• "finding some other movement to hook into that will serve to interrupt and change the pattern to match my newer cognitive understanding" Judy Endow. Ollibean logo

Autistic Patterns of Thoughts and Emotions

I use the movement of things outside of me for purposes of thinking and of processing feelings. Recently, autistic friends have let me know that most people in the world do not do this and that it is a rather common autistic experience. I have no idea how common so would very much appreciate autistic weigh in here.   Thinking   My thoughts are all in colors and pictures. Usually there are sounds attached, but not always. To think I need a way for the colors and pictures to move. When my sensory system is calm and integrated the thoughts

  • Faded Image of ocean and waves and rocks. Text reads WILL THE SELF-ADVOCACY SKILLS WE TEACH OUR YOUTH TODAY SERVE THEM WELL IN THEIR ADULTHOOD? Judy Endow ,MSW, Ollibean logo

Autism, Transition Programs and the Impact of Poverty on Self-Advocacy

I am an autistic woman who has lived both in poverty and as a middle-income person during my adult life. I am noticing how self-advocacy is typically geared toward middle-income status. This could be problematic since many autistic adults live in poverty. Based upon my experience I have come to realize that middle class self-advocacy works fine if in fact you are a middle-income person, but doesn’t work well if you are a poor person.   I will explain this more using an example from my life as a poor person versus a middle class person.   Dental Experience as

  • NAACP picketing St. Louis schools circa 1950s. Photo credit AARP

Surviving Inclusion: At The Intersection of Minority, Disability and Resegregation

Kerima Çevik on Surviving Inclusion: At The Intersection of Minority, Disability and Resegregation “I see the work of inclusion as probably the last frontier of desegregation. If you read the brief from Brown v Board of Ed, The board of education argued that if we let the blacks be integrated then the next thing you know is that we’ll be letting people with disabilities be integrated.” Joe Petner, Principal, The Haggerty School,  Including Samuel  NAACP picketing St. Louis schools circa 1950s. Photo credit AARP In October of 2008, we discovered that our son, who was transferred into a full special education

  • Ollibean News Headline ON SURVIVING INCLUSION, Written by: Kerima  Çevik, These groups view inclusion as an educational disaster, as racist educators saw racial integration in its time. Photograph of Gail Etienne age 6, one of the Mcdonogh 3, being driven to school by federal marshals looking very sad. Photo credit: NOLA.com

On Surviving Inclusion

On Surviving Inclusion by Kerima Cevik Three young Black soldiers, bubbling over with the news that the Civil Rights act was just signed into law, and ready to demand a front door entrance and equal treatment everywhere rushed around places where people of color were formerly unseen and unheard. Image is of the first page of the Civil Rights Act of 1964. Credit National Archives. I cannot impart on you what this moment in time meant to them. Imagine being told all your life that you were less than others. Imagine approaching your local supermarket

The Reason I Blog

This blog (The Autism Wars), and all the other blogs and projects associated with it, are for my autistic son, Mustafa. But this blog is actually not talking about him without him or about daily life with him with some rare exceptions for times when his daily displays of empathy, kindness, and love towards me move me to write. When I say it is for my son, I mean it is part of my activism and my exploration of what it means to try and ally myself to his cause. This cause is something that too many of us are aware of

Why I Don’t Like “Awareness”

Awareness campaigns of disabilities are only effective if they are planned and run primarily by the groups that are the subjects of the campaign. This is because such campaigns are not “awareness”, but “acceptance” campaigns. We welcome support, with focus on respect, equality and access. We don’t need “awareness” of deficits and tragic rhetoric.

Attitudes – Information and Education

This is especially directed at parents, family members and all who spend a lot of time with disabled children. It also applies to adults, even if the way things happen when an adult is diagnosed or needs supports are different from how they happen with children. But we, disabled adults, also deserve to have supportive and informed people assisting us in navigating and participating in the world. When a child is diagnosed with a disability, or born disabled, it is said that parents, and family members, grieve. That's probably because the general perception of any disability is a negative one.

Attitudes – Grading People

Parents and family of disabled people should start demanding that everyone who is part of their children lives stops using functioning labels. We don’t need to be graded. We already have value.

Attitudes – Communication

Communication is not only speaking, typing, texting or signing. Communication is also being able to listen and understand, being accommodated to make interaction possible.

Attitudes – Introduction

When you are disabled there is a lot going against you. Not that disability is the worst thing someone can experience. It is not. Disability can be hard and some things can be very difficult to deal with. Some of us need medication and managing this can be difficult; some of us experience pain and this can be energy draining; others might have trouble with sensory processing; some might even need hospitalization from time to time. Different disabilities require different approaches, and different types of accommodations. What non-disabled people should remember is that we either learn how to live as

  • "Why would I want to grow out of my skin? Of my veins ? Because they grew so well with me. Jamie Sanders

I have Tourette’s. Please tell everyone.

This powerful performance by Jamie Sanders, spoken word poet and actor with Tourette's, covers bullying, shame, self-acceptance and empowerment in the best 150 seconds you'll watch this week.

Autistic Pride

I am proud of being Autistic And of my Autistic friends I am proud of young Autistics Who have Autistic pride They amaze me I am proud of young Autistics Who are discovering themselves They are learning to understand the world Through creative Autistic eyes They make me smile Young Autistics showering us with love Bonding, sharing, exploring and laughing With words, gestures and looks Their Autistic selves leading the way They lead their own way Henry stands up for his right to be We follow his lead and stand with him He teaches the meaning of never giving up

Henry

Some call him a kid Others say he is a young man But whatever you call him You need to know this: He is courageous Brave and resilient He will fight and he will win   It can be a fight for his rights When enemies come disguised as condescension It can be a fight for his dreams He will mobilize an army of friends To Stand With Him   He is an example to many He showed other students the possibilities Henry does not fight for himself He is changing perceptions, changing the world   Henry is a leader

Help Emily Ladau Win an Adapted Van

Hey guys, we need five minutes of your time. Disability rights advocate, Ollibean contributor, and all around awesome human, Emily Ladau is in a contest to win her first car. Emily recently had quite an adventure getting her driver's license and now she can legally drive! Emily's a wheelchair user and needs an adapted van and equipment which will cost around $70,000. Folks, please take a moment, read her story and vote daily so Emily can win the van she needs in order to drive.  You can register to vote via e-mail, but be sure to check your spam folder for the password

Who Should Speak For The Disability Community? – Think Inclusive

In a recent post for Think Inclusive, self-advocate Emily Ladau explores the idea of advocate-allies who work with self-advocates towards disability rights. She emphasizes the importance of putting the voices of self-advocates at the forefront of disability advocacy movements: "Don’t get me wrong – allies, or what I refer to as advocate-allies, are incredibly important to advocacy efforts. “Ally” implies being supportive, while “advocate-ally” paints a more accurate picture of people who join in along with self-advocates. And true advocate-allies deserve the utmost respect. But a real advocate-ally is someone who doesn’t overshadow the voices and efforts of the people

  • Image description: Pink square with tiny, interspersed light pink hearts. In the center there is a large white heart withe dark pink text that reads "Love, not fear is living a posAutive life It is refusing to see despair Just because you are faced with the new. Amy Sequenzia on Ollibean.

Love, Not Fear

Today is “Love, Not Fear” flashblog. We write about the beauty of being, living, sharing and experience Autism, an Autistic life.

  • Image description black and white photo of girl with long brown hair looking at the camera . blue text reads"BULLIED" and NOT in background. Upper right hand corner of image has green circle with with white text that reads "spread the word"

30 Second Message for Bullies

AAPD's PSA features three real students sharing a simple message: people with disabilities are powerful, self-determined individuals—not victims.

Hopes

I might be too optimistic for the reality, but I need HOPE to be able to keep demanding the rights taken away from me, just because I am me.

Supporting United States Ratification of the U.N. Convention on the Rights of Persons with Disabilities – Why Every Voice Counts!

CALLING ALL SENATORS .It’s time for the U.S. To take their seat at the table In support of global disability rights . RATIFY THE CRPD I have a confession to make: I can only vaguely recall skimming the e-mails that made their way to my inbox in late November and early December last year that called upon the disability community to contact their senators in support of U.S. ratification of the U.N. Convention on the Rights of Persons with Disabilities (CRPD). It's not that I didn't realize the importance; I just thought to myself "Oh, I should help.

  • All disabled people need to know we are together fighting. Not just adults. All kids need to know the big community . Meeting people like me who made the choices of life changed all. Then I am knowing I want this life. It is hard to not have once you see.

This Is Autism by Henry Frost

Best place for all autistic people, all disabled not disabled people, all families to speak together. Speak together for acceptance, inclusion, communication, and rights for all people. I am thinking when you look closely, this is what autism is.

Autistics Speaking Day – My Fingers Speak

Today is Autistics Speaking Day, a day to remind the world that we actually speak every day, even if we do it with our fingers.

  • My diagnosis is about who I am NOT and what I cannot do – a measure of my limitations, deficits and difficulties. Being an autistic woman is about who I am – a human being who IS, who CAN and who DOES – measured by living a full life in her own way in this world. Judy Endow on Ollibean

Don’t Define Me By My Deficits

My advice for younger autistics and for those who love and support them would be to look at who you ARE as a human being.

  • .There’s none exempt from this disability community, and as a matter of fact we’re the cool community, because we accept everybody.” Keith Jones

Disability Activist Keith Jones on Community

"So let us remember that when we teach, when we educate, we make policy, we make decisions that we do it with a conscience and that we remember that we are leaving fingerprints on forever." Keith Jones

Dear Issy

You don't know me but I have seen your pictures. You don't know me but I know parts of your story. Soon you will wake up and a lot will have changed. You will be in a hospital because your mother did something terrible to you. I know you love your mom and things are going to be very confusing because people are going to say things that will not make sense. And you will not be able to see or talk to your mom. This is a good thing, and you will understand it later. But I don’t want

Again, We Mourn

My soul hurts and I am naming names. And I am saying, if you have a drop of sympathy for the murderers, or almost murderers, you have blood on your hands too.

  • For us, autism is not simply an add on to our personhood, but is in fact, foundational to our identity. Judy Endow

Person First Attitude Trumps Language

Am I a person with autism or autistic? Does it matter? And why?

J.Cole Writes Apology Letter to Autism Speaks

J.Cole offended many over the lyrics "I’m artistic, you is autistic, retarded" in his Jodeci Freestyle rap number. He was called on this.  The Anti-Bullying Alliance created a petition and asked for a formal apology from each rapper, as well as the offending words be removed from the song. Read the original article and letter on Complex Music here http://www.complex.com/music/2013/07/jcole-writes-apology-letter-autism-speaks.   Kuddos to J.Cole for writing an apology letter that sounds sincere. The disheartening thing about his letter is that it is addressed to Autism Speaks. J. Cole offended autistic people, not an organization – in this case an organization that

  • I fear that Hillsborough County School Board is standing on the wrong side of history.

Disabilty and Civil Rights: Standing On the Right Side of History

"If we were to go back to the 1960s and we were to talk to those leaders who were vehemently against desegregation, we would hear the conviction in their voices of them stating why they believe their decisions and what they were doing to those children were just. Just as I believe that some of you and some of the board members that have spoken believe that their decisions are just. But, I fear that the Hillsborough County School Board is standing on the wrong side of history."

  • Teenager with brown skin and dark brown hair smiling and wearing a "got inclusion" t-shirt.

I Am Here To Make A Difference For My People

"I am here to make a difference for my people. I hope that you listen to what I have to say. I want people like you to stop judging me." Tres Whitlock

Seattle Children’s Hospital Pulls Bus Ads After Community Outrage

“Autism is a disability, but it is not a disease. It is not a life-threatening illness,” said Matt Young, co-leader of ASAN-WA. “The idea it’s a state to be wiped out has much negative impact on our lives.”

  • Boy with gray shirt running in grass

Advocacy Groups Call for Autistic Teen’s Killers to Be Charged With Hate Crime

How does it make you feel when you hear a story about a mother killing her child? Does hearing that the child had a disability change how you feel? For some people, it does. It changes how they feel enough so that they'll start speaking as if they support the parent's actions, citing unbearable stress and lack of supports and not being able to take the pain to see of seeing a child with disabilities in pain. We heard the media and public talk about this in Canada when Robert Latimer put his 12-year-old daughter Tracy, who had cerebral palsy,

Much Needed Resource: “We Are Like Your Child”

"We are like your child. Your child is like us. And we may have difficulties, we are disabled--but there is no denying that we are also awesome."

  • Thinking Person's Guide to Autism

Thinking Person’s Guide to Autism

We love Thinking Person's Guide to Autism, a community of autistics, professionals, and parents sharing what you need to know about autism.

Federal Agencies Seek Public Input on Transition Issues for Youth

The U.S. Departments of Labor, Education and Health and Human Services, in partnership with the Social Security Administration, are asking for input about the best way to ensure a successful transition from school to work life for youth with disabilities. For two weeks, starting on May 13, youth with disabilities and their families can share their thoughts on improving transition outcomes via this Web Interface.  Policymakers, educators, and service providers are also invited to take this opportunity to share concerns about the “regulatory and legislative barriers that young people with disabilities are facing in accessing employment, education, Social Security and

Shouldn’t New Disability Awareness Course Be Mandatory for Police?

Kudos to New York State for making train-the-trainer disability sensitivity training available to its law enforcement officers as of April 2013, with the stipulation that police officers that take the course must take it back to their respective police agencies. But why not make the training mandatory instead of just "available"? The First Responders Disability Awareness Training Course augments the very basic curriculum in disability sensitivity offered to New York state police officers as part of their core training: 14 hours on mental illness, but only two on autism, Alzheimer’s disease, and blindness and deafness , and none on intellectual

Reason # 202 Why You Should Come to See Wretches & Jabberers Next Weekend..

The incredible soundtrack. J. Ralph, recently nominated for an Academy Award for his song, Before My Time, for the documentary Chasing Ice, composed and performed the songs in this incredible documentary, He is joined by some of the most talented folks in music.

Boys & Girls Clubs of Tampa Bay Stand Up for Inclusion

Presented and discussed will be the importance of inclusion and friendship for youth with disabilities. The cast and of the acclaimed feature documentary, Wretches & Jabberers will be joined by The National Center on Inclusive Education’s Mary Schuh, PhD, and Tampa advocate, 13 year old, Henry Frost.

April and Autism Acceptance at Tampa Theatre

Get your advocacy on. April and Autism Acceptance is in Tampa. The rock stars of disability advocacy- Tracy Thresher and Larry Bissonnette- are back.

Ollibean Art for Change at USF: April. Autism. Advocacy. Acceptance.

A day of inclusive education, community acceptance, and self-advocacy at USF with Academy Award Winning Director and Stars of the Acclaimed Documentary Wretches & Jabberers, NCIE's Mary Schuh, PhD, and Tampa advocate Henry Frost. CARD (The Center for Autism and Related Disorders) at the University of South Florida) will host at USF's Marshall Hall.

Neurodiversity IS the Next Civil Rights Movement

"When we talk about inclusion what we're talking about is diversity." Audra Zucherman, co-founder, The IDEAL School .The IDEAL School practices full inclusion while nurturing their students abilities to create real change in the world through compassion and self- empowerment.

Deaf Teenager Gets AMC to Offer Closed Captioning

Johnny Butchko, 14, is hearing impaired. Tired of being unable to watch a movie at his local theatre, he stood up and got AMC to provide Closed Captioning in Santa Monica. But he's not stopping there.

  • image of woman with white skin and dark brown hair smiling. Turquoise circle "Ollibean fav"

Sara Winter,Founder of Squag™ Had Me at :)

Sara Winter answers our Change Leader Questionairre. Sara is the founder of Squag™ - a wonderful curated, online space that offers kids on the autism spectrum as well as other disabilities (and their siblings) a safe, beautiful corner of the web.

  • Woman with brown hair and white skin holding a painting by Larry Bissonette.

Advice from Someone Who Has Been There

I love Larry Bissonnette- artist and disability rights activist. If you have seen Wretches & Jabberers or My Life as an Artist, or seen Larry present- I'm sure you are right there with me. His paintings are extraordinary, his words brilliant, and his wit and personality beyond wonderful. He is an exceptional person I feel privledged to call friend. We have been lucky enough to spend a lot of time with Larry; a weekend at our home in Tampa, a week in Vermont (where we were able to visit Larry's studio and watch him create his paintings) and numerous conferences

When Autistics Grade Other Autistics

“If you judge a fish by its ability to climb a tree…”We know how functioning labels are not helpful, despite being largely used by neurotypicals. But some autistics also grade members of our community and I want to understand why.

  • Picture of a smiling woman with light brown hair in a pony tail,she is wearing a purple shirt with a black jacket. the text reads "It's the hardest thing to put up with."

No Limits: People With Cerebral Palsy v Condescending Tools

No Limits: People With Cerebral Palsy v Condescending Tools.

Grit Media

Grit Media promotes the rights and aspirations of people with disabilities by creating opportunities to be seen and heard in a range of media productions. Our productions bring disability awareness into peoples' homes through the depiction of realistic, compelling and entertaining content, that encourages audiences to see disability as a natural part of life. The organisation provides training opportunities for people with disabilities and aims to encourage the wider media industry to join our battle against a culture of harmful misconception and ignorance about disability. Welcome to Grit Media.

Self-Advocacy Organizational Development Grantees Announced

In 2011 and 2012, the Administration on Intellectual and Developmental Disabilities (AIDD) supported 9 regional Self-Advocacy Summits in collaboration with the National Association of Councils on Developmental Disabilities (NACDD), the National Disabilit

Awesome Resource : Tiny Grace Notes (AKA Ask an Autistic)

We absolutely love Tiny Grace Notes. Check it out, you will too. Elizabeth (Ibby) Grace is brilliant, kind, and all around wonderful. Got a question about autism? Send it to Dear Ibby! Ibby is an education professor, a researcher, a mom, and Autistic. There is something about Ibby. She is one of those people who are easily able to convey warmth, respect, goodness, and so much information in  just in a couple of paragraphs. Read her blog, you'll see. But, carve out some time, you won't read just one.  

Raising Rebel Souls

We are huge fans of Raising Rebel Souls. Heather  is an incredible writer and advocate, and stood firmly with Henry:) Here's a bit about Raising Rebel Souls: Rebel Mommy: I am Rebel Mommy, also known as Heather. I have been given a lot. I am lucky in love. Yes, my hands are full, yes, I drink too much coffee, yes, my dishes are currently piled up and no, I am not a good housewife, but yes, I am a damn good Mother. I was born to do it. I swear to you, my life before my sons, was just me

It is About Respect

Respect for one another is one basic quality if we want to have meaningful conversations and relationships with other human beings. The ableism that disabled people experience is a form of disrespect.

My Top Ten

These are the top 10, now top 18 things I need for teachers, therapists, doctors, friends and family to know.

My iPad Is Not a Toy

Please never refer to my iPad as a toy. It is not. It is my voice. Imagine if you could not speak with your mouth how important your iPad voice would be.

  • Boy with brown hair and blue and white checked shirt holds sign that reads The Civil Rights Act of 1964 granted equal rights to all people. I am a person. I want these rights.

Standing Together for Inclusion

Standing together for inclusion, communication and civil rights. Please include all kids in your classroom.

Henry’s Road to Inclusion Part 1

Henry met Tracy, Larry, Harvey Lavoy, and Pascal Cheng on June 9, 2011. It was a very special day, one that would change Henry's life forever.

UNH IOD Standing With Henry

But after watching Wretches and Jabberers, a film about autism and self-advocacy, Henry’s way of interacting with the world changed radically. He realized that he had a voice, could use it, and had a right to participate in discussions about his education and life.

Amy Sequenzia: I Need to Thank Some People

After “Non-speaking, ‘low-functioning’” was published, lots of people wanted to hear from me. I met so many amazing people, autistic bloggers with so much to share and the smartest people I know. Parents of autistic children also valued my words.

Ollibean: All of a kind

The faces of Ollibean are kids with and without disabilities all trying to make the world a better place.

  • boy wearing a turquoise tshrt that reads "Not being able to speak is not the same as not having anything to say" sitting on couch one hand on iPad one hand on his dog . The dog is yellow lab/golden mix .

Henry Frost on Inclusion on the Autistic Self Advocacy Network

Henry wrote about inclusion for the Autistic Self Advocacy Network, read the entire article here. Ari Ne'eman, president of the ASAN, had an enormous impact on Henry's decision to speak out about his desire to attend his neighborhood school. "I met Ari at theAutism Summer Institute. I wrote to him about my school and he understood. He helped me advocate for my rights. ASAN helped with the petition. He is also autistic. He is also my friend. I did not read about a person who liked being in a separate school away from their friends learning cooking for life skills

Shouldn’t Every Day Be International Day of Persons with Disabilities?

We are committed to removing barriers to create an inclusive and accessible society for all. Not just on December 3rd, but each and every day.

I Am

How do you talk to someone who uses AAC?

  • I Stand With Henry

Autistic Student Wins the Right to Go to School

Henry Frost had a pretty simple goal: he wanted to go to school like any other kid.

Emily Willingham “Autism Bingo: The Congressional Hearing Version”

Our science editor Emily Willingham live-tweeted Thursday's Congressional autism hearing from the perspective of a scientist, autism parent, critical thinker, and human. She Storified and annotated the experience, turning offensive keywords and laughable

Autism on CSPAN Washington Journal

Hi. My name is Henry Frost. I am a 13 year old Autistic self advocate. I agree with Ari Ne'eman. This is a civil rights issue. Communication and inclusion are basic civil rights. I made this video about civil rights. I made a FB page and petition so I could go to school in my neighborhood. Ari and ASAN helped me advocate. http://www.facebook.com/IStandWithHenry , change.org/henry People all over the world wrote this is a civil right. We want the same things in life. We are not so different. Please watch to understand how much we need support for

Get Schooled: Jack Black Rocks “Sensitive”

AUTISM IS AWESOMISM . LOVE this video performed by the incredible Wyatt Isaacs (Autism the Musical), Jack Black, Stephen Stills from the Miracle Project Benefit.

Amy Sequenzia: I, Too, Want to Understand.

Why would a parent of an autistic child decide that it is better not to listen to other autistics? Why? I, Too, Want to Understand.

Adding the I to IEP: H is at the table

We worked with the wonderful team at H’s Distributed Learning School to update his Individual Education Plan (IEP) and for the first time ever H was there to take part. He wasn’t completely interested – but we built-in other options for him so he could p

Amy Sequenzia: To You, Young Autistic Friend

Autistic advocate and poet Amy Sequenzia's message of acceptance and respect for young autistics for 2012 Autistics Speaking Day. "There is nothing wrong with being who you are. You are perfect in your uniqueness."

For collegians with disabilities, success linked to mentoring, self-advocacy

(Phys.org)—A Rutgers study of recent New Jersey college and university graduates with disabilities has found that students attributed their academic success to a combination of possessing such strong personality traits as self-advocacy and perseverance,

  • Ollibean Think Tank Amy Sequenzia Advocacy on turquoise and green background

Supporting Young Autistics

We hope that young autistics today will be proud of themselves and without shame. The message that boy received at that moment was the opposite of acceptance. It was ableist and it came from someone who is part of our own community.

Why is a 13 year old protesting in order to go TO school?

How did we get here? How did we get to a point that our 13 year old son has to fight for the rights that are already his under federal law? How did we get to a place where a pretty reserved kid has the courage, the will, to do this?

Bureaucrats

You look at me But you don’t see me You talk about me but not to me You think you know all about me But you deny my humanity You think I don’t have wishes You believe I don’t have plans You don’t respect my basic rights According to you I should be grateful That I have a place to sleep That I have three meals a day If I say I want to go out You ignore me To you I am only a burden Too disabled to have an opinion To you I don’t count as a person

Presume My Competence

Really, this is number one. Please presume my competence.

  • Top 10 things I need you to know

Focus on My Strengths

#4 Please focus on My Strengths. I have many. We all do.

I Stand With Henry

What Henry is doing is advocating for his rights, at the same time that he reminds us of our own rights and about how far we still have to go.

Top 10 Things Autistic Self Advocate Needs Teachers to Know : # 3

Top ten things I want you to know. Number 3: Please talk directly to me, not to my support person.

  • boy wearing a turquoise tshrt that reads "Not being able to speak is not the same as not having anything to say" sitting on couch one hand on iPad one hand on his dog . The dog is yellow lab/golden mix .

Autistic Student’s Top 10 List for Teachers of Students with Special Needs #2

Top ten things Autistic student wants teachers, therapists and friends to know about students with special needs... they may be shocking to some of you, but hopefully to most they are exactly what you expect. Here's number 2.

  • Girl with brown hair , blue tshirt is holding an iPad out in front of her. Her face is obscured by the iPad. Boy with Brown Hair holds a white sign that says " The Civil Rights Act of 1964 granted equal rights to all people. I am a person. I want these rights.

A Sister Stands with Her Brother: I Am Heard, I Am Important, and I Am Included

No one wants to be the excluded one, the one to stand alone in silence, the one left out of the conversation. No one wants to be forgotten. So why are some individuals treated this way? Luckily it just takes one person to stand up and include, and the rest will follow. Be that person, take a stand, make a difference.

A Poem About Pain

Other people have written better articulated articles about the same things I write in this poem. It is hard for me to elaborate beyond the words in the poem. It could have easily been me in some cases, it can happen to any of us.

I am the 20 % and the RNC

Henry takes his bi-partisan message of inclusion and civil rights for all to the Republican National Convention.

My Civil Rights

Inclusion, Martin Luther King, Jr, The Civil Rights Acts of 1964 and education.

  • Ollibean Think Tank Amy Sequenzia Advocacy on turquoise and green background

Amy Sequenzia : Friendship and Respect

It is a mistaken idea that we, autistics, lack empathy. It is also a myth that we are not social. My friends and I, we understand and respect differences. And we understand that we all have a lot to contribute, in a diversity of manners.

Amy Sequenzia: “Storm”

"Storm" a poem by autistic self-advocate Amy Sequenzia.

  • Because we are all human beings and ‘disability’ does not define a person. And I hated social injustice and inequality from a very young age. I dislike ‘disability labels’ and I feel that children deserve something better than to be segregated and denied an equal education and a means of communication on grounds of disability. Richard Attfield activist. author. human.

Change Leader: Richard Attfield

Richard Attfield, a contributing author to "Autism and the Myth of the Person Alone", is passionate about the rights of children with disability labels to have equal access to education and communication supports.

  • “I can’t speak for my friends, but labels hinder my life. I reject labels. I am just me.” Amy Sequenzia

Amy Sequenzia: “Just Me”

Amy Sequenzia writes about rejecting society's many labels. Perceptions such as “super spectacular” autistic and “low-functioning” are equally harmful .

Introducing Ollibean Change Leaders

Introducing Ollibean Change Leaders - comprised of the most innovative, passionate doers on the planet. Folks out there blazing a trail for the rest of us, leaders in advocacy, inclusive education, cutting edge medicine, technology, human rights, the arts, disability rights, and philanthropy. They are changing things for people of all abilities. They are the Einsteins, the Ghandis, the Martin Luther Kings, the Helen Kellers of our generation. You’ve probably heard of most of them, and if you haven’t, you will. We all have the power to create real change and make our world a better place, we just have to

Change Leader: Larry Bissonette

Our first Change Leader is artist and disability rights advocate, Larry Bissonnette. Larry's art, writing, presentations, and films are changing perceptions about disability around the world. His quote in Wretches & Jabberers, "More like you than not" says it all.

  • Amy Sequenzia

Amy Sequenzia: Respect How I Choose to Speak

I type my words because I am non-speaking. One of my disabilities, or one characteristic of my disability, is that my body does not move like my brain wants. That of course, includes my arm. And I use my arm, my hand and my fingers to communicate. I also need the support of someone to help me coordinate and synchronize my brain and my finger. I need to define support. It is the physical support of helping me type slower than my brain works, being able, at the same time, to feel my movement, knowing when to let go, when

HHS Announces New Members of Interagency Autism Coordinating Committee (IACC)

Health and Human Services (HHS) Secretary Kathleen Sebelius announced today that she has invited 15 individuals to serve as public members on the Interagency Autism Coordinating Committee (IACC). The IACC is a federal advisory committee established by th

The Upside of Autism

When it comes to disorders of the mind, our society has a tendency to seek out the safety of clear-cut categories. We want there to be a bright line separating normal from abnormal, health from sickness. Alas, the human brain is a category buster, an org

School bans disabled girl from using walker

Kristi Roberts was stunned when school officials insisted that her disabled 5-year-old daughter switch to a wheelchair from the walker she’d been using for the previous two years. Little LaKay had battled cerebral palsy and epilepsy since she was born, a

Outsourcing to the Autistic Rather Than to India

Part of the reason autism has captivated Hollywood movie makers more than other development disabilities is that, for all the difficulties it brings those who have it, it also gives some of them the ability to perform uncanny feats of brainpower: effortl

Helping Rare Disease Patients Find Their Voice

Stephen P. Spielberg, M.D., Ph.D., FDA’s deputy commissioner for medical products and tobacco, talks about lessons learned from the study of rare diseases. Patients often need advocates, and that can be especially true for people with a rare disease, who

Institute on Human Development and Disability

The Institute on Human Development and Disabililty (IHDD) has been Georgia’s University Center for Excellence in Disability Research, Education and Service (UCEDD), and ranks as one of The University of Georgia’s oldest continuously-funded federal programs. The IHDD works with people who have disabilities and others, to ensure that all people can achieve their highest capacity and quality of life.  

UNESCO | United Nations Educational, Scientific and Cultural Organization

UNESCO works to create the conditions for dialogue among civilizations, cultures and peoples, based upon respect for commonly shared values. It is through this dialogue that the world can achieve global visions of sustainable development encompassing observance of human rights, mutual respect and the alleviation of poverty, all of which are at the heart of UNESCO’S mission and activities. The broad goals and concrete objectives of the international community – as set out in the internationally agreed development goals, including the Millennium Development Goals (MDGs) – underpin all UNESCO’s strategies and activities. Thus UNESCO’s unique competencies in education, the sciences,

CART Interpreting

The Alexander Graham Bell Association for the Deaf and Hard of Hearing (A.G. Bell) filed two amicus briefs within days of each other in federal courts of appeal supporting the right of students who are deaf and hard of hearing to receive Communication Ac

A boy’s talk about his Asperger’s resonates in his school

Since Jack Lebersfeld told the entire sixth grade he has Asperger's syndrome and explained what that meant, his speech has taken on a life of its own that Jack and his parents could have never imagined. Asperger's is one of the autism spectrum disorders

Team Hoyt

Team Hoyt is an inspirational story of a father, Dick Hoyt, and his son, Rick, who compete together in marathons and triathlons across the country. Team Hoyt strives to help those who are physically disabled become active members of the community.   .

Advocates Incorporated

Advocates is a not-for-profit 501(c)(3) parent-directed organization providing services to individuals with developmental disabilities and their families.  As an organization, we were started by parents of children with developmental disabilities with the goal of full inclusion for their children.    

Center for Literacy and Disability Studies at UNC

The Center’s mission is to promote literacy and communication for individuals of all ages with disabilities. It is the belief of the CLDS that disabilities are only one of many factors that influence an individuals ability to learn to read and write and to use print throughout their life and across their living environments.All individuals, regardless of their abilities or disabilities, have the right to an opportunity to learn to read and write in order to increase and enhance their educational opportunities, vocational success, communicative competence, self-empowerment capabilities, and independence.

OlliNepal: Why Nepal ?

You can help kids with diffabilities in Nepal. We’re making it super easy. For person that joins our community we will donate $2 to support children in Nepal.You’ll also be entered for a chance to win an iPad at the same time. Now share this with everyone you know and show the world how easy it is to make a difference.

An Update on Amelia

By Tim Shriver Several weeks ago, I wrote about a young girl named Amelia Rivera who was denied consideration for a kidney transplant at the Children’s Hospital of Philadelphia because she was, according to her doctors, “mentally retarded.” Amelia is now in the process of being considered again for a transplant. Our lesson is that we cannot let Amelia’s story be an isolated call to arms. We must continue to seek change and advocate for the dignity of every human life.

Amy Sequenzia “Be Proud of Who You Are”

"Feeling sorry for our disabilities means not accepting ourselves. I feel sorry because disabilities rights are still lacking, not because I am disabled. My message is, hopefully, about our strength and similarities". Amy Sequenzia

  • Photo of girl kicking with balloons in background. Text reads: RESOURCES we love. Ollibean logo.

SoulTouchin’ Experiences

Keith Jones & SoulTouchin' Experiences  SoulTouchin' Experiences is a Resource We Love! SoulTouchin' Experiences is an endeavor founded on the belief that in order to build a stronger community, there must be a heart and soul commitment to those who need assistance in order to begin caring for themselves and in turn caring for others. This is achieved through collaborative partnerships and progressive advocacy efforts, aimed at community empowerment along with systemic policy change for persons with and without disabilities on a local and national leve.l Keith P. Jones, started SoulTouchin' Experiences to bring a perspective to the issues

E.A.S.E. Sri Lanka

E.A.S.E. Sri Lanka  E.A.S.E. campaigns to educate the public on the rights and the abilities of people with disabilities. They do presentations to interested groups, workshops targeting parents and professionals and disseminate knowledge of alternative communication techniques. Most importantly E.A.S.E. changes people's minds about what is possible for a person with significant disabilities. Chandima is a powerful voice for the hidden competencies of people with disabilities. After his presentation “On Autism” Dr. Shavindra Dias, Psychiatrist and Lecturer, Dept. of Psychiatry, Faculty of Medicine, University of Peradeniya said; “We have been walking in darkness you have enlightened us. You are

The Loud Hands Project

Love this video published by the Autistic Self Advocacy Network. Share it, Post it, Donate at http://www.indiegogo.com/The-Loud-Hands-Project?a=351448 so they will make more:)

Operator of N.Y. Group Homes Thrived Despite Lapses in Care – NYTimes.com

The federation has amassed more citations for serious lapses of care than any other organization in the state licensed to run group homes for developmentally disabled people — those with autism, Down syndrome or cerebral palsy. An analysis by The New York Times of state inspection data from 2004 to 2010 found that the federation had been cited 27 times; via Operator of N.Y. Group Homes Thrived Despite Lapses in Care - NYTimes.com.

Geri Jewell: Geri-ism #2: Unmasking the Real Disabilities

It involves the beating of a 16-year-old girl with cerebral palsy. The perpetrators were the girls' parents -- primarily her father, Judge William Adams, who serves as a family law judge in Texas. It was very graphic and painful to watch, but I forced myself to see the whole thing through. via Geri Jewell: Geri-ism #2: Unmasking the Real Disabilities.

Senate Introduces Bill Limiting Restraints, Seclusion – On Special Education – Education Week

A U.S. Senate bill filed late last week would limit physical restraint and locked seclusion of students—measures often used with students with disabilities who are considered out of control, harmful to themselves or others, or in need of being calmed. Iowa Democratic Sen. Tom Harkin's "Keeping All Students Safe Act," via Senate Introduces Bill Limiting Restraints, Seclusion - On Special Education - Education Week.

UNH Institute on Disability Launches Person-Centered Planning Tool

Look Back, Plan Forward, a new website launched by the UNH Institute on Disability, will help individuals with disabilities and people who are aging to capture their life stories in ways that can inform caregivers and service providers about the individual’s history, values, preferences, and support needs during the person-centered planning process. via UNH Institute on Disability | News > Institute on Disability Launches New Online Person-Centered Planning Tool.

Broadreach Training and Resources

Norman Kunc and Emma Van der Klift have spent the last 25 years working to ensure that people with disabilities are able to take their rightful place in schools, workplaces, and communities. Although they are well known advocates within the disability rights community, they prefer to think of themselves as modern day storytellers, continuing the long held tradition of using humour and narrative to initiate self-reflection and social change.

Association on University Centers on Disabilities (AUCD)

AUCD envisions a future in which everyone, including people living with developmental and other disabilities, are fully integrated, participating members of their communities. We envision a future in which culturally appropriate supports that lead to independence, productivity, and a satisfying quality of life are universally available across the life span. AUCD's mission is to advance policy and practice for and with people with developmental and other disabilities, their families, and their communities by supporting our members in research, education, and service activities that achieve our vision. AUCD values the participation of people with disabilities, family members, and a culturally diverse

Autism Society

The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. They do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.

United States International Council on Disabilities

The U.S. International Council on Disabilities (USICD) is a non-profit, membership, constituent-led organization committed to building bridges between American and international disability communities and cultures. Through a wide range of projects and programs, USICD promotes the inclusion of disability perspectives in U.S. foreign policy and aid and provides opportunities for domestic disability rights organizations to interface with their international counterparts. USICD’s major initiatives leverage a membership that spans organizations and individuals in more than 30 U.S. states and a number of foreign countries. USICD's Board of Directors includes leading experts in domestic and international disability issues.

World Institute on Disability

The mission of the World Institute on Disability (WID) in communities and nations worldwide is to eliminate barriers to full social integration and increase employment, economic security and health care for persons with disabilities. The World Institute on Disability (WID) creates innovative programs and tools; conducts research, public education, training and advocacy campaigns; and provides technical assistance. The World Institute on Disabilities spearheads initiatives in four main categories: health and wellness, employment and benefits, climate change and disaster prep, and international. The Values of  the World Institute on Disabilities are listed below. Working toward Equality The World Institute on Disability aspires to work

United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. UCP and its nearly 100 affiliates have a mission to advance the independence, productivity and full citizenship of people with a spectrum of disabilities by providing services and support to children and adults every day—one person and family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities to ensure the inclusion of individuals with disabilities in every facet of society.

Technology & Telecommunications Task Force

The Telecommunications and Technology Task Force, part of the Consortium for Citizens with Disabilities deals with issues related to access to telecommunications and assistive technology in education, employment and independent living.

Spina Bifida Association of America (SBAA)

The Spina Bifida Association (SBA) serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service.

SABE – Self Advocates Becoming Empowered

Self Advocates Becoming Empowered (SABE) is the self-advocacy organization of the United States. Founded in 1990, we have been working hard for the full inclusion of people with developmental disabilities in the community throughout the 50 states and the world for 21 years. Our non-profit advocacy organization is run by a board of self-advocates representing 9 regions of the country.

Rights Task Force

The Rights Task Force is part of The Consortium for Citizens with Disabilities and focuses on civil rights and protections for people with disabilities, and for enforcement of rights provisions by federal agencies. Issues covered include the Americans with Disabilities Act (ADA), Section 504, and protections secured through the Individuals with Disablities Education Act (IDEA)

By |December 28th, 2011|Categories: Advocacy, General, Politics, Resources|Tags: , , , , , , |0 Comments

President’s Committee for People with Intellectual Disabilities

The mission of PCPID is to provide advice and assistance to the President of the United States and the Secretary of Health and Human Services on a broad range of topics that impact people with intellectual disabilities and the field of Intellectual Disabilities. Undergirding the Committee’s mission is the goal to improve the quality of life that is experienced by people with intellectual disabilities, by upholding their full citizenship rights, independence, self-determination, and life-long participation in their respective communities.

Office for Civil Rights

The mission of the Office for Civil Rights is to ensure equal access to education and to promote educational excellence throughout the nation through vigorous enforcement of civil rights. An important responsibility is resolving complaints of discrimination. OCR also provides technical assistance to help institutions achieve voluntary compliance with the civil rights laws that OCR enforces. An important part of OCR's assistance is partnerships designed to develop creative approaches to preventing and addressing discrimination.

National Information Center for Children & Youth with Disabilities

NICHCY serves the nation as a central source of information on: ■disabilities in children and youth; ■programs and services for infants, children, and youth with disabilities; ■IDEA, the nation’s special education law; and ■research-based information on effective practices for children with disabilities.

The National Down Syndrome Society

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.

Will A $35 Product Change Multi-billion-dollar Indian Education System

Education has always been a high priority for the Indian government. Although the percentage of GDP (gross domestic product) spent by India on education lags behind the developed countries, it has increased over the past years. The Right to Education Act

The National Association of Parents with Children in Special Education

The National Association of Parents with Children in Special Education (NAPCSE) is a national membership organization dedicated to rendering all possible support and assistance to parents whose children receive special education services, both in and outside of school. NAPCSE was founded for parents with children with special needs to promote a sense of community and provide a national forum for their ideas.

Disability Rights Education and Defense Fund

The Disability Rights Education and Defense Fund, founded in 1979, is a leading national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities. The mission of the Disability Rights Education and Defense Fund is to advance the civil and human rights of people with disabilities through legal advocacy, training, education, and public policy and legislative development.

Stories From The Road | Chapter Eight | “On Common Ground”

"On Common Ground": While in Houston to speak to teens at "Stand Up! For Inclusion" a conference aimed at inspiring youth to make a difference in the world, Larry takes time to exchange creative ideas with a young artist.

Stories From The Road | Chapter Thirteen | “The End Of The Road”

"The End Of The Road": Larry and Tracy take time to reflect on their spiritual journey of disability awareness as they prepare for the theatrical premiere if their film, "Wretches & Jabberers" in New York City.

Stories From The Road | Chapter Nine | “Lightning Rods”

"Lightning Rods": The Vermonters meet up with Stephen Kuusisto, author of "Planet of the Blind". He interviews Larry and Tracy about the journey they took while making "Wretches & Jabberers" and shares a few insights of his own about his disability.

Stories From The Road | Chapter Ten | “Apple Store Adventures”

"Apple Store Adventures": While in New York City to promote the theatrical release of the film, the Vermonters take an opportunity to visit the Apple Store and try out the new iPad 2.

Stories From The Road | Chapter Seven | “Stand Up! For Inclusion”

"Stand Up! For Inclusion": Larry, Tracy, Harvey & Pascal speak to teens in Houston at the 26th Annual BBYO Lonestar Convention. The theme of this year's convention is "Stand Up! For Inclusion" to inspire youth to make a difference in the world around them.

Stories From The Road | Chapter Twelve | “All That’s Newsworthy”

From our friends at Stories from the Road, "All That's Newsworthy": Larry and Tracy join director Gerardine Wurzburg on the WPIX Channel 11 Morning News to discuss the upcoming theatrical release of their documentary 'Wretches & Jabberers'. The guys get the star treatment as they share their experiences with anchor Jim Watkins.

Stories From The Road | Chapter Eleven | “Teaching The Teachers”

"Teaching The Teachers": The Vermonters are invited to speak at Teachers College at Columbia University. A subway ride brings them to their destination as they find open minds, caring hearts, and an invitation for beer!

Stories From The Road | Chapter Six | “Mile-High Marvels”

"Mile-High Marvels": Larry, Tracy, Harvey & Pascal are asked to speak about their experiences making "Wretches & Jabberers" at the 35th Annual TASH Conference held in Denver, Colorado.

Stories From The Road | Chapter Five | “A Small World After All”

More from the amazing W & J and State of the Art/Dan Curl. "A Small World After All": Tracy invites Finnish friends Henna and Antti to join him at his monthly task force meeting at Community Developmental Services in Barre, VT. Here other people with autism advocate for people with communication challenges, quality of life initiatives, and increase public awareness.

Stories From The Road | Chapter Four | “Breakfast at Larry’s”

From our friends at Wretches & Jabberers, "Breakfast at Larry's": Larry invites visiting international friends Chammi, Antti & Henna to his home for a traditional Vermonter breakfast. With the help of his sister Sally, Larry hosts a meal not soon forgotten!

Stories From The Road | Chapter Three | “Wretches Reunite”Stories From The Road | Chapter Three | “Wretches Reunite”

"Wretches & Jabberers" co-stars from Finland and Sri Lanka descend upon Burlington, Vermont to visit Larry and Tracy and discuss how the film has impacted their lives.

Stories From The Road | Chapter One | “A Night With The Stars”

"A Night With The Stars": Larry, Tracy, Harvey & Pascal take to the road to promote a new documentary titled "Wretches & Jabberers" following their recent "World Intelligence Magnified Tour". Their first stop is Syracuse, NY where they meet with the Disability Cultural Center Initiative at Syracuse University and answer questions about the film.

Stories From The Road | Chapter Two | “Syracuse International Film Festival”

"Syracuse International Film Festival": Larry, Tracy, Harvey & Pascal on the road to promoting "Wretches & Jabberers" following their recent "World Intelligence Magnified Tour". Their second stop was Syracuse, NY is to present the film and their personal narratives at the Syracuse International Film Festival.

On Beauty

We are in love with 'On Beauty" the documentary by Joanna Rudnick. She follows the talented Rick Guidotti as he challenges public perception of difference and beauty through the lives of three exquisite women.

The Making of Sensitive

From The Miracle Project..the making of "Sensitive", a song about bullies. Wyatt Isaacs sings with Jack Black. Stephen Stills produces it a la sex pistols, with his signature guitar! Learn more about The Miracle Project at www.themiracleproject.org , you will love it as much as we do!

Carly Fleischman on 20/20

Carly Fleischmann, on 20/20 in 2009. Carly is diagnosed with autism and types to communicate. She is an incredibly intelligent self-advocate who is helping change how the world sees people who communicate differently. We are huge fans! Please check out her website for more information http://carlysvoice.com.

Institute on Communication and Inclusion

The Institute on Communication and Inclusion (ICI) is a research and training center that is part of the Inclusion Institutes of the School of Education at Syracuse University. Formerly the Facilitated Communication Insitute, our new name - the Institute on Communication and Inclusion - represents a broadened focus developed over the past 20 years, reflecting lines of research, training and public dissemination that focus on school and community inclusion, narratives of disability and ability, and disability rights, as well as research and training on faciltiated communication. Its initiatives stress the important relationship of communication to inclusion.   Led by Director

Kit( Kids Included Together)

Kids Included Together (KIT) specializes in providing best practices training for community–based organizations committed to including children with and without disabilities into their recreational, child development and youth development programs. Utilizing a blended learning style with interactive eLearning components, KIT’s services are provided free of charge to its 63 affiliate organizations representing over 304 sites in San Diego County. Since its inception in 1997, Kids Included Together (KIT) has trained over 25,000 youth providers in the best practices of inclusion. Over 15,000 children with disabilities have been co–enrolled with over 265,000 children without disabilities at KIT affiliate sites. 72% of

People First

People First is an organization run by and for people with learning difficulties to raise awareness of and campaign for the rights of people with learning difficulties and to support self advocacy groups across the country. People First promotes the social model of disability. This is a way of thinking about disability that says it is society that needs to change to include disabled people. We should not have to change to fit in with society. We are against the medical model of disability, which is the view that being disabled means there is ‘something wrong’ with you. Doctors and

National Association of the Deaf (NAD)

The NAD is the nation's premier civil rights organization of, by and for deaf and hard of hearing individuals in the United States of America. Established in 1880, the NAD was shaped by deaf leaders who believed in the right of the American deaf community to use sign language, to congregate on issues important to them, and to have its interests represented at the national level. These beliefs remain true to this day, with American Sign Language as a core value. The advocacy scope of the NAD is broad, covering a lifetime and impacting future generations in the areas of

The National Association of Councils on Developmental Disabilities

The National Association of Councils on Developmental Disabilities (NACDD) is a national membership organization representing the 55 State and Territorial Councils on Developmental Disabilities. NACDD is a 501(c) 3 organization with the purpose of promoting and enhancing the outcomes of our member councils in developing and sustaining inclusive communities and self directed services and supports for individuals with developmental disabilities.

National Arts and Disability Center

The National Arts and Disability Center (NADC) is a project of the University of California: their mission is to promote the full inclusion of audiences and artists with disabilities into all facets of the arts community. The NADC is a leading consultant in the arts and disability community, and the only center of its kind. Recipients of our technical assistance include museums, performing arts organizations, art centers, film and television companies and unions, universities and colleges, national publications, disability specific groups, artists with disabilities, arts educators, students, arts administrators and government policy makers.

Institute for Community Inclusion

The Institute for Community Inclusion offers training, clinical, and employment services, conducts research, and provides assistance to organizations to promote inclusion of people with disabilities in school, work, and community activities. For over 40 years, the Institute for Community Inclusion (ICI) has worked to ensure that people with disabilities have the same opportunity to dream big, and make their dreams a fully included, integrated, and welcomed reality. As a leader not only in Massachusetts, but also nationally and internationally, the Institute for Community Inclusion strives to create a world where all people with disabilities are welcome and fully included in valued roles wherever

Disability.gov

Disability.gov is a federal government website that provides an interactive, community-driven information network of disability-related programs, services, laws and benefits. Through the site, Americans with disabilities, their families, veterans, educators, employers and many others are connected to thousands of resources from federal, state and local government agencies, educational institutions and non-profit organizations.

TASH- Disability Advocacy Worldwide

TASH is an international leader in disability advocacy. Founded in 1975, TASH advocates for human rights and inclusion for people with significant disabilities and support needs – those most vulnerable to segregation, abuse, neglect and institutionalization. TASH works to advance inclusive communities through advocacy, research, professional development, policy, and information and resources for parents, families and self-advocates. The inclusive practices TASH validates through research have been shown to improve outcomes for all people. TASH is governed by a board of directors and is supported by a network of members, volunteers, committees and chapter organizations. The TASH membership includes a diverse

Council of Parent Attorneys and Advocates

The Council of Parent Attorneys and Advocates’ mission is to be a national voice for special education rights and to promote excellence in advocacy. Their primary goal is to secure high quality educational services for children with disabilities. The Council of Parent Attorneys and Advocates (COPAA) is premised on the belief that the key to effective educational programs for children with disabilities is collaboration -as equals- by parents and educators. This is the premise of the Individuals with Disabilities Education Act (IDEA) and Section 504 of the 1973 Rehabilitation Act, the federal statutes that guarantee children with disabilities a free, appropriate

Council for Exceptional Children

The Council for Exceptional Children is an international community of professionals who are the voice and vision of special and gifted education. CEC's mission is to improve, through excellence and advocacy, the education and quality of life for children and youth with exceptionalities and to enhance the engagement of their families. The Council for Exceptional Children is a premier education organization, internationally renowned for its expertise and leadership, working collaboratively with strategic partners to ensure that children and youth with exceptionalities are valued and full participating members of society. As a diverse and vibrant professional community, CEC is a trusted

The Council on Quality and Leadership

The Council on Quality and Leadership is leader for person-centered supports and services for people with disabilities, people with mental illness and older adults. Through our services, publications and public presence, we establish real connections between theory and practice and help organizations and systems take the important step from innovative ideas to everyday action. Our goal is to be partners and mentors to our customers, showing them how they can become even better at ensuring that all people lead lives of dignity and quality.

Consortium for Citizens with Disabilities

The Consortium for Citizens with Disabilities is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The Consortium for Citizens with Disabilities (CCD) envisions an American society in which all individuals, aided by an enabling government, have the freedom and opportunity to exercise individual decisions concerning their own lives, welfare and personal dignity. CCD envisions a society in which communities are fully accessible to all individuals with disabilities and their families, where

Best Buddies International

Best Buddies is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities (IDD). Founded in 1989 by Anthony Kennedy Shriver, Best Buddies is a vibrant, international organization that has grown from one original chapter to almost 1,500 middle school, high school, and college chapters worldwide. Best Buddies programs engage participants in each of the 50 United States, and in 50 countries around the world. Best Buddies’ seven formal programs – Best Buddies Middle Schools, High Schools, Colleges, Citizens, e-Buddies, Jobs

Autism Support Network

The mission of Autism Support Network is to connect, guide and unite. Their goal is to short-cut the uphill battle individuals and families undertake when faced with autism – whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information. Their support community collectively pools global knowledge and support from all those touched by ASD. Designed as a place by those living with ASD, for those with ASD, and those seeking social connection, peer guidance, and a feeling of community with those that understand.

Autism Society of America

The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. They do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.

The Arc of the United States

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities by actively supporting their full inclusion and participation in the community throughout their lifetimes.People with intellectual and developmental disabilities are entitled to the respect, dignity, equality, safety, and security accorded to other members of society, and are equal before the law. The Arc believes that people with intellectual and developmental disabilities belong in the community and have fundamental moral, civil and constitutional rights to be fully included and actively participate in all aspects of society and supports their self-determination and self-advocacy. People with intellectual and

ADA Portal

The ADA Document Portal Allows users to search a collection of ADA-related documents that have been produced by federal agencies and organizations receiving federal funds.

The Association of University Centers on Disabilities (AUCD)

The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. These programs are located in every U.S. state and territory and are all part of universities or medical centers and serve as a bridge between the university and the community, bringing together the resources of both to achieve meaningful change. AUCD programs also train the next generation of leaders in disability-related research, training, service delivery, and policy advocacy to insure that this essential work continues.

American Association of People with Disabilities

The American Association of People with Disabilities is the nation's largest cross-disability organization. They promote equal opportunity, economic power, independent living, and political participation for people with disabilities. Their members, including people with disabilities and their family, friends, and supporters, represent a powerful force for change. Over 50 million Americans with disabilities and their supporters have the power to achieve full civil rights for all. They are powered by their vision of a community whose voice is heard through the halls of government, in our culture, and in our communities.

Ad Hoc Developmental Disabilities Task Force

The Ad Hoc Developmental Disabilities Task Force monitors the Developmental Disabilities Bill of Rights Act and the administration of the program through the Administration on Developmental Disabilities. The Act is authorized every three years and regulations and policy guidelines are developed based on the statute. The Task Force also reviews other developmental disability related issues.

AAIDD

The American Association on Intellectual & Developmental Disabilities promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.

University Students Design Tray to Fit Most Walkers and Wheelchairs

THE GRAND RAPIDS PRESS  At 5 years old, Dakota Tomac wants to do things himself. He doesn’t want his cerebral palsy to require others to carry his book or figure out how he will get his lunch on the table.   His independent spirit got a boost with a tool created by Grand Valley State University students, thanks to an idea from a physical therapist at the Kent Intermediate School District.   The students made a tray that fits onto Dakota’s walker so he could move around at school and carry his iPad, which helps him communicate.   “It’s so

Who’s Leading Your Individualized Education Program (IEP)? The Importance of Self Advocacy – Part 2 of 2

This is Part 2 in a two-part blog post by Emalie Fogg provides guidance and resources for youth on how to get involved and take a lead in their own Individualized Education Program (IEP).  When we’re growing up, our families, teachers, and adults make most of the decisions about our lives. As we become teenagers it’s important to start participating in the decision-making so that as we near adulthood, we’re ready to decide things for ourselves. No one knows better than you do what you want for your life today and in the future (your goals), what you’re good at

By |December 12th, 2011|Categories: Advocacy, Articles|Tags: , , , |0 Comments

The Advocacy Center

The Advocacy Center empowers individuals with disabilities and their families to advocate for themselves and realize their personal goals. Together we build strong, inclusive communities by increasing the ability of community members to support and value all individuals.

Wretches & Jabberers Tampa Screening

The " World Intelligence Magnified Tour" took Tampa by storm. The screenings of Wretches & Jabberers the weekend of June 10 were an enormous success.

National Council on Disability Report Examines How to Improve Access to Health Care, Special Education and Services for USMC Family Members with Disabilities

WASHINGTON, Nov. 28, 2011 /PRNewswire-USNewswire/ -- On November 28, the National Council on Disability (NCD) will release "United States Marine Corps Exceptional Family Members: How to Improve Access to Health Care, Special Education, and Long-term Supp

By |November 28th, 2011|Categories: Advocacy, Articles, Politics|Tags: , , |0 Comments

Wretches and Jabberers at Tampa Museum of Art

Academy Award winner, Gerardine Wurzburg's documentary, "Wretches & Jabberers ", Screening and Q & A at Tampa Theatre . The rockstars of self advocacy, Tracy Thresher and Larry Bissonnette take Tampa by storm, shattering misconceptions of autism and intelligence.

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