• a teenage light skinned boy with freckles, wearing a black jacket, blue and white striped sweater, pink collared shirt is standing in front of large columns and steps that lead to the Lincoln Memorial

Listen Up

Listen Up! the PSA from the Autistic Self Advocacy Network and Autism Acceptance Month has been released!

My Skilled Companion Dog

We love the ebook "My Skilled Companion Dog"  by Samuel Habib. It is a great and very realistic account of  getting a CCI ( Canine Companion for Independence)  skilled companion dog. Henry also has a CCI skilled companion dog, Denzel. CCI's two week training and matching program was such an extraordinary experience for Henry and me. We completed the course on CCI's Orlando campus, living in a dorm with 6 other families . The kindness and generosity exemplified by everyone involved was so touching ; from the amazing puppy raisers, the volunteers feeding us everyday, the patient and loving staff

  • three teenagers at "The Event of a thread"

Calm and Soft but Full of Energy: Thoughts on “the event of a thread”

We went to see Anne Hamilton's: the event of a thread at the Park Avenue Armory while we were in NY last week. It was absolutely magnificent, I wish we could go back again. Hamilton is brilliant. Our family is full of  different tastes, sensory needs and ages and it was a perfect fit for everyone. Henry did an excellent job editing our experience. Henry loved the installation. He said it was "calm and soft but full of energy", "smooth and architectural water crossings " There are benches so if you want to sit down and watch you can,

My Top Ten

These are the top 10, now top 18 things I need for teachers, therapists, doctors, friends and family to know.

  • Boy with brown hair and blue and white checked shirt holds sign that reads The Civil Rights Act of 1964 granted equal rights to all people. I am a person. I want these rights.

Standing Together for Inclusion

Standing together for inclusion, communication and civil rights. Please include all kids in your classroom.

Henry’s Road to Inclusion Part 1

Henry met Tracy, Larry, Harvey Lavoy, and Pascal Cheng on June 9, 2011. It was a very special day, one that would change Henry's life forever.

UNH IOD Standing With Henry

But after watching Wretches and Jabberers, a film about autism and self-advocacy, Henry’s way of interacting with the world changed radically. He realized that he had a voice, could use it, and had a right to participate in discussions about his education and life.

  • boy wearing a turquoise tshrt that reads "Not being able to speak is not the same as not having anything to say" sitting on couch one hand on iPad one hand on his dog . The dog is yellow lab/golden mix .

Henry Frost on Inclusion on the Autistic Self Advocacy Network

Henry wrote about inclusion for the Autistic Self Advocacy Network, read the entire article here. Ari Ne'eman, president of the ASAN, had an enormous impact on Henry's decision to speak out about his desire to attend his neighborhood school. "I met Ari at theAutism Summer Institute. I wrote to him about my school and he understood. He helped me advocate for my rights. ASAN helped with the petition. He is also autistic. He is also my friend. I did not read about a person who liked being in a separate school away from their friends learning cooking for life skills

I Am

How do you talk to someone who uses AAC?

  • I Stand With Henry

Autistic Student Wins the Right to Go to School

Henry Frost had a pretty simple goal: he wanted to go to school like any other kid.

Amy Sequenzia: I, Too, Want to Understand.

Why would a parent of an autistic child decide that it is better not to listen to other autistics? Why? I, Too, Want to Understand.

Why is a 13 year old protesting in order to go TO school?

How did we get here? How did we get to a point that our 13 year old son has to fight for the rights that are already his under federal law? How did we get to a place where a pretty reserved kid has the courage, the will, to do this?

Social Media Helps Student With Autism Find His Voice

Henry Miles Frost and his service dog, Denzel, protest outside a downtown Tampa building during the Republican National Convention. Since he posted the photo to Facebook, he’s found global support in his effort to enroll in his South Tampa neighborhood s

Presume My Competence

Really, this is number one. Please presume my competence.

  • Top 10 things I need you to know

Focus on My Strengths

#4 Please focus on My Strengths. I have many. We all do.

I Stand With Henry

What Henry is doing is advocating for his rights, at the same time that he reminds us of our own rights and about how far we still have to go.

Top 10 Things Autistic Self Advocate Needs Teachers to Know : # 3

Top ten things I want you to know. Number 3: Please talk directly to me, not to my support person.

  • boy wearing a turquoise tshrt that reads "Not being able to speak is not the same as not having anything to say" sitting on couch one hand on iPad one hand on his dog . The dog is yellow lab/golden mix .

Autistic Student’s Top 10 List for Teachers of Students with Special Needs #2

Top ten things Autistic student wants teachers, therapists and friends to know about students with special needs... they may be shocking to some of you, but hopefully to most they are exactly what you expect. Here's number 2.

  • Girl with brown hair , blue tshirt is holding an iPad out in front of her. Her face is obscured by the iPad. Boy with Brown Hair holds a white sign that says " The Civil Rights Act of 1964 granted equal rights to all people. I am a person. I want these rights.

A Sister Stands with Her Brother: I Am Heard, I Am Important, and I Am Included

No one wants to be the excluded one, the one to stand alone in silence, the one left out of the conversation. No one wants to be forgotten. So why are some individuals treated this way? Luckily it just takes one person to stand up and include, and the rest will follow. Be that person, take a stand, make a difference.

I am the 20 % and the RNC

Henry takes his bi-partisan message of inclusion and civil rights for all to the Republican National Convention.

First Day of School

Today is the first time that Henry has not had a First day of School. He is not allowed to go to his neighborhood school that is about 200 yards from our home.

Sebastien’s Smile

Sebastien's Smile was created for the sole purpose of raising awareness for Mitochondrial diseases which affect the Setin's son Sebastien.

One Day without Starbucks for Sebastien and Mitochondrial Disorders

Sebastien is an 11 year old boy, who likes to do things any other 11 year old boy likes to do- play video games, watch sports on tv (especially his favorite player, Lebron James), and play baseball.

Wretches and Jabberers at Tampa Museum of Art

Academy Award winner, Gerardine Wurzburg's documentary, "Wretches & Jabberers ", Screening and Q & A at Tampa Theatre . The rockstars of self advocacy, Tracy Thresher and Larry Bissonnette take Tampa by storm, shattering misconceptions of autism and intelligence.

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