Alexis Clarkson: OlliNepal
We should all strive to see the beauty and potential in everything, and everyone, and to me, that is inclusion. "
Dinosaur Claw: Physical Therapy for Cerebral Palsy
"Helping Hands" at Rice University have developed Dino-Might, a controller/game designed for patients with cerebral palsy to use for physical therapy.
Cycling Study Aims to Improve Movement of Children with Cerebral Palsy
AUSTIN, Texas - (May 23, 2012) - Cycling training is an effective therapy for children with cerebral palsy, a type of brain injury that causes altered development in both children and adults. It is one of the most common movement disorders in children an
Kids with cerebral palsy may benefit from video game play
ScienceDaily (May 7, 2012) Like their healthy peers, children with disabilities may spend too much time in front of a video screen. For children with cerebral palsy (CP), this leads to an even greater risk of being overweight or developing health issues
Upper Limb Therapy in Children With CP
Intensive goal-directed upper limb training programs using either constraint-induced movement therapy (CIMT) or bimanual training (BIM) achieved domain-specific changes in quality of life relating to feelings about functioning and participation and physi
Technical Assistance and Dissemination Network
The Technical Assistance and Dissemination Network (or “TA&D Network”) is a network of approximately 45 Centers (this fluctuates as old projects end or new ones begin) funded by the Office of Special Education Programs (OSEP). These projects provide information and technical assistance to states, schools, educational professionals and families, on topics such as autism, deafness, disproportional representation, dispute resolution, learning disabilities, parenting children with special needs, positive behavior support and transition. The TACC works with the TA&D Network to coordinate and support the work of these projects. ABOUT THE TACC The Technical Assistance Coordination Center (TACC) was formed in 2008 to facilitate coordination, collaboration,
Autism Cares Foundation
The Autism Cares Foundation (ACF) was founded by the parents of a child with autism and other concerned parents, professionals and friends. The foundation was started as a means of helping others through the “puzzle” that is autism. At virtually every level, there are “twists and turns” in one’s attempt to reach the answers that many parents are seeking. As the founders discovered with their own child, answers are few, frustrations are many, and there are few places to turn to for answers. It is the intention of the Autism Cares Foundation to assist in “unwinding” the twists and turns
Kris’ Camp
Kris' Camp is a non-profit organization first established in 1995 as a therapy intensive/respite camp for children with special needs (thus far focusing on children with autism/autistic-like challenges) and their families. It is motivated by three mutually enforcing goals: To provide therapy for special kids, and To provide respite and support for the siblings and parents of special kids. To provide theoretical and hands-on education and training to students, caregivers, and professionals working in the field of autism and other developmental disabilities. The camps are named after Kris Moore (5/30/1988 - 11/9/1993), a wonderful little boy who touched many people
HALO
MISSION Helping Autism Through Learning and Outreach is a non-profit organization supported by parents and professionals nationwide who are dedicated to the use of Soma® Mukhopadhyay's Rapid Prompting Method for improving academic success and communication for persons with autism and similar disorders. http://www.halo-soma.org
Kanti Children’s Hospital
MISSION To realize the vision, the Board has established its mission as the followings: To support GON plan to cut down children’s death rate by two-third by the year 2015. To be a leader in the field of quality child health education, training and research within the region. To develop professional exchange programs with other like-minded child health institutes within or outside the region. To exchange experience and knowledge with regional, zonal district hospitals and health centers on trainings and research. To provide expertise to government for the development of children’s hospital in the country. To set up a standard
OlliNepal Update – March 29
The Ollibean/OlliNepal team finished up their trekking outside of Pohkara, Nepal and are headed back to Kathmandu for 7 days where they will volunteer at a local school, meet with OLE Nepal ,Kanti Children's Hospital, and SEEDs Nepal. The team's internet access & email has been fairly limited, so we are all exicted hear their reports of working with children with a range of diffabilities and delivering communication tools/tablets. Can't wait to see the pictures and videos!
NOAH
NOAH is a U.S. based nonprofit, tax-exempt organization that offers information and support to people with albinism, their families and the professionals who work with them. NOAH is operated by its members on a volunteer basis and is funded primarily by dues and contributions of its members. NOAH has also received grants from foundations and organizations for specific projects.
iPad Summer Institute
Blog on the topic of assistive technology, eLearning, mind mapping, project management, visual learning, collaborative tools, and educational technology Presenters Brian S. Friedlander, Ph.D. & Christine Besko-Maughan, M.S., ATP July 10, 2012 Enhancing A
Compression Garments Designed by SPIO Now Offered by Rehabmart.com
“These discrete garments are very comfortable in all types of weather due to the wicking feature of the lightweight and breathable Lycra fabric, and there is no 'break-in' period..." Rehabmart.com, an online e-commerce company that sells rehabilitation a
Hannah’s Buddies Charity Classic, Support the Fight Against SMA, March 30-31
The Hannah's Buddies Charity Classic began in 2000 with John Bell of Widespread Panic deciding to help his goddaughter Hannah and tens of thousands of children in their fight against SMA. Today, the golf tournament, silent/auction and concert lineup attracts more than 2,000 participants and has raised nearly $2 million for SMA research. What is SMA? Spinal Muscular Atrophy is a neuromuscular disease that affects between 1 in 6,000 and 1 and 20,000 births. Over time, SMA causes muscles to become weak and considerably smaller. On average, 1 in 40 people are genetic carriers. Sponsor/Donate If you are unable to attend the
Williams Syndrome Association
The WSA is the most comprehensive resource for people and families living with Williams syndrome as well as doctors, researchers and educators. The WSA provides resources, support and the latest medical information to help your child today and throughout his/her life. By joining, you’ll become part of the largest organization dedicated to improving the lives of people living with WS. No matter the age or stage of your family member with WS, you are not alone. The WSA offers support and will help you navigate the challenges from diagnosis through adulthood.
Landau-Kleffner Syndrome
Landau-Kleffner syndrome, or acquired epileptic aphasia, is a rare childhood disorder of the central nervous system that affects boys two to three times more than girls. The syndrome is characterized by seizures and the gradual or sudden inability to und
The Greenspan Floortime Course for Parents of Children with Autism, Asperger’s, ADHD, OCD, Anxiety, Aggression, and Sensory Processing Problems is Now Available Online
The Greenspan Floortime Approach™ announces a new video course for parents of children with special needs, now available for a special introductory offer online until May 13, 2012. Parents and professionals can view the course from the comfort of their o
The Coffee Klatch
The Coffee Klatch started on a whim. I often speak and write about the isolation, stigma and confusion of parents raising a special needs child. Many of those parents are on twitter to share information, seek support or find a friendly ear. Twitter is where it all began. It is where I met my incredible team of moderators and thousands of special needs parents. It is where we created a morning chat for parents both newly diagnosed and those who have navigated the muddy waters to meet and share. It became very apparent to me, very quickly, that many of
Study: OT, Yoga are Keys to Combating PTSD
Occupational therapy with a focus on yoga could hold the key to reducing the occurrence of Post-Traumatic Stress Disorder (PTSD). A study to be published this month in the American Journal of Occupational Therapy provides evidence that using sensory-enha
New Voices Foundation
New Voices is a short-term, intensive, individualized educational program for elementary-aged children with physical and communicative disabilities. Inclusion in all aspects of school, home and community life with transition back to a local school is our guiding philosophy. New Voices will: · Provide an educational program to increase literacy and communication skills (following the NC Standard Course of Study) · Equip and support students in the most advanced communication technology appropriate to their unique needs · Provide specialized, in-depth assessment and intervention · Provide supplemental healthcare maintenance and support, and ensure each child has a medical home · Maximize student’s
Motor Impairments Appear to Be a Characteristic of Autism
FRIDAY, Feb. 17 (HealthDay News) -- Autism itself seems to be responsible for the problems children with the disorder have in developing motor skills such as running, throwing a ball and learning to write, according to a new study. Previously, it wasn't
Autism affects motor skills, study indicates
Audio available Children with autism often have problems developing motor skills, such as running, throwing a ball or even learning how to write. But scientists have not known whether those difficulties run in families or are linked to autism. New resear
Yoga for Children with ADHD and Autism in Clearwater
I now have new ways to work with a child who had been labeled as dysfunctional, and they are all working! Shakta Kaur Khalsa, yoga teacher and founder of Radiant Child Yoga Program, and Allison Morgan, Occupational Therapist, will co-lead a weekend train
Dr. Jill Bolte Taylor
Dr. Jill Bolte Taylor is a Harvard-trained and published neuroanatomist who experienced a severe hemorrhage in the left hemisphere of her brain in 1996. On the afternoon of this rare form of stroke (AVM), she could not walk, talk, read, write, or recall any of her life. It took eight years for Dr. Jill to completely recover all of her functions and thinking ability. She is the author of the New York Times bestselling memoir My Stroke of Insight: A Brain Scientist's Personal Journey (published in 2008 by Viking Penguin). In 2008, Dr. Jill gave a presentation at the TED
What I Learned During My “Sabbatical” at the MIT Media Lab (Part Two)
Why Inventing Technologies for the Disabled is Not Just Right but Smart Business Q. What do a child with autism, an Iraq war-veteran amputee and a senior citizen with Alzheimer’s have in common? (Other than having disabilities that begin with “A.”) A. They are all the early adopters of radical new technologies that will make all our lives better in the future. For my entire career as an entrepreneur, I assumed that developing innovative technologies for people with disabilities, while the “right thing” to do, was not a particularly promising business proposition. Within a year of becoming director of the
“Miles for Kids’ Smiles” Pediatric Physical Therapy
As a pediatric PT, I often hear requests for "another lap on the tricycle" or "can I go back to my room now? Puhhhleeeease!" But the question of going to Nepal to fulfill one of my life's dreams has only one answer: "YES!" I grew up playing soccer. My family and I dedicated much of my childhood free time to road trips, holiday tournaments and the goal of obtaining a college scholarship to play. I signed with a small, liberal arts university in Alabama. While training preseason, I heard and felt a "POP". I would spend the next 4 years
The Global Genes Project
Rare Disease affects over 350 million people worldwide, and the largest percentage are children. There are over 7,000 rare diseases that have been identified all with very unique needs, but many with little to no support. Although each individual disease may only impact a few, together the impact is in the millions. Rare disease is not so rare. The Global Genes Project is broadly promoting the needs of the rare disease community, engaging the general public, garnering corporate support, under the "unifying symbol of hope" – the blue denim ribbon. The Global Genes Project is a program of R.A.R.E. Project, a
Ollibean Heads to Nepal in March
We know how challenging it is in the States for our kids to have the supports they need to get an education and it is 100 times more challenging for our friends in Nepal.
Information Commonly Unreported in Intervention Effectiveness Studies
Sharon A. Gutman, PhD, OTR, FAOTA, is Editor-in-Chief, American Journal of Occupational Therapy, and Associate Professor, Columbia University, Programs in Occupational Therapy, New York; ajoteditor{at}aota.org Susan L. Murphy, ScD, OTR/L, is Assistant
United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. UCP and its nearly 100 affiliates have a mission to advance the independence, productivity and full citizenship of people with a spectrum of disabilities by providing services and support to children and adults every day—one person and family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities to ensure the inclusion of individuals with disabilities in every facet of society.
Apps for Autism on 60 Minutes
People with autism whose condition prevents them from speaking are making breakthroughs with the help of tablet computers and special applications that allow them to communicate, some for the first time. Lesley Stahl reports.
Releasing the Music In Your Head
Dan Ellsey and Tod Macchover on TED Talks, Macchover (the man behind Guitar Hero) of MIT's Media Lab , talks about Hyper Score. Ellsey,a composer with cerebral palsy uses some new tools to write and perform his own beautiful music. Very cool.
Association of Assistive Technology Act Programs
The Association of Assistive Technology Act Programs (ATAP) is a national, member-based organization, comprised of state Assistive Technology Act Programs funded under the Assistive Technology Act (AT Act). ATAP was established in 1997 to provide support to state AT Program members to enhance the effectiveness of AT Programs on the state and local level, and promote the national network of AT Programs. ATAP facilitates the coordination of state AT Programs nationally and provides technical assistance and support to its members. ATAP represents the needs and interests of the state AT Programs and is the national voice of the AT Programs.
A Few of Our Favorite Things
There are so many products, doctors, therapies, and places out there that can help. Here's a list of some of our favorites. We'd love to know what your Favorites are and why. Shoot us an email at olli@ollibean.org and spread the love.
