• Photograph of aqua and blue ocean. Text reads "Sensory system needs change over time, JUDY ENDOW,MSW on Ollibean"

Autism and A Changing Sensory System

Something about autistic sensory difference that I do not see addressed in the literature is the fact that sensory system needs change over time.

Uncontainable Presence

You are anywhere You are anytime Daring and enticing Changes unexpectedly predictable The obstinate constant I see your bright presence Piercing my eyes Crawling into my brain The pain comes swiftly And then, the deafening silence My body shakes in your presence Uncontrollable moves A dance of two wills The music is mute Rhythmically disordered Darkness and pain I'm lost in a sea of dread Forlorn as you carefully exit Leaving behind misery I tremble as the silence roars As the pummeling beat of you presence leaves The sky cracks open in blue A blissful fatigue Exhausted excitement But your

  • Image of young boy with olive skin and black hair smiling. He is standing in the desert.

How Being Included Changed This Boy’s Life

Having opportunities to learn with everyone could access more opportunities for all.

Respectfully Connected: Journeys in Parenting and Neurodivergence

We are all about respect, so of course, Respectfully Connected is a Resource We Love!

The Pseudo Logic of “Not Autistic Enough”

Recently, I was told by a parent of a child on the autism spectrum that I am "not significantly enough affected by autism to be able to understand real autism" and therefore should stop speaking out about autism. Some aspects of my personal history (Endow, 2009) that you may find interesting include:   Was nonverbal for some time Had self-injurious behaviors Lived in an institution for some years of my childhood Lived in two different groups homes Diagnosed with classic autism I understand that as a parent of a child with significant needs you may look at me and look

In Sidewalk Cracks: Authentic Relationships

In Sidewalk Cracks: Authentic Relationships In life we play on sidewalk squares. You on your NT sidewalk square You jump to my square to help me out (and so does everyone else) That I need all the help you can give. You teach me to copy your ways. I jump to your square and copy you. You are happy because I am learning To copy your ways in the world. All I have is you helping me And me copying your ways. Is it a wonder the feeling of alien predominates? There is more to jumping over the sidewalk crack.

  • Image of young girl in multicolored hammock. She is smiling contently. "Loved As I Am" is in white text with small Ollibean logo.

LOVED As I Am

We can all use a daily reminder that we are loved, accepted and adored for being exactly who we are. Ollibean Goods of the Day- "LOVED as I am" , "You Are Loved" and "I Am Loved" .

Autism and Sorting Out Sensory Snags

All my life I have been easily overwhelmed by sound and motion.  I can hear things nobody else even notices such as the hum of electric devices that are plugged in even when the appliance or device is not in use such as the coffee maker on my kitchen counter.  I can hear fluorescent lights hum, the steady grind of ventilation systems in buildings and the crackling from inside my television when it is muted. When I am in the midst of much movement I tend to get dizzy.  This is really distracting because I am in busy places when

Why I Don’t Like “Awareness”

Awareness campaigns of disabilities are only effective if they are planned and run primarily by the groups that are the subjects of the campaign. This is because such campaigns are not “awareness”, but “acceptance” campaigns. We welcome support, with focus on respect, equality and access. We don’t need “awareness” of deficits and tragic rhetoric.

Autism, Differences and Murder

Ever since the not guilty verdict in the George Zimmerman trial and more recently, after a police officer shot and killed Michael Brown, I have been and continue to be very much afraid in the pit of my stomach. The not guilty verdict and the dragging on of the no fault attitude in Michael Brown’s shooting underlines the fact that in our society it is perfectly ok to track down, shoot and kill someone perceived to be acting different. We fear people who are different from us. Differences come in many forms. If you are White then someone Black is

Speeding, Autism and No Ticket Issued!

In the past few years I have had two encounters with the police while driving my car. The first time I pulled into a school parking lot, answered an email on my Blackberry, gathered my stuff together and let out a little scream, as I didn’t expect to see a police officer standing at my car door! “Good afternoon officer. How might I help you?” I inquired, knowing that it is very important to always be polite to a police officer. “Do you know why I am stopping you?” “No, I do not,” I replied honestly. “Do you know the

Attitudes – Information and Education

This is especially directed at parents, family members and all who spend a lot of time with disabled children. It also applies to adults, even if the way things happen when an adult is diagnosed or needs supports are different from how they happen with children. But we, disabled adults, also deserve to have supportive and informed people assisting us in navigating and participating in the world. When a child is diagnosed with a disability, or born disabled, it is said that parents, and family members, grieve. That's probably because the general perception of any disability is a negative one.

Visuals and Back to School Transitions

Our kids went back to school this month and likely many families are still struggling with the transition. It often seems that as the newness wears off, the getting-down-to-business-struggles begin. Autistic students have a particularly challenging time because their neurology does not permit them to automatically organize the world around them. Teachers and parents can support a child with autism to become more organized. For many it is an essential accommodation so they can be in a place to learn. Autistic students are often visual learners. This means that even though they may be verbal, as stress increases comprehension of

Attitudes – Grading People

Parents and family of disabled people should start demanding that everyone who is part of their children lives stops using functioning labels. We don’t need to be graded. We already have value.

ALL Students Should Be Safe at School

I spoke at Hillsborough County School District's board meeting on September 9, 2014 to address safety concerns for students with disabilities after Tamya Johson, a nine year old student on the autism spectrum was left sleeping on her school bus. The day after this meeting, September 10, Hillsborough School Bus Crash sends 21 people to the hospital. Transcript Mrs Elia, Board members, I’ve come to speak to you today to offer my help and the community’s help to do whatever we need to do to ensure all students are safe in our schools. Being safe while at school is the

The Case for Inclusion on The Inclusive Class Podcast

Check Out Education Podcasts at Blog Talk Radio with The Inclusive Class Podcast on BlogTalkRadio

How To Outsmart “Inflexible Thinking”

Because of my autism I have an autistic thinking style. One characteristic often attributed to me is “inflexible thinking.” Flexibility in thinking has to do with being able to adapt when circumstances change by adjusting or shifting from one expectation to another. This has never been easy for me, but I have learned how to live more comfortably with my autistic thinking style in a world where flexibility is much more highly valued than my inborn trait. First, I had to accept my own autism and the fact that I think differently (Endow, 2009). Self-acceptance doesn’t come easily for most

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The Impact of 250 Words on Literacy

Ollibean Literacy Lifehacks : Tools for parents and care providers without education backgrounds to easily provide literacy instruction. Sign up for our free Flashcards of the 250 Words that represent over two-thirds of captioned television.

Attitudes – Communication

Communication is not only speaking, typing, texting or signing. Communication is also being able to listen and understand, being accommodated to make interaction possible.

Pharrell’s “Happy” in Sign Language

Beautiful American Sign Language interpretation of Pharrell Williams's "Happy." An expression of music in ASL composed by Rosa Lee Timm and Azora Telford. The video was produced by a team of Deaf campers & staff from Deaf Film Camp 2014 at Camp Mark Seven. CAST Rosa Lee Timm Azora Telford -- Campers -- (coming soon) -- Teachers -- Bellamie Bachleda Braam Jordaan Bim Ajadi Sophia Ballester Tate Tullier Wayne Betts Jr -- Counselors -- (coming soon) -- Interpreter -- Drisana Levitzke-Gray EXECUTIVE PRODUCER (VIDEO) Convo VIDEO PRODUCER Stacy Lawrence Sophie Sok EDITOR Bim Ajadi CINEMATOGRAPHER/CO-EDITOR Wayne Betts, Jr. VISUAL

Attitudes – Introduction

When you are disabled there is a lot going against you. Not that disability is the worst thing someone can experience. It is not. Disability can be hard and some things can be very difficult to deal with. Some of us need medication and managing this can be difficult; some of us experience pain and this can be energy draining; others might have trouble with sensory processing; some might even need hospitalization from time to time. Different disabilities require different approaches, and different types of accommodations. What non-disabled people should remember is that we either learn how to live as

Supporting Autistic Relationships

As an autistic my connections to other people are perceived visually. In fact, I often need to have a concrete visual available in order to be able to think about my friends. A challenge I am often faced with is the erroneous presumption and resulting behavior of neuro-majority people when I need a visual in order to maintain a relationship. Many Autistics Are Visual Thinkers For those of us who are visual thinkers it seems logical that visuals would play an important part in developing relationships with others and in maintaining those relationships over time. In fact, many of us

  • Blue rectangle "250 words = over 2/3 CC" at the top of image. TURN ON THE CAPTIONS is beneath the image. Screenshot of Jobs movie with a blue circle with Ollibean Literacy Lifehacks .Image of close up shot of Ashton Kutcher, a white male with brown hair and brown eyes and beard is speaking. Closed captioning in white "How does somebody know what they want if they've never even seen it?" Next to this image are 12 flashcards- how, does, some, know, what, they, want, if, they, never , see, it".

250 Words Represent Over Two-Thirds of Captioned Television

"There are more than 500,000 words in the English language, but a person who masters only 250 words will recognize more than two-thirds of all words shown in television captions—provided the 250 words are those that are most frequently used. Equally dramatic, a beginning reader could be taught just 10 words—the, you, to, a, I, and, of, in, it, that—and then recognize more than one out of every five words. Mastery of the top 79 words means being able to read half of all words captioned." Source: Perspectives in Education and Deafness, Volume 16, Number 1, September/October 1997 Henry and

Lizzie Velasquez: Inspiring & Empowering a More Positive Online Environment

At only 25, Lizzie Velaquez is a motivational speaker, the subject of an upcoming documentary and author. In her viral TedX Talk, How Do YOU Define Yourself , Lizzie asks the audience to consider what defines them, and whether they're going to choose to give up in the face of negativity from others, or whether they're going to choose to be happy. After finding a video on Youtube which called her the ugliest woman in the world, Lizzie decided she was not going to let someone who had never met her, bully her – much less, define her. Lizzie has

Creating Visuals Instantly for Unpredictable Activities

As an adult with autism, knowing what will happen during each day is important to me. For children, who have much less life experience, it is often a deal breaker in terms of them being able to participate in life around them. Using visual schedules supports this need both at school and on ordinary days at home, but what about those times when life gets hectic or when spontaneity is in order? Why Visuals Work Having an autism neurology means that neither internal regulation (physical, sensory, emotions) nor external regulation (making sense of the world around us) just happens! We

On Disparity in Education: The Risks and Bravery of Being First

Being one of the first or the only students with any discernible divergence in any characteristic is dangerous, difficult, and involves tremendous courage. Over 50 years ago, at the beginning of a school year, the Little Rock Nine walked with angry white mobs behind them into their local high school to exercise their right to a public education with their white peers. Initially, the Arkansas national guard blocked their entrance by order of the Arkansas governor. Eventually, President Eisenhower ordered my stepfather's unit, the 101 airborne division, excluding my stepfather and all black soldiers, to escort the students to and

An Odyssey: Learning the Hidden Curriculum

Learning the hidden curriculum social rules of society remains a struggle for autistics long after they grow up. For example, even though I am an almost 60-year-old woman with autism, over the past few years, I have learned a lot of new-to-me hidden curriculum items. The hidden curriculum refers to all the social information that everybody seems to know but isn’t directly taught to anybody. Here’s an example: Don’t scratch your privates really means don’t let anybody see you scratch your privates. Guessing at Hidden Curriculum Rules Once I amassed a volume of hidden curriculum items I began being able

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Accessibility Is a Right Not a Privilege

Accessibility is a right not a privilege. 20 posts on Accessibility, Universal Design, and Inclusion   It's Time to Go Beyond Access Creating Equal Opportunities For ALL Students to Participate in School Athletics State Obligations UNESCO Accessible Instructional Materials (AIM) Inclusion Is A Right Not A Privilege Paula Kluth on The Inclusive Class Roundtable The National Center on Accessible Instructional Materials Why Would We Want Inclusive Education? Ollibean Spotlight: Kerima Cevik Pay It Forward Activist How AAC and assistive tech make classrooms better for all : Paula Kluth The Case for Inclusion Part 3: Sea Change Access to the

  • "Why would I want to grow out of my skin? Of my veins ? Because they grew so well with me. Jamie Sanders

I have Tourette’s. Please tell everyone.

This powerful performance by Jamie Sanders, spoken word poet and actor with Tourette's, covers bullying, shame, self-acceptance and empowerment in the best 150 seconds you'll watch this week.

Autism, Growing Up and Defining Friends

As an autistic, I have difficulties in the social arena in a multitude of ways. This was especially true during my growing up years. Even today as an adult, automatic social understanding is not my strong suit. I am, however, able to continually learn new things that enable me to do and be all I want in this world. Today, in my professional work I am able to provide some input to a variety of organizations and schools in regards to individuals with an autism label. One thing I consistently see regardless of where I go is the practice of

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The Benefits of Real Food

Guest post from Chasing the Spring's Dani Johnson on the life changing benefits of a blenderized diet made for her daughter. We were drawn to the great recipes Dani shares as well as her experience of learning from adult g-tube users.

Autism, Airports and Lifelong Learning

For most of my life airports have befuddled me. It didn’t so much matter earlier in my life because the only time I used an airport was to go to visit my parents in another state. Back then, before we had the heightened security of today, people were allowed to meet passengers as they stepped off the plane which allowed me to simply follow them through the airport without needing to concern myself with the confusion all around me.   In My 40’s Then, airport security changed. People picking up passengers could no longer go through the security checkpoint. I

Autism and Psychiatric Diagnoses

At different times during my growing up and even during my adult years autism wasn’t something people knew much about. I often came in front of mental health professionals. It is important to know that if you go to a mental health professional or take your child to a mental health professional in all probability you will walk out with a diagnosis of a mental condition as found in the DSM-5 – otherwise known as the Diagnostic and Statistical Manual of Mental Health Disorders In my adult life I obtained a master’s degree in social work. I did clinical work

Is Autism a Disability or a Difference?

So many ideas in the larger autism community often become a debate. As an autistic this black-or-white, choose-your-side sort of thinking is very neurologically friendly to me. I like clear choices. But I also believe we are often unwittingly duped into believing we need to choose a side only because the idea is presented as a dichotomous choice. “Is autism a disability or a difference?” is one of these questions posed as a dichotomous choice in the autism community. The way the question is posed gives the impression that there is one correct answer. When Autism is a “Difference” Many

Autistic Pride

I am proud of being Autistic And of my Autistic friends I am proud of young Autistics Who have Autistic pride They amaze me I am proud of young Autistics Who are discovering themselves They are learning to understand the world Through creative Autistic eyes They make me smile Young Autistics showering us with love Bonding, sharing, exploring and laughing With words, gestures and looks Their Autistic selves leading the way They lead their own way Henry stands up for his right to be We follow his lead and stand with him He teaches the meaning of never giving up

The Importance of Opportunity

Dillan Barmache, a 14 year old autistic student, delivers his powerful 8th grade commencement speech using his iPad and brings the crowd to their feet.

Losing an Autism Diagnosis

I am an almost 60-year-old autistic woman who can navigate the world in a way that surprises some people when they find out I have autism. My teen years were spent in an institution because people did not know what to do with my “behaviors” or with me. Today I am a self-employed author, speaker, consultant and artist with a master’s degree in Social Work. Question: Did I lose my autism diagnosis? Official Answer: Yes and No No, an Autism Diagnosis Cannot Be “Lost” Technically, once a person is diagnosed with anything that diagnosis becomes part of their medical records.

Henry

Some call him a kid Others say he is a young man But whatever you call him You need to know this: He is courageous Brave and resilient He will fight and he will win   It can be a fight for his rights When enemies come disguised as condescension It can be a fight for his dreams He will mobilize an army of friends To Stand With Him   He is an example to many He showed other students the possibilities Henry does not fight for himself He is changing perceptions, changing the world   Henry is a leader

Cry Me a River, Katrina Percy. Justice for LB!

I originally wrote this piece for the blog 107daysofaction.wordpress.com. I asked for permission to reprint it to help raise awareness on this side of the Atlantic about the story. If you'd like to get involved with Justice for LB and 107 Days of Action, please click here. I've recently been made aware of the story of the death of a young autistic man in the UK that's not getting any press that I'm aware of in the U.S. or Canada. I'd like to tell you Connor Sparrowhawk's story. Connor Sparrowhawk, known as "Laughing Boy" or "LB" to his friends and

April is Over!

Another April has passed – big sigh of relief! As an autistic I have a love/hate relationship with April – the AUTISM month. I love that increasingly more people over time have become aware of autism. I hate that Autism Awareness month contributes daily to many negative stereotypes of autism, most of it by people meaning to do something good on behalf of autism. As an autistic, I am meant to be grateful to all these wonderful people who are sacrificing their time, talent and money to be helpful to people like me. Some of the time I am grateful, but

Skunk Hair, Autism and Social Understanding

There is a saying, “love makes the world go round,” but for real it is NOT love. Instead, it is hidden curriculum that makes the world go round! Hidden curriculum is all that social information that most people know even though they were never actually taught it. An example is the rule “don’t pick your nose” with the hidden curriculum being it is perfectly fine to pick your nose as long as nobody sees you doing it. Many people with autism have difficulty with hidden curriculum. Their brains are not wired to allow them to automatically pick up this untaught,

SWIFT on NPR’s “All Things Considered”

by Dr. Mary Schuh: SWIFT Center Recently, National Public Radio’s (NPR) “All Things Considered” aired a story on inclusive education. The story featured Presidio Middle School in San Francisco and SWIFT Filmmaker, Dan Habib. While Presidio Middle School should be applauded for their efforts to educate students with and without disabilities, what was portrayed by NPR would by no means be considered an inclusive school. Students with disabilities placed in a separate basement class learning functional “survival” skills does not make for an inclusive experience. How can students with disabilities learn important “survival skills” such as communication, literacy, following typical

Inclusion – How it Works Best for This Autistic

As an autistic, I sometimes feel boxed in by the best practice strategy of inclusion. Please don’t get me wrong – inclusive education is a very good thing! Historically, people with disabilities were not given access to public education. Then, over time, laws changed. Today we have special ed classrooms in our schools and the progressive schools practice inclusion. Today’s Inclusive Education Inclusion means that all the students get to learn in the general ed environment. Instruction is differentiated while physical, sensory, emotional and every other need of each student is taken into consideration so that all students learn together,

  • How can you feel like you belong in your community if you don't feel you belong in your own neighborhood school, which is the hub of the community? Advocate for inclusion. Dan Habib

Dan Habib: Disabling Segregation

Dan Habib's Tedx Talk on the importance of inclusion, belonging and disabling segregation. Habib is the creator of the award winning documentaries, Including Samuel, Who Cares About Kelsey, Restraint and Seclusion: Hear Our Stories, Thalia and other disability related subjects . Check out Dan's Tedx Talk on the benefits of inclusive education for students with and without disabilities.   Picture yourself back in your grade school classroom. I don't care if it's elementary school, middle school, high school. Just put yourself back there for a second. Look around the classroom. Do you see any kids with and without disabilities studying together

  • It is the children with OI-the future of our community-who are particularly vulnerable to these messages, especially when they come from their very parents. Kara Ayers on Ollibean

Hashtag Hate and How Pride Can Prevail

Guest blogger Kara Ayers is the Advocacy and Dissemination Coordinator for The University of Cincinnati University Center for Excellence in Developmental Disabilities (UC UCEDD) and has been featured on Disability Blog the official blog for Disability.gov. As a child, my family considered "hate" to be a bad word. We're teaching my preschool daughter the same. Someday I will teach her the tragic impact of hate and the freedom that it has stolen and continues to steal from so many. For now-I don't want her vocabulary or her mind limited by slurs and hate-filled language. As someone who works in social

More Than An Autism Diagnosis

I am an adult with autism. My thinking is visual rather than word-based. Autism gifts me with a literal and concrete way of thinking. My thoughts are all in full moving color. You can read about this and about my life in my book called Paper Words, Discovering and Living With My Autism. (Endow, 2009a) “Always, I have a front row seat to watch the show! Each color, with its infinite variety of hues and brightness, has its own movement patterns and sound combinations. Even though spoken words are the medium most often used by people to communicate with me, I

Crossing Sign Conundrums

Over the course of my life I have seen many kinds of crossing signs. When I go to a college campus I drive past a wildlife sanctuary where a duck crossing sign is posted. Each spring mama ducks line up near their sign and lead their babies across the road while the cars waited. There were lots of ducks and some days the wait for motorists can be up to ten minutes. Every winter when I drive along a county highway to visit a friend I see a snowmobile crossing sign. A snowmobile trail is on one side of the

How AAC and assistive tech make classrooms better for all : Paula Kluth

In 2009, I published an article in The Reading Teacher with my colleague, Kelly Chander-Olcott, titled “Why Everyone Benefits from Including Students with Autism in Literacy Classrooms”. One of the points we make in the article is that students with disabilities often bring assistive technology and augmentative communication into classrooms and, therefore, make them richer places to learn. Students with and without disabilities who are in classrooms that use AT and AAC regularly and creatively not only may get access to unique materials, but also get to learn about learning itself. They may be able to generate ideas for using

We Are Not In Our Own World

We need to be careful about how we think about and talk about people with disabilities. One example is the reference that those who are autistic or deaf or blind or have some sort of movement differences are “in their own world.”

Ollibean Baseball Camp

Great week at Ollibean Baseball Camp! Thank you to all the great Ballplayers and Counselors who made it so much fun. We still have some spots for this week- August 12 through 16, 8:30 am to 11:30 am. It's free!

  • I fear that Hillsborough County School Board is standing on the wrong side of history.

Disabilty and Civil Rights: Standing On the Right Side of History

"If we were to go back to the 1960s and we were to talk to those leaders who were vehemently against desegregation, we would hear the conviction in their voices of them stating why they believe their decisions and what they were doing to those children were just. Just as I believe that some of you and some of the board members that have spoken believe that their decisions are just. But, I fear that the Hillsborough County School Board is standing on the wrong side of history."

Inclusion is a right not a privilege.

Inclusion is not only socially just, but research shows it improves academic outcomes for all students.

  • Teenager with brown skin and dark brown hair smiling and wearing a "got inclusion" t-shirt.

I Am Here To Make A Difference For My People

"I am here to make a difference for my people. I hope that you listen to what I have to say. I want people like you to stop judging me." Tres Whitlock

Sensory Tool Kit or Purse ?

Notebooks, silly putty, colored pencils, a favorite book.. I did many of these suggestions with all three of my kids when they were little. A mom carries around ever so many things in her purse to entertain kids in public places. However, if the kid has been diagnosed with autism you call all the junk in your purse a sensory tool kit. The difference here is if the kid is not on the spectrum it is a nice diversion and helps keep him better behaved. If the kid is on the spectrum the regulation offered by the stuff in your purse is

Ollibean Inclusive Baseball Camp August 5-16

Hope you can join us for our 2nd Annual Ollibean Inclusive Baseball Camp at Palma Ceia Little League. 2 sessions August 5- 9, and August 12-16.

  • Photograph of woman with brown skin and dark brown shoulder length hair looking down smiling while holding her baby.

Ollibean Spotlight: Kerima Cevik Pay It Forward Activist

"Equal access, level playing field, dignity, respect for my son and all his community. No separate classrooms separate doors or isolation from others. See I’m a woman of color. When I began my education you could still see the Colored Only bathrooms in the Deep South. If you put my son in one room and say he is not good enough to be where the law says he should be, with his peers, then red flags of segregation fly up at me. Many parents of color feel the wrongness of it organically, but they have been convinced that their neurodiverse children are not good enough for their neighborhood school and that their children are a distraction or threat to typical children in some way. The different operating system in their child’s brain throws them off, particularly when maladaptive behaviors are in the mix. It leaves them feeling guilty, helpless, afraid their kids will come to harm, and they listen to anyone, even if their gut tells them the advice is unjust. I am and advocate of Universal Design for Learning. I think my son can be with his peers in age as well as ability and everyone can benefit." Kerima Cevik

AAC Helps Learners with Complex Communication Needs Reach Their Full Potential

" A lot of these kids end up not reaching their full potential because they suffer from low expectations. People think they don't speak well, so we shouldn't have them in the regular classroom, but a lot of the kids I work with, they're cognitively fine. They're perfectly capable. They just need a viable means of communication to really help them through that." Cathy Binger

People With Disabilities Practically Absent from Marketing Campaigns

ABC.com reports that despite sporadic appearances in the media and marketing campaigns, people with disabilities are still largely absent, and that many people feel that marketers in particular are losing out because of it. Blaming the absence of people with disabilities in marketing campaigns on "a combination of ignorance, caution, and fear," advocates feel that a concentrated campaign to have people with disabilities included in advertising is necessary, similar to past campaigns to have minorities included in advertising. 57 000 000 Americans have a disability, and as a group their spending power is $200 to $500 billion. They're definitely a

PrAACtical AAC | Presuming Competence and Using The Least Dangerous Assumption

PrAACtical AAC's latest post on the importance of presuming competence.

Believing in Your Child and Why It Matters

"No one affects a child's day, dreams and future like a mother. Of course we are never perfect, but perfect is never the goal." Tonya Whitlock

Donna Posont’s “Birding-By-Ear” Course Allows Blind People to “See The Unseen”

Donna Posont is living proof that you don't have to be able to see well to go bird-watching. Donna Posont is a field guide in Michigan who leads a group of blind birdwatchers and helps them recognize birds through sound. / CBS News The Field Services Director for Opportunities Unlimited for the Blind, Donna Posont runs a "birding by ear" class in Dearborn, Michigan for people who are blind or who have low vision. Instruction begins inside, where participants memorize bird calls through learning words that have been assigned to birds' chirps and screeches. Armed with a repertoire of  bird

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Ollibean Mama Spotlight : Ariane Zurcher

"It means living in a society that embraces the diversity of human beings. It means inclusion is a way of life and manifests itself in every aspect of our culture, from the schools and education, to the work place and everything in between… It means paradise!" Ariane Zurcher

Federal Agencies Seek Public Input on Transition Issues for Youth

The U.S. Departments of Labor, Education and Health and Human Services, in partnership with the Social Security Administration, are asking for input about the best way to ensure a successful transition from school to work life for youth with disabilities. For two weeks, starting on May 13, youth with disabilities and their families can share their thoughts on improving transition outcomes via this Web Interface.  Policymakers, educators, and service providers are also invited to take this opportunity to share concerns about the “regulatory and legislative barriers that young people with disabilities are facing in accessing employment, education, Social Security and

  • Presume Competence, Believe in Yourself, Treat Yourself Like You Are Your Own Best Friend, Breathe, Do Your Thing, Hug Those You Love..Every Single Day, Challenge the Paradigm, Take a Million Pictures, Play, Trust Your Gut, Keep All Records and Reports, Believe in Random Acts of Silliness, Be Informed, Think in Parallel, Turn It Up to 11, Appreciate the Beauty and Strength in Our Diversity, Question Everything, Love Deeply, Research, Own Your Difference ,Bust a Move, Know That Typical Is Overrated, Lean Into It, Embrace The Teachable Moments, Call on a Friend, Laugh, Laugh, Laugh, Laugh, Laugh, Sleep When You Can, We Are More Alike Than We Are Different, All of a Kind, Ollibean

Happy Mother’s Day Week : Turn It Up to 11

It's that time of year .... Mother's Day Week! Is there a song that makes you think about why you love being a mom? Or a song that just reminds you of your family? Share it here.

Yoga , Naturally Inclusive

Ryan McGraw is a 30-year-old yoga teacher who has cerebral palsy. He doesn't fit the mold, which is fine, because he's molding yoga routines to fit his needs.

National Center on Health, Physical Activity and Disability

Great resource promoting increased participation in physical activity among people of all abilities.

Abuse of Children with Intellectual Disabilities

Children with disabilities of any kind are not identified in crime statistic systems in the U.S., making it difficult to determine their risk for abuse (Sullivan, 2003). A number of weak and small-scale studies found that children with all types of disab

Game Changer: Florida Senate Unanimously Passes Special Education Bill

The Florida Senate unanimously passed Bill 1108 on April 29th.

Law Would Give Parents Final Say About Special Diploma Track

A proposed law moving quickly through the Legislature would give parents of kids receiving special education services the final say about their child’s placement on a special diploma track.

Neurodiversity in the Classroom: Strength-Based Strategies t – Apr 29,2013

A new concept on human diversity has emerged over the past 10 years that promises to revolutionize the way educators provide services to students with special needs: neurodiversity. Just as we celebrate diversity in nature

Lawsuit alleges school bus aide slapped autistic boy

A north suburban special education school bus aide slapped an autistic student who cannot speak, according to a lawsuit filed by the boy’s mother, who claims she uncovered the alleged abuse after putting a recording device in her son’s backpack. Nabiha Z

The Most Important Information About AAC Use in the Classroom

Presumption of competence combined with support and collaboration from team members helps the learner with complex communication needs have a voice in the classroom.

A Generational Shift in Understanding Life With Down Syndrome

"You cannot know if someone else's life is worth living without asking them and without even knowing them."

Boys & Girls Clubs of Tampa Bay Stand Up for Inclusion

Presented and discussed will be the importance of inclusion and friendship for youth with disabilities. The cast and of the acclaimed feature documentary, Wretches & Jabberers will be joined by The National Center on Inclusive Education’s Mary Schuh, PhD, and Tampa advocate, 13 year old, Henry Frost.

April and Autism Acceptance at Tampa Theatre

Get your advocacy on. April and Autism Acceptance is in Tampa. The rock stars of disability advocacy- Tracy Thresher and Larry Bissonnette- are back.

Ollibean Art for Change at USF: April. Autism. Advocacy. Acceptance.

A day of inclusive education, community acceptance, and self-advocacy at USF with Academy Award Winning Director and Stars of the Acclaimed Documentary Wretches & Jabberers, NCIE's Mary Schuh, PhD, and Tampa advocate Henry Frost. CARD (The Center for Autism and Related Disorders) at the University of South Florida) will host at USF's Marshall Hall.

What’s the Difference between Reduction in Homework and Shortened Assignments?

By Kori Hamilton and Elizabeth Kessler, professional special educator and NICHCY advisor. Being able to provide ample opportunities for success to all students requires a clear understanding of the needs of each individual student. Every student has a unique learning style, and some students require more help than others. Students who receive special education services have a plan in place to identify the type of support(s) that’s needed. One type of support is an accommodation, which is a change that helps a student overcome or work around the disability. A modification, which is a change in what is being taught

Neurodiversity IS the Next Civil Rights Movement

"When we talk about inclusion what we're talking about is diversity." Audra Zucherman, co-founder, The IDEAL School .The IDEAL School practices full inclusion while nurturing their students abilities to create real change in the world through compassion and self- empowerment.

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We Love Emma’s Hope Book

Ariane Zurcher is definitely one of our favorite writers. She writes with exceptional honesty, insight, and beauty.

Abuse and Cover Up of Students with Special Needs In Ohio

Special Education teacher from Kings Local School District accused of seclusion, restraint, physical abuse , verbal and emotional abuse.

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Sara Winter,Founder of Squag™ Had Me at :)

Sara Winter answers our Change Leader Questionairre. Sara is the founder of Squag™ - a wonderful curated, online space that offers kids on the autism spectrum as well as other disabilities (and their siblings) a safe, beautiful corner of the web.

Wright’s Law: Why Schools Usually Say “No!”

My son is going to middle school. Same district, new school, just blocks apart. His 1:1 (same para for 3 years) has been the best thing that has come into his life ever. We want his para to follow him to middle school. The Special Education Director says

Love is in the Air – Media Profiles People with Disabilities

Bill’s and Shelley’s path to marriage is not unlike many others who fall in love, lose touch as life takes its turns, and reconnect later in life when the time is right.

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Karen Clay Defines Inclusion for Hillsborough County School Board Member Olson

"I fought for him to remain in the classroom, I fought for him to attend his neighborhood school. I did not have to fight for him to be fully included, because Principal Vince Sussman at Plant High School knew that students with disabilities have value, have worth."

Accessible Instructional Materials (AIM)

Great video on Kathleen McClaskey's Scoop It site, UDL- Universal Design for Learning about accessible instructional materials.

NCIE Webinar: Creating Inclusive IEPs

This February 20th webinar will focus on IEPs that target students’ full participation in inclusive general education classrooms and specify the supports needed for success.

MCIE Workshop on Multi-Tiered Systems of Support for Inclusive Education

How RtI Systems Work for Students with Intensive Support Needs With Michael McSheehan!

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Advice from Someone Who Has Been There

I love Larry Bissonnette- artist and disability rights activist. If you have seen Wretches & Jabberers or My Life as an Artist, or seen Larry present- I'm sure you are right there with me. His paintings are extraordinary, his words brilliant, and his wit and personality beyond wonderful. He is an exceptional person I feel privledged to call friend. We have been lucky enough to spend a lot of time with Larry; a weekend at our home in Tampa, a week in Vermont (where we were able to visit Larry's studio and watch him create his paintings) and numerous conferences

Lawsuit Says Special Needs Student Raped in NYC-area Classroom

A 15 year old special education student was gang-raped in class while a lesson was going on, according to allegations by her mother. The girl attended the Martin De Porres Academy in Elmont, New York, a community on Long Island, and the incident supposed

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Center for Autism and Related Disorders Partners with Paper Clouds…

The Center for Autism and Related Disorders (CARD), the world’s largest provider of effective, early-intensive behavioral intervention for individuals with autism spectrum disorders (ASD), is proud to announce its new product line with Paper Clouds Appar

I Am

How do you talk to someone who uses AAC?

  • I Stand With Henry

Autistic Student Wins the Right to Go to School

Henry Frost had a pretty simple goal: he wanted to go to school like any other kid.

Autism on CSPAN Washington Journal

Hi. My name is Henry Frost. I am a 13 year old Autistic self advocate. I agree with Ari Ne'eman. This is a civil rights issue. Communication and inclusion are basic civil rights. I made this video about civil rights. I made a FB page and petition so I could go to school in my neighborhood. Ari and ASAN helped me advocate. http://www.facebook.com/IStandWithHenry , change.org/henry People all over the world wrote this is a civil right. We want the same things in life. We are not so different. Please watch to understand how much we need support for

After student’s death, Hillsborough school’s ESE aides could not recall missing-child training

Hillsborough County school district investigates a student's death last month at Rodgers Middle School, issues are emerging that go beyond the five suspended special education employees and even their Riverview school. It is unclear if the workers, who earn as little as $11,000 a year and are now on paid leave, were trained in how to react when a student goes missing. Read more from Tampa Bay Times, Marlene Sokol

School board wants answers in wake of student’s death

Two separate investigations are now going on in the Hillsborough School District.

Inclusive Education: It’s Great If You Can Get It

Inclusive schools need to become a reality for all students across the nation regardless of abilities, socio-economic background and geographic location. Unfortunately, many school districts do not see the inclusive classroom as the Least Restrictive Environment and an appropriate placement for children with special needs. Thus, what one child has free and appropriate access to, another one doesn’t. And then inclusion , which has been proven by experts to be the gold standard of special education, becomes an ideal situation…if you can get it. The lack of universal practice of inclusive education in our school system creates an overall discord in

Why is a 13 year old protesting in order to go TO school?

How did we get here? How did we get to a point that our 13 year old son has to fight for the rights that are already his under federal law? How did we get to a place where a pretty reserved kid has the courage, the will, to do this?

Presume My Competence

Really, this is number one. Please presume my competence.

  • Top 10 things I need you to know

Focus on My Strengths

#4 Please focus on My Strengths. I have many. We all do.

I Stand With Henry

What Henry is doing is advocating for his rights, at the same time that he reminds us of our own rights and about how far we still have to go.

Top 10 Things Autistic Self Advocate Needs Teachers to Know : # 3

Top ten things I want you to know. Number 3: Please talk directly to me, not to my support person.

  • boy wearing a turquoise tshrt that reads "Not being able to speak is not the same as not having anything to say" sitting on couch one hand on iPad one hand on his dog . The dog is yellow lab/golden mix .

Autistic Student’s Top 10 List for Teachers of Students with Special Needs #2

Top ten things Autistic student wants teachers, therapists and friends to know about students with special needs... they may be shocking to some of you, but hopefully to most they are exactly what you expect. Here's number 2.

  • Girl with brown hair , blue tshirt is holding an iPad out in front of her. Her face is obscured by the iPad. Boy with Brown Hair holds a white sign that says " The Civil Rights Act of 1964 granted equal rights to all people. I am a person. I want these rights.

A Sister Stands with Her Brother: I Am Heard, I Am Important, and I Am Included

No one wants to be the excluded one, the one to stand alone in silence, the one left out of the conversation. No one wants to be forgotten. So why are some individuals treated this way? Luckily it just takes one person to stand up and include, and the rest will follow. Be that person, take a stand, make a difference.

I am the 20 % and the RNC

Henry takes his bi-partisan message of inclusion and civil rights for all to the Republican National Convention.

First Day of School

Today is the first time that Henry has not had a First day of School. He is not allowed to go to his neighborhood school that is about 200 yards from our home.

Special needs kids staying in traditional schools

LOS ANGELES The high cost of educating students with special needs is disproportionately falling on traditional public schools as other students increasingly opt for alternatives that aren't always readily open to those requiring special education. The i

Henry’s video for his friend Sebastien, please help by sharing

Thursday Henry decided he wanted to write something to help his friend. We decided to video the process, as you can see, typing one letter at a time is a very long and arduous process. It took Henry  hours to type and edit that paragraph. It was hard and Henry decided to not to share the parts that were too emotional. Sebastien is one of Henry's best friends, he loves him dearly and he has watched his body get weaker and weaker each day. I am so proud of H for writing this, it was very, very hard for a

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Ollibean Mama Spotlight

Connect and learn with other parents like Tonya who presume competence and celebrate their children for being exactly who they are. #allofakind

  • got questions? get answers from our disability centric community

Got Questions? Get answers from our disability-centric community.

We’ve organized Ollibean so members can support each other in a very organic way. You will connect with others based on mutual interest in diffability related content.

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Self-Advocacy, Inclusion, Communication, and Friendship Roadtrip 2012

Our three week Roadtrip has begun. Syracuse, then on to New Hampshire and the Autism Summer Institute.

  • Why would we separate, segregate and alienate children from one another while at the same time teach them to look after the world around them, respect differences and take a stand at injustice ? Nicole Eredics on Ollibean

Why Would We Want Inclusive Education?

Why would we separate, segregate and alienate children from one another while at the same time teach them to look after the world around them, respect differences and take a stand at injustice?

Bullying Prevention State Laws

This new brief focuses on bullying prevention legislation. To date, 47 states have passed legislation requiring schools to take leadership in addressing the problem. This brief provides information on elements of a bullying prevention plan, the school’s

Ollibean Baseball Camp July 10th – Aug 2nd

Ollibean Baseball Camp info! From July 10th through August 2nd , 8am to 10am  free baseball camp for kids with special needs at Palma Ceia Little League. The amazing sister and brother team of Katie and Sam Martin have put together a great baseball camp for Ollibean ! Thanks to our friends and Challenger League Leaders and Palma Ceia Little League, camp will take place at PCLL Field C this Tues July 10 (from 8am to 10 am ) through August 2nd!! You do not have to attend the entire time but you are certainly welcome to. It is free and

Inclusive Educational Practices for Students with Special Needs

Studies have shown when kids with disabilities are educated in inclusive settings, the classrooms are better for all of the students.

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Jedd Hafer of Love and Logic ® answers your parenting questions

We recently had the pleasure of speaking with Jedd Hafer, of Love & Logic® and asked him some of our questions. Jed's one of those people that you start talking to and feel like you've known him forever.

Happy Father’s Day to all of the amazing dads presuming competence

Happy Father's Day to all of the amazing dads and stepdads raising children who do things differently- who love and appreciate them for exactly who they are. Thank you for setting a great example every day, for treating your children with respect, so your child expects that same respect from others. Thank you for believing in your child's capabilities, for seeing their strengths, so they grow up seeing their own and expecting others to do the same. Thank you for advocating for your child’s rights, for showing them their rights are worth advocating for. Thank you for fostering your child's

  • ollibean think tank inclusion advocate. talk show host. human. Nicole Eredics

Top 3 FAQs About Inclusive Education

Parents naturally want what is best for their child, particularly when it comes to education. If a parent is not very familiar with inclusive education or had a child in an inclusive school, they have many questions and concerns. While too numerous to list, here is the top 3 frequently asked questions about inclusive education: Why isn’t there an inclusion program in my child’s school? Inclusive education is not considered a program that can be offered by schools. Inclusive education is a philosophy that the entire school district must believe in and support. The belief that all children should have

Being left out puts youths with special needs at risk for depression

The challenges that come with battling a chronic medical condition or developmental disability are enough to get a young person down. But being left out, ignored or bullied by their peers is the main reason youths with special health care needs report sy

Outing The Prejudice: Making The Least Dangerous Assumption

We highly recommend this brilliant article by Zach Rossetti and Carol Tashie on their interpretation of Anne Donnellan's concept of presuming competence, the least dangerous assumption.

OlliNEPAL at the SERC School

OlliNEPAL at the SERC School in Kathmandu

OlliNEPAL team at HDCS, Asha Bal Bikash Sewa (“Children’s Hope Development Service”)

OlliNEPAL team at HDCS, Asha Bal Bikash Sewa ("Children's Hope Development Service")

Boy charts city’s disabled access

Nathan was inspired to create his website after finding access to a bowling alley blocked by stairs. Despite the challenges he faces, Nathan's disability does not stop him from leading a full life. What does occasionally stand in his way is more mundane - steps, staircases and narrow shop aisles.

The Coffee Klatch

The Coffee Klatch started on a whim. I often speak and write about the isolation, stigma and confusion of parents raising a special needs child. Many of those 
parents are on twitter to share information, seek support or find a friendly ear. Twitter is where it all began. It is where I met my incredible team of moderators and thousands of special needs parents. It is where we created a morning chat for parents both newly diagnosed and those who have navigated the muddy waters to meet and share. It became very apparent to me, very quickly, that many of

Florida Charter Schools Failing Students With Disabilities

Tres Whitlock is stuck in a public school where he feels ignored. He wants out. The 17-year-old would-be video game designer researched his options online and found his perfect match – Pivot Charter School. “It’s computer-based and I think I will do better,” he says. But when Whitlock tried to enroll the school he found a series of barriers in his way.

Charter Schools Excluding Students with Significant Disabilities in Florida

A new report by the Miami Herald and StateImpact Florida – a National Public Radio initiative -  confirms CEC’s ongoing concern that many charter schools are failing to serve students with disabilities, particularly students with significant disabilities

WERE $50,000 PER YEAR DC PRIVATE SCHOOL ESE KIDS ILL-SERVED BY DCPS?

Washington Post E.W. — that’s how he is identified in the report — is an 8-year-old diagnosed with trauma and post-traumatic stress whom the District placed at Rock Creek.. That’s the private special education school in upper Northwest closed by OSSE earlier this month after an investigation revealed many problems, including staff members who improperly restrained or isolated exceptional education students.   On May 23, according to a Rock Creek employee who came forward to OSSE, E.W. arrived at school without his medication, leaving him “running around aimlessly, knocking over chairs and books, and hitting the wall.” He was placed in a

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Certain Proof – A Question of Worth

Certain Proof: A Question of Worth is a feature documentary about three children living with significant communication and physical disabilities, who struggle against the public schools in an emotional battle to prove their worth.

Thank You, Steve Jobs

Thank you Steve Jobs for thinking differently so that so many others may express their thoughts. Apple's products have changed the lives of so many people with disabilities - CP, autism, dyspraxia, motor planning issues, developmental delays, neuromuscular disorders, expressive language disorders, vision impairments. My son uses his iPad and iPod as a communication device, a way to surf the internet, watch youtube, and connect with friends. Until Apple came out with the ipod, the choices in AAC devices were very expensive ( the ones we looked at were between $5,000 and $8,000 and heavy- too heavy for someone that

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