Communication, Interaction, and Autism Acceptance
If you've read enough of my writings, you know that I am an activist for the rights of all people - especially Autistic people - to communicate using whatever method it works for each individual. Communication and Autism Acceptance Everybody communicates. Communication doesn't need spoken words. Communication doesn't need words at all. Behavior is communication. Smiles, looks, our bodies - those are used for communication and they are as valid as any word. I can type, and I like to type. Even if typing is exhausting, I still use this method to speak out. Interaction and Autism Acceptance But I
Autistic, Non-Speaking, and “Intelligent”
Autistic, Non-Speaking, and "Intelligent" by Amy Sequenzia "Being Autistic is not the same as being intellectually disabled". "Non-speaking Autistics are intelligent". "When non-speaking Autistics learn how to type they can ‘prove’ their intelligence'". All the statements above are true. They are also incomplete. Statements like these are assumptions that do not help in making the world more respectful of all disabled people. They are incomplete because some non-speaking Autistics might also be intellectually disabled; Because some Autistic people might be Autistic AND intellectually disabled; Because while some typists are able to show that the assumptions about their IQ were
“Speechless”: A Comedy That Includes Disability
"Speechless" has been picked up by ABC. "Speechless”, is a new comedy series about a family with three children, one of whom is a teenager named JJ who is non-speaking and uses a wheelchair. Yes, a sitcom on ABC about a family with a child who has a disability and communicates using AAC (Augmentative and Alternative Communication). And JJ won't just be featured in one episode to teach the other characters a lesson, but is an integral part of every episode. Just like real life. If seeing a family like yours on a major network wasn't enough, JJ is being played
Parents, Are You Listening To Your Child?
As a non-speaking Autistic, I pay special attention to comments and statements made by parents of other non-speaking Autistics, especially children. Many times I see parents lamenting that they will never listen to their Autistic child say "I love you", or how much they long to hear those words.
Apple Celebrates Autism Acceptance Month with “Dillan’s Voice”
Autistic high school student Dillan Barmache, has so much to say and people around the world are listening. "Dillan's Voice" can be seen on Apple's website in celebration of Autism Acceptance Month. Apple has chosen Acceptance over Awareness and it's a big deal. Why ? Because 16 year old Dillan Barmache communicates using an iPad, you don't see that in the mainstream media every day. And because Autism Acceptance Month was started by #ActuallyAutistic people. ( You can read more about it's evolution from organizer Paula Durbin-Westby ) The world is listening and it's so exciting. Not being able to speak doesn't mean you don't have a
A Vibrant Mind Hidden In Plain Sight
Martin Pistorius, author of the New York Times best-seller, Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body delivers one of the most impressive and thought provoking Ted Talks ever. Martin Pistorius' story serves as an urgent call to action to change our assumptions about verbal speech and intellectual capacity. It also reinforces the absolute necessity to treat each human with dignity and respect. How many people are waiting right now for someone to acknowledge their means of communication? How many are waiting for someone to talk to them respectfully and then to listen and watch for subtle movements-
Being Comfortable In My Skin
When I shared my post "Celebrating My Life" one commenter pointed out that “very few people are as comfortable in their skins” as I am. This got me thinking about what makes it possible for me to not only be ok being me, but to be proud of who I am. What makes me an unapologetic, unabashed, proud disabled woman? According to followers of the medical model of disability – most doctors and all the self-proclaimed “experts” – I have a long list of “devastating”, “severe” and even tragic deficits and impairments. Their “deficits list” would look like this: Non-speaking
Celebrating My Life
Celebrating My Life Amy Sequenzia won't stop celebrating her autistic, disabled life. le I am writing this prompted by something John Elder Robison (I will refer to him by his initials, JER) wrote about Autism Awareness/Acceptance Month, in particular this quote: “We may have gifts too, but disability remains the basis for diagnosis. Some autistic people are rendered non-speaking by their condition, and I can’t imagine who would celebrate that. Others live with significant medical complications like epilepsy. I’ve yet to meet anyone who celebrates that either.” I commented that JER does not have to “imagine”. I am here, I celebrate being non-speaking, I celebrate
Five Reasons You Need to Read ‘Ghost Boy’ by Martin Pistorius
For over ten years Martin Pistorius was trapped in his own body, fully cognizant, but unable to speak or move. He was surrounded by people who believed he was incapable of thinking and tried desperately to get just one person to notice. His story serves as a wake-up call for all of us to drastically change our assumptions about speech and intellectual capacity as well as the need to radically reform expectations and treatment of people with complex communication needs.
Life for Lief ~ “See Me As Smart”
“Some people think that kids who are autistic can’t handle getting a transplant. Kids with autism can handle it.” Lief O'Neill
Hopes
I might be too optimistic for the reality, but I need HOPE to be able to keep demanding the rights taken away from me, just because I am me.
Ollibean and MyVoice Holiday Gift
‘Tis the season and we've teamed up with MyVoice for a special contest featuring TalkRocket Go or RocketKeys- two amazing communication aid apps for iPad, iPhone, and iPod touch. You choose the app that's right for you. To enter, simply subscribe to MyVoice Newsletter here . We will announce the winner on December 23rd. RocketKeys gives a voice to people with ALS, Aphasia, Autism, Brain Injury, Cerebral Palsy, MND, and Parkinson’s, using its customizable keyboards, accessible input, and sentence prediction. TalkRocket Go is the family-friendly communication aid that helps people with Autism, Cerebral Palsy, Stroke, Traumatic Brain Injury, Parkinson’s (and
How It Helps
I wrote about Presumption of Competence before, and how it is important for all of us. This time I write about how it feels and how my life changed because I was assumed to be competent.
We Are Not In Our Own World
We need to be careful about how we think about and talk about people with disabilities. One example is the reference that those who are autistic or deaf or blind or have some sort of movement differences are “in their own world.”
Not Impossible: The Story of Daniel
Five years ago (next month) our severely autistic son Daniel had a major breakthrough. This whole world is new to him: standards, peers, comradeship and competition.
Ariane Zurcher: Non-Speaking Autistic Woman Writes Book
Barb Rentenbach's funny, poignant and beautiful must-read book, I Might Be You: An Exploration of Autism and Connection, is now available as an audiobook.
Everyone Communicates
One of our favorite resources for all things AAC!
Autistic Teen Uses Tech to Break Silence
A brilliant 16-year-old boy who has autism is breaking through his silence and making people realize what autistic kids can do. Ido Kedar has difficulty controlling his body, and he cannot talk.
The Most Important Information About AAC Use in the Classroom
Presumption of competence combined with support and collaboration from team members helps the learner with complex communication needs have a voice in the classroom.
Boys & Girls Clubs of Tampa Bay Stand Up for Inclusion
Presented and discussed will be the importance of inclusion and friendship for youth with disabilities. The cast and of the acclaimed feature documentary, Wretches & Jabberers will be joined by The National Center on Inclusive Education’s Mary Schuh, PhD, and Tampa advocate, 13 year old, Henry Frost.
April and Autism Acceptance at Tampa Theatre
Get your advocacy on. April and Autism Acceptance is in Tampa. The rock stars of disability advocacy- Tracy Thresher and Larry Bissonnette- are back.
Ollibean Art for Change at USF: April. Autism. Advocacy. Acceptance.
A day of inclusive education, community acceptance, and self-advocacy at USF with Academy Award Winning Director and Stars of the Acclaimed Documentary Wretches & Jabberers, NCIE's Mary Schuh, PhD, and Tampa advocate Henry Frost. CARD (The Center for Autism and Related Disorders) at the University of South Florida) will host at USF's Marshall Hall.
Ten Things I wish My Teacher and SLP Knew about AAC : Pat Mervine
Pat Mervine has a great website and is the author of "How Katie Got a Voice (and a cool new nickname)" . I wish..... the entire team would be trained in how to program and use my AAC system. My "voice" shouldn't be taken away from me just because an adult is absent or busy. Oh, and a good back-up system would be much appreciated for when my device goes down. my AAC device would be charged (if electronic) and positioned for me to use it all times. Other kids can talk all day -- at recess, lunch, on the bus,
It is About Respect
Respect for one another is one basic quality if we want to have meaningful conversations and relationships with other human beings. The ableism that disabled people experience is a form of disrespect.
My Top Ten
These are the top 10, now top 18 things I need for teachers, therapists, doctors, friends and family to know.
My iPad Is Not a Toy
Please never refer to my iPad as a toy. It is not. It is my voice. Imagine if you could not speak with your mouth how important your iPad voice would be.
Words to Live By
"Not being able to speak is not the same as not having anything to say". Rosemary Crossley
Self-Advocacy, Inclusion, Communication, and Friendship Roadtrip 2012
Our three week Roadtrip has begun. Syracuse, then on to New Hampshire and the Autism Summer Institute.
MyVoice AAC
MyVoice is a new app, available for Apple and Android devices, that helps people with a variety of speech and language challenges communicate more quickly and easily. MyVoice has groundbreaking features like location-awareness, downloadable phrase books and wireless customization from any web browser. With its lifelike voices and beautiful interface, MyVoice is the affordable communication aid app you've been waiting for. MyVoice is changing the world, one voice at a time. It can be a vital aid for children and adults living with: • ALS • Autism Spectrum Disorders • Aphasia, Apraxia, Ataxia, Dysarthria • Brain Cancer • Cerebral Palsy
Interview Kate Winslet Golden Hat Foundation
Kate Winslet discusses her inspiration for the Golden Hat Foundation.
HALO
MISSION Helping Autism Through Learning and Outreach is a non-profit organization supported by parents and professionals nationwide who are dedicated to the use of Soma® Mukhopadhyay's Rapid Prompting Method for improving academic success and communication for persons with autism and similar disorders. http://www.halo-soma.org
Police assaulted boy with autism
Metropolitan Police (Met) officers assaulted a 16-year-old boy with severe autism by forcing him into handcuffs and leg restraints during a school trip, the High Court has ruled. The judge said the boy, now 19, also had his human rights breached. The boy, who also has epilepsy, was subjected to disability discrimination and false imprisonment, it was ruled.
Dr. Jill Bolte Taylor’s Stroke of Insight
Jill Bolte Taylor This TedTalk by Jill Bolte Taylor is a testimony to the power of presuming competence and importance of a nurturing, positive environment when learning. Neuroanatomist Jill Bolte Taylor woke up one morning and realized she was having a massive stroke. Bolte Taylor details her experience as her left brain slipped away and she was left without language, awareness of time. But, instead of being terrified she was intrigued and serene. As her left brain's stopped functioning she experienced the wonders of her right brain. She was fully present, connected to everything, thought in pictures, was inundated with sensory information
Carly Fleischman on 20/20
Carly Fleischmann, on 20/20 in 2009. Carly is diagnosed with autism and types to communicate. She is an incredibly intelligent self-advocate who is helping change how the world sees people who communicate differently. We are huge fans! Please check out her website for more information http://carlysvoice.com.
Institute on Communication and Inclusion
The Institute on Communication and Inclusion (ICI) is a research and training center that is part of the Inclusion Institutes of the School of Education at Syracuse University. Formerly the Facilitated Communication Insitute, our new name - the Institute on Communication and Inclusion - represents a broadened focus developed over the past 20 years, reflecting lines of research, training and public dissemination that focus on school and community inclusion, narratives of disability and ability, and disability rights, as well as research and training on faciltiated communication. Its initiatives stress the important relationship of communication to inclusion. Led by Director
