It is very hard to have confidence in my abilities when all my life, when people meet me, the first reaction is a mix of pity, disinterest, ableism, even disgust. If the person knows my work, they might react with disbelief: “how can she be the one who wrote those words?”
I am who I am, I look the way I look. If today I have friends who support me, help me, listen and talk to me, and teach me through shared experiences; if I have these friends by my side, then I am not the problem; and the solution is acceptance.
Here is the poem:
Acceptance
This is how you will see me
As I approach you for the first time
I will look distracted, uninterested
Maybe I will be in a wheel chair
I will seem aloof to you.
But know this:
Despite my slow motion body
Despite my wandering eyes
I will be taking things in
Absorbing my surroundings
Getting used to the environment.
If a mild melt down
Or overburden anxiety
Does not occur then,
I will be curious about you
Inside my brain I will be very alert.
The next moment
As I get close to you
I might look a little “silly”.
My tongue might be out of my mouth
I could bite my fingers
I will probably drool a little.
Know this:
My emotions control my actions
– Sometimes.
If I am too anxious
If I am too happy
I do things that may seem
Strange
Weird
Funny
Silly
(the drooling is a side effect of anti-seizure medication).
Then we will be very close
And that’s when we’ll meet
My eyes might not look directly at you
(I sometimes use peripheral vision)
That’s because I am shy
Or anxious
Or overwhelmed
Maybe I had a seizure
I want you to know
It is not disinterest
I will do my best to show you that
There is more of me
Than it might be visible to you
If we start to talk
Be assured that I’ll be listening
I’ll need some time to think
A pause to calm the emotions
Before I type some words
My thoughts and impressions
Meeting you will be exciting
An extraordinary event
But despite my great desire
To be the best I can
To show you all I am
To be heard and to listen to you
We might need more than one meeting
We might need to meet again
To become true friends
To move from first impressions
To lasting understanding – and mutual acceptance
Copyright 2012 by Amy Sequenzia
We should all be accepted!