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Communication, Interaction, and Autism Acceptance

If you've read enough of my writings, you know that I am an activist for the rights of all people - especially Autistic people - to communicate using whatever method it works for each individual. Communication and Autism Acceptance Everybody communicates. Communication doesn't need spoken words. Communication doesn't need words at all. Behavior is communication. Smiles, looks, our bodies - those are used for communication and they are as valid as any word. I can type, and I like to type. Even if typing is exhausting, I still use this method to speak out. Interaction and Autism Acceptance But I

Intelligence Is an Ableist Concept

Intelligence Is an Ableist Concept, by Amy Sequenzia. Warning: use of the R-word. Am I “Intelligent”? Too many times I see the word "intelligence" in articles that are supposedly about disability rights. The word comes up to explain that being disabled does not mean that there is a "problem" with the brain. Many times this happens when a physically disabled person, or someone talking about physical disabilities, want to point out that “their minds are fine”. The word is also used to tell stories of non-speaking Autistics who learned to type to communicate and "proved" that they are "intelligent".

Living My Disabled Life: My Story Is Mine to Tell Part 3

How I Tell My Story  by Amy Sequenzia. Living my disabled life: My Story Is Mine to Tell  Part 3.  (Part 1 Autism: My Story Is Mine to Tell and  Part 2 Love, Respect and “Autism Parents” ) By living my life. Unapologetically. Fiercely. With pride. I am me. I am disabled and I am a perfect being, despite the bias and oppression imposed on me. I am a perfect being despite my human flaws. My story is mine. The life I live is the one I have. I like my life. I don’t like what non-disabled people believe my life to

  • I DEFY THE ASSUMPTIONS OF AN UNLIVABLE LIFE OLLIBEAN

I Resist by Amy Sequenzia

by Amy Sequenzia. I RESIST My resistance is an act of defiance. I defy the assumptions of an unlivable life Of a tragic existence Of dreams that would never become true. The world said I wouldn't - I defied. The world said I couldn't - I defied. The world says that I won't, that I can't - I resist. I defied the expectations, and I kept existing. I defied assumptions, and I celebrate my existence. I resist the ones who insist on erasing my existence. I defy the ones who deny me respect. My existence is an act of

When Disabled Students Are Abused

This is the second in a series of posts about trauma due to criminalization of disabled students by Amy Sequenzia. Content Warning: ableist slurs, description of abuse. I write this post based on the case linked here, NC Boy With Autism Slapped: Former Teacher Gets Jailtime , and on similar cases that make the news when they happen but after that we don’t hear about the victims. I will tell what happened to me, how I reacted to the abuse, and the lasting trauma that might have gone unnoticed to many.

 The case in the link had a better ending than most.

Toxic Autism Awareness

Toxic autism awareness - sorting out autism fact from autism fiction Judy Endow Autism Fact or Autism Fiction During the past week I have run into two different people in my personal life who have expressed erroneous beliefs about autism. Both people knew that besides being autistic myself, I am a therapist in the field of autism, have written many books and numerous blogs on various autism topics, and consult and speak internationally. Without a doubt, these people knew that I know about autism. And even so, they presumed their comments to be accepted fact so much so that they

  • They use Person First Language and forget our humanity. Amy Sequenzia on Ollibean

The Gymnastics of Person First Language

by Amy Sequenzia This post is about Person First Language and autism. Another title for this post could be: "Disability Language, and "Gymnastics". Some might find part of it funny, but I am not kidding. I wrote about why I believe Person First Language (PFL) is ableist, and how individual choices should be respected - the "individual" being the disabled person. Person First Language and Autism Most independent-thinking Autistic adults prefer Identity First Language (IFL). Some use Person First Language and their choice should be respected. This post is directed to non-autistics, to the media, and to autism advocacy organizations

  • Instead of listing all the reasons why your children’s disabilities, and the difficulties your children have, worry you so much, and makes you feel like you need to tell everyone, how about you start listing all the problems with an ableist society that is making your children’s lives so hard, not welcoming them, and putting them in real danger now, and as they become adults? Amy Sequenzia on Ollibean

Disability, Safety, and Value

Disability, Safety, and Value by Amy Sequenzia This post will mention the attitude of some parents. This post is not about love or wanting the best for a child. It is about being conscious that ableism exists, and that you might be, even if unwillingly, contributing to the systemic ableism in our society (I urge you to read the links. Click on the highlighted words throughout the post). I am a very disabled non-speaking Autistic woman. I need many supports. Many of you already know that. Some of you also know that the supports I needed throughout my life weren't

By |July 29th, 2016|Categories: Ableism, Abuse and Bullying, Amy Sequenzia, blog|Tags: , , |1 Comment

Communication and “Autism Specialists”

by Amy Sequenzia From time to time I find myself writing about typed communication, and how Autistic typists are devalued by "autism specialists". There is a very vocal group of people - the "autism experts" or “autism specialists” - who refuse to accept that we can feel human feelings, that we can think complex thoughts, that we are people. "Autism Experts" and "Autism Specialists” Many, if not most of them are behaviorists, the ones who believe that everyone should strive to look as neurotypical as possible, and act as neurotypical as possible to have any value as human beings. They refuse

By |July 4th, 2016|Categories: Ableism, Amy Sequenzia, Autism, blog|Tags: , , , |1 Comment

Autistic People: Persons or Projects?

Autistic People: Persons or Projects by Judy Endow Autistic people experience the world differently than non-autistic people experience the world. One reasons for this difference is the autistic sensory system is quite different from the neuro-majority, which is considered the norm. In addition, the autistic thinking style has differences from the neuro-majority norm. Autistic Sensory and Thinking Differences The autistic sensory system takes in information from the environment. This information can come in too big, too small, delayed or distorted. Autistic thinking style is often visual, concrete and many have a thinking-in-pictures style of their own. This means processing

By |June 9th, 2016|Categories: Ableism, Autism, blog, Judy Endow|Tags: , , , , |0 Comments

Disability, Dignity and Cost

Disability, Dignity and "Cost" by Amy Sequenzia Warning: I am going to mention "Right to Die With Dignity" legislation, my position, and other non black-and-white issues. I am against legislation that states the "dignity" of a terminally ill person should be a reason for euthanasia. I am not going to say that each person does not have the right to refuse treatment when all medical options have been exhausted and they will not survive the illness. Some illnesses, when the end is near, can be very painful. That's why I don't support legislation allowing euthanasia. Pain management is an option.

By |June 6th, 2016|Categories: Ableism, Amy Sequenzia, blog|Tags: , , , |0 Comments
  • Disabled people aren’t, and don’t want to be: charity causes, or objects of inspiration porn, or gifts , or angels. Amy Sequenzia on Ollibean

Disabled TV Character and Positive Outcomes

One Person At A Time I wrote about this before but I want to emphasize a few points. I am talking about the effect of television, or any media, on how disabilities, and disabled people, are perceived by the non-disabled world. Specifically, I want to emphasize the - hopefully - positive effects of one TV show on its fans' views on disability and disabled lives. The show is X Company and this article contains spoilers. I will talk, again, about the character "Ulli". Quick recap: Ulli was a young boy with Down Syndrome, being kept as a secret by his

  • Why do people cry when a disabled fictional character is abused yet remain silent when real life abuse is happening all the time right in front of them. Amy Sequenzia on Ollibean

Why Disabled People Write About Ableism

Are You Paying Attention When Disabled People Write about Ableism? When I, and other disabled people write about ableism, we don't do it because we like the topic. We do it because we DON’T like it but experience it every day. We do it because we are protesting the many ways we are objectified, dismissed, ignored and dehumanized. I don't speak for all disabled people but I believe most would agree with my statement above. Forms of Ableism There are very obvious forms of ableism, from inaccessibility, to inspiration porn, to denial of rights. There is also the ableism

By |May 19th, 2016|Categories: Ableism, Amy Sequenzia, Author, blog|Tags: , , , , , |3 Comments
  • Autism Awareness and May Flowers by Amy Sequenzia on Ollibean

Autism Awareness and May Flowers

Autism "Awareness" and May Flowers This is my THANK YOU to all who lived through yet another April with Autism Awareness, the bewareness and woes. It’s May now. My garden is blooming because you were there with me.  May Flowers It is said that April showers Bring May flowers What does April ableist rain Bring to my life's garden?   I see weeds of compliance, I see rocks of hate Thrown through the glass of my greenhouse   Scattered shards cutting, Hurting the leaves struggling to breathe   The ground covered with trash Left behind by the Vandals For

  • I Am Aware of You, Amy Sequenzia . Ollibean logo , an outline of a circle, made up of equal signs of different shapes, colors and sizes.

Disability Awareness Bewareness

Amy Sequenzia on Disability Awareness campaigns that silence the very people they claim to advocate for. I Am Aware of You I am aware of you Of your dismissiveness Of your hostility Of your badly disguised contempt   You say you do all that Because it is a much needed First step   A first step Towards acceptance, you say But we need to change our ways first   A first step Towards better services, you say As long as not-us are served first   You claim to speak for some of us The ones you call trapped Voiceless Severely damaged But

Normalcy is an Ableist Concept

by Amy Sequenzia Ableism: we know it is everywhere and we know it is the reason why disabled people fight the normative society that chooses to make us invisible. The idea that we should try to fit a pre-determined, arbitrary way of doing things excludes disabled people by default. We are often ignored, many times abused, used as props for inspiration porn, and generally left out - unless we change how we do things, unless non-disabled people feel at least a little comfortable in our presence. Despite laws and general common sense, any accommodations necessary to make a little

  • Picture of flowers with two boxes. Text in first box reads: "Identity First: I AM DISABLED. I AM AUTISTIC. I AM FEMALE. I AM AWESOME. " Text in second box reads: Person First: I AM A PERSON WITH A DISABILITY. I AM A PERSON WHO HAS AUTISM. I AM A PERSON WITH FEMALENESS. I AM A PERSON WITH AWESOMESOMENESS. " Amy Sequenzia on Ollibean.Ollibean logo is a circle made up of equal signs of varying shapes and sizes.

Person First Language and Ableism

by Amy Sequenzia If you are not Disabled and you are demanding the use of Person First Language (PFL), you are being ableist. If you are Disabled and you are demanding that other Disabled people use Person First Language, you are being ableist. If you are Disabled and want to use Person First Language when referring to yourself, I will respect that. I will also respect your right to demand that other people use Person First Language when referring to you. But the Person First Language concept is ableist, and I can tell you why. I do know the

  • Photograph of sky and red bougainvillea . Text reads "Landing outside of the norm does not equate to mean less than as a human being. Judy Endow on Ollibean"

Autism and Measuring Normal

by Judy Endow Even though people described me as in my own world as I was growing up, I was in the same world as every other human being. I could not help it that other people could not see the details of the world such as the sun sparkles and the misty tails rising up from the ground early in the morning like I could, but that didn’t mean our worlds were different. Instead our experience of the same world was different. My experience was much more robust because I had ever so much more to see

Disability History and Pop Culture

X Company is respectfully educating viewers about the ableism, discrimination and elimination of disabled people during the war. Hopefully, it will make more people aware of how disabled people are still discriminated against and abused in unthinkable ways.

Six Questions Before Publishing About Children

  Blogging About Children with Disabilities Protecting a child's privacy when parents write about their family's experience . How much information is too much when blogging about children with disabilities? The discussion revolving around #CrippingtheMighty, the hashtag created by Disability Visibility Project's founder, Alice Wong, is so important when considering writing or blogging about children with disabilities. It's imperative to listen to disabled people about their lived experience and the very damaging affects of content that objectifies and marginalizes disabled people like Inspiration Porn. At Ollibean, we believe in full inclusion and acceptance of all people and stories that objectify disabled people can’t exist in the same

  • Your child's disability is not about you. Your child’s disability is not your story to tell. If you do it in public at your child’s expense, you are not doing your job, which is parenting. - Amy Sequenzia on Ollibean

Privacy Versus Popularity

Your child's disability is not about you. Your child’s disability is not your story to tell. If you do it in public at your child’s expense, you are not doing your job, which is parenting. - Amy Sequenzia on Ollibean By Amy Sequenzia The title could also be: Privacy of Disabled Children versus Popularity of Parents of Disabled Children. Which one is more important? The answer is clear to me. As I wrote before, a child's disability is not about the parents. Neither is the disability something the child has done to the parents. I know many parents

  • Photograph of mountains with fog. Text reads "Ableism is ugly and it hurts, sometimes deeply. Acceptance helps with healing the wounds. Amy Sequenzia on Ollibean"

Disability, Ableism, and Assumptions

by Amy Sequenzia The title of this article probably isn't about what you think it is. This title refers to a couple of events that made me think about how we should never assume that ableism is something pervasive only in non-disabled circles. I am talking about more than internalized ableism, the need some disabled people have to distance themselves from disabled people they consider not worthy of any respect. I am talking about ableism that easily resembles, sometimes becomes, hate. I recently experienced this kind of ableism. It was hurtful, and it got worse than I described in

By |December 20th, 2015|Categories: Ableism, Amy Sequenzia, Author, blog|Tags: , , |3 Comments
  • What you see as “inspiring”, the way we do things, the way we lead our lives, is not a superpower. It is just our way of navigating this – still – very inaccessible world . Amy Sequenzia on Ollibean

Disabled Lives and Respect

I thought I wouldn't write about this case . I've been following it and the developments have been a sad reminder that disabled people are, in 2015, still seen, talked about and treated as less than human.   Emily Brooks has been writing about it and her analysis is so comprehensive, I don't have much to add. But the rhetoric used by people involved in the case is making my heart hurt.   If you don't know about it, you can read the articles linked above and here . I will not talk about Anna Stubblefield, if she raped an adult

  • We all have value, even when the majority cannot see the wisdom behind our voices (spoken or not). Amy Sequenzia Ollibean logo "ollibean" and circle made from equal signs of various sizes and shape

Assumptions and Ableism

I've recently read an article about how some researches are slowly starting to debunk long held assumptions about autism, Autistics, functioning labels, and how the world needs to provide more appropriate education to “all” Autistics. This is a quote from a researcher (Laurent Mottron): "Early childhood interventions should focus on harnessing strengths, rather than erasing the difference between autistic children and neurotypical kids" Of course, Actually Autistic people have been saying this forever. We have been warning parents about the damages caused by "therapies" that seek to train Autistics to make us look "indistinguishable from our peers” for a long

Ableism and Pity. Reject Them, Be Awesome

I have written about how I had to unlearn ableism.   I have written about my uncooperative body.   I always state how generally happy I am, and that I am comfortable being me.   All this is true but frustration shows up, and grows, every time I meet ableism.   I meet ableism a lot.   Ableism brought forth by pity. Pity directed at me by people who seem to believe I am “trapped” inside my body, that I suffer, or that my life is so hard, they can’t understand how I can even have goals and aspirations.  

Inspired? What Are You Going To Do Now?

You have heard it before. You may have said it.   "You are such an inspiration!" "(Person's name) is so inspiring!"   I have heard it, and I have been the one supposedly “inspiring” people.   And I very much dislike it.   Disabled people are usually the main subject of what is known as "inspiration porn".   We move a finger while disabled, we inspire. If we can't move, but we open our eyes, we inspire. We use technology to live, we inspire. We wake up and enjoy life, we inspire. We smile, we inspire. We breathe, we inspire.

Celebrating My Life

Celebrating My Life  Amy Sequenzia won't stop celebrating her autistic, disabled life. le I am writing this prompted by something John Elder Robison (I will refer to him by his initials, JER) wrote about Autism Awareness/Acceptance Month, in particular this quote:  “We may have gifts too, but disability remains the basis for diagnosis. Some autistic people are rendered non-speaking by their    condition, and I can’t imagine who would celebrate that. Others live with significant medical complications like epilepsy. I’ve yet to meet anyone who celebrates that either.” I commented that JER does not have to “imagine”. I am here, I celebrate being non-speaking, I celebrate

High-Functioning or Low-Functioning?

In this life I am missing the ability to go out into the world and just be accepted for my natural autistic self. I must inhibit so many of my natural responses just to fit in enough for others to allow me a place in the world.  I have discovered that to have a place in this world I need to fit into it in a way that makes sense to the majority. For me, this isn't a good or a bad thing - just merely the way it is. Fitting into the world is something I need to balance

  • A photograph of a woman wearing a purple shirt and khaki pants giving a speech on stage. TED in bold red letters , and "America's Finest City" is partially visible behind her. On a large screen behind her " Children with disabilities are among the world's most marginalized and excluded children." To the right there is a turqoise circle with white font "Ollibean Must Watch"/ Also in white font " Torrie Dunlap, CEO, Kids Included Together

Isn’t it a Pity? The Real Problem with Special Needs

The Real Problem with Special Needs We love this TEDx Talk from our friend, Torrie Dunlap, at Kids Included Together on benefits of inclusion and the real "problem" with special needs.   Isn’t it a Pity? The Real Problem with Special Needs Torrie Dunlap, CEO, Kids Included Together   Feeling Good about Casting Someone with Special Needs in the Show In the early 90s I was a student on this very campus, and actually, on this very stage. I was a drama major who had a dream to change the world through arts education. The world, however, had something different in

The Pseudo Logic of “Not Autistic Enough”

Recently, I was told by a parent of a child on the autism spectrum that I am "not significantly enough affected by autism to be able to understand real autism" and therefore should stop speaking out about autism. Some aspects of my personal history (Endow, 2009) that you may find interesting include:   Was nonverbal for some time Had self-injurious behaviors Lived in an institution for some years of my childhood Lived in two different groups homes Diagnosed with classic autism I understand that as a parent of a child with significant needs you may look at me and look

Why I Don’t Like “Awareness”

Awareness campaigns of disabilities are only effective if they are planned and run primarily by the groups that are the subjects of the campaign. This is because such campaigns are not “awareness”, but “acceptance” campaigns. We welcome support, with focus on respect, equality and access. We don’t need “awareness” of deficits and tragic rhetoric.

Attitudes – Information and Education

This is especially directed at parents, family members and all who spend a lot of time with disabled children. It also applies to adults, even if the way things happen when an adult is diagnosed or needs supports are different from how they happen with children. But we, disabled adults, also deserve to have supportive and informed people assisting us in navigating and participating in the world. When a child is diagnosed with a disability, or born disabled, it is said that parents, and family members, grieve. That's probably because the general perception of any disability is a negative one.

  • Photograph of Stella Young on the Ted Stage. Text reads- I'm not your inspiration, thank you very much. Stella Young. Ollibean Change Leader

Why The Lie We’ve Been Sold About Disability Is The Greatest Injustice

Stella Young of Ramp Up explains the Social Model of Disability, Inspiration Porn, and the lie we've been sold about disability in this nine minute TED Talk. Stella Young Transcript I grew up in a very small country town in Victoria. I had a very normal, low key kind of upbringing. I went to school, I hung out with my friends, I fought with my younger sisters. It was all very normal. And when I was 15, a member of my local community approached my parents and wanted to nominate me for a "Community Achievement Award". And my parents

FDA Advisory Panel Recommends Banning Aversive Shock Therapy at the Judge Rotenberg Center

Thursday, April 24, was a day that I'd been waiting for that day for a long time. An FDA advisory panel finally got to thoroughly hear both sides of the story of what goes on at the Judge Rotenberg Center, and to deliberate, based on testimony, whether what happens to the students there needs to be stopped. And they made the right decision. I just hope that they act on it quickly. I found out about the Judge Rotenberg Center by accident two years ago, doing some research for another post on my blog. I came across an article about

  • It is the children with OI-the future of our community-who are particularly vulnerable to these messages, especially when they come from their very parents. Kara Ayers on Ollibean

Hashtag Hate and How Pride Can Prevail

Guest blogger Kara Ayers is the Advocacy and Dissemination Coordinator for The University of Cincinnati University Center for Excellence in Developmental Disabilities (UC UCEDD) and has been featured on Disability Blog the official blog for Disability.gov. As a child, my family considered "hate" to be a bad word. We're teaching my preschool daughter the same. Someday I will teach her the tragic impact of hate and the freedom that it has stolen and continues to steal from so many. For now-I don't want her vocabulary or her mind limited by slurs and hate-filled language. As someone who works in social

#DearFutureMom Video Spreads Awesome Message From People with Down Syndrome

by Emily Ladau Have you seen this #DearFutureMom Video? We love it here at Ollibean and in honor of World Down Syndrome Day, we think it's definitely worth a moment of your time to watch. It's a great reminder of why people of all abilities must work together to celebrate and advocate for the rights, inclusion and well being of people with Down syndrome today and every day - because we are all people just the same.  

  • Image description. Hands holding up a white sign with pink text " I AM A STUDENT" Closed captioning text" I'm not the one who's lost with no direction, no"

I’m Not the One Who Is Lost

I am thinking you will understand more when you see the feeling . The feeling on my side.

  • photo of teenage boy. He has brown hair and skin / Text Reads " Missing Avonte Oquendo#FindAvonte"

Avonte Oquendo’s Death: Questions and Issues

Over 200 mourners gathered in New York on January 25 for the public funeral service for Avonte Oquendo. The 14-year-old autistic boy's remains were found in Queen's by the East River in  January. He'd been missing since October 2013. The search for Avonte was long and intensive, involving 50 members of the NYPD at one point and a detective task force, sewer sweeps conducted by the Department of Environmental Protection, daily checks every subway station in New York by the Metropolitan Transit Authority, and the efforts of total strangers who just wanted to help search. Read more here  Something about

By |February 4th, 2014|Categories: Ableism, Autism, blog, Sarah Levis|Tags: , , , , |0 Comments

A Typical Son’s mom on “the r-word” and Chuck Klosterman’s apology

Kari Wagner-Peck ,the author of  A Typical Son blog, and twitter friend @atypicalson wrote a letter to find out why Chuck Klosterman , of the Ethicist used the r-word. Kari who is 'like Erma Bombeck - in that I write funny about the ordinary and not so much in that I am angry, I swear a lot, and we have a kid who has Down syndrome' wrote an eloquent, thoughtful letter to Klosterman , reached out to folks on twitter and used social media for social good. Pretty cool.  You can read the  response from Klosterman  here,It's fabulous- CK, sincerely apologizes

An Open Letter to Suzanne Wright, Co-Founder, Autism Speaks

Over the years, though, we have learned that war is no longer a useful metaphor to invoke and apply in the disability community. People with autism, or for that matter other developmental disabilities, are not victims of the predations of some evil actor, nor are their mothers, fathers, sisters and brothers. Instead, we appreciate, as stated in the Developmental Disabilities Act, that “disability is a natural part of the human experience.” Unfortunately, your description of children with autism and their families is polarizing and divisive, creating rifts within a community that can ill afford it in these perilous times. Characterizing

You are not wrong.

Know you are not a burden or trouble for being. You are a person who has every right to be. A family that is saying love but saying you are so hard so wrong for not being as they wanted. The family is wrong. Not You. A school segregating is wrong. Not You.There are many if the disability community that are here for you.

Don’t Call Me Inspirational

"Disability is not something terrible that needs to be fixed, cured, or made to go away forever. It is a natural part of reality. We ask for acceptance as equal members of society." From the PSA "Your Daily Dosage of Inspiration" by Cheryl Green and Caitlin Wood.

I ALREADY AM A HUMAN BEING

I do not know if you have ever thought of it this way, but it is a step up that today autistics have the opportunity extended to prove themselves human. As bad as that is and wrong in ever so many ways it is a step up from 50 years ago when I was a kid and we were not even given any chances to try to convince anybody of our worthiness as a human being much less our intelligence. It is all so wrong and such a slow moving shift it is sometimes difficult to remain positive. This past

Again, We Mourn

My soul hurts and I am naming names. And I am saying, if you have a drop of sympathy for the murderers, or almost murderers, you have blood on your hands too.

IT IS WRONG TO MURDER YOUR AUTISTIC CHILD

  I know how it feels to be the victim, the mother, the caregiver and the social worker. And I know this: IT IS WRONG TO MURDER YOUR AUTISTIC CHILD. It's Wrong to Murder Your Autistic Child. Issy's Story   Issy Stapleton, 14, remained hospitalized in Grand Rapids, Michigan late Wednesday after her mother, Kelli Stapleton, allegedly attempted to murder her. State police Lt. Kip Belcher said two portable charcoal grills were burning inside the vehicle where Issy was found unconscious. He said the van's windows were shut and investigators believe Issy’s mother intended to murder her daughter. Assistant Prosecutor Jennifer

  • For us, autism is not simply an add on to our personhood, but is in fact, foundational to our identity. Judy Endow

Person First Attitude Trumps Language

Am I a person with autism or autistic? Does it matter? And why?

  • Boy with gray shirt running in grass

Advocacy Groups Call for Autistic Teen’s Killers to Be Charged With Hate Crime

How does it make you feel when you hear a story about a mother killing her child? Does hearing that the child had a disability change how you feel? For some people, it does. It changes how they feel enough so that they'll start speaking as if they support the parent's actions, citing unbearable stress and lack of supports and not being able to take the pain to see of seeing a child with disabilities in pain. We heard the media and public talk about this in Canada when Robert Latimer put his 12-year-old daughter Tracy, who had cerebral palsy,

People With Disabilities Practically Absent from Marketing Campaigns

ABC.com reports that despite sporadic appearances in the media and marketing campaigns, people with disabilities are still largely absent, and that many people feel that marketers in particular are losing out because of it. Blaming the absence of people with disabilities in marketing campaigns on "a combination of ignorance, caution, and fear," advocates feel that a concentrated campaign to have people with disabilities included in advertising is necessary, similar to past campaigns to have minorities included in advertising. 57 000 000 Americans have a disability, and as a group their spending power is $200 to $500 billion. They're definitely a

Stop Hurting Kids

Join the Stop Hurting Kids campaign to end restraint and seclusion abuse in schools.The easiest way to make a meaningful contribution is to take a stand.

PrAACtical AAC | Presuming Competence and Using The Least Dangerous Assumption

PrAACtical AAC's latest post on the importance of presuming competence.

Lawsuit alleges school bus aide slapped autistic boy

A north suburban special education school bus aide slapped an autistic student who cannot speak, according to a lawsuit filed by the boy’s mother, who claims she uncovered the alleged abuse after putting a recording device in her son’s backpack. Nabiha Z

  • It’s illegal for a medical service provider to turn away someone because of physical disability.

Doctors across America turning away patients with disabilities, study finds

by Sarah Levis Disabled people in several American cities are going without specialist care because of medical facilities that aren’t physically accessible, says a study that recently appeared in the Annals of Medicine. According to the Americans with Disabilities Act, it’s illegal for a medical service provider to turn away someone because of physical disability. Yet in Boston alone, more than one in six doctors refused to schedule appointments for people posing as patients in wheelchairs. Similar findings were reported in three other cities. The study reported similar findings in in Houston, Texas, Dallas, Texas, and Portland, Oregon. The study

Why did Robert Ethan Saylor die?

Where is the public outrage over the death of Robert Ethan Saylor , killed in January while being taken into police custody in Frederick for the crimes of petty larceny and, perhaps, disorderly conduct? Saylor, 26, had Down syndrome, a genetic defect tha

The Arc Responds to the Death of Maryland Man with Down syndrome

This is a moment for us not only to mourn, but we must also learn from this tragedy and encourage proper training in our police departments. The Arc is deeply saddened and shocked by the death of Robert Ethan Saylor, a young man with Down syndrome whose

Family wants answers in son with special needs death

A lawyer for the family of a 26-year-old man with Down syndrome who died while being escorted from a movie theater by security guards says the grieving family is looking for answers after the death was ruled a homicide. Robert Ethan Saylor died Jan. 12 a

Planet of The Bind: Why Do Banks Still Lag In Basic Service To Blind Customers?

It seems like a natural: keypads with Braille, audio prompts and the like. And advocates for the seeing-impaired have been working with the industry since 1999 to provide just such adaptations.

‘Impaired Perceptions’ – Photographer Brian Steel Fights Ableism

"The overall message is that you cannot tell what a person is capable of or what their life is like simply by looking at them. " Brian Steel

Stephen Kuusisto: Responding to Euthanasia of Deaf Blind Twins in Belgium

The National Association of the Deaf and the American Association of the Deaf-Blind have released a formal statement on the euthanizing of twins in Belgium who preferred death to becoming deaf-blind. Apparently the Belgians would imagine Helen Keller's l

  • Woman with brown hair and white skin holding a painting by Larry Bissonette.

Advice from Someone Who Has Been There

I love Larry Bissonnette- artist and disability rights activist. If you have seen Wretches & Jabberers or My Life as an Artist, or seen Larry present- I'm sure you are right there with me. His paintings are extraordinary, his words brilliant, and his wit and personality beyond wonderful. He is an exceptional person I feel privledged to call friend. We have been lucky enough to spend a lot of time with Larry; a weekend at our home in Tampa, a week in Vermont (where we were able to visit Larry's studio and watch him create his paintings) and numerous conferences

  • Picture of a smiling woman with light brown hair in a pony tail,she is wearing a purple shirt with a black jacket. the text reads "It's the hardest thing to put up with."

No Limits: People With Cerebral Palsy v Condescending Tools

No Limits: People With Cerebral Palsy v Condescending Tools.

Why is a 13 year old protesting in order to go TO school?

How did we get here? How did we get to a point that our 13 year old son has to fight for the rights that are already his under federal law? How did we get to a place where a pretty reserved kid has the courage, the will, to do this?

Presume My Competence

Really, this is number one. Please presume my competence.

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