• Black and white Photograph of bridge. Text reads "Whenever fear of an already marginalized group occurs history has shown that the results are horrific. Please do not be part of society going there. You can inform yourself. JUDY ENDOW ,Ollibean Logo Ollibean and outline of a circle made up of equal signs of various shapes and sizes

Autism and Public Perception

Autism and Public Perception by Judy Endow Today we have added something to our public perception of autism. Historically that perception has been one of an isolated small child rocking or head banging, oblivious to the rest of the world. Even though that perception is wrong, it is the public perception. There is an addition to that perception in the past few years. It seems society has added an adult image of autism. It is another false image, but never-the-less, quickly becoming an accepted public image of what it means to be an adult autistic. Unfortunately for

  • Blurred photograph of Mt. Everest, text reads" A VIBRANT MIND HIDDEN IN PLAIN SIGHT, Martin Pistorius . Ollibean logo, Ollibean and outline of a circle made up of equal signs of various shapes and sizes

A Vibrant Mind Hidden In Plain Sight

Martin Pistorius, author of the New York Times best-seller, Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body delivers one of the most impressive and thought provoking Ted Talks ever. Martin Pistorius' story serves as an urgent call to action to change our assumptions about verbal speech and intellectual capacity. It also reinforces the absolute necessity to treat each human with dignity and respect. How many people are waiting right now for someone to acknowledge their means of communication? How many are waiting for someone to talk to them respectfully and then to listen and watch for subtle movements-

  • What you see as “inspiring”, the way we do things, the way we lead our lives, is not a superpower. It is just our way of navigating this – still – very inaccessible world . Amy Sequenzia on Ollibean

Disabled Lives and Respect

I thought I wouldn't write about this case . I've been following it and the developments have been a sad reminder that disabled people are, in 2015, still seen, talked about and treated as less than human.   Emily Brooks has been writing about it and her analysis is so comprehensive, I don't have much to add. But the rhetoric used by people involved in the case is making my heart hurt.   If you don't know about it, you can read the articles linked above and here . I will not talk about Anna Stubblefield, if she raped an adult

  • We all have value, even when the majority cannot see the wisdom behind our voices (spoken or not). Amy Sequenzia Ollibean logo "ollibean" and circle made from equal signs of various sizes and shape

Assumptions and Ableism

I've recently read an article about how some researches are slowly starting to debunk long held assumptions about autism, Autistics, functioning labels, and how the world needs to provide more appropriate education to “all” Autistics. This is a quote from a researcher (Laurent Mottron): "Early childhood interventions should focus on harnessing strengths, rather than erasing the difference between autistic children and neurotypical kids" Of course, Actually Autistic people have been saying this forever. We have been warning parents about the damages caused by "therapies" that seek to train Autistics to make us look "indistinguishable from our peers” for a long

  • "finding some other movement to hook into that will serve to interrupt and change the pattern to match my newer cognitive understanding" Judy Endow. Ollibean logo

Autistic Patterns of Thoughts and Emotions

I use the movement of things outside of me for purposes of thinking and of processing feelings. Recently, autistic friends have let me know that most people in the world do not do this and that it is a rather common autistic experience. I have no idea how common so would very much appreciate autistic weigh in here.   Thinking   My thoughts are all in colors and pictures. Usually there are sounds attached, but not always. To think I need a way for the colors and pictures to move. When my sensory system is calm and integrated the thoughts

  • Purple and green blurred inage. White text reads" Uniquely Human Neurotribes. I am hoping these two books pave the way for society to collectively begin to see that autistics really do know about living the autistic life – that autistics are the experts on what it means to be autistic.Judy Endow,Ollibean logo"

Uniquely Human Neurotribe

This past summer two new autism books were released within days of each other. Each, of it’s own accord, is a game changer if readership becomes large enough. Together the two books could serve to alter the course of autism history in terms of who is given the stage to tell the autistic story. NeuroTribes: The Legacy of Autism and the Future of Neurodiversity by Steve Silberman does exactly what the title says – lays out lots of history. There are so many interesting parts that I never knew existed that have impacted what we believe we know about autism.

  • Announcement. Your feelings about your children’s diagnosis are not as important as their right to privacy, dignity and respect. Amy Sequenzia, Ollibean Logo

Privacy, and Parental Behavior

I've written about this before: parents of Autistic children sharing very private information about their kids, sharing moments that show the kids being upset, or having meltdowns.   These parents share everything publicly, using pictures and videos, the children's real names, even if the children are adults.   Some say that they are trying to help other families, by showing the "real face of autism". These are the "martyr parents".   Others are very angry "at autism" and say they are doing what any parent who loves their children would do: “fight autism”. These parents call themselves "warriors".   Still

  • Faded Image of ocean and waves and rocks. Text reads WILL THE SELF-ADVOCACY SKILLS WE TEACH OUR YOUTH TODAY SERVE THEM WELL IN THEIR ADULTHOOD? Judy Endow ,MSW, Ollibean logo

Autism, Transition Programs and the Impact of Poverty on Self-Advocacy

I am an autistic woman who has lived both in poverty and as a middle-income person during my adult life. I am noticing how self-advocacy is typically geared toward middle-income status. This could be problematic since many autistic adults live in poverty. Based upon my experience I have come to realize that middle class self-advocacy works fine if in fact you are a middle-income person, but doesn’t work well if you are a poor person.   I will explain this more using an example from my life as a poor person versus a middle class person.   Dental Experience as

  • Photograph of sky and lake at sunset.

Visual Accommodations and Blessings of My Autism

The visual sensory aspects of the way autism plays out for me most of the time means that I get too much information delivered – things are too big, too bright, too bold – typically too much to endure all day. Practically, this means I need to accommodate my sensory system in a variety of ways.   Let’s take but one example from my life where visual overload is a pretty constant problem. Here are some things I have found helpful:   Environmental Accommodations for Overhead Lights   Most of the time I simply do what I need unless it

  • Photograph of open book on a table Text reads "Autism and Changing Classroom Strategies .It is hard to entertain having been wrong, especially when you know it may have negatively affected the lives of children. Judy Endow, MSW on Ollibean"

Autism and Changing Classroom Strategies

The field of autism is very new – not even 100 years old yet! This means we are constantly learning new things. We now know that what works for most children to learn does not always work for autistic children. In fact, it can be detrimental to their learning. Those of us in the field of autism will likely need to change the way we deliver help to those who seek it and change the way we teach our students.

On Not Being “Pretty”

My friend Cara wrote this awesome article about being "ugly" disabled. You should click on the link and read it. Go on, I'll wait.   Isn't it great? The article got me thinking.   Like Cara, I also have cerebral palsy. I sometimes use a transport wheelchair because I have poor balance and I can't stand for too long. When I sit down, my body "flops", or it slowly leans to my right side until I am almost lying down. When it doesn't lean to the side, it tends to relax too much, sliding down the chair. An upright position

Autism and Processing Social Information

My autistic neurology means that I am not good at picking up typical social cues, understanding complex social situations, automatically picking up meanings of idioms, or understanding the hidden curriculum that most others automatically pick up (Endow 2012). This means I often look naïve and gullible. The fact is I AM naïve and gullible when I try to use the social constructs of neuromajority folks to navigate the world around me.   When I was younger and deemed “in need of help” that “help” largely involved others trying to teach me to think and act as if I had a

Autism and Stubbornness

I am an autistic woman. Most of my life people have let me know they think I am stubborn and controlling. Over time I have learned to hide the behaviors so people do not think I am stubborn and controlling. I understand you view my stubbornness as a bad thing so I have learned to hide it.   Today I would like you to consider that what you label as stubborn and controlling is often a solution to help us manage our anxiety and fear.   Whenever we have a fearful or anxious moment – and those moments tend to

Accommodations – They Make All The Difference

Accommodations are important and they work. I should not be making a big deal about it. The ADA is 25 years old. Sadly, getting the accommodations we, disable people need, is often the opposite of simple.   If you have been reading my posts, you know that I am very visibly disabled. I am also proud, and I don't try to be someone other than myself. I do require a lot of supports, and once I have them, I can do anything I set up as goals. I have goals, or simply things I want to do, that most people

Using Autistic Strengths to Make Friendships Work

I am an intelligent autistic woman. I manage my own business, have raised three great kids and interface with the world around me with a fair amount of success. Not too shabby considering I lived in an institution as a kid, was homeless as an adult and used public assistance for some years.   Today I am content in my life. It is intentional. I have decided not only to be content, but how to intentionally let go of some things that used to bother me. I hope to get better with this over time because it is great feeling

  • Will Chuck Forget?

Will Chuck forget?

Will Chuck Forget? Chuck is terrified to go to school. He has stuttering. Others laugh when he says something. He has a breakdown at school. Some boys do feel bad but have no courage to tell and stand up for him. The teacher pretends nothing is wrong. Chuck went missing. Questions: Who is responsible? What can his friends do if he is found? What does it mean to watch and look the other way? Will his teachers take initiative and how? What can his family do? Will Chuck forget? End of  the story. I wrote this story when I

Autistic Burnout

Each individual who has an autism spectrum diagnosis got that diagnosis based on deficits. That isn’t good or bad, but rather, simply the way diagnosing works. Diagnostic deficits are based on the social and expected norms exhibited by the majority of people. Deficits are determined by a significant deviation from this majority norm. And, if you deviate far enough from the norm you get a label. If you have a group of deficits that line up with the autism spectrum disorder label then you get that label.   Once an individual has the autism label, we begin teaching skills to

  • NAACP picketing St. Louis schools circa 1950s. Photo credit AARP

Surviving Inclusion: At The Intersection of Minority, Disability and Resegregation

Kerima Çevik on Surviving Inclusion: At The Intersection of Minority, Disability and Resegregation “I see the work of inclusion as probably the last frontier of desegregation. If you read the brief from Brown v Board of Ed, The board of education argued that if we let the blacks be integrated then the next thing you know is that we’ll be letting people with disabilities be integrated.” Joe Petner, Principal, The Haggerty School,  Including Samuel  NAACP picketing St. Louis schools circa 1950s. Photo credit AARP In October of 2008, we discovered that our son, who was transferred into a full special education

  • Photograph of aqua and blue ocean. Text reads "Sensory system needs change over time, JUDY ENDOW,MSW on Ollibean"

Autism and A Changing Sensory System

Something about autistic sensory difference that I do not see addressed in the literature is the fact that sensory system needs change over time.

Autism and Non-Fluid Speech

I am a speaking autistic woman. Even so, I rarely have fluid access to my speech. Often times I have in mind something I would like to discuss with a friend so as to get their thoughts and ideas on the topic, but even though I know what I want to discuss the words are not available as speaking words. Oh, I know the words – they are in my head – I just cannot get them to come out of my mouth at will.   This often poses difficulties for me. One example is when I am with my

  • Image of group of students and Professor standing with arms crossed looking at the camera.Text reads: "Princeton University students Stand By Henry. We are inspired by you and your family. Thanks. The Spring 2015 Student from Seminar "A History of Disability as Told By Personal Narratives" taught by Professor Wurzburg Anschutz Distinguished Fellow in American Studies."

Now you know . You cannot unknow .

I  told  Professor Wurzburg's class in March and April  about my life and advocacy for inclusion, communication and civil rights. The class asked me questions and I answered. On April 8 I talked to the class on Skype. "This is good. Princeton thank you for this class. Learning about disability experience and discrimination from people who are disabled is the only real way.   I share my experience to change my reality and the reality for my neurodivergent brothers and sisters. No person should experience the abuse. All people deserve respect, inclusion and communication.   Now you know . You cannot unknow

Autism and Visual Detail

Because of my autism I often experience sensory overload. Many times this is painful. I have learned that by keeping my sensory system regulated I can avoid some of the pain. Over time, in the process of becoming more regulated, I have found ways to enjoy my unique sensory system. One of the things I enjoy is a degree of beauty I can see in many things around me. I don’t think neurotypical people often see the detail I do. The reason I think this is because when I comment about something beautiful I am seeing others often do not see it. Sometimes

Ableism and Pity. Reject Them, Be Awesome

I have written about how I had to unlearn ableism.   I have written about my uncooperative body.   I always state how generally happy I am, and that I am comfortable being me.   All this is true but frustration shows up, and grows, every time I meet ableism.   I meet ableism a lot.   Ableism brought forth by pity. Pity directed at me by people who seem to believe I am “trapped” inside my body, that I suffer, or that my life is so hard, they can’t understand how I can even have goals and aspirations.  

Autism and Hiring Help

I recently moved. It involved working with a realtor, a banker, and numerous other people. Today I am contemplating sorting out what to put into my new desk drawers and have a literal pile of paperwork from various aspects of my moving adventure. As each person representing each faction of moving began working with me they explained what they would do, how they would do it and the expected outcome.   For example, the furniture store guy explained how the sale worked, the ordering and delivery of the furniture and the return policy. I asked my questions which were answered

The Hidden Curriculum About Fat

Just started another diet. I am determined to lose a little weight so as to be healthier. I know I can do this because I have done it nine times already. Each time I have been very successful, but the only problem is that each time I have lost the very same weight after having gained it back from the previous episode of losing it. I know I am not alone in this constant weight struggle. Lots of people lose a bit of weight only to gain it back again. Another thing I am not alone in is liking it

OLLIBEAN : Acceptance, Love, Self-Care: #AutismPositivity2015

Autism Positivity is coming out of April stronger. Tired A little frustrated Spoonless. But stronger. Autism Positivity is rejecting blue lights, casting a red shadow and obscuring the blue puzzle pieces of hate. We continue our #WalkInRed call to action, we are joined by accepting friends, old and new. As Elvis Costello has been singing for decades, even the Angels want to wear the red shoes. Acceptance, Love (and the Angels wearing red shoes) = Positivity Autism Positivity is reclaiming words used to devalue us, and giving them their true meaning. Defiant: standing for what we believe in and for

LOOPS

My body movement speed is not average. It is not in the mean. My thinking speed is. My thinking speed is faster than average. My body takes time to agree to cooperate with my mind. If my body chooses not agree to cooperate my thoughts remain my own. More anxiety less body cooperation. Less body cooperation more anxiety. Less anxiety more body cooperation. More body cooperation less anxiety. Excerpt from Wurzburg Seminar at Princeton University

  • Ollibean News Headline ON SURVIVING INCLUSION, Written by: Kerima  Çevik, These groups view inclusion as an educational disaster, as racist educators saw racial integration in its time. Photograph of Gail Etienne age 6, one of the Mcdonogh 3, being driven to school by federal marshals looking very sad. Photo credit: NOLA.com

On Surviving Inclusion

On Surviving Inclusion by Kerima Cevik Three young Black soldiers, bubbling over with the news that the Civil Rights act was just signed into law, and ready to demand a front door entrance and equal treatment everywhere rushed around places where people of color were formerly unseen and unheard. Image is of the first page of the Civil Rights Act of 1964. Credit National Archives. I cannot impart on you what this moment in time meant to them. Imagine being told all your life that you were less than others. Imagine approaching your local supermarket

Scientific Validation of Autistic Humanity

When I was a teenager, the “too much” of life caught up with me. Everything in the world around me was just too much.   …too much noise with the varying sounds of the world clamoring to grab my attention, their pitches and tones wildly crashing into each other as if competing for a speed prize on a race track – or so I wished … If only the cacophony of the world outside my skin would at least line up and compete in some orderly fashion – like race cars on a race track – it would then allow

Autism, Sensory Regulation and Movement Fluidity

Many any individuals with classic autism seem to have neurological movement differences. When these movement differences play out in our bodies, it is easy for onlookers to see, as we may get stuck in one position or in repetitive movement. Sometimes there can be difficulty in getting a body movement going, and at other times once our body is in motion, we cannot stop even if we want to. These movement differences can also play out in thoughts, speech, and emotions, areas that are not as readily observable to onlookers, yet can be daily obstacles to outsmart for some of

  • Photograph taken at sunrise - 2 rows of bare trees and at the end there is a farmhouse that appears lit from within. "Even though the problem is about stuck emotions the solution is NOT in the emotional realm." Judy Endow on Ollibean

Autism and Stuck Emotions

It has taken most my lifetime for me to begin figuring out stuck emotions in relationship to my autism. In discussing this with other autistic adults I have discovered many share this problem. Some describe the stuck emotions as being shut down. There are variations of experience, but there seems to be a shared experience of stuck emotions in autistics. Everyone I have discussed this with agrees that stuck emotions are quite difficult to deal with and, in fact, have led to much misunderstanding and sometimes to psychiatric hospitalizations. Even though I have been talking to other autistics about this

The Reason I Blog

This blog (The Autism Wars), and all the other blogs and projects associated with it, are for my autistic son, Mustafa. But this blog is actually not talking about him without him or about daily life with him with some rare exceptions for times when his daily displays of empathy, kindness, and love towards me move me to write. When I say it is for my son, I mean it is part of my activism and my exploration of what it means to try and ally myself to his cause. This cause is something that too many of us are aware of

Take ASAN’S Pledge to Include Autistic Voices

Please join us and take The Autistic Self Advocacy Network's pledge to include Autistic voices in organizations, conferences and panels on autism. Would you support an organization that advocated for women or attend conferences about women if they failed to include women ? Of course not. Then, please, take a minute, sign this pledge and share widely. Join: Colin Meloy, Lead Singer, The Decemberists, Linda Walker Fiddle, Executive Director, Daniel Jordan Fiddle Foundation Mike Elk, Labor Reporter, In These Times Magazine, Steve Silberman, Investigative Reporter and Author, Wired Magazine, Cecilia Breinbauer, Executive Director, Interdisciplinary Council on Developmental and Learning Disorders

Autism, Inflexibility and Diversity

A universal assumption about autism is that autistic people tend to be inflexible and it is NOT GOOD to be inflexible. Let’s take a look at that assumption. Neuro majority people talk a lot about the inflexibility and the rigidity of autistic people. Seems like they get stuck in that train of thought. Isn’t it quite a narrow perception to believe that everyone should be just like you and should conform to your ways? And yet, as an autistic, if I want to get anywhere in the world I need do just that - to conform to the ways of

Uncontainable Presence

You are anywhere You are anytime Daring and enticing Changes unexpectedly predictable The obstinate constant I see your bright presence Piercing my eyes Crawling into my brain The pain comes swiftly And then, the deafening silence My body shakes in your presence Uncontrollable moves A dance of two wills The music is mute Rhythmically disordered Darkness and pain I'm lost in a sea of dread Forlorn as you carefully exit Leaving behind misery I tremble as the silence roars As the pummeling beat of you presence leaves The sky cracks open in blue A blissful fatigue Exhausted excitement But your

I Paint to Share My Autistic Experience

I started painting with acrylics in 2012. I wanted to use that medium to illustrate aspects of my autism. To date I have written several articles and books along with speaking in three countries about aspects of autism. Painting is one more way to explain some of the nuances of autism to those who might be interested. Painting allows me to show perceptions of the world that I see with my eyes as delivered through the neurology of my autism. I match up what I see with the colors and movements of paint on canvas paper. I have not taken classes

“Autistic People Should…”

Feb. 23, 2013 was this flash blog day. Autistics were asked to complete the phrase "Autistic people should..." as a way to make a positive difference in light of the suggestions given by search engines when that phrase is typed in the search bar. This was my contribution: Autistic people should take and keep a seat on the bus, just like Rosa Parks did in 1955 when fighting for social justice for blacks. I was born in 1955. I am glad black people no longer have to fight so hard for the chance to be seen as part of the

Being

My life through the years I've been listening to this It's enough to bring out tears I need it to immediately cease.   They talk about my existence About my right to be I'm running out of patience I know who I am, I am me.   Cure, treat, fix, change Words that hurt deep in my soul If I do all that they demand My essence is lost, nowhere to go.   They know what to say to scare They do this intentionally But now it is my turn to dare I'm not backing down silently   Not backing

  • The National Catholic Board on Full Inclusion

National Catholic Board on Full Inclusion

National Catholic Board of Full Inclusion has a vision of full inclusion in Catholic schools for students with disabilities. Our mission is to inspire schools to begin the process of becoming inclusive, to educate teachers, parents, principals and priests on what it takes to be an inclusive school and to provide the educational research and real life experiences that support it. National Catholic Board of Full Inclusion on Facebook 

  • Image description: Photograph of boy with white skin and brown hair smiling with his eyes closed. "Breathe" is in text at top of image and Ollibean Logo is at the bottom.

The Quiet Key to This School’s Success

What do you do when you become the principal of a school with the lowest academic performance and  the highest rate of suspension, absenteeism, and teacher turn over? Nothing. Nothing for 15 minutes twice a day to be exact. In 2003, James Dierkean, the innovative principal of Visitacion Valley Middle School in San Francisco, decided to try something unconventional to mitigate the negative impacts that stress was causing for his students and staff. He launched a meditation program. Specifically, a Transcendental Meditation (TM) program called Quiet Time. Principal Dierke and his staff, with the help

Outsmarting the Hard of Autism to Attend Live Theater

I love musicals and other live theater performances. About five years ago I googled the name of the performing arts theater in my town along with “season tickets” and was delighted to discover the possibility for a whole new adventure! My friend Marilyn and her adult son Jimmy (who also likes musicals and has autism) decided they would like to do this too. Each year I am the person who sends out the information on shows and orders the tickets for all three of us. Along the way we had to outsmart the hard of our autism and figure out

Five Reasons You Need to Read ‘Ghost Boy’ by Martin Pistorius

For over ten years Martin Pistorius was trapped in his own body, fully cognizant, but unable to speak or move. He was surrounded by people who believed he was incapable of thinking and tried desperately to get just one person to notice. His story serves as a wake-up call for all of us to drastically change our assumptions about speech and intellectual capacity as well as the need to radically reform expectations and treatment of people with complex communication needs.

  • Image of young boy with olive skin and black hair smiling. He is standing in the desert.

How Being Included Changed This Boy’s Life

Having opportunities to learn with everyone could access more opportunities for all.

High-Functioning or Low-Functioning?

In this life I am missing the ability to go out into the world and just be accepted for my natural autistic self. I must inhibit so many of my natural responses just to fit in enough for others to allow me a place in the world.  I have discovered that to have a place in this world I need to fit into it in a way that makes sense to the majority. For me, this isn't a good or a bad thing - just merely the way it is. Fitting into the world is something I need to balance

Respectfully Connected: Journeys in Parenting and Neurodivergence

We are all about respect, so of course, Respectfully Connected is a Resource We Love!

Drop, Settle + Train

The Supreme Court has a case that affects all disabled people, and the decision can be very damaging for us. We need to trust the police, and the police must “Connect, Respect, Protect” disabled people as they do with all people, not command, advance, hurt , kill.

Autistic Pride

This week someone asked me if I was proud to be autistic. It made me think about pride in general and about the term autistic pride. In general, feeling proud of myself is not something that is front and foremost in my life. When I think of who I am, words like female, adult, Dutch, heterosexual, white and autistic come to mind. None of these things are anything I am proud of or not proud of – they are simply words that describe me. I think of it as a launching pad. This is my originating place from where I

Talking to Autism “Advocacy” Organizations

I had the opportunity to speak, as a public comment, during a meeting of the Autism Society, Florida Chapter. It applies mostly to the National leadership because I think it is past time for some things to change. What I said might not have pleased everyone, and it might have made some angry. But I stand by the words - compliance is not my goal. It needed to be said though, not only to the Autism Society but to all organizations that say they “advocate” for autism. If an organization wants to help, it should not advocate for things Autistics

  • " Meltdown behavior is not impacted by reward systems or by shaping efforts because it is not willful, goal driven behavior." Judy Endow on Ollibean

Autistic Meltdown or Temper Tantrum?

Autistic meltdowns and temper tantrums are not the same thing. Autistic meltdowns typically occur as a response to being overwhelmed.

  • A photograph of a woman wearing a purple shirt and khaki pants giving a speech on stage. TED in bold red letters , and "America's Finest City" is partially visible behind her. On a large screen behind her " Children with disabilities are among the world's most marginalized and excluded children." To the right there is a turqoise circle with white font "Ollibean Must Watch"/ Also in white font " Torrie Dunlap, CEO, Kids Included Together

Isn’t it a Pity? The Real Problem with Special Needs

The Real Problem with Special Needs We love this TEDx Talk from our friend, Torrie Dunlap, at Kids Included Together on benefits of inclusion and the real "problem" with special needs.   Isn’t it a Pity? The Real Problem with Special Needs Torrie Dunlap, CEO, Kids Included Together   Feeling Good about Casting Someone with Special Needs in the Show In the early 90s I was a student on this very campus, and actually, on this very stage. I was a drama major who had a dream to change the world through arts education. The world, however, had something different in

In Sidewalk Cracks: Authentic Relationships

In Sidewalk Cracks: Authentic Relationships In life we play on sidewalk squares. You on your NT sidewalk square You jump to my square to help me out (and so does everyone else) That I need all the help you can give. You teach me to copy your ways. I jump to your square and copy you. You are happy because I am learning To copy your ways in the world. All I have is you helping me And me copying your ways. Is it a wonder the feeling of alien predominates? There is more to jumping over the sidewalk crack.

  • #FreeNeli

#FreeNeli

by Amy Sequenzia  Reginald "Neli" Latson was an 18 year-old Autistic high school student, a good student, a wrestler, when he was arrested while waiting for the library he often visited to open.     Neli was, as teen fashion dictates, wearing a hoodie. He is black, and as bigotry, discrimination and ignorance dictate, he was profiled and reported as a criminal, "possibly carrying a gun".   He did not "comply" with the officer who approached him, already with baseless suspicion, since there was no gun. An altercation sent Neli to jail, trial and prison. He served his time, and

  • Image of young girl in multicolored hammock. She is smiling contently. "Loved As I Am" is in white text with small Ollibean logo.

LOVED As I Am

We can all use a daily reminder that we are loved, accepted and adored for being exactly who we are. Ollibean Goods of the Day- "LOVED as I am" , "You Are Loved" and "I Am Loved" .

  • "I am more like you than autism can ever make me different." Judy Endow, MSW on Ollibean

An Autistic Weighs in on Friendship

I am a professional person who works as an autism consultant to various school districts when I am not speaking and writing. I have an autism neurology myself so I enjoy the privilege of being able to see and experience autism from a variety of viewpoints. One thing that greatly pains me is the continuing wrong assumptions professional people make about autistics and how those wrong assumptions often get interpreted as fact.

  • It's A Holiday, So Let's Celebrate

Autism and Holiday Schedules

Autism and Holiday Schedules by Judy Endow As an autistic getting through the holiday time can be quite tricky. As an autistic parent with children who had different needs it was even trickier. Routine and structure can go a long way! They anchor the days that can otherwise be perceived by an autism neurology as totally chaotic, which in turn, often leads to being overwhelmed and experiencing meltdowns.   1.  Start by creating a visual schedule. You can simply use paper and pencil or use an iPad or computer to make your visual schedule. Words can

Autism and Sorting Out Sensory Snags

All my life I have been easily overwhelmed by sound and motion.  I can hear things nobody else even notices such as the hum of electric devices that are plugged in even when the appliance or device is not in use such as the coffee maker on my kitchen counter.  I can hear fluorescent lights hum, the steady grind of ventilation systems in buildings and the crackling from inside my television when it is muted. When I am in the midst of much movement I tend to get dizzy.  This is really distracting because I am in busy places when

Communication Supports for Speaking Autistics?

As an autistic, I know first hand how my communication abilities are different from the neuro-majority people around me. Most people do not understand my differences because I can speak. On the surface my communication abilities appear normal. This make it very difficult for people to understand when I need accommodations they are just that – accommodations – not personal preferences. For example, even though I can speak to crowds of thousands of people my neurology does not permit me to engage in telephone conference calls in a meaningful way. The most I can do is listen, but after a

Why I Don’t Like “Awareness”

Awareness campaigns of disabilities are only effective if they are planned and run primarily by the groups that are the subjects of the campaign. This is because such campaigns are not “awareness”, but “acceptance” campaigns. We welcome support, with focus on respect, equality and access. We don’t need “awareness” of deficits and tragic rhetoric.

Autism and Eye Contact

A challenge I am continually faced with as an autistic adult is the misinformed presumption and resulting behavior of neurotypical people when I do not look at them the in way they expect, want or demand of me. It is challenging because society has put the onus on me to change. Often it does not matter to others why I am different. They just want me to stop being different. Recently I was told directly, “If you want to be treated like a real person then act like one!” Eye contact can be hard for autistics for a variety of

Autism, Differences and Murder

Ever since the not guilty verdict in the George Zimmerman trial and more recently, after a police officer shot and killed Michael Brown, I have been and continue to be very much afraid in the pit of my stomach. The not guilty verdict and the dragging on of the no fault attitude in Michael Brown’s shooting underlines the fact that in our society it is perfectly ok to track down, shoot and kill someone perceived to be acting different. We fear people who are different from us. Differences come in many forms. If you are White then someone Black is

Speeding, Autism and No Ticket Issued!

In the past few years I have had two encounters with the police while driving my car. The first time I pulled into a school parking lot, answered an email on my Blackberry, gathered my stuff together and let out a little scream, as I didn’t expect to see a police officer standing at my car door! “Good afternoon officer. How might I help you?” I inquired, knowing that it is very important to always be polite to a police officer. “Do you know why I am stopping you?” “No, I do not,” I replied honestly. “Do you know the

Attitudes – Information and Education

This is especially directed at parents, family members and all who spend a lot of time with disabled children. It also applies to adults, even if the way things happen when an adult is diagnosed or needs supports are different from how they happen with children. But we, disabled adults, also deserve to have supportive and informed people assisting us in navigating and participating in the world. When a child is diagnosed with a disability, or born disabled, it is said that parents, and family members, grieve. That's probably because the general perception of any disability is a negative one.

Visuals and Back to School Transitions

Our kids went back to school this month and likely many families are still struggling with the transition. It often seems that as the newness wears off, the getting-down-to-business-struggles begin. Autistic students have a particularly challenging time because their neurology does not permit them to automatically organize the world around them. Teachers and parents can support a child with autism to become more organized. For many it is an essential accommodation so they can be in a place to learn. Autistic students are often visual learners. This means that even though they may be verbal, as stress increases comprehension of

Attitudes – Grading People

Parents and family of disabled people should start demanding that everyone who is part of their children lives stops using functioning labels. We don’t need to be graded. We already have value.

ALL Students Should Be Safe at School

I spoke at Hillsborough County School District's board meeting on September 9, 2014 to address safety concerns for students with disabilities after Tamya Johson, a nine year old student on the autism spectrum was left sleeping on her school bus. The day after this meeting, September 10, Hillsborough School Bus Crash sends 21 people to the hospital. Transcript Mrs Elia, Board members, I’ve come to speak to you today to offer my help and the community’s help to do whatever we need to do to ensure all students are safe in our schools. Being safe while at school is the

The Case for Inclusion on The Inclusive Class Podcast

Check Out Education Podcasts at Blog Talk Radio with The Inclusive Class Podcast on BlogTalkRadio

How To Outsmart “Inflexible Thinking”

Because of my autism I have an autistic thinking style. One characteristic often attributed to me is “inflexible thinking.” Flexibility in thinking has to do with being able to adapt when circumstances change by adjusting or shifting from one expectation to another. This has never been easy for me, but I have learned how to live more comfortably with my autistic thinking style in a world where flexibility is much more highly valued than my inborn trait. First, I had to accept my own autism and the fact that I think differently (Endow, 2009). Self-acceptance doesn’t come easily for most

  • Make Screen Time Learning Time. Captioned Media Boosts Literacy. Ollibean Logo

The Impact of 250 Words on Literacy

Ollibean Literacy Lifehacks : Tools for parents and care providers without education backgrounds to easily provide literacy instruction. Sign up for our free Flashcards of the 250 Words that represent over two-thirds of captioned television.

Attitudes – Communication

Communication is not only speaking, typing, texting or signing. Communication is also being able to listen and understand, being accommodated to make interaction possible.

Pharrell’s “Happy” in Sign Language

Beautiful American Sign Language interpretation of Pharrell Williams's "Happy." An expression of music in ASL composed by Rosa Lee Timm and Azora Telford. The video was produced by a team of Deaf campers & staff from Deaf Film Camp 2014 at Camp Mark Seven. CAST Rosa Lee Timm Azora Telford -- Campers -- (coming soon) -- Teachers -- Bellamie Bachleda Braam Jordaan Bim Ajadi Sophia Ballester Tate Tullier Wayne Betts Jr -- Counselors -- (coming soon) -- Interpreter -- Drisana Levitzke-Gray EXECUTIVE PRODUCER (VIDEO) Convo VIDEO PRODUCER Stacy Lawrence Sophie Sok EDITOR Bim Ajadi CINEMATOGRAPHER/CO-EDITOR Wayne Betts, Jr. VISUAL

Get Your Happy On

Love this video by Tina and Paul Sirimarco. Tina is an ASL interpreter and has been teaching her husband to sign. The videos they have created are so free spirited and joyful that they're really fun to watch. About Paul and Tina : Yup, it's official. They're adorable. "Don't Go Breaking My Heart" is just as much fun to watch.

Attitudes – Introduction

When you are disabled there is a lot going against you. Not that disability is the worst thing someone can experience. It is not. Disability can be hard and some things can be very difficult to deal with. Some of us need medication and managing this can be difficult; some of us experience pain and this can be energy draining; others might have trouble with sensory processing; some might even need hospitalization from time to time. Different disabilities require different approaches, and different types of accommodations. What non-disabled people should remember is that we either learn how to live as

Supporting Autistic Relationships

As an autistic my connections to other people are perceived visually. In fact, I often need to have a concrete visual available in order to be able to think about my friends. A challenge I am often faced with is the erroneous presumption and resulting behavior of neuro-majority people when I need a visual in order to maintain a relationship. Many Autistics Are Visual Thinkers For those of us who are visual thinkers it seems logical that visuals would play an important part in developing relationships with others and in maintaining those relationships over time. In fact, many of us

  • Blue rectangle "250 words = over 2/3 CC" at the top of image. TURN ON THE CAPTIONS is beneath the image. Screenshot of Jobs movie with a blue circle with Ollibean Literacy Lifehacks .Image of close up shot of Ashton Kutcher, a white male with brown hair and brown eyes and beard is speaking. Closed captioning in white "How does somebody know what they want if they've never even seen it?" Next to this image are 12 flashcards- how, does, some, know, what, they, want, if, they, never , see, it".

250 Words Represent Over Two-Thirds of Captioned Television

"There are more than 500,000 words in the English language, but a person who masters only 250 words will recognize more than two-thirds of all words shown in television captions—provided the 250 words are those that are most frequently used. Equally dramatic, a beginning reader could be taught just 10 words—the, you, to, a, I, and, of, in, it, that—and then recognize more than one out of every five words. Mastery of the top 79 words means being able to read half of all words captioned." Source: Perspectives in Education and Deafness, Volume 16, Number 1, September/October 1997 Henry and

  • "We know that when students with disabilities are held to high expectations, have access to a robust curriculum in the regular classroom, they excel." Secretary of Education , Arne Duncan

Students with Disabilities Excel with High Expectations, Access, and Inclusion

"We know that when students with disabilities are held to high expectations, have access to a robust curriculum in the regular classroom, they excel." Secretary of Education , Arne Duncan Until recently, the Department of Education's primary focus was evaluating  states compliance  meeting procedural requirements- timelines for evaluations, due process hearings and transition services. Under the new framework, Results-Driven Accountability (RDA), the Department will also include educational results and outcomes for students with disabilities in making each state’s annual determination under the Individuals with Disabilities Education Act (IDEA). “Every child, regardless of income, race, background, or disability can succeed if

Cheryl Jorgensen

Dr. Cheryl Jorgensen's website is an excellent resource for information about inclusive education, best practices, differentiated instruction, universal design, curriculum adaptation, writing standards based IEPs, facilitating social relationships and much more!

Lizzie Velasquez: Inspiring & Empowering a More Positive Online Environment

At only 25, Lizzie Velaquez is a motivational speaker, the subject of an upcoming documentary and author. In her viral TedX Talk, How Do YOU Define Yourself , Lizzie asks the audience to consider what defines them, and whether they're going to choose to give up in the face of negativity from others, or whether they're going to choose to be happy. After finding a video on Youtube which called her the ugliest woman in the world, Lizzie decided she was not going to let someone who had never met her, bully her – much less, define her. Lizzie has

Creating Visuals Instantly for Unpredictable Activities

As an adult with autism, knowing what will happen during each day is important to me. For children, who have much less life experience, it is often a deal breaker in terms of them being able to participate in life around them. Using visual schedules supports this need both at school and on ordinary days at home, but what about those times when life gets hectic or when spontaneity is in order? Why Visuals Work Having an autism neurology means that neither internal regulation (physical, sensory, emotions) nor external regulation (making sense of the world around us) just happens! We

On Disparity in Education: The Risks and Bravery of Being First

Being one of the first or the only students with any discernible divergence in any characteristic is dangerous, difficult, and involves tremendous courage. Over 50 years ago, at the beginning of a school year, the Little Rock Nine walked with angry white mobs behind them into their local high school to exercise their right to a public education with their white peers. Initially, the Arkansas national guard blocked their entrance by order of the Arkansas governor. Eventually, President Eisenhower ordered my stepfather's unit, the 101 airborne division, excluding my stepfather and all black soldiers, to escort the students to and

  • Image description . Extreme close up of out of focus green leaves. Text reads: "RESEARCH SHOWS THAT CAPTIONED MEDIA INCREASES LITERACY SKILLS IN PEOPLE OF ALL AGES. TURN ON THE CAPTIONS TODAY. Ollibean Logo

How to Improve Literacy Without Even Trying

One of the simplest things you can do to improve your child’s reading skills is already in your home. Closed captioning is free, easy to use, and a natural literacy booster. Research shows that closed captioning increases literacy skills in people of all ages. Simply having the captions on can dramatically improve vocabulary, word recognition, comprehension, and reading . Closed Captioning supports literacy for all. by Lauri Swann Hunt   Turn on the closed captioning in your home; on your tvs, ipads, phones, and computers. Many people think closed captions are only beneficial for deaf and hard of hearing people. And,

An Odyssey: Learning the Hidden Curriculum

Learning the hidden curriculum social rules of society remains a struggle for autistics long after they grow up. For example, even though I am an almost 60-year-old woman with autism, over the past few years, I have learned a lot of new-to-me hidden curriculum items. The hidden curriculum refers to all the social information that everybody seems to know but isn’t directly taught to anybody. Here’s an example: Don’t scratch your privates really means don’t let anybody see you scratch your privates. Guessing at Hidden Curriculum Rules Once I amassed a volume of hidden curriculum items I began being able

Autism and Thinking with Colors

I think in colors. My thinking colors have sound and movement. When I hear spoken words my neurology automatically goes for the match. When I was a girl, I heard the saying, “I got the world by the tail.” Immediately, the matching pictures of tail started popping up in my head. It’s like having a personal version of Google Images. The initial picture search produced a variety of tails of animals. Then, there came the images of the ground mist I saw each morning when I went outdoors after breakfast. I assigned the world tail words I heard to this

  • Green rectangle with boy in profile. Boy has olive skin and brown hair and is wearing a hearing aid and white tshirt with orange sleeves. Dark green text " Accessibility is a right not a privilege." Ollibean

Accessibility Is a Right Not a Privilege

Accessibility is a right not a privilege. 20 posts on Accessibility, Universal Design, and Inclusion   It's Time to Go Beyond Access Creating Equal Opportunities For ALL Students to Participate in School Athletics State Obligations UNESCO Accessible Instructional Materials (AIM) Inclusion Is A Right Not A Privilege Paula Kluth on The Inclusive Class Roundtable The National Center on Accessible Instructional Materials Why Would We Want Inclusive Education? Ollibean Spotlight: Kerima Cevik Pay It Forward Activist How AAC and assistive tech make classrooms better for all : Paula Kluth The Case for Inclusion Part 3: Sea Change Access to the

  • Photograph of Jillian Mercado . She has light brown skin , platinum hair and is smiling. She's wearing a black shirt. There is an exposed brick wall in the background with a pink circle with Ollibean Must Watch written inside. Dark blue script. "it’s really boring to see the same people. So if you’re different that’s sunlight in somebody’s world. " Jillian Mercado.

What’s Underneath – Jillian Mercado

Jillian Mercado, the 23 year old model and editor and founder of Manufactured 1987 is featured in  StyleLikeU 's "What's Underneath Project". The "What's Underneath Project" has select individuals remove their clothes to honor how style is not the clothes you wear, but rather, what's underneath. Transcript Off camera. StyleLikeU: So you should just talk very freely, don’t edit. Just, you know, we’ll edit and just let yourself just roll. You’ll, whoever ask the question you can talk to. At the end of each question you’ll just take a piece of clothing off. Jillian Mercado Voice: Ok, I have one,

  • "Why would I want to grow out of my skin? Of my veins ? Because they grew so well with me. Jamie Sanders

I have Tourette’s. Please tell everyone.

This powerful performance by Jamie Sanders, spoken word poet and actor with Tourette's, covers bullying, shame, self-acceptance and empowerment in the best 150 seconds you'll watch this week.

Autism, Growing Up and Defining Friends

As an autistic, I have difficulties in the social arena in a multitude of ways. This was especially true during my growing up years. Even today as an adult, automatic social understanding is not my strong suit. I am, however, able to continually learn new things that enable me to do and be all I want in this world. Today, in my professional work I am able to provide some input to a variety of organizations and schools in regards to individuals with an autism label. One thing I consistently see regardless of where I go is the practice of

  • "feed body and mind with whole foods"

The Benefits of Real Food

Guest post from Chasing the Spring's Dani Johnson on the life changing benefits of a blenderized diet made for her daughter. We were drawn to the great recipes Dani shares as well as her experience of learning from adult g-tube users.

Autism, Airports and Lifelong Learning

For most of my life airports have befuddled me. It didn’t so much matter earlier in my life because the only time I used an airport was to go to visit my parents in another state. Back then, before we had the heightened security of today, people were allowed to meet passengers as they stepped off the plane which allowed me to simply follow them through the airport without needing to concern myself with the confusion all around me.   In My 40’s Then, airport security changed. People picking up passengers could no longer go through the security checkpoint. I

Autism and Psychiatric Diagnoses

At different times during my growing up and even during my adult years autism wasn’t something people knew much about. I often came in front of mental health professionals. It is important to know that if you go to a mental health professional or take your child to a mental health professional in all probability you will walk out with a diagnosis of a mental condition as found in the DSM-5 – otherwise known as the Diagnostic and Statistical Manual of Mental Health Disorders In my adult life I obtained a master’s degree in social work. I did clinical work

Is Autism a Disability or a Difference?

So many ideas in the larger autism community often become a debate. As an autistic this black-or-white, choose-your-side sort of thinking is very neurologically friendly to me. I like clear choices. But I also believe we are often unwittingly duped into believing we need to choose a side only because the idea is presented as a dichotomous choice. “Is autism a disability or a difference?” is one of these questions posed as a dichotomous choice in the autism community. The way the question is posed gives the impression that there is one correct answer. When Autism is a “Difference” Many

Autistic Pride

I am proud of being Autistic And of my Autistic friends I am proud of young Autistics Who have Autistic pride They amaze me I am proud of young Autistics Who are discovering themselves They are learning to understand the world Through creative Autistic eyes They make me smile Young Autistics showering us with love Bonding, sharing, exploring and laughing With words, gestures and looks Their Autistic selves leading the way They lead their own way Henry stands up for his right to be We follow his lead and stand with him He teaches the meaning of never giving up

  • Photograph of Stella Young on the Ted Stage. Text reads- I'm not your inspiration, thank you very much. Stella Young. Ollibean Change Leader

Why The Lie We’ve Been Sold About Disability Is The Greatest Injustice

Stella Young of Ramp Up explains the Social Model of Disability, Inspiration Porn, and the lie we've been sold about disability in this nine minute TED Talk. Stella Young Transcript I grew up in a very small country town in Victoria. I had a very normal, low key kind of upbringing. I went to school, I hung out with my friends, I fought with my younger sisters. It was all very normal. And when I was 15, a member of my local community approached my parents and wanted to nominate me for a "Community Achievement Award". And my parents

The Importance of Opportunity

Dillan Barmache, a 14 year old autistic student, delivers his powerful 8th grade commencement speech using his iPad and brings the crowd to their feet.

Losing an Autism Diagnosis

I am an almost 60-year-old autistic woman who can navigate the world in a way that surprises some people when they find out I have autism. My teen years were spent in an institution because people did not know what to do with my “behaviors” or with me. Today I am a self-employed author, speaker, consultant and artist with a master’s degree in Social Work. Question: Did I lose my autism diagnosis? Official Answer: Yes and No No, an Autism Diagnosis Cannot Be “Lost” Technically, once a person is diagnosed with anything that diagnosis becomes part of their medical records.

Henry

Some call him a kid Others say he is a young man But whatever you call him You need to know this: He is courageous Brave and resilient He will fight and he will win   It can be a fight for his rights When enemies come disguised as condescension It can be a fight for his dreams He will mobilize an army of friends To Stand With Him   He is an example to many He showed other students the possibilities Henry does not fight for himself He is changing perceptions, changing the world   Henry is a leader

Cry Me a River, Katrina Percy. Justice for LB!

I originally wrote this piece for the blog 107daysofaction.wordpress.com. I asked for permission to reprint it to help raise awareness on this side of the Atlantic about the story. If you'd like to get involved with Justice for LB and 107 Days of Action, please click here. I've recently been made aware of the story of the death of a young autistic man in the UK that's not getting any press that I'm aware of in the U.S. or Canada. I'd like to tell you Connor Sparrowhawk's story. Connor Sparrowhawk, known as "Laughing Boy" or "LB" to his friends and

April is Over!

Another April has passed – big sigh of relief! As an autistic I have a love/hate relationship with April – the AUTISM month. I love that increasingly more people over time have become aware of autism. I hate that Autism Awareness month contributes daily to many negative stereotypes of autism, most of it by people meaning to do something good on behalf of autism. As an autistic, I am meant to be grateful to all these wonderful people who are sacrificing their time, talent and money to be helpful to people like me. Some of the time I am grateful, but

FDA Advisory Panel Recommends Banning Aversive Shock Therapy at the Judge Rotenberg Center

Thursday, April 24, was a day that I'd been waiting for that day for a long time. An FDA advisory panel finally got to thoroughly hear both sides of the story of what goes on at the Judge Rotenberg Center, and to deliberate, based on testimony, whether what happens to the students there needs to be stopped. And they made the right decision. I just hope that they act on it quickly. I found out about the Judge Rotenberg Center by accident two years ago, doing some research for another post on my blog. I came across an article about

Skunk Hair, Autism and Social Understanding

There is a saying, “love makes the world go round,” but for real it is NOT love. Instead, it is hidden curriculum that makes the world go round! Hidden curriculum is all that social information that most people know even though they were never actually taught it. An example is the rule “don’t pick your nose” with the hidden curriculum being it is perfectly fine to pick your nose as long as nobody sees you doing it. Many people with autism have difficulty with hidden curriculum. Their brains are not wired to allow them to automatically pick up this untaught,

SWIFT on NPR’s “All Things Considered”

by Dr. Mary Schuh: SWIFT Center Recently, National Public Radio’s (NPR) “All Things Considered” aired a story on inclusive education. The story featured Presidio Middle School in San Francisco and SWIFT Filmmaker, Dan Habib. While Presidio Middle School should be applauded for their efforts to educate students with and without disabilities, what was portrayed by NPR would by no means be considered an inclusive school. Students with disabilities placed in a separate basement class learning functional “survival” skills does not make for an inclusive experience. How can students with disabilities learn important “survival skills” such as communication, literacy, following typical

Inclusion – How it Works Best for This Autistic

As an autistic, I sometimes feel boxed in by the best practice strategy of inclusion. Please don’t get me wrong – inclusive education is a very good thing! Historically, people with disabilities were not given access to public education. Then, over time, laws changed. Today we have special ed classrooms in our schools and the progressive schools practice inclusion. Today’s Inclusive Education Inclusion means that all the students get to learn in the general ed environment. Instruction is differentiated while physical, sensory, emotional and every other need of each student is taken into consideration so that all students learn together,

Depositions Related to the Death of 7 Year Old Isabella Herrera

Isabella died on January 26, 2012, a day after choking on a Hillsborough County School bus. Bella, a 7 year old student at Sessums Elementary, drove her power wheelchair onto her Hillsborough County School bus at 2:07 pm. Once on the bus, Isabella, who had a neuromuscular disorder, relied on an aide who was supposed to be trained to position her wheelchair with her head tilted back to allow her to breathe. "They were supposed to be trained by physical therapists at the school to slightly tilt her chair so her head would not bobble," says Isabella's mother, Lisa Herrera.

More Than An Autism Diagnosis

I am an adult with autism. My thinking is visual rather than word-based. Autism gifts me with a literal and concrete way of thinking. My thoughts are all in full moving color. You can read about this and about my life in my book called Paper Words, Discovering and Living With My Autism. (Endow, 2009a) “Always, I have a front row seat to watch the show! Each color, with its infinite variety of hues and brightness, has its own movement patterns and sound combinations. Even though spoken words are the medium most often used by people to communicate with me, I

Sesame Street, This is an Autistic Speaking

Sesame Street knew nobody was missing, or lacking, anything. I was perfect! Everyone is perfect! But in real life, as I grew older, doctors and teachers convinced everyone that I was too broken to be worthy of any effort toward education and a future. Nobody saw me the way I was seen by my friends at Sesame Street.

  • "Acceptance starts at home" Photograph of teenage boy with white skin and brown hair with woman with white skin and dark brown shoulder length hair

Parents – Acceptance Starts at Home

Parents, home is the single most important place for our children to feel accepted. We must embrace ALL of our children with love and acceptance for being exactly who they are. Home is the first place our kids learn about being accepted and accepting others. It is our responsibility and privilege as parents to create a nurturing environment where each child feels valued, safe, loved and whole. Our children are always listening and picking up on our feelings and attitudes. They're listening to how we speak to them, about them, and closely watching  how we react to other people who

What Good Does Autism Awareness Do? It Doesn’t

I know most people want to do the right thing and believe “Autism Awareness” helps. But it doesn’t and it is time for some blunt truths, it is past time to stop walking in circles and move forward with Autism Acceptance.

Treat Others As THEY Want to Be Treated

I was taught to treat other people the way I want to be treated. This works out great when I am with autistic friends because we share an autistic neurology. It does not always work out well when I am with everyone else who populates this world from a neuro-majority place of being. Therefore, the onus has been on me to figure this out for myself. It has taken many decades, but I have finally worked it out in a way that allows me to live more comfortable in a world largely populated by folks who do not share my

#DearFutureMom Video Spreads Awesome Message From People with Down Syndrome

by Emily Ladau Have you seen this #DearFutureMom Video? We love it here at Ollibean and in honor of World Down Syndrome Day, we think it's definitely worth a moment of your time to watch. It's a great reminder of why people of all abilities must work together to celebrate and advocate for the rights, inclusion and well being of people with Down syndrome today and every day - because we are all people just the same.  

“Sucking It Up” To Pass as Non-Autistic

Image description : Blue square with back text:"I look forward to autistics having everyday lives with things so many take for granted – going to school, being part of the community, having meaningful jobs with living wages along with meaningful relationships. Judy Endow on Ollibean It is a lot of work to look non-autistic, and yet, looking non-autistic is the ticket to sit at many tables. It is not right, and yet, I choose to expend a great deal of energy inhibiting my autistic ways for the sake of sitting at some of society’s tables. Employment is one such table.

Help Emily Ladau Win an Adapted Van

Hey guys, we need five minutes of your time. Disability rights advocate, Ollibean contributor, and all around awesome human, Emily Ladau is in a contest to win her first car. Emily recently had quite an adventure getting her driver's license and now she can legally drive! Emily's a wheelchair user and needs an adapted van and equipment which will cost around $70,000. Folks, please take a moment, read her story and vote daily so Emily can win the van she needs in order to drive.  You can register to vote via e-mail, but be sure to check your spam folder for the password

Stop Combating Me – Why I Am Against Euthanasia

Today is “Stop Combating Me” flashblog. We are not the enemy but the way legislation is written puts us in real danger.

Being Disabled and in the Hospital

Being disabled and in hospitals is always scary because our lives is not valued as the lives of non-disabled. I was, in a way, lucky but the policies still need a lot of improvement.

Crossing Sign Conundrums

Over the course of my life I have seen many kinds of crossing signs. When I go to a college campus I drive past a wildlife sanctuary where a duck crossing sign is posted. Each spring mama ducks line up near their sign and lead their babies across the road while the cars waited. There were lots of ducks and some days the wait for motorists can be up to ten minutes. Every winter when I drive along a county highway to visit a friend I see a snowmobile crossing sign. A snowmobile trail is on one side of the

  • Action Alert

Take Action to Keep All Students Safe at School! || Stop Hurting Kids

Stop Hurting Kids needs all supporters of the Keeping All Students Safe Act to take action and urge members of the U.S. Senate to co-sponsor this bill.

Over 50, Autistic & Still Learning!

Yesterday I went to the Genius Bar at the Apple Store near my house with my laptop. It reminded me of just how far I have come in regards to technology in a few short years. It is hard to believe that I lived a half century on this planet before becoming versed in sending and receiving email! In 2005, my oldest, David, set up a Hotmail account for me and taught me how to do email. I had read an autism book and wanted to email the author. In a few months I had a few more people to

  • Image description: Who Cares About Kelsey DVD Cover. Photograph of light skinned girl with brown hair wearing a black sweatshirt and jeans, leaning up against a locker, turned to the side face looking to her right. Students in the hall in the background. Text reads Failing grades + ADHD + Self mutilation + Abuse white equal sign with red slash indicating “not equal”. Dropout. Festival Awards listed on left side of screen. "Who Cares About Kelsey? a documentary by Dan Habib. Education Kit.

Who Cares About Kelsey? We do.

We first saw Who Cares About Kelsey ? at the National Center on Inclusive Education’s Summer Institute and instantly connected to the film's message of empowering students.

  • Image description. Hands holding up a white sign with pink text " I AM A STUDENT" Closed captioning text" I'm not the one who's lost with no direction, no"

I’m Not the One Who Is Lost

I am thinking you will understand more when you see the feeling . The feeling on my side.

Who Should Speak For The Disability Community? – Think Inclusive

In a recent post for Think Inclusive, self-advocate Emily Ladau explores the idea of advocate-allies who work with self-advocates towards disability rights. She emphasizes the importance of putting the voices of self-advocates at the forefront of disability advocacy movements: "Don’t get me wrong – allies, or what I refer to as advocate-allies, are incredibly important to advocacy efforts. “Ally” implies being supportive, while “advocate-ally” paints a more accurate picture of people who join in along with self-advocates. And true advocate-allies deserve the utmost respect. But a real advocate-ally is someone who doesn’t overshadow the voices and efforts of the people

  • Image description: Black square with white text "Sneaky words said with a smile While holding a piece of chalk To draw the dividing line Made by words Sounding alright on the surface But laden with Otherness Less Than Different Not US And sometimes Not Quite Human. Judy Endow on Ollibean."

Chalk Word Lines of Separation

Words are used in many ways Sometimes they are my friends Others sometimes use their words That sound like love and friend Extending from them To me But in reality These words only sound like love and friend But in the end the sound of them Does not ring true and good And is not of love and friend But instead these words draw lines Dividing Their group of US From my group of THEM Society says it is ok In fact it is perfectly fine And noble Even though self-serving Entirely acceptable To divide out those THEMs From USes

  • Image description: Pink square with tiny, interspersed light pink hearts. In the center there is a large white heart withe dark pink text that reads "Love, not fear is living a posAutive life It is refusing to see despair Just because you are faced with the new. Amy Sequenzia on Ollibean.

Love, Not Fear

Today is “Love, Not Fear” flashblog. We write about the beauty of being, living, sharing and experience Autism, an Autistic life.

  • A dark blue outline of a person with no distinguishable facial features curled up with arms resting on bent knees. Figure is surrounded by text that reads: "Am I okay? Am I really that different? Sometime I struggle. Do others struggle? Weaknesses? Strengths? Everyone has their strengths and weaknesses. What makes me different? Are there others like me? I want to be me, and find what works for me. I am unique, and that is okay. I may have different needs, but I am not a burden."

Welcome to the Autistic Community

The Autistic Self Advocacy Network and the Autism Now Center have created "Welcome to the Autistic Community! " It is a must read for anyone who wants to learn about autism.

  • Black square with white text that reads" Is your child learning how to code?

Is Your Child Learning How to Code?

We hope all kids are learning to code. If they aren't being taught programming skills in school, there are so many great sites that can help them get started today.

  • Image description: White square with salmon text that reads " I am talking about how a privileged majority can oppress a minority simply to keep a status quo that devalues human lives. Amy Sequenzia " Ollibean logo in bottom right corner.

A Message to Suzanne Wright and Autism Speaks

I will soon write about posAutive messages but I had to write this first. I know my rights and I will fight against oppression at the same time that I spread the messages of acceptance and respect.

Assigned Friends Outcome

I was taught to say, “Thank you for being my friend.” So I say it. I was told to smile like I mean it. So I smile. I know I am supposed to feel grateful That you are my friend That you took the class On how to be a peer mentor to me – The good friends way – A pal for six weeks You have been defined You are a good person For giving up your spot At the popular kids’ lunch table To earn the community service hours You need for graduation By eating lunch with me,

How to Figure Out If an Autistic Needs Fixing

I have autism. I am autistic. Both these statements describe me and both are true. However, these two statements are NOT equal.

Life for Lief ~ “See Me As Smart”

“Some people think that kids who are autistic can’t handle getting a transplant. Kids with autism can handle it.” Lief O'Neill

The Scarlet A: Why I Don’t Want My ID to Broadcast My Autism

A few days ago I read the article 'Law Allowing Autism to be Listed on IDs Moves Through Legislature'.

  • Photograph of lower part of jeans and multicolored plaid sneakers. The sneakers have mud on them and the person wearing them is standing on damp earth . There is green moss and foliage on the right side of the image and Ollibean logo in white. Ollibean logo is a circle composed of various shapes and sizes of equal signs and the word Ollibean.

Walk In My Shoes

I want you to walk in my shoes Not because I want you to feel what it means To be disabled But because I want you to understand How it feels to be excluded I would like to see you walk in my shoes Not because I need your pity I don’t need it I don’t want it I want you to experience The uselessness of feeling pity for others Like me I would like to see you walk in my shoes And experience what I feel When my rights are denied When I am silenced Ignored Mocked Bullied Abused

Celebrate Ed Roberts Day 2014 with YO! DISABLED & PROUD

In 2014 YO! Disabled and Proud would like to honor Ed Roberts legacy by posting photos of you and Ed enjoying your independence together.

  • Image description black and white photo of girl with long brown hair looking at the camera . blue text reads"BULLIED" and NOT in background. Upper right hand corner of image has green circle with with white text that reads "spread the word"

30 Second Message for Bullies

AAPD's PSA features three real students sharing a simple message: people with disabilities are powerful, self-determined individuals—not victims.

Judith Snow ~ Relationships & Inclusion

"The research shows that when a child who is not academically gifted is included in a regular school, not only do the academics improve across the school, and I did say that, I didn’t say “in the classroom”, I said “across the school”, not only do the academics improve, but drug use and violence goes down."

  • image description . Photograph of Maysoon Zayid, woman with long brown hair . She is smiling and wearing a black tank top. White text reads "MAYSOON ZAYID" . In upper right hand corner of image there is a turquoise circle with white text that reads "Must Watch"

I Got 99 Problems..Palsy Is Just One- Maysoon Zayid on Ted

“People with disabilities are the largest minority in the world and we are the most under-represented in entertainment.” Maysoon Zayid

  • 2014 Joint Letter to the Sponsors of Autism Speaks

2014 Joint Letter to the Sponsors of Autism Speaks

January 6, 2014 To the Sponsors, Donors, and Supporters of Autism Speaks: We, the undersigned organizations representing the disability community, are writing to urge you to end your support for Autism Speaks. We profoundly appreciate your interest in supporting the autism and broader disability communities. Our work is about empowering and supporting people with all disabilities, including adults and children on the autism spectrum, to be recognized as equal citizens in our society and afforded all of the rights and opportunities that implies. Unfortunately, Autism Speaks’ statements and actions do damage to that work and to the lives of autistic

  • Image description: Light turquoise , salmon amd fuscia rectangle colorblock. White text reads: Thanks to you information has been recorded in this thread that others may find valuable if they would like to know what some of us autistic adults think and write about in regards to the use of person first language versus the use of the word autistic. Judy Endow Ollibean"

Are You a Bully in Sheep’s Clothing?

On Dec. 16, 2013 I wrote a blog titled “Autistics Can BE Friends” and posted the link on social media sites. Regardless of how often or how many of us autistics write about why many of us choose to call ourselves autistic many in academia and in the medical fields continue on to let us know we “should not” be doing this. I am including in this blog a public conversation I had with a Linked In reader on this matter. The entire conversation had nothing to do with the blog I had posted – only the fact that I

Hopes

I might be too optimistic for the reality, but I need HOPE to be able to keep demanding the rights taken away from me, just because I am me.

Doll Diversity Isn’t Just Child’s Play – Dolls with Disabilities

As a little girl, I had a doll collection that took over nearly every inch of toy storage space in my room. I loved them all, especially my two most prized dolls - a My Twinn Doll and a My American Girl Doll, both made to look "just like me." And there was a indeed a striking resemblance between me and the dolls. We had matching brown hair, brown eyes, glasses, and even a matching freckle above our lips. There's just one thing that didn't quite match: my dolls stood upright in their plastic doll stands while I sat in

Pro Infirmis Mannequins Video Shows Bodily Diversity is Beautiful

A trip to the mall bombards me with unattainable ideals of “perfection” everywhere I turn. Mannequins of one standard body shape and size taunt me in each store I enter, all of them wearing clothing that won’t look anything on me like it does on them. Their plastic bodies are tall and thin; I am less than 5 feet with more than my fair share of curves. They stand in casual poses; I am sitting in my wheelchair. To me, mannequins are not always inviting displays. Instead, they’re nothing more than sculptures of a supposedly idyllic body type that I

“Weird & Wonderful”

'Weird and Wonderful", a feature-length documentary, tells the story of the disability rights movement from the late 1960s until today.

Autistics Can BE Friends

Just like people in the neuro majority do not automatically understand social norms of autistics so it is that autistics do not automatically understand the social norms of the neuro majority. This is not complicated. Our different neurologies sort us out to have different norms when it comes to behaviors around friendships. As a society we seem to operate on an assumption that the social ways of the majority are the right ways. We do not think about this or talk about this. We all define the standard by a majority rules mentality. Then, anyone who deviates from this standard

Ollibean and MyVoice Holiday Gift

‘Tis the season and we've teamed up with MyVoice for a special contest featuring TalkRocket Go or RocketKeys- two amazing communication aid apps for iPad, iPhone, and iPod touch. You choose the app that's right for you. To enter, simply subscribe to MyVoice Newsletter here . We will announce the winner on December 23rd. RocketKeys gives a voice to people with ALS, Aphasia, Autism, Brain Injury, Cerebral Palsy, MND, and Parkinson’s, using its customizable keyboards, accessible input, and sentence prediction. TalkRocket Go is the family-friendly communication aid that helps people with Autism, Cerebral Palsy, Stroke, Traumatic Brain Injury, Parkinson’s (and

Out of the Goodness of Your Heart

I have nothing against the goodness in the hearts of other people. However, I would like to explain how it feels to be on the receiving end when I am befriended out of the goodness of your heart. First of all this doesn’t a friendship make because authentic friendships are reciprocal. This means that giving and receiving go both ways. The benefits are mutual. When you befriend me out of the goodness of your heart - and then tell me so - I understand that you are assuming the role of a kind benevolent person while I am perceived as

Real Consequences

Autism Speaks has been hurting autistics for too long. We are fighting back and we are stronger. It is time to say things like they are. This post is because I feel offended by people defending hateful speech.

  • Image description: Photograph of screenshot of C-SPAN a light skinned man with black hair. He is wearing glasses and a dark grey suit, light shirt and maroon tie. Ari Ne'eman Autistic Self Advocacy Network

The Importance of Supports

"If we invested a mere one-tenth of the amount of money that we currently pour into causation into empowering Autistic people to communicate, that young man and hundreds of thousands more like him would be able to communicate their needs to us today. I am not here today to speak for every Autistic person – that’s impossible. What I am here for is to argue for every Autistic person to have the same opportunity to communicate that I have come to enjoy thanks to the support that I have been lucky enough to receive in my life." Ari Ne'eman

Helping the Poor and Disabled

Will your attitude draw circles of holiday meaningfulness where you include yourself in what already is or will your attitude draw lines that allow you to help those poor and disabled people on the other side?

  • Image description: photograph of light skinned man with light hair using sign language . He is wearing a black blazer, blue shirt, and dark tie. Captioned white text on a black background reads" we work to further equal opportunity".

Meet the Members of the 2013 National Council on Disability

The National Council on Disability works to further equal opportunity, self-sufficiency, independent living, inclusion and full integration of people with disabilities into the civic, social, and economic fabric of American life.

Supporting United States Ratification of the U.N. Convention on the Rights of Persons with Disabilities – Why Every Voice Counts!

CALLING ALL SENATORS .It’s time for the U.S. To take their seat at the table In support of global disability rights . RATIFY THE CRPD I have a confession to make: I can only vaguely recall skimming the e-mails that made their way to my inbox in late November and early December last year that called upon the disability community to contact their senators in support of U.S. ratification of the U.N. Convention on the Rights of Persons with Disabilities (CRPD). It's not that I didn't realize the importance; I just thought to myself "Oh, I should help.

A Typical Son’s mom on “the r-word” and Chuck Klosterman’s apology

Kari Wagner-Peck ,the author of  A Typical Son blog, and twitter friend @atypicalson wrote a letter to find out why Chuck Klosterman , of the Ethicist used the r-word. Kari who is 'like Erma Bombeck - in that I write funny about the ordinary and not so much in that I am angry, I swear a lot, and we have a kid who has Down syndrome' wrote an eloquent, thoughtful letter to Klosterman , reached out to folks on twitter and used social media for social good. Pretty cool.  You can read the  response from Klosterman  here,It's fabulous- CK, sincerely apologizes

  • a teenage light skinned boy with freckles, wearing a black jacket, blue and white striped sweater, pink collared shirt is standing in front of large columns and steps that lead to the Lincoln Memorial

All the people saw my intelligence. No test first.

My family saw. I had hopeful times . Tracy invited me home to Vermont to learn . I went to ICI to learn. All the people saw my intelligence . No test first. It was very free. I never had many people understand. To wait. To listen. Not outside home. I did not want to go back to people unknowing. I read more words from typers watching my movie to feel community. Full presentation here

This Is Autism by Amy Sequenzia

Today we are flashblogging to counter Autism Speaks’ wrong view of autism. We are showing what autism really is. We speak for ourselves, even if Autism Speaks refuses to listen. The rest of the world will.

  • All disabled people need to know we are together fighting. Not just adults. All kids need to know the big community . Meeting people like me who made the choices of life changed all. Then I am knowing I want this life. It is hard to not have once you see.

This Is Autism by Henry Frost

Best place for all autistic people, all disabled not disabled people, all families to speak together. Speak together for acceptance, inclusion, communication, and rights for all people. I am thinking when you look closely, this is what autism is.

You are not wrong.

Know you are not a burden or trouble for being. You are a person who has every right to be. A family that is saying love but saying you are so hard so wrong for not being as they wanted. The family is wrong. Not You. A school segregating is wrong. Not You.There are many if the disability community that are here for you.

Inclusion, Communication and Civil Rights

"Learning is easy when the teacher knows you can learn. " Henry Frost

Jobless rate for disabled Americans still high 22 years after landmark law

Twenty-two years after passage of the landmark Americans with Disabilities Act, the employment rate for people with disabilities is still dismally low, and advocates want to change that. “The ADA … has made a difference in the lives of people with disabilities … but [for employment] the needle hasn’t moved,” says Helena Berger, executive vice president of the American Association of People with Disabilities in Washington.

I Am Disabled and I Am Proud

‎"Polite society often tells us that we need to take the 'dis' out of disability, but maybe... just maybe, we should spend some time putting it back in. Take the "dis" out of disability and you remove the core of what has shaped my life. Disability puts the "D" in diversity, but in order to make that a real difference we've got to own that spot. It took me 35 years to respect and honor that truth. Others shouldn't have to wait that long..." Lawrence Carter-Long

Creating Equal Opportunities For ALL Students to Participate in School Athletics

Educators should use the appropriate equipment properly to ensure that physical education programing for students with students with disabilities is safe, effective, and inclusive. EQUIPMENT Appropriate equipment can help children and youth with disabilities participate in appropriate physical activity. Athletic equipment might need to be modified for safe use by some children and youth with disabilities. For other students with disabilities, specialized equipment may be needed. Activities involving the use of modified or specialized equipment can replace other less safe activities. Treadmills, for example, are effective in providing predictable walking and running conditions, which can be necessary and appropriate for

Don’t Call Me Inspirational

"Disability is not something terrible that needs to be fixed, cured, or made to go away forever. It is a natural part of reality. We ask for acceptance as equal members of society." From the PSA "Your Daily Dosage of Inspiration" by Cheryl Green and Caitlin Wood.

Words for Autistics Speaking Day By Judy Endow

It isn't right that autistics are in the position of needing other people to allow us our place in this world. We need to be able to take our own ticket when others refuse to give it to us. It is wrong that we have to be dependent on the benevolence of others and at their whim to merely being granted permission to participate in everyday life on planet earth. People need to learn about inclusion. Autistics need to learn to steal tickets when others can't be depended upon - some teachers in schools I consult to still don't "believe

I ALREADY AM A HUMAN BEING

I do not know if you have ever thought of it this way, but it is a step up that today autistics have the opportunity extended to prove themselves human. As bad as that is and wrong in ever so many ways it is a step up from 50 years ago when I was a kid and we were not even given any chances to try to convince anybody of our worthiness as a human being much less our intelligence. It is all so wrong and such a slow moving shift it is sometimes difficult to remain positive. This past

Autistics Speaking Day – My Fingers Speak

Today is Autistics Speaking Day, a day to remind the world that we actually speak every day, even if we do it with our fingers.

How to Ignore the Media and Learn to Love Autism

Here are some suggestions on how to tune out the media's negativity and learn to love autism: 1)  Read Jim Sinclair’s “Don’t Mourn for Us”. 2)   Tell your parents, family and friends that are close (maybe even your boss) about your child's diagnosis, as you are going to need support. 3)   Let go of any preconceived ideas for birthday parties, trips to the supermarket and vacations.  Don’t worry if an event doesn't turn out exactly as planned. Sometimes the unexpected is just as wonderful. 4)   Discover what motivates your child and learn as much as you can about those topics.

Dr. Caroline Musselwhite Shares Strategies to Promote Literacy for ALL

Dr. Caroline Musselwhite addresses the topic of overall good literacy instruction.  She presents information about how to teach students with significant disabilities using fairly common literacy instruction strategies. There are  11 short video posts to help you get started.  She discusses the issues of AAC and suggests strategies that are easy to implement and highly effective.  Keep Calm and Watch On…

How It Helps

I wrote about Presumption of Competence before, and how it is important for all of us. This time I write about how it feels and how my life changed because I was assumed to be competent.

Wanting More and Finding Disability Justice

White House Champion of Change recipient Mia Mingus is writer, organizer, and member of the Bay Area Transformative Justice Collaborative. Disability was always framed as a sad or bad thing, as something unfortunate that happened to me, a tragedy, a flaw. My experience with the medical world was one about “fixing” me and making me more “normal” and less disabled. This of course, echoed my experience of the world at large. I never saw disabled women in the media being desired or living whole complex lives, let alone disabled women of color. The messages always boiled down to: disability is

Having to Prove Competence

But now and then I meet someone who has. They believe they are doing a good thing, a noble thing. They believe they are helping. They believe that the people they are trying to help are living happier lives as a result. They believe this with all their heart. They give words, as though gifts, in grammatically correct sentences, believing people can be trained to say things and do things that will be understood by the majority of the population. They think that if they can force someone to stop moving their hands or legs or twirling bits of string

From “Severe and Low Functioning” to “Kind of a Big Deal”

Some people consider it so abhorrent to entertain the possibility of having a child with autism they are willing to do a sperm screening that allows doctors to selectively choose only sperm that will produce female children to impregnate the mother. Since there are currently four times as many autistic boys than autistic girls the thinking is that only allowing sperm that will result in girl babies at least reduces the risk of autism. Read the article Baby Sex Checks here. There are ever so many areas to address in this article and others have done so here , and here, but

My Sisters. My Allies.

My sisters are good allies. Not just the ally because I am their brother. .Allies knowing all people have the right to inclusion,communication, and civil rights. Knowing not necessary to earn these rights. These are rights for every person.

  • "I Care By" logo.

I Care By

If you care, you act. Do something positive to help a young person with emotional challenges.

American Society for Deaf Children

We believe deaf or hard-of-hearing children are entitled to full communication access in their home, school, and community. We also believe that language development, respect for the Deaf, and access to deaf and hard-of-hearing role models are important to assure optimal intellectual, social, and emotional development. We believe that consideration of communication opportunities for deaf and hard-of-hearing children should be based on facts. Research consistently demonstrates that fluency in sign language and English offers deaf children (including those with cochlear implants) and hard-of-hearing children optimal opportunities for social and academic success, and thus both should be part of their language-rich

Open Letter To Jon Stewart

When I met Jon Stewart I was very disappointed by his lack of knowledge and sensitivity toward autism. During a recent interview, while still a bit condescending, his views seem to have evolved. This is my open letter to him.

Don’t Mix Up Empathy and Civil Rights

Many times in the autism community parents of autistic children do not like autistic adults weighing in on situations that have to do with their autistic children. I am an autistic adult and often have parents telling me that I should not judge situations if I have not lived it – the “until-you-walk-a-mile-in-their-shoes” is told to me nearly every week as I post the latest news articles along with my comments on social media.

  • My diagnosis is about who I am NOT and what I cannot do – a measure of my limitations, deficits and difficulties. Being an autistic woman is about who I am – a human being who IS, who CAN and who DOES – measured by living a full life in her own way in this world. Judy Endow on Ollibean

Don’t Define Me By My Deficits

My advice for younger autistics and for those who love and support them would be to look at who you ARE as a human being.

Putting Education First by That Crazy Crippled Chick

"First, we must ensure that all children, including and especially those with disabilities, receive a quality education. Inclusion means nothing if a child is not receiving a good education, which is, in fact, the very reason we have schools in the first place. " Cara Liebowitz

How Will the Affordable Care Act Affect People With Disabilities?

The Thinking Person's Guide To Autism interviews Ari Ne'eman of The Autistic Self-Advocacy Network about specific advantages, opportunities, and sticking points of the Affordable Care Act for People with Disabilities

  • .There’s none exempt from this disability community, and as a matter of fact we’re the cool community, because we accept everybody.” Keith Jones

Disability Activist Keith Jones on Community

"So let us remember that when we teach, when we educate, we make policy, we make decisions that we do it with a conscience and that we remember that we are leaving fingerprints on forever." Keith Jones

  • White rectangle with black text that reads Who cares about Kelsey ? Kelsey is written in red handwritten font.Who cares about Kelsey ?

Who Cares About Kelsey

Kelsey Carroll lived with homelessness, self-mutilation, abuse and ADHD.  She was a likely high school dropout — until she encountered an education revolution that’s about empowering, not overpowering, teens with emotional and behavioral disabilities. Kelsey’s story, a story of trying to be seen for her potential rather than her past behavior.

Sign Language Researchers Broaden Science Lexicon

Imagine trying to learn biology without ever using the word “organism.” Or studying to become a botanist when the only way of referring to photosynthesis is to spell the word out, letter by painstaking letter. For deaf students, this game of scientific Password has long been the daily classroom and laboratory experience. Words like “organism” and “photosynthesis” — to say nothing of more obscure and harder-to-spell terms — have no single widely accepted equivalent in sign language. This means that deaf students and their teachers and interpreters must improvise, making it that much harder for the students to excel in

Judith Heumann: Changing the System

Her activism is clearly rooted in a strong sense of justice. Early on she learned that if she wanted to be part of society she was going to have to fight for the right. "I had no choice because, as a disabled person, I was going to either have to get involved with changing the system that limited me or not participate in society," she says. In 2010, Ms. Heumann became the first-ever special adviser for international disability rights at the US State Department. Her job: Promote and protect the rights of people with disabilities internationally and ensure that US

Rion Paige on X Factor

Rion Paige blew everyone away at the "X Factor" audition. This beautiful, charismatic 13 year old has an absolutely incredible voice and exudes such confidence and poise it’s hard to believe she ‘s only 13. Rion has arthogryposis multiplex congenta which causes joint contractures and vision loss. Rion spoke about her audition on the "X Factor", “Ever since I was little I‘d just try to find a way to get to a microphone, put it in between my knees and try to get it in my foot, put it in my mouth. But sometimes I just get really frustrated whenever

The AbleGamers Foundation

The AbleGamers Foundation, also known as AbleGamers Charity, is a 501(C)(3) nonprofit public charity that aims to improve the overall quality of life for those with disabilities through the power of video games.Video games allow individuals with disabilities to experience situations that may be difficult or limited in the real world, provide social networking opportunities to maintain mental and emotional health, and participate in one of the world’s largest pastimes. With a three-step approach, AbleGamers works and advocates on behalf of the disability community to increase the accessibility of video games and to achieve further inclusion by those who need

Issy Stapleton: Emergency Information and Autistic Community Response

Emergency information is on here, followed by commentary. Emergency information for disabled victims is first, since they are in the most immediate danger. Unfortunately, many disabled victims of violence are at the mercy of their would-be-killers. Emergency information for people who are concerned that they might murder or otherwise injure a disabled person follows. Some links are en español. Read More Here.

Dear Issy

You don't know me but I have seen your pictures. You don't know me but I know parts of your story. Soon you will wake up and a lot will have changed. You will be in a hospital because your mother did something terrible to you. I know you love your mom and things are going to be very confusing because people are going to say things that will not make sense. And you will not be able to see or talk to your mom. This is a good thing, and you will understand it later. But I don’t want

Again, We Mourn

My soul hurts and I am naming names. And I am saying, if you have a drop of sympathy for the murderers, or almost murderers, you have blood on your hands too.

  • For us, autism is not simply an add on to our personhood, but is in fact, foundational to our identity. Judy Endow

Person First Attitude Trumps Language

Am I a person with autism or autistic? Does it matter? And why?

5 Ways to Elicit Language from PrAACtical AAC

PrAACtical Suggestions: 5 Ways to Elicit Language Without Asking a Direct Question SLPs love to talk, of course, but sometimes that works against us. Over-prompting. Jumping in to repeat the last question. Re-phrasing the previous comment. Nature abhors a vacuum and sometimes we just can’t stop ourselves.

Modeling, AAC Style

Modeling AAC Style - This is a strategy that is too powerful to ignore! Here’s why Aided Language Input is at the top of our list of skills that all clinicians should master: 1. It expands our sphere of influence 2. Other communication partners will imitate us. 3. If WE use it, then parents and teachers are more likely to as well.

Judith Snow

Judith Snow, MA is a social innovator and an advocate for Inclusion – communities that welcome the participation of a wide diversity of people. Inclusion is an opportunity for EVERYONE!

The Reality Behind Those Walls

The Judge Rotenberg Center is recruiting disabled students in the Midwest to be legally tortured with electric shocks. Help us stop this inhumane treatment of disabled people.

The Power of Presuming Competence

"Thasya", a mini film by Dan Habib, highlights the power of presuming competence, differentiated instruction and augmentative and alternative communication. Inclusion works.

  • Image Description: Yellow rectangle with white circle composed of different shapes and sizes of equal signs. Brown text reads "Education News To Use"

Transforming Education to Benefit ALL Students

As part of a 5-year, $24.5 million grant awarded by the U.S. DOE , the SWIFT Center was founded to assist districts and their schools to engage in a transformational process, in order to achieve equity and excellence for all students. Research has demonstrated that inclusive education significantly improves academic and behavior outcomes for all children.

Thank You, Ed Roberts

"And we’re going to develop leadership, that has a fundamental difference and that is, it's inclusive . It believes in people, and in our strengths together . And we are going to change our society. " Ed Roberts

Intersection of Law, Education and Civil Rights

As a deaf-blind student with very limited sight and hearing, Haben Girma '13 learned that you must be a self-advocate and come up with creative solutions to the problems you face. If that fails, she says, then the law can be a strong ally.

Man with Down Syndrome owns “The World’s Friendliest Restaurant”

Tim Harris has a great deal to be proud of. "Tim The Man" to those who know him, he's accomplished more in his 27 years than some people accomplish in an entire lifetime. A Special Olympian, he has dozens of gold medals. He's lived on a sailboat and is well-known in the Bahamas as an excellent sailor and fisherman. He graduated from Eastern New Mexico University in 2008 with certificates in food service, office skills, and restaurant hosting. He's now living independently, and really enjoying the fact that he can walk to work - the restaurant that he owns is

EveryBody: An Artifact History of Disability in America

The Smithsonian's Web exhibit of the history of people with disabilities in America shown through photos.

Ollibean Baseball Camp

Great week at Ollibean Baseball Camp! Thank you to all the great Ballplayers and Counselors who made it so much fun. We still have some spots for this week- August 12 through 16, 8:30 am to 11:30 am. It's free!

Being Where I Can Simply Be

After a three-day conference, I needed to sleep. I needed to sleep because I was dreamy, trying to keep the feeling of being in a place where I can be myself and also be a little bit like a star. Also, building community.

Senator Harkin Delivers Speech in ASL Upon ADA Passage in 1990

Upon passage of the landmark Americans with Disabilities Act (ADA) on July 13th, 1990, Senator Tom Harkin delivered a speech on the Senate floor in American Sign Language. Harkin, whose brother Frank was deaf, was the lead Senate author of the ADA, which was enacted later that year. His speech is the first in American Sign Language to be delivered from the Senate floor.

  • There is a big difference between HEARING what you are saying & UNDERSTANDING what you are saying. Linda Tossoonian on Ollibean

Deaf Parent Advocates for Communication Supports She Received from Same School 40 Years Ago

Deaf mother goes before Hillsborough County School District Board to advocate for son's necessary services. The 8th largest school district in the country has an operating budget of $ 3 billion. Despite being notified in advance of her attendance, the district was unable to provide any access .

National Disability Leadership Alliance (NDLA)

National Disability Leadership Alliance (NDLA) is a national cross-disability coalition that represents the authentic voice of people with disabilities. NDLA is led by 14 national organizations run by people with disabilities with identifiable grassroots constituencies around the country. The NDLA steering committee includes: ADAPT, the American Association of People with Disabilities, the American Council of the Blind, the Association of Programs for Rural Independent Living, the Autistic Self Advocacy Network, the Hearing Loss Association of America, Little People of America, the National Association of the Deaf, the National Coalition for Mental Health Recovery, the National Council on Independent Living, the

ADAPT

ADAPT is a national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom. The ADAPT Youth Summit will take place on in Chicago, Illinois.  We are training young people with disabilities on direct action and nonviolent civil disobedience.  If you are interested in supporting this year’s event or participating in next year’s group, please email Josue at adaptyouthsummit@yahoo.com.

J.Cole Writes Apology Letter to Autism Speaks

J.Cole offended many over the lyrics "I’m artistic, you is autistic, retarded" in his Jodeci Freestyle rap number. He was called on this.  The Anti-Bullying Alliance created a petition and asked for a formal apology from each rapper, as well as the offending words be removed from the song. Read the original article and letter on Complex Music here http://www.complex.com/music/2013/07/jcole-writes-apology-letter-autism-speaks.   Kuddos to J.Cole for writing an apology letter that sounds sincere. The disheartening thing about his letter is that it is addressed to Autism Speaks. J. Cole offended autistic people, not an organization – in this case an organization that

Senator’s Call for Transition Action Plan An Excellent Idea

Democrat Senator Robert Menendez of New Jersey has introduced a bill focused on transition services for students with developmental disabilities who are transitioning to post-high school life. The legislation, known as the Assistance in Gaining Experience, Independence and Navigation Act of 2013, or the AGE-IN Act, calls for:  - Funding for research to determination the best ways to support students  with developmental disabilities who are about to leave school. - Creation of a nation strategic plan focused on transition planning for students with developmental disabilities. - Grants to train "transition navigators" to assist students with developmental disabilities to plan for

  • I fear that Hillsborough County School Board is standing on the wrong side of history.

Disabilty and Civil Rights: Standing On the Right Side of History

"If we were to go back to the 1960s and we were to talk to those leaders who were vehemently against desegregation, we would hear the conviction in their voices of them stating why they believe their decisions and what they were doing to those children were just. Just as I believe that some of you and some of the board members that have spoken believe that their decisions are just. But, I fear that the Hillsborough County School Board is standing on the wrong side of history."

Inclusion is a right not a privilege.

Inclusion is not only socially just, but research shows it improves academic outcomes for all students.

  • Teenager with brown skin and dark brown hair smiling and wearing a "got inclusion" t-shirt.

I Am Here To Make A Difference For My People

"I am here to make a difference for my people. I hope that you listen to what I have to say. I want people like you to stop judging me." Tres Whitlock

Sensory Tool Kit or Purse ?

Notebooks, silly putty, colored pencils, a favorite book.. I did many of these suggestions with all three of my kids when they were little. A mom carries around ever so many things in her purse to entertain kids in public places. However, if the kid has been diagnosed with autism you call all the junk in your purse a sensory tool kit. The difference here is if the kid is not on the spectrum it is a nice diversion and helps keep him better behaved. If the kid is on the spectrum the regulation offered by the stuff in your purse is

Seattle Children’s Hospital Pulls Bus Ads After Community Outrage

“Autism is a disability, but it is not a disease. It is not a life-threatening illness,” said Matt Young, co-leader of ASAN-WA. “The idea it’s a state to be wiped out has much negative impact on our lives.”

  • Boy with gray shirt running in grass

Advocacy Groups Call for Autistic Teen’s Killers to Be Charged With Hate Crime

How does it make you feel when you hear a story about a mother killing her child? Does hearing that the child had a disability change how you feel? For some people, it does. It changes how they feel enough so that they'll start speaking as if they support the parent's actions, citing unbearable stress and lack of supports and not being able to take the pain to see of seeing a child with disabilities in pain. We heard the media and public talk about this in Canada when Robert Latimer put his 12-year-old daughter Tracy, who had cerebral palsy,

Ollibean Inclusive Baseball Camp August 5-16

Hope you can join us for our 2nd Annual Ollibean Inclusive Baseball Camp at Palma Ceia Little League. 2 sessions August 5- 9, and August 12-16.

The Maryland Coalition for Inclusive Education – 07/12/13

This week, Carol Quirk who is the Co-Executive Director for the Maryland Coalition for Inclusive Education, will return to the podcast. Carol is going to talk, on behalf of the MCIE, about ways in which we can support inclusive education. The Maryland Co

  • op one fourth of book cover is a white background" Black and White" written in black text with capital letters in large font "A Colorful Look at Life on the Autism Spectrum"Beneath also in black text with capital letters written in small font . Middle section contains a color photograph of blonde light skinned woman in profile . Text in right hand corner reads A Book by S.R. Salas Bottom quarter of bookcover has a black background with white text, small font that reads "Renee provides a fascinating insight to autism, I highly recommed (her) book..."- Dr. Tony Attwood "Black and White provides an inside positive view of autism..." - Dr Temple Grandin

Ollibean Spotlight: Renee Salas

" Talk to people with disabilities. As many as you can: Adults, adolescents, kids. These people are the real experts on disabilities. These are the people that can tell you what life with a disability is like." Renee Salas

Much Needed Resource: “We Are Like Your Child”

"We are like your child. Your child is like us. And we may have difficulties, we are disabled--but there is no denying that we are also awesome."

Because I Stood With Henry

Because I stood with Henry I am happier today and you should too. Henry not only got his rights, he proved that presumption of competence should be the default for every student.

  • White Rectangle With ASAN logo in left corner, large black text reads "ASAN " underneath smaller black text "Autistic Self Advocacy Network" . A narrow blue line separates the grey text that reads "Nothing About Us Without Us"

The Autistic Self Advocacy Network

The Autistic Self Advocacy Network is a 501(c)(3) nonprofit organization run by and for Autistic people.

  • Thinking Person's Guide to Autism

Thinking Person’s Guide to Autism

We love Thinking Person's Guide to Autism, a community of autistics, professionals, and parents sharing what you need to know about autism.

The Need to Reassess the Sheltered Workshop

An emerging story in Rhode Island is raising discussion about sheltered workshop environments for people with intellectual disabilities and the culture of discrimination that they create. Discrimination? Yes. These environments, originally intended to ensure that people with intellectual disabilities had work to do and and a safe place in which to do it, have become the exact opposite. They're also created a culture where it's permissible to not only view people with intellectual disabilities in extremely outdated ways and to treat them accordingly. The most recent story that's brought these issues to the public's attention revolves around a a school

Untitled

This is not directed at anyone in particular. It is about several people I’ve met throughout my life. I sometimes need to remind myself that being me means following my own agenda and not pleasing the ones who will not be part of my story.

AAC Helps Learners with Complex Communication Needs Reach Their Full Potential

" A lot of these kids end up not reaching their full potential because they suffer from low expectations. People think they don't speak well, so we shouldn't have them in the regular classroom, but a lot of the kids I work with, they're cognitively fine. They're perfectly capable. They just need a viable means of communication to really help them through that." Cathy Binger

People With Disabilities Practically Absent from Marketing Campaigns

ABC.com reports that despite sporadic appearances in the media and marketing campaigns, people with disabilities are still largely absent, and that many people feel that marketers in particular are losing out because of it. Blaming the absence of people with disabilities in marketing campaigns on "a combination of ignorance, caution, and fear," advocates feel that a concentrated campaign to have people with disabilities included in advertising is necessary, similar to past campaigns to have minorities included in advertising. 57 000 000 Americans have a disability, and as a group their spending power is $200 to $500 billion. They're definitely a

America, the CPRD, and the Global Plight of Disabled Children

A new United Nations report, "The State of the World's Children",  finds that children with disabilities are the least likely to receive health care or go to school and are among the most vulnerable to violence, abuse and neglect. With the most recent data available suggesting that 1 in 20 children aged 14 or younger (approximately 93 000 000) has a disability. it's clear that we're in the middle of a child welfare crisis. Not so, according to United States Senators who failed to ratify a United Nations convention designed to ban discrimination on the basis of disability and to

Not Impossible: The Story of Daniel

Five years ago (next month) our severely autistic son Daniel had a major breakthrough. This whole world is new to him: standards, peers, comradeship and competition.

Stop Hurting Kids

Join the Stop Hurting Kids campaign to end restraint and seclusion abuse in schools.The easiest way to make a meaningful contribution is to take a stand.

Ariane Zurcher: Non-Speaking Autistic Woman Writes Book

Barb Rentenbach's funny, poignant and beautiful must-read book, I Might Be You: An Exploration of Autism and Connection, is now available as an audiobook.

Hi @KatieCouric I am #autistic & would like to talk to you about #inclusion, #communication & #civilrights #KatieAutismChat

Katie Couric will have a Twitter Chat with Autism Speaks on Wednesday May 29th at 1pm EST . Autistic people should be in the chat. hashtag #KatieAutismChat. This is my message. Hi @katiecouric I am #autistic & would like to talk to you about #inclusion, #communication & #civilrights #KatieAutismChat .    

Amy Sequenzia: Does it matter?

Should it matter that some of us are labeled intellectually disabled? Read the definitions, look at us in a realistic way and ask yourself; Does it matter? Aren’t we all worthy?

Autistic Hoya: Ordinary Lives

When I demand equal access, equal opportunity, equal rights, I'm not insisting on my superiority, innate or acquired. I don't want special treatment. I want to see the removal of cultural paradigms about what types of bodies and minds should be valued and what types of bodies and minds should be deigned for marginalization. I don't want a world that advantages me over you. I want a world where oppressive systems that ultimately hurt everyone have been overcome, dismantled.

Joe Flacco Pledges to No Longer Use the R-Word

Baltimore Ravens quarterback and Superbowl MVP Joe Flacco has made a commitment to no longer use the R-word, joined by teammates Ed Dickson and Gino Gradkowski. The three men signed the pledge not to use the R-word anymore from the Spread the Word to End the Word website on May 20 and had their photos taken with representatives from the Maryland Special Olympics. Flacco’s commitment to the movement to stop use of the R-word comes on the heels of using it during Superbowl week at a press conference. He apologized the next day, concerned that his “bad choice of words” would damage

Donna Posont’s “Birding-By-Ear” Course Allows Blind People to “See The Unseen”

Donna Posont is living proof that you don't have to be able to see well to go bird-watching. Donna Posont is a field guide in Michigan who leads a group of blind birdwatchers and helps them recognize birds through sound. / CBS News The Field Services Director for Opportunities Unlimited for the Blind, Donna Posont runs a "birding by ear" class in Dearborn, Michigan for people who are blind or who have low vision. Instruction begins inside, where participants memorize bird calls through learning words that have been assigned to birds' chirps and screeches. Armed with a repertoire of  bird

2013 Top Ten Signs of Special Ed Advocate Burn Out

Subtitle: Why you may need a trip to a COPAA conference to relax. 1. You thought the OSEP’s MOU on NCLB’s AYP came from CDC and was about another STD. 2. You are were actually able to follow #1. 3. You asked the Advocate Committee to research OCR guidanc

Federal Agencies Seek Public Input on Transition Issues for Youth

The U.S. Departments of Labor, Education and Health and Human Services, in partnership with the Social Security Administration, are asking for input about the best way to ensure a successful transition from school to work life for youth with disabilities. For two weeks, starting on May 13, youth with disabilities and their families can share their thoughts on improving transition outcomes via this Web Interface.  Policymakers, educators, and service providers are also invited to take this opportunity to share concerns about the “regulatory and legislative barriers that young people with disabilities are facing in accessing employment, education, Social Security and

Everyone Communicates

One of our favorite resources for all things AAC!

Free Your Mind and the Rest Will Follow

Awesome ASL version of En Vogue's 'Free Your Mind'. "Before you can see me you've got to learn how to read me. Free your mind and the rest will follow."

ASL Video “I Knew You Were Trouble”

Great ASL translation of Taylor Swift's song!

Childhood Disability Rate Jumps Over 16% in Last Decade

According to findings presented at the Pediatric Academic Societies annual meeting, the prevalence of disability in children has jumped more than 16 percent in 10 years. The reason for this rise in disability prevalence is unclear, although, according to Disability Scoop, researchers believe it’s due to “increased diagnosis of neurodevelopmental and mental health conditions.” Researchers identified the rise in disability prevalence by comparing data from the National Health Interview Survey collected in 2009-2010 to those collected in 2001-2002. The National Health Interview Survey, conducted by the U.S. Centers for Disease Control and Prevention, is a poll of more than 100,000

Ostracized for Autism

"The reason for this article is to spread awareness about why people shouldn't believe everything they see or hear from powerful people and companies. Respecting authority is great, but believing everything they say may make you a brainwashed, horrible person. Also, this article was written to remind people to treat others how they'd like to be treated, and not act cold to them regardless of how different they are."

By |May 6th, 2013|Categories: Advocacy, blog, General|Tags: , , , |0 Comments

Joey Furlong, hospitalized fourth-grader asked to take a standardized test, becomes a symbol in high-stakes testing battle

News that a fourth-grader in the hospital for severe epilepsy was asked to take a standardized test has angered parents and galvanized the anti-standardized testing crowd. As reported in The Washington Post , Joey Furlong was lying in a hospital bed, hoo

By |May 3rd, 2013|Categories: Articles, General, Medical|Tags: , , , , |0 Comments

Yoga , Naturally Inclusive

Ryan McGraw is a 30-year-old yoga teacher who has cerebral palsy. He doesn't fit the mold, which is fine, because he's molding yoga routines to fit his needs.

National Center on Health, Physical Activity and Disability

Great resource promoting increased participation in physical activity among people of all abilities.

Abuse of Children with Intellectual Disabilities

Children with disabilities of any kind are not identified in crime statistic systems in the U.S., making it difficult to determine their risk for abuse (Sullivan, 2003). A number of weak and small-scale studies found that children with all types of disab

Game Changer: Florida Senate Unanimously Passes Special Education Bill

The Florida Senate unanimously passed Bill 1108 on April 29th.

Autistic Teen Uses Tech to Break Silence

A brilliant 16-year-old boy who has autism is breaking through his silence and making people realize what autistic kids can do. Ido Kedar has difficulty controlling his body, and he cannot talk.

Some special education teachers fear losing jobs

ATLANTA (AP) — Some Atlanta special education teachers say they fear they could lose their jobs if they aren't certified to teach in another subject. Keith Butler helps special education students with math in an Atlanta high school. He said teachers are

Dave Jacka: Up, Up and Away!

Dave Jacka just began his quest to become the first quadriplegic to fly solo around Australia. Family and friends saw the 44-year-old Fairfield resident off from the airport in Tooradin, Australia on April 28. A wheelchair user since a car accident 25 years ago, Jacka only has a small amount of control of his shoulder, wrist and bicep. He never gave up on his childhood dream of learning to fly, however, starting lessons with a pilot in 2006. He controls the plane by sucking and blowing into a tube, and makes use of enlarged switches and levers in a modified

Law Would Give Parents Final Say About Special Diploma Track

A proposed law moving quickly through the Legislature would give parents of kids receiving special education services the final say about their child’s placement on a special diploma track.

Standing With Ashley

I stand with Ashley because she is part of our community, she is brave and she survived brutality.I stand with Ashley because I hope to show her, one day, that the joy of belonging to our caring community trumps the memories of pain.

Shouldn’t New Disability Awareness Course Be Mandatory for Police?

Kudos to New York State for making train-the-trainer disability sensitivity training available to its law enforcement officers as of April 2013, with the stipulation that police officers that take the course must take it back to their respective police agencies. But why not make the training mandatory instead of just "available"? The First Responders Disability Awareness Training Course augments the very basic curriculum in disability sensitivity offered to New York state police officers as part of their core training: 14 hours on mental illness, but only two on autism, Alzheimer’s disease, and blindness and deafness , and none on intellectual

Lawsuit alleges school bus aide slapped autistic boy

A north suburban special education school bus aide slapped an autistic student who cannot speak, according to a lawsuit filed by the boy’s mother, who claims she uncovered the alleged abuse after putting a recording device in her son’s backpack. Nabiha Z

“The Story of Luke” Brings Autism to the Big Screen

But my question is, where are autistic people in the creation of the movie and the movie itself? The representation of autism and disability in film should include the actual voices of autistic people.

  • a teenage light skinned boy with freckles, wearing a black jacket, blue and white striped sweater, pink collared shirt is standing in front of large columns and steps that lead to the Lincoln Memorial

Listen Up

Listen Up! the PSA from the Autistic Self Advocacy Network and Autism Acceptance Month has been released!

Wal-Mart Sued for Sexual Harassment & Retaliation of Employee with Developmental Disability

 Wal-Mart Stores East, L.P. violated federal law by allowing a male employee at an Akron Walmart store to subject a developmentally disabled female co-worker to sexually inappropriate conduct and then retaliating against her for her opposition

Autistic Hoya: Fighting ableism with ableism doesn’t work

Fighting ableism with ableism doesn't work. In fact, it's just bad policy. Yet that's precisely the tactic that Disability Scoop, "the premier source for developmental disability news," decided to use in its criticism of the latest episode of Glee, in wh

The Most Important Information About AAC Use in the Classroom

Presumption of competence combined with support and collaboration from team members helps the learner with complex communication needs have a voice in the classroom.

Must Have Autism E-book

Great e-book for Autism Acceptance Month !

Autism Acceptance- All Created Equal

John Hussman on the MCIE Blog. "And then love them back. Not for who they might have been without autism, or for who they might be if they were “cured,” but as people who need to be nothing other than who they are, to be loved and accepted."

A Generational Shift in Understanding Life With Down Syndrome

"You cannot know if someone else's life is worth living without asking them and without even knowing them."

  • Autism Acceptance Month, Acceptance Is An Action

Autism Acceptance Month

"Acceptance is an action." Autism Acceptance Month from the brilliant folks at ASAN, is beyond incredible. We could read the About page again and again- and probably will. Check it out. Take the Pledge. What is Autism Acceptance Month? Autism Acceptance Month is about challenging ignorance, prejudice, fear, and hysteria about autism and autistic people. Autism Acceptance Month spreads the word that autism is both a neurological disability and a natural part of human diversity, and centers the voices of autistic people in the conversation about us. Autism Acceptance Month promotes acceptance of autistic people as family members, sons, daughters, spouses, friends, classmates, co-workers,

Congress Changes Special Education Funding Regulations

This month, Congress clarified how states that fail to adequately fund special education services from year to year will be penalized. The changes to IDEA regulations, put forth by the Obama administration, are said have “broad support on Capitol Hill”. Special education funding is governed by “maintenance of effort”, or a regulation stating that funding levels must maintained or increased from one year to the next. States need special permission and a waiver from the federal government to be exempt from meeting maintenance of effort in any given year, or they may find themselves facing serious consequences. South Carolina and

Reason # 202 Why You Should Come to See Wretches & Jabberers Next Weekend..

The incredible soundtrack. J. Ralph, recently nominated for an Academy Award for his song, Before My Time, for the documentary Chasing Ice, composed and performed the songs in this incredible documentary, He is joined by some of the most talented folks in music.

Boys & Girls Clubs of Tampa Bay Stand Up for Inclusion

Presented and discussed will be the importance of inclusion and friendship for youth with disabilities. The cast and of the acclaimed feature documentary, Wretches & Jabberers will be joined by The National Center on Inclusive Education’s Mary Schuh, PhD, and Tampa advocate, 13 year old, Henry Frost.

  • It’s illegal for a medical service provider to turn away someone because of physical disability.

Doctors across America turning away patients with disabilities, study finds

by Sarah Levis Disabled people in several American cities are going without specialist care because of medical facilities that aren’t physically accessible, says a study that recently appeared in the Annals of Medicine. According to the Americans with Disabilities Act, it’s illegal for a medical service provider to turn away someone because of physical disability. Yet in Boston alone, more than one in six doctors refused to schedule appointments for people posing as patients in wheelchairs. Similar findings were reported in three other cities. The study reported similar findings in in Houston, Texas, Dallas, Texas, and Portland, Oregon. The study

Deaf, Blind Sue Over Web Shopping

Anne Taylor uses a Google Nexus 7 tablet at the National Federation of the Blind in Baltimore. Commerce has moved online. Now, the disability lawsuits are following. Advocates for disabled Americans have declared that companies have a legal obligation to

School Says, “No Advanced Classes for Kids with IEPs”

My child has a learning disability. Her teachers want her to enroll in advanced classes. She is eligible based on her test scores and school performance. The School will not let her enroll her because she has an Individualized Education Plan (IEP). What

“Yoga for the Special Child” Program Benefits Children with Disabilities

Parents say that Gail Gagne's "Yoga for the Special Child" program is "sorely needed" at Glenwood Community Centre in Winnipeg, Canada   Gagne rents space from the Community Centre to run her Yoga for the Special Child Program. Four children with a variety of disabilities, including autism, attend on a weekly basis. Parents say that participation in the class has benefited their children in a numerous ways, from improved muscle tone to enhanced ability to focus to sharpened social skills.   The Yoga for the Special Child Program is also an athletic outlet for children that, unfortunately, may have limited

April and Autism Acceptance at Tampa Theatre

Get your advocacy on. April and Autism Acceptance is in Tampa. The rock stars of disability advocacy- Tracy Thresher and Larry Bissonnette- are back.

Ollibean Art for Change at USF: April. Autism. Advocacy. Acceptance.

A day of inclusive education, community acceptance, and self-advocacy at USF with Academy Award Winning Director and Stars of the Acclaimed Documentary Wretches & Jabberers, NCIE's Mary Schuh, PhD, and Tampa advocate Henry Frost. CARD (The Center for Autism and Related Disorders) at the University of South Florida) will host at USF's Marshall Hall.

Why did Robert Ethan Saylor die?

Where is the public outrage over the death of Robert Ethan Saylor , killed in January while being taken into police custody in Frederick for the crimes of petty larceny and, perhaps, disorderly conduct? Saylor, 26, had Down syndrome, a genetic defect tha

Need for culturally sensitive treatment for deaf patients with psychiatric disorders

Members of the Deaf community who have mental health problems need culturally sensitive treatment to avoid misdiagnosis and inappropriate treatment, according to a report in the March Journal of Psychiatric Practice. The journal is published by Li

Lawsuit charges Ed Department with violating student privacy rights

The U.S. Education Department is being sued by a nonprofit organization for promoting regulations that are alleged to undercut student privacy and parental consent. The rules allow third parties, including private companies and foundations

Autistic People Are Everywhere | Musings of an Aspie

This post is a part of today’s “Autistic people are . . .” flashblog. You may have seen the news this week that Google has promised to eliminate the problematic “Autistic people should” autocompletes in response to last week’s flashblog. They’ve said it will take time to engineer, so while the hateful autocompletes are still appearing, hopefully they’ll soon be gone. We can make a difference by speaking up. ——- Autistic people are everywhere. We sit next to you at school and on the bus. We give your dog his rabies shot, teach your kids, make your latte and sweep

Retention is Not a Form of “Specialized Instruction”

The school wanted to retain my son who has an IEP for OT, PT and Speech. They insisted he repeat second grade. I disagreed. Now in third grade, his teachers want to send him back to second grade. They say his writing is not on par with a “normal” third g

What’s the Difference between Reduction in Homework and Shortened Assignments?

By Kori Hamilton and Elizabeth Kessler, professional special educator and NICHCY advisor. Being able to provide ample opportunities for success to all students requires a clear understanding of the needs of each individual student. Every student has a unique learning style, and some students require more help than others. Students who receive special education services have a plan in place to identify the type of support(s) that’s needed. One type of support is an accommodation, which is a change that helps a student overcome or work around the disability. A modification, which is a change in what is being taught

People With Locked-In Syndrome Happier Than We Assumed

Locked-in syndrome leaves people awake and aware, but unlikely able to move or talk. But does it leave them unhappy? The largest study of locked-in syndrome to date says, "Not necessarily." Locked-in syndrome is caused by major brain injury, often from some sort of accident. People that have locked-in syndrome are usually totally paralyzed and move their eyes to communicate. It sounds like a very difficult existence, but a "surprising number" of people in the study reported being happy in spite of their disabilities. Researcher Dr. Steven Laureys of Belgium's University of Liege and his colleagues sent a survey to

Sexual Assault and Ableism in Martin de Porres Academy

K.J. told police that she said "No" and "Stop" when the three ninth grade boys sexually assaulted her. She had to be physically assaulted to keep from escaping. But, because K.J. and her attackers were labeled with IQs below 50 the sex is considered "consensual".

10-year edition of ‘Riding the Bus’ comes subtler understanding of intellectual disability

Rachel Simon knew that having a sibling who has a serious intellectual disability had changed her life. But she had no idea that writing a book about the experience would change her life again. Recalling those early days, Simon says, “I allowed myself on

  • Photograph of three teenagers at the Obama rally.

Autistic People Are

Autistic people are people. Autistic people are complex. Autistic people are happy. Autistic people are kind. Autistic people are accepting. Autistic people are helpful. Autistic people are mentors. Autistic people are doctors. Autistic people are engineers. Autistic people are writers. Autistic people are leaders. Autistic people are accountants. Autistic people are heros. Autistic people are artists. Autistic people are models. Autistic people are film makers. Autistic people are backpackers. Autistic people are musicians. Autistic people are teachers. Autistic people are sherpas. Autistic people are trainers. Autistic people are neighbors. Autistic people are brothers. Autistic people are sisters. Autistic people are

‘Autistic People Are’ by Amy Sequenzia

Autistic People Are   Awesome!   Autistic People are the real experts on autism.   Autistic people are not more complicated than non-autistics. Autistic people are misunderstood and mischaracterized by non-autistics.   Autistic people are artistic and we don’t need speech to show our talents.   Autistic people are your friends your co-workers your children.   Autistic people are parents siblings grandparents.   Autistic people are not tragedies we are not burdens.   Autistic people are not sufferers because of autism we suffer discrimination from non-autistics.   Autistic people are “different but not less”.   Autistic people are not “Rain

Home Modifications

Not all people begin life with disabilities, but most of us will need some kind of assistance as we experience the normal process of aging. Living at home within a community increases self-esteem, which can improve mental and physical health. Another rea

Feds eye NY school’s treatment of disabled student

NEW ROCHELLE, N.Y. (AP) — The U.S. Department of Justice is investigating an incident in which a disabled student at a suburban New York high school was kept inside as the school was being evacuated during a fire emergency. The Journal News ( http://lohu

  • autistic people speaking, The Loud Hands Project

“Loud Hands – Autistic People, Speaking” A Review

The title of the book should be enough for anyone who wants to know, know more or know anything, about autism and Autistics to buy it and read it.

Pediatricians Say No to Expulsions, Suspensions at Schools

MONDAY, Feb. 25 (HealthDay News) -- Suspending or expelling a child from school should be a rare last resort and not a routine punishment for bullying, drug use or other infractions, according to a new policy statement from the American Academy of Pediat

A Parent’s Story of Advocacy on The Inclusive Class

Teachers love a great resource! Especially a resource that is free and at their fingertips - literally. That's why I put together a list of... How do we help our children or students who are perpetually losing things, often running late and seem complete

The Arc Responds to the Death of Maryland Man with Down syndrome

This is a moment for us not only to mourn, but we must also learn from this tragedy and encourage proper training in our police departments. The Arc is deeply saddened and shocked by the death of Robert Ethan Saylor, a young man with Down syndrome whose

Neurodiversity IS the Next Civil Rights Movement

"When we talk about inclusion what we're talking about is diversity." Audra Zucherman, co-founder, The IDEAL School .The IDEAL School practices full inclusion while nurturing their students abilities to create real change in the world through compassion and self- empowerment.

What We Must Learn From History About Inclusion

Wretches & Jabberers | Tracy's Blog The big typing of my friends, Kris and Scott, is a compelling argument for inclusion for all people. I met a young film maker, Adrian Esposito at a self- advocacy conference in Albany, NY last fall. Adrian made a film “We Can Shine-From Institutions to Independence.” Jeanette and I connected with Adrian and his Mom. My friends and I recently gathered to watch this history of moving to community life. Dayna and Jeanette looked nervously at each other like it was too much for my young typing pals and me to watch. I think

  • EmmasHopeBook dot com

We Love Emma’s Hope Book

Ariane Zurcher is definitely one of our favorite writers. She writes with exceptional honesty, insight, and beauty.

Ten Things I wish My Teacher and SLP Knew about AAC : Pat Mervine

Pat Mervine has a great website and is the author of  "How Katie Got a Voice (and a cool new nickname)" . I wish..... the entire team would be trained in how to program and use my AAC system.  My "voice" shouldn't be taken away from me just because an adult is absent or busy. Oh, and a good back-up system would be much appreciated for when my device goes down. my AAC device would be charged (if electronic) and positioned for me to use it all times.  Other kids can talk all day -- at recess, lunch, on the bus,

Deaf Teenager Gets AMC to Offer Closed Captioning

Johnny Butchko, 14, is hearing impaired. Tired of being unable to watch a movie at his local theatre, he stood up and got AMC to provide Closed Captioning in Santa Monica. But he's not stopping there.

Abuse and Cover Up of Students with Special Needs In Ohio

Special Education teacher from Kings Local School District accused of seclusion, restraint, physical abuse , verbal and emotional abuse.

Breaking News from Autistic Hoya: The End of Torture at the JRC?

Massachusetts Governor Deval Patrick filed a motion to vacate (render null) the 1987 settlement agreement that has permitted the Judge Rotenberg Center to use aversives, including the notorious electric shock GED devices.

Appropriate Education for Your Child – 02/15/2013

Unfortunately, our guest Howard Glasser, was unavailable for this morning's show! However, Terri and I managed to fill the 30 minutes (it's not hard!) talking about inclusion and education. During our show, we talked about finding appropriate education f

How Should We Rebuild the U.S. Education System?

Three learning enthusiasts share their blueprints for rebuilding the U.S. education system. In the 2nd century A.D., Roman Emperor Marcus Aurelius penned a series of personal writings and reflections known today as “Meditations.” In Book 1, the emperor s

Planet of The Bind: Why Do Banks Still Lag In Basic Service To Blind Customers?

It seems like a natural: keypads with Braille, audio prompts and the like. And advocates for the seeing-impaired have been working with the industry since 1999 to provide just such adaptations.

Merck Fund Announces Three $1M Grants to Support Translational Research in Developmental Disabilities

Several AUCD network members and George Jesien, Executive Director of AUCD, participated on the scientific advisory committee which helped develop this important grants program with the John Merck Fund. The John Merck Fund announced today the first three

Wright’s Law: Why Schools Usually Say “No!”

My son is going to middle school. Same district, new school, just blocks apart. His 1:1 (same para for 3 years) has been the best thing that has come into his life ever. We want his para to follow him to middle school. The Special Education Director says

Duncan warns Congress on impact of ‘sequestration’

Here is the testimony Education Secretary Arne Duncan gave Thursday before the Senate Appropriations Committee on what could happen to education programs if Congress takes no steps to avert a March 1 deadline for automatic spending cuts, known as the “se

Bright Not Broken Gifted Kids ADHD and Autism – Feb 14,2013

Chef Dean Neff, Executive Chef at Hugh Acheson's "Five & Ten" highly rated restaurant in Georgia, visits with Olivia Wilder to talk about his culinary career. Bobby Seale co-founder ofThe Black Panther Party was an African-American revolutionary socialis

I Feel Tired

Some parents understand that autism is a natural part of some children’s lives and they fight the societal attitudes toward autistics. That’s love. Some parents don’t, and they fight, and hurt, their own children. This is not love and is one of the things that make me very tired.

14th Annual Hannah’s Buddies Charity Classic , March 22-23, 2013

The Hannah's Buddies Charity Classic began in 2000 with John Bell of Widespread Panic deciding to help his goddaughter and tens of thousands of children in their fight against SMA.

  • woman with black and gray hair speaking at podium

Karen Clay Defines Inclusion for Hillsborough County School Board Member Olson

"I fought for him to remain in the classroom, I fought for him to attend his neighborhood school. I did not have to fight for him to be fully included, because Principal Vince Sussman at Plant High School knew that students with disabilities have value, have worth."

Accessible Instructional Materials (AIM)

Great video on Kathleen McClaskey's Scoop It site, UDL- Universal Design for Learning about accessible instructional materials.

Including Students with Food Allergies in the Classroom – 02/08/2013

Food allergies are becoming a very common concern in schools today. According to the Food Allergy and Anaphylaxis Association, approximately 6 million children under the age of 18 have a food allergy. With these numbers of children, schools need ensure t

Deaf teen finds his niche at Richmond school

RICHMOND, Ind. (AP) — The seventh grade has been a whirlwind for Alex Brown . From relocating to Richmond and playing on the Test Intermediate School football team, the 14-year-old has had his share of new experiences. He was even credited with saving so

Autism Acceptance – Leading the Conversation

I want to talk about Autism Acceptance again. I want to talk about Autism Acceptance because soon we will be, again, referred to as tragedies, burdens, afflictions. This will go on, more than usual, for the whole month of April. April is the month chosen

NCIE Webinar: Creating Inclusive IEPs

This February 20th webinar will focus on IEPs that target students’ full participation in inclusive general education classrooms and specify the supports needed for success.

Krip-Hop Nation: Music, Advocacy and Education

"Where were the other people who looked like me as a Black disabled young man? With this continuous question of race and disability along with my love of poetry and music, I started to question the arena of music and performance around the representation of musicians with disabilities, especially disabled musicians of color." - Leroy F. Moore, Jr.

‘Impaired Perceptions’ – Photographer Brian Steel Fights Ableism

"The overall message is that you cannot tell what a person is capable of or what their life is like simply by looking at them. " Brian Steel

A Child With Down Syndrome Keeps His Place at the Table

IT’S rare that our daily lives adhere to dramatic form. But as reported on Today.com/Moms (“Waiter hailed as hero after standing up for boy with Down syndrome”), among other places, a little morality play took shape a few days ago in a Houston restaurant

By |January 26th, 2013|Categories: Advocacy, Articles, General|Tags: , , , , |0 Comments

US DOE “Access to Sports for Students with Disabilities Is a Civil Right”

U.S. Education Department is telling schools they must include students with disabilities in sports programs or provide equal alternative options.

The Inclusive Class: Supporting Students with Learning Disabilities

Nicole and Terri are looking forward to interviewing Dr. Sheldon Horowitz about ways classrooms can support children with learning disabilities.

MCIE Workshop on Multi-Tiered Systems of Support for Inclusive Education

How RtI Systems Work for Students with Intensive Support Needs With Michael McSheehan!

When Autistics Grade Other Autistics

“If you judge a fish by its ability to climb a tree…”We know how functioning labels are not helpful, despite being largely used by neurotypicals. But some autistics also grade members of our community and I want to understand why.

Exploring Empathy

What is this ability to step into someone else’s shoes? To imagine how they feel - and to hurt for them or be happy for them? Host Frank Stasio is joined by a panel of experts to discuss empathy, the trait that makes us uniquely human. Lasana Harris is an assistant professor in psychology and neuroscience at Duke University; Jesse Prinz is a Distinguished Professor of philosophy at the Graduate Center of the City University of New York; Pate Skene is an associate professor of neurobiology at Duke University and a second year law student; and Ralph Savarese is an

Understanding Hearing Ability

What does speech sound like to deaf and hard of hearing children? Do deaf children hear anything? Some deaf children do in fact have no measurable hearing, but most children have some degree of residual or remaining hearing. Every child is unique in the sounds he or she can hear and his or her ability to understand them. No two children are alike. Two children who perform similarly on their hearing tests may understand or use sounds in very different ways. It is important never to assume how a student should or will communicate because of hearing test results. Whether

Motherlode Blog: Solving New York City Bus Strike’s Impact on Special Needs Students Isn’t Simple

New York City’s bus strike is disproportionately affecting one of its most vulnerable populations: children with special needs, whose symptoms or travel limitations can make it extremely challenging for their parents to get them to school using other met

The Inclusive Education of Adults with Autism

This week on The Inclusive Class Podcast, we will be talking about educating adult students with autism. To lead our discussion, will be expert guest, Rhonda Greenhaw. Rhonda J. Greenhaw, MA, BCBA, is a leading clinician and researcher in the field of au

Disability on the Florida Senate’s 2013 Agenda

The most important would eliminate the requirement that students enroll in a traditional school before becoming eligible for a McKay scholarship. McKay scholarships allow students with disabilities to use the money for tuition at a private school of their choice. One, SB 226, creates a two-week “disability history and awareness” instruction program starting in the 2014-2015 school year. The bill creates a committee to help the Department of Education design program curriculum. SB 150 creates a “Deaf and Hard-of-Hearing Children’s Educational Bill of Rights,” and requires state and local school officials to recognize the needs of hard-of-hearing students. Another bill,

  • Picture of a smiling woman with light brown hair in a pony tail,she is wearing a purple shirt with a black jacket. the text reads "It's the hardest thing to put up with."

No Limits: People With Cerebral Palsy v Condescending Tools

No Limits: People With Cerebral Palsy v Condescending Tools.

Grit Media

Grit Media promotes the rights and aspirations of people with disabilities by creating opportunities to be seen and heard in a range of media productions. Our productions bring disability awareness into peoples' homes through the depiction of realistic, compelling and entertaining content, that encourages audiences to see disability as a natural part of life. The organisation provides training opportunities for people with disabilities and aims to encourage the wider media industry to join our battle against a culture of harmful misconception and ignorance about disability. Welcome to Grit Media.

Lawsuit Says Special Needs Student Raped in NYC-area Classroom

A 15 year old special education student was gang-raped in class while a lesson was going on, according to allegations by her mother. The girl attended the Martin De Porres Academy in Elmont, New York, a community on Long Island, and the incident supposed

By |January 14th, 2013|Categories: Articles, Featured (Homepage), General|Tags: , , , , |0 Comments

Joubert Syndrome Foundation & Related Cerebellar Disorders

Joubert Syndrome is a rare genetic disorder characterized by decreased muscle tone, difficulties with coordination, abnormal eye movements, abnormal breathing pattern and cognitive impairment. These issues are due to abnormal brain development, resulting in decreased size of the cerebellar vermis and other brain abnormalities that appear as the "molar tooth sign" on a brain MRI. Although rare, several hundred individuals with Joubert Syndrome have been reported in the medical literature. Mutations in at least 10 genes cause Joubert Syndrome, accounting for ~50% of patients. Subsets of individuals with Joubert Syndrome can also have polydactyly (extra fingers or toes), as well

Ido In Autismland

We love Ido In Autismland, a blog by Ido a young autistic advocate who types to communicate.

Person-First Language – ‘autistic’ vs. ‘with autism’

There is some debate about using the term ‘autistic child’ vs. ‘child with autism’, the latter being an example of what is typically referred to as ‘person-first language’. As you may have noticed, I typically use ‘autistic’. There are plenty of strong o

Center for Autism and Related Disorders Partners with Paper Clouds…

The Center for Autism and Related Disorders (CARD), the world’s largest provider of effective, early-intensive behavioral intervention for individuals with autism spectrum disorders (ASD), is proud to announce its new product line with Paper Clouds Appar

Self-Advocacy Organizational Development Grantees Announced

In 2011 and 2012, the Administration on Intellectual and Developmental Disabilities (AIDD) supported 9 regional Self-Advocacy Summits in collaboration with the National Association of Councils on Developmental Disabilities (NACDD), the National Disabilit

People Are Watching Mr. Hughley

Mr. Hughley, we think you can do better than using the r-word. You said your son doesn't mind you using the word, but there are so many people that do. Words like the r-word perpetuate negative stereotypes about people with disabilities, please don't use it.

I Am Autistic and I Know What Autism Is

Autism is not a set of deficits. Autism is complex and all of us can self-advocate despite the difficulties we might face. Autism is life. I am Autistic, I self-advocate and I am happy.

Pediatricians: Recess Crucial for Development, Academic Success

The move to add more instructional time by eliminating recess could prove to be detrimental to kids in the long run according to a statement released by the American Academy of Pediatrics. ABC News reports that the statement is the latest addition to the

Your brain on Big Bird: Sesame Street helps to reveal patterns of neural development

Using brain scans of children and adults watching Sesame Street, cognitive scientists are learning how children’s brains change as they develop intellectual abilities like reading and math. The novel use of brain imaging during everyday activities like w

Q&A: IDEA and child care

This 4-page brief explains the basics of the Individuals with Disabilities Education Act (IDEA) to child care providers, including early intervention for children under the age of 3 and special education and related services for school-aged children. It

Awesome Resource : Tiny Grace Notes (AKA Ask an Autistic)

We absolutely love Tiny Grace Notes. Check it out, you will too. Elizabeth (Ibby) Grace is brilliant, kind, and all around wonderful. Got a question about autism? Send it to Dear Ibby! Ibby is an education professor, a researcher, a mom, and Autistic. There is something about Ibby. She is one of those people who are easily able to convey warmth, respect, goodness, and so much information in  just in a couple of paragraphs. Read her blog, you'll see. But, carve out some time, you won't read just one.  

My Skilled Companion Dog

We love the ebook "My Skilled Companion Dog"  by Samuel Habib. It is a great and very realistic account of  getting a CCI ( Canine Companion for Independence)  skilled companion dog. Henry also has a CCI skilled companion dog, Denzel. CCI's two week training and matching program was such an extraordinary experience for Henry and me. We completed the course on CCI's Orlando campus, living in a dorm with 6 other families . The kindness and generosity exemplified by everyone involved was so touching ; from the amazing puppy raisers, the volunteers feeding us everyday, the patient and loving staff

Why the Fiscal Cliff Deal Doesn’t Solve Our Education Funding Crisis

As the Washington Post points out, the deal "fails to defuse the prospect of a catastrophic national default two months from now" and it "does not raise the debt ceiling, leaving the Treasury to use what it calls 'extraordinary measures' as long as it ca

Top 10 Guest Blogs of 2012 | Disability.Blog

2012 was an exciting year for Disability.Blog! We expanded existing partnerships and began dynamic new ones with leading disability organizations, such as the Invisible Disabilities Association (IDA). IDA President and Founder Wayne Connell and IDA ambassadors, includingKathe Skinner and Jeff Vankooten, wrote thoughtful posts throughout the year to let our readers know about the importance of recognizing and understanding invisible disabilities, and to offer people living with chronic illness and pain an opportunity to tell their personal stories. Read more here: Top 10 Guest Blogs of 2012 | Disability.Blog.

By |January 2nd, 2013|Categories: blog, General|Tags: , |0 Comments

Raising Rebel Souls

We are huge fans of Raising Rebel Souls. Heather  is an incredible writer and advocate, and stood firmly with Henry:) Here's a bit about Raising Rebel Souls: Rebel Mommy: I am Rebel Mommy, also known as Heather. I have been given a lot. I am lucky in love. Yes, my hands are full, yes, I drink too much coffee, yes, my dishes are currently piled up and no, I am not a good housewife, but yes, I am a damn good Mother. I was born to do it. I swear to you, my life before my sons, was just me

  • three teenagers at "The Event of a thread"

Calm and Soft but Full of Energy: Thoughts on “the event of a thread”

We went to see Anne Hamilton's: the event of a thread at the Park Avenue Armory while we were in NY last week. It was absolutely magnificent, I wish we could go back again. Hamilton is brilliant. Our family is full of  different tastes, sensory needs and ages and it was a perfect fit for everyone. Henry did an excellent job editing our experience. Henry loved the installation. He said it was "calm and soft but full of energy", "smooth and architectural water crossings " There are benches so if you want to sit down and watch you can,

Consumer Groups File Complaint against Amazon for Not Providing Internet Captioning

December 20, 2012. Today several deaf and hard of hearing consumer groups filed a complaint at the FCC against Amazon for allegedly violating new FCC Internet captioning requirements. These consumers aver that Amazon.com has violated numerous times the F

IEP Team Member Apology: A Template for “Not Knowing It All – After All”

Have you just committed a real faux pas but find yourself at a loss for words to apologize? Perhaps you are a celebrity who needs to apologize for disability-related comment… A teacher who needs to apologize for outrageous classroom mistreatment… Or, a p

It is About Respect

Respect for one another is one basic quality if we want to have meaningful conversations and relationships with other human beings. The ableism that disabled people experience is a form of disrespect.

Crowdsourcing Site Compiles New Sign Language for Math and Science

A multimedia feature published earlier in December in the New York Times, "Pushing Science's Limits in Sign Language Lexicon," outlines efforts in the United States and Europe to develop sign language versions of specialized terms used in science, techno

Christmas Wish for Children and Teachers of Sandy Hook

We wanted to do something that would specifically honor some of the passions and characteristics the victims families described.

By |December 25th, 2012|Categories: blog, Editor's Picks, Featured (Homepage), General, Lifestyle, Think Tank|Tags: , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |0 Comments

Letter from National Council on Disability (NCD) to the President Following Newtown Tragedy

December 20, 2012 The President The White House 1600 Pennsylvania Avenue NW Washington, DC 20500 Dear Mr. President: On behalf of the National Council on Disability (NCD), an independent federal agency, and in response to your recent national call to act

Expert: Asperger’s not linked to violence

Published: Dec. 22, 2012 at 10:07 PM PHILADELPHIA, Dec. 22 (UPI) -- To suggest a tie between Asperger's syndrome and violent, sociopathic tendencies is to undermine the research on autism spectrum disorder, a U.S. expert says. Michelle Rowe, executive di

COPAA Statement on the Newtown Tragedy

The members of Council of Parent Attorneys and Advocates, Inc. (COPAA) work in schools every day with teachers and on behalf of the 7.1 million children with disabilities in the United States. Because of our work, we feel intense, personal pain over the

A mother’s anger: Stop linking autism to violence

Sarah Darer Littman and her son shared their story at a StoryCorps booth in 2006. STORY HIGHLIGHTS Mother of son with Asperger's upset about misinformation spread recently Writer implores journalists to be responsible when reporting on the syndrome "Your

By |December 22nd, 2012|Categories: Articles, General|Tags: , , , , , |0 Comments

Mind Mysteries

Magnetic resonance image of a brain. The grey C-shaped structure visible at the center of the brain is a corpus callosum. Many born without this structure go undiagnosed for years—only neuroimaging can confirm the agenesis, or failed development, of this brain area. Instead people are diagnosed with disorders such as autism, depression, or ADHD. Sarah Mellnik, a young woman –introduced in Scientific American Mind‘s “The Mystery of the Missed Connection“– who has known about her agenesis of the corpus callosum all of her life explains that in sharing experiences, she and those around her learn that they truly are not alone. “If

FCC Honors Designers of Communications Technology Benefiting People with Disabilities

445 12th Street, S.W. FOR IMMEDIATE RELEASE NEWS MEDIA CONTACT: December 19, 2012 Michael Snyder at (202) 418-0997 E-mail: Michael.Snyder@fcc.gov FCC CHAIRMAN GENACHOWSKI HONORS INNOVATORS IN ACCESSIBILITY COMMUNICATIONS TECHNOLOGY IN CEREMONY TODAY Demo

My Top Ten

These are the top 10, now top 18 things I need for teachers, therapists, doctors, friends and family to know.

My iPad Is Not a Toy

Please never refer to my iPad as a toy. It is not. It is my voice. Imagine if you could not speak with your mouth how important your iPad voice would be.

  • Boy with brown hair and blue and white checked shirt holds sign that reads The Civil Rights Act of 1964 granted equal rights to all people. I am a person. I want these rights.

Standing Together for Inclusion

Standing together for inclusion, communication and civil rights. Please include all kids in your classroom.

Henry’s Road to Inclusion Part 1

Henry met Tracy, Larry, Harvey Lavoy, and Pascal Cheng on June 9, 2011. It was a very special day, one that would change Henry's life forever.

Changing the Paradigm

Sir Ken Robinson on education reform. "Changing Paradigms in Public Education" covers the importance of thinking differently about human capacity , recognizing the benefits of collaborative learning, and changing the culture of our institutions.

What Does Ollibean Mean to You?

Crazy but true, simply wearing an Ollibean tshirt makes bedtime routine happy and fun! Send us a message about why you want one, what Ollibean means to you, and we'll get one to you.

Use of the ICF for Guiding Patient-Reported Outcome Measures

The World Health Organization's International Classification of Functioning, Disability, and Health (ICF) has been adopted by most professional organizations that are concerned with the rehabilitation process, including by the American Speech-Language-He

An Ethnographic Investigation of African American Mothers’ Perceptions of Augmentative and Alternative Communication

The purpose of this study was to investigate fourteen African American mothers' perceptions of the utilization of augmentative and alternative communication (AAC) by their children with autism spectrum disorders (ASD). The authors used ethnographic metho

Hearing disorder could be misdiagnosed as ADHD in kids

Not enough doctors are aware of auditory processing disorder, the Canadian Association of Speech-language Pathologists and Audiologists says. (iStock) A little-known hearing disorder affecting two to three per cent of Canadian children is being misdiagno

Sensory/Movement Differences and Diversity

For a lot of people, the most anticipated books each year are about vampires or girls with great archery skills, but the release I waited for was this book by friends, Martha Leary and Anne Donnellan. I am not exaggerating when I share that their first book, Movement Differences and Diversity in Autism, completely changed how I thought about disability, behavior, and autism. This new volume did not disappoint, and I am now recommending it to everyone in my circle (and now, to all of you)! To me, no other researchers/scholars in autism are doing more than these two women

TPGA’s All Ages Holiday Book Guide

Do you love to give and receive books? We love to give and receive books. So for you and for us, here's a short selection of recommended books by, for, about, and enjoyed by autistic people and their families. If you have additional suggestions for books

Alan Cumming picks 5 unconventional family films

"Any Day Now" follows the struggle of a gay couple in late-1970s Los Angeles to adopt an abandoned teenage boy with Down syndrome. It's not exactly your traditional, old-fashioned family unit. So who better than the film's star, Alan Cumming, to ponder t

By |December 13th, 2012|Categories: Articles, General, Lifestyle|Tags: , , , , |0 Comments

‘Smartpen’ Pilot Program Helps Students with Disabilities

We often get questions about the legality of using a recording device or pen in class. Parents ask this question when schools tell them “recording devices violate the confidentiality” of other students in the classroom. Digital recorders or recording pen

Amy Sequenzia: I Need to Thank Some People

After “Non-speaking, ‘low-functioning’” was published, lots of people wanted to hear from me. I met so many amazing people, autistic bloggers with so much to share and the smartest people I know. Parents of autistic children also valued my words.

Shatter the Myths About Autism

"No Myths". Must see PSA by the Autistic Self Advocacy Network and the Dan Merino Foundation. Change the conversation about autism.

Ollibean: All of a kind

The faces of Ollibean are kids with and without disabilities all trying to make the world a better place.

  • boy wearing a turquoise tshrt that reads "Not being able to speak is not the same as not having anything to say" sitting on couch one hand on iPad one hand on his dog . The dog is yellow lab/golden mix .

Henry Frost on Inclusion on the Autistic Self Advocacy Network

Henry wrote about inclusion for the Autistic Self Advocacy Network, read the entire article here. Ari Ne'eman, president of the ASAN, had an enormous impact on Henry's decision to speak out about his desire to attend his neighborhood school. "I met Ari at theAutism Summer Institute. I wrote to him about my school and he understood. He helped me advocate for my rights. ASAN helped with the petition. He is also autistic. He is also my friend. I did not read about a person who liked being in a separate school away from their friends learning cooking for life skills

Aide at Maryland School for the Deaf charged with sex abuse of minors

Posted at 01:55 PM ET, 12/06/2012 Dec 06, 2012 06:55 PM EST TheWashingtonPost By David Marino-Nachison An aide at the Maryland School for the Deaf’s Columbia campus has been charged with inappropriately touching three girls when they were students at the

Scientists identify molecules in the ear that convert sound into brain signals

IMAGE: Ulrich Mueller, PhD, (center) isa professor in the Department of Cell Biology,director of the Dorris Neuroscience Center at The Scripps Research Institute, and lead author of the Cell paper;Wei... LA JOLLA, CA Â December 6, 2012 Â For scientists w

Use Your Words: Non-Verbal, Speech, and AAC

I see a little girl every week at events that my child attends. She's great. She's nine years old, has a fantastic laugh, and a mischievous sense of humor. She loves puddles, chocolate cake, and apples. She has a small crush on my son. She's also non-ver

Editorial: Disabled Senate rejects U.N. rights treaty

Former Senate Republican leader Bob Dole is wheeled into the Senate on Tuesday.(Photo: CSPAN2 via AP) Dole, a former party leader and a disabled veteran, tried to champion the treaty in the Senate. The opponents persuaded 38 Republican senators to vote n

Which Congressman Is Blocking Bill That Would Protect Kids with Autism?

Legislation aimed at protecting children with autism and other disabilities from being injured in school has stalled in the House of Representatives at the hands of a single member who objects to federal intervention. Minnesota Republican Rep. John Kline

By |December 5th, 2012|Categories: Articles, General, Politics|Tags: , , , , |0 Comments

Shouldn’t Every Day Be International Day of Persons with Disabilities?

We are committed to removing barriers to create an inclusive and accessible society for all. Not just on December 3rd, but each and every day.

I Am

How do you talk to someone who uses AAC?

  • I Stand With Henry

Autistic Student Wins the Right to Go to School

Henry Frost had a pretty simple goal: he wanted to go to school like any other kid.

Autism on CSPAN Washington Journal

Hi. My name is Henry Frost. I am a 13 year old Autistic self advocate. I agree with Ari Ne'eman. This is a civil rights issue. Communication and inclusion are basic civil rights. I made this video about civil rights. I made a FB page and petition so I could go to school in my neighborhood. Ari and ASAN helped me advocate. http://www.facebook.com/IStandWithHenry , change.org/henry People all over the world wrote this is a civil right. We want the same things in life. We are not so different. Please watch to understand how much we need support for

Build Your App with Therapy Box

“After numerous requests, we have opened up our service to work with creative speech and language therapists, teachers and organisations who have an idea for an app they would like to deliver. We will make it happen” explains Therapy Box Therapy Box, the

Get Schooled: Jack Black Rocks “Sensitive”

AUTISM IS AWESOMISM . LOVE this video performed by the incredible Wyatt Isaacs (Autism the Musical), Jack Black, Stephen Stills from the Miracle Project Benefit.

CEC Celebrates IDEA’s 37th Anniversary

On November 29, 1975 President Gerald Ford signed into law the Education for All Handicapped Children Act (Public Law 94-142), landmark legislation that forever changed how American’s view individuals with disabilities. Now known as the Individuals with

Longview school suspends use of isolation box

The Longview School District has suspended the use of an isolation box for special education students while it reviews the policy for isolating students who may be a danger to themselves or others. The Longview School District has suspended the use of an

ASAN Statement on Upcoming House Autism Hearing

“We’re profoundly concerned by the decision by the House Committee on Oversight & Government Reform to convene a hearing on autism next week without the inclusion of any Autistic witnesses or representatives from organizations run by Autistic people. Jus

Evaluating the Efficacy of the LRE

I attended an IEP meeting recently that really brought home for me the complex nuances of determining what placement, or blend of placement options, represents the Least Restrictive Environment (“LRE”) for an individual student with an IEP. Not only are

After student’s death, Hillsborough school’s ESE aides could not recall missing-child training

Hillsborough County school district investigates a student's death last month at Rodgers Middle School, issues are emerging that go beyond the five suspended special education employees and even their Riverview school. It is unclear if the workers, who earn as little as $11,000 a year and are now on paid leave, were trained in how to react when a student goes missing. Read more from Tampa Bay Times, Marlene Sokol

School board wants answers in wake of student’s death

Two separate investigations are now going on in the Hillsborough School District.

Amy Sequenzia: I, Too, Want to Understand.

Why would a parent of an autistic child decide that it is better not to listen to other autistics? Why? I, Too, Want to Understand.

Nathan Heller: Andrew Solomon’s “Far from the Tree.”

For Megan and Michael, a Los Angeles couple, the crucial turn of parenthood came not in the delivery room but eight months later, when they started to worry that something had gone wrong with their son. The baby, Jacob, didn’t respond to the surrounding

Now, It’s Our Turn!

Tonight, Terri and I had the tables turned on us! It was our turn to be on the "hot seat" when we were featured guests on HuffPost Live. Interviewed by host, Nancy Redd, we appeared live (and on camera - much more stressful than a phone interview!!) to d

CHOP presents new findings on pediatric cardiovascular disease at AHA 2012

Physician-researchers from the Cardiac Center at The Children's Hospital of Philadelphia presented new findings on pediatric cardiovascular disease at the American Heart Association's Scientific Sessions 2012 in Los Angeles. They described racial dispari

  • ollibean think tank. tim villegas. inclusion

The Case for Inclusion Part 3: Sea Change

The longer there is a strong distinction between general and special education the worse it is for students who are labeled with a disability. It perpetuates the language of Us and Them...

Adding the I to IEP: H is at the table

We worked with the wonderful team at H’s Distributed Learning School to update his Individual Education Plan (IEP) and for the first time ever H was there to take part. He wasn’t completely interested – but we built-in other options for him so he could p

Open Letter from a Doctoral Student Who Needs Some Help with her Study

Hi, my name is Christina and I am a doctoral candidate at Grand Canyon University. The title of my dissertation is “Examining the Potential of Using Technology to Improve Academic Performance: The Experience of Autistic Children with E-Readers.” As a for

Paula Kluth on The Inclusive Class Roundtable

Paula Kluth's strategies for teachers who might be reluctant or don't know where to begin with inclusion on The Inclusive Class Roundtable, as well as some of our favorite things from her website, PaulaKluth.com.

Seth’s case: Special-education battles with no end

Posted at 01:09 PM ET, 11/04/2012 Nov 04, 2012 06:09 PM EST TheWashingtonPost Seth turns 9 on Saturday. He is a radiant child who often looks better than he feels. He was born nearly four months prematurely and weighed 15 ounces at birth. He has many med

What I Learned “When Schools Say No to Inclusion “

The guests on the show are leaders in the inclusion community. They all brought something unique to the table, but they had one thing in common- respect and dedication to all learners.

Supporting Students with Learning Disabilities – 11/02/12

Having taught at the primary, secondary and college levels, Dr. Horowitz has also worked as a consultant to school districts throughout the New York City metropolitan region. In addition, he is frequently cities in popular press topics including parentin

  • National Center on Inclusive Education (NCIE) a priority area the University of the New Hampshire’s Institute on Disability

The National Center on Inclusive Education (NCIE)

The National Center on Inclusive Education (NCIE) at the University of New Hampshire’s Institute on Disability is a leader in the transformation of schools so that students of all abilities are successfully learning in their home schools within general education settings. Vision When students with disabilities are provided appropriate instruction and supports, they can learn grade-level general education curriculum, communicate in ways that are commensurate with their same-age peers without disabilities, have meaningful social relationships, and graduate from high school—college and career ready.  

Access to the General Curriculum for Students with Disabilities: A Brief Legal Interpretation

Access to the General Curriculum for Students with Disabilities: A Brief Legal Interpretation By Joanne Karger and Charles Hitchcock Introduction The 1997 reauthorization of the Individuals with Disabilities Education Act (IDEA) introduced important changes in the provision of special education services for students with disabilities. One of the most significant changes concerns the requirement that students with disabilities receive access to the general curriculum. Specifically, the new Amendments require that students with disabilities: (1) have access to the general curriculum; (2) be involved in the general curriculum; and (3) progress in the general curriculum. The purpose of this brief is to

URMC, Deaf Community, Study How to Improve Research Participation

Documents that explain life-saving medical procedures or how to take part in research can be difficult to understand, but with a $600,000 grant the University of Rochester Medical Center is studying new ways to deliver those messages to deaf patients and

Listen to The Inclusive Class Roundtable – 10/26

Inclusive Education, as defined and described by education experts, is a philosophy. It is not a program, nor does it happen in is... Parents of school-age children can often become bewildered by today’s education system and it’s expectations. Its quickl

Special ed in distress A few schools get it right, but complaints and lawsuits are mounting against a troubled program serving 7,000 Seattle students.

Five years ago, a high-profile report found that Seattle's public-school district was decades behind the rest of the country in serving students with disabilities. Today, the problems are even worse. Six special-education directors — and three superinten

Why Won’t the School Provide Homebound Instruction?

My child’s doctor recommended homebound instruction. The school said they had the authority to override that recommendation. Why won’t the school provide homebound services? Issues of homebound are determined in part by state law and state regulations, i

COPAA Announces Keynote and General Session Speakers for 2013 Conference

COPAA is an independent, nonprofit membership organization of special education attorneys, special education advocates, related professionals, and parents/family members. Our primary mission is to secure high quality education services for children with

For collegians with disabilities, success linked to mentoring, self-advocacy

(Phys.org)—A Rutgers study of recent New Jersey college and university graduates with disabilities has found that students attributed their academic success to a combination of possessing such strong personality traits as self-advocacy and perseverance,

Low Eye Contact Is Not Just An Autism Thing

A news story about a Society for Neuroscience conference report on the discovery of “eye cell” neurons that register eye contact says: This new type of neuron was discovered in a Rhesus macaque. If humans have these neurons too, it may be that they are i

By |October 16th, 2012|Categories: Articles, General|Tags: , , , , , |0 Comments

Oct 26th The Inclusive Class Podcast Presents a Roundtable Event: “When Schools Say ‘NO’ to Inclusion”

On Friday, October 26, 2012 at 9 AM Eastern Standard Time, The Inclusive Class Podcast proudly presents a one hour long roundtable event on Blog Talk Radio. This event brings together experts in the area of inclusive education to discuss and respond with practical techniques when schools say 'NO' to inclusion.

Th Inclusive Class Roundtable :”When Schools Say ‘NO’ to Inclusion”

This event brings together experts in the area of inclusive education to discuss and respond with practical techniques when schools say 'NO' to inclusion.

  • Ollibean Think Tank Amy Sequenzia Advocacy on turquoise and green background

Supporting Young Autistics

We hope that young autistics today will be proud of themselves and without shame. The message that boy received at that moment was the opposite of acceptance. It was ableist and it came from someone who is part of our own community.

Inclusive Education: It’s Great If You Can Get It

Inclusive schools need to become a reality for all students across the nation regardless of abilities, socio-economic background and geographic location. Unfortunately, many school districts do not see the inclusive classroom as the Least Restrictive Environment and an appropriate placement for children with special needs. Thus, what one child has free and appropriate access to, another one doesn’t. And then inclusion , which has been proven by experts to be the gold standard of special education, becomes an ideal situation…if you can get it. The lack of universal practice of inclusive education in our school system creates an overall discord in

Justice Department Settles with Florida Bus Companies Over Accessibility Violations

The Justice Department reached four settlement agreements with over-the-road bus companies in Florida in the last month, to ensure that bus transportation is accessible for people with disabilities. The settlements under the Americans with Disabilities A

Wendy’s Franchisee to Settle Lawsuit for Refusing to Hire Applicant with Hearing Disability

DALLAS - CTW L.L.C., a Wendy's franchisee, has agreed to pay $41,500 and provide other significant relief to settle a disability discrimination lawsuit brought by the U.S. Equal Employment Opportunity Commission (EEOC), the agency announced today. The EE

Landmark Decision Promoting Accessible Books for the Blind

Baltimore, Maryland (October 11, 2012): The National Federation of the Blind (NFB) today applauded a decision issued on October 10, 2012, by the U.S. District Court for the Southern District of New York, which permits the distribution of millions of book

Why is a 13 year old protesting in order to go TO school?

How did we get here? How did we get to a point that our 13 year old son has to fight for the rights that are already his under federal law? How did we get to a place where a pretty reserved kid has the courage, the will, to do this?

Netflix pledges to caption all content by 2014

Netflix will offer closed captions on all TV and movie content by September 2014 as part of a settlement with a deaf Massachusetts viewer who sued the company. The on-demand Internet streaming service agreed to the settlement Tuesday in U.S. District Cou

Social Media Helps Student With Autism Find His Voice

Henry Miles Frost and his service dog, Denzel, protest outside a downtown Tampa building during the Republican National Convention. Since he posted the photo to Facebook, he’s found global support in his effort to enroll in his South Tampa neighborhood s

AAPC Publishing Releases Lesson Plan a la Carte: Integrated Planning for Students With Special Needs

Integrate learning objectives with therapeutic supports and necessary modifications right in the classroom. Multiple worlds exist within the educational universe. Integrated planning happens when each of these worlds (teaching, clinical, administrative,

National Council on Disability (NCD) Releases Report on Rights of Parents with Disabilities & Their Children

WASHINGTON, DC -- On Thursday, September 27, the National Council on Disability (NCD), an independent federal agency, released “Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children” -- a groundbreaking policy study, inf

The Case for Inclusion Part Two: What Does Inclusion Look Like?

It should always be the objective of public education to serve all students no matter what their disability label. It should always be the objective to give the right amount of support for all children.

Bureaucrats

You look at me But you don’t see me You talk about me but not to me You think you know all about me But you deny my humanity You think I don’t have wishes You believe I don’t have plans You don’t respect my basic rights According to you I should be grateful That I have a place to sleep That I have three meals a day If I say I want to go out You ignore me To you I am only a burden Too disabled to have an opinion To you I don’t count as a person

Presume My Competence

Really, this is number one. Please presume my competence.

  • Top 10 things I need you to know

Focus on My Strengths

#4 Please focus on My Strengths. I have many. We all do.

I Stand With Henry

What Henry is doing is advocating for his rights, at the same time that he reminds us of our own rights and about how far we still have to go.

Top 10 Things Autistic Self Advocate Needs Teachers to Know : # 3

Top ten things I want you to know. Number 3: Please talk directly to me, not to my support person.

  • boy wearing a turquoise tshrt that reads "Not being able to speak is not the same as not having anything to say" sitting on couch one hand on iPad one hand on his dog . The dog is yellow lab/golden mix .

Autistic Student’s Top 10 List for Teachers of Students with Special Needs #2

Top ten things Autistic student wants teachers, therapists and friends to know about students with special needs... they may be shocking to some of you, but hopefully to most they are exactly what you expect. Here's number 2.

  • Girl with brown hair , blue tshirt is holding an iPad out in front of her. Her face is obscured by the iPad. Boy with Brown Hair holds a white sign that says " The Civil Rights Act of 1964 granted equal rights to all people. I am a person. I want these rights.

A Sister Stands with Her Brother: I Am Heard, I Am Important, and I Am Included

No one wants to be the excluded one, the one to stand alone in silence, the one left out of the conversation. No one wants to be forgotten. So why are some individuals treated this way? Luckily it just takes one person to stand up and include, and the rest will follow. Be that person, take a stand, make a difference.

StateImpact Florida A Finalist For Innovative, Investigative Journalism Award

From our investigation: Tres Whitlock types on the DynaVox tablet that serves as his voice. Whitlock, 17, has cerebral palsy and can’t speak on his own. He tried to enroll in a Hillsborough County charter school, but the school had concerns about the the

I am the 20 % and the RNC

Henry takes his bi-partisan message of inclusion and civil rights for all to the Republican National Convention.

NeoSpeech Text-to-Speech Featured in AAC Speech Application

We believe that NeoSpeech Text-to-Speech will benefit people with speech disabilities to communicate with other people. NeoSpeech, a leader in text-to-speech (TTS) software and speech-enabled solutions, announced today that an Augmentative and Alternativ

  • flowers, green leaves, red geranium, blue bells, hyacinth, ivy

A Sensory Garden for Zoë and Oliver

One of Ollibean's contributors, the lovely and amazing, Julie Lohoefener of Bloom Garden Shop, let's us in on some great tips on creating a non-toxic Sensory Garden with your kids.

Looking to November, Disability Advocates Call for Accessible Polling Places

A Federal Court Judge will hear testimony Monday about how to make city polling sites more accessible for people who use wheelchairs or have vision impairments. Earlier this month, U.S. District Judge Deborah Batts ruled there were pervasive barriers at

By |August 27th, 2012|Categories: Advocacy, Articles, General, Politics|Tags: , |0 Comments

Dr Thomas Armstrong – Neurodiversity – Aug 27,2012

Call in to speak with the host "Neurodiversity" by Dr Armstrong - Brilliance "Neurodiversity - Discovering the Extraordinary gifts of Autism, ADHD, Dyslexia and other brain differences. This book has it all - what research tells us about the specific str

USC’s Special Ed Infographic

Welcome to Making Special Education Actually Work, the official blog of KPS4Parents. We sincerely hope that this blog proves to enlighten and empower all responsible adults to ensure that all children, regardless of disability, receive a Free and Appropr

Listening to Autism: A letter from Mrs. Teacher Lady

I wanted to thank you for all the hard work you do in not only helping your son through his journey and helping him accept himself, but helping others on their own journey as well. I wanted to share with you a little bit of my story. I have always found

National Federation of the Blind Applauds National Council on Disability Report

Dr. Marc Maurer, President of the National Federation of the Blind, said: “We applaud the National Council on Disability for its strong affirmation of the value, equality, and dignity of workers with disabilities, and for its recommendation that Section

First Day of School

Today is the first time that Henry has not had a First day of School. He is not allowed to go to his neighborhood school that is about 200 yards from our home.

  • Ollibean Think Tank Amy Sequenzia Advocacy on turquoise and green background

Amy Sequenzia : Friendship and Respect

It is a mistaken idea that we, autistics, lack empathy. It is also a myth that we are not social. My friends and I, we understand and respect differences. And we understand that we all have a lot to contribute, in a diversity of manners.

Another School year !!

Another school year begins August the 16th for us. My son is a young 1st grader , he will be 6 on August 23rd . But will still be five when school starts . His kindergarten experience wasn’t so great . Before he started school last year I met with the sc

Special needs kids staying in traditional schools

LOS ANGELES The high cost of educating students with special needs is disproportionately falling on traditional public schools as other students increasingly opt for alternatives that aren't always readily open to those requiring special education. The i

My Video for Day without Starbucks for Sebastien

My video to help raise money for "Day Without Starbucks for Sebastien" . Sebastien is my friend. He has MELAS, a mitochondrial disease that is hurting him. Please help.

Sebastien’s Smile

Sebastien's Smile was created for the sole purpose of raising awareness for Mitochondrial diseases which affect the Setin's son Sebastien.

Henry’s video for his friend Sebastien, please help by sharing

Thursday Henry decided he wanted to write something to help his friend. We decided to video the process, as you can see, typing one letter at a time is a very long and arduous process. It took Henry  hours to type and edit that paragraph. It was hard and Henry decided to not to share the parts that were too emotional. Sebastien is one of Henry's best friends, he loves him dearly and he has watched his body get weaker and weaker each day. I am so proud of H for writing this, it was very, very hard for a

Amy Sequenzia: “Storm”

"Storm" a poem by autistic self-advocate Amy Sequenzia.

Ollibean Talks to Ray Ellis, director of “Certain Proof: A Question of Worth”

"All of these children have one thing in common. They were always having to prove themselves, over and over and over again." Ray Ellis

Mom seeks heart transplant for autistic son

A Pennsylvania woman whose autistic adult son was not recommended for a heart transplant because of his illness and the complexity of the process, among other factors, said she wants to bring more attention to the decision-making process so that those wi

London 2012 Takes Paralympic Torch Relay to New Heights

The Paralympic Torch Relay is the perfect moment to get your flags back out and get behind the incredible athletes taking part as the excitement builds once again right across the capital • Flames to be created at the summits of the UK’s four highest pea

WEBSITE WEDNESDAY: The Accessible Principal

I am so thrilled to share the with you, which is a new blog that was launched this summer by one of the best administrators I have ever met. Marilyn is a school and district leader in a suburb here in Chicago and she has interests ranging from technology

  • woman reading a book in lounge chair with ocean in background

Ollibean Mama Spotlight

Connect and learn with other parents like Tonya who presume competence and celebrate their children for being exactly who they are. #allofakind

NYC to Integrate Special Ed Students into Regular Classrooms

New York City’s pilot for special education inclusion has moved the district to apply the program to a majority of the schools in the city. The city’s conclusion is that students with special needs should get access to the general education curriculum, n

What is the Timeline for Developing a Section 504 Plan?

My 6 year old daughter had her 3 year reevaluation. She has Childhood Apraxia of Speech and fine motor difficulty. She is doing well academically. At the IEP meeting, one month ago, it was decided that she no longer qualifies for an IEP. The school sugge

Disability in an Ableist World

Disability as a constructed concept is not a commonly understood or propagated idea in the mainstream of an ableist society. The average non-disabled person, and frequently even disabled people who’ve had limited or no exposure to disability rights theor

Resources and Downloads for Differentiated Instruction

Educators from Mesquite Elementary School, in Tucson, Arizona, have provided these resources for you to use in your own school. Daily collaborative planning time at Mesquite Elementary enables teachers to plan differentiated instruction to address the pr

  • ollibean think tank. tim villegas. inclusion

The Case for Inclusion: Does All Really Mean All?

Tim Villegas of Think Inclusive on the motivation to change from educating students with disabilities in segregated settings to inclusive settings where all means all.

Ollibean Think Tank Member Tim Villegas

My hope is that ThinkInclusive.us can create a bridge between educators, parents, and advocates (including self-advocates) to promote ideas, innovation and inspiration to change our world to be more accepting and value each and every human being.

How to Make Inclusive Practices a Reality For Your School

The new school year is fast approaching and The Inclusive Class Podcast is set to help you prepare! On Friday, August 10, 2012 we will kick off our "Back to School" series which is 3 podcasts that will discuss tips, strategies and resources for helping y

  • Change Leader in pink capital letters. AMY SEQUENZIA in brown capital letters with brown line on top and bottom of text. poet. advocate. human. lower case text

Change Leader: Amy Sequenzia

"Presume competence. The same way I want people to assume I am competent, I also assume that others are competent".

Snacking: The Little Bite That Won’t Hurt You

Ollibean contributor Kristie Salzer talks about the benefits of "refueling" between lunch and dinner to decrease hunger related meltdowns for kids. We love her suggestions of 25 super easy snacks to get you started!

  • Ollibean Think Tank Amy Sequenzia Advocacy on turquoise and green background

Amy Sequenzia:Dear Mainstream Media

I am an autistic woman, non-speaking and I have many needs.Yes, dear mainstream media, I am the autistic supposedly too “low-functioning” to deserve to be heard. You pity me and you ignore the facts.

Researchers discover gene mutations in patients with alternating hemiplegia of childhood

Alternating hemiplegia of childhood (AHC) is a very rare disorder that causes paralysis that freezes one side of the body and then the other in devastating bouts that arise at unpredictable intervals. Seizures, learning disabilities and difficulty walkin

By |July 30th, 2012|Categories: Articles, General|Tags: , , |0 Comments
  • got questions? get answers from our disability centric community

Got Questions? Get answers from our disability-centric community.

We’ve organized Ollibean so members can support each other in a very organic way. You will connect with others based on mutual interest in diffability related content.

  • Because we are all human beings and ‘disability’ does not define a person. And I hated social injustice and inequality from a very young age. I dislike ‘disability labels’ and I feel that children deserve something better than to be segregated and denied an equal education and a means of communication on grounds of disability. Richard Attfield activist. author. human.

Change Leader: Richard Attfield

Richard Attfield, a contributing author to "Autism and the Myth of the Person Alone", is passionate about the rights of children with disability labels to have equal access to education and communication supports.

Human rights complaint over Montreal girl forced off bus

The family of a 12-year-old girl who was forced off a public transit bus in Ville St-Laurent, Que., last month is filing a civil rights complaint against Montreal's public transit authority and the Montreal police department. According to a release by th

  • Change Leader Richard Attfield author.activist.human.

Change Leader Questionairre: Richard Attfield

Change you would you like to see in your lifetime? "The end of discrimination towards children/people with disability labels. And the human right of communication implemented fairly. " Richard Attfield

  • Self-advocacy Road trip 2012 all of a kind

Self-Advocacy, Inclusion, Communication, and Friendship Roadtrip 2012

Our three week Roadtrip has begun. Syracuse, then on to New Hampshire and the Autism Summer Institute.

Turner Classic Movies Showcases Films About Disability

TCM to Examine Hollywood's Depiction of People with Disabilities in The Projected Image: A History of Disability in Film in October Lawrence Carter-Long Joins TCM's Robert Osborne for Historic Month-Long Film Exploration, Presented in Collaboration with

The Americans with Disabilities Act: CEC Celebrates 22nd Anniversary

On July 26, 2012 the United States will mark the 22nd anniversary of key landmark legislation, the Americans with Disabilities Act, also known as ADA (Public Law, 101-336). Signed into law by President George H.W. Bush, this historic legislation resulted

By |July 25th, 2012|Categories: Advocacy, Articles, General, Politics|Tags: , |0 Comments

Self-directed learning helps some students reach goals, study suggests

Students with cognitive and learning disabilities that were taught the fundamentals of self-determination were more likely to access mainstream curricula and achieve their academic and other goals, according to new research by Karrie Shogren, a professor

Teaching Reading to Children with Special Needs

On Friday July 27, 2012, Nicole and Terri will be interviewing Dr. Kathleen Whitbread about the importance of including children with special needs in reading instruction. In todays schools, children who are deemed incapable of reading, are usually pulle

Insights into How Deaf Brain Processes Touch and Sight

People who are born deaf process the senses of touch and sight differently than those who are born with normal hearing, a new study reports. The finding supports the notion that loss of a sense, such as hearing, affects brain development. Hearing loss th

Bright Not Broken – Dr Fred Volkmar – Yale Child Development – Jul 26,2012

This week we continue our conversation on ASD and DSM-5 with leading autism expert and bestselling author Dr. Fred Volkmar director of The Yale Child Development Center. Dr. Volkmar will address the overall rate of autism (1-88) and the percentage that i

School-Wide PBIS & Teachers Who Bully

One reason, I suspect, is that people are so focused on holding bullies accountable that they’re not focusing on the real causes of bullying. But, that’s a reactive strategy rather than a proactive attempt to prevent bullying in the first place. Addition

Diencephalic-mesencephalic junction dysplasia: a novel recessive brain malformation

1 Department of Clinical Genetics, Division of Human Genetics and Genome Research, National Research Centre, Cairo 12311, Egypt 2 Department of Radiology, Cairo University, Cairo, Egypt 3 Department of Paediatrics, Seattle Children’s Research Institute,

Dole, Coehlo Urge Congress To Ratify Convention On Rights Of Persons With Disabilities

(The Hill) July 18, 2012 WASHINGTON, DC-- [Excerpt provided by Inclusion Daily Express] As two individuals with disabilities who served in Congress, the passage of the Americans with Disabilities Act in 1990 was not only a proud moment in our careers, it

By |July 19th, 2012|Categories: Advocacy, Articles, General, Politics|Tags: , |0 Comments

“We Want Respect”: Adults with Intellectual and Developmental Disabilities Address Respect in Research

Abstract Respect is central to ethical guidelines for research. The scientific community has long debated, and at times disagreed on, how to demonstrate respect in research with adults with intellectual and developmental disabilities. To illuminate the v

  • Ollibean Think Tank Amy Sequenzia Advocacy on turquoise and green background

Ollibean Think Tank Member Amy Sequenzia

Amy Sequenzia is a poet and autistic self-advocate. Her writing is as beautiful and powerful as she is. She is an extraordinary voice in the disability rights community .

Florida Alliance for Assistive Services and Technology ( FAAST)

About FAAST Our Mission is to improve the quality of life for all Floridians with disabilities through advocacy and awareness activities that increase access to and acquisition of assistive services and technology. We value each individual's right to achieve their highest potential and the possibilities that can be realized through collaborative efforts focused on the goal of improving life for Floridians with and without disabilities. FAAST has worked with thousands of people with and without disabilities throughout the state to provide: Hands on assistive technology demonstrations and trainings Financing for assistive technology purchases Assistive device lending programs Community outreach to rural and

  • Why would we separate, segregate and alienate children from one another while at the same time teach them to look after the world around them, respect differences and take a stand at injustice ? Nicole Eredics on Ollibean

Why Would We Want Inclusive Education?

Why would we separate, segregate and alienate children from one another while at the same time teach them to look after the world around them, respect differences and take a stand at injustice?

Bullying Prevention State Laws

This new brief focuses on bullying prevention legislation. To date, 47 states have passed legislation requiring schools to take leadership in addressing the problem. This brief provides information on elements of a bullying prevention plan, the school’s

Perfect Ballet Slippers from Linge Shoes

We are obsessed with these ballet slippers from Linge Shoes. We get the skinny from designer/entrepreneur Whitney Evans about her exquisite shoes- perfect for moms and daughters alike.

  • “I can’t speak for my friends, but labels hinder my life. I reject labels. I am just me.” Amy Sequenzia

Amy Sequenzia: “Just Me”

Amy Sequenzia writes about rejecting society's many labels. Perceptions such as “super spectacular” autistic and “low-functioning” are equally harmful .

Support the Convention on the Rights of Persons With Disabilities (CRPD)

The Convention on the Rights of Persons with Disabilities (CRPD) is an international treaty that outlines the obligations of ratifying countries to promote, protect, fulfill, and ensure the rights of persons with disabilities. It embodies the American id

Leaders@ED: Alexa Posny, Assistant Secretary for Special Education and Rehabilitative Services

Alexa Posny has had 23 jobs. While she never envisioned a specific career path, every position she held was a stepping stone towards her current position as the Assistant Secretary for Special Education and Rehabilitative Services (OSERS) at the U.S. Dep

Deaf people “feel touch” with hearing part of brain

(LiveScience) Individuals who are born deaf use the "hearing" part of their brain to feel touch and to see objects, suggests new research that highlights the plasticity of the human brain. The new study, detailed online July 11 in The Journal of Neurosci

Ollibean Baseball Camp July 10th – Aug 2nd

Ollibean Baseball Camp info! From July 10th through August 2nd , 8am to 10am  free baseball camp for kids with special needs at Palma Ceia Little League. The amazing sister and brother team of Katie and Sam Martin have put together a great baseball camp for Ollibean ! Thanks to our friends and Challenger League Leaders and Palma Ceia Little League, camp will take place at PCLL Field C this Tues July 10 (from 8am to 10 am ) through August 2nd!! You do not have to attend the entire time but you are certainly welcome to. It is free and

  • “My heroes are the everyday people who have grace and kindness for others regardless of their difficulties or successes.” orthopedic surgeon. change leader. human.

Change Leader: Dr. Charles Price

If you could change one thing about the world, what would it be? "More acceptance, tolerance and understanding. Everyone is trying to get through life the best way they know how. Some are dysfunctional while others are externally successful. Not everything is as it seems on the surface".

Inclusive Educational Practices for Students with Special Needs

Studies have shown when kids with disabilities are educated in inclusive settings, the classrooms are better for all of the students.

International Hip Dysplasia Institute

The International Hip Dysplasia Institute (IHDI) is a collaborative, international, not-for-profit effort to improve the health and quality of life of those affected by hip dysplasia. Our goal is to provide education to patients, families, and physicians as the most comprehensive and reliable resource for knowledge about hip dysplasia in its various forms. What is Hip Dysplasia? Hip Dysplasia means that the bones of the hip joint are not aligned correctly. It affects thousands of children and adults each year and is known by many different names: Developmental Dysplasia of the Hip (DDH) Hip Dislocation Congenital Dislocation of the Hip (CDH)

A Letter to Parents of Children with Special Needs

I hope you have an enjoyable and relaxing summer with your family! Don’t forget to keep your child reading, practice some math facts or maybe even keep a journal of your family vacation. It's easy to forget about school for the summer and let the days pa

  • ollibean think tank inclusion advocate. talk show host. human. Nicole Eredics

Introducing Ollibean Think Tank Member Nicole Eredics

We are very proud to introduce Ollibean Think Tank member, Nicole Eredics of the Inclusive Class . We know you are going to learn as much from Nicole as we have. She is kind, extremely knowledgeable, and beyond lovely. She really is the consummate teacher. Listen to any one of her podcasts or read her blogs and you'll see what we mean. Nicole is very committed  to inclusion and we are grateful to have her share her knowledge with us. Welcome, Nicole! Hello! I’m Nicole Eredics and I’m an Elementary Teacher who has spent over 15 years teaching in an inclusive school

Special-Ed Students at Greater Risk of Bullying, Being Bullied: Study

TUESDAY, July 3 (HealthDay News) -- Students with visible disabilities and those receiving special education services for behavioral problems are at greater risk of being bullied and of bullying others, according to a new study. These children also are m

  • ollibean_therapy

Dinosaur Claw: Physical Therapy for Cerebral Palsy

"Helping Hands" at Rice University have developed Dino-Might, a controller/game designed for patients with cerebral palsy to use for physical therapy.

  • parenting

Jedd Hafer of Love and Logic ® answers your parenting questions

We recently had the pleasure of speaking with Jedd Hafer, of Love & Logic® and asked him some of our questions. Jed's one of those people that you start talking to and feel like you've known him forever.

Introducing Ollibean Change Leaders

Introducing Ollibean Change Leaders - comprised of the most innovative, passionate doers on the planet. Folks out there blazing a trail for the rest of us, leaders in advocacy, inclusive education, cutting edge medicine, technology, human rights, the arts, disability rights, and philanthropy. They are changing things for people of all abilities. They are the Einsteins, the Ghandis, the Martin Luther Kings, the Helen Kellers of our generation. You’ve probably heard of most of them, and if you haven’t, you will. We all have the power to create real change and make our world a better place, we just have to

Magnets in iPad2 May Alter Settings on Brain Shunt Devices: Study

TUESDAY, June 26 (HealthDay News) -- Magnets embedded in the Apple iPad 2 can interfere with the settings of magnetically programmable shunt valves, which are critical devices to drain excess fluid from the brains of those with hydrocephalus and other co

Change Leader: Larry Bissonette

Our first Change Leader is artist and disability rights advocate, Larry Bissonnette. Larry's art, writing, presentations, and films are changing perceptions about disability around the world. His quote in Wretches & Jabberers, "More like you than not" says it all.

National Council on Disability (NCD) Honors Life of Justin Dart

Listen to the heart of this old soldier. As with all of us the time comes when body and mind are battered and weary. But I do not go quietly into the night. I do not give up struggling to be a responsible contributor to the sacred continuum of human life

Christine Ashby appointed director of School of Education’s Institute on Communication and Inclusion

School of Education Dean Douglas Biklen has announced the appointment of professor Christine Ashby as director of the Institute on Communication and Inclusion (ICI), effective June 1. The ICI, formerly the Facilitated Communication Institute, conducts re

Cooling Therapy for Birth Disorder Boosts Later Survival

A treatment that cools the bodies of infants who lack sufficient oxygen at birth brings benefits that last for years, a new study confirms. Infants sometimes develop severe oxygen deficiency during the birth process. This condition—known as birth asphyxi

Happy Father’s Day to all of the amazing dads presuming competence

Happy Father's Day to all of the amazing dads and stepdads raising children who do things differently- who love and appreciate them for exactly who they are. Thank you for setting a great example every day, for treating your children with respect, so your child expects that same respect from others. Thank you for believing in your child's capabilities, for seeing their strengths, so they grow up seeing their own and expecting others to do the same. Thank you for advocating for your child’s rights, for showing them their rights are worth advocating for. Thank you for fostering your child's

U.S. Department of Education Announces New Awards in Technology and Media Services

The U.S. Department of Education’s Office of Special Education Programs has released applications for new awards in Technology and Media Services for Individuals with Disabilities--Models Promoting Young Children's Use of Assistive Technology. The purpos

Chromosome Disorder Outreach, Inc.

Chromosome Disorder Outreach, Inc. is a non–profit organization, founded, supported, and run by parents just like you. Our children are affected by a wide range of chromosome disorders, including deletions, duplications, trisomies, inversions, translocations, and rings. Sometimes these disorders are so unusual that doctors tell us, "You’re the only one out there." But now using our newly introduced web application we have the capability to specifically categorize chromosomal karyotypes and finally begin to understand more about the genes involved in each rare chromosome rearrangement. We hope to eventually improve specifically tailored treatments to help affected individuals.

Everything’s fine, he’s doing great and other half-truths

Writing about Sebastien and the Setins for One Day without Starbucks for Sebastien and Mitochondrial Disorders, made me think about how difficult it can be to talk about your child's very serious medical issues, even with good friends. I have many dear friends who have children that are currently living with or have had life threatening issues. Every single one of those kids and their families, make it look easy. So easy, in fact, that some people don't realize how hard it can be for many  kids - going to a million doctors appointments, the surgeries, not feeling well. Often, it's hard

  • ollibean think tank inclusion advocate. talk show host. human. Nicole Eredics

Top 3 FAQs About Inclusive Education

Parents naturally want what is best for their child, particularly when it comes to education. If a parent is not very familiar with inclusive education or had a child in an inclusive school, they have many questions and concerns. While too numerous to list, here is the top 3 frequently asked questions about inclusive education: Why isn’t there an inclusion program in my child’s school? Inclusive education is not considered a program that can be offered by schools. Inclusive education is a philosophy that the entire school district must believe in and support. The belief that all children should have

  • Amy Sequenzia

Amy Sequenzia: Respect How I Choose to Speak

I type my words because I am non-speaking. One of my disabilities, or one characteristic of my disability, is that my body does not move like my brain wants. That of course, includes my arm. And I use my arm, my hand and my fingers to communicate. I also need the support of someone to help me coordinate and synchronize my brain and my finger. I need to define support. It is the physical support of helping me type slower than my brain works, being able, at the same time, to feel my movement, knowing when to let go, when

Phonological Awareness and Print Knowledge of Preschool Children With Cochlear Implants [Article]

Correspondence to Sophie E. Ambrose, who is now at the Center for Childhood Deafness, Boys Town National Research Hospital, Omaha, NE: sophie.e.ambrose{at}gmail.com Purpose: To determine whether preschool-age children with cochlear implants have age-appr

One Day without Starbucks for Sebastien and Mitochondrial Disorders

Sebastien is an 11 year old boy, who likes to do things any other 11 year old boy likes to do- play video games, watch sports on tv (especially his favorite player, Lebron James), and play baseball.

National Federation of the Blind

With more than 50,000 members, the National Federation of the Blind is the largest and most influential membership organization of blind people in the United States.  The NFB improves blind people's lives through advocacy, education, research, technology, and programs encouraging independence and self-confidence.  It is the leading force in the blindness field today and the voice of the nation's blind.  In January 2004 the NFB opened the National Federation of the Blind Jernigan Institute, the first research and training center in the United States for the blind led by the blind.

Larry Bissonnette featured on National Geographic

The amazingly talented artist Larry Bissonnette, of Wretches Jabberers, will be featured on an upcoming episode of the National Geographic TV program, Taboo.Check it out.

Matt W’s Field Day Race

Matt ran an amazing race on field day at Worthington, Ohio's Colonial Hills Elementary School. According to the Youtube video, Matt was given the opportunity to sit out, but after watching this kid run, you can see why that wasn't ever an option for him. The strength and determination Matt shows in completing this race is incredible. Matt has  cerebral palsy which makes running challenging, but that does not stop him. Love seeing his classmates and teachers encouraging and supporting him all the way to the finish line.

Stop IDEA Funding Cuts!

There could be some big changes awaiting you during the next school year if Congress does not act soon to save programs for children with disabilities such as the Individuals with Disabilities Education Act (IDEA). Many federal programs will automaticall

Thirty national disability organizations blast “Deadly Consequences” segment of the Dr. Phil show

“This segment was such a horrific assault on people with intellectual disabilities that ignoring it would be a dangerous mistake.” According to the letter, the segment “presented the idea that parents should be able to euthanize their children who have i

By |May 30th, 2012|Categories: Advocacy, Articles, General|Tags: , |0 Comments

Diffuse White Matter in Brain Linked to Language Impairment, Amplified with Autism

Research published last month in the American Journal of Neuroradiology found anomalies in the connecting neural tissues between two primary language processing centers of the brain in autistic children and children with language impairment. The findings indicate that the differences existed in all participants but were more pronounced when language impairment was a factor for the child.

Science-Based Decision-Making in Special Ed

Last month, I wrote an article for Special Education Advisor, a blog operated by some folks located in Chatsworth, CA who are dedicated to helping parents of children with special needs. You can see the article by clicking here. The title of the article

The Setin Family and The Foundation for Mitochondrial Medicine

Sandra and Christophe Setin are parents to 3 great kids, their oldest, Sebastien, was diagnosed with MELAS when he was 3 years old, he is now 11. Sandra is on the Board of FMM, the Foundation for Mitochondrial Medicine and The Pepin Academies. Sandra and Christophe have created a spice, Chef Jean-Christophe's Provencal Meat and Poultry Rub to raise awareness and funds for a much needed cure for mitochondrial diseases. ALL profits go directly to research through The Foundation for Mitochondrial Medicine. Their spice is delicious, Christophe may be the trained chef, but Sandra is also a fabulous cook. Check out their

Report: Disabled Face Transportation Barriers

WASHINGTON, DC -- Two civil rights organizations are highlighting disparities in transportation access for people with disabilities. "Equity in Transportation for People with Disabilities," a report by The American Association of People with Disabilities

Jackson, Miss., schools to no longer handcuff students

JACKSON, Mississippi (AP) — Public schools in Jackson, Mississippi, will no longer handcuff students to poles or other objects and will train staff at its alternative school on better methods of discipline. Mississippi's second-largest school district ag

Videos games as therapy?

Video games may not be as bad for us as our mothers told us. The latest foray into the virtual realm stems from the Archives of Physical Medicine and Rehabilitation, citing that targeted rehabilitation of patients with Cerebral Palsy can be achieved through the use of active video games (Nintendo Wii, Xbox 360 Kinect, Playstation Move, etc.).

Are charter schools bad at special ed?

Critics say public charter schools have an unfair advantage over regular public schools because they are less likely to have students with learning disabilities. That is not always true. Consider one D.C. charter management organization, DC Prep, with mo

Does “Eligible for Special Ed” Mean an IEP?

My 15 year old daughter was determined eligible for special education. The special ed teacher was pushing for a 504, I want an IEP. If she qualifies for special education doesn’t that mean she gets an IEP? The answer to your question about an IEP v. a 50

Helping Special Education Students, and Paying With His Career

There was no particular moment when Harris Lirtzman decided to blow the whistle, and so close the door on his teaching career. A former deputy state comptroller, he had decided to give public school teaching a midcareer whirl. In 2009, he landed a job as

Assistive Technology – What is UDL, NIMAS, and AIM?

The National Instructional Materials Accessibility Standard (NIMAS) creates a national standard for print materials in accessible formats. Schools and publishers must adhere to these standards when creating educational materials – textbooks, workbooks, a

iPad gives voice to kids with autism

Sharia Siddiqui uses an iPad to help her communicate. Her father says it's "given her a sense of control she never had." STORY HIGHLIGHTS Touchscreen iPads are giving voice to autistic children, adults Apps for it and other tablets aid those with trouble

Marine returns from war to surprise: Son with cerebral palsy walks for the first time

Staff sergeant Jeremy Cooney hugs his son, Michael, after the boy with cerebral palsy surprised his father by walking to him. (CBS) (CBS News) A U.S. Marine serving in Afghanistan traveled thousands of miles home for a reunion with his family, but it was

By |May 11th, 2012|Categories: Articles, General, Lifestyle, Parenting|Tags: , |0 Comments

Thank you to the best beta testers on the planet

We appreciate the excellent feedback, and are making changes based on the input from our incredible and highly intelligent group of Beta Testers ( parents, kids living with diffability, self-advocates, therapists, educators, physicians, and freedom fighters) Hang on, fasten your seat belts, it might be a little bumpy along the way, but it will be worth it, we promise.

Autistic boy’s mother feels pressured by school

Amanda Edgett said her 10-year-old son is forced by his school to take a 40-minute walk each day at lunch. (CBC) Catherine Derry, a district education council candidate in the upcoming election, said Edgett’s story will sound familiar to many parents of

Comparing General Education to Special Education: What are the Differences?

Students with autism are educated in a variety of settings including general education (GE) and self-contained (SC) classrooms. In GE placements, students are educated with their peers by a general education teacher. In self-contained settings, students

The Coming Special Needs Care Crisis

Eli Toucey (left) has seizures and social issues that make it all but impossible to leave him with a random babysitter. What could really save Hillary Toucey’s life is a personal-care attendant to help with her 7-year-old son, Eli. Dark-haired, fair-skin

Being left out puts youths with special needs at risk for depression

The challenges that come with battling a chronic medical condition or developmental disability are enough to get a young person down. But being left out, ignored or bullied by their peers is the main reason youths with special health care needs report sy

Disability photography: Changing the world one photograph at a time

Researching the subject, I quickly realised that the majority of photographs of disabled people are very negative, and mainly used within charitable organisations. Having lived within a disability world all my life, I already knew that societies’ opinion towards disability is very negative, and that has to change. I knew from that moment on, that this was something that disability was passionate about portraying in a positive light.

Parents Wire Kids To Prove Teachers’ Verbal Abuse

CHERRY HILL, N.J. (AP) — Teachers hurled insults like "bastard," "tard," "damn dumb" and "a hippo in a ballerina suit." A bus driver threatened to slap one child, while a bus monitor told another, "Shut up, you little dog." They were all special needs st

U.S. Department of Education Reaches Agreement with School District on Services for Students with Disabilities

The U.S. Department of Education announced today that its Office for Civil Rights has reached a resolution agreement with the Memphis, Tenn., City Schools on aids and services to students with disabilities. The agreement resolves a compliance review init

Working to Give All Students the Ability to Succeed

Tech-Now, Inc. is one of the many organizations across the country implementing the High School/High Tech Program, which provides young people with all types of disabilities the opportunity to explore jobs or further education leading to technology-relat

NuclearMitome Test most comprehensive genetic test available for mitochondrial disorders

After almost a year’s worth of clinical use, Transgenomic’s NuclearMitome Test appears to be succeeding in offering doctors a more efficient and complete method for diagnosing people potentially suffering from mitochondrial disorders.

Facebook blocks NC mom’s pictures of Special Olympics event

Diane Cornwell said her seven year old, Cole, who happens to have Down Syndrome had a great time at his first Special Olympics event last Friday. She uploaded an album of 40 pictures to share and says Facebook blocked it for inappropriate content and locked her account.

Struggle over how to evaluate special ed teachers

Lynne Sladky / AP In this April 3, 2012, photo, teacher Bev Campbell, left, holds up stuffed animals in front of student Sebastian Rodriguez in her special education class at Amelia Earhart Elementary School in Hialeah, Fla. More than a dozen states have

U.S. Education Department Reaches Agreement with Memphis City Schools on Aids, Services for Students with Disabilities

The U.S. Department of Education announced today that its Office for Civil Rights has reached a resolution agreement with the Memphis, Tenn., City Schools on aids and services to students with disabilities. The agreement resolves a compliance review init

By |April 23rd, 2012|Categories: Articles, General, Inclusive Education|Tags: , |0 Comments

Sad, But True. Decision-maker v. Equal Participant

My school told me, “You are the expert at home and the district is the expert at school.” I did not agree to my daughter’s IEP. The district refused to allow me to tape record meetings and include my notes with the district’s notes. I filed a state compl

Children With Autism Are Often Targeted By Bullies

Lots of kids get bullied. But kids with autism are especially vulnerable. A new survey by the Interactive Autism Network found that nearly two-thirds of children with autism spectrum disorders have been bullied at some point. And it found that these kids

Inclusive Solutions

Together they have a combined experience of over 50 years experience as educational psychologists working across the UK. Previously as Principal and Senior strategic Educational Psychologists in Nottingham City LEA, they bring a wealth of practical, applied solutions and processes from their work with children and young people with exceptional needs aged between 0-19. Between 2001 and 2008 together they have written several books such as 'Keys to Inclusion' (2011) and published a number of books including: Incurably Human,Seeing the Charade and Dear Parents. Most recently they have set up a Community Interest Company  together with Cat Wilson called "A Place in the

Outing The Prejudice: Making The Least Dangerous Assumption

We highly recommend this brilliant article by Zach Rossetti and Carol Tashie on their interpretation of Anne Donnellan's concept of presuming competence, the least dangerous assumption.

RESNA Releases Wheelchair Position Statement

The Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) has issued a position paper titled "The Application of Ultralight Manual Wheelchairs." Developed through RESNA's Special Interest Group on Seating and Wheeled Mobility, the paper highlights that: Wheelchairs should conform to the individual, and not the individual to the chair; Wheelchairs should be as lightweight as possible while also being fully adjustable to meet the individual's needs; and Wheelchairs that are lightweight and adjustable cause the least amount of injury to users and increase functionality.

OT students on reliability of ADA-Compliance Assessment Toolkit

Misericordia University student researchers recently had their findings about the reliability of the Americans with Disabilities Act-Compliance Assessment Toolkit (ADA-CAT) presented at the California State University, Northridge Annual International Tec

Deaf Olympic hopeful uses social media to fight discrimination

Marcus Titus, top U.S. breaststroker, rallied for change and got it. USA Swimming will allow the use of hand signals to accomodate Deaf swimmers at the summer Olympic trials.

Disabled Military Protection Act Allows Military Families to include Special Needs Trusts within the Survivor Benefit Plan

Currently, under the Survivor Benefit Plan (SBP), a military retiree can set aside up to 55 percent of his monthly retirement pay to provide their family members with a monthly stipend, after he or she dies. However, these benefits are counted as income

Subconscious Stereotyping

When it comes to negative stereotypes, your subconscious may not be the best dinner guest.

Scoliosis Treatment Might Reduce Need for Surgeries

THURSDAY, April 19 (HealthDay News) -- Magnetically controlled growing rods can treat the spinal disorder scoliosis in children without the need for repeat invasive surgeries, a small new study suggests. Scoliosis is an abnormal curving of the spine that

SchoolBook: Testing Takes Its Toll on Special Needs Students

April 19, 2012, 8:12 a.m. It has been a challenging week for many third through eighth grade public school students in New York City, as they have started their days on Tuesday, Wednesday and Thursday with the federally mandated English Language Arts exa

An Autism Diagnosis in Minutes?

Ask anyone who has taken a psychological exam, words like “rapid,” “accurate,” & “mobile” simply are not ways of describing most clinical diagnostic measures. Luckily, at least for early detection of Autism, a group of doctors from the Center for Biomedical Informatics at Harvard Medical School are looking to change that.

Presuming Competence

This issue is very important to me because so many events and breakthroughs in my life happened because I was presumed to be competent. On the other hand, some events in my life were not so good because of a presumption of incompetence. The message of presumption of competence is of encouragement and acceptance. The presumption of incompetence sends a negative message, a message that says no matter how much one tries, success is out of reach. For disabled people, especially the ones who need more support, who can’t communicate through speech or who have other communication difficulties, this negative

Utterly Mark : A Vermonter with autism makes his inner voice heard through film

Mark Utter sits at a computer keyboard with a broad, toothy grin, his eyes closed and head cocked slightly, as though he were listening to a muse whispering in his ear. After a long pause, he opens his eyes and, with slow, deliberate movements, pecks at the keys with a single, outstretched finger.

Inclusive education still best model, says advocate

Gordon Porter says there are now hundreds of specialized teachers and thousands of assistants in the province. (CBC) A long-time advocate for inclusive education maintains it is still the right approach for students with special needs. But Gordon Porter,

Chosen Families

ChosenFamilies.org is a non-profit, charitable organization registered in the Commonwealth of Virginia and approved by the Internal Revenue Service to provide information to parents, family members, religious leaders and the general public on effective solutions to living in families with hidden disabilities. The purpose of ChosenFamilies.org is to help families living with hidden disabilities become fully incorporated into the body of Christ. Our mission is to provide resources, connections and encouragement to families with hidden disabilities and to educate and provide resources to religious leaders as they minister to families with these needs. ChosenFamilies.org is a community where people can

Implications of bringing genome sequencing Into the consulting room

These programs, which were discussed last month at a rare-diseases conference hosted by the Wellcome Trust Sanger Institute near Cambridge, UK, aim to provide a genetic diagnosis that could end years of uncertainty about a child’s disability. “The overarching theme is that genome-based diagnosis is now hitting mainstream medicine,” says Han Brunner, a medical geneticist at the Radboud University Nijmegen Medical Centre in the Netherlands, who leads one of the projects.

Spectrum Society

Mission Spectrum Society’s mission is to support people with disabilities to experience full citizenship and genuine belonging in community. We are committed to continuous learning and improvement through research into leadership and best practice. As a service providing agency, our focus is on strengthening the capacity of individuals and their personal networks, augmenting rather than replacing natural supports. Vision Spectrum Society for Community Living believes that community is enriched by the presence and contributions of its citizens with disabilities. We believe that together we can create a world where all people are valued, their voices heard, their choices respected. Values

The National Center on Accessible Instructional Materials

The National Center on Accessible Instructional Materials! This site serves as a resource to state- and district-level educators, parents, publishers, conversion houses, accessible media producers, and others interested in learning more about and implementing AIM and NIMAS. AIM Center at a Glance For students with sensory, physical, cognitive, or learning differences and their teachers, accessible instructional materials (AIM) may open doors to teaching and learning that ordinary print-based materials have closed. Accessible instructional materials or AIM are specialized formats of curricular content that can be used by and with students who are unable to read or use standard print materials.

Office of Special Education Program’s Discretionary Grants Public Database

The Office of Special Education Programs (OSEP) at the U.S. Department of Education is dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21. To this end, OSEP provides leadership and financial support to assist states and local districts, including funding approximately 1,000 grants and contracts each year. If you'd like to know what grants and contracts OSEP has funded as part of its initiatives to improve results for children with disabilities, you've come to the right place! (If you're looking for OSEP's grants opportunities, we would direct you to OSEP itself, at: www.ed.gov/fund/grant/apply/osep/index.html)

Data Accountability Center (DAC)

This website provides public access to data about children and youth with disabilities served under the Individuals with Disabilities Education Act (IDEA) - Part B and C; technical assistance (TA) materials to support the collection, analysis and reporting of IDEAdata; and the forms and spreadsheets used for collection. DAC was funded in October 2007 by the Office of Special Education Programs (OSEP), U.S. Department of Education to provide information and TA to improve the quality of all state-reported data required by the IDEA. Westat and its subcontractor, Louisiana State University Health Sciences Center–Human Development Center, operate DAC as a 5-year cooperative agreement with

Technical Assistance and Dissemination Network

The Technical Assistance and Dissemination Network (or “TA&D Network”) is a network of approximately 45 Centers (this fluctuates as old projects end or new ones begin) funded by the Office of Special Education Programs (OSEP). These projects provide information and technical assistance to states, schools, educational professionals and families, on topics such as autism, deafness, disproportional representation, dispute resolution, learning disabilities, parenting children with special needs, positive behavior support and transition. The TACC works with the TA&D Network to coordinate and support the work of these projects. ABOUT THE TACC The Technical Assistance Coordination Center (TACC) was formed in 2008 to facilitate coordination, collaboration,

‘Seclusion rooms’ for autistic students raise questions

Andrew St. Vincent's parents pose questions around the coffee table as the middle-schooler with autism builds a Lego city. They want to know about the room. "So you were in there by yourself?" his mother asks. "When would you be in that room?" his father

Life After IEPs

  Welcome ! If you’re a parent or mentor of a young person with disabilities, Life After IEPs is for you. Whether your child is an elementary student or a high school graduate, you’ll find information, resources, and support you’ll need along the way. A challenging journey There’s joy on the path to adulthood. But it ain’t always easy. Perseverence, grace, and a good sense of humor are needed. It can be a bumpy road.   Supports available during the IEP years will end after high school Unfamiliar laws, systems and jargon lie ahead Resources exist, but they’re scattered in

Stereotypes of Children with Disabilities

Stigmatization is one of the greatest obstacles to the successful integration of people with Trisomy 21 (T21 or Down syndrome), the most frequent genetic disorder associated with intellectual disability. Research on attitudes and stereotypes toward these people still focuses on explicit measures subjected to social-desirability biases, and neglects how variability in facial stigmata influences attitudes and stereotyping.

Purple

At Purple, we're dedicated to developing fast, easy and convenient communications solutions and services for Deaf and hard-of-hearing individuals and businesses using a variety of different platforms. As a leading provider of on-site interpreting services, video relay services (VRS), text relay services and video remote interpreting (VRI), Purple has built an excellent reputation for developing products and services that open communications between all people, regardless of differences in abilities, languages and locations. Because of our many innovations and firsts, including Internet relay, wireless relay, mobile communication apps, real local 10-digit number access for video and text relay customers and interpreting

My Valentine by Paul McCartney- Featuring Natalie Portman and Johnny Depp

Paul McCartney Directs His Own 'My Valentine' Videos Featuring Natalie Portman and Johnny Depp using ASL.

Seahawks GM John Schneider knows: Autism is a family diagnosis

RENTON — Ten-year-old Ben Schneider is a fun kid. He has a great laugh, loves Legos and playing video games. You can hear the pride in his parents' voices when they tell you how smart he is. When Ben was 16 months old, he could arrange the letters of the

Autistic Hoya: End the torture. Make this go viral.

The public must see what the Judge Rotenberg Center is doing. Their experts claimed that the public would not understand the content of this video without "proper context." There is no context that justifies the use of torture against anybody ever. The public has not merely a right but a responsibility to watch this video and share it everywhere.

MyVoice AAC

MyVoice is a new app, available for Apple and Android devices, that helps people with a variety of speech and language challenges communicate more quickly and easily. MyVoice has groundbreaking features like location-awareness, downloadable phrase books and wireless customization from any web browser. With its lifelike voices and beautiful interface, MyVoice is the affordable communication aid app you've been waiting for. MyVoice is changing the world, one voice at a time. It can be a vital aid for children and adults living with: • ALS • Autism Spectrum Disorders • Aphasia, Apraxia, Ataxia, Dysarthria • Brain Cancer • Cerebral Palsy

Teachers Weigh-In: Do We Over Accommodate? Join the Debate…

Read more as teachers debate accommodations for students. Pete & Pam Wright and Advocate Pat Howey join the discussion. Take the poll – then click “read more” to add your comment and join the debate! I teach at a charter school. We feel that if the stude

Alliance for Inclusion in the Arts

  The Alliance for Inclusion in the Arts is the nation’s leading advocate for full diversity as a key to the vitality and dynamism of American theatre, film, and television. We promote authentic dialogue about race, culture, and disability that embraces the complexity of underlying social and historical issues.  

Watching TV: Even Worse for Kids Than You Think

It's no secret that sedentary behavior contributes to obesity and chronically poor health. But not all sedentary behaviors are created equal, according to a new study that examines the link between blood pressure in children and their choice of inactive

Aspiring to Conquer Crossover Acting Path

It didn’t take much rehearsing for Russell Harvard, who plays the deaf son of a loquacious and argumentative British family in the Off Broadway play “Tribes,” to get inside his character’s skin. Like his character Billy, the 30-year-old actor is himself

Faces of Ollibean- We want to hear from you!

Every week we put the spotlight on another person out there making a difference. Share your story and inspire and motivate others to Be the Change.

Marlo Thomas: The Givers: What Inspires Michael J. Fox? A Very Personal Interview

Unbowed by his disease and still exhibiting his trademark energy, Michael reminded me not only of the single-mindedness that is fundamental to fighting for a cause, but also of the indestructibility of the human spirit -- one that looks at each new day as another chance to enjoy the magic and the gift of life. If only all of us could learn that lesson.  

SEN / ICT

The sen / ict directory began life in August 2011 to act as a directory for Special Educational Needs and Information Communication Technology Resources. Companies can showcase their business, the products they produce and services they provide. There are also hundreds of FREE online resources from fun/educational games, activities and printable resources to tools that help disabled adults and children use computers and the internet by adapting and adjusting their technology. The sen / ict directory aims provide a central location for all your favourite resources, as well as introduce you to new ones you might not have found otherwise for your child

Planned and On-The-Spot Curriculum Accommodations in the Inclusive Classroom

The Paraeducator's Toolbox: Practical Strategies to Support Students with Learning and Behavioral Challenges 5.7.2012 9:00 AM - 3:00pm

Deaf children’s gesture mismatches provide clues to learning moments

In a discovery that could help instructors better teach deaf children, a team of University of Chicago researchers has found that a gesture-sign mismatch made while explaining a math problem suggests that a deaf child is experiencing a teachable moment. Teachers also frequently use their own gestures to help students learn. They can illustrate how numbers in an equation can be grouped, for example, to help students understand how to make both sides of an equation have the same value. The deaf child watching the interpreter will then miss any messages that the teacher sends in gesture and not in

Noncoding gene linked to autism

Small player: Moesin, a protein that is involved in brain development, appears to be regulated by a noncoding RNA that has been implicated in autism. Researchers have identified a noncoding RNA, a genetic message that is not translated into a protein, th

Kris’ Camp

Kris' Camp is a non-profit organization first established in 1995 as a therapy intensive/respite camp for children with special needs (thus far focusing on children with autism/autistic-like challenges) and their families. It is motivated by three mutually enforcing goals: To provide therapy for special kids, and To provide respite and support for the siblings and parents of special kids. To provide theoretical and hands-on education and training to students, caregivers, and professionals working in the field of autism and other developmental disabilities. The camps are named after Kris Moore (5/30/1988 - 11/9/1993), a wonderful little boy who touched many people

  • HALO Helping Autism Through Learning and Outreach

HALO

MISSION Helping Autism Through Learning and Outreach is a non-profit organization supported by parents and professionals nationwide who are dedicated to the use of Soma® Mukhopadhyay's Rapid Prompting Method for improving academic success and communication for persons with autism and similar disorders. http://www.halo-soma.org

AudioBookCloud

AudioBookCloud:Your Online Audio Library is an online audio book library collection of streaming audio books for public libraries. A subscription to AudioBookCloud gives your patrons UNLIMITED remote access to your audio book collection. Like our TumbleBookLibrary and TumbleReadables collections, AudioBookCloud are launched from a link on your library or school website. Your patrons can access the entire collection from any computer with an Internet connection. Your audio are never all checked out, never on hold. As many people can listen to the same book at the same time as you like!!! Here's how it works. Once you have previewed AudioBookCloud and are

TumbleBookLibrary

TumbleBookLibrary is an online collection of TumbleBooks � animated, talking picture books which teach kids the joy of reading in a format they'll love. TumbleBooks are created by adding animation, sound, music and narration to existing picture books in order to produce an electronic picture book which you can read, or have read to you. The TumbleBookLibrary is a collection of licensed titles from children's book publishers such as Simon & Schuster, Chronicle Books, Candlewick Press, Charlesbridge Press, Harcourt, Little Brown, Walker & Company, Lerner Books, and HarperCollins Publishers, amongst others. The TumbleBookLibrary provides enrichment to students who are reading independently with a variety of

TumbleReadables

TumbleReadables is an online collection of read-along titles for elementary, middle school, and high school students which features adjustable online text and complete audio narration. Sentences are highlighted as they are being read and the pages turn automatically. The collection features chapter books, early readers, graphic novels, YA/teen novels, high interest/low level books for both middle school and high school students, plus classics of American and English literature. Read-Alongs are great for emergent, struggling, and reluctant readers, as well as being an excellent tool for ESL. They are also well received by strong and accomplished readers who are excited to follow

Fit Kids Playground

Our mission is to decrease the burden of childhood obesity and its associated potential chronic diseases in the Tampa Bay area. Through parental education, early childhood intervention through fun education and community awareness about the simple steps that can be implemented to teach healthy habits for life, the Tampa Bay community will be healthier for years to come.

Love and Logic ®

What Is Love and Logic All About? The Love and Logic Institute is dedicated to making parenting and teaching fun and rewarding, instead of stressful and chaotic. We provide practical tools and techniques that help adults achieve respectful, healthy relationships with their children. All of our work is based on a psychologically sound parenting and teaching philosophy called Love and Logic. What Is Love and Logic? Children learn the best lessons when they're given a task and allowed to make their own choices (and fail) when the cost of failure is still small. Children's failures must be coupled with love

OlliNEPAL at the SERC School

OlliNEPAL at the SERC School in Kathmandu

OlliNEPAL team at HDCS, Asha Bal Bikash Sewa (“Children’s Hope Development Service”)

OlliNEPAL team at HDCS, Asha Bal Bikash Sewa ("Children's Hope Development Service")

Asha Bal Bikash Sewa (“Children’s Hope Development Service”)

Asha Bal Bikash Sewa (“ABBS”) is a day care ministry for children with physical and learning difficulties under the age of 16. The ministry was founded by a Norwegian Missionary Family who were living and working in Nepal. They had a severely disabled child who was cared for by a Nepali woman, Tulsa Sharma. Tulsa is now the Co-Ordinator of the ABBS programme. The ministry has grown from a single centre in Dhobighat, attended by three children which opened in 1993, to operating three centres serving approximately ninty five children with dedicated staff and volunteers. Two centres are based in

Kanti Children’s Hospital

MISSION To realize the vision, the Board has established its mission as the followings: To support GON plan to cut down children’s death rate by two-third by the year 2015. To be a leader in the field of quality child health education, training and research within the region. To develop professional exchange programs with other like-minded child health institutes within or outside the region. To exchange experience and knowledge with regional, zonal district hospitals and health centers on trainings and research. To provide expertise to government for the development of children’s hospital in the country. To set up a standard

Special Education and Rehabilitation Center for Disabled Children (SERC)

Established in 2009, and located in a peaceful neighborhood of midtown Kathmandu, SERC has a goal of providing most effective education to its students. All our students are either differently able or have individual special education needs. Every pupil in SERC has a specific and complex education needs, and our goal is to provide them with the best possible education methodologies and environment for them to flourish and bring out the best buried deep within. We believe that a perfect match between proper education methodology and rehabilitation therapies is the only way to go ahead. We, at SERC, try to

Nepal Physiotherapy Association (NEPTA)

Nepal Physiotherapy Association (NEPTA), which represents over 120 physiotherapists around Nepal and abroad. NEPTA works with governments and educational bodies to try to ensure that a quality physiotherapy service is available when and where you need it.

Shoreham students “experience” autism for a day

Fourth grader Nick Donnelly counted along with the rest of his classmates seated around the small cafeteria table at Miller Avenue School in Shoreham Thursday.When they reached 15, they pulled off the colorful bandanas that covered their eyes. Nick strai

Another Mom Faces Murder Charge in Child with Cerebral Palsy’s Death

A New York woman has pleaded not guilty to an upgraded charge of second-degree murder in the death last summer of her 8-year-old disabled daughter. Veronica Cirella, of Plainview, was initially charged with manslaughter after authorities said she admitte

2q37 Deletion Syndrome: Searching for Answers

The day after my son Aiden was born, the doctors noticed that his features were different from what they considered “normal”. As a new mom this frightened me, as I did not know or understand what was happening with my brand new baby. A geneticist was qui

Parents charged in death of Texas boy, 10

TEXAS CITY, Texas, April 5 (UPI) -- The parents of a disabled 10-year-old Texas boy whose body was found in a box are now charged in his death, authorities say. Texas City police said Tina Louise Madrid, 42, of Texas City was arrested Wednesday and was h

Epidemic, Awareness and Us, Autistics

By now everyone knows about the new numbers on autism diagnosis. And we have already seen the media jumping in the alarmist train: IT IS AN EPIDEMIC! My friend and I decided to look up some definitions for this word that has been used to classify me. This is what I found in one on line dictionary: epidemic noun a widespread occurrence of an infectious disease in a community at a particular time: a flu epidemic. a disease occurring in such a way. a sudden, widespread occurrence of a particular undesirable phenomenon: an epidemic of violent crime. Am I a

Therapists Address Esophageal Atresia

The Esophageal Atresia Treatment Program at Children's Hospital Boston in Boston, MA, is one of the only programs in the country specifically designed to care for children with this condition. Setting itself apart from the rest, Children's Hospital Bosto

Dysphagia (Swallowing Problems)

Melissa Conrad Stöppler, MD, is a U.S. board-certified Anatomic Pathologist with subspecialty training in the fields of Experimental and Molecular Pathology. Dr. Stöppler's educational background includes a BA with Highest Distinction from the University

Releasing IEE Data Without Parent Consent

I am a private psychologist. I completed an IEE, then turned in the report to the district and parents. We held an IEP meeting to review the results. Can the district request that I release my raw test data, test protocols, and test materials to the scho

Bill Introduced regarding special needs trust

H.R. 4329 -This bill or resolution was assigned to a congressional committee on March 29, 2012, which will consider it before possibly sending it on to the House or Senate as a whole.  To amend title 10, United States Code, to provide for the payment of monthly annuities under the Survivor Benefit Plan to a supplemental or special needs trust established for the sole benefit of a disabled dependent child of a participant in the Survivor Benefit Plan.  

Recording catches teachers mistreating special needs student

Two Alabama teachers have been put on administrative leave after the mother of a 10-year-old student with cerebral palsy attached an audio recorder to the bottom of his wheelchair and caught them scolding him about drooling, among other things. Jose Sali

HHS Announces New Members of Interagency Autism Coordinating Committee (IACC)

Health and Human Services (HHS) Secretary Kathleen Sebelius announced today that she has invited 15 individuals to serve as public members on the Interagency Autism Coordinating Committee (IACC). The IACC is a federal advisory committee established by th

The Upside of Autism

When it comes to disorders of the mind, our society has a tendency to seek out the safety of clear-cut categories. We want there to be a bright line separating normal from abnormal, health from sickness. Alas, the human brain is a category buster, an org

Communicate with Me | Savarese

Last year Dr. Sanjay Gupta of CNN wanted to talk to me so much that he flew me to New York and got me a room at the fanciest hotel in the city, but ironically at my school, most kids choose not to talk to me at all. Why is that? Recently I surveyed some of my close friends and discovered that most people aren't sure how to talk freely to me, and I greatly decided to use their questions as the basis for this piece.  

School bans disabled girl from using walker

Kristi Roberts was stunned when school officials insisted that her disabled 5-year-old daughter switch to a wheelchair from the walker she’d been using for the previous two years. Little LaKay had battled cerebral palsy and epilepsy since she was born, a

OlliNepal Update – March 29

The Ollibean/OlliNepal team finished up their trekking outside of Pohkara, Nepal and are headed back to Kathmandu for 7 days where they will volunteer at a local school, meet with OLE Nepal ,Kanti Children's Hospital, and SEEDs Nepal. The team's internet access & email has been fairly limited, so we are all exicted hear their reports of working with children with a range of diffabilities and delivering communication tools/tablets. Can't wait to see the pictures and videos!  

Kyoto prof rolls out omnidirectional wheelchair

A mechanical engineering professor has taken the wraps off his vehicle that is designed to become a next-generation wheelchair. As its formal name suggests, this is the Personal Mobile Vehicle, or Permoveh for short. Rolling it around at

Outsourcing to the Autistic Rather Than to India

Part of the reason autism has captivated Hollywood movie makers more than other development disabilities is that, for all the difficulties it brings those who have it, it also gives some of them the ability to perform uncanny feats of brainpower: effortl

Eric Dompierre barred from playing basketball with his high school team

Eric never let the fact that he was born with Down Syndrome stop him from playing. But now, he may have to cheer on his team from the bleachers. The association says because he's 19 years old, he isn't allowed to play in his senior year of high school. "I'd be sad if I couldn't play with them and not have them in my life. They want me to play, and I want to play with them," said Eric.

By |March 26th, 2012|Categories: Advocacy, Articles, General, Inclusive Education|Tags: , , , |1 Comment

Ollibean Team Arrives in Nepal

The adventure begins! Beautiful start ! Greeted at Nepalese Airport by longtime friend, Topden Lama. Topden brought Tibetan scarves for the group

Helping Rare Disease Patients Find Their Voice

Stephen P. Spielberg, M.D., Ph.D., FDA’s deputy commissioner for medical products and tobacco, talks about lessons learned from the study of rare diseases. Patients often need advocates, and that can be especially true for people with a rare disease, who

National Council on Disability (NCD) Releases New Recommendations & Guidance on Managed Care for People with Disabilities

The National Council on Disability appreciates the need to reform health care and life-long services and supports delivered through Medicare and Medicaid programs to all citizens, including those with disabilities. The role of state agencies is the lynch

Employer Best Practices for Workers with Caregiving Responsibilities

In 2007, EEOC issued guidance explaining the circumstances under which discrimination against workers with caregiving responsibilities might constitute discrimination based on sex, disability or other characteristics protected by federal employment discr

Education Department Awards $24.6 Million in Grants To Support Teacher and Principal Development

U.S. Education Secretary Arne Duncan today announced the award of nearly $24.6 million for three grants to improve student achievement by increasing the effectiveness of teachers and principals. Funded under the Supporting Effective Educators Development

ADA Kits for Hotel Guests with Hearing Loss

Harris Communications makes it easy to be in compliance with the new ADA requirements for deaf and hard of hearing hotel guests. Effective March 15, 2012, the Federal Americans with Disabilities Act (ADA) changed the accessibility requirements for guest

AT&T Accused of Improperly Billing for Service for Deaf

The Justice Department has accused AT&T of knowing that a calling service it offered for the deaf was being used by Nigerian swindlers and others to steal from American merchants. The department, which intervened in a whistle-blower lawsuit in federal co

Student with Down’s Syndrome wins right to challenge high school placement

Belfast's High Court has granted the girl leave to seek a judicial review of the original decision A girl with Down's Syndrome has won the right to challenge the denial of a place at the high school of her family's

  • Photo of girl kicking with balloons in background. Text reads: RESOURCES we love. Ollibean logo.

Association on University Centers on Disabilities (AUCD)

The Association of University Centers on Disabilities (AUCD)  is an incredible resource. The Association of University Centers on Disabilities (AUCD) is a  membership organization that supports and promotes a national network of university-based interdisciplinary programs. The AUCD network includes: 67 University Centers for Excellence in Developmental Disabilities (UCEDD), funded by the Administration on Intellectual Developmental Disabilities (AIDD) 52 Leadership Education in Neurodevelopmental Disabilities (LEND) Programs funded by the Maternal and Child Health Bureau (MCHB) 15 Developmental Disability Research Centers (IDDRC), most of which are funded by the National Institute for Child Health and Development (NICHD) AUCD Program Locations and Network

Whizz-Kidz

Our aim is to ensure that every disabled child has an opportunity to be something special…a kid. There are an estimated 70,000 disabled children and young people in the UK waiting for a wheelchair that fits their young lives. That’s where we come in. Whizz-Kidz provides disabled children with the essential wheelchairs and other mobility equipment they need to lead fun and active childhoods.  

Hope Flies: Walk for Abby on Saturday, April 21, 2012

In Honor of Abby Sauerhoefer Date: Saturday, April 21, 2012 Time: Sign-in at 8:30 a.m.; walk starts at 10:00 a.m. Location: Broad Brook Elementary School, 14 Rye Street

NOAH

NOAH is a U.S. based nonprofit, tax-exempt organization that offers information and support to people with albinism, their families and the professionals who work with them. NOAH is operated by its members on a volunteer basis and is funded primarily by dues and contributions of its members. NOAH has also received grants from foundations and organizations for specific projects.  

250 children living in nursing homes in Florida should get home care

Five year old Andi lives in a nursing home in Tampa because his family says the state won't pay for 24-hour care that would let him live with his two brothers and parents. A second lawsuit claims several thousand other children could end up in those facilities in Florida  because of decisions by the state about their care.

Responding to People with Autism during Emergencies

Author Geoff Crist is the proud parent of a beautiful, energetic, curious, daughter, Sydney (aka Beanie), 11, who was diagnosed with moderate/severe autism when she was 18 months old. He is a career firefighter and nationally registered paramedic, has wo

Obama Signs ‘Thank You’ to Deaf Supporter

President Obama didn’t miss a beat last week when he encountered a group of deaf students along a rope line after his speech at Prince George’s Community College in Maryland. “I am proud of you,” signed Stephon, a 26-year-old coll

  • 479CziJHTFo

World Down Syndrome Day March 21!

Down Syndrome International presents the Global Video Event "LET US IN - I WANT TO LEARN!" in partnership with 68 countries for World Down Syndrome Day 2012.

Autistic Man, Jesse Saperstein Free Falls to End Bullying

Best-selling author, autism advocate and motivational speaker Jesse A. Saperstein is spreading an Anti-Bullying movement across America with his “Free-Falling to End Bullying in 2012” YouTube video hoping to put an end to torment in and out of the classroom.

Jesse A. Saperstein

Jesse A. Saperstein is a best-selling author, autism advocate and motivational speaker. He is considered one of the most respected leaders in the Anti-Bullying movement of his generation. Jesse also has a form of autism called Asperger's syndrome (AS). Individuals with Asperger's are impaired by a profound lack of social skills, common sense, and resistance to change in routine.

Autism NOW: The National Autism Resource and Information Center

Autism NOW: The National Autism Resource and Information Center will be a dynamic and interactive, highly visible and effective central point of quality resources and information for individuals with Autism Spectrum Disorders (ASD) and other developmental disabilities, their families, and other targeted key stakeholders.  

Lives Not Worth Living : by Amy Sequenzia

The title of this blog is an expression seen in many blogs written by disabilities advocates and self-advocates. Wasn’t his life worth living? Isn’t mine or the lives of all disabled people? The murder of 22 year-old autistic George Hodgins prompted the latest, very strong protests from the autistic community against the media coverage focused on the “reasons” for the killing, while ignoring George’s, the victim, life.

Differentiated Instruction in Today’s Classrooms

The IRIS Center is a national center that provides high-quality resources about students with disabilities for college and university faculty and professional development trainers. Visit IRIS’ website to find free, online, interactive training enhancemen

Makayla Norman,14, was starved to death last year, attorney general calls for change

The Ohio attorney general is calling for change after learning a girl who starved to death was forgotten by the school system. Makayla Norman, 14, suffered from cerebral palsy and could not feed or care for herself. She died in Marc

iPad Summer Institute

Blog on the topic of assistive technology, eLearning, mind mapping, project management, visual learning, collaborative tools, and educational technology Presenters Brian S. Friedlander, Ph.D. & Christine Besko-Maughan, M.S., ATP July 10, 2012 Enhancing A

Never Lose Hope

Here is a letter to an individual who believed my children wouldn’t be successful. This is living proof that as parents, we are wiser than others who think they know better. I met you last year at a conference. This conference was held by a local organiz

Are These Good Annual Goals?

Is this annual goal written correctly for a high school freshman? Judy will improve reading comprehension skills by using graphic organizers to access the curriculum with 70% accuracy per quarter. 1. Judy will summarize or bullet important information in

University Center for Excellence in Developmental Disabilities (UCEDD) Georgetown University

The mission of the University Center for Excellence in Developmental Disabilities (UCEDD) is to promote self-determination, productivity, independence and inclusion of individuals with developmental and other disabilities across the life span, and in all aspects of community life. The Developmental Disabilities Assistance and Bill of Rights Act of 2000, P.L. 106-402, authorizes the University Centers for Excellence in Developmental Disabilities, Education, Research and Service (UCEDD). The University Centers for Excellence in Developmental Disabilities, Education, Research and Service (UCEDDs) are funded through the Administration on Developmental Disabilities (ADD) to provide leadership, advise federal, state and community policy makers about, and promote opportunities for people

Autistic Student Advocates for Herself, Other Autistics

“Because we see autism and other neurodevelopmental or neurological differences, conditions or disabilities as a natural variation of human diversity in terms of neurological diversity,” Brown says, “that means there’s nothing defective, wrong or diseased or broken. Therefore there’s no reason for a fix or for a cure.”    

Nordic Network on Disability Research

NNDR is a multidisciplinary network of disability researchers interested in cultural, societal and environmental dimensions of disability and marginalization. The purpose of NNDR is to advance research and development in the field of disability. NNDR provides a forum for researchers, particularly from the Nordic countries, to meet, present and discuss their research,, as well as encouraging Nordic and international exchange and collaboration. NNDR was established in Fredrikshavn, Denmark in 1997. In just a few years it has grown into a large network of disability researchers, reflecting the growing interest in and importance of disability research in the Nordic countries. The

Kathleen McClaskey

EdTech Evangelist, innovative leader, consultant, presenter and trainer of tools! Truly amazing resources for Founded on the vision that every child should have the opportunity to develop a foundation of 21st Century learning skills, EdTech Associates provides services to empower all students to succeed.

National Primary Immunodeficiency Resource Center

INFO4PI is designed for patients and their families, physicians, researchers, government officials, pharmaceutical companies, industry, and the general public to be able to quickly and seamlessly access information on Primary Immunodeficiency diseases and to realize earliest precise diagnoses, appropriate treatments and sometimes cures of the more than 150 different PI diseases affecting more than 10,000,000 children and adults worldwide.

The Center for Courageous Kids

The Center for Courageous Kids, also known as CCK, is a world class medical camp located in Scottsville, KY, serving children and families from across the country who are living with a variety of medical challenges. We are open year round and can host 120 kids at a time. When you add our counselors, volunteers, trained Programs and Medical staff, our mascot, Dr. Cubby the Courageous Lion, and our top notch facility, you start to see just how "We Prescribe Fun!" What makes The Center for Courageous Kids spectacular? *We are a 20 million dollar facility. *Our 168 acre campus encompasses an onsite

Understanding Our Differences

In 1978, a group of parents of children with disabilities in Newton, Massachusetts founded Understanding Our Differences (UOD) as a nonprofit organization to increase information, understanding, and acceptance of people with disabilities and individual differences. The Understanding Our Differences disability awareness curriculum has grown rapidly in recent years and has been disseminated to more than 200 schools and youth organizations nationwide. More than 27,000 elementary school students and some 8,000 adult, high school and college students have participated as trained, volunteer instructors. The nationally recognized, award-winning program uses a hands-on, participatory curriculum to foster respect, tolerance, and compassion in elementary

School principal reprimanded told to work from home as a result of physical altercation with student

In April 2011 before a classroom of students and a security camera, Gray became violent with a special education student, according to a written reprimand in his personnel file. “During this incident you escalated the situation, became physically violent, grabbed the child by the shirt, and yanking the child out of the classroom and down the hallway,” reads York’s reprimand.

Deaf children four times more likely to be mistreated at school and have mental health issues

Researchers found that deaf children who cannot make themselves understood within their family are four times more likely to have mental health disorders and more likely to suffer mistreatment at school than deaf children who can communicate with their family members, according to a report published in March 15th issue of The Lancett.

The Lancet:The health of deaf people: communication breakdown

Andrew Alexander discusses how deaf people are often alienated from accessing the UK health-care system and what needs to be done to change this.

New ADA accessibility requirements took effect March 15

For the first time in history public fitness centers, public swimming pools, recreational facilities, parks, golf and mini-golf courses, detention facilities and courtrooms, playrooms and amusement rides must adhere to the governments accessibility requirements. The rules also clarify issues that have come up in the 20 years regarding bathroom dimensions, reach ranges and accesible routes.

Best Buddies Friendship Walk, April 21, 2012 : 12:00 pm-4:00 pm

The Best Buddies Friendship Walk is a fun-filled community fundraiser to support your local Best Buddies programs of inclusion. 4/21/2012 12:00 pm - 4:00 pm . Our friendship, integrated employment and leadership programs educate people with and without intellectual and developmental disabilities (IDD) to be advocates for social inclusion in your community. Walk Registration: No Fees Register for the Friendship Walk and begin fundraising for Best Buddies Florida! Cotanchobee Fort Brooke Park 601 Old Water Street Tampa, FL 33602 For more information Participant Registration Form Join Ollibean's Friendship Walk Team  

New telemetric system safe and effective for ICP measurement

A new implantable sensor device provides a less-invasive alternative for monitoring pressure within the skull (intracranial pressure, or ICP), suggests a pilot study in Operative Neurosurgery, a quarterly supplement to Neurosurgery, official journal of t

The Center on Human Policy, Law, and Disability Studies

The Center on Human Policy, Law, and Disability Studies (CHPLDS) is an expansion of the Center on Human Policy, which was founded by Dr. Burton Blatt in 1971. The Center is a network of academic programs, centers, student organizations, and affiliated faculty whose research, teaching, and advocacy seeks to promote the rights of people with disabilities locally, nationally, and globally, and to facilitate a critical examination of disability as an aspect of diversity in society.  

National Disability Rights Network

NDRN’s mission is to promote the integrity and capacity of the P&A/CAP national network and to advocate for the enactment and vigorous enforcement of laws protecting civil and human rights of people with disabilities. The Protection and Advocacy (P&A) network was created by Congress after the Willowbrook scandal unearthed the horrible conditions in that institution. Read more about the Network's history here. The newly created P&A agencies began to realize that in order to be able to advocate for their clients, they needed a national voice in Washington, DC for their own protection, survival and growth. This was especially true, as soon

TASH Responds to AASA Position Supporting Restraint and Seclusion in Schools | TASH

Last week, the American Association of School Administrators issued an unsubstantiated, ill-informed and reckless report in which it voiced support for restraint and seclusion use on children in our schools. This report gained much attention through e-mail circulation and national news reports. TASH has responded in order to bring clarity and truth to the conversation. http://tash.org/tash-responds-to-aasa-position-supporting-restraint-and-seclusion-in-schools/ via TASH Responds to AASA Position Supporting Restraint and Seclusion in Schools | TASH.

University Center for Excellence in Developmental Disabilities at Georgetown University

The mission of the University Center for Excellence in Developmental Disabilities (UCEDD) is to promote self-determination, productivity, independence and inclusion of individuals with developmental and other disabilities across the life span, and in all aspects of community life.  

A dark legacy of forced sterilizations

Sterilization victims seek compensation STORY HIGHLIGHTS California forcibly sterilized 20,000 people from 1909 to 1963 The goal was to rid society of people labeled "feeble-minded" or "defectives" California's response to victims stands in stark contras

Police assaulted boy with autism

Metropolitan Police (Met) officers assaulted a 16-year-old boy with severe autism by forcing him into handcuffs and leg restraints during a school trip, the High Court has ruled. The judge said the boy, now 19, also had his human rights breached. The boy, who also has epilepsy, was subjected to disability discrimination and false imprisonment, it was ruled.  

Broad Institute of MIT and Harvard

The Eli and Edythe L. Broad Institute of Harvard and MIT is founded on two core beliefs: This generation has a historic opportunity and responsibility to transform medicine by using systematic approaches in the biological sciences to dramatically accelerate the understanding and treatment of disease. To fulfill this mission, we need new kinds of research institutions, with a deeply collaborative spirit across disciplines and organizations, and having the capacity to tackle ambitious challenges. The Broad Institute is essentially an “experiment” in a new way of doing science, empowering this generation of researchers to: Act nimbly. Encouraging creativity often means moving quickly,

Stephen Hawking to Guest Star on ‘The Big Bang Theory’

It’s a dream come true for “The Big Bang Theory:” world renowned British physicist and cosmologist Stephen Hawking will guest star on the sitcom early next month. A press release put out by CBS said Hawking, 70, will “share his beautiful mind with his most ardent admirer, Sheldon Cooper” on the show’s April 5 episode.    

By |March 13th, 2012|Categories: Articles, General, Lifestyle|Tags: , , , |0 Comments

Don Johnston Announces Snap&Read—A Simple Toolbar That Reads Any Text On-screen

Snap&Read reads text in a Flash website “A lot of districts are striving for Universal Design for Learning, and Snap&Read is a step in the right direction.” - Ruth Ziolkowski, president, Don Johnston Incorporated Don Johnston Incorporated today announced

Institute on Human Development and Disability

The Institute on Human Development and Disabililty (IHDD) has been Georgia’s University Center for Excellence in Disability Research, Education and Service (UCEDD), and ranks as one of The University of Georgia’s oldest continuously-funded federal programs. The IHDD works with people who have disabilities and others, to ensure that all people can achieve their highest capacity and quality of life.  

Acceptance

Welcome new Ollibean writer, Amy Sequenzia! We know you're going to love her blog and her poems........ "Accepting myself is an on going process. A few days ago I wrote a poem about acceptance. It is easier for me, sometimes, to write about my life in verses. But after I write about what bothers me in verses and stanzas, I can talk about it in any format. I freed myself when I wrote the poem. In a way, I accepted myself a little more." It is very hard to have confidence in my abilities when all my life, when people

Activists Seek To Curtail Restraining Students

WASHINGTON (AP) — Tens of thousands of students, most of them disabled, are strapped down or physically restrained in school, and disability advocates hope that a new Education Department report detailing the practice of "seclusion and restraint" will sp

Cellphone Video Provides Proof of Bullying Teacher

A special education student resorted to using his cellphone to record video that proved his teacher was bullying him. Such incidents are, unfortunately, far from uncommon. “Statistically about 1 to 2 percent of teachers are actually involved in bullying

Deafness penetrates more rapidly and deeply into the brain than previously thought

Portions of a songbird's brain that control how it sings have been shown to decay within 24 hours of the animal losing its hearing. The findings, by researchers at Duke University Medical Center, show that deafness penetrates much more rapidly and deeply

Burton Blatt Institute chairman to testify before National Council on Disability on future of disability law and policy

NCD is an independent federal agency that makes recommendations to the president and U.S. Congress to enhance the quality of life for all Americans with disabilities and their families. The public may join the meeting in a listening-only capacity (with t

Special Olympics Coach Accused Of Having Sex With High School Participant

MOUNT PLEASANT, S.C. (AP) — A teaching assistant from Cayce has been charged with having sex with one of his students while in Mount Pleasant for the Special Olympics. Twenty-nine-year-old Cornelius Davis is a special education teaching assistant at Broo

Compression Garments Designed by SPIO Now Offered by Rehabmart.com

“These discrete garments are very comfortable in all types of weather due to the wicking feature of the lightweight and breathable Lycra fabric, and there is no 'break-in' period..." Rehabmart.com, an online e-commerce company that sells rehabilitation a

A D A Audio Conference Series

The ADA Audio Conference Series provides in-depth information on the Americans with Disabilities Act (ADA). This program is designed to enhance an individual's existing knowledge base or facilitate continued learning regarding regulations and trends under the ADA.  

Children’s Hospital of Philadelphia apologizes to Rivera family over kidney transplant flap

(CBS) The Children's Hospital of Philadelphia has apologized to the family of Amelia Rivera, the girl whose family alleged she was denied a life-saving kidney transplant because she was disabled. "As an organization, we regret that we communicated in a m

A Deaf Son Struggles to Be Heard in ‘Tribes’

A family dinner in the beginning of Nina Raine's "Tribes" tells the audience all it needs to know about the crisis of understanding that plagues the characters in this bright and boldly provocative drama. Two parents and three twenty-something children s

Judy Endow

Judy Endow, MSW, maintains a private practice in Madison, Wisconsin, providing consultation for families, school districts and other agencies. Besides having autism herself, she is the parent of three now grown sons, one of whom is on the autism spectrum. Judy does workshops and presentations on a variety of autism-related issues, is part of the Wisconsin DPI Statewide Autism Training Team and a board member of both the Autism Society of America, Wisconsin Chapter and the Autism National Committee. In addition, Judy is a member of the Autistic Global Initiative (AGI), a program of Autism Research Institute.  

U.S. Department of Education Announces Overhaul of IDEA Compliance System; More Emphasis on Student Outcomes

On Friday, the U.S. Department of Education, Office of Special Education Programs (OSEP) announced that it will revamp IDEA’s compliance system to better emphasize student outcomes, such as academic performance and graduation rates for students with disa

Large eye-tracking study highlights diversity of autism

Gaze mapping: Researchers measured the amount of time children spent looking at eyes (red), mouths (green), bodies (blue) and objects (yellow) when watching scenes from Welcome to the Dollhouse. Children with autism who have different verbal and intellec

1Voice – Communicating Together

"A world where the voice of every child and adult, however they communicate, is listened to and heard" 1Voice takes a family and social perspective on communication and recognises the great need for adult role models to inspire children and families alike. 1Voice promotes families supporting each other to overcome the isolation that being unable to speak can bring.  

Accessible Leeds

Nathan Popple is a 14 year old, self-advocate and  editor of Accessible Leeds, this is the description of his incredible site. I have cerebral palsy so I use a wheelchair and I also use a communication aid to help me speak. I am a Whizz Kidz Ambassador and I support the charity 1voice. I believe strongly in fairness and do not think that the world should be able to disable people by not providing access to places.  

Boy charts city’s disabled access

Nathan was inspired to create his website after finding access to a bowling alley blocked by stairs. Despite the challenges he faces, Nathan's disability does not stop him from leading a full life. What does occasionally stand in his way is more mundane - steps, staircases and narrow shop aisles.

Medical Champion© Wiffle Ball Tournament August 10th and 11th

With an innovative and fun twist on fundraising, event chairs James Ramos and Derek Alvarez, along with their committee, will host the Fourth Annual Wiffle Ball Tournament on August 10th at the Don CeSar Beach Resort on St. Pete Beach.   Join for them for an All American outing... Wiffle Ball Tournament, Last Days of Summer Beach Bash & Barefoot Dance Party. To help an All-American cause... Children with Allergies & Primary Immune Deficiency. Friday, August 10th 4 P.M. - Sunset Pre-registration, Home Run Derby Contest and Beachside Live Music The Don CeSar Beach Resort St Petersburg Beach Saturday, August 11th

Lloyd Coleman, deaf teen composer’s Olympic theme

Lloyd Coleman, 18, who is also visually impaired, recently won a place at London's Royal Academy of Music. "It's called Breaking the Wall because, after Giles and I started talking about marathons and how runners hit the wall and have to overcome humungous challenges, we realised there were parallels with the kind of challenges disabled people face," he said.

KIT – Kids Included Together : Recognizing the Ability in Every Child

Kids Included Together (KIT) is a registered 501(c)(3) non–profit organization founded in San Diego, California in 1997. The mission of Kids Included Together (KIT) is to provide learning opportunities that support recreation, child development and youth enrichment programs to include children with and without disabilities. KIT’s goals are to enrich the lives of all who participate and to increase understanding and acceptance of disabilities as a natural part of life. We invite you to explore our site and learn more about our work with out–of–school time programs across the United States and internationally.

The Smart List 2012: 50 people who will change the world

Welcome to the first Wired Smart List. We set out to discover the people who are going to make an impact on our future --by asking today's top achievers who, emerging in their field, they'd most like to have a leisurely lunch or dinner with. So we approached some of the world's brightest minds  

By |March 4th, 2012|Categories: Articles, Assistive Technology, Lifestyle|Tags: , |0 Comments

Williams Syndrome Association

The WSA is the most comprehensive resource for people and families living with Williams syndrome as well as doctors, researchers and educators.  The WSA provides resources, support and the latest medical information to help your child today and throughout his/her life.  By joining, you’ll become part of the largest organization dedicated to improving the lives of people living with WS. No matter the age or stage of your family member with WS, you are not alone.  The WSA offers support and will help you navigate the challenges from diagnosis through adulthood.

State Obligations | UNESCO

Like all human rights, the right to education imposes three levels of obligation on States: The obligation to respect, protect and fulfil each of the “essential features” (availability, accessibility, acceptability, adaptability) of the right to education. The obligation to respect requires States to avoid measures that hinder or prevent the enjoyment of the right to education. The obligation to protect requires States to take measures that prevent third parties from interfering with the enjoyment of the right to education. In turn, the obligation to fulfil incorporates an obligation to facilitate and to provide. Facilitation requires States to take positive measures

Extreme Kids & Crew

Extreme Kids & Crew is a parent-run non profit dedicated to causing a great scene for Brooklyn’s kids with disabilities, their families and friends. They are all about creating a warm and encouraging atmosphere where children and adults of every ability and disability can relax, have fun, and enjoy the experience of being deeply accepted and celebrated for the people that they are. We offer workshops in the arts and movement with insightful and practiced teachers, parent education nights, free family concerts, and much more.  

A ‘Fountain’ of Kudos for First-Time Novelist Eliza Factor

The Fort Greene resident is not only about to release her first book, “The Mercury Fountain,” but she wrote the novel while raising three kids — one of them with cerebral palsy and autism — and starting Extreme Kids and Crew, a center catered to the needs of families with disabled children.

2012 Accessible Technology Webinar Series

All sessions are free and scheduled for 2-3:30pm Eastern/1-2:30pm Central/12-1:30pm Mountain/11-12:30pm Pacific utilizing the ElluminateLive! webinar platform. The Great Lakes and Pacific ADA Centers on behalf of the ADA National Network are pleased to announce the 2012 Accessible Technology Webinar Series. Electronic information and communications technology have become essential tools in all areas of our lives and working environments today, and are particularly important to people with disabilities by providing equal access to the workplace and social media. The 2012 webinar series will explore some of the latest technological trends and their accessibility to people with disabilities. Registration is available

Choosing to Have a Child With Down Syndrome

If our culture assumes that across the board, a child with a disability is defective, and a problem best avoided, then we’re encouraging people who want to be parents to make a decision based on bad information. And having an abortion because of bad information is a preventable tragedy.  

P2PUSA::Parent to Parent USA

Emotional & Informational support for families of children who have special needs.For over 36 years Parent to Parent programs across the country have been providing emotional and informational support to families of children who have special needs most notably by matching parents seeking support with an experienced, trained 'Support Parent'.  

Institute on Disabilities at Temple University, University Center for Excellence in Developmental Disabilities

A society where all people are valued and respected, and where all people have the knowledge, opportunity and power to improve their lives and the lives of others. MISSION The Institute on Disabilities leads by example, creating connections and promoting networks within and among communities so that people with disabilities are recognized as integral to the fabric of community life.    

The Arc of Pennsylvania

The Arc is the largest advocacy organization in the United States for citizens with intellectual and developmental disabilities, and their families. The Arc of Pennsylvania is the state chapter of The Arc. For more than 60 years, The Arc has been working to include all children and adults with intellectual and developmental disabilities in their community. We promote active citizenship and inclusion in every community setting. The Arc of Pennsylvania has been dedicated to the inclusion of children with disabilities in regular education classrooms since its founding in 1949. Parents wanted to raise their children at home rather than institutionalize

UNESCO | United Nations Educational, Scientific and Cultural Organization

UNESCO works to create the conditions for dialogue among civilizations, cultures and peoples, based upon respect for commonly shared values. It is through this dialogue that the world can achieve global visions of sustainable development encompassing observance of human rights, mutual respect and the alleviation of poverty, all of which are at the heart of UNESCO’S mission and activities. The broad goals and concrete objectives of the international community – as set out in the internationally agreed development goals, including the Millennium Development Goals (MDGs) – underpin all UNESCO’s strategies and activities. Thus UNESCO’s unique competencies in education, the sciences,

Friend 2 Friend Social Learning Society

The Friend 2 Friend Social Learning Society is a British Columbia-based not-for-profit organization formed in 2002 for the purpose of promoting mutually rewarding friendships between children with autism spectrum and related social-communicative disorders and their peers, classmates and siblings. Our goal is to help children develop to the best of their abilities through the play and socialization that results from these friendships. We do this by providing direct services for children by visiting schools and other community settings to explain the sensory and communication challenges of autism spectrum and related disorders. We use a fun and interactive approach while teaching

Douglas Biklen: “Begin by presuming competence”

"Presuming competence is nothing less than a Hippocratic oath for educators. " Douglas Biklen

The Golden Hat Foundation

The Golden Hat Foundation is a non-profit organization dedicated to eliminating barriers for people with autism around the world, and creating an environment that holds these individuals as intellectually capable. The mission of the Golden Hat Foundation is the establishment of innovative campuses that offer people with autism the opportunity to learn to communicate effectively, receive an education, job training and enjoy recreational activities, all within a supportive social network. When given a suitable education and the means to communicate effectively, people with autism can truly realize their dreams.

On To College : Autism Research Institute

I want to live where I feel safe and free to be myself without the stress of having to act normal. Home is safe because my mom and dad make me feel hopeful that changing people's attitudes toward nonspeaking autists is possible. As I go to college, I am hoping to create a really supportive community of fresh-thinking people who view me as caring and created as equal.  

Ralph James Savarese | essayist, poet, scholar, and activist

Ralph James Savarese is the author of Reasonable People: A Memoir of Autism and Adoption (Other Press 2007), which Newsweek called a “real life love story and a passionate manifesto for the rights of people with neurological disabilities.” It won the Independent Publishers Gold Medal in the category of health/medicine/nutrition, and a chapter was selected as a “notable essay” in the Best American Essays series of 2004.    

Planet of the Blind: D.J. Savarese, My Friend, Our Ally in Disability Rights

I am a lucky man. Although I bear the emotional scars of a tough childhood—a disability childhood, one with bullying, cruel teachers, lots of loneliness—I have had the startling fortune to meet magnificent people throughout my life.  

SPREAD THE WORD TO END THE WORD 03.07.12

Respectful and inclusive language is essential to the movement for the dignity and humanity of people with all disabilities. However, much of society does not recognize the hurtful, dehumanizing and exclusive effects of the word “retard(ed).” It is time to address the minority slur “retard(ed)” and raise the consciousness of society to its hurtful effects.

The National Institute on Deafness and Other Communication Disorders (NIDCD)

The National Institute on Deafness and Other Communication Disorders (NIDCD) is one of the Institutes that comprise the National Institutes of Health (NIH).NIH is the Federal government's focal point for the support of biomedical research. NIH's mission is to uncover new knowledge that will lead to better health for everyone. Simply described, the goal of NIH research is to acquire new knowledge to help prevent, detect, diagnose, and treat disease and disability. NIH is part of the U.S. Department of Health and Human Services. Established in 1988, NIDCD is mandated to conduct and support biomedical and behavioral research and research training

Dean Biklen honored in Kuwait with UNESCO/Emir Jaber al-Ahmed al-Jaber al-Sabah Prize

The United Nations Educational, Scientific and Cultural Organization (UNESCO) will present Syracuse University's School of Education Dean Douglas Biklen with the 2011 UNESCO/Emir Jaber al-Ahmed al-Jaber al-Sabah Prize, honoring him for his work promoting

CART Interpreting

The Alexander Graham Bell Association for the Deaf and Hard of Hearing (A.G. Bell) filed two amicus briefs within days of each other in federal courts of appeal supporting the right of students who are deaf and hard of hearing to receive Communication Ac

Challenger Division

The Challenger Division was established in 1989 as a separate division of Little League to enable boys and girls with physical and mental challenges, ages 4-18, or up to age 22 if still enrolled in high school, to enjoy the game of baseball along with the millions of other children who participate in this sport worldwide. Today, more than 30,000 children participate in more than 900 Challenger Divisions worldwide.

The Miracle League

The Miracle League is proud to serve over 200,000 children and young adults with disabilities.Presently there are 250 Miracle League Organizations across the country including Puerto Rico, Canada and our newest member in Australia. Our goal is to offer this program to every city in the country so children, young adults and adults alike with special needs around the globe will have this same opportunity to play baseball. The Miracle League believes; “Every Child Deserves A Chance to Play Baseball.” To find a league or start a league  

Mock my pants, not my sister

The following was written by Brian Skotko , MD, MPP, a Physician at Children’s Hospital Boston’s Down Syndrome Program. It’s in response to a feature in GQ magazine that used insensitive language. Go ahead, GQ, and mock my blue whale-emblemed Nantucket-red pants. Laugh if you want at the loud argyles that I prefer to wear with my black suit. I don’t even care if you dismiss the sexy pink polka-dotted tie that I like to wear with my blue-checkered shirt in clinic. But, whatever you do, do not mess with my sister.  

Brian Skotko

A Board-certified medical geneticist at Children's Hospital Boston, Massachusetts General Hospital, Brigham & Women's Hospital, and Dana Farber Cancer Institute, Dr. Skotko has dedicated his professional energies toward children with cognitive and development disabilities. He is one of the specialists in theDown Syndrome Program at Children's Hospital Boston. In 2001 he co-authored the national award-winning book, Common Threads: Celebrating Life with Down Syndrome and, most recently, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. He is a graduate of Duke University, Harvard Medical School, and Harvard Kennedy School. Dr. Skotko recently authored major research on how physicians deliver

Trailblazers

Trailblazers is a national network of more than 400 young disabled people who work together on a national and local level to highlight and address the issues that are important to them. We aim to fight the social injustices experienced by young disabled people and to ensure we can gain access to education, employment and the services we require. We are part of the Muscular Dystrophy Campaign, the leading UK charity focusing on muscular dystrophy and other related conditions. Our mission To fight against the social injustices experienced by young people living with muscle disease or a related condition. Our

World Institute on Disability

The mission of the World Institute on Disability (WID) in communities and nations worldwide is to eliminate barriers to full social integration and increase employment, economic security and health care for persons with disabilities.  

Think Inclusive — Where education meets advocacy…

Think Inclusive  is dedicated to inclusive schools and communities for everyone. Think Inclusive is a wonderful resource that promotes the full and authentic inclusion of people with disabilities in their school and communities through education and advocacy. Think Inclusive's founder,  Tim Villegas, has created a bridge between educators, parents, and advocates to promote ideas, innovation and inspiration to change our world to be more accepting and value each and every human being. Check out Tim's  guest posts for Ollibean  The Case for Inclusion: Does All Really Mean All? , The Case for Inclusion Part Two: What Does Inclusion Look Like?, and  The Case for

Don’t Play Me Pay Me

The Don't Play Me Pay Me campaign seeks to: Actively encourage disabled people to follow their chosen creative career path. Remove the barriers of prejudice that disabled actors face in finding work. Provide a forum for all disabled actors to encourage debate and empower them to have their voice heard and listened to. Encourage programme makers to feature disabled actors in all storylines to reflect real life. Encourage programme makers not to use non-disabled actors (even if a “name” means funding) to portray disabled characters. Encourage advertisers to feature disabled people in all advertising. http://www.dontplaymepayme.com  

Partners in Policymaking

Nearly twenty five years ago, the Minnesota Governor's Council on Developmental Disabilities created a ground-breaking, innovative training program called Partners in Policymaking® to teach parents and self-advocates the power of advocacy to change the way people with disabilities are supported, viewed, taught, live and work. During the past two decades, important issues have been confronted and dramatic changes have been made.    

Laura Shumaker: Financial planning 101 for special needs families

Families with children who have special needs or disabilities face even bigger hurdles than most people when it comes to planning for their financial futures. We actually prefer to bury our heads in the sand (at least my husband and I do) but we shouldn’t.  

Probe: Disabled patient abuse cases overlooked

California has assembled a police force to protect about 1,800 of its most vulnerable patients - men and women with cerebral palsy, severe autism and other mental disabilities who live in state institutions and require round-the-clock monitoring and prot

GCAC Presents: VSA Ohio at the intersection of art and disability

Since its founding in 1986, VSA Ohio has evolved to become a community that helps inspired artists connect with their passions. Bridging arts and disability, their programs and services focus on providing equal opportunity, full participation, independen

Special Ed Teacher Accused of Inappropriate Contact

A male special education teacher at Crenshaw High School who was removed from the classroom three weeks ago amid allegations of inappropriate contact with a child has resigned, the school district confirmed Wednesday. There is an ongoing investigation be

  • 4 members of OlliNepal team sitting on stairs

Sign up and Ollibean gives to a child in Nepal. It’s that easy.

Want to help kids in Nepal? We’re making it super easy. For every person that joins our community we will donate $2 to support children in Nepal.You can also enter for a chance to win an iPad**. Now share this with everyone you know and show the world how easy it is to make a difference.

Squag: Social media for teens and tweens with autism | Washington Times Communities

Two years ago, Sara Winter's nephew got in a skirmish at recess and was very upset. Winter suggested that the boy, who is on the autism spectrum, write a note to his parents on her Blackberry to tell them what he was feeling. Astounded by the way he was able to express himself, Winter began searching for software that could help him do so more. Finding none, she eventually created a social networking-style interface for kids on the spectrum called Squag.    

Aid for Autistic Children Foundation

Aid for Autistic Children Foundation, Inc.™ mission: Reduce the financial burden on poverty stricken and disenfranchised families and caretakers coping with autism, through debt forgiveness, so attention and resources can be focused on creating a proper living and learning environment for their autistic loved one. How the Program Works After thorough evaluation of your completed application and assessment from our board and an independent consumer credit counseling service, the debt forgiveness will directly target the financial burden the family deems most obstructive in allowing them to focus solely on giving their autistic loved one the best tools and skills for

The Coffee Klatch

The Coffee Klatch started on a whim. I often speak and write about the isolation, stigma and confusion of parents raising a special needs child. Many of those 
parents are on twitter to share information, seek support or find a friendly ear. Twitter is where it all began. It is where I met my incredible team of moderators and thousands of special needs parents. It is where we created a morning chat for parents both newly diagnosed and those who have navigated the muddy waters to meet and share. It became very apparent to me, very quickly, that many of

SoundBite uses vibrations through the teeth to help the hearing impaired

SoundBite is a new hearing device that uses bone conduction through the teeth to help the hearing impaired. SAN ANTONIO -- The newest device on the market for the hearing impaired doesn’t use the ear canal to transmit sound. It uses teeth. Ear Medical Gr

Team Hoyt

Team Hoyt is an inspirational story of a father, Dick Hoyt, and his son, Rick, who compete together in marathons and triathlons across the country. Team Hoyt strives to help those who are physically disabled become active members of the community.   .

Advocates Incorporated

Advocates is a not-for-profit 501(c)(3) parent-directed organization providing services to individuals with developmental disabilities and their families.  As an organization, we were started by parents of children with developmental disabilities with the goal of full inclusion for their children.    

New Voices Foundation

New Voices is a short-term, intensive, individualized educational program for elementary-aged children with physical and communicative disabilities. Inclusion in all aspects of school, home and community life with transition back to a local school is our guiding philosophy. New Voices will: · Provide an educational program to increase literacy and communication skills (following the NC Standard Course of Study) · Equip and support students in the most advanced communication technology appropriate to their unique needs · Provide specialized, in-depth assessment and intervention · Provide supplemental healthcare maintenance and support, and ensure each child has a medical home · Maximize student’s

Center for Literacy and Disability Studies at UNC

The Center’s mission is to promote literacy and communication for individuals of all ages with disabilities. It is the belief of the CLDS that disabilities are only one of many factors that influence an individuals ability to learn to read and write and to use print throughout their life and across their living environments.All individuals, regardless of their abilities or disabilities, have the right to an opportunity to learn to read and write in order to increase and enhance their educational opportunities, vocational success, communicative competence, self-empowerment capabilities, and independence.

Hospital apologizes to Amelia Rivera who was denied kidney transplant

Children's Hospital of Philadelphia has issued an apology to the parents of Amelia Rivera, a disabled three-year-old girl who, according to her parents, was initially denied a chance at a kidney transplant because she is “mentally retarded.” In a stateme

Expanding Opportunities for People with Disabilities – Fact Sheet on President Obama’s 2013 Budget Proposals

We now face a make-or-break moment for the middle class and those trying to reach it. After decades of eroding middle-class security as those at the very top saw their incomes rise as never before and after a historic recession that plunged our economy i

OlliNepal: Why Nepal ?

You can help kids with diffabilities in Nepal. We’re making it super easy. For person that joins our community we will donate $2 to support children in Nepal.You’ll also be entered for a chance to win an iPad at the same time. Now share this with everyone you know and show the world how easy it is to make a difference.

A little bit about us

It's hard to convey all that we want you to know "about us" in a paragraph., hard to explain the million and one reasons we're so passionate about Ollibean and how much we want you involved in our community. We hope this does it. We'd love to hear an "about us" about you. Shoot a video response and send it to us at olli@ollibean.org or post to our youtube account. We'll send an Ollibean tshirt to the first 20.

Details of Obama’s proposed $70B for education

The U.S. Department of Education would receive nearly $70 billion under President Barack Obama’s FY2013 budget, which he presented to Congress on Feb. 13. This is a 2.5 % increase from 2012. Obama's 2013 education budget focuses on STEM initiatives and workforce readiness. “In these tough budget times, the Obama administration is making a clear statement that high-quality education is absolutely critical to rebuilding our economy.If we want to strengthen the American workforce, we must continue to invest in education. U.S. Secretary of Education Arne Duncan  

SchoolBook: Do High-Needs Students Affect a School’s Grade?

New York City’s latest plan to reform special education services encourages public school principals to take more of the neediest students. Still, it’s not clear that there’s a link between having a lot of these challenging students and getting a poor grade, contrary to what some critics contend.

By |February 14th, 2012|Categories: Articles, Inclusive Education|Tags: , |0 Comments

The President’s FY 2013 Budget: What does it mean for Special and Gifted Education?

CEC Calls for a Greater Investment in Core Programs in FY13 Budget: Special and Gifted Education The following is a statement from Deborah A. Ziegler, Associate Executive Director, Policy and Advocacy Services, the Council for Exceptional Children, regar

Obama ignores special ed, again…

“Fully Funding the Individuals with Disabilities Education Act: Barack Obama has been a strong and consistent advocate for fully funding the Individuals with Disabilities Education Act (IDEA). Congress promised to shoulder 40 percent of each state’s “exc

Unified Sports Teams Open Doors for Inclusive Athletics

“Unified has transformed the culture of this school. It was almost as if these kids weren’t noticed before we began doing this. I don’t think anyone realized how powerful they are.” “Our athletes have an unconditional appreciation for other people. They persevere even in the face of being bullied and teased. We can pull back the veil of the unknown and make people real.” Born of the idea that athletic events can be especially transformative when they include individuals who have special needs alongside those who do not, unified programs have existed about two decades. In 2008, with money from

Six Strategies for Differentiated Instruction in Project-Based Learning

Project-Based Learning (PBL) naturally lends itself to differentiated instruction. By design, it is student-centered, student-driven and gives space for teachers to meet the needs of students in a variety of ways. PBL can allow for effective differentiat

CEC Division on Autism and Developmental Disabilities

The Division on Autism and Developmental Disabilities is an organization composed of persons committed to enhancing the quality of life of individuals, especially children and youth, with autism, intellectual disabilities and other developmental disabilities. The Division seeks to further the knowledge base of the field, thus ensuring the continued advancement of positive educational and life outcomes for those with autism and developmental disabilities.

An Update on Amelia

By Tim Shriver Several weeks ago, I wrote about a young girl named Amelia Rivera who was denied consideration for a kidney transplant at the Children’s Hospital of Philadelphia because she was, according to her doctors, “mentally retarded.” Amelia is now in the process of being considered again for a transplant. Our lesson is that we cannot let Amelia’s story be an isolated call to arms. We must continue to seek change and advocate for the dignity of every human life.

Killing of autistic boy shows need for support for developmental disabilities

An argument about computer use ended with a 15-year-old boy shot dead by police in Calumet City, family and officials said Wednesday. Stephon Watts, who the family said was autistic, was reportedly asked by his father to stop using the computer. Watts' father had been told in the past to call police when he had problems with the teen. He did, and officers responded to the home in the 500 block of Forsythe Avenue in the far south suburb.

E-Learning for Deaf and Hard of Hearing Children

Launched by the St. Joseph Institute for the Deaf (SJI) – an institution with a 175-year history of innovation in deaf education – iHear is the world's first e-learning program created with optimum security measures to ensure privacy and compliance with federal HIPAA regulations and educational FERPA regulations. Hear gives families in rural areas the choice to pursue their child's development of auditory and speech skills without the burdens of extensive travel and cost," says Deborah Wilson, president of SJI. "This access to spoken-language therapy opens the doors for children with hearing impairments to remain on grade-level with their peers

Dr. Jill Bolte Taylor’s Stroke of Insight

Jill Bolte Taylor This TedTalk by Jill Bolte Taylor is a testimony to the power of presuming competence and importance of a nurturing, positive environment when learning. Neuroanatomist Jill Bolte Taylor woke up one morning and realized she was having a massive stroke. Bolte Taylor details her experience as her left brain slipped away and she was left without language, awareness of time. But, instead of being terrified she was intrigued and serene. As her left brain's stopped functioning she experienced the wonders of her right brain. She was fully present, connected to everything, thought in pictures, was inundated with sensory information

Dr. Jill Bolte Taylor

Dr. Jill Bolte Taylor is a Harvard-trained and published neuroanatomist who experienced a severe hemorrhage in the left hemisphere of her brain in 1996. On the afternoon of this rare form of stroke (AVM), she could not walk, talk, read, write, or recall any of her life. It took eight years for Dr. Jill to completely recover all of her functions and thinking ability. She is the author of the New York Times bestselling memoir My Stroke of Insight: A Brain Scientist's Personal Journey (published in 2008 by Viking Penguin). In 2008, Dr. Jill gave a presentation at the TED

Advocates for Children of New York

At Advocates for Children of New York (AFC), we are dedicated exclusively to protecting every child’s right to an education, focusing on students from low-income backgrounds who are struggling in school or experiencing school discrimination of any kind. For more than 40 years, our staff of attorneys and education specialists have successfully helped hundreds of thousands of families by providing free legal and advocacy services, including representation at school-related hearings and appeals, and teaching families what they need to know to stand up for their children’s educational rights. AFC also works to change education policy so that the public school

  • Photo of girl kicking with balloons in background. Text reads: RESOURCES we love. Ollibean logo.

Edudemic

Edudemic is a great resource. Edudemic is a great resource for teachers, homeschooling families, and students. They cover how technology positively shapes education and so much more. Edudemic provides innovative, informed, and engaging tech resources. It is a one stop shop  to discover and engage with information about the newest technology, data trends, and digital tools available to them in order to enhance education. Check out Edudemic at http://www.edudemic.com

TenMarks | Online Math Program for Grades 2-10

TenMarks was started to create a better way for students to learn - one that focuses on the student and their individual needs, is interactive and engaging, takes advantage of new technologies, and caters to the changes in student expectations and behavior. Their mission is to positively impact the lives of 20 million students in 5 years.

EdTech Associates

Founded on the vision that every child should have the opportunity to develop a foundation of 21st Century learning skills, EdTech Associates provides services to empower all schools and students to succeed. EdTech Associates was established by Kathleen H. McClaskey, M.Ed., a well-respected and recognized professional and innovative leader in educational technology. Kathleen has almost three decades of experience in educational technology with a firm philosophy that technology is a tool that can improve teaching and learning. In her long career, she has been a computer teacher, technology integration specialist, K-12 technology director and graduate instructor for in online and

Apps in Education

Greg Swanson is a Visual Arts teacher who is interested in Computer Integration, Web 2.0 and engaging students in their own learning through innovative technology and collaborative classroom practices. One of the hardest thing with using the iPad in the classroom is finding the time to go through all of the apps in the iTunes Store listed under the education banner. Apps in Education has started to list some of the apps they've found under each of the Key Learning Areas.

Amy Sequenzia “Be Proud of Who You Are”

"Feeling sorry for our disabilities means not accepting ourselves. I feel sorry because disabilities rights are still lacking, not because I am disabled. My message is, hopefully, about our strength and similarities". Amy Sequenzia

38 Disability Organizations Oppose House ESEA Proposal

The organizations oppose the draft Student Success Act because “it abandons accountability for the achievement and learning gains of subgroups of disadvantaged students who for generations have been harmed by low academic expectations.

Letter from Assistant Secretary for Civil Rights Russlynn Ali

Dear Colleague: This year, we will celebrate the 22nd anniversary of the landmark Americans with Disabilities Act (ADA), 42 U.S.C. §§ 12101-12213.  We at the Office for Civil Rights (OCR) in the United States Department of Education (Department) recognize the progress our country has made toward ensuring that educational opportunities are provided free from disability discrimination.  As Secretary Arne Duncan has stated, the Department is “strengthening our efforts to ensure that all students, including those with disabilities, have the tools they need to benefit from a world-class education that prepares them for success in college and careers.”1 Pursuant to a

By |January 24th, 2012|Categories: Advocacy, Articles, Inclusive Education|Tags: , , , , |0 Comments

Students with autism learn to relax, focus with yoga

Stawicki, 12, works with his yoga group for about a half-hour. From 7:50 to 8:20 a.m., Stawicki focuses on breathing exercises and yoga poses like his favorites -- the tree and the airplane. Stawicki is one of six students from Parker Middle School's autism support class who gather to practice yoga twice a week. The students have learned about a dozen poses, and organizers said it helps them better control their emotions.  

By |January 24th, 2012|Categories: Articles, General|Tags: , |0 Comments

Creators of Halo & Star Wars Renew Student’s Dream after Charter School Rejection

Self-advocate Tres Whitlock on how the NPR story, "Florida Charter Schools Failing Disabled Students" has impacted him.

  • Photo of girl kicking with balloons in background. Text reads: RESOURCES we love. Ollibean logo.

SoulTouchin’ Experiences

Keith Jones & SoulTouchin' Experiences  SoulTouchin' Experiences is a Resource We Love! SoulTouchin' Experiences is an endeavor founded on the belief that in order to build a stronger community, there must be a heart and soul commitment to those who need assistance in order to begin caring for themselves and in turn caring for others. This is achieved through collaborative partnerships and progressive advocacy efforts, aimed at community empowerment along with systemic policy change for persons with and without disabilities on a local and national leve.l Keith P. Jones, started SoulTouchin' Experiences to bring a perspective to the issues

Minnesota Gov’s Council on Dev. Disabilities: Organ Transplants

 The Minnesota Governor's Council on Developmental Disabilities  Lives Worth Saving: Organ Transplantation and People with Disabilities   In 1995, Sandra Jensen was denied a heart/lung transplant. The transplant had been recommended by her attending physician. It was the only way to save her life. The transplant had even been approved by her insurer, MediCal. The problem - two California transplant centers refused to save Sandra's life.The good news - Sandra got her heart and lung transplant. She was the first person with Down Syndrome in the world to do so. With the help of friends and supporters, Sandra attracted national

  • book cover "My Voic: Autism, Life, and Dreams" by Amy Sequenzia

My Voice, My Life : A Poem by Amy Sequenzia

This powerful poem from the book "MY VOICE, Autism, Life and Dreams" by self-advocate Amy Sequenzia says so much. We were fortunate enough to get to know Amy at ICI's Summer Institute at MIT and are very grateful to her for allowing us to publish "My Voice, My Life" here. If you are interested in purchasing a copy of Amy's book, you can find her on Facebook. My Voice, My Life Look at me. Go ahead, take a good look. What do you see? Weird? Silly? Pitiful? Can’t do anything? You might feel sorry for me You might pity me

Todd Drezner: Nickels, Dimes and ‘High-Functioning’ Autism

As Justin Canha's story shows, the autistic person who needs a lot of support in one area may become a person who needs much less support in that same area. Justin barely spoke before age 10. Now he's verbal. He didn't suddenly change from "low-functioning" to "high-functioning." Rather, he received the support he needed and developed his skills.

What I Learned During My “Sabbatical” at the MIT Media Lab (Part Two)

Why Inventing Technologies for the Disabled is Not Just Right but Smart Business Q. What do a child with autism, an Iraq war-veteran amputee and a senior citizen with Alzheimer’s have in common? (Other than having disabilities that begin with “A.”) A. They are all the early adopters of radical new technologies that will make all our lives better in the future. For my entire career as an entrepreneur, I assumed that developing innovative technologies for people with disabilities, while the “right thing” to do, was not a particularly promising business proposition. Within a year of becoming director of the

What I Learned During My “Sabbatical” at the MIT Media Lab (Part One)

Also, like an academic, I wrote a book during my sabbatical. The book is about the highly unorthodox research and researchers at the Lab, titled “The Sorcerers and Their Apprentices: How the Digital Magicians of the MIT Media Lab are Creating the Innovative Technologies That Will Transform our Lives”. At the Lab, not taking risks is the biggest risk of all. Crazy and wild-eyed ideas and inventions emerge from what appears to be chaos. Some of these seeds survive and grow into innovations that can improve our everyday lives, disrupt industries and  even transform society.

Laser Beak Man- Tim Sharp

This is the story of autistic artist Tim Sharp, internationally recognized visual artist and creator of the super-hero character Laser Beak Man. Nominated for the Young Queenslander of the Year Award in 2008 and 2009, Tim works tirelessly for autism groups around the world.

E.A.S.E. Sri Lanka

E.A.S.E. Sri Lanka  E.A.S.E. campaigns to educate the public on the rights and the abilities of people with disabilities. They do presentations to interested groups, workshops targeting parents and professionals and disseminate knowledge of alternative communication techniques. Most importantly E.A.S.E. changes people's minds about what is possible for a person with significant disabilities. Chandima is a powerful voice for the hidden competencies of people with disabilities. After his presentation “On Autism” Dr. Shavindra Dias, Psychiatrist and Lecturer, Dept. of Psychiatry, Faculty of Medicine, University of Peradeniya said; “We have been walking in darkness you have enlightened us. You are

Scratch: Create & share your own interactive games, music & art

Scratch is a programming language that makes it easy to create your own interactive stories, animations, games, music, and art -- and share your creations on the web. Scratch As young people create and share Scratch projects, they learn important mathematical and computational ideas, while also learning to think creatively, reason systematically, and work collaboratively. Scratch is developed by the Lifelong Kindergarten Group at the MIT Media Lab, with financial support from the National Science Foundation, Microsoft, Intel Foundation, MacArthur Foundation, Google, Iomega and MIT Media Lab research consortia.

The Loud Hands Project

Love this video published by the Autistic Self Advocacy Network. Share it, Post it, Donate at http://www.indiegogo.com/The-Loud-Hands-Project?a=351448 so they will make more:)

  • Image description: photograph of young girl with blond hair and light skin, She is using American Sign Language. In the background a large white rectangular sign reads D-PAN, Deaf Professional Arts Network. Closed Captioning in Yellow at bottom of image reads" We're Going To Be Friends , " by the White Stripes.

D-PAN ASL Music Video “We’re Going To Be Friends” by the White Stripes

White Stripes "We're Going To Be Friends" ASL video we love by D-PAN.

Brick Walls

“Oh, that’s ok! We plan on donating. If we aren’t a match, we come from a large family and someone will donate. We don’t want to be on the list. We will find our own donor.” “Noooo. She—is—not—eligible –because—of—her—quality– of –life—Because—of—her—mental—delays” He says each word very slowly as if I am hard of hearing. “STOP IT NOW!” The anger is taking over. Thank God. Why did it take so long to get here? The social worker is writing some things down.

Florida Charter Schools Failing Students With Disabilities

Tres Whitlock is stuck in a public school where he feels ignored. He wants out. The 17-year-old would-be video game designer researched his options online and found his perfect match – Pivot Charter School. “It’s computer-based and I think I will do better,” he says. But when Whitlock tried to enroll the school he found a series of barriers in his way.

They call me Barney Fife

One out of four people that use accessible parking spaces, should not be using them. One out of four people think it's ok to park in a spot specifically designed and strategically to make it easier for someone who uses a wheelchair to have enough space to actually open the door to their van? Ok to park in a space designated for someone who has a heart condition so they don't have to walk quite as far?

“Miles for Kids’ Smiles” Pediatric Physical Therapy

As a pediatric PT, I often hear requests for "another lap on the tricycle" or "can I go back to my room now? Puhhhleeeease!" But the question of going to Nepal to fulfill one of my life's dreams has only one answer: "YES!" I grew up playing soccer. My family and I dedicated much of my childhood free time to road trips, holiday tournaments and the goal of obtaining a college scholarship to play. I signed with a small, liberal arts university in Alabama. While training preseason, I heard and felt a "POP". I would spend the next 4 years

Charter Schools

Charter schools are an idea dreamed up by an obscure education professor in the 1970s which have grown into a primary alternative to traditional public schools. One in 17 Florida students attended a charter school last year, a number that has increased almost six-fold in a decade. The original charter school model focused on local leaders forming an oversight board and spelling out the school’s mission, goals and methodology in a contract or charter.

Supreme Court Says NO to IDEA Case

In the special education case, Compton Unified School District v. Addison (Case No. 10-886), the justices had asked the U.S. solicitor general's office for its views last April on a question under the federal Individuals with Disabilities Education Act: whether a parent may bring a claim in a due-process hearing that a district violated the law's "child-find" provision.

MetLife Center for Special Needs Planning

MetLife Center for Special Needs PlanningSM is dedicated to helping families secure both lifetime care and quality of life for their dependents with special needs. Our mission is to help families plan for the future of their dependents with special needs, including preserving government benefits and providing insurance and other financial solutions which can help provide lifetime quality care. The planning process begins with a complete review of your dependent's needs, future care plans, assessment of government benefit eligibility, and finally a review of your family's current financial and legal plans. Critical areas that must be addressed are: 1.Government benefit

Protected Tomorrows

Protected Tomorrows founder, Mary Anne Ehlert, CFP, had a successful career in financial planning when she decided to act on her lifelong desire to specialize in serving the families of the disabled. The source of her inspiration was very dear to her heart. Mary Anne herself had come from such a family. Her younger sister, Marcia, to whom she felt especially close, suffered severe mental handicaps due to cerebral palsy. And, although their parents were naturally determined that Marcia should get the best possible care, they had also for years been understandably confused how best to plan and provide for

Children Across Borders

Children Across Borders is a charitable organization that paves the way for children of the world to a brighter future by providing sustained support in the form of education, health, housing, and wellness to under-privileged children while enabling the educational and cultural enlightenment of all children. They create a network of support for under-privileged children around the world by partnering with people and organizations who have chosen to dedicate their lives to helping these children lead healthy, fulfilling lives.Their work is personally driven with adherence to high standards and accountability, leading to a positive impact on our community and country.

The Global Genes Project

Rare Disease affects over 350 million people worldwide, and the largest percentage are children. There are over 7,000 rare diseases that have been identified all with very unique needs, but many with little to no support. Although each individual disease may only impact a few, together the impact is in the millions. Rare disease is not so rare. The Global Genes Project is broadly promoting the needs of the rare disease community, engaging the general public, garnering corporate support, under the "unifying symbol of hope" – the blue denim ribbon. The Global Genes Project is a program of R.A.R.E. Project, a

Addi & Cassi Fund

Our names are Addison and Cassidy Hempel and we are 7 year old identical twin girls who live in Reno, Nevada. In October 2007, after a two year medical odyssey, we were diagnosed with a ultra rare and fatal cholesterol disease that affects only 500 people worldwide. The disease is called Niemann Pick Type C (NPC) and the condition is frequently referred to as “Childhood Alzheimer’s.”  NPC is ultimately fatal in childhood and we are in a battle for our lives.

Autism Support Network

The mission of Autism Support Network is conveyed in our tagline: connect, guide and unite. Our goal is to short-cut the uphill battle individuals and families undertake when faced with autism – whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information.  

Saving Grace

Addison Lennon met all her early milestones: she sat up on time, crawled on time and walked on time. At about 4 months, however, she had a seizure, and her parents started to worry. By 9 months, her head appeared small for her age. Her neurologist reassured the family that Addison could still be within the lowest 5 percent of the normal range. "We were thinking she was typical," says Kari Lennon, "she would be in that 5 percent." At 15 months, however, Addison had another seizure that was a lot more severe. She had been tested for

Chef Jean-Christophe

All proceeds from the sale of our Spice Blend are donated to the Foundation for Mitochondrial Medicine to give hope and a future for all affected by those disorders, including Sebastien. The mission of Chef Jean-Christophe is also a very personal one; his son Sebastien was diagnosed in 2004 with a Mitochondrial Disease. Those diseases have no cure and affect 1 out of 4000 children. The proceeds from the sales of Provencal Meat and Poultry Rub are entirely donated to the Foundation for Mitochondrial Medicine to help find new treatments and save the lives of hundreds of children, including Sebastien’s. As

Disability and Abuse Project

The Disability and Abuse Project focuses on individuals with developmental or intellectual disabilities who are victims of sexual, physical, or emotional abuse. This includes all aspects of crime, such as crime victimization, reducing the risk of becoming a victim, support to the individual and family members when crime does occur, as well as providing guidance for psychotherapy and legal support. The project works with those who respond to crime reports, including police and sheriff personnel at all levels (patrol, investigators, detectives, dispatchers), prosecutors, protective services professionals, SANEs, victims advocates, and any others. It provides technical assistance, training programs, and training

By |January 8th, 2012|Categories: Advocacy, General, Resources|Tags: , , , |0 Comments

Meet Ryan, the six-year-old show-stealer in ads for Target and Nordstrom

With his floppy blonde hair, blue eyes and natural manner front of the camera, it is not difficult to see why Target has cast child model Ryan in its newest childrenswear ad. But the retailer has taken an unusual step in doing so, as the six-year-old suf

How David Met Sarah, by Anne Kelleher

I wrote How David Met Sarah at my mother's suggestion when she explained that as much as David is interested in reading, it's hard to find stories he likes. He reads at approximately a third grade level but as an adult, David doesn't relate to third grade level stories. It's also hard to find stories that have a hero with which he can identify. via How David Met Sarah.

Amy Julia Becker: Explaining Down Syndrome, To My Daughter, And Myself

A few months back, I mentioned to our daughter Penny that she would be meeting another little boy who had Down syndrome, just like her. She didn't say anything in response, but later on that day, when Penny was at school and William was getting ready for a nap, he said, "Mom, what down syn mean?" via Amy Julia Becker: Explaining Down Syndrome, To My Daughter, And Myself.

Neil Young launches film of storied benefit concerts

(Reuters) - A concert DVD featuring Neil Young and a generation of music icons will launch this month with live screenings across the United States. The movie and related CD collection showcases rare live, acoustic performances by many of music's biggest names, all of whom have played over the past 25 years at the annual Bridge School benefit concerts organized by Young and wife Pegi via Neil Young launches film of storied benefit concerts | Reuters.

Olivia Rosewood: Top 15 Films About Differently-Abled People

Having a child with special needs, whether it's autism, ADHD/ADD, cerebral palsy, Down Syndrome, or any of the other myriad of extraordinary variations from the norm, is becoming surprisingly... the new normal. It seems that nearly every family I meet is facing some set of challenges that veer from the average expectations of parents via Olivia Rosewood: Top 15 Films About Differently-Abled People (VIDEO).

The Family Center on Technology and Disability

The Family Center on Technology and Disability (FCTD) is a resource designed to support organizations and programs that work with families of children and youth with disabilities. We offer a range of information and services on the subject of assistive and instructional technologies. Whether you're an organization, a parent, an educator, or an interested friend, we hope you'll find information that supports you in your efforts to bring the highest quality education to children with disabilities.

More on Students With Disabilities and the Law

By JOHN O’CONNOR Tres Whitlock is trying to enroll in a charter school. The school has said they can not provide needed services. Last week we ran a story talking to attorneys about what the law requires for students with disabilities. One expert we spoke with, Joy Zabala with the Center for Applied Special Technology, responded to clarify her position.

Information Commonly Unreported in Intervention Effectiveness Studies

Sharon A. Gutman, PhD, OTR, FAOTA, is Editor-in-Chief, American Journal of Occupational Therapy, and Associate Professor, Columbia University, Programs in Occupational Therapy, New York; ajoteditor{at}aota.org Susan L. Murphy, ScD, OTR/L, is Assistant

By |December 30th, 2011|Categories: Articles, Therapies|Tags: , , , , , |0 Comments

UNH Institute on Disability Launches Person-Centered Planning Tool

Look Back, Plan Forward, a new website launched by the UNH Institute on Disability, will help individuals with disabilities and people who are aging to capture their life stories in ways that can inform caregivers and service providers about the individual’s history, values, preferences, and support needs during the person-centered planning process. via UNH Institute on Disability | News > Institute on Disability Launches New Online Person-Centered Planning Tool.

The National Early Childhood Technical Assistance Center

NECTAC is the national early childhood technical assistance center supported by the U.S. Department of Education's Office of Special Education Programs (OSEP) to strengthen service systems to ensure that children with disabilities, from birth to 8 years, and their families receive and benefit from high quality, culturally appropriate and family-centered supports and services.

UNH Institute on Disability

The Institute on Disability/UCED (IOD) at the University of New Hampshire was established in 1987 to provide a coherent university-based focus for the improvement of knowledge, policies, and practices related to the lives of persons with disabilities and their families.

Inclusive Schools Network

The Inclusive Schools Network offers a forum for educators, students, family, and community members to share experiences and ideas with each other. It is important for the Inclusive Schools Network to model an inclusive approach in welcoming and valuing all perspectives and opinions regarding the practice of inclusive education.  We hope you will communicate with us directly to improve this website and our services to you.

Disability is Natural

The mission of Disability is Natural is to encourage new ways of thinking about developmental disabilities, in the belief that our attitudes drive our actions, and changes in our attitudes and actions can help create a society where all children and adults with developmental disabilities have opportunities to live the lives of their dreams, included in all areas of life.

Broadreach Training and Resources

Norman Kunc and Emma Van der Klift have spent the last 25 years working to ensure that people with disabilities are able to take their rightful place in schools, workplaces, and communities. Although they are well known advocates within the disability rights community, they prefer to think of themselves as modern day storytellers, continuing the long held tradition of using humour and narrative to initiate self-reflection and social change.

Association on University Centers on Disabilities (AUCD)

AUCD envisions a future in which everyone, including people living with developmental and other disabilities, are fully integrated, participating members of their communities. We envision a future in which culturally appropriate supports that lead to independence, productivity, and a satisfying quality of life are universally available across the life span. AUCD's mission is to advance policy and practice for and with people with developmental and other disabilities, their families, and their communities by supporting our members in research, education, and service activities that achieve our vision. AUCD values the participation of people with disabilities, family members, and a culturally diverse

Autism Society

The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. They do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.

Love and Logic

The Love and Logic Institute is dedicated to making parenting and teaching fun and rewarding, instead of stressful and chaotic. They provide practical tools and techniques that help adults achieve respectful, healthy relationships with their children. All of their work is based on a psychologically sound parenting and teaching philosophy called Love and Logic. What Is Love and Logic? Children learn the best lessons when they're given a task and allowed to make their own choices (and fail) when the cost of failure is still small. Children's failures must be coupled with love and empathy from their parents and teachers.

Hannah’s Buddies

The Hannah's Buddies Charity Classic began in 2000 with John Bell of Widespread Panic deciding to help his goddaughter and tens of thousands of children in their fight against SMA. Today, the golf tournament, silent/auction and concert lineup attracts more than 2,000 participants and has raised nearly $2 million for SMA research. Spinal Muscular Atrophy is a neuromuscular disease that affects between 1 in 6,000 and 1 and 20,000 births. Over time, SMA causes muscles to become weak and considerably smaller. On average, 1 in 40 people are genetic carriers.

Foundation for Mitochondrial Medicine

The Foundation for Mitochondrial Medicine pledges to support the development of the most promising mitochondrial disease research and treatments of the many forms of mitochondrial dysfunction. Formed in 2005 and renamed in 2010, their Atlanta-based non-profit organization financially supports the first FDA-approved drug treatments that began in early 2010. Stated simply: they're funding the cures. The foundation's stewards and founders are parents of patients and medical experts. The Foundation for Mitochondrial Medicine was created to accelerate the development of the most viable mitochondrial disease treatments and therapies.

The United Mitochondrial Disease Foundation

The UMDF's mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. The UMDF's website provides the latest news and information about issues relating to mitochondrial disease research and information.  The UMDF also holds an annual international symposium that brings together the best physicians and researchers for patients and family members to gain valuable information.  The UMDF also provides information about local fundraisers and educational programs.  The UMDF advocates on the national level and empowers members to advocate on the local level regarding issues of medical

Mito Action

MitoAction's vision is to create a community of support that reaches every child, adult, and caregiver affected by a mitochondrial disease. Effective awareness and advocacy will guarantee that every patient has access to specialized care and a network of support and information that improves the journey for every individual affected.

By |December 28th, 2011|Categories: General, Medical, Resources|Tags: , , , |0 Comments

Office of Rare Diseases

The ORDR Web site aims to answer questions about rare diseases and the activities of the ORDR for patients, their families, healthcare providers, researchers, educators, students, and anyone with concern for and interest in rare diseases. The site provides information about ORDR-sponsored biomedical research, scientific conferences, and rare and genetic diseases. It also serves as a portal to information on major topics of interest to the rare diseases community.

Hydrocephalus Association

The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. We strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

International Rett Syndrome Association

The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.

The Foundation for Children with Microcephaly

The Foundation for Children with Microcephaly is the only 501(c)(3) nonprofit organization in the United States dedicated to helping children and adults diagnosed with Microcephaly, Polymicrogyria, Lissencephaly and other closely related neurological disorders often get overlooked as well.

Squag

Squag [skwag] is an innovative social platform designed specifically for tweens and teens on the autism spectrum. Their goal is to facilitate the opportunity for organic relationships; driven by kids, supported by parents. (What could be better?)  

  • Including Samuel

Including Samuel

Before his son Samuel was diagnosed with cerebral palsy, photojournalist Dan Habib rarely thought about the inclusion of people with disabilities. Now he thinks about inclusion every day. Shot and produced over four years, Habib’s award-winning documentary film, Including Samuel, chronicles the Habib family’s efforts to include Samuel in every facet of their lives. The film honestly portrays his family’s hopes and struggles as well as the experiences of four other individuals with disabilities and their families. Including Samuel is a highly personal, passionately photographed film that captures the cultural and systemic barriers to inclusion.

Inclusion Network

This wonderful resource provides resources for Training, Consulting and Networking Facilitators.foster the development of inclusion. The focus is the development of future leadership for inclusion through the creation of focused programs, materials and research that will create a world where Everyone Belongs.

The Inclusive Class

  We are crazy about the Inclusive Class! Nicole Eredics is pretty incredible, and her blog and podcasts are informative, interesting, and always just what we need. The inclusive classroom best demonstrates that message as it begins with the belief that all children belong. Each child can demonstrate and achieve success, in various ways, according to their abilities, strengths and areas for growth. Inclusive Class' Livebinder has an abundance of resources.

Paula Kluth: Toward Inclusive Classrooms and Communities

This website is dedicated to promoting inclusive schooling and exploring positive ways of supporting students with autism an other disabilities. Most of Paula Kluth's work involves collaborating with schools to create environments, lessons,  and experiences that are inclusive, respectful, and accessible for all learners.

Wrightslaw

Wrightslaw's mission is to provide parents, advocates, educators, and attorneys with accurate, up-to date information about special education law and advocacy so they can be effective catalysts. * Information for parents about their rights and responsibilities * Information for teachers about professional training so they can meet the diverse needs    of their students * Information for advocates about laws, regulations, and advocacy strategies * Information for attorneys who want cases, pleadings, and tactics and strategies

Office of Special Education Programs

The Office of Special Education Programs (OSEP) is dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21 by providing leadership and financial support to assist states and local districts. The Individuals with Disabilities Education Act (IDEA) authorizes formula grants to states, and discretionary grants to institutions of higher education and other non-profit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development and parent-training and information centers. The Individuals with Disabilities Education Improvement Act of 2004 was signed into law by President George W. Bush on December 3, 2004. As the nation's special education law, IDEA serves approximately 6.8 million children and

Office of Special Education and Rehabilitative Services

The Office of Special Education and Rehabilitative Services (OSERS) understands the many challenges still facing individuals with disabilities and their families. Therefore, OSERS is committed to improving results and outcomes for people with disabilities of all ages. OSERS supports programs that serve millions of children, youth and adults with disabilities. OSERS is comprised of the Office of the Assistant Secretary (OAS) and three program components: the Office of Special Education Programs (OSEP), theNational Institute on Disability and Rehabilitation Research (NIDRR), and theRehabilitation Services Administration (RSA).

US DOE Associations and Organizations Resource Page

The Education Resource Organizations Directory (EROD) contains information on more then 3,000 national, regional and state education organizations and associations. The directory helps you identify and contact these organizations that provide information and assistance on a broad range of education-related topics.

Online Mendelian Inheritance in Man (OMIM)

OMIM is a comprehensive, authoritative, and timely compendium of human genes and genetic phenotypes. The full-text, referenced overviews in OMIM contain information on all known mendelian disorders and over 12,000 genes. OMIM focuses on the relationship between phenotype and genotype. It is updated daily, and the entries contain copious links to other genetics resources.

United States International Council on Disabilities

The U.S. International Council on Disabilities (USICD) is a non-profit, membership, constituent-led organization committed to building bridges between American and international disability communities and cultures. Through a wide range of projects and programs, USICD promotes the inclusion of disability perspectives in U.S. foreign policy and aid and provides opportunities for domestic disability rights organizations to interface with their international counterparts. USICD’s major initiatives leverage a membership that spans organizations and individuals in more than 30 U.S. states and a number of foreign countries. USICD's Board of Directors includes leading experts in domestic and international disability issues.

Technology & Telecommunications Task Force

The Telecommunications and Technology Task Force, part of the Consortium for Citizens with Disabilities deals with issues related to access to telecommunications and assistive technology in education, employment and independent living.

Spina Bifida Association of America (SBAA)

The Spina Bifida Association (SBA) serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service.

SABE – Self Advocates Becoming Empowered

Self Advocates Becoming Empowered (SABE) is the self-advocacy organization of the United States. Founded in 1990, we have been working hard for the full inclusion of people with developmental disabilities in the community throughout the 50 states and the world for 21 years. Our non-profit advocacy organization is run by a board of self-advocates representing 9 regions of the country.

RESNA

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) RESNA's goal is "To maximize the health and well being of people with disabilities through technology." The purpose of RESNA is to contribute to the public welfare through scientific, literary, professional and educational activities by supporting the development,dissemination, and utilization of knowledge and practice of rehabilitation and assistive technology in order to achieve the highest quality of life for all citizens.

Rights Task Force

The Rights Task Force is part of The Consortium for Citizens with Disabilities and focuses on civil rights and protections for people with disabilities, and for enforcement of rights provisions by federal agencies. Issues covered include the Americans with Disabilities Act (ADA), Section 504, and protections secured through the Individuals with Disablities Education Act (IDEA)

By |December 28th, 2011|Categories: Advocacy, General, Politics, Resources|Tags: , , , , , , |0 Comments

President’s Committee for People with Intellectual Disabilities

The mission of PCPID is to provide advice and assistance to the President of the United States and the Secretary of Health and Human Services on a broad range of topics that impact people with intellectual disabilities and the field of Intellectual Disabilities. Undergirding the Committee’s mission is the goal to improve the quality of life that is experienced by people with intellectual disabilities, by upholding their full citizenship rights, independence, self-determination, and life-long participation in their respective communities.

Office for Civil Rights

The mission of the Office for Civil Rights is to ensure equal access to education and to promote educational excellence throughout the nation through vigorous enforcement of civil rights. An important responsibility is resolving complaints of discrimination. OCR also provides technical assistance to help institutions achieve voluntary compliance with the civil rights laws that OCR enforces. An important part of OCR's assistance is partnerships designed to develop creative approaches to preventing and addressing discrimination.

NORD – National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

National Information Center for Children & Youth with Disabilities

NICHCY serves the nation as a central source of information on: ■disabilities in children and youth; ■programs and services for infants, children, and youth with disabilities; ■IDEA, the nation’s special education law; and ■research-based information on effective practices for children with disabilities.

National Fragile X Foundation

The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X.

The National Down Syndrome Society

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.

The National Down Syndrome Congress

The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.The vision of the NDSC is a world with equal rights and opportunities for people with Down syndrome.It is the purpose of the National Down Syndrome Congress to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.

The National Association for the Dually Diagnosed

NADD is a not-for-profit membership association established for professionals, care providers and families to promote understanding of and services for individuals who have developmental disabilities and mental health needs. The mission of NADD is to advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care. NADD's Mission "To advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care."

Will A $35 Product Change Multi-billion-dollar Indian Education System

Education has always been a high priority for the Indian government. Although the percentage of GDP (gross domestic product) spent by India on education lags behind the developed countries, it has increased over the past years. The Right to Education Act

The National Association of Parents with Children in Special Education

The National Association of Parents with Children in Special Education (NAPCSE) is a national membership organization dedicated to rendering all possible support and assistance to parents whose children receive special education services, both in and outside of school. NAPCSE was founded for parents with children with special needs to promote a sense of community and provide a national forum for their ideas.

Disability Rights Education and Defense Fund

The Disability Rights Education and Defense Fund, founded in 1979, is a leading national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities. The mission of the Disability Rights Education and Defense Fund is to advance the civil and human rights of people with disabilities through legal advocacy, training, education, and public policy and legislative development.

Special Olympics International

The Special Olympics mission remains as vital today as it did when the movement was founded in 1968. Through the power of sport, Special Olympics strives to create a better world by fostering the acceptance and inclusion of all people. Mission Statement The mission of Special Olympics is to provide year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in a sharing of gifts, skills and friendship with their families, other Special Olympics athletes and the

Stories From The Road | Chapter Seven | “Stand Up! For Inclusion”

"Stand Up! For Inclusion": Larry, Tracy, Harvey & Pascal speak to teens in Houston at the 26th Annual BBYO Lonestar Convention. The theme of this year's convention is "Stand Up! For Inclusion" to inspire youth to make a difference in the world around them.

Stories From The Road | Chapter Twelve | “All That’s Newsworthy”

From our friends at Stories from the Road, "All That's Newsworthy": Larry and Tracy join director Gerardine Wurzburg on the WPIX Channel 11 Morning News to discuss the upcoming theatrical release of their documentary 'Wretches & Jabberers'. The guys get the star treatment as they share their experiences with anchor Jim Watkins.

Stories From The Road | Chapter Eleven | “Teaching The Teachers”

"Teaching The Teachers": The Vermonters are invited to speak at Teachers College at Columbia University. A subway ride brings them to their destination as they find open minds, caring hearts, and an invitation for beer!

Stories From The Road | Chapter Six | “Mile-High Marvels”

"Mile-High Marvels": Larry, Tracy, Harvey & Pascal are asked to speak about their experiences making "Wretches & Jabberers" at the 35th Annual TASH Conference held in Denver, Colorado.

Stories From The Road | Chapter Five | “A Small World After All”

More from the amazing W & J and State of the Art/Dan Curl. "A Small World After All": Tracy invites Finnish friends Henna and Antti to join him at his monthly task force meeting at Community Developmental Services in Barre, VT. Here other people with autism advocate for people with communication challenges, quality of life initiatives, and increase public awareness.

Stories From The Road | Chapter Four | “Breakfast at Larry’s”

From our friends at Wretches & Jabberers, "Breakfast at Larry's": Larry invites visiting international friends Chammi, Antti & Henna to his home for a traditional Vermonter breakfast. With the help of his sister Sally, Larry hosts a meal not soon forgotten!

Stories From The Road | Chapter Three | “Wretches Reunite”Stories From The Road | Chapter Three | “Wretches Reunite”

"Wretches & Jabberers" co-stars from Finland and Sri Lanka descend upon Burlington, Vermont to visit Larry and Tracy and discuss how the film has impacted their lives.

Stories From The Road | Chapter One | “A Night With The Stars”

"A Night With The Stars": Larry, Tracy, Harvey & Pascal take to the road to promote a new documentary titled "Wretches & Jabberers" following their recent "World Intelligence Magnified Tour". Their first stop is Syracuse, NY where they meet with the Disability Cultural Center Initiative at Syracuse University and answer questions about the film.

Stories From The Road | Chapter Two | “Syracuse International Film Festival”

"Syracuse International Film Festival": Larry, Tracy, Harvey & Pascal on the road to promoting "Wretches & Jabberers" following their recent "World Intelligence Magnified Tour". Their second stop was Syracuse, NY is to present the film and their personal narratives at the Syracuse International Film Festival.

Releasing the Music In Your Head

Dan Ellsey and Tod Macchover on TED Talks, Macchover (the man behind Guitar Hero) of MIT's Media Lab , talks about Hyper Score. Ellsey,a composer with cerebral palsy uses some new tools to write and perform his own beautiful music. Very cool.

The Miracle Project

Check out this trailer from the Emmy winning documentary, The Miracle Project. We should ALL have the opportunity to perform, participate, and find our gifts. Get involved with The Miracle Project ww.themiracleproject.org.

The Making of Sensitive

From The Miracle Project..the making of "Sensitive", a song about bullies. Wyatt Isaacs sings with Jack Black. Stephen Stills produces it a la sex pistols, with his signature guitar! Learn more about The Miracle Project at www.themiracleproject.org , you will love it as much as we do!

Classroom Simulation of Student Who Is Deaf or Hard of Hearing

An amazing simulation of what speech sounds like for hearing impaired student by the Vermont Center for Deaf and Hard of Hearing, Inc. You will be shocked! This simulation allows you to experience the challenges a hearing impaired student faces in the classroom, with and without a personal FM sytem. We had no idea it was this hard for hearing impaired students to hear what's being said in a typical classroom environment.

Carly Fleischman on 20/20

Carly Fleischmann, on 20/20 in 2009. Carly is diagnosed with autism and types to communicate. She is an incredibly intelligent self-advocate who is helping change how the world sees people who communicate differently. We are huge fans! Please check out her website for more information http://carlysvoice.com.

Institute on Communication and Inclusion

The Institute on Communication and Inclusion (ICI) is a research and training center that is part of the Inclusion Institutes of the School of Education at Syracuse University. Formerly the Facilitated Communication Insitute, our new name - the Institute on Communication and Inclusion - represents a broadened focus developed over the past 20 years, reflecting lines of research, training and public dissemination that focus on school and community inclusion, narratives of disability and ability, and disability rights, as well as research and training on faciltiated communication. Its initiatives stress the important relationship of communication to inclusion.   Led by Director

Kit( Kids Included Together)

Kids Included Together (KIT) specializes in providing best practices training for community–based organizations committed to including children with and without disabilities into their recreational, child development and youth development programs. Utilizing a blended learning style with interactive eLearning components, KIT’s services are provided free of charge to its 63 affiliate organizations representing over 304 sites in San Diego County. Since its inception in 1997, Kids Included Together (KIT) has trained over 25,000 youth providers in the best practices of inclusion. Over 15,000 children with disabilities have been co–enrolled with over 265,000 children without disabilities at KIT affiliate sites. 72% of

National Association of the Deaf (NAD)

The NAD is the nation's premier civil rights organization of, by and for deaf and hard of hearing individuals in the United States of America. Established in 1880, the NAD was shaped by deaf leaders who believed in the right of the American deaf community to use sign language, to congregate on issues important to them, and to have its interests represented at the national level. These beliefs remain true to this day, with American Sign Language as a core value. The advocacy scope of the NAD is broad, covering a lifetime and impacting future generations in the areas of

The National Association of Councils on Developmental Disabilities

The National Association of Councils on Developmental Disabilities (NACDD) is a national membership organization representing the 55 State and Territorial Councils on Developmental Disabilities. NACDD is a 501(c) 3 organization with the purpose of promoting and enhancing the outcomes of our member councils in developing and sustaining inclusive communities and self directed services and supports for individuals with developmental disabilities.

National Arts and Disability Center

The National Arts and Disability Center (NADC) is a project of the University of California: their mission is to promote the full inclusion of audiences and artists with disabilities into all facets of the arts community. The NADC is a leading consultant in the arts and disability community, and the only center of its kind. Recipients of our technical assistance include museums, performing arts organizations, art centers, film and television companies and unions, universities and colleges, national publications, disability specific groups, artists with disabilities, arts educators, students, arts administrators and government policy makers.

Institute for Community Inclusion

The Institute for Community Inclusion offers training, clinical, and employment services, conducts research, and provides assistance to organizations to promote inclusion of people with disabilities in school, work, and community activities. For over 40 years, the Institute for Community Inclusion (ICI) has worked to ensure that people with disabilities have the same opportunity to dream big, and make their dreams a fully included, integrated, and welcomed reality. As a leader not only in Massachusetts, but also nationally and internationally, the Institute for Community Inclusion strives to create a world where all people with disabilities are welcome and fully included in valued roles wherever

Disability.gov

Disability.gov is a federal government website that provides an interactive, community-driven information network of disability-related programs, services, laws and benefits. Through the site, Americans with disabilities, their families, veterans, educators, employers and many others are connected to thousands of resources from federal, state and local government agencies, educational institutions and non-profit organizations.

TASH- Disability Advocacy Worldwide

TASH is an international leader in disability advocacy. Founded in 1975, TASH advocates for human rights and inclusion for people with significant disabilities and support needs – those most vulnerable to segregation, abuse, neglect and institutionalization. TASH works to advance inclusive communities through advocacy, research, professional development, policy, and information and resources for parents, families and self-advocates. The inclusive practices TASH validates through research have been shown to improve outcomes for all people. TASH is governed by a board of directors and is supported by a network of members, volunteers, committees and chapter organizations. The TASH membership includes a diverse

Council of Parent Attorneys and Advocates

The Council of Parent Attorneys and Advocates’ mission is to be a national voice for special education rights and to promote excellence in advocacy. Their primary goal is to secure high quality educational services for children with disabilities. The Council of Parent Attorneys and Advocates (COPAA) is premised on the belief that the key to effective educational programs for children with disabilities is collaboration -as equals- by parents and educators. This is the premise of the Individuals with Disabilities Education Act (IDEA) and Section 504 of the 1973 Rehabilitation Act, the federal statutes that guarantee children with disabilities a free, appropriate

Council for Exceptional Children

The Council for Exceptional Children is an international community of professionals who are the voice and vision of special and gifted education. CEC's mission is to improve, through excellence and advocacy, the education and quality of life for children and youth with exceptionalities and to enhance the engagement of their families. The Council for Exceptional Children is a premier education organization, internationally renowned for its expertise and leadership, working collaboratively with strategic partners to ensure that children and youth with exceptionalities are valued and full participating members of society. As a diverse and vibrant professional community, CEC is a trusted

The Council on Quality and Leadership

The Council on Quality and Leadership is leader for person-centered supports and services for people with disabilities, people with mental illness and older adults. Through our services, publications and public presence, we establish real connections between theory and practice and help organizations and systems take the important step from innovative ideas to everyday action. Our goal is to be partners and mentors to our customers, showing them how they can become even better at ensuring that all people lead lives of dignity and quality.

Consortium for Citizens with Disabilities

The Consortium for Citizens with Disabilities is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The Consortium for Citizens with Disabilities (CCD) envisions an American society in which all individuals, aided by an enabling government, have the freedom and opportunity to exercise individual decisions concerning their own lives, welfare and personal dignity. CCD envisions a society in which communities are fully accessible to all individuals with disabilities and their families, where

Best Buddies International

Best Buddies is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities (IDD). Founded in 1989 by Anthony Kennedy Shriver, Best Buddies is a vibrant, international organization that has grown from one original chapter to almost 1,500 middle school, high school, and college chapters worldwide. Best Buddies programs engage participants in each of the 50 United States, and in 50 countries around the world. Best Buddies’ seven formal programs – Best Buddies Middle Schools, High Schools, Colleges, Citizens, e-Buddies, Jobs

Benefits.gov

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. The program's mission is to reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information. The site's core function is the eligibility prescreening questionnaire. Answers to the questionnaire are used to evaluate and compare with the eligibility criteria for more than 1,000 Federally-funded benefit and assistance programs. Each program description provides citizens with the next steps to apply for any benefit program of interest.

Autism Support Network

The mission of Autism Support Network is to connect, guide and unite. Their goal is to short-cut the uphill battle individuals and families undertake when faced with autism – whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information. Their support community collectively pools global knowledge and support from all those touched by ASD. Designed as a place by those living with ASD, for those with ASD, and those seeking social connection, peer guidance, and a feeling of community with those that understand.

Autism Society of America

The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. They do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.

Association of Assistive Technology Act Programs

The Association of Assistive Technology Act Programs (ATAP) is a national, member-based organization, comprised of state Assistive Technology Act Programs funded under the Assistive Technology Act (AT Act). ATAP was established in 1997 to provide support to state AT Program members to enhance the effectiveness of AT Programs on the state and local level, and promote the national network of AT Programs. ATAP facilitates the coordination of state AT Programs nationally and provides technical assistance and support to its members. ATAP represents the needs and interests of the state AT Programs and is the national voice of the AT Programs.

ADA Portal

The ADA Document Portal Allows users to search a collection of ADA-related documents that have been produced by federal agencies and organizations receiving federal funds.

The Association of University Centers on Disabilities (AUCD)

The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. These programs are located in every U.S. state and territory and are all part of universities or medical centers and serve as a bridge between the university and the community, bringing together the resources of both to achieve meaningful change. AUCD programs also train the next generation of leaders in disability-related research, training, service delivery, and policy advocacy to insure that this essential work continues.

American Association of People with Disabilities

The American Association of People with Disabilities is the nation's largest cross-disability organization. They promote equal opportunity, economic power, independent living, and political participation for people with disabilities. Their members, including people with disabilities and their family, friends, and supporters, represent a powerful force for change. Over 50 million Americans with disabilities and their supporters have the power to achieve full civil rights for all. They are powered by their vision of a community whose voice is heard through the halls of government, in our culture, and in our communities.

Charter Schools Excluding Students with Significant Disabilities in Florida

A new report by the Miami Herald and StateImpact Florida – a National Public Radio initiative -  confirms CEC’s ongoing concern that many charter schools are failing to serve students with disabilities, particularly students with significant disabilities

Consortium for Citizens with Disabilities

The Consortium for Citizens with Disabilities is a Coalition of national consumer, advocacy, provider and professional organizations headquartered in Washington, D.C. Since 1973, the CCD has advocated on behalf of people of all ages with physical and mental disabilities and their families. CCD has worked to achieve federal legislation and regulations that assure that the 54 million children and adults with disabilities are fully integrated into the mainstream of society. CCD does this by: Identifying and researching public policy issues, developing testimony and policy recommendations and encouraging innovative solutions to public policy concerns. Educating members of Congress in an effort

Ad Hoc Developmental Disabilities Task Force

The Ad Hoc Developmental Disabilities Task Force monitors the Developmental Disabilities Bill of Rights Act and the administration of the program through the Administration on Developmental Disabilities. The Act is authorized every three years and regulations and policy guidelines are developed based on the statute. The Task Force also reviews other developmental disability related issues.

AAIDD

The American Association on Intellectual & Developmental Disabilities promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.

The Gift of Knowledge

It’s been a couple of years now that I’ve been blogging about special education legal issues.  Unfortunately, the realities of juggling a busy law practice, a family, and other professional commitments don’t allow me to do it enough, and I continue to ye

University Students Design Tray to Fit Most Walkers and Wheelchairs

THE GRAND RAPIDS PRESS  At 5 years old, Dakota Tomac wants to do things himself. He doesn’t want his cerebral palsy to require others to carry his book or figure out how he will get his lunch on the table.   His independent spirit got a boost with a tool created by Grand Valley State University students, thanks to an idea from a physical therapist at the Kent Intermediate School District.   The students made a tray that fits onto Dakota’s walker so he could move around at school and carry his iPad, which helps him communicate.   “It’s so

Sprout

For more information about incredible films related to disabilities, check out Sprout, programs for people with disabilities. Sproutflix features films from around the world that focus on the lives and accomplishments of people with developmental disabilities.

Certain Proof – A Question of Worth

Certain Proof: A Question of Worth is a feature documentary about three children living with significant communication and physical disabilities, who struggle against the public schools in an emotional battle to prove their worth.

Hold My Hand

The documentary,"Hold My Hand", follows Eliza Schaaf, a young woman with Down Syndrome, who was raised under the principle of inclusion. Schaaf was dropped from her ceramics class by Southern Oregon University. SOU sited she required excessive supervision and limited her classmates time for instruction. Schaaf denies this and her classmates signed a petition refuting this fact and asked that she be reinstated. "Hold My Hand",made by four students at Chapman University, Ruby Stocking, Bobby Moser, James Parker, and Virginia Thomasi, looks at the impact of being excluded from her class, but also covers the importance of inclusion for all members of society. Schaaf's website offers

IDEA Money Watch Responds to Something’s Got to Change

In June 2011, the American Enterprise Institute (AIE) released “Something Has Got to Change: Rethinking Special Education,” a paper that examines special education spending and seeks to offer  practical solutions to “tame out-of-control special education spending while serving special-needs students better.” IDEA Money Watch responds to the points AIE brings up. AEI also provided a teleconference during which the paper’s author, Nathan Levenson, presented a brief overview and responded to questions. Full Article at IDEA Money Watch

Best and Worst States for Disability Services

UCP's invaluable analysis of Medicaid for individuals with intellectual and developmental disabilities reports that progress is being made for community inclusion, but every state has room for improvement. According to the report Vermont provides the best services for individuals with disabilities and Missippi provides the worst. There are still approximately 58,000 individuals with intellectual and developmental disabilities living in facilities with 16 or more beds.Too much money is being spent isolating people in these large instititutions and the waiting lists for services has also increased dramatically, up 56% from 2005 to 2009. Top ten states in terms of quality of

The Pearls Project-Teaching Empathy

Students at Ridgewood High School were shown photos of young people with genetic disorders and told not to look away. The unusual lessons are part of a new effort, called the Pearls Project, to promote tolerance and empathy in a school culture where being different can mean social exile. Ridgewood teachers developed it this year in partnership with Positive Exposure, a nonprofit group in New York City founded by Rick Guidotti, a fashion photographer. “Genetic conditions are depicted as images of sickness and sorrow — it’s always a kid up against the wall in a doctor’s office,” Mr. Guidotti said.

Thank You, Steve Jobs

Thank you Steve Jobs for thinking differently so that so many others may express their thoughts. Apple's products have changed the lives of so many people with disabilities - CP, autism, dyspraxia, motor planning issues, developmental delays, neuromuscular disorders, expressive language disorders, vision impairments. My son uses his iPad and iPod as a communication device, a way to surf the internet, watch youtube, and connect with friends. Until Apple came out with the ipod, the choices in AAC devices were very expensive ( the ones we looked at were between $5,000 and $8,000 and heavy- too heavy for someone that

The Importance of Special Needs Trusts

One of the most important move parents of children with special needs can make is to set up a special-needs trust, also known as a supplemental-needs trust. This is crucial, financial planners say, because a child can be denied significant Medicaid and Social Security benefits if more than $2,000 of assets are in his or her name, excluding a residence, car and basic personal items. Proper planning is key for funding for special-needs trusts for children with special needs. Funding for the trusts typically comes mainly from the parents' life insurance. Money can also be placed in a special-needs trust

By |December 14th, 2011|Categories: Articles, Finances, Parenting|Tags: , , |0 Comments

Who’s Leading Your Individualized Education Program (IEP)? The Importance of Self Advocacy – Part 2 of 2

This is Part 2 in a two-part blog post by Emalie Fogg provides guidance and resources for youth on how to get involved and take a lead in their own Individualized Education Program (IEP).  When we’re growing up, our families, teachers, and adults make most of the decisions about our lives. As we become teenagers it’s important to start participating in the decision-making so that as we near adulthood, we’re ready to decide things for ourselves. No one knows better than you do what you want for your life today and in the future (your goals), what you’re good at

By |December 12th, 2011|Categories: Advocacy, Articles|Tags: , , , |0 Comments

The Advocacy Center

The Advocacy Center empowers individuals with disabilities and their families to advocate for themselves and realize their personal goals. Together we build strong, inclusive communities by increasing the ability of community members to support and value all individuals.

Wretches & Jabberers Tampa Screening

The " World Intelligence Magnified Tour" took Tampa by storm. The screenings of Wretches & Jabberers the weekend of June 10 were an enormous success.

National Council on Disability Report Examines How to Improve Access to Health Care, Special Education and Services for USMC Family Members with Disabilities

WASHINGTON, Nov. 28, 2011 /PRNewswire-USNewswire/ -- On November 28, the National Council on Disability (NCD) will release "United States Marine Corps Exceptional Family Members: How to Improve Access to Health Care, Special Education, and Long-term Supp

By |November 28th, 2011|Categories: Advocacy, Articles, Politics|Tags: , , |0 Comments

Ollibean Art for Change: Wretches & Jabberers Screening and Q & A at Tampa Theatre

Academy Award winner, Gerardine Wurzburg's documentary, "Wretches & Jabberers ", Screening and Q & A at Tampa Theatre . The rockstars of self advocacy, Tracy Thresher and Larry Bissonnette take Tampa by storm, shattering misconceptions of autism and intelligence.

The King’s Speech

We love this beautiful movie based on the true story of King George VI. After the death of his father King George V (Michael Gambon) and the scandalous abdication of King Edward VIII (Guy Pearce), Bertie (Colin Firth) who has suffered from a debilitating speech impediment all his life, is suddenly crowned King George VI of England. With his country on the brink of war and in desperate need of a leader, his wife, Elizabeth (Helena Bonham Carter), the future Queen Mother, arranges for her husband to see an eccentric speech therapist, Lionel Logue (Geoffrey Rush). After a rough start,

Go to Top