If I keep silent, quiet and passive
You say I’m an angel.
When I find my voice and type what I think
You call me hateful.
I have opinions and I can analyze
But if I point out your mistakes
You deem me nonsensical.
If my impairments are too visible
The pitiful looks,
The inpatient sighs
Are all you have to offer.
You ask for an explanation
But you never listen.
You say I can choose,
I can type my needs
If it is food or a trivial question.
But then I type an opinion,
An insight on a complex issue
You ignore me
Because “look at her, do you think she knows?”
This is an example of how I have to be the “perfect” person in order to have some value in the eyes of some. I have to be super human, prove my every action, or I shall be treated as less than human.
I am impaired and disabled, and if I keep quiet and silent, I will be “cared for”. Because disabled people who never complain, who live in passivity are forever “angels”.
I can type and some will say I am really amazing. Until I disagree with them. Then I become a fake because if you look and move like me, you cannot develop critical thinking.
Sometimes I have meltdowns and I can’t help it. But some “very important people” call me difficult because I can’t feel things like everybody else and the overwhelming environment is “not that bad”.
According to some I can’t feel. I can’t feel the ember penetrating my skin. I didn’t cry and my face was a blank. They knew me so well – I roll my eyes, metaphorically.
I know I can type and I have a plan. It is a vision, a goal and I work to achieve it. Whatever will happen, will happen on my time. It is MY agenda, nobody else’s. But I hear the voices of dismissal: “fake, fake, fake!”
Here what I am to the ones with no vision, to the ones who don’t dare to see the whole picture:
A silent angel
A pitiful soul
A poor, damaged, eternal child
A nasty brat
A difficult, impossible person
A compliant, agreeable “sweetie”
A know-nothing hoax
A fake.
But I am none of that, and I am more:
I am ME.
And here is what you are to me:
Someone whose agenda does not change the plans I have for myself.
A hurdle I will leave behind.
Forgettable.
Amy, yes. I needed to hear this for my own reasons. I’ve been silencing myself and I need to stop it. You are important to me.
Thank you Lynn. I hope you can let your voice be loud
Amy, a great statement. Bravo.
Thank you dean Biklen! See you in a few weeks!
Really amazing, statement, Amy. I don’t know you, but thank you!
Got your text Ems… stay safe… Luv U…..unc
this is great amy!
Nicely said Amy. You speak for so many!