

Attitudes – Communication

Communication is not only speaking, typing, texting or signing. Communication is also being able to listen and understand, being accommodated to make interaction possible.

Attitudes – Introduction

When you are disabled there is a lot going against you. Not that disability is the worst thing someone can experience. It is not. Disability can be hard and some things can be very difficult to deal with. Some of us need medication and managing this can be difficult; some of us experience pain and this can be energy draining; others might have trouble with sensory processing; some might even need hospitalization from time to time. Different disabilities require different approaches, and different types of accommodations. What non-disabled people should remember is that we either learn how to live as

Lizzie Velasquez: Inspiring & Empowering a More Positive Online Environment

At only 25, Lizzie Velaquez is a motivational speaker, the subject of an upcoming documentary and author. In her viral TedX Talk, How Do YOU Define Yourself , Lizzie asks the audience to consider what defines them, and whether they're going to choose to give up in the face of negativity from others, or whether they're going to choose to be happy. After finding a video on Youtube which called her the ugliest woman in the world, Lizzie decided she was not going to let someone who had never met her, bully her – much less, define her. Lizzie has

On Disparity in Education: The Risks and Bravery of Being First

Being one of the first or the only students with any discernible divergence in any characteristic is dangerous, difficult, and involves tremendous courage. Over 50 years ago, at the beginning of a school year, the Little Rock Nine walked with angry white mobs behind them into their local high school to exercise their right to a public education with their white peers. Initially, the Arkansas national guard blocked their entrance by order of the Arkansas governor. Eventually, President Eisenhower ordered my stepfather's unit, the 101 airborne division, excluding my stepfather and all black soldiers, to escort the students to and

  • "Why would I want to grow out of my skin? Of my veins ? Because they grew so well with me. Jamie Sanders

I have Tourette’s. Please tell everyone.

This powerful performance by Jamie Sanders, spoken word poet and actor with Tourette's, covers bullying, shame, self-acceptance and empowerment in the best 150 seconds you'll watch this week.

Is Autism a Disability or a Difference?

So many ideas in the larger autism community often become a debate. As an autistic this black-or-white, choose-your-side sort of thinking is very neurologically friendly to me. I like clear choices. But I also believe we are often unwittingly duped into believing we need to choose a side only because the idea is presented as a dichotomous choice. “Is autism a disability or a difference?” is one of these questions posed as a dichotomous choice in the autism community. The way the question is posed gives the impression that there is one correct answer. When Autism is a “Difference” Many

Losing an Autism Diagnosis

I am an almost 60-year-old autistic woman who can navigate the world in a way that surprises some people when they find out I have autism. My teen years were spent in an institution because people did not know what to do with my “behaviors” or with me. Today I am a self-employed author, speaker, consultant and artist with a master’s degree in Social Work. Question: Did I lose my autism diagnosis? Official Answer: Yes and No No, an Autism Diagnosis Cannot Be “Lost” Technically, once a person is diagnosed with anything that diagnosis becomes part of their medical records.

Henry

Some call him a kid Others say he is a young man But whatever you call him You need to know this: He is courageous Brave and resilient He will fight and he will win   It can be a fight for his rights When enemies come disguised as condescension It can be a fight for his dreams He will mobilize an army of friends To Stand With Him   He is an example to many He showed other students the possibilities Henry does not fight for himself He is changing perceptions, changing the world   Henry is a leader

April is Over!

Another April has passed – big sigh of relief! As an autistic I have a love/hate relationship with April – the AUTISM month. I love that increasingly more people over time have become aware of autism. I hate that Autism Awareness month contributes daily to many negative stereotypes of autism, most of it by people meaning to do something good on behalf of autism. As an autistic, I am meant to be grateful to all these wonderful people who are sacrificing their time, talent and money to be helpful to people like me. Some of the time I am grateful, but

FDA Advisory Panel Recommends Banning Aversive Shock Therapy at the Judge Rotenberg Center

Thursday, April 24, was a day that I'd been waiting for that day for a long time. An FDA advisory panel finally got to thoroughly hear both sides of the story of what goes on at the Judge Rotenberg Center, and to deliberate, based on testimony, whether what happens to the students there needs to be stopped. And they made the right decision. I just hope that they act on it quickly. I found out about the Judge Rotenberg Center by accident two years ago, doing some research for another post on my blog. I came across an article about

Young Autistics Making Me Happy – Expressions of PosAutivity: #AutismPositivity2014

This poem is for my young friends: Evie, Ty, Max, Fallon, Mu, Jack, Emma, H., Philip, Oliver, Brooke, Henry, Miri, Cody, MissG, MasterL, and many others I cannot name here but I know are going to grow up to change the conversation. You make me very happy!

  • It is the children with OI-the future of our community-who are particularly vulnerable to these messages, especially when they come from their very parents. Kara Ayers on Ollibean

Hashtag Hate and How Pride Can Prevail

Guest blogger Kara Ayers is the Advocacy and Dissemination Coordinator for The University of Cincinnati University Center for Excellence in Developmental Disabilities (UC UCEDD) and has been featured on Disability Blog the official blog for Disability.gov. As a child, my family considered "hate" to be a bad word. We're teaching my preschool daughter the same. Someday I will teach her the tragic impact of hate and the freedom that it has stolen and continues to steal from so many. For now-I don't want her vocabulary or her mind limited by slurs and hate-filled language. As someone who works in social

Depositions Related to the Death of 7 Year Old Isabella Herrera

Isabella died on January 26, 2012, a day after choking on a Hillsborough County School bus. Bella, a 7 year old student at Sessums Elementary, drove her power wheelchair onto her Hillsborough County School bus at 2:07 pm. Once on the bus, Isabella, who had a neuromuscular disorder, relied on an aide who was supposed to be trained to position her wheelchair with her head tilted back to allow her to breathe. "They were supposed to be trained by physical therapists at the school to slightly tilt her chair so her head would not bobble," says Isabella's mother, Lisa Herrera.

More Than An Autism Diagnosis

I am an adult with autism. My thinking is visual rather than word-based. Autism gifts me with a literal and concrete way of thinking. My thoughts are all in full moving color. You can read about this and about my life in my book called Paper Words, Discovering and Living With My Autism. (Endow, 2009a) “Always, I have a front row seat to watch the show! Each color, with its infinite variety of hues and brightness, has its own movement patterns and sound combinations. Even though spoken words are the medium most often used by people to communicate with me, I

Sesame Street, This is an Autistic Speaking

Sesame Street knew nobody was missing, or lacking, anything. I was perfect! Everyone is perfect! But in real life, as I grew older, doctors and teachers convinced everyone that I was too broken to be worthy of any effort toward education and a future. Nobody saw me the way I was seen by my friends at Sesame Street.

  • Goodnight Autism Puzzle Pieces by Judy Endow on Ollibean. Picture of crescent moon on night sky.

Goodnight Autism Puzzle Pieces

You may like lighting it up blue or using puzzle pieces as a symbol of autism awareness. I personally no longer like either of these things for lots of reasons and I post various blogs and articles about these topics in social media venues. My opinion, even though it may differ from yours, does NOT mean my autism is preventing me from understanding your point of view. It simply means we have different points of view. Yesterday I had a conversation in social media with a woman who explained all the reasons the puzzle piece symbolism was important to her

What Good Does Autism Awareness Do? It Doesn’t

I know most people want to do the right thing and believe “Autism Awareness” helps. But it doesn’t and it is time for some blunt truths, it is past time to stop walking in circles and move forward with Autism Acceptance.

Treat Others As THEY Want to Be Treated

I was taught to treat other people the way I want to be treated. This works out great when I am with autistic friends because we share an autistic neurology. It does not always work out well when I am with everyone else who populates this world from a neuro-majority place of being. Therefore, the onus has been on me to figure this out for myself. It has taken many decades, but I have finally worked it out in a way that allows me to live more comfortable in a world largely populated by folks who do not share my

#DearFutureMom Video Spreads Awesome Message From People with Down Syndrome

by Emily Ladau Have you seen this #DearFutureMom Video? We love it here at Ollibean and in honor of World Down Syndrome Day, we think it's definitely worth a moment of your time to watch. It's a great reminder of why people of all abilities must work together to celebrate and advocate for the rights, inclusion and well being of people with Down syndrome today and every day - because we are all people just the same.  

Stop Combating Me – Why I Am Against Euthanasia

Today is “Stop Combating Me” flashblog. We are not the enemy but the way legislation is written puts us in real danger.

Being Disabled and in the Hospital

Being disabled and in hospitals is always scary because our lives is not valued as the lives of non-disabled. I was, in a way, lucky but the policies still need a lot of improvement.

  • Action Alert

Take Action to Keep All Students Safe at School! || Stop Hurting Kids

Stop Hurting Kids needs all supporters of the Keeping All Students Safe Act to take action and urge members of the U.S. Senate to co-sponsor this bill.

Who Should Speak For The Disability Community? – Think Inclusive

In a recent post for Think Inclusive, self-advocate Emily Ladau explores the idea of advocate-allies who work with self-advocates towards disability rights. She emphasizes the importance of putting the voices of self-advocates at the forefront of disability advocacy movements: "Don’t get me wrong – allies, or what I refer to as advocate-allies, are incredibly important to advocacy efforts. “Ally” implies being supportive, while “advocate-ally” paints a more accurate picture of people who join in along with self-advocates. And true advocate-allies deserve the utmost respect. But a real advocate-ally is someone who doesn’t overshadow the voices and efforts of the people

  • Image description: Black square with white text "Sneaky words said with a smile While holding a piece of chalk To draw the dividing line Made by words Sounding alright on the surface But laden with Otherness Less Than Different Not US And sometimes Not Quite Human. Judy Endow on Ollibean."

Chalk Word Lines of Separation

Words are used in many ways Sometimes they are my friends Others sometimes use their words That sound like love and friend Extending from them To me But in reality These words only sound like love and friend But in the end the sound of them Does not ring true and good And is not of love and friend But instead these words draw lines Dividing Their group of US From my group of THEM Society says it is ok In fact it is perfectly fine And noble Even though self-serving Entirely acceptable To divide out those THEMs From USes

  • A dark blue outline of a person with no distinguishable facial features curled up with arms resting on bent knees. Figure is surrounded by text that reads: "Am I okay? Am I really that different? Sometime I struggle. Do others struggle? Weaknesses? Strengths? Everyone has their strengths and weaknesses. What makes me different? Are there others like me? I want to be me, and find what works for me. I am unique, and that is okay. I may have different needs, but I am not a burden."

Welcome to the Autistic Community

The Autistic Self Advocacy Network and the Autism Now Center have created "Welcome to the Autistic Community! " It is a must read for anyone who wants to learn about autism.

A Mother’s Open Letter To President Obama and Secretary Perez

February 10, 2014 President Barack Obama The White House 1600 Pennsylvania Avenue,NW Washington, DC 20500 The Honorable Thomas Perez Secretary of Labor U.S. Department of Labor 200 Constitution Ave.,NW Washington, DC 20210 Dear Mr President and Secretary Perez, Thank you for all that you are doing to ensure workers are paid fair wages with your upcoming executive order to increase the minimum wage to $10.10 for government contractors. I implore you to include workers with disabilities, workers currently making sub-minimum wages under the antiquated Fair Labor Standards Act, 14 (c), in this executive order. After the State of the Union address,

  • Image description: White square with salmon text that reads " I am talking about how a privileged majority can oppress a minority simply to keep a status quo that devalues human lives. Amy Sequenzia " Ollibean logo in bottom right corner.

A Message to Suzanne Wright and Autism Speaks

I will soon write about posAutive messages but I had to write this first. I know my rights and I will fight against oppression at the same time that I spread the messages of acceptance and respect.

Life for Lief ~ “See Me As Smart”

“Some people think that kids who are autistic can’t handle getting a transplant. Kids with autism can handle it.” Lief O'Neill

The Scarlet A: Why I Don’t Want My ID to Broadcast My Autism

A few days ago I read the article 'Law Allowing Autism to be Listed on IDs Moves Through Legislature'.

Celebrate Ed Roberts Day 2014 with YO! DISABLED & PROUD

In 2014 YO! Disabled and Proud would like to honor Ed Roberts legacy by posting photos of you and Ed enjoying your independence together.

Judith Snow ~ Relationships & Inclusion

"The research shows that when a child who is not academically gifted is included in a regular school, not only do the academics improve across the school, and I did say that, I didn’t say “in the classroom”, I said “across the school”, not only do the academics improve, but drug use and violence goes down."

  • 2014 Joint Letter to the Sponsors of Autism Speaks

2014 Joint Letter to the Sponsors of Autism Speaks

January 6, 2014 To the Sponsors, Donors, and Supporters of Autism Speaks: We, the undersigned organizations representing the disability community, are writing to urge you to end your support for Autism Speaks. We profoundly appreciate your interest in supporting the autism and broader disability communities. Our work is about empowering and supporting people with all disabilities, including adults and children on the autism spectrum, to be recognized as equal citizens in our society and afforded all of the rights and opportunities that implies. Unfortunately, Autism Speaks’ statements and actions do damage to that work and to the lives of autistic

  • Image description: Light turquoise , salmon amd fuscia rectangle colorblock. White text reads: Thanks to you information has been recorded in this thread that others may find valuable if they would like to know what some of us autistic adults think and write about in regards to the use of person first language versus the use of the word autistic. Judy Endow Ollibean"

Are You a Bully in Sheep’s Clothing?

On Dec. 16, 2013 I wrote a blog titled “Autistics Can BE Friends” and posted the link on social media sites. Regardless of how often or how many of us autistics write about why many of us choose to call ourselves autistic many in academia and in the medical fields continue on to let us know we “should not” be doing this. I am including in this blog a public conversation I had with a Linked In reader on this matter. The entire conversation had nothing to do with the blog I had posted – only the fact that I

Hopes

I might be too optimistic for the reality, but I need HOPE to be able to keep demanding the rights taken away from me, just because I am me.

Worth A Second Look: Haben Girma’s 2010 Speech on 35th Anniversary of IDEA

"One of the treasures of IDEA is that it provides children with disabilities the luxury of just being students. Unfortunately there are still many school districts where students with disabilities are denied their right to an education." Haben Girma

Real Consequences

Autism Speaks has been hurting autistics for too long. We are fighting back and we are stronger. It is time to say things like they are. This post is because I feel offended by people defending hateful speech.

  • Image description: Photograph of screenshot of C-SPAN a light skinned man with black hair. He is wearing glasses and a dark grey suit, light shirt and maroon tie. Ari Ne'eman Autistic Self Advocacy Network

The Importance of Supports

"If we invested a mere one-tenth of the amount of money that we currently pour into causation into empowering Autistic people to communicate, that young man and hundreds of thousands more like him would be able to communicate their needs to us today. I am not here today to speak for every Autistic person – that’s impossible. What I am here for is to argue for every Autistic person to have the same opportunity to communicate that I have come to enjoy thanks to the support that I have been lucky enough to receive in my life." Ari Ne'eman

  • Image description: photograph of light skinned man with light hair using sign language . He is wearing a black blazer, blue shirt, and dark tie. Captioned white text on a black background reads" we work to further equal opportunity".

Meet the Members of the 2013 National Council on Disability

The National Council on Disability works to further equal opportunity, self-sufficiency, independent living, inclusion and full integration of people with disabilities into the civic, social, and economic fabric of American life.

Supporting United States Ratification of the U.N. Convention on the Rights of Persons with Disabilities – Why Every Voice Counts!

CALLING ALL SENATORS .It’s time for the U.S. To take their seat at the table In support of global disability rights . RATIFY THE CRPD I have a confession to make: I can only vaguely recall skimming the e-mails that made their way to my inbox in late November and early December last year that called upon the disability community to contact their senators in support of U.S. ratification of the U.N. Convention on the Rights of Persons with Disabilities (CRPD). It's not that I didn't realize the importance; I just thought to myself "Oh, I should help.

A Typical Son’s mom on “the r-word” and Chuck Klosterman’s apology

Kari Wagner-Peck ,the author of  A Typical Son blog, and twitter friend @atypicalson wrote a letter to find out why Chuck Klosterman , of the Ethicist used the r-word. Kari who is 'like Erma Bombeck - in that I write funny about the ordinary and not so much in that I am angry, I swear a lot, and we have a kid who has Down syndrome' wrote an eloquent, thoughtful letter to Klosterman , reached out to folks on twitter and used social media for social good. Pretty cool.  You can read the  response from Klosterman  here,It's fabulous- CK, sincerely apologizes

  • a teenage light skinned boy with freckles, wearing a black jacket, blue and white striped sweater, pink collared shirt is standing in front of large columns and steps that lead to the Lincoln Memorial

All the people saw my intelligence. No test first.

My family saw. I had hopeful times . Tracy invited me home to Vermont to learn . I went to ICI to learn. All the people saw my intelligence . No test first. It was very free. I never had many people understand. To wait. To listen. Not outside home. I did not want to go back to people unknowing. I read more words from typers watching my movie to feel community. Full presentation here

This Is Autism by Amy Sequenzia

Today we are flashblogging to counter Autism Speaks’ wrong view of autism. We are showing what autism really is. We speak for ourselves, even if Autism Speaks refuses to listen. The rest of the world will.

  • All disabled people need to know we are together fighting. Not just adults. All kids need to know the big community . Meeting people like me who made the choices of life changed all. Then I am knowing I want this life. It is hard to not have once you see.

This Is Autism by Henry Frost

Best place for all autistic people, all disabled not disabled people, all families to speak together. Speak together for acceptance, inclusion, communication, and rights for all people. I am thinking when you look closely, this is what autism is.

You are not wrong.

Know you are not a burden or trouble for being. You are a person who has every right to be. A family that is saying love but saying you are so hard so wrong for not being as they wanted. The family is wrong. Not You. A school segregating is wrong. Not You.There are many if the disability community that are here for you.

Inclusion, Communication and Civil Rights

"Learning is easy when the teacher knows you can learn. " Henry Frost

ASAN President Ari Ne’eman on the DOE’s New Stance on Bullying Prevention

Comments from Autistic Self-Advocacy Network President Ari Ne’eman, delivered on August 20th, 2013 during a call with with stakeholders from the education and disability communities on the Department of Education’s new guidance on bullying prevention and IDEA. Presenters on the call included OSEP Director Melody Musgrove and White House Associate Director of Public Engagement Claudia Gordon.

Jobless rate for disabled Americans still high 22 years after landmark law

Twenty-two years after passage of the landmark Americans with Disabilities Act, the employment rate for people with disabilities is still dismally low, and advocates want to change that. “The ADA … has made a difference in the lives of people with disabilities … but [for employment] the needle hasn’t moved,” says Helena Berger, executive vice president of the American Association of People with Disabilities in Washington.

I Am Disabled and I Am Proud

‎"Polite society often tells us that we need to take the 'dis' out of disability, but maybe... just maybe, we should spend some time putting it back in. Take the "dis" out of disability and you remove the core of what has shaped my life. Disability puts the "D" in diversity, but in order to make that a real difference we've got to own that spot. It took me 35 years to respect and honor that truth. Others shouldn't have to wait that long..." Lawrence Carter-Long

Words for Autistics Speaking Day By Judy Endow

It isn't right that autistics are in the position of needing other people to allow us our place in this world. We need to be able to take our own ticket when others refuse to give it to us. It is wrong that we have to be dependent on the benevolence of others and at their whim to merely being granted permission to participate in everyday life on planet earth. People need to learn about inclusion. Autistics need to learn to steal tickets when others can't be depended upon - some teachers in schools I consult to still don't "believe

I ALREADY AM A HUMAN BEING

I do not know if you have ever thought of it this way, but it is a step up that today autistics have the opportunity extended to prove themselves human. As bad as that is and wrong in ever so many ways it is a step up from 50 years ago when I was a kid and we were not even given any chances to try to convince anybody of our worthiness as a human being much less our intelligence. It is all so wrong and such a slow moving shift it is sometimes difficult to remain positive. This past

Autistics Speaking Day – My Fingers Speak

Today is Autistics Speaking Day, a day to remind the world that we actually speak every day, even if we do it with our fingers.

How to Ignore the Media and Learn to Love Autism

Here are some suggestions on how to tune out the media's negativity and learn to love autism: 1)  Read Jim Sinclair’s “Don’t Mourn for Us”. 2)   Tell your parents, family and friends that are close (maybe even your boss) about your child's diagnosis, as you are going to need support. 3)   Let go of any preconceived ideas for birthday parties, trips to the supermarket and vacations.  Don’t worry if an event doesn't turn out exactly as planned. Sometimes the unexpected is just as wonderful. 4)   Discover what motivates your child and learn as much as you can about those topics.

Wanting More and Finding Disability Justice

White House Champion of Change recipient Mia Mingus is writer, organizer, and member of the Bay Area Transformative Justice Collaborative. Disability was always framed as a sad or bad thing, as something unfortunate that happened to me, a tragedy, a flaw. My experience with the medical world was one about “fixing” me and making me more “normal” and less disabled. This of course, echoed my experience of the world at large. I never saw disabled women in the media being desired or living whole complex lives, let alone disabled women of color. The messages always boiled down to: disability is

From “Severe and Low Functioning” to “Kind of a Big Deal”

Some people consider it so abhorrent to entertain the possibility of having a child with autism they are willing to do a sperm screening that allows doctors to selectively choose only sperm that will produce female children to impregnate the mother. Since there are currently four times as many autistic boys than autistic girls the thinking is that only allowing sperm that will result in girl babies at least reduces the risk of autism. Read the article Baby Sex Checks here. There are ever so many areas to address in this article and others have done so here , and here, but

14 Year Old Advocates for His Civil Rights

My name is Christian Ranieri and I am a 9th Grader at Northport High School. You should know that I have a developmental disability called Autism. I have come a long way in life as I could not talk in the beginning but now I am able to express my message to you in words. When I was 5 I cried a lot and would throw myself on the floor when I got frustrated. I am proud to say that now I can speak clearly and to the best of my ability try to deal with my frustration in words.

The Autistic Self Advocacy Network’s Third Annual Gala Honoring Henry Frost and Dr. Anne Donnellan

The Autistic Self Advocacy Network’s third annual gala and celebration at the National Press Club is November 12th. Henry Frost is the recipient of the 2013 Award for Service to the Self Advocacy Movement. Dr.  Anne Donnellan  will receive the 2013 Outstanding Ally Award. Henry Frost is a young Autistic student and Florida native who launched a successful, nationally recognized campaign to gain access to the public school in his own neighborhood .The campaign, I Stand With Henry, collected thousands of petition signatures and supporters across multiple social media platforms expressing support for Henry’s right to an equal education. Henry won

Open Letter To Jon Stewart

When I met Jon Stewart I was very disappointed by his lack of knowledge and sensitivity toward autism. During a recent interview, while still a bit condescending, his views seem to have evolved. This is my open letter to him.

Don’t Mix Up Empathy and Civil Rights

Many times in the autism community parents of autistic children do not like autistic adults weighing in on situations that have to do with their autistic children. I am an autistic adult and often have parents telling me that I should not judge situations if I have not lived it – the “until-you-walk-a-mile-in-their-shoes” is told to me nearly every week as I post the latest news articles along with my comments on social media.

How Will the Affordable Care Act Affect People With Disabilities?

The Thinking Person's Guide To Autism interviews Ari Ne'eman of The Autistic Self-Advocacy Network about specific advantages, opportunities, and sticking points of the Affordable Care Act for People with Disabilities

  • .There’s none exempt from this disability community, and as a matter of fact we’re the cool community, because we accept everybody.” Keith Jones

Disability Activist Keith Jones on Community

"So let us remember that when we teach, when we educate, we make policy, we make decisions that we do it with a conscience and that we remember that we are leaving fingerprints on forever." Keith Jones

Judith Heumann: Changing the System

Her activism is clearly rooted in a strong sense of justice. Early on she learned that if she wanted to be part of society she was going to have to fight for the right. "I had no choice because, as a disabled person, I was going to either have to get involved with changing the system that limited me or not participate in society," she says. In 2010, Ms. Heumann became the first-ever special adviser for international disability rights at the US State Department. Her job: Promote and protect the rights of people with disabilities internationally and ensure that US

11 Year Old Jacob On The Right Thing To DO

I said a long time ago that I would not only be an real student In a school that supports me but also a self advocate for those lost in segregated settings echoing the dreaded lives of people in the world that are like me without the right supports.

Issy Stapleton: Emergency Information and Autistic Community Response

Emergency information is on here, followed by commentary. Emergency information for disabled victims is first, since they are in the most immediate danger. Unfortunately, many disabled victims of violence are at the mercy of their would-be-killers. Emergency information for people who are concerned that they might murder or otherwise injure a disabled person follows. Some links are en español. Read More Here.

Dear Issy

You don't know me but I have seen your pictures. You don't know me but I know parts of your story. Soon you will wake up and a lot will have changed. You will be in a hospital because your mother did something terrible to you. I know you love your mom and things are going to be very confusing because people are going to say things that will not make sense. And you will not be able to see or talk to your mom. This is a good thing, and you will understand it later. But I don’t want

Again, We Mourn

My soul hurts and I am naming names. And I am saying, if you have a drop of sympathy for the murderers, or almost murderers, you have blood on your hands too.

Judith Snow

Judith Snow, MA is a social innovator and an advocate for Inclusion – communities that welcome the participation of a wide diversity of people. Inclusion is an opportunity for EVERYONE!

The Reality Behind Those Walls

The Judge Rotenberg Center is recruiting disabled students in the Midwest to be legally tortured with electric shocks. Help us stop this inhumane treatment of disabled people.

Thank You, Ed Roberts

"And we’re going to develop leadership, that has a fundamental difference and that is, it's inclusive . It believes in people, and in our strengths together . And we are going to change our society. " Ed Roberts

We Are Not In Our Own World

We need to be careful about how we think about and talk about people with disabilities. One example is the reference that those who are autistic or deaf or blind or have some sort of movement differences are “in their own world.”

EveryBody: An Artifact History of Disability in America

The Smithsonian's Web exhibit of the history of people with disabilities in America shown through photos.

Being Where I Can Simply Be

After a three-day conference, I needed to sleep. I needed to sleep because I was dreamy, trying to keep the feeling of being in a place where I can be myself and also be a little bit like a star. Also, building community.

Senator Harkin Delivers Speech in ASL Upon ADA Passage in 1990

Upon passage of the landmark Americans with Disabilities Act (ADA) on July 13th, 1990, Senator Tom Harkin delivered a speech on the Senate floor in American Sign Language. Harkin, whose brother Frank was deaf, was the lead Senate author of the ADA, which was enacted later that year. His speech is the first in American Sign Language to be delivered from the Senate floor.

  • There is a big difference between HEARING what you are saying & UNDERSTANDING what you are saying. Linda Tossoonian on Ollibean

Deaf Parent Advocates for Communication Supports She Received from Same School 40 Years Ago

Deaf mother goes before Hillsborough County School District Board to advocate for son's necessary services. The 8th largest school district in the country has an operating budget of $ 3 billion. Despite being notified in advance of her attendance, the district was unable to provide any access .

National Disability Leadership Alliance (NDLA)

National Disability Leadership Alliance (NDLA) is a national cross-disability coalition that represents the authentic voice of people with disabilities. NDLA is led by 14 national organizations run by people with disabilities with identifiable grassroots constituencies around the country. The NDLA steering committee includes: ADAPT, the American Association of People with Disabilities, the American Council of the Blind, the Association of Programs for Rural Independent Living, the Autistic Self Advocacy Network, the Hearing Loss Association of America, Little People of America, the National Association of the Deaf, the National Coalition for Mental Health Recovery, the National Council on Independent Living, the

ADAPT

ADAPT is a national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom. The ADAPT Youth Summit will take place on in Chicago, Illinois.  We are training young people with disabilities on direct action and nonviolent civil disobedience.  If you are interested in supporting this year’s event or participating in next year’s group, please email Josue at adaptyouthsummit@yahoo.com.

J.Cole Writes Apology Letter to Autism Speaks

J.Cole offended many over the lyrics "I’m artistic, you is autistic, retarded" in his Jodeci Freestyle rap number. He was called on this.  The Anti-Bullying Alliance created a petition and asked for a formal apology from each rapper, as well as the offending words be removed from the song. Read the original article and letter on Complex Music here http://www.complex.com/music/2013/07/jcole-writes-apology-letter-autism-speaks.   Kuddos to J.Cole for writing an apology letter that sounds sincere. The disheartening thing about his letter is that it is addressed to Autism Speaks. J. Cole offended autistic people, not an organization – in this case an organization that

  • I fear that Hillsborough County School Board is standing on the wrong side of history.

Disabilty and Civil Rights: Standing On the Right Side of History

"If we were to go back to the 1960s and we were to talk to those leaders who were vehemently against desegregation, we would hear the conviction in their voices of them stating why they believe their decisions and what they were doing to those children were just. Just as I believe that some of you and some of the board members that have spoken believe that their decisions are just. But, I fear that the Hillsborough County School Board is standing on the wrong side of history."

Inclusion is a right not a privilege.

Inclusion is not only socially just, but research shows it improves academic outcomes for all students.

  • Teenager with brown skin and dark brown hair smiling and wearing a "got inclusion" t-shirt.

I Am Here To Make A Difference For My People

"I am here to make a difference for my people. I hope that you listen to what I have to say. I want people like you to stop judging me." Tres Whitlock

Seattle Children’s Hospital Pulls Bus Ads After Community Outrage

“Autism is a disability, but it is not a disease. It is not a life-threatening illness,” said Matt Young, co-leader of ASAN-WA. “The idea it’s a state to be wiped out has much negative impact on our lives.”

  • Boy with gray shirt running in grass

Advocacy Groups Call for Autistic Teen’s Killers to Be Charged With Hate Crime

How does it make you feel when you hear a story about a mother killing her child? Does hearing that the child had a disability change how you feel? For some people, it does. It changes how they feel enough so that they'll start speaking as if they support the parent's actions, citing unbearable stress and lack of supports and not being able to take the pain to see of seeing a child with disabilities in pain. We heard the media and public talk about this in Canada when Robert Latimer put his 12-year-old daughter Tracy, who had cerebral palsy,

  • op one fourth of book cover is a white background" Black and White" written in black text with capital letters in large font "A Colorful Look at Life on the Autism Spectrum"Beneath also in black text with capital letters written in small font . Middle section contains a color photograph of blonde light skinned woman in profile . Text in right hand corner reads A Book by S.R. Salas Bottom quarter of bookcover has a black background with white text, small font that reads "Renee provides a fascinating insight to autism, I highly recommed (her) book..."- Dr. Tony Attwood "Black and White provides an inside positive view of autism..." - Dr Temple Grandin

Ollibean Spotlight: Renee Salas

" Talk to people with disabilities. As many as you can: Adults, adolescents, kids. These people are the real experts on disabilities. These are the people that can tell you what life with a disability is like." Renee Salas

Much Needed Resource: “We Are Like Your Child”

"We are like your child. Your child is like us. And we may have difficulties, we are disabled--but there is no denying that we are also awesome."

  • White Rectangle With ASAN logo in left corner, large black text reads "ASAN " underneath smaller black text "Autistic Self Advocacy Network" . A narrow blue line separates the grey text that reads "Nothing About Us Without Us"

The Autistic Self Advocacy Network

The Autistic Self Advocacy Network is a 501(c)(3) nonprofit organization run by and for Autistic people.

Untitled

This is not directed at anyone in particular. It is about several people I’ve met throughout my life. I sometimes need to remind myself that being me means following my own agenda and not pleasing the ones who will not be part of my story.

Stop Hurting Kids

Join the Stop Hurting Kids campaign to end restraint and seclusion abuse in schools.The easiest way to make a meaningful contribution is to take a stand.

Ariane Zurcher: Non-Speaking Autistic Woman Writes Book

Barb Rentenbach's funny, poignant and beautiful must-read book, I Might Be You: An Exploration of Autism and Connection, is now available as an audiobook.

Hi @KatieCouric I am #autistic & would like to talk to you about #inclusion, #communication & #civilrights #KatieAutismChat

Katie Couric will have a Twitter Chat with Autism Speaks on Wednesday May 29th at 1pm EST . Autistic people should be in the chat. hashtag #KatieAutismChat. This is my message. Hi @katiecouric I am #autistic & would like to talk to you about #inclusion, #communication & #civilrights #KatieAutismChat .    

Amy Sequenzia: Does it matter?

Should it matter that some of us are labeled intellectually disabled? Read the definitions, look at us in a realistic way and ask yourself; Does it matter? Aren’t we all worthy?

Autistic Hoya: Ordinary Lives

When I demand equal access, equal opportunity, equal rights, I'm not insisting on my superiority, innate or acquired. I don't want special treatment. I want to see the removal of cultural paradigms about what types of bodies and minds should be valued and what types of bodies and minds should be deigned for marginalization. I don't want a world that advantages me over you. I want a world where oppressive systems that ultimately hurt everyone have been overcome, dismantled.

2013 Top Ten Signs of Special Ed Advocate Burn Out

Subtitle: Why you may need a trip to a COPAA conference to relax. 1. You thought the OSEP’s MOU on NCLB’s AYP came from CDC and was about another STD. 2. You are were actually able to follow #1. 3. You asked the Advocate Committee to research OCR guidanc

Ostracized for Autism

"The reason for this article is to spread awareness about why people shouldn't believe everything they see or hear from powerful people and companies. Respecting authority is great, but believing everything they say may make you a brainwashed, horrible person. Also, this article was written to remind people to treat others how they'd like to be treated, and not act cold to them regardless of how different they are."

By |May 6th, 2013|Categories: Advocacy, blog, General|Tags: , , , |0 Comments

Shouldn’t New Disability Awareness Course Be Mandatory for Police?

Kudos to New York State for making train-the-trainer disability sensitivity training available to its law enforcement officers as of April 2013, with the stipulation that police officers that take the course must take it back to their respective police agencies. But why not make the training mandatory instead of just "available"? The First Responders Disability Awareness Training Course augments the very basic curriculum in disability sensitivity offered to New York state police officers as part of their core training: 14 hours on mental illness, but only two on autism, Alzheimer’s disease, and blindness and deafness , and none on intellectual

  • AUTISM ACCEPTANCE, A HUMAN RIGHT. The Ollibean Equal sign is in the middle,

Autism Rights Are Human Rights

Autism Rights are Human Rights Autism Rights are human rights. That’s something every Autistic activist knows. It is printed in t-shirts we wear and it is something we have to keep reminding the world because our rights are violated on a regular basis. We have to fight for the right to be heard, for the right to participate in the conversation about us. Young Autistics have to fight for the right to go to their neighborhood school, with their friends, to learn the same curriculum a non-autistic child learns. That’s why we say that the fight for autism rights

  • a teenage light skinned boy with freckles, wearing a black jacket, blue and white striped sweater, pink collared shirt is standing in front of large columns and steps that lead to the Lincoln Memorial

Listen Up

Listen Up! the PSA from the Autistic Self Advocacy Network and Autism Acceptance Month has been released!

Autistic Hoya: Fighting ableism with ableism doesn’t work

Fighting ableism with ableism doesn't work. In fact, it's just bad policy. Yet that's precisely the tactic that Disability Scoop, "the premier source for developmental disability news," decided to use in its criticism of the latest episode of Glee, in wh

Must Have Autism E-book

Great e-book for Autism Acceptance Month !

  • Autism Acceptance Month, Acceptance Is An Action

Autism Acceptance Month

"Acceptance is an action." Autism Acceptance Month from the brilliant folks at ASAN, is beyond incredible. We could read the About page again and again- and probably will. Check it out. Take the Pledge. What is Autism Acceptance Month? Autism Acceptance Month is about challenging ignorance, prejudice, fear, and hysteria about autism and autistic people. Autism Acceptance Month spreads the word that autism is both a neurological disability and a natural part of human diversity, and centers the voices of autistic people in the conversation about us. Autism Acceptance Month promotes acceptance of autistic people as family members, sons, daughters, spouses, friends, classmates, co-workers,

April and Autism Acceptance at Tampa Theatre

Get your advocacy on. April and Autism Acceptance is in Tampa. The rock stars of disability advocacy- Tracy Thresher and Larry Bissonnette- are back.

Ollibean Art for Change at USF: April. Autism. Advocacy. Acceptance.

A day of inclusive education, community acceptance, and self-advocacy at USF with Academy Award Winning Director and Stars of the Acclaimed Documentary Wretches & Jabberers, NCIE's Mary Schuh, PhD, and Tampa advocate Henry Frost. CARD (The Center for Autism and Related Disorders) at the University of South Florida) will host at USF's Marshall Hall.

Why did Robert Ethan Saylor die?

Where is the public outrage over the death of Robert Ethan Saylor , killed in January while being taken into police custody in Frederick for the crimes of petty larceny and, perhaps, disorderly conduct? Saylor, 26, had Down syndrome, a genetic defect tha

Autistic People Are Everywhere | Musings of an Aspie

This post is a part of today’s “Autistic people are . . .” flashblog. You may have seen the news this week that Google has promised to eliminate the problematic “Autistic people should” autocompletes in response to last week’s flashblog. They’ve said it will take time to engineer, so while the hateful autocompletes are still appearing, hopefully they’ll soon be gone. We can make a difference by speaking up. ——- Autistic people are everywhere. We sit next to you at school and on the bus. We give your dog his rabies shot, teach your kids, make your latte and sweep

People With Locked-In Syndrome Happier Than We Assumed

Locked-in syndrome leaves people awake and aware, but unlikely able to move or talk. But does it leave them unhappy? The largest study of locked-in syndrome to date says, "Not necessarily." Locked-in syndrome is caused by major brain injury, often from some sort of accident. People that have locked-in syndrome are usually totally paralyzed and move their eyes to communicate. It sounds like a very difficult existence, but a "surprising number" of people in the study reported being happy in spite of their disabilities. Researcher Dr. Steven Laureys of Belgium's University of Liege and his colleagues sent a survey to

Sexual Assault and Ableism in Martin de Porres Academy

K.J. told police that she said "No" and "Stop" when the three ninth grade boys sexually assaulted her. She had to be physically assaulted to keep from escaping. But, because K.J. and her attackers were labeled with IQs below 50 the sex is considered "consensual".

  • Photograph of three teenagers at the Obama rally.

Autistic People Are

Autistic people are people. Autistic people are complex. Autistic people are happy. Autistic people are kind. Autistic people are accepting. Autistic people are helpful. Autistic people are mentors. Autistic people are doctors. Autistic people are engineers. Autistic people are writers. Autistic people are leaders. Autistic people are accountants. Autistic people are heros. Autistic people are artists. Autistic people are models. Autistic people are film makers. Autistic people are backpackers. Autistic people are musicians. Autistic people are teachers. Autistic people are sherpas. Autistic people are trainers. Autistic people are neighbors. Autistic people are brothers. Autistic people are sisters. Autistic people are

  • autistic people speaking, The Loud Hands Project

“Loud Hands – Autistic People, Speaking” A Review

The title of the book should be enough for anyone who wants to know, know more or know anything, about autism and Autistics to buy it and read it.

  • EmmasHopeBook dot com

We Love Emma’s Hope Book

Ariane Zurcher is definitely one of our favorite writers. She writes with exceptional honesty, insight, and beauty.

Deaf Teenager Gets AMC to Offer Closed Captioning

Johnny Butchko, 14, is hearing impaired. Tired of being unable to watch a movie at his local theatre, he stood up and got AMC to provide Closed Captioning in Santa Monica. But he's not stopping there.

Breaking News from Autistic Hoya: The End of Torture at the JRC?

Massachusetts Governor Deval Patrick filed a motion to vacate (render null) the 1987 settlement agreement that has permitted the Judge Rotenberg Center to use aversives, including the notorious electric shock GED devices.

How Should We Rebuild the U.S. Education System?

Three learning enthusiasts share their blueprints for rebuilding the U.S. education system. In the 2nd century A.D., Roman Emperor Marcus Aurelius penned a series of personal writings and reflections known today as “Meditations.” In Book 1, the emperor s

Planet of The Bind: Why Do Banks Still Lag In Basic Service To Blind Customers?

It seems like a natural: keypads with Braille, audio prompts and the like. And advocates for the seeing-impaired have been working with the industry since 1999 to provide just such adaptations.

I Feel Tired

Some parents understand that autism is a natural part of some children’s lives and they fight the societal attitudes toward autistics. That’s love. Some parents don’t, and they fight, and hurt, their own children. This is not love and is one of the things that make me very tired.

Love is in the Air – Media Profiles People with Disabilities

Bill’s and Shelley’s path to marriage is not unlike many others who fall in love, lose touch as life takes its turns, and reconnect later in life when the time is right.

  • woman with black and gray hair speaking at podium

Karen Clay Defines Inclusion for Hillsborough County School Board Member Olson

"I fought for him to remain in the classroom, I fought for him to attend his neighborhood school. I did not have to fight for him to be fully included, because Principal Vince Sussman at Plant High School knew that students with disabilities have value, have worth."

Including Students with Food Allergies in the Classroom – 02/08/2013

Food allergies are becoming a very common concern in schools today. According to the Food Allergy and Anaphylaxis Association, approximately 6 million children under the age of 18 have a food allergy. With these numbers of children, schools need ensure t

Autism Acceptance – Leading the Conversation

I want to talk about Autism Acceptance again. I want to talk about Autism Acceptance because soon we will be, again, referred to as tragedies, burdens, afflictions. This will go on, more than usual, for the whole month of April. April is the month chosen

Krip-Hop Nation: Music, Advocacy and Education

"Where were the other people who looked like me as a Black disabled young man? With this continuous question of race and disability along with my love of poetry and music, I started to question the arena of music and performance around the representation of musicians with disabilities, especially disabled musicians of color." - Leroy F. Moore, Jr.

‘Impaired Perceptions’ – Photographer Brian Steel Fights Ableism

"The overall message is that you cannot tell what a person is capable of or what their life is like simply by looking at them. " Brian Steel

A Child With Down Syndrome Keeps His Place at the Table

IT’S rare that our daily lives adhere to dramatic form. But as reported on Today.com/Moms (“Waiter hailed as hero after standing up for boy with Down syndrome”), among other places, a little morality play took shape a few days ago in a Houston restaurant

By |January 26th, 2013|Categories: Advocacy, Articles, General|Tags: , , , , |0 Comments

Worth Repeating: Ed Roberts’ 504 Sit-In Victory Rally Speech

Editors' Note: Following is the text of a speech by Ed Roberts, one of WID’s founders, at the 504 sit-in victory rally in San Francisco, April 30, 1977. We have chosen to reprint it to celebrate Ed Roberts Day, which was January 23. Ed’s speech captures his spirit, his vision and his commitment to the disability rights movement that was in its infancy in 1977. The San Francisco sit-in, still the longest such action in a U.S. federal building, was part of a national cross-disability protest to force the Carter administration to sign regulations to enable the enforcement of section

When Autistics Grade Other Autistics

“If you judge a fish by its ability to climb a tree…”We know how functioning labels are not helpful, despite being largely used by neurotypicals. But some autistics also grade members of our community and I want to understand why.

Understanding Hearing Ability

What does speech sound like to deaf and hard of hearing children? Do deaf children hear anything? Some deaf children do in fact have no measurable hearing, but most children have some degree of residual or remaining hearing. Every child is unique in the sounds he or she can hear and his or her ability to understand them. No two children are alike. Two children who perform similarly on their hearing tests may understand or use sounds in very different ways. It is important never to assume how a student should or will communicate because of hearing test results. Whether

The Inclusive Education of Adults with Autism

This week on The Inclusive Class Podcast, we will be talking about educating adult students with autism. To lead our discussion, will be expert guest, Rhonda Greenhaw. Rhonda J. Greenhaw, MA, BCBA, is a leading clinician and researcher in the field of au

  • Picture of a smiling woman with light brown hair in a pony tail,she is wearing a purple shirt with a black jacket. the text reads "It's the hardest thing to put up with."

No Limits: People With Cerebral Palsy v Condescending Tools

No Limits: People With Cerebral Palsy v Condescending Tools.

Grit Media

Grit Media promotes the rights and aspirations of people with disabilities by creating opportunities to be seen and heard in a range of media productions. Our productions bring disability awareness into peoples' homes through the depiction of realistic, compelling and entertaining content, that encourages audiences to see disability as a natural part of life. The organisation provides training opportunities for people with disabilities and aims to encourage the wider media industry to join our battle against a culture of harmful misconception and ignorance about disability. Welcome to Grit Media.

Ido In Autismland

We love Ido In Autismland, a blog by Ido a young autistic advocate who types to communicate.

People Are Watching Mr. Hughley

Mr. Hughley, we think you can do better than using the r-word. You said your son doesn't mind you using the word, but there are so many people that do. Words like the r-word perpetuate negative stereotypes about people with disabilities, please don't use it.

I Am Autistic and I Know What Autism Is

Autism is not a set of deficits. Autism is complex and all of us can self-advocate despite the difficulties we might face. Autism is life. I am Autistic, I self-advocate and I am happy.

Awesome Resource : Tiny Grace Notes (AKA Ask an Autistic)

We absolutely love Tiny Grace Notes. Check it out, you will too. Elizabeth (Ibby) Grace is brilliant, kind, and all around wonderful. Got a question about autism? Send it to Dear Ibby! Ibby is an education professor, a researcher, a mom, and Autistic. There is something about Ibby. She is one of those people who are easily able to convey warmth, respect, goodness, and so much information in  just in a couple of paragraphs. Read her blog, you'll see. But, carve out some time, you won't read just one.  

Raising Rebel Souls

We are huge fans of Raising Rebel Souls. Heather  is an incredible writer and advocate, and stood firmly with Henry:) Here's a bit about Raising Rebel Souls: Rebel Mommy: I am Rebel Mommy, also known as Heather. I have been given a lot. I am lucky in love. Yes, my hands are full, yes, I drink too much coffee, yes, my dishes are currently piled up and no, I am not a good housewife, but yes, I am a damn good Mother. I was born to do it. I swear to you, my life before my sons, was just me

It is About Respect

Respect for one another is one basic quality if we want to have meaningful conversations and relationships with other human beings. The ableism that disabled people experience is a form of disrespect.

My Top Ten

These are the top 10, now top 18 things I need for teachers, therapists, doctors, friends and family to know.

My iPad Is Not a Toy

Please never refer to my iPad as a toy. It is not. It is my voice. Imagine if you could not speak with your mouth how important your iPad voice would be.

  • Boy with brown hair and blue and white checked shirt holds sign that reads The Civil Rights Act of 1964 granted equal rights to all people. I am a person. I want these rights.

Standing Together for Inclusion

Standing together for inclusion, communication and civil rights. Please include all kids in your classroom.

TPGA’s All Ages Holiday Book Guide

Do you love to give and receive books? We love to give and receive books. So for you and for us, here's a short selection of recommended books by, for, about, and enjoyed by autistic people and their families. If you have additional suggestions for books

UNH IOD Standing With Henry

But after watching Wretches and Jabberers, a film about autism and self-advocacy, Henry’s way of interacting with the world changed radically. He realized that he had a voice, could use it, and had a right to participate in discussions about his education and life.

Shatter the Myths About Autism

"No Myths". Must see PSA by the Autistic Self Advocacy Network and the Dan Merino Foundation. Change the conversation about autism.

  • boy wearing a turquoise tshrt that reads "Not being able to speak is not the same as not having anything to say" sitting on couch one hand on iPad one hand on his dog . The dog is yellow lab/golden mix .

Henry Frost on Inclusion on the Autistic Self Advocacy Network

Henry wrote about inclusion for the Autistic Self Advocacy Network, read the entire article here. Ari Ne'eman, president of the ASAN, had an enormous impact on Henry's decision to speak out about his desire to attend his neighborhood school. "I met Ari at theAutism Summer Institute. I wrote to him about my school and he understood. He helped me advocate for my rights. ASAN helped with the petition. He is also autistic. He is also my friend. I did not read about a person who liked being in a separate school away from their friends learning cooking for life skills

Use Your Words: Non-Verbal, Speech, and AAC

I see a little girl every week at events that my child attends. She's great. She's nine years old, has a fantastic laugh, and a mischievous sense of humor. She loves puddles, chocolate cake, and apples. She has a small crush on my son. She's also non-ver

Editorial: Disabled Senate rejects U.N. rights treaty

Former Senate Republican leader Bob Dole is wheeled into the Senate on Tuesday.(Photo: CSPAN2 via AP) Dole, a former party leader and a disabled veteran, tried to champion the treaty in the Senate. The opponents persuaded 38 Republican senators to vote n

Shouldn’t Every Day Be International Day of Persons with Disabilities?

We are committed to removing barriers to create an inclusive and accessible society for all. Not just on December 3rd, but each and every day.

I Am

How do you talk to someone who uses AAC?

  • I Stand With Henry

Autistic Student Wins the Right to Go to School

Henry Frost had a pretty simple goal: he wanted to go to school like any other kid.

Emily Willingham “Autism Bingo: The Congressional Hearing Version”

Our science editor Emily Willingham live-tweeted Thursday's Congressional autism hearing from the perspective of a scientist, autism parent, critical thinker, and human. She Storified and annotated the experience, turning offensive keywords and laughable

Autism on CSPAN Washington Journal

Hi. My name is Henry Frost. I am a 13 year old Autistic self advocate. I agree with Ari Ne'eman. This is a civil rights issue. Communication and inclusion are basic civil rights. I made this video about civil rights. I made a FB page and petition so I could go to school in my neighborhood. Ari and ASAN helped me advocate. http://www.facebook.com/IStandWithHenry , change.org/henry People all over the world wrote this is a civil right. We want the same things in life. We are not so different. Please watch to understand how much we need support for

ASAN Statement on Upcoming House Autism Hearing

“We’re profoundly concerned by the decision by the House Committee on Oversight & Government Reform to convene a hearing on autism next week without the inclusion of any Autistic witnesses or representatives from organizations run by Autistic people. Jus

Inclusion in Tampa

' With a little help from his friends'. Henry's inclusion is truly a group effort led by this determined 13 year old self advocate .

Amy Sequenzia: I, Too, Want to Understand.

Why would a parent of an autistic child decide that it is better not to listen to other autistics? Why? I, Too, Want to Understand.

Now, It’s Our Turn!

Tonight, Terri and I had the tables turned on us! It was our turn to be on the "hot seat" when we were featured guests on HuffPost Live. Interviewed by host, Nancy Redd, we appeared live (and on camera - much more stressful than a phone interview!!) to d

Adding the I to IEP: H is at the table

We worked with the wonderful team at H’s Distributed Learning School to update his Individual Education Plan (IEP) and for the first time ever H was there to take part. He wasn’t completely interested – but we built-in other options for him so he could p

Paula Kluth on The Inclusive Class Roundtable

Paula Kluth's strategies for teachers who might be reluctant or don't know where to begin with inclusion on The Inclusive Class Roundtable, as well as some of our favorite things from her website, PaulaKluth.com.

Amy Sequenzia: To You, Young Autistic Friend

Autistic advocate and poet Amy Sequenzia's message of acceptance and respect for young autistics for 2012 Autistics Speaking Day. "There is nothing wrong with being who you are. You are perfect in your uniqueness."

  • National Center on Inclusive Education (NCIE) a priority area the University of the New Hampshire’s Institute on Disability

The National Center on Inclusive Education (NCIE)

The National Center on Inclusive Education (NCIE) at the University of New Hampshire’s Institute on Disability is a leader in the transformation of schools so that students of all abilities are successfully learning in their home schools within general education settings. Vision When students with disabilities are provided appropriate instruction and supports, they can learn grade-level general education curriculum, communicate in ways that are commensurate with their same-age peers without disabilities, have meaningful social relationships, and graduate from high school—college and career ready.  

Listen to The Inclusive Class Roundtable – 10/26

Inclusive Education, as defined and described by education experts, is a philosophy. It is not a program, nor does it happen in is... Parents of school-age children can often become bewildered by today’s education system and it’s expectations. Its quickl

For collegians with disabilities, success linked to mentoring, self-advocacy

(Phys.org)—A Rutgers study of recent New Jersey college and university graduates with disabilities has found that students attributed their academic success to a combination of possessing such strong personality traits as self-advocacy and perseverance,

Th Inclusive Class Roundtable :”When Schools Say ‘NO’ to Inclusion”

This event brings together experts in the area of inclusive education to discuss and respond with practical techniques when schools say 'NO' to inclusion.

  • Ollibean Think Tank Amy Sequenzia Advocacy on turquoise and green background

Supporting Young Autistics

We hope that young autistics today will be proud of themselves and without shame. The message that boy received at that moment was the opposite of acceptance. It was ableist and it came from someone who is part of our own community.

Inclusive Education: It’s Great If You Can Get It

Inclusive schools need to become a reality for all students across the nation regardless of abilities, socio-economic background and geographic location. Unfortunately, many school districts do not see the inclusive classroom as the Least Restrictive Environment and an appropriate placement for children with special needs. Thus, what one child has free and appropriate access to, another one doesn’t. And then inclusion , which has been proven by experts to be the gold standard of special education, becomes an ideal situation…if you can get it. The lack of universal practice of inclusive education in our school system creates an overall discord in

Justice Department Settles with Florida Bus Companies Over Accessibility Violations

The Justice Department reached four settlement agreements with over-the-road bus companies in Florida in the last month, to ensure that bus transportation is accessible for people with disabilities. The settlements under the Americans with Disabilities A

Wendy’s Franchisee to Settle Lawsuit for Refusing to Hire Applicant with Hearing Disability

DALLAS - CTW L.L.C., a Wendy's franchisee, has agreed to pay $41,500 and provide other significant relief to settle a disability discrimination lawsuit brought by the U.S. Equal Employment Opportunity Commission (EEOC), the agency announced today. The EE

Landmark Decision Promoting Accessible Books for the Blind

Baltimore, Maryland (October 11, 2012): The National Federation of the Blind (NFB) today applauded a decision issued on October 10, 2012, by the U.S. District Court for the Southern District of New York, which permits the distribution of millions of book

Why is a 13 year old protesting in order to go TO school?

How did we get here? How did we get to a point that our 13 year old son has to fight for the rights that are already his under federal law? How did we get to a place where a pretty reserved kid has the courage, the will, to do this?

Netflix pledges to caption all content by 2014

Netflix will offer closed captions on all TV and movie content by September 2014 as part of a settlement with a deaf Massachusetts viewer who sued the company. The on-demand Internet streaming service agreed to the settlement Tuesday in U.S. District Cou

Social Media Helps Student With Autism Find His Voice

Henry Miles Frost and his service dog, Denzel, protest outside a downtown Tampa building during the Republican National Convention. Since he posted the photo to Facebook, he’s found global support in his effort to enroll in his South Tampa neighborhood s

National Council on Disability (NCD) Releases Report on Rights of Parents with Disabilities & Their Children

WASHINGTON, DC -- On Thursday, September 27, the National Council on Disability (NCD), an independent federal agency, released “Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children” -- a groundbreaking policy study, inf

Bureaucrats

You look at me But you don’t see me You talk about me but not to me You think you know all about me But you deny my humanity You think I don’t have wishes You believe I don’t have plans You don’t respect my basic rights According to you I should be grateful That I have a place to sleep That I have three meals a day If I say I want to go out You ignore me To you I am only a burden Too disabled to have an opinion To you I don’t count as a person

Presume My Competence

Really, this is number one. Please presume my competence.

  • Top 10 things I need you to know

Focus on My Strengths

#4 Please focus on My Strengths. I have many. We all do.

I Stand With Henry

What Henry is doing is advocating for his rights, at the same time that he reminds us of our own rights and about how far we still have to go.

Top 10 Things Autistic Self Advocate Needs Teachers to Know : # 3

Top ten things I want you to know. Number 3: Please talk directly to me, not to my support person.

  • boy wearing a turquoise tshrt that reads "Not being able to speak is not the same as not having anything to say" sitting on couch one hand on iPad one hand on his dog . The dog is yellow lab/golden mix .

Autistic Student’s Top 10 List for Teachers of Students with Special Needs #2

Top ten things Autistic student wants teachers, therapists and friends to know about students with special needs... they may be shocking to some of you, but hopefully to most they are exactly what you expect. Here's number 2.

  • Girl with brown hair , blue tshirt is holding an iPad out in front of her. Her face is obscured by the iPad. Boy with Brown Hair holds a white sign that says " The Civil Rights Act of 1964 granted equal rights to all people. I am a person. I want these rights.

A Sister Stands with Her Brother: I Am Heard, I Am Important, and I Am Included

No one wants to be the excluded one, the one to stand alone in silence, the one left out of the conversation. No one wants to be forgotten. So why are some individuals treated this way? Luckily it just takes one person to stand up and include, and the rest will follow. Be that person, take a stand, make a difference.

A Poem About Pain

Other people have written better articulated articles about the same things I write in this poem. It is hard for me to elaborate beyond the words in the poem. It could have easily been me in some cases, it can happen to any of us.

StateImpact Florida A Finalist For Innovative, Investigative Journalism Award

From our investigation: Tres Whitlock types on the DynaVox tablet that serves as his voice. Whitlock, 17, has cerebral palsy and can’t speak on his own. He tried to enroll in a Hillsborough County charter school, but the school had concerns about the the

I am the 20 % and the RNC

Henry takes his bi-partisan message of inclusion and civil rights for all to the Republican National Convention.

Looking to November, Disability Advocates Call for Accessible Polling Places

A Federal Court Judge will hear testimony Monday about how to make city polling sites more accessible for people who use wheelchairs or have vision impairments. Earlier this month, U.S. District Judge Deborah Batts ruled there were pervasive barriers at

By |August 27th, 2012|Categories: Advocacy, Articles, General, Politics|Tags: , |0 Comments

My Civil Rights

Inclusion, Martin Luther King, Jr, The Civil Rights Acts of 1964 and education.

National Federation of the Blind Applauds National Council on Disability Report

Dr. Marc Maurer, President of the National Federation of the Blind, said: “We applaud the National Council on Disability for its strong affirmation of the value, equality, and dignity of workers with disabilities, and for its recommendation that Section

First Day of School

Today is the first time that Henry has not had a First day of School. He is not allowed to go to his neighborhood school that is about 200 yards from our home.

  • Ollibean Think Tank Amy Sequenzia Advocacy on turquoise and green background

Amy Sequenzia : Friendship and Respect

It is a mistaken idea that we, autistics, lack empathy. It is also a myth that we are not social. My friends and I, we understand and respect differences. And we understand that we all have a lot to contribute, in a diversity of manners.

Amy Sequenzia: “Storm”

"Storm" a poem by autistic self-advocate Amy Sequenzia.

Mom seeks heart transplant for autistic son

A Pennsylvania woman whose autistic adult son was not recommended for a heart transplant because of his illness and the complexity of the process, among other factors, said she wants to bring more attention to the decision-making process so that those wi

WEBSITE WEDNESDAY: The Accessible Principal

I am so thrilled to share the with you, which is a new blog that was launched this summer by one of the best administrators I have ever met. Marilyn is a school and district leader in a suburb here in Chicago and she has interests ranging from technology

Disability in an Ableist World

Disability as a constructed concept is not a commonly understood or propagated idea in the mainstream of an ableist society. The average non-disabled person, and frequently even disabled people who’ve had limited or no exposure to disability rights theor

How to Make Inclusive Practices a Reality For Your School

The new school year is fast approaching and The Inclusive Class Podcast is set to help you prepare! On Friday, August 10, 2012 we will kick off our "Back to School" series which is 3 podcasts that will discuss tips, strategies and resources for helping y

  • Change Leader in pink capital letters. AMY SEQUENZIA in brown capital letters with brown line on top and bottom of text. poet. advocate. human. lower case text

Change Leader: Amy Sequenzia

"Presume competence. The same way I want people to assume I am competent, I also assume that others are competent".

  • Ollibean Think Tank Amy Sequenzia Advocacy on turquoise and green background

Amy Sequenzia:Dear Mainstream Media

I am an autistic woman, non-speaking and I have many needs.Yes, dear mainstream media, I am the autistic supposedly too “low-functioning” to deserve to be heard. You pity me and you ignore the facts.

  • Because we are all human beings and ‘disability’ does not define a person. And I hated social injustice and inequality from a very young age. I dislike ‘disability labels’ and I feel that children deserve something better than to be segregated and denied an equal education and a means of communication on grounds of disability. Richard Attfield activist. author. human.

Change Leader: Richard Attfield

Richard Attfield, a contributing author to "Autism and the Myth of the Person Alone", is passionate about the rights of children with disability labels to have equal access to education and communication supports.

  • Change Leader Richard Attfield author.activist.human.

Change Leader Questionairre: Richard Attfield

Change you would you like to see in your lifetime? "The end of discrimination towards children/people with disability labels. And the human right of communication implemented fairly. " Richard Attfield

  • Self-advocacy Road trip 2012 all of a kind

Self-Advocacy, Inclusion, Communication, and Friendship Roadtrip 2012

Our three week Roadtrip has begun. Syracuse, then on to New Hampshire and the Autism Summer Institute.

The Americans with Disabilities Act: CEC Celebrates 22nd Anniversary

On July 26, 2012 the United States will mark the 22nd anniversary of key landmark legislation, the Americans with Disabilities Act, also known as ADA (Public Law, 101-336). Signed into law by President George H.W. Bush, this historic legislation resulted

By |July 25th, 2012|Categories: Advocacy, Articles, General, Politics|Tags: , |0 Comments

Dole, Coehlo Urge Congress To Ratify Convention On Rights Of Persons With Disabilities

(The Hill) July 18, 2012 WASHINGTON, DC-- [Excerpt provided by Inclusion Daily Express] As two individuals with disabilities who served in Congress, the passage of the Americans with Disabilities Act in 1990 was not only a proud moment in our careers, it

By |July 19th, 2012|Categories: Advocacy, Articles, General, Politics|Tags: , |0 Comments

“We Want Respect”: Adults with Intellectual and Developmental Disabilities Address Respect in Research

Abstract Respect is central to ethical guidelines for research. The scientific community has long debated, and at times disagreed on, how to demonstrate respect in research with adults with intellectual and developmental disabilities. To illuminate the v

  • Ollibean Think Tank Amy Sequenzia Advocacy on turquoise and green background

Ollibean Think Tank Member Amy Sequenzia

Amy Sequenzia is a poet and autistic self-advocate. Her writing is as beautiful and powerful as she is. She is an extraordinary voice in the disability rights community .

Florida Alliance for Assistive Services and Technology ( FAAST)

About FAAST Our Mission is to improve the quality of life for all Floridians with disabilities through advocacy and awareness activities that increase access to and acquisition of assistive services and technology. We value each individual's right to achieve their highest potential and the possibilities that can be realized through collaborative efforts focused on the goal of improving life for Floridians with and without disabilities. FAAST has worked with thousands of people with and without disabilities throughout the state to provide: Hands on assistive technology demonstrations and trainings Financing for assistive technology purchases Assistive device lending programs Community outreach to rural and

  • “I can’t speak for my friends, but labels hinder my life. I reject labels. I am just me.” Amy Sequenzia

Amy Sequenzia: “Just Me”

Amy Sequenzia writes about rejecting society's many labels. Perceptions such as “super spectacular” autistic and “low-functioning” are equally harmful .

Support the Convention on the Rights of Persons With Disabilities (CRPD)

The Convention on the Rights of Persons with Disabilities (CRPD) is an international treaty that outlines the obligations of ratifying countries to promote, protect, fulfill, and ensure the rights of persons with disabilities. It embodies the American id

Change Leader: Larry Bissonette

Our first Change Leader is artist and disability rights advocate, Larry Bissonnette. Larry's art, writing, presentations, and films are changing perceptions about disability around the world. His quote in Wretches & Jabberers, "More like you than not" says it all.