I Resist by Amy Sequenzia
by Amy Sequenzia. I RESIST My resistance is an act of defiance. I defy the assumptions of an unlivable life Of a tragic existence Of dreams that would never become true. The world said I wouldn't - I defied. The world said I couldn't - I defied. The world says that I won't, that I can't - I resist. I defied the expectations, and I kept existing. I defied assumptions, and I celebrate my existence. I resist the ones who insist on erasing my existence. I defy the ones who deny me respect. My existence is an act of
A Vibrant Mind Hidden In Plain Sight
Martin Pistorius, author of the New York Times best-seller, Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body delivers one of the most impressive and thought provoking Ted Talks ever. Martin Pistorius' story serves as an urgent call to action to change our assumptions about verbal speech and intellectual capacity. It also reinforces the absolute necessity to treat each human with dignity and respect. How many people are waiting right now for someone to acknowledge their means of communication? How many are waiting for someone to talk to them respectfully and then to listen and watch for subtle movements-
Five Reasons You Need to Read ‘Ghost Boy’ by Martin Pistorius
For over ten years Martin Pistorius was trapped in his own body, fully cognizant, but unable to speak or move. He was surrounded by people who believed he was incapable of thinking and tried desperately to get just one person to notice. His story serves as a wake-up call for all of us to drastically change our assumptions about speech and intellectual capacity as well as the need to radically reform expectations and treatment of people with complex communication needs.
Autism and the Importance of Stabilization
As an autism consultant I am often asked how I sort out what to do when I see an autistic client who is struggling in school or in life. As an autistic person I know first hand if stabilization needs are not met, regardless of the supports in place an autistic person will struggle. Stabilization consists of three areas that interplay – internal and external regulation in the context of a positive relationship. Internal Regulation ~ Sensory Diet Internal regulation has many components, but for stabilization I look at the sensory system. When a person has an autism neurology
Cheryl Jorgensen
Dr. Cheryl Jorgensen's website is an excellent resource for information about inclusive education, best practices, differentiated instruction, universal design, curriculum adaptation, writing standards based IEPs, facilitating social relationships and much more!
Autism, Growing Up and Defining Friends
As an autistic, I have difficulties in the social arena in a multitude of ways. This was especially true during my growing up years. Even today as an adult, automatic social understanding is not my strong suit. I am, however, able to continually learn new things that enable me to do and be all I want in this world. Today, in my professional work I am able to provide some input to a variety of organizations and schools in regards to individuals with an autism label. One thing I consistently see regardless of where I go is the practice of
The Importance of Opportunity
Dillan Barmache, a 14 year old autistic student, delivers his powerful 8th grade commencement speech using his iPad and brings the crowd to their feet.
Being Disabled and in the Hospital
Being disabled and in hospitals is always scary because our lives is not valued as the lives of non-disabled. I was, in a way, lucky but the policies still need a lot of improvement.
Life for Lief ~ “See Me As Smart”
“Some people think that kids who are autistic can’t handle getting a transplant. Kids with autism can handle it.” Lief O'Neill
Having to Prove Competence
But now and then I meet someone who has. They believe they are doing a good thing, a noble thing. They believe they are helping. They believe that the people they are trying to help are living happier lives as a result. They believe this with all their heart. They give words, as though gifts, in grammatically correct sentences, believing people can be trained to say things and do things that will be understood by the majority of the population. They think that if they can force someone to stop moving their hands or legs or twirling bits of string
The Autistic Self Advocacy Network’s Third Annual Gala Honoring Henry Frost and Dr. Anne Donnellan
The Autistic Self Advocacy Network’s third annual gala and celebration at the National Press Club is November 12th. Henry Frost is the recipient of the 2013 Award for Service to the Self Advocacy Movement. Dr. Anne Donnellan will receive the 2013 Outstanding Ally Award. Henry Frost is a young Autistic student and Florida native who launched a successful, nationally recognized campaign to gain access to the public school in his own neighborhood .The campaign, I Stand With Henry, collected thousands of petition signatures and supporters across multiple social media platforms expressing support for Henry’s right to an equal education. Henry won
More Problems With Functioning Labels
Every now and then my autistic friends and I have to explain why functioning labels are not helpful, why it works against acceptance, why it is something created by non-disabled people who knew very little about how autistic brains work, who saw autistics as lesser people, and who saw the need to grade us in order to apply their wrong assumptions in an attempt to "fix" us. To them, "high-functioning” autistics were "better", easy to deal with. The "low-functioning” autistics required a lot more work because their lives was "misery". That's the first problem: lack of understanding of autism, leading
11 Year Old Jacob On The Right Thing To DO
I said a long time ago that I would not only be an real student In a school that supports me but also a self advocate for those lost in segregated settings echoing the dreaded lives of people in the world that are like me without the right supports.
The Power of Presuming Competence
"Thasya", a mini film by Dan Habib, highlights the power of presuming competence, differentiated instruction and augmentative and alternative communication. Inclusion works.
Being Where I Can Simply Be
After a three-day conference, I needed to sleep. I needed to sleep because I was dreamy, trying to keep the feeling of being in a place where I can be myself and also be a little bit like a star. Also, building community.
Ollibean Spotlight: Renee Salas
" Talk to people with disabilities. As many as you can: Adults, adolescents, kids. These people are the real experts on disabilities. These are the people that can tell you what life with a disability is like." Renee Salas
Because I Stood With Henry
Because I stood with Henry I am happier today and you should too. Henry not only got his rights, he proved that presumption of competence should be the default for every student.
Untitled
This is not directed at anyone in particular. It is about several people I’ve met throughout my life. I sometimes need to remind myself that being me means following my own agenda and not pleasing the ones who will not be part of my story.
PrAACtical AAC | Presuming Competence and Using The Least Dangerous Assumption
PrAACtical AAC's latest post on the importance of presuming competence.
Amy Sequenzia: Does it matter?
Should it matter that some of us are labeled intellectually disabled? Read the definitions, look at us in a realistic way and ask yourself; Does it matter? Aren’t we all worthy?
Ido In Autismland
We love Ido In Autismland, a blog by Ido a young autistic advocate who types to communicate.
It is About Respect
Respect for one another is one basic quality if we want to have meaningful conversations and relationships with other human beings. The ableism that disabled people experience is a form of disrespect.
Henry Frost on Inclusion on the Autistic Self Advocacy Network
Henry wrote about inclusion for the Autistic Self Advocacy Network, read the entire article here. Ari Ne'eman, president of the ASAN, had an enormous impact on Henry's decision to speak out about his desire to attend his neighborhood school. "I met Ari at theAutism Summer Institute. I wrote to him about my school and he understood. He helped me advocate for my rights. ASAN helped with the petition. He is also autistic. He is also my friend. I did not read about a person who liked being in a separate school away from their friends learning cooking for life skills
Ollibean Creed
The Ollibean Creed, our parenting true north for raising children with and without disabilities.
Presume My Competence
Really, this is number one. Please presume my competence.
Change Leader: Amy Sequenzia
"Presume competence. The same way I want people to assume I am competent, I also assume that others are competent".
Amy Sequenzia:Dear Mainstream Media
I am an autistic woman, non-speaking and I have many needs.Yes, dear mainstream media, I am the autistic supposedly too “low-functioning” to deserve to be heard. You pity me and you ignore the facts.
Change Leader Questionairre: Richard Attfield
Change you would you like to see in your lifetime? "The end of discrimination towards children/people with disability labels. And the human right of communication implemented fairly. " Richard Attfield
Ollibean Think Tank Member Amy Sequenzia
Amy Sequenzia is a poet and autistic self-advocate. Her writing is as beautiful and powerful as she is. She is an extraordinary voice in the disability rights community .
Amy Sequenzia: “Just Me”
Amy Sequenzia writes about rejecting society's many labels. Perceptions such as “super spectacular” autistic and “low-functioning” are equally harmful .
Happy Father’s Day to all of the amazing dads presuming competence
Happy Father's Day to all of the amazing dads and stepdads raising children who do things differently- who love and appreciate them for exactly who they are. Thank you for setting a great example every day, for treating your children with respect, so your child expects that same respect from others. Thank you for believing in your child's capabilities, for seeing their strengths, so they grow up seeing their own and expecting others to do the same. Thank you for advocating for your child’s rights, for showing them their rights are worth advocating for. Thank you for fostering your child's
Larry Bissonnette featured on National Geographic
The amazingly talented artist Larry Bissonnette, of Wretches Jabberers, will be featured on an upcoming episode of the National Geographic TV program, Taboo.Check it out.
Outing The Prejudice: Making The Least Dangerous Assumption
We highly recommend this brilliant article by Zach Rossetti and Carol Tashie on their interpretation of Anne Donnellan's concept of presuming competence, the least dangerous assumption.
Presuming Competence
This issue is very important to me because so many events and breakthroughs in my life happened because I was presumed to be competent. On the other hand, some events in my life were not so good because of a presumption of incompetence. The message of presumption of competence is of encouragement and acceptance. The presumption of incompetence sends a negative message, a message that says no matter how much one tries, success is out of reach. For disabled people, especially the ones who need more support, who can’t communicate through speech or who have other communication difficulties, this negative
Douglas Biklen: “Begin by presuming competence”
"Presuming competence is nothing less than a Hippocratic oath for educators. " Douglas Biklen
The Golden Hat Foundation
The Golden Hat Foundation is a non-profit organization dedicated to eliminating barriers for people with autism around the world, and creating an environment that holds these individuals as intellectually capable. The mission of the Golden Hat Foundation is the establishment of innovative campuses that offer people with autism the opportunity to learn to communicate effectively, receive an education, job training and enjoy recreational activities, all within a supportive social network. When given a suitable education and the means to communicate effectively, people with autism can truly realize their dreams.
I Believe by Will Scheutze
They had no idea how much I know and I didn’t think they believed I was smart. They thought that functional was more important for me to learn than academics. I didn’t like that, so I never did good work and so they thought I couldn’t sort forks. I know how functional is important in life, but nobody knows how important the academics are to me. I just want to be able to learn more and be able to go to college. I think I can do that. My teachers made me believe I can do that. I never believed
Dean Biklen honored in Kuwait with UNESCO/Emir Jaber al-Ahmed al-Jaber al-Sabah Prize
The United Nations Educational, Scientific and Cultural Organization (UNESCO) will present Syracuse University's School of Education Dean Douglas Biklen with the 2011 UNESCO/Emir Jaber al-Ahmed al-Jaber al-Sabah Prize, honoring him for his work promoting
Dr. Jill Bolte Taylor’s Stroke of Insight
Jill Bolte Taylor This TedTalk by Jill Bolte Taylor is a testimony to the power of presuming competence and importance of a nurturing, positive environment when learning. Neuroanatomist Jill Bolte Taylor woke up one morning and realized she was having a massive stroke. Bolte Taylor details her experience as her left brain slipped away and she was left without language, awareness of time. But, instead of being terrified she was intrigued and serene. As her left brain's stopped functioning she experienced the wonders of her right brain. She was fully present, connected to everything, thought in pictures, was inundated with sensory information
Amy Sequenzia “Be Proud of Who You Are”
"Feeling sorry for our disabilities means not accepting ourselves. I feel sorry because disabilities rights are still lacking, not because I am disabled. My message is, hopefully, about our strength and similarities". Amy Sequenzia
Stories From The Road | Chapter Eight | “On Common Ground”
"On Common Ground": While in Houston to speak to teens at "Stand Up! For Inclusion" a conference aimed at inspiring youth to make a difference in the world, Larry takes time to exchange creative ideas with a young artist.
Stories From The Road | Chapter Thirteen | “The End Of The Road”
"The End Of The Road": Larry and Tracy take time to reflect on their spiritual journey of disability awareness as they prepare for the theatrical premiere if their film, "Wretches & Jabberers" in New York City.
Stories From The Road | Chapter Nine | “Lightning Rods”
"Lightning Rods": The Vermonters meet up with Stephen Kuusisto, author of "Planet of the Blind". He interviews Larry and Tracy about the journey they took while making "Wretches & Jabberers" and shares a few insights of his own about his disability.
Stories From The Road | Chapter Ten | “Apple Store Adventures”
"Apple Store Adventures": While in New York City to promote the theatrical release of the film, the Vermonters take an opportunity to visit the Apple Store and try out the new iPad 2.
Stories From The Road | Chapter Seven | “Stand Up! For Inclusion”
"Stand Up! For Inclusion": Larry, Tracy, Harvey & Pascal speak to teens in Houston at the 26th Annual BBYO Lonestar Convention. The theme of this year's convention is "Stand Up! For Inclusion" to inspire youth to make a difference in the world around them.
Stories From The Road | Chapter Twelve | “All That’s Newsworthy”
From our friends at Stories from the Road, "All That's Newsworthy": Larry and Tracy join director Gerardine Wurzburg on the WPIX Channel 11 Morning News to discuss the upcoming theatrical release of their documentary 'Wretches & Jabberers'. The guys get the star treatment as they share their experiences with anchor Jim Watkins.
Stories From The Road | Chapter Eleven | “Teaching The Teachers”
"Teaching The Teachers": The Vermonters are invited to speak at Teachers College at Columbia University. A subway ride brings them to their destination as they find open minds, caring hearts, and an invitation for beer!
Stories From The Road | Chapter Six | “Mile-High Marvels”
"Mile-High Marvels": Larry, Tracy, Harvey & Pascal are asked to speak about their experiences making "Wretches & Jabberers" at the 35th Annual TASH Conference held in Denver, Colorado.
Stories From The Road | Chapter Five | “A Small World After All”
More from the amazing W & J and State of the Art/Dan Curl. "A Small World After All": Tracy invites Finnish friends Henna and Antti to join him at his monthly task force meeting at Community Developmental Services in Barre, VT. Here other people with autism advocate for people with communication challenges, quality of life initiatives, and increase public awareness.
Stories From The Road | Chapter Four | “Breakfast at Larry’s”
From our friends at Wretches & Jabberers, "Breakfast at Larry's": Larry invites visiting international friends Chammi, Antti & Henna to his home for a traditional Vermonter breakfast. With the help of his sister Sally, Larry hosts a meal not soon forgotten!
Stories From The Road | Chapter Three | “Wretches Reunite”Stories From The Road | Chapter Three | “Wretches Reunite”
"Wretches & Jabberers" co-stars from Finland and Sri Lanka descend upon Burlington, Vermont to visit Larry and Tracy and discuss how the film has impacted their lives.
Stories From The Road | Chapter One | “A Night With The Stars”
"A Night With The Stars": Larry, Tracy, Harvey & Pascal take to the road to promote a new documentary titled "Wretches & Jabberers" following their recent "World Intelligence Magnified Tour". Their first stop is Syracuse, NY where they meet with the Disability Cultural Center Initiative at Syracuse University and answer questions about the film.
Stories From The Road | Chapter Two | “Syracuse International Film Festival”
"Syracuse International Film Festival": Larry, Tracy, Harvey & Pascal on the road to promoting "Wretches & Jabberers" following their recent "World Intelligence Magnified Tour". Their second stop was Syracuse, NY is to present the film and their personal narratives at the Syracuse International Film Festival.
Carly Fleischman on 20/20
Carly Fleischmann, on 20/20 in 2009. Carly is diagnosed with autism and types to communicate. She is an incredibly intelligent self-advocate who is helping change how the world sees people who communicate differently. We are huge fans! Please check out her website for more information http://carlysvoice.com.