Resource: Angelman Syndrome Foundation

Angelman Syndrome Foundation https://www.angelman.org Angelman Syndrome Foundation is a national 501(c)(3) organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman syndrome as possible.    

By |January 22nd, 2017|Categories: Resources|Tags: , , , |0 Comments
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The Benefits of Real Food

Guest post from Chasing the Spring's Dani Johnson on the life changing benefits of a blenderized diet made for her daughter. We were drawn to the great recipes Dani shares as well as her experience of learning from adult g-tube users.

Judith Snow ~ Relationships & Inclusion

"The research shows that when a child who is not academically gifted is included in a regular school, not only do the academics improve across the school, and I did say that, I didn’t say “in the classroom”, I said “across the school”, not only do the academics improve, but drug use and violence goes down."

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I Care By

If you care, you act. Do something positive to help a young person with emotional challenges.

American Society for Deaf Children

We believe deaf or hard-of-hearing children are entitled to full communication access in their home, school, and community. We also believe that language development, respect for the Deaf, and access to deaf and hard-of-hearing role models are important to assure optimal intellectual, social, and emotional development. We believe that consideration of communication opportunities for deaf and hard-of-hearing children should be based on facts. Research consistently demonstrates that fluency in sign language and English offers deaf children (including those with cochlear implants) and hard-of-hearing children optimal opportunities for social and academic success, and thus both should be part of their language-rich

Judith Snow

Judith Snow, MA is a social innovator and an advocate for Inclusion – communities that welcome the participation of a wide diversity of people. Inclusion is an opportunity for EVERYONE!

Much Needed Resource: “We Are Like Your Child”

"We are like your child. Your child is like us. And we may have difficulties, we are disabled--but there is no denying that we are also awesome."

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Thinking Person’s Guide to Autism

We love Thinking Person's Guide to Autism, a community of autistics, professionals, and parents sharing what you need to know about autism.

  • Autism Acceptance Month, Acceptance Is An Action

Autism Acceptance Month

"Acceptance is an action." Autism Acceptance Month from the brilliant folks at ASAN, is beyond incredible. We could read the About page again and again- and probably will. Check it out. Take the Pledge. What is Autism Acceptance Month? Autism Acceptance Month is about challenging ignorance, prejudice, fear, and hysteria about autism and autistic people. Autism Acceptance Month spreads the word that autism is both a neurological disability and a natural part of human diversity, and centers the voices of autistic people in the conversation about us. Autism Acceptance Month promotes acceptance of autistic people as family members, sons, daughters, spouses, friends, classmates, co-workers,

Great Resource: Musings of an Aspie

who and what some things about me was 42 when I discovered that I have Asperger’s Syndrome. When I visit the zoo, I always leave thinking that maybe I was a primatologist in another life. Or a monkey. I’ve been my own boss since I was 18. Statistics fascinate me. I own three pairs of running shoes and no dress shoes. Somehow I managed to find the one person in 7 billion who understands me and marry him. And stay married for 25 years. The single most frequent response I got from professors: “I never thought of it that way.” Usually

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We Love Emma’s Hope Book

Ariane Zurcher is definitely one of our favorite writers. She writes with exceptional honesty, insight, and beauty.

Krip-Hop Nation: Music, Advocacy and Education

"Where were the other people who looked like me as a Black disabled young man? With this continuous question of race and disability along with my love of poetry and music, I started to question the arena of music and performance around the representation of musicians with disabilities, especially disabled musicians of color." - Leroy F. Moore, Jr.

Understanding Hearing Ability

What does speech sound like to deaf and hard of hearing children? Do deaf children hear anything? Some deaf children do in fact have no measurable hearing, but most children have some degree of residual or remaining hearing. Every child is unique in the sounds he or she can hear and his or her ability to understand them. No two children are alike. Two children who perform similarly on their hearing tests may understand or use sounds in very different ways. It is important never to assume how a student should or will communicate because of hearing test results. Whether

Ido In Autismland

We love Ido In Autismland, a blog by Ido a young autistic advocate who types to communicate.

Awesome Resource : Tiny Grace Notes (AKA Ask an Autistic)

We absolutely love Tiny Grace Notes. Check it out, you will too. Elizabeth (Ibby) Grace is brilliant, kind, and all around wonderful. Got a question about autism? Send it to Dear Ibby! Ibby is an education professor, a researcher, a mom, and Autistic. There is something about Ibby. She is one of those people who are easily able to convey warmth, respect, goodness, and so much information in  just in a couple of paragraphs. Read her blog, you'll see. But, carve out some time, you won't read just one.  

Raising Rebel Souls

We are huge fans of Raising Rebel Souls. Heather  is an incredible writer and advocate, and stood firmly with Henry:) Here's a bit about Raising Rebel Souls: Rebel Mommy: I am Rebel Mommy, also known as Heather. I have been given a lot. I am lucky in love. Yes, my hands are full, yes, I drink too much coffee, yes, my dishes are currently piled up and no, I am not a good housewife, but yes, I am a damn good Mother. I was born to do it. I swear to you, my life before my sons, was just me

  • National Center on Inclusive Education (NCIE) a priority area the University of the New Hampshire’s Institute on Disability

The National Center on Inclusive Education (NCIE)

The National Center on Inclusive Education (NCIE) at the University of New Hampshire’s Institute on Disability is a leader in the transformation of schools so that students of all abilities are successfully learning in their home schools within general education settings. Vision When students with disabilities are provided appropriate instruction and supports, they can learn grade-level general education curriculum, communicate in ways that are commensurate with their same-age peers without disabilities, have meaningful social relationships, and graduate from high school—college and career ready.  

Chromosome Disorder Outreach, Inc.

Chromosome Disorder Outreach, Inc. is a non–profit organization, founded, supported, and run by parents just like you. Our children are affected by a wide range of chromosome disorders, including deletions, duplications, trisomies, inversions, translocations, and rings. Sometimes these disorders are so unusual that doctors tell us, "You’re the only one out there." But now using our newly introduced web application we have the capability to specifically categorize chromosomal karyotypes and finally begin to understand more about the genes involved in each rare chromosome rearrangement. We hope to eventually improve specifically tailored treatments to help affected individuals.

National Federation of the Blind

With more than 50,000 members, the National Federation of the Blind is the largest and most influential membership organization of blind people in the United States.  The NFB improves blind people's lives through advocacy, education, research, technology, and programs encouraging independence and self-confidence.  It is the leading force in the blindness field today and the voice of the nation's blind.  In January 2004 the NFB opened the National Federation of the Blind Jernigan Institute, the first research and training center in the United States for the blind led by the blind.

Spectrum Society

Mission Spectrum Society’s mission is to support people with disabilities to experience full citizenship and genuine belonging in community. We are committed to continuous learning and improvement through research into leadership and best practice. As a service providing agency, our focus is on strengthening the capacity of individuals and their personal networks, augmenting rather than replacing natural supports. Vision Spectrum Society for Community Living believes that community is enriched by the presence and contributions of its citizens with disabilities. We believe that together we can create a world where all people are valued, their voices heard, their choices respected. Values

Purple

At Purple, we're dedicated to developing fast, easy and convenient communications solutions and services for Deaf and hard-of-hearing individuals and businesses using a variety of different platforms. As a leading provider of on-site interpreting services, video relay services (VRS), text relay services and video remote interpreting (VRI), Purple has built an excellent reputation for developing products and services that open communications between all people, regardless of differences in abilities, languages and locations. Because of our many innovations and firsts, including Internet relay, wireless relay, mobile communication apps, real local 10-digit number access for video and text relay customers and interpreting

MyVoice AAC

MyVoice is a new app, available for Apple and Android devices, that helps people with a variety of speech and language challenges communicate more quickly and easily. MyVoice has groundbreaking features like location-awareness, downloadable phrase books and wireless customization from any web browser. With its lifelike voices and beautiful interface, MyVoice is the affordable communication aid app you've been waiting for. MyVoice is changing the world, one voice at a time. It can be a vital aid for children and adults living with: • ALS • Autism Spectrum Disorders • Aphasia, Apraxia, Ataxia, Dysarthria • Brain Cancer • Cerebral Palsy

Alliance for Inclusion in the Arts

  The Alliance for Inclusion in the Arts is the nation’s leading advocate for full diversity as a key to the vitality and dynamism of American theatre, film, and television. We promote authentic dialogue about race, culture, and disability that embraces the complexity of underlying social and historical issues.  

SEN / ICT

The sen / ict directory began life in August 2011 to act as a directory for Special Educational Needs and Information Communication Technology Resources. Companies can showcase their business, the products they produce and services they provide. There are also hundreds of FREE online resources from fun/educational games, activities and printable resources to tools that help disabled adults and children use computers and the internet by adapting and adjusting their technology. The sen / ict directory aims provide a central location for all your favourite resources, as well as introduce you to new ones you might not have found otherwise for your child

AudioBookCloud

AudioBookCloud:Your Online Audio Library is an online audio book library collection of streaming audio books for public libraries. A subscription to AudioBookCloud gives your patrons UNLIMITED remote access to your audio book collection. Like our TumbleBookLibrary and TumbleReadables collections, AudioBookCloud are launched from a link on your library or school website. Your patrons can access the entire collection from any computer with an Internet connection. Your audio are never all checked out, never on hold. As many people can listen to the same book at the same time as you like!!! Here's how it works. Once you have previewed AudioBookCloud and are

TumbleBookLibrary

TumbleBookLibrary is an online collection of TumbleBooks � animated, talking picture books which teach kids the joy of reading in a format they'll love. TumbleBooks are created by adding animation, sound, music and narration to existing picture books in order to produce an electronic picture book which you can read, or have read to you. The TumbleBookLibrary is a collection of licensed titles from children's book publishers such as Simon & Schuster, Chronicle Books, Candlewick Press, Charlesbridge Press, Harcourt, Little Brown, Walker & Company, Lerner Books, and HarperCollins Publishers, amongst others. The TumbleBookLibrary provides enrichment to students who are reading independently with a variety of

University Center for Excellence in Developmental Disabilities (UCEDD) Georgetown University

The mission of the University Center for Excellence in Developmental Disabilities (UCEDD) is to promote self-determination, productivity, independence and inclusion of individuals with developmental and other disabilities across the life span, and in all aspects of community life. The Developmental Disabilities Assistance and Bill of Rights Act of 2000, P.L. 106-402, authorizes the University Centers for Excellence in Developmental Disabilities, Education, Research and Service (UCEDD). The University Centers for Excellence in Developmental Disabilities, Education, Research and Service (UCEDDs) are funded through the Administration on Developmental Disabilities (ADD) to provide leadership, advise federal, state and community policy makers about, and promote opportunities for people

The Center on Human Policy, Law, and Disability Studies

The Center on Human Policy, Law, and Disability Studies (CHPLDS) is an expansion of the Center on Human Policy, which was founded by Dr. Burton Blatt in 1971. The Center is a network of academic programs, centers, student organizations, and affiliated faculty whose research, teaching, and advocacy seeks to promote the rights of people with disabilities locally, nationally, and globally, and to facilitate a critical examination of disability as an aspect of diversity in society.  

Judy Endow

Judy Endow, MSW, maintains a private practice in Madison, Wisconsin, providing consultation for families, school districts and other agencies. Besides having autism herself, she is the parent of three now grown sons, one of whom is on the autism spectrum. Judy does workshops and presentations on a variety of autism-related issues, is part of the Wisconsin DPI Statewide Autism Training Team and a board member of both the Autism Society of America, Wisconsin Chapter and the Autism National Committee. In addition, Judy is a member of the Autistic Global Initiative (AGI), a program of Autism Research Institute.  

The Golden Hat Foundation

The Golden Hat Foundation is a non-profit organization dedicated to eliminating barriers for people with autism around the world, and creating an environment that holds these individuals as intellectually capable. The mission of the Golden Hat Foundation is the establishment of innovative campuses that offer people with autism the opportunity to learn to communicate effectively, receive an education, job training and enjoy recreational activities, all within a supportive social network. When given a suitable education and the means to communicate effectively, people with autism can truly realize their dreams.

Ralph James Savarese | essayist, poet, scholar, and activist

Ralph James Savarese is the author of Reasonable People: A Memoir of Autism and Adoption (Other Press 2007), which Newsweek called a “real life love story and a passionate manifesto for the rights of people with neurological disabilities.” It won the Independent Publishers Gold Medal in the category of health/medicine/nutrition, and a chapter was selected as a “notable essay” in the Best American Essays series of 2004.    

The National Institute on Deafness and Other Communication Disorders (NIDCD)

The National Institute on Deafness and Other Communication Disorders (NIDCD) is one of the Institutes that comprise the National Institutes of Health (NIH).NIH is the Federal government's focal point for the support of biomedical research. NIH's mission is to uncover new knowledge that will lead to better health for everyone. Simply described, the goal of NIH research is to acquire new knowledge to help prevent, detect, diagnose, and treat disease and disability. NIH is part of the U.S. Department of Health and Human Services. Established in 1988, NIDCD is mandated to conduct and support biomedical and behavioral research and research training

Think Inclusive — Where education meets advocacy…

Think Inclusive  is dedicated to inclusive schools and communities for everyone. Think Inclusive is a wonderful resource that promotes the full and authentic inclusion of people with disabilities in their school and communities through education and advocacy. Think Inclusive's founder,  Tim Villegas, has created a bridge between educators, parents, and advocates to promote ideas, innovation and inspiration to change our world to be more accepting and value each and every human being. Check out Tim's  guest posts for Ollibean  The Case for Inclusion: Does All Really Mean All? , The Case for Inclusion Part Two: What Does Inclusion Look Like?, and  The Case for

Don’t Play Me Pay Me

The Don't Play Me Pay Me campaign seeks to: Actively encourage disabled people to follow their chosen creative career path. Remove the barriers of prejudice that disabled actors face in finding work. Provide a forum for all disabled actors to encourage debate and empower them to have their voice heard and listened to. Encourage programme makers to feature disabled actors in all storylines to reflect real life. Encourage programme makers not to use non-disabled actors (even if a “name” means funding) to portray disabled characters. Encourage advertisers to feature disabled people in all advertising. http://www.dontplaymepayme.com  

Aid for Autistic Children Foundation

Aid for Autistic Children Foundation, Inc.™ mission: Reduce the financial burden on poverty stricken and disenfranchised families and caretakers coping with autism, through debt forgiveness, so attention and resources can be focused on creating a proper living and learning environment for their autistic loved one. How the Program Works After thorough evaluation of your completed application and assessment from our board and an independent consumer credit counseling service, the debt forgiveness will directly target the financial burden the family deems most obstructive in allowing them to focus solely on giving their autistic loved one the best tools and skills for

New Voices Foundation

New Voices is a short-term, intensive, individualized educational program for elementary-aged children with physical and communicative disabilities. Inclusion in all aspects of school, home and community life with transition back to a local school is our guiding philosophy. New Voices will: · Provide an educational program to increase literacy and communication skills (following the NC Standard Course of Study) · Equip and support students in the most advanced communication technology appropriate to their unique needs · Provide specialized, in-depth assessment and intervention · Provide supplemental healthcare maintenance and support, and ensure each child has a medical home · Maximize student’s

Center for Literacy and Disability Studies at UNC

The Center’s mission is to promote literacy and communication for individuals of all ages with disabilities. It is the belief of the CLDS that disabilities are only one of many factors that influence an individuals ability to learn to read and write and to use print throughout their life and across their living environments.All individuals, regardless of their abilities or disabilities, have the right to an opportunity to learn to read and write in order to increase and enhance their educational opportunities, vocational success, communicative competence, self-empowerment capabilities, and independence.

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SoulTouchin’ Experiences

Keith Jones & SoulTouchin' Experiences  SoulTouchin' Experiences is a Resource We Love! SoulTouchin' Experiences is an endeavor founded on the belief that in order to build a stronger community, there must be a heart and soul commitment to those who need assistance in order to begin caring for themselves and in turn caring for others. This is achieved through collaborative partnerships and progressive advocacy efforts, aimed at community empowerment along with systemic policy change for persons with and without disabilities on a local and national leve.l Keith P. Jones, started SoulTouchin' Experiences to bring a perspective to the issues

E.A.S.E. Sri Lanka

E.A.S.E. Sri Lanka  E.A.S.E. campaigns to educate the public on the rights and the abilities of people with disabilities. They do presentations to interested groups, workshops targeting parents and professionals and disseminate knowledge of alternative communication techniques. Most importantly E.A.S.E. changes people's minds about what is possible for a person with significant disabilities. Chandima is a powerful voice for the hidden competencies of people with disabilities. After his presentation “On Autism” Dr. Shavindra Dias, Psychiatrist and Lecturer, Dept. of Psychiatry, Faculty of Medicine, University of Peradeniya said; “We have been walking in darkness you have enlightened us. You are

UNH Institute on Disability

The Institute on Disability/UCED (IOD) at the University of New Hampshire was established in 1987 to provide a coherent university-based focus for the improvement of knowledge, policies, and practices related to the lives of persons with disabilities and their families.

Broadreach Training and Resources

Norman Kunc and Emma Van der Klift have spent the last 25 years working to ensure that people with disabilities are able to take their rightful place in schools, workplaces, and communities. Although they are well known advocates within the disability rights community, they prefer to think of themselves as modern day storytellers, continuing the long held tradition of using humour and narrative to initiate self-reflection and social change.

Hannah’s Buddies

The Hannah's Buddies Charity Classic began in 2000 with John Bell of Widespread Panic deciding to help his goddaughter and tens of thousands of children in their fight against SMA. Today, the golf tournament, silent/auction and concert lineup attracts more than 2,000 participants and has raised nearly $2 million for SMA research. Spinal Muscular Atrophy is a neuromuscular disease that affects between 1 in 6,000 and 1 and 20,000 births. Over time, SMA causes muscles to become weak and considerably smaller. On average, 1 in 40 people are genetic carriers.

Foundation for Mitochondrial Medicine

The Foundation for Mitochondrial Medicine pledges to support the development of the most promising mitochondrial disease research and treatments of the many forms of mitochondrial dysfunction. Formed in 2005 and renamed in 2010, their Atlanta-based non-profit organization financially supports the first FDA-approved drug treatments that began in early 2010. Stated simply: they're funding the cures. The foundation's stewards and founders are parents of patients and medical experts. The Foundation for Mitochondrial Medicine was created to accelerate the development of the most viable mitochondrial disease treatments and therapies.

The United Mitochondrial Disease Foundation

The UMDF's mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. The UMDF's website provides the latest news and information about issues relating to mitochondrial disease research and information.  The UMDF also holds an annual international symposium that brings together the best physicians and researchers for patients and family members to gain valuable information.  The UMDF also provides information about local fundraisers and educational programs.  The UMDF advocates on the national level and empowers members to advocate on the local level regarding issues of medical

Mito Action

MitoAction's vision is to create a community of support that reaches every child, adult, and caregiver affected by a mitochondrial disease. Effective awareness and advocacy will guarantee that every patient has access to specialized care and a network of support and information that improves the journey for every individual affected.

By |December 28th, 2011|Categories: General, Medical, Resources|Tags: , , , |0 Comments

Office of Rare Diseases

The ORDR Web site aims to answer questions about rare diseases and the activities of the ORDR for patients, their families, healthcare providers, researchers, educators, students, and anyone with concern for and interest in rare diseases. The site provides information about ORDR-sponsored biomedical research, scientific conferences, and rare and genetic diseases. It also serves as a portal to information on major topics of interest to the rare diseases community.

Epilepsy Foundation

The Epilepsy Foundation of America® is the national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure.

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Including Samuel

Before his son Samuel was diagnosed with cerebral palsy, photojournalist Dan Habib rarely thought about the inclusion of people with disabilities. Now he thinks about inclusion every day. Shot and produced over four years, Habib’s award-winning documentary film, Including Samuel, chronicles the Habib family’s efforts to include Samuel in every facet of their lives. The film honestly portrays his family’s hopes and struggles as well as the experiences of four other individuals with disabilities and their families. Including Samuel is a highly personal, passionately photographed film that captures the cultural and systemic barriers to inclusion.

The Inclusive Class

  We are crazy about the Inclusive Class! Nicole Eredics is pretty incredible, and her blog and podcasts are informative, interesting, and always just what we need. The inclusive classroom best demonstrates that message as it begins with the belief that all children belong. Each child can demonstrate and achieve success, in various ways, according to their abilities, strengths and areas for growth. Inclusive Class' Livebinder has an abundance of resources.

Paula Kluth: Toward Inclusive Classrooms and Communities

This website is dedicated to promoting inclusive schooling and exploring positive ways of supporting students with autism an other disabilities. Most of Paula Kluth's work involves collaborating with schools to create environments, lessons,  and experiences that are inclusive, respectful, and accessible for all learners.

Wrightslaw

Wrightslaw's mission is to provide parents, advocates, educators, and attorneys with accurate, up-to date information about special education law and advocacy so they can be effective catalysts. * Information for parents about their rights and responsibilities * Information for teachers about professional training so they can meet the diverse needs    of their students * Information for advocates about laws, regulations, and advocacy strategies * Information for attorneys who want cases, pleadings, and tactics and strategies

Office of Special Education Programs

The Office of Special Education Programs (OSEP) is dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21 by providing leadership and financial support to assist states and local districts. The Individuals with Disabilities Education Act (IDEA) authorizes formula grants to states, and discretionary grants to institutions of higher education and other non-profit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development and parent-training and information centers. The Individuals with Disabilities Education Improvement Act of 2004 was signed into law by President George W. Bush on December 3, 2004. As the nation's special education law, IDEA serves approximately 6.8 million children and

Office of Special Education and Rehabilitative Services

The Office of Special Education and Rehabilitative Services (OSERS) understands the many challenges still facing individuals with disabilities and their families. Therefore, OSERS is committed to improving results and outcomes for people with disabilities of all ages. OSERS supports programs that serve millions of children, youth and adults with disabilities. OSERS is comprised of the Office of the Assistant Secretary (OAS) and three program components: the Office of Special Education Programs (OSEP), theNational Institute on Disability and Rehabilitation Research (NIDRR), and theRehabilitation Services Administration (RSA).

US Department of Education

The mission of the U.S. Department of Education is to promote student achievement and preparation for global competitiveness by fostering educational excellence and ensuring equal access. It engages in four major types of activities: Establishes policies related to federal education funding, administers distribution of funds and monitors their use. Collects data and oversees research on America's schools. Identifies major issues in education and focuses national attention on them. Enforces federal laws prohibiting discrimination in programs that receive federal funds.

US DOE Associations and Organizations Resource Page

The Education Resource Organizations Directory (EROD) contains information on more then 3,000 national, regional and state education organizations and associations. The directory helps you identify and contact these organizations that provide information and assistance on a broad range of education-related topics.

World Institute on Disability

The mission of the World Institute on Disability (WID) in communities and nations worldwide is to eliminate barriers to full social integration and increase employment, economic security and health care for persons with disabilities. The World Institute on Disability (WID) creates innovative programs and tools; conducts research, public education, training and advocacy campaigns; and provides technical assistance. The World Institute on Disabilities spearheads initiatives in four main categories: health and wellness, employment and benefits, climate change and disaster prep, and international. The Values of  the World Institute on Disabilities are listed below. Working toward Equality The World Institute on Disability aspires to work

SABE – Self Advocates Becoming Empowered

Self Advocates Becoming Empowered (SABE) is the self-advocacy organization of the United States. Founded in 1990, we have been working hard for the full inclusion of people with developmental disabilities in the community throughout the 50 states and the world for 21 years. Our non-profit advocacy organization is run by a board of self-advocates representing 9 regions of the country.

RESNA

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) RESNA's goal is "To maximize the health and well being of people with disabilities through technology." The purpose of RESNA is to contribute to the public welfare through scientific, literary, professional and educational activities by supporting the development,dissemination, and utilization of knowledge and practice of rehabilitation and assistive technology in order to achieve the highest quality of life for all citizens.

Office for Civil Rights

The mission of the Office for Civil Rights is to ensure equal access to education and to promote educational excellence throughout the nation through vigorous enforcement of civil rights. An important responsibility is resolving complaints of discrimination. OCR also provides technical assistance to help institutions achieve voluntary compliance with the civil rights laws that OCR enforces. An important part of OCR's assistance is partnerships designed to develop creative approaches to preventing and addressing discrimination.

National Information Center for Children & Youth with Disabilities

NICHCY serves the nation as a central source of information on: ■disabilities in children and youth; ■programs and services for infants, children, and youth with disabilities; ■IDEA, the nation’s special education law; and ■research-based information on effective practices for children with disabilities.

National Fragile X Foundation

The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X.

The National Down Syndrome Society

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.

Kit( Kids Included Together)

Kids Included Together (KIT) specializes in providing best practices training for community–based organizations committed to including children with and without disabilities into their recreational, child development and youth development programs. Utilizing a blended learning style with interactive eLearning components, KIT’s services are provided free of charge to its 63 affiliate organizations representing over 304 sites in San Diego County. Since its inception in 1997, Kids Included Together (KIT) has trained over 25,000 youth providers in the best practices of inclusion. Over 15,000 children with disabilities have been co–enrolled with over 265,000 children without disabilities at KIT affiliate sites. 72% of

People First

People First is an organization run by and for people with learning difficulties to raise awareness of and campaign for the rights of people with learning difficulties and to support self advocacy groups across the country. People First promotes the social model of disability. This is a way of thinking about disability that says it is society that needs to change to include disabled people. We should not have to change to fit in with society. We are against the medical model of disability, which is the view that being disabled means there is ‘something wrong’ with you. Doctors and

The National Association of Councils on Developmental Disabilities

The National Association of Councils on Developmental Disabilities (NACDD) is a national membership organization representing the 55 State and Territorial Councils on Developmental Disabilities. NACDD is a 501(c) 3 organization with the purpose of promoting and enhancing the outcomes of our member councils in developing and sustaining inclusive communities and self directed services and supports for individuals with developmental disabilities.

Institute for Community Inclusion

The Institute for Community Inclusion offers training, clinical, and employment services, conducts research, and provides assistance to organizations to promote inclusion of people with disabilities in school, work, and community activities. For over 40 years, the Institute for Community Inclusion (ICI) has worked to ensure that people with disabilities have the same opportunity to dream big, and make their dreams a fully included, integrated, and welcomed reality. As a leader not only in Massachusetts, but also nationally and internationally, the Institute for Community Inclusion strives to create a world where all people with disabilities are welcome and fully included in valued roles wherever

TASH- Disability Advocacy Worldwide

TASH is an international leader in disability advocacy. Founded in 1975, TASH advocates for human rights and inclusion for people with significant disabilities and support needs – those most vulnerable to segregation, abuse, neglect and institutionalization. TASH works to advance inclusive communities through advocacy, research, professional development, policy, and information and resources for parents, families and self-advocates. The inclusive practices TASH validates through research have been shown to improve outcomes for all people. TASH is governed by a board of directors and is supported by a network of members, volunteers, committees and chapter organizations. The TASH membership includes a diverse

Council for Exceptional Children

The Council for Exceptional Children is an international community of professionals who are the voice and vision of special and gifted education. CEC's mission is to improve, through excellence and advocacy, the education and quality of life for children and youth with exceptionalities and to enhance the engagement of their families. The Council for Exceptional Children is a premier education organization, internationally renowned for its expertise and leadership, working collaboratively with strategic partners to ensure that children and youth with exceptionalities are valued and full participating members of society. As a diverse and vibrant professional community, CEC is a trusted

The Advocacy Center

The Advocacy Center empowers individuals with disabilities and their families to advocate for themselves and realize their personal goals. Together we build strong, inclusive communities by increasing the ability of community members to support and value all individuals.

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