Mitochondrial Disease: Jeans for Genes
Many of us struggle with not knowing how we can make an impact on Rare Disease. Whether we are faced with the day-to-day difficulties of a rare disease itself, or we are passerby’s watching others’ demanding fight – many of us find ourselves scratching o
Foundation for Mitochondrial Medicine
The Foundation for Mitochondrial Medicine pledges to support the development of the most promising mitochondrial disease research and treatments of the many forms of mitochondrial dysfunction. Formed in 2005 and renamed in 2010, their Atlanta-based non-profit organization financially supports the first FDA-approved drug treatments that began in early 2010. Stated simply: they're funding the cures. The foundation's stewards and founders are parents of patients and medical experts. The Foundation for Mitochondrial Medicine was created to accelerate the development of the most viable mitochondrial disease treatments and therapies.
The United Mitochondrial Disease Foundation
The UMDF's mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. The UMDF's website provides the latest news and information about issues relating to mitochondrial disease research and information. The UMDF also holds an annual international symposium that brings together the best physicians and researchers for patients and family members to gain valuable information. The UMDF also provides information about local fundraisers and educational programs. The UMDF advocates on the national level and empowers members to advocate on the local level regarding issues of medical
Mito Action
MitoAction's vision is to create a community of support that reaches every child, adult, and caregiver affected by a mitochondrial disease. Effective awareness and advocacy will guarantee that every patient has access to specialized care and a network of support and information that improves the journey for every individual affected.
