Social Rules that Change with Age
by Judy Endow The “hidden curriculum” refers to the set of rules or guidelines that are often not directly taught but are assumed to be known. Most people automatically pick up this hidden information; their brains work that way. For those of us with autistic brains, this information is truly hidden; we do not automatically pick it up. Hence, the term, “hidden curriculum.” Even though our brains are not wired to automatically pick up this hidden social information, we can learn it. Once we learn it then we know it just like everybody else. Sounds easy. It is
The Hidden Rules of Christmas
by Judy Endow Christmas will soon be here again. There is much about Christmas I love. There are many things about Christmas that took me a very long time to figure out. This is because my autistic brain doesn’t work in a way to automatically allow me to pick up social information that others expect me to know. This expected social knowledge is called the hidden curriculum. It is the information that everybody knows – everybody except people like me! During the Christmas season there are generally more social gatherings to attend than in everyday life. These gatherings are
Accommodations – They Make All The Difference
Accommodations are important and they work. I should not be making a big deal about it. The ADA is 25 years old. Sadly, getting the accommodations we, disable people need, is often the opposite of simple. If you have been reading my posts, you know that I am very visibly disabled. I am also proud, and I don't try to be someone other than myself. I do require a lot of supports, and once I have them, I can do anything I set up as goals. I have goals, or simply things I want to do, that most people
Using Autistic Strengths to Make Friendships Work
I am an intelligent autistic woman. I manage my own business, have raised three great kids and interface with the world around me with a fair amount of success. Not too shabby considering I lived in an institution as a kid, was homeless as an adult and used public assistance for some years. Today I am content in my life. It is intentional. I have decided not only to be content, but how to intentionally let go of some things that used to bother me. I hope to get better with this over time because it is great feeling
Synesthesia
Synesthesia I am a synesthete. I see colors and movement to music – to all sounds, actually but music makes everything prettier. I also see words, I can feel them. My synesthetic experience has always been beautiful but I never paid extra attention to it. The colors, the movements and the feelings have always been there. Recently, I have been expanding my musical experience, and I am enjoying it greatly. I am paying more attention to what I see, to what I feel. It is hard to explain. I wish I could paint it, but I can’t. So I wrote
Uncontainable Presence
You are anywhere You are anytime Daring and enticing Changes unexpectedly predictable The obstinate constant I see your bright presence Piercing my eyes Crawling into my brain The pain comes swiftly And then, the deafening silence My body shakes in your presence Uncontrollable moves A dance of two wills The music is mute Rhythmically disordered Darkness and pain I'm lost in a sea of dread Forlorn as you carefully exit Leaving behind misery I tremble as the silence roars As the pummeling beat of you presence leaves The sky cracks open in blue A blissful fatigue Exhausted excitement But your
I Paint to Share My Autistic Experience
I started painting with acrylics in 2012. I wanted to use that medium to illustrate aspects of my autism. To date I have written several articles and books along with speaking in three countries about aspects of autism. Painting is one more way to explain some of the nuances of autism to those who might be interested. Painting allows me to show perceptions of the world that I see with my eyes as delivered through the neurology of my autism. I match up what I see with the colors and movements of paint on canvas paper. I have not taken classes
The Quiet Key to This School’s Success
What do you do when you become the principal of a school with the lowest academic performance and the highest rate of suspension, absenteeism, and teacher turn over? Nothing. Nothing for 15 minutes twice a day to be exact. In 2003, James Dierkean, the innovative principal of Visitacion Valley Middle School in San Francisco, decided to try something unconventional to mitigate the negative impacts that stress was causing for his students and staff. He launched a meditation program. Specifically, a Transcendental Meditation (TM) program called Quiet Time. Principal Dierke and his staff, with the help
#IMREADY for Inclusive Media and Advertising
Hey JCREW #IMREADY for change. We want YOU to include models with disabilities in 2015. We want YOU to be part of the #15in2015 . 15 retailers including models with disabilities in 2015. Note: Changing the Face of Beauty quickly met its #15in2015 so now it's #15in2015 x 2! We want YOU to be part of the #15in2015 x 2 retailers including models with disabilities in 2015. We're thrilled to take part in the #IAMREADY campaign by Changing the Face of Beauty to promote inclusion in advertising. We believe everyone should see themselves reflected in all aspects of their community
Autism and the Importance of Stabilization
As an autism consultant I am often asked how I sort out what to do when I see an autistic client who is struggling in school or in life. As an autistic person I know first hand if stabilization needs are not met, regardless of the supports in place an autistic person will struggle. Stabilization consists of three areas that interplay – internal and external regulation in the context of a positive relationship. Internal Regulation ~ Sensory Diet Internal regulation has many components, but for stabilization I look at the sensory system. When a person has an autism neurology
Autism and Eye Contact
A challenge I am continually faced with as an autistic adult is the misinformed presumption and resulting behavior of neurotypical people when I do not look at them the in way they expect, want or demand of me. It is challenging because society has put the onus on me to change. Often it does not matter to others why I am different. They just want me to stop being different. Recently I was told directly, “If you want to be treated like a real person then act like one!” Eye contact can be hard for autistics for a variety of
World’s First Kid-Friendly Wheelchair From Wheelchairs of Hope
It's unacceptable that any child miss out on an education because of not having a wheelchair, and Wheelchairs of Hope is doing something about it. Wheelchairs of Hope is an initiative based on the belief that mobility from early childhood is a gate to education, and that access to education creates a new generation with improved skills, higher self-confidence levels, and more hope for the future. The UN, the WHO, and two Nobel Prize winners are backing the work of Wheelchairs of Hope. With production sites spanning three different regions, Wheelchairs of Hope will be able to guarantee shipment of
Speeding, Autism and No Ticket Issued!
In the past few years I have had two encounters with the police while driving my car. The first time I pulled into a school parking lot, answered an email on my Blackberry, gathered my stuff together and let out a little scream, as I didn’t expect to see a police officer standing at my car door! “Good afternoon officer. How might I help you?” I inquired, knowing that it is very important to always be polite to a police officer. “Do you know why I am stopping you?” “No, I do not,” I replied honestly. “Do you know the
How To Outsmart “Inflexible Thinking”
Because of my autism I have an autistic thinking style. One characteristic often attributed to me is “inflexible thinking.” Flexibility in thinking has to do with being able to adapt when circumstances change by adjusting or shifting from one expectation to another. This has never been easy for me, but I have learned how to live more comfortably with my autistic thinking style in a world where flexibility is much more highly valued than my inborn trait. First, I had to accept my own autism and the fact that I think differently (Endow, 2009). Self-acceptance doesn’t come easily for most
Pharrell’s “Happy” in Sign Language
Beautiful American Sign Language interpretation of Pharrell Williams's "Happy." An expression of music in ASL composed by Rosa Lee Timm and Azora Telford. The video was produced by a team of Deaf campers & staff from Deaf Film Camp 2014 at Camp Mark Seven. CAST Rosa Lee Timm Azora Telford -- Campers -- (coming soon) -- Teachers -- Bellamie Bachleda Braam Jordaan Bim Ajadi Sophia Ballester Tate Tullier Wayne Betts Jr -- Counselors -- (coming soon) -- Interpreter -- Drisana Levitzke-Gray EXECUTIVE PRODUCER (VIDEO) Convo VIDEO PRODUCER Stacy Lawrence Sophie Sok EDITOR Bim Ajadi CINEMATOGRAPHER/CO-EDITOR Wayne Betts, Jr. VISUAL
Supporting Autistic Relationships
As an autistic my connections to other people are perceived visually. In fact, I often need to have a concrete visual available in order to be able to think about my friends. A challenge I am often faced with is the erroneous presumption and resulting behavior of neuro-majority people when I need a visual in order to maintain a relationship. Many Autistics Are Visual Thinkers For those of us who are visual thinkers it seems logical that visuals would play an important part in developing relationships with others and in maintaining those relationships over time. In fact, many of us
Fractured Vision: One Autistic Phenomenon
I started painting with acrylics in 2012. I wanted to use that medium to illustrate aspects of my autism. To date I have written several articles and books along with speaking in three countries about aspects of autism. Painting is one more way to explain some of the nuances of autism to those who might be interested. Painting allows me to show perceptions of the world that I see with my eyes as delivered through the neurology of my autism. I match up what I see with the colors and movements of paint on canvas paper. I have not taken classes
An Odyssey: Learning the Hidden Curriculum
Learning the hidden curriculum social rules of society remains a struggle for autistics long after they grow up. For example, even though I am an almost 60-year-old woman with autism, over the past few years, I have learned a lot of new-to-me hidden curriculum items. The hidden curriculum refers to all the social information that everybody seems to know but isn’t directly taught to anybody. Here’s an example: Don’t scratch your privates really means don’t let anybody see you scratch your privates. Guessing at Hidden Curriculum Rules Once I amassed a volume of hidden curriculum items I began being able
Autism and Thinking with Colors
I think in colors. My thinking colors have sound and movement. When I hear spoken words my neurology automatically goes for the match. When I was a girl, I heard the saying, “I got the world by the tail.” Immediately, the matching pictures of tail started popping up in my head. It’s like having a personal version of Google Images. The initial picture search produced a variety of tails of animals. Then, there came the images of the ground mist I saw each morning when I went outdoors after breakfast. I assigned the world tail words I heard to this
What’s Underneath – Jillian Mercado
Jillian Mercado, the 23 year old model and editor and founder of Manufactured 1987 is featured in StyleLikeU 's "What's Underneath Project". The "What's Underneath Project" has select individuals remove their clothes to honor how style is not the clothes you wear, but rather, what's underneath. Transcript Off camera. StyleLikeU: So you should just talk very freely, don’t edit. Just, you know, we’ll edit and just let yourself just roll. You’ll, whoever ask the question you can talk to. At the end of each question you’ll just take a piece of clothing off. Jillian Mercado Voice: Ok, I have one,
I have Tourette’s. Please tell everyone.
This powerful performance by Jamie Sanders, spoken word poet and actor with Tourette's, covers bullying, shame, self-acceptance and empowerment in the best 150 seconds you'll watch this week.
Resource We Love : YogaKids
We love YogaKids and their foundation Go Give Yoga! Their mission is " to promote peace, health, empowerment and education" . Ok, sign us up!
Autism, Airports and Lifelong Learning
For most of my life airports have befuddled me. It didn’t so much matter earlier in my life because the only time I used an airport was to go to visit my parents in another state. Back then, before we had the heightened security of today, people were allowed to meet passengers as they stepped off the plane which allowed me to simply follow them through the airport without needing to concern myself with the confusion all around me. In My 40’s Then, airport security changed. People picking up passengers could no longer go through the security checkpoint. I
Henry
Some call him a kid Others say he is a young man But whatever you call him You need to know this: He is courageous Brave and resilient He will fight and he will win It can be a fight for his rights When enemies come disguised as condescension It can be a fight for his dreams He will mobilize an army of friends To Stand With Him He is an example to many He showed other students the possibilities Henry does not fight for himself He is changing perceptions, changing the world Henry is a leader
Skunk Hair, Autism and Social Understanding
There is a saying, “love makes the world go round,” but for real it is NOT love. Instead, it is hidden curriculum that makes the world go round! Hidden curriculum is all that social information that most people know even though they were never actually taught it. An example is the rule “don’t pick your nose” with the hidden curriculum being it is perfectly fine to pick your nose as long as nobody sees you doing it. Many people with autism have difficulty with hidden curriculum. Their brains are not wired to allow them to automatically pick up this untaught,
“Sucking It Up” To Pass as Non-Autistic
Image description : Blue square with back text:"I look forward to autistics having everyday lives with things so many take for granted – going to school, being part of the community, having meaningful jobs with living wages along with meaningful relationships. Judy Endow on Ollibean It is a lot of work to look non-autistic, and yet, looking non-autistic is the ticket to sit at many tables. It is not right, and yet, I choose to expend a great deal of energy inhibiting my autistic ways for the sake of sitting at some of society’s tables. Employment is one such table.
Help Emily Ladau Win an Adapted Van
Hey guys, we need five minutes of your time. Disability rights advocate, Ollibean contributor, and all around awesome human, Emily Ladau is in a contest to win her first car. Emily recently had quite an adventure getting her driver's license and now she can legally drive! Emily's a wheelchair user and needs an adapted van and equipment which will cost around $70,000. Folks, please take a moment, read her story and vote daily so Emily can win the van she needs in order to drive. You can register to vote via e-mail, but be sure to check your spam folder for the password
Crossing Sign Conundrums
Over the course of my life I have seen many kinds of crossing signs. When I go to a college campus I drive past a wildlife sanctuary where a duck crossing sign is posted. Each spring mama ducks line up near their sign and lead their babies across the road while the cars waited. There were lots of ducks and some days the wait for motorists can be up to ten minutes. Every winter when I drive along a county highway to visit a friend I see a snowmobile crossing sign. A snowmobile trail is on one side of the
Kids’ Mobility Devices Just Got Cooler
A Fun Alternative to Children's Mobility Devices
The Scarlet A: Why I Don’t Want My ID to Broadcast My Autism
A few days ago I read the article 'Law Allowing Autism to be Listed on IDs Moves Through Legislature'.
Walk In My Shoes
I want you to walk in my shoes Not because I want you to feel what it means To be disabled But because I want you to understand How it feels to be excluded I would like to see you walk in my shoes Not because I need your pity I don’t need it I don’t want it I want you to experience The uselessness of feeling pity for others Like me I would like to see you walk in my shoes And experience what I feel When my rights are denied When I am silenced Ignored Mocked Bullied Abused
Doll Diversity Isn’t Just Child’s Play – Dolls with Disabilities
As a little girl, I had a doll collection that took over nearly every inch of toy storage space in my room. I loved them all, especially my two most prized dolls - a My Twinn Doll and a My American Girl Doll, both made to look "just like me." And there was a indeed a striking resemblance between me and the dolls. We had matching brown hair, brown eyes, glasses, and even a matching freckle above our lips. There's just one thing that didn't quite match: my dolls stood upright in their plastic doll stands while I sat in
Pro Infirmis Mannequins Video Shows Bodily Diversity is Beautiful
A trip to the mall bombards me with unattainable ideals of “perfection” everywhere I turn. Mannequins of one standard body shape and size taunt me in each store I enter, all of them wearing clothing that won’t look anything on me like it does on them. Their plastic bodies are tall and thin; I am less than 5 feet with more than my fair share of curves. They stand in casual poses; I am sitting in my wheelchair. To me, mannequins are not always inviting displays. Instead, they’re nothing more than sculptures of a supposedly idyllic body type that I
Out of the Goodness of Your Heart
I have nothing against the goodness in the hearts of other people. However, I would like to explain how it feels to be on the receiving end when I am befriended out of the goodness of your heart. First of all this doesn’t a friendship make because authentic friendships are reciprocal. This means that giving and receiving go both ways. The benefits are mutual. When you befriend me out of the goodness of your heart - and then tell me so - I understand that you are assuming the role of a kind benevolent person while I am perceived as
Helping the Poor and Disabled
Will your attitude draw circles of holiday meaningfulness where you include yourself in what already is or will your attitude draw lines that allow you to help those poor and disabled people on the other side?
A Typical Son’s mom on “the r-word” and Chuck Klosterman’s apology
Kari Wagner-Peck ,the author of A Typical Son blog, and twitter friend @atypicalson wrote a letter to find out why Chuck Klosterman , of the Ethicist used the r-word. Kari who is 'like Erma Bombeck - in that I write funny about the ordinary and not so much in that I am angry, I swear a lot, and we have a kid who has Down syndrome' wrote an eloquent, thoughtful letter to Klosterman , reached out to folks on twitter and used social media for social good. Pretty cool. You can read the response from Klosterman here,It's fabulous- CK, sincerely apologizes
I Am Disabled and I Am Proud
"Polite society often tells us that we need to take the 'dis' out of disability, but maybe... just maybe, we should spend some time putting it back in. Take the "dis" out of disability and you remove the core of what has shaped my life. Disability puts the "D" in diversity, but in order to make that a real difference we've got to own that spot. It took me 35 years to respect and honor that truth. Others shouldn't have to wait that long..." Lawrence Carter-Long
Rion Paige on X Factor
Rion Paige blew everyone away at the "X Factor" audition. This beautiful, charismatic 13 year old has an absolutely incredible voice and exudes such confidence and poise it’s hard to believe she ‘s only 13. Rion has arthogryposis multiplex congenta which causes joint contractures and vision loss. Rion spoke about her audition on the "X Factor", “Ever since I was little I‘d just try to find a way to get to a microphone, put it in between my knees and try to get it in my foot, put it in my mouth. But sometimes I just get really frustrated whenever
The AbleGamers Foundation
The AbleGamers Foundation, also known as AbleGamers Charity, is a 501(C)(3) nonprofit public charity that aims to improve the overall quality of life for those with disabilities through the power of video games.Video games allow individuals with disabilities to experience situations that may be difficult or limited in the real world, provide social networking opportunities to maintain mental and emotional health, and participate in one of the world’s largest pastimes. With a three-step approach, AbleGamers works and advocates on behalf of the disability community to increase the accessibility of video games and to achieve further inclusion by those who need
Judith Snow
Judith Snow, MA is a social innovator and an advocate for Inclusion – communities that welcome the participation of a wide diversity of people. Inclusion is an opportunity for EVERYONE!
Man with Down Syndrome owns “The World’s Friendliest Restaurant”
Tim Harris has a great deal to be proud of. "Tim The Man" to those who know him, he's accomplished more in his 27 years than some people accomplish in an entire lifetime. A Special Olympian, he has dozens of gold medals. He's lived on a sailboat and is well-known in the Bahamas as an excellent sailor and fisherman. He graduated from Eastern New Mexico University in 2008 with certificates in food service, office skills, and restaurant hosting. He's now living independently, and really enjoying the fact that he can walk to work - the restaurant that he owns is
Senator’s Call for Transition Action Plan An Excellent Idea
Democrat Senator Robert Menendez of New Jersey has introduced a bill focused on transition services for students with developmental disabilities who are transitioning to post-high school life. The legislation, known as the Assistance in Gaining Experience, Independence and Navigation Act of 2013, or the AGE-IN Act, calls for: - Funding for research to determination the best ways to support students with developmental disabilities who are about to leave school. - Creation of a nation strategic plan focused on transition planning for students with developmental disabilities. - Grants to train "transition navigators" to assist students with developmental disabilities to plan for
Ollibean Spotlight: Renee Salas
" Talk to people with disabilities. As many as you can: Adults, adolescents, kids. These people are the real experts on disabilities. These are the people that can tell you what life with a disability is like." Renee Salas
Much Needed Resource: “We Are Like Your Child”
"We are like your child. Your child is like us. And we may have difficulties, we are disabled--but there is no denying that we are also awesome."
Donna Posont’s “Birding-By-Ear” Course Allows Blind People to “See The Unseen”
Donna Posont is living proof that you don't have to be able to see well to go bird-watching. Donna Posont is a field guide in Michigan who leads a group of blind birdwatchers and helps them recognize birds through sound. / CBS News The Field Services Director for Opportunities Unlimited for the Blind, Donna Posont runs a "birding by ear" class in Dearborn, Michigan for people who are blind or who have low vision. Instruction begins inside, where participants memorize bird calls through learning words that have been assigned to birds' chirps and screeches. Armed with a repertoire of bird
Free Your Mind and the Rest Will Follow
Awesome ASL version of En Vogue's 'Free Your Mind'. "Before you can see me you've got to learn how to read me. Free your mind and the rest will follow."
Yoga , Naturally Inclusive
Ryan McGraw is a 30-year-old yoga teacher who has cerebral palsy. He doesn't fit the mold, which is fine, because he's molding yoga routines to fit his needs.
National Center on Health, Physical Activity and Disability
Great resource promoting increased participation in physical activity among people of all abilities.
Dave Jacka: Up, Up and Away!
Dave Jacka just began his quest to become the first quadriplegic to fly solo around Australia. Family and friends saw the 44-year-old Fairfield resident off from the airport in Tooradin, Australia on April 28. A wheelchair user since a car accident 25 years ago, Jacka only has a small amount of control of his shoulder, wrist and bicep. He never gave up on his childhood dream of learning to fly, however, starting lessons with a pilot in 2006. He controls the plane by sucking and blowing into a tube, and makes use of enlarged switches and levers in a modified
Boston Marathoners Rick and Dick Hoyt
“We just have to move forward,” said Dick. “We can’t let something like this stop us.”
“The Story of Luke” Brings Autism to the Big Screen
But my question is, where are autistic people in the creation of the movie and the movie itself? The representation of autism and disability in film should include the actual voices of autistic people.
Eli Reimer Is First Teen With Down’s Syndrome to Reach Mt. Everest Base Camp
On March 1, Eli was on a plane from Kathmandu to Los Angeles with his father, celebrating both World Down's Syndrome Day and the fulfillment of a dream. The Oregon resident, at the tender age of fifteen, had just become the first teenager with Down's Syndrome to make trek to Mount Everest Base Camp in Nepal. Eli's dad, Justin Reimer, who made the trek with him (along with a team of seven) told Time magazine, “We’re able to celebrate that as we departed Katmandu with [Eli] just completing something that as far as we know, no other teen with Down Syndrome [in the U.S.]
A Generational Shift in Understanding Life With Down Syndrome
"You cannot know if someone else's life is worth living without asking them and without even knowing them."
Disabled surfers brave the waves in Brazil
Renata Glasner doing her thing in Brazil.
Reason # 202 Why You Should Come to See Wretches & Jabberers Next Weekend..
The incredible soundtrack. J. Ralph, recently nominated for an Academy Award for his song, Before My Time, for the documentary Chasing Ice, composed and performed the songs in this incredible documentary, He is joined by some of the most talented folks in music.
“Yoga for the Special Child” Program Benefits Children with Disabilities
Parents say that Gail Gagne's "Yoga for the Special Child" program is "sorely needed" at Glenwood Community Centre in Winnipeg, Canada Gagne rents space from the Community Centre to run her Yoga for the Special Child Program. Four children with a variety of disabilities, including autism, attend on a weekly basis. Parents say that participation in the class has benefited their children in a numerous ways, from improved muscle tone to enhanced ability to focus to sharpened social skills. The Yoga for the Special Child Program is also an athletic outlet for children that, unfortunately, may have limited
How to talk to a hearing impaired person? Don’t shout
First rule: Look at the hearing-impaired person when you speak.
Need for culturally sensitive treatment for deaf patients with psychiatric disorders
Members of the Deaf community who have mental health problems need culturally sensitive treatment to avoid misdiagnosis and inappropriate treatment, according to a report in the March Journal of Psychiatric Practice. The journal is published by Li
Child Positive Impact:The Disability-Culture Connection
This study examined mothers' perceptions of the positive impact of having a child with an intellectual disability. Trajectories of positive impact from 7 time points were developed using latent growth modeling and 2 predictors: culture (Anglo, Latino) and child disability status (intellectual disability, typical development). Data were from 219 mothers of children from age 3 to 9 years. Growth trajectories reflected a general decline in positive impact on Anglo mothers. On average, at age 3, Anglo mothers reported significantly lower initial values on positive impact when their children had an intellectual disability, but Latino mothers did not. Across all time points, Latino
10-year edition of ‘Riding the Bus’ comes subtler understanding of intellectual disability
Rachel Simon knew that having a sibling who has a serious intellectual disability had changed her life. But she had no idea that writing a book about the experience would change her life again. Recalling those early days, Simon says, “I allowed myself on
‘Switched at Birth’ Goes Silent to Make a Point
"Until hearing people walk a day in our shoes, they will never understand," says a guidance counselor a high school for deaf students in "Switched at Birth."
Home Modifications
Not all people begin life with disabilities, but most of us will need some kind of assistance as we experience the normal process of aging. Living at home within a community increases self-esteem, which can improve mental and physical health. Another rea
We Love Emma’s Hope Book
Ariane Zurcher is definitely one of our favorite writers. She writes with exceptional honesty, insight, and beauty.
Squag Interview: Architecture For Kids
Sara Winter of Squag™ interviews, Jorge Raedo of Amag . Amag is an architecture magazine for children 5-10 years old. It is a free Open Educational Resource.
Sara Winter,Founder of Squag™ Had Me at :)
Sara Winter answers our Change Leader Questionairre. Sara is the founder of Squag™ - a wonderful curated, online space that offers kids on the autism spectrum as well as other disabilities (and their siblings) a safe, beautiful corner of the web.
Merck Fund Announces Three $1M Grants to Support Translational Research in Developmental Disabilities
Several AUCD network members and George Jesien, Executive Director of AUCD, participated on the scientific advisory committee which helped develop this important grants program with the John Merck Fund. The John Merck Fund announced today the first three
A Life Defined Not By Disability, But Love
I love you. You're a good parent, and just because you're disabled doesn't mean that you do anything less for me.
14th Annual Hannah’s Buddies Charity Classic , March 22-23, 2013
The Hannah's Buddies Charity Classic began in 2000 with John Bell of Widespread Panic deciding to help his goddaughter and tens of thousands of children in their fight against SMA.
Deaf teen finds his niche at Richmond school
RICHMOND, Ind. (AP) — The seventh grade has been a whirlwind for Alex Brown . From relocating to Richmond and playing on the Test Intermediate School football team, the 14-year-old has had his share of new experiences. He was even credited with saving so
Researchers develop Rx for deafness, impaired balance in mouse model of Usher syndrome
New Orleans, LA Â Jennifer Lentz, PhD, Assistant Professor of Otorhinolaryngology & Biocommunications and a member of the Neuroscience Center of Excellence at LSU Health Sciences Center New Orleans, is the lead author of a paper reporting that hearing an
Report: NM boy offered to stay with girl in cage
The son of a New Mexico woman accused of locking an 8-year-old girl with developmental disabilities in a wooden cage said he offered to stay with the girl while the rest of the household went out to a movie, authorities said. The boy said he was uncomfor
Violent Video Games
“We don’t benefit from ignorance. We don’t benefit from not knowing the science of this epidemic of violence.” Obama said. “Congress should fund research into the effects violent video games have on young minds.” Only a month after the Newtown, CT traged
More Powerful than Energy and Entropy
Jeffrey Wright to his students ,"There is something a lot greater than energy. There’s something a lot greater than entropy. What’s the greatest thing? Love ."
Team Long Brothers SI Kids SportsKids of the Year
"Maybe people that don't care in the past will care in the future ." Conner Long
Person-First Language – ‘autistic’ vs. ‘with autism’
There is some debate about using the term ‘autistic child’ vs. ‘child with autism’, the latter being an example of what is typically referred to as ‘person-first language’. As you may have noticed, I typically use ‘autistic’. There are plenty of strong o
Pushing Past Limitations and Aiming to Inspire
Otis Hampton once walked 40 blocks in Manhattan, and swelled with pride when he reached his destination. Librado Romero/The New York Times Otis Hampton, who was born with cerebral palsy, currently lives in a homeless shelter in Harlem. For the past 100 y
My Skilled Companion Dog
We love the ebook "My Skilled Companion Dog" by Samuel Habib. It is a great and very realistic account of getting a CCI ( Canine Companion for Independence) skilled companion dog. Henry also has a CCI skilled companion dog, Denzel. CCI's two week training and matching program was such an extraordinary experience for Henry and me. We completed the course on CCI's Orlando campus, living in a dorm with 6 other families . The kindness and generosity exemplified by everyone involved was so touching ; from the amazing puppy raisers, the volunteers feeding us everyday, the patient and loving staff
TED | TED Playlists | What makes us happy?
What makes us happy? (9 talks) We all want to be happy. But how, exactly, do you go about it? More stuff or less? More choice or less? The answers -- from psychologists, journalists, Buddhist monks -- may surprise you. TED | TED Playlists | What makes us happy?.
Calm and Soft but Full of Energy: Thoughts on “the event of a thread”
We went to see Anne Hamilton's: the event of a thread at the Park Avenue Armory while we were in NY last week. It was absolutely magnificent, I wish we could go back again. Hamilton is brilliant. Our family is full of different tastes, sensory needs and ages and it was a perfect fit for everyone. Henry did an excellent job editing our experience. Henry loved the installation. He said it was "calm and soft but full of energy", "smooth and architectural water crossings " There are benches so if you want to sit down and watch you can,
Christmas Wish for Children and Teachers of Sandy Hook
We wanted to do something that would specifically honor some of the passions and characteristics the victims families described.
Autism device hidden in designer vest
With files from the CBC's Chad Pawson A Vancouver entrepreneur's start-up company is hoping to put "the squeeze" on autism. Lisa Fraser, a recent graduate from Vancouver's Emily Carr University, has designed a special medical vest that helps children cop
Happiness is Fireflies
This very sweet video, 'Fireflies' by The Jubilee Project is about two kids that connect in a beautiful way.
What Does Ollibean Mean to You?
Crazy but true, simply wearing an Ollibean tshirt makes bedtime routine happy and fun! Send us a message about why you want one, what Ollibean means to you, and we'll get one to you.
Stephen Wiltshire
We are huge fans of the extraordinarily talented Stephen Wiltshire. Stephen Wiltshire - An Introduction Time lapse of Brisbane Panorama by Stephen Wiltshire
Alan Cumming picks 5 unconventional family films
"Any Day Now" follows the struggle of a gay couple in late-1970s Los Angeles to adopt an abandoned teenage boy with Down syndrome. It's not exactly your traditional, old-fashioned family unit. So who better than the film's star, Alan Cumming, to ponder t
Alexis Clarkson: OlliNepal
We should all strive to see the beauty and potential in everything, and everyone, and to me, that is inclusion. "
Ollibean: All of a kind
The faces of Ollibean are kids with and without disabilities all trying to make the world a better place.
Ollibean Creed
The Ollibean Creed, our parenting true north for raising children with and without disabilities.
Get Schooled: Jack Black Rocks “Sensitive”
AUTISM IS AWESOMISM . LOVE this video performed by the incredible Wyatt Isaacs (Autism the Musical), Jack Black, Stephen Stills from the Miracle Project Benefit.
Don’t label people with Down syndrome
Perceptions about Down syndrome have changed in recent years, says David M. Perry, who has a son with this disability. STORY HIGHLIGHTS Ann Coulter's "retard" comment not aimed at Down syndrome, she said David Perry has son with Down syndrome and says cu
Nathan Heller: Andrew Solomon’s “Far from the Tree.”
For Megan and Michael, a Los Angeles couple, the crucial turn of parenthood came not in the delivery room but eight months later, when they started to worry that something had gone wrong with their son. The baby, Jacob, didn’t respond to the surrounding
Calling People the R word
Trigger Warning: R-slur as an insult, discussion of such (censored except in quotations and in a screen shot.) This is how we begin, sort of: I say sort of because this isn’t really a beginning, it’s a reflection. It’s a reflection of what we as a societ
URMC, Deaf Community, Study How to Improve Research Participation
Documents that explain life-saving medical procedures or how to take part in research can be difficult to understand, but with a $600,000 grant the University of Rochester Medical Center is studying new ways to deliver those messages to deaf patients and
Supporting Young Autistics
We hope that young autistics today will be proud of themselves and without shame. The message that boy received at that moment was the opposite of acceptance. It was ableist and it came from someone who is part of our own community.
Inclusive Education: It’s Great If You Can Get It
Inclusive schools need to become a reality for all students across the nation regardless of abilities, socio-economic background and geographic location. Unfortunately, many school districts do not see the inclusive classroom as the Least Restrictive Environment and an appropriate placement for children with special needs. Thus, what one child has free and appropriate access to, another one doesn’t. And then inclusion , which has been proven by experts to be the gold standard of special education, becomes an ideal situation…if you can get it. The lack of universal practice of inclusive education in our school system creates an overall discord in
Feedback Loop: Autistic Student, Or Student With Autism?
Dean McIntosh criticized our describing Frost as a “student with autism.” The entire adult autistic community has been saying in one loud voice that “…with autism” is not acceptable. Myself and Lydia Brown are just two examples of autistic adults who wri
Why is a 13 year old protesting in order to go TO school?
How did we get here? How did we get to a point that our 13 year old son has to fight for the rights that are already his under federal law? How did we get to a place where a pretty reserved kid has the courage, the will, to do this?
Bureaucrats
You look at me But you don’t see me You talk about me but not to me You think you know all about me But you deny my humanity You think I don’t have wishes You believe I don’t have plans You don’t respect my basic rights According to you I should be grateful That I have a place to sleep That I have three meals a day If I say I want to go out You ignore me To you I am only a burden Too disabled to have an opinion To you I don’t count as a person
Top 10 Things Autistic Self Advocate Needs Teachers to Know : # 3
Top ten things I want you to know. Number 3: Please talk directly to me, not to my support person.
A Sister Stands with Her Brother: I Am Heard, I Am Important, and I Am Included
No one wants to be the excluded one, the one to stand alone in silence, the one left out of the conversation. No one wants to be forgotten. So why are some individuals treated this way? Luckily it just takes one person to stand up and include, and the rest will follow. Be that person, take a stand, make a difference.
A Sensory Garden for Zoë and Oliver
One of Ollibean's contributors, the lovely and amazing, Julie Lohoefener of Bloom Garden Shop, let's us in on some great tips on creating a non-toxic Sensory Garden with your kids.
Amy Sequenzia : Friendship and Respect
It is a mistaken idea that we, autistics, lack empathy. It is also a myth that we are not social. My friends and I, we understand and respect differences. And we understand that we all have a lot to contribute, in a diversity of manners.
Sebastien’s Smile
Sebastien's Smile was created for the sole purpose of raising awareness for Mitochondrial diseases which affect the Setin's son Sebastien.
Henry’s video for his friend Sebastien, please help by sharing
Thursday Henry decided he wanted to write something to help his friend. We decided to video the process, as you can see, typing one letter at a time is a very long and arduous process. It took Henry hours to type and edit that paragraph. It was hard and Henry decided to not to share the parts that were too emotional. Sebastien is one of Henry's best friends, he loves him dearly and he has watched his body get weaker and weaker each day. I am so proud of H for writing this, it was very, very hard for a
Amy Sequenzia: “Storm”
"Storm" a poem by autistic self-advocate Amy Sequenzia.
London 2012 Takes Paralympic Torch Relay to New Heights
The Paralympic Torch Relay is the perfect moment to get your flags back out and get behind the incredible athletes taking part as the excitement builds once again right across the capital • Flames to be created at the summits of the UK’s four highest pea
Change Leader: Amy Sequenzia
"Presume competence. The same way I want people to assume I am competent, I also assume that others are competent".
Change Leader Questionairre: Richard Attfield
Change you would you like to see in your lifetime? "The end of discrimination towards children/people with disability labels. And the human right of communication implemented fairly. " Richard Attfield
Insights into How Deaf Brain Processes Touch and Sight
People who are born deaf process the senses of touch and sight differently than those who are born with normal hearing, a new study reports. The finding supports the notion that loss of a sense, such as hearing, affects brain development. Hearing loss th
Ollibean Baseball Camp
Cool camp for kids with Special Needs. It's free and everybody plays. July 16th through August 2, Monday through Thursday,8am to 10 am, at Palma Ceia Little League, Field C, Tampa Fl.
Perfect Ballet Slippers from Linge Shoes
We are obsessed with these ballet slippers from Linge Shoes. We get the skinny from designer/entrepreneur Whitney Evans about her exquisite shoes- perfect for moms and daughters alike.
Amy Sequenzia: “Just Me”
Amy Sequenzia writes about rejecting society's many labels. Perceptions such as “super spectacular” autistic and “low-functioning” are equally harmful .
Deaf people “feel touch” with hearing part of brain
(LiveScience) Individuals who are born deaf use the "hearing" part of their brain to feel touch and to see objects, suggests new research that highlights the plasticity of the human brain. The new study, detailed online July 11 in The Journal of Neurosci
Ollibean Baseball Camp July 10th – Aug 2nd
Ollibean Baseball Camp info! From July 10th through August 2nd , 8am to 10am free baseball camp for kids with special needs at Palma Ceia Little League. The amazing sister and brother team of Katie and Sam Martin have put together a great baseball camp for Ollibean ! Thanks to our friends and Challenger League Leaders and Palma Ceia Little League, camp will take place at PCLL Field C this Tues July 10 (from 8am to 10 am ) through August 2nd!! You do not have to attend the entire time but you are certainly welcome to. It is free and
Change Leader: Dr. Charles Price
If you could change one thing about the world, what would it be? "More acceptance, tolerance and understanding. Everyone is trying to get through life the best way they know how. Some are dysfunctional while others are externally successful. Not everything is as it seems on the surface".
Jedd Hafer of Love and Logic ® answers your parenting questions
We recently had the pleasure of speaking with Jedd Hafer, of Love & Logic® and asked him some of our questions. Jed's one of those people that you start talking to and feel like you've known him forever.
Amy Sequenzia: Happy to be Myself
Respect, understanding, acceptance.Things that make me happy.Respect, understanding, acceptance. These things make me grow.
Holly Robinson Peete and the Living with Autism Workshop
Holly Robinson Peete describes one of her main goals for HollyRod is to eventually create a St. Jude’s like center for autism where children can receive treatment.
Everything’s fine, he’s doing great and other half-truths
Writing about Sebastien and the Setins for One Day without Starbucks for Sebastien and Mitochondrial Disorders, made me think about how difficult it can be to talk about your child's very serious medical issues, even with good friends. I have many dear friends who have children that are currently living with or have had life threatening issues. Every single one of those kids and their families, make it look easy. So easy, in fact, that some people don't realize how hard it can be for many kids - going to a million doctors appointments, the surgeries, not feeling well. Often, it's hard
Top 3 FAQs About Inclusive Education
Parents naturally want what is best for their child, particularly when it comes to education. If a parent is not very familiar with inclusive education or had a child in an inclusive school, they have many questions and concerns. While too numerous to list, here is the top 3 frequently asked questions about inclusive education: Why isn’t there an inclusion program in my child’s school? Inclusive education is not considered a program that can be offered by schools. Inclusive education is a philosophy that the entire school district must believe in and support. The belief that all children should have
One Day without Starbucks for Sebastien and Mitochondrial Disorders
Sebastien is an 11 year old boy, who likes to do things any other 11 year old boy likes to do- play video games, watch sports on tv (especially his favorite player, Lebron James), and play baseball.
Ohio runner with cerebral palsy, 11, becomes YouTube hit
COLUMBUS, Ohio (AP) – When John Blaine realized 11-year-old Matt Woodrum was struggling through his 400-meter race at school in central Ohio, the physical education teacher felt compelled to walk over and check on the boy. "Matt, you're not going to stop
Larry Bissonnette featured on National Geographic
The amazingly talented artist Larry Bissonnette, of Wretches Jabberers, will be featured on an upcoming episode of the National Geographic TV program, Taboo.Check it out.
Matt W’s Field Day Race
Matt ran an amazing race on field day at Worthington, Ohio's Colonial Hills Elementary School. According to the Youtube video, Matt was given the opportunity to sit out, but after watching this kid run, you can see why that wasn't ever an option for him. The strength and determination Matt shows in completing this race is incredible. Matt has cerebral palsy which makes running challenging, but that does not stop him. Love seeing his classmates and teachers encouraging and supporting him all the way to the finish line.
Supporting Adults With Autism
By Melanie Grayce West Over the last decade, there's been a general increase in awareness of the need to provide tailored services, support and education to children with autism and other developmental disabilities. But there's been less talk about the n
The Setin Family and The Foundation for Mitochondrial Medicine
Sandra and Christophe Setin are parents to 3 great kids, their oldest, Sebastien, was diagnosed with MELAS when he was 3 years old, he is now 11. Sandra is on the Board of FMM, the Foundation for Mitochondrial Medicine and The Pepin Academies. Sandra and Christophe have created a spice, Chef Jean-Christophe's Provencal Meat and Poultry Rub to raise awareness and funds for a much needed cure for mitochondrial diseases. ALL profits go directly to research through The Foundation for Mitochondrial Medicine. Their spice is delicious, Christophe may be the trained chef, but Sandra is also a fabulous cook. Check out their
Marine returns from war to surprise: Son with cerebral palsy walks for the first time
Staff sergeant Jeremy Cooney hugs his son, Michael, after the boy with cerebral palsy surprised his father by walking to him. (CBS) (CBS News) A U.S. Marine serving in Afghanistan traveled thousands of miles home for a reunion with his family, but it was
Being left out puts youths with special needs at risk for depression
The challenges that come with battling a chronic medical condition or developmental disability are enough to get a young person down. But being left out, ignored or bullied by their peers is the main reason youths with special health care needs report sy
Disability photography: Changing the world one photograph at a time
Researching the subject, I quickly realised that the majority of photographs of disabled people are very negative, and mainly used within charitable organisations. Having lived within a disability world all my life, I already knew that societies’ opinion towards disability is very negative, and that has to change. I knew from that moment on, that this was something that disability was passionate about portraying in a positive light.
Todd Drezner: Autism and the Hypothetical Child
Given how many autistic people there are in the world, it's odd how much of the conversation about autism revolves around children who don't exist. The most common such child is the one who is "indistinguishable from his peers." This is the child who will supposedly emerge after successful therapies or treatments for autism leave the child essentially "normal.
Facebook blocks NC mom’s pictures of Special Olympics event
Diane Cornwell said her seven year old, Cole, who happens to have Down Syndrome had a great time at his first Special Olympics event last Friday. She uploaded an album of 40 pictures to share and says Facebook blocked it for inappropriate content and locked her account.
Children With Autism Are Often Targeted By Bullies
Lots of kids get bullied. But kids with autism are especially vulnerable. A new survey by the Interactive Autism Network found that nearly two-thirds of children with autism spectrum disorders have been bullied at some point. And it found that these kids
Inclusive Solutions
Together they have a combined experience of over 50 years experience as educational psychologists working across the UK. Previously as Principal and Senior strategic Educational Psychologists in Nottingham City LEA, they bring a wealth of practical, applied solutions and processes from their work with children and young people with exceptional needs aged between 0-19. Between 2001 and 2008 together they have written several books such as 'Keys to Inclusion' (2011) and published a number of books including: Incurably Human,Seeing the Charade and Dear Parents. Most recently they have set up a Community Interest Company together with Cat Wilson called "A Place in the
RESNA Releases Wheelchair Position Statement
The Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) has issued a position paper titled "The Application of Ultralight Manual Wheelchairs." Developed through RESNA's Special Interest Group on Seating and Wheeled Mobility, the paper highlights that: Wheelchairs should conform to the individual, and not the individual to the chair; Wheelchairs should be as lightweight as possible while also being fully adjustable to meet the individual's needs; and Wheelchairs that are lightweight and adjustable cause the least amount of injury to users and increase functionality.
TEDxPSU – Dr. Joseph Valente – Hearing the Unheard
Dr. Joseph Valente is involved in comprehensive research in childhood studies, comparative and international education, educational anthropology, deaf studies and disability studies.
Deaf Olympic hopeful uses social media to fight discrimination
Marcus Titus, top U.S. breaststroker, rallied for change and got it. USA Swimming will allow the use of hand signals to accomodate Deaf swimmers at the summer Olympic trials.
Subconscious Stereotyping
When it comes to negative stereotypes, your subconscious may not be the best dinner guest.
An Autism Diagnosis in Minutes?
Ask anyone who has taken a psychological exam, words like “rapid,” “accurate,” & “mobile” simply are not ways of describing most clinical diagnostic measures. Luckily, at least for early detection of Autism, a group of doctors from the Center for Biomedical Informatics at Harvard Medical School are looking to change that.
Presuming Competence
This issue is very important to me because so many events and breakthroughs in my life happened because I was presumed to be competent. On the other hand, some events in my life were not so good because of a presumption of incompetence. The message of presumption of competence is of encouragement and acceptance. The presumption of incompetence sends a negative message, a message that says no matter how much one tries, success is out of reach. For disabled people, especially the ones who need more support, who can’t communicate through speech or who have other communication difficulties, this negative
Few Answers In Abuse Probes At Homes For Disabled
Fairview Developmental Center in Costa Mesa, Calif., is a sprawling facility of offices, residential buildings and therapy rooms set between a noisy boulevard and a golf course. Some 400 people with developmental disabilities live at Fairview. And while
Utterly Mark : A Vermonter with autism makes his inner voice heard through film
Mark Utter sits at a computer keyboard with a broad, toothy grin, his eyes closed and head cocked slightly, as though he were listening to a muse whispering in his ear. After a long pause, he opens his eyes and, with slow, deliberate movements, pecks at the keys with a single, outstretched finger.
Spectrum Society
Mission Spectrum Society’s mission is to support people with disabilities to experience full citizenship and genuine belonging in community. We are committed to continuous learning and improvement through research into leadership and best practice. As a service providing agency, our focus is on strengthening the capacity of individuals and their personal networks, augmenting rather than replacing natural supports. Vision Spectrum Society for Community Living believes that community is enriched by the presence and contributions of its citizens with disabilities. We believe that together we can create a world where all people are valued, their voices heard, their choices respected. Values
RETHINKING AUTISM – Dana Commandatore
All too often in the world of autism, celebrity and sex appeal are used to promote pseudo-science and personal agenda. Rethinking Autism wants to change minds, change the current media conversation and help give autistic people a more prominent voice in
Neglect probe police arrest three
16 April 2012 Last updated at 13:47 ET Three people have been arrested by police involved in an investigation at a day centre for people with learning disabilities in Cornwall. The John Daniel Centre in Penzance caters for more than 80 people. A 21-year-
Life After IEPs
Welcome ! If you’re a parent or mentor of a young person with disabilities, Life After IEPs is for you. Whether your child is an elementary student or a high school graduate, you’ll find information, resources, and support you’ll need along the way. A challenging journey There’s joy on the path to adulthood. But it ain’t always easy. Perseverence, grace, and a good sense of humor are needed. It can be a bumpy road. Supports available during the IEP years will end after high school Unfamiliar laws, systems and jargon lie ahead Resources exist, but they’re scattered in
Stereotypes of Children with Disabilities
Stigmatization is one of the greatest obstacles to the successful integration of people with Trisomy 21 (T21 or Down syndrome), the most frequent genetic disorder associated with intellectual disability. Research on attitudes and stereotypes toward these people still focuses on explicit measures subjected to social-desirability biases, and neglects how variability in facial stigmata influences attitudes and stereotyping.
Autism Cares Foundation
The Autism Cares Foundation (ACF) was founded by the parents of a child with autism and other concerned parents, professionals and friends. The foundation was started as a means of helping others through the “puzzle” that is autism. At virtually every level, there are “twists and turns” in one’s attempt to reach the answers that many parents are seeking. As the founders discovered with their own child, answers are few, frustrations are many, and there are few places to turn to for answers. It is the intention of the Autism Cares Foundation to assist in “unwinding” the twists and turns
Seahawks GM John Schneider knows: Autism is a family diagnosis
RENTON — Ten-year-old Ben Schneider is a fun kid. He has a great laugh, loves Legos and playing video games. You can hear the pride in his parents' voices when they tell you how smart he is. When Ben was 16 months old, he could arrange the letters of the
Watching TV: Even Worse for Kids Than You Think
It's no secret that sedentary behavior contributes to obesity and chronically poor health. But not all sedentary behaviors are created equal, according to a new study that examines the link between blood pressure in children and their choice of inactive
Aspiring to Conquer Crossover Acting Path
It didn’t take much rehearsing for Russell Harvard, who plays the deaf son of a loquacious and argumentative British family in the Off Broadway play “Tribes,” to get inside his character’s skin. Like his character Billy, the 30-year-old actor is himself
Faces of Ollibean- We want to hear from you!
Every week we put the spotlight on another person out there making a difference. Share your story and inspire and motivate others to Be the Change.
Marlo Thomas: The Givers: What Inspires Michael J. Fox? A Very Personal Interview
Unbowed by his disease and still exhibiting his trademark energy, Michael reminded me not only of the single-mindedness that is fundamental to fighting for a cause, but also of the indestructibility of the human spirit -- one that looks at each new day as another chance to enjoy the magic and the gift of life. If only all of us could learn that lesson.
Interview Kate Winslet Golden Hat Foundation
Kate Winslet discusses her inspiration for the Golden Hat Foundation.
Kris’ Camp
Kris' Camp is a non-profit organization first established in 1995 as a therapy intensive/respite camp for children with special needs (thus far focusing on children with autism/autistic-like challenges) and their families. It is motivated by three mutually enforcing goals: To provide therapy for special kids, and To provide respite and support for the siblings and parents of special kids. To provide theoretical and hands-on education and training to students, caregivers, and professionals working in the field of autism and other developmental disabilities. The camps are named after Kris Moore (5/30/1988 - 11/9/1993), a wonderful little boy who touched many people
Fit Kids Playground
Our mission is to decrease the burden of childhood obesity and its associated potential chronic diseases in the Tampa Bay area. Through parental education, early childhood intervention through fun education and community awareness about the simple steps that can be implemented to teach healthy habits for life, the Tampa Bay community will be healthier for years to come.
OlliNEPAL at the SERC School
OlliNEPAL at the SERC School in Kathmandu
Shoreham students “experience” autism for a day
Fourth grader Nick Donnelly counted along with the rest of his classmates seated around the small cafeteria table at Miller Avenue School in Shoreham Thursday.When they reached 15, they pulled off the colorful bandanas that covered their eyes. Nick strai
Letter: Adults with autism must be a focus
Grim news regarding the prevalence of autism continues to make big headlines ["Keep effort going to unravel autism," Editorial, April 2]. It is jarring and heartbreaking.However, we must remember that autism is not specifically a childhood disorder. My 1
Epidemic, Awareness and Us, Autistics
By now everyone knows about the new numbers on autism diagnosis. And we have already seen the media jumping in the alarmist train: IT IS AN EPIDEMIC! My friend and I decided to look up some definitions for this word that has been used to classify me. This is what I found in one on line dictionary: epidemic noun a widespread occurrence of an infectious disease in a community at a particular time: a flu epidemic. a disease occurring in such a way. a sudden, widespread occurrence of a particular undesirable phenomenon: an epidemic of violent crime. Am I a
Communicate with Me | Savarese
Last year Dr. Sanjay Gupta of CNN wanted to talk to me so much that he flew me to New York and got me a room at the fanciest hotel in the city, but ironically at my school, most kids choose not to talk to me at all. Why is that? Recently I surveyed some of my close friends and discovered that most people aren't sure how to talk freely to me, and I greatly decided to use their questions as the basis for this piece.
Two-Thirds of Kids With Autism Have Been Bullied: Study
FRIDAY, March 30 (HealthDay News) -- Nearly two-thirds of American children with autism have been bullied at some point in their lives, and these kids are bullied three times more often than their siblings without autism, a new survey finds. Bullying occ
OlliNepal Update – March 29
The Ollibean/OlliNepal team finished up their trekking outside of Pohkara, Nepal and are headed back to Kathmandu for 7 days where they will volunteer at a local school, meet with OLE Nepal ,Kanti Children's Hospital, and SEEDs Nepal. The team's internet access & email has been fairly limited, so we are all exicted hear their reports of working with children with a range of diffabilities and delivering communication tools/tablets. Can't wait to see the pictures and videos!
Kyoto prof rolls out omnidirectional wheelchair
A mechanical engineering professor has taken the wraps off his vehicle that is designed to become a next-generation wheelchair. As its formal name suggests, this is the Personal Mobile Vehicle, or Permoveh for short. Rolling it around at
Outsourcing to the Autistic Rather Than to India
Part of the reason autism has captivated Hollywood movie makers more than other development disabilities is that, for all the difficulties it brings those who have it, it also gives some of them the ability to perform uncanny feats of brainpower: effortl
Ollibean Team Arrives in Nepal
The adventure begins! Beautiful start ! Greeted at Nepalese Airport by longtime friend, Topden Lama. Topden brought Tibetan scarves for the group
Employer Best Practices for Workers with Caregiving Responsibilities
In 2007, EEOC issued guidance explaining the circumstances under which discrimination against workers with caregiving responsibilities might constitute discrimination based on sex, disability or other characteristics protected by federal employment discr
ADA Kits for Hotel Guests with Hearing Loss
Harris Communications makes it easy to be in compliance with the new ADA requirements for deaf and hard of hearing hotel guests. Effective March 15, 2012, the Federal Americans with Disabilities Act (ADA) changed the accessibility requirements for guest
Whizz-Kidz
Our aim is to ensure that every disabled child has an opportunity to be something special…a kid. There are an estimated 70,000 disabled children and young people in the UK waiting for a wheelchair that fits their young lives. That’s where we come in. Whizz-Kidz provides disabled children with the essential wheelchairs and other mobility equipment they need to lead fun and active childhoods.
NOAH
NOAH is a U.S. based nonprofit, tax-exempt organization that offers information and support to people with albinism, their families and the professionals who work with them. NOAH is operated by its members on a volunteer basis and is funded primarily by dues and contributions of its members. NOAH has also received grants from foundations and organizations for specific projects.
Obama Signs ‘Thank You’ to Deaf Supporter
President Obama didn’t miss a beat last week when he encountered a group of deaf students along a rope line after his speech at Prince George’s Community College in Maryland. “I am proud of you,” signed Stephon, a 26-year-old coll
Mitochondrial Disease: Jeans for Genes
Many of us struggle with not knowing how we can make an impact on Rare Disease. Whether we are faced with the day-to-day difficulties of a rare disease itself, or we are passerby’s watching others’ demanding fight – many of us find ourselves scratching o
Physical Activity Proves a Vital Function in Cognitive Ability in Recent Studies
Physical activity among today’s youth in the United States has been on a steady decline while learning disorders like attention deficit hyperactivity disorder (ADHD) and others are on the rise. Scientists have yet to draw a direct causal link to physical
World Down Syndrome Day March 21!
Down Syndrome International presents the Global Video Event "LET US IN - I WANT TO LEARN!" in partnership with 68 countries for World Down Syndrome Day 2012.
Jesse A. Saperstein
Jesse A. Saperstein is a best-selling author, autism advocate and motivational speaker. He is considered one of the most respected leaders in the Anti-Bullying movement of his generation. Jesse also has a form of autism called Asperger's syndrome (AS). Individuals with Asperger's are impaired by a profound lack of social skills, common sense, and resistance to change in routine.
Autism NOW: The National Autism Resource and Information Center
Autism NOW: The National Autism Resource and Information Center will be a dynamic and interactive, highly visible and effective central point of quality resources and information for individuals with Autism Spectrum Disorders (ASD) and other developmental disabilities, their families, and other targeted key stakeholders.
Autistic Student Advocates for Herself, Other Autistics
“Because we see autism and other neurodevelopmental or neurological differences, conditions or disabilities as a natural variation of human diversity in terms of neurological diversity,” Brown says, “that means there’s nothing defective, wrong or diseased or broken. Therefore there’s no reason for a fix or for a cure.”
The Center for Courageous Kids
The Center for Courageous Kids, also known as CCK, is a world class medical camp located in Scottsville, KY, serving children and families from across the country who are living with a variety of medical challenges. We are open year round and can host 120 kids at a time. When you add our counselors, volunteers, trained Programs and Medical staff, our mascot, Dr. Cubby the Courageous Lion, and our top notch facility, you start to see just how "We Prescribe Fun!" What makes The Center for Courageous Kids spectacular? *We are a 20 million dollar facility. *Our 168 acre campus encompasses an onsite
The Autistic Global Initiative (AGI)
The Autistic Global Initiative (AGI), a program of ARI, is comprised of a committee of adults diagnosed with autism spectrum conditions. Our members hail from all regions of the United States, representing the broad life span of autistic experience and expression. We are active as professionals and consultants in many fields within the autism community, including education, social work, medicine, employment, fitness and wellness, rehabilitation counseling and the visual and graphic arts.
The Lancet:The health of deaf people: communication breakdown
Andrew Alexander discusses how deaf people are often alienated from accessing the UK health-care system and what needs to be done to change this.
New ADA accessibility requirements took effect March 15
For the first time in history public fitness centers, public swimming pools, recreational facilities, parks, golf and mini-golf courses, detention facilities and courtrooms, playrooms and amusement rides must adhere to the governments accessibility requirements. The rules also clarify issues that have come up in the 20 years regarding bathroom dimensions, reach ranges and accesible routes.
Reading Club | ‘Navigating Love and Autism’
On Dec. 26, 2011, the front page of The New York Times featured an extraordinary article. Part of a series by Amy Harmon chronicling the coming of age of a generation of autistic youths, the article, “Navigating Love and Autism,” told the story of Jack R
Best Buddies Friendship Walk, April 21, 2012 : 12:00 pm-4:00 pm
The Best Buddies Friendship Walk is a fun-filled community fundraiser to support your local Best Buddies programs of inclusion. 4/21/2012 12:00 pm - 4:00 pm . Our friendship, integrated employment and leadership programs educate people with and without intellectual and developmental disabilities (IDD) to be advocates for social inclusion in your community. Walk Registration: No Fees Register for the Friendship Walk and begin fundraising for Best Buddies Florida! Cotanchobee Fort Brooke Park 601 Old Water Street Tampa, FL 33602 For more information Participant Registration Form Join Ollibean's Friendship Walk Team
National Disability Rights Network
NDRN’s mission is to promote the integrity and capacity of the P&A/CAP national network and to advocate for the enactment and vigorous enforcement of laws protecting civil and human rights of people with disabilities. The Protection and Advocacy (P&A) network was created by Congress after the Willowbrook scandal unearthed the horrible conditions in that institution. Read more about the Network's history here. The newly created P&A agencies began to realize that in order to be able to advocate for their clients, they needed a national voice in Washington, DC for their own protection, survival and growth. This was especially true, as soon
Stephen Hawking to Guest Star on ‘The Big Bang Theory’
It’s a dream come true for “The Big Bang Theory:” world renowned British physicist and cosmologist Stephen Hawking will guest star on the sitcom early next month. A press release put out by CBS said Hawking, 70, will “share his beautiful mind with his most ardent admirer, Sheldon Cooper” on the show’s April 5 episode.
Institute on Human Development and Disability
The Institute on Human Development and Disabililty (IHDD) has been Georgia’s University Center for Excellence in Disability Research, Education and Service (UCEDD), and ranks as one of The University of Georgia’s oldest continuously-funded federal programs. The IHDD works with people who have disabilities and others, to ensure that all people can achieve their highest capacity and quality of life.
Acceptance
Welcome new Ollibean writer, Amy Sequenzia! We know you're going to love her blog and her poems........ "Accepting myself is an on going process. A few days ago I wrote a poem about acceptance. It is easier for me, sometimes, to write about my life in verses. But after I write about what bothers me in verses and stanzas, I can talk about it in any format. I freed myself when I wrote the poem. In a way, I accepted myself a little more." It is very hard to have confidence in my abilities when all my life, when people
The Flutie Family Tackles Autism, National Autism Awareness Month
Doug Flutie Sr., 49, reaches his goals on the field and off. "For whatever reason, people have the feeling I can get things done," the Heisman Trophy winner says. Maybe they remember the former quarterback's famous heart-stopping, last-second Hail Mary p
A Deaf Son Struggles to Be Heard in ‘Tribes’
A family dinner in the beginning of Nina Raine's "Tribes" tells the audience all it needs to know about the crisis of understanding that plagues the characters in this bright and boldly provocative drama. Two parents and three twenty-something children s
Boy charts city’s disabled access
Nathan was inspired to create his website after finding access to a bowling alley blocked by stairs. Despite the challenges he faces, Nathan's disability does not stop him from leading a full life. What does occasionally stand in his way is more mundane - steps, staircases and narrow shop aisles.
Medical Champion© Wiffle Ball Tournament August 10th and 11th
With an innovative and fun twist on fundraising, event chairs James Ramos and Derek Alvarez, along with their committee, will host the Fourth Annual Wiffle Ball Tournament on August 10th at the Don CeSar Beach Resort on St. Pete Beach. Join for them for an All American outing... Wiffle Ball Tournament, Last Days of Summer Beach Bash & Barefoot Dance Party. To help an All-American cause... Children with Allergies & Primary Immune Deficiency. Friday, August 10th 4 P.M. - Sunset Pre-registration, Home Run Derby Contest and Beachside Live Music The Don CeSar Beach Resort St Petersburg Beach Saturday, August 11th
Lloyd Coleman, deaf teen composer’s Olympic theme
Lloyd Coleman, 18, who is also visually impaired, recently won a place at London's Royal Academy of Music. "It's called Breaking the Wall because, after Giles and I started talking about marathons and how runners hit the wall and have to overcome humungous challenges, we realised there were parallels with the kind of challenges disabled people face," he said.
KIT – Kids Included Together : Recognizing the Ability in Every Child
Kids Included Together (KIT) is a registered 501(c)(3) non–profit organization founded in San Diego, California in 1997. The mission of Kids Included Together (KIT) is to provide learning opportunities that support recreation, child development and youth enrichment programs to include children with and without disabilities. KIT’s goals are to enrich the lives of all who participate and to increase understanding and acceptance of disabilities as a natural part of life. We invite you to explore our site and learn more about our work with out–of–school time programs across the United States and internationally.
The Smart List 2012: 50 people who will change the world
Welcome to the first Wired Smart List. We set out to discover the people who are going to make an impact on our future --by asking today's top achievers who, emerging in their field, they'd most like to have a leisurely lunch or dinner with. So we approached some of the world's brightest minds
Hannah’s Buddies Charity Classic, Support the Fight Against SMA, March 30-31
The Hannah's Buddies Charity Classic began in 2000 with John Bell of Widespread Panic deciding to help his goddaughter Hannah and tens of thousands of children in their fight against SMA. Today, the golf tournament, silent/auction and concert lineup attracts more than 2,000 participants and has raised nearly $2 million for SMA research. What is SMA? Spinal Muscular Atrophy is a neuromuscular disease that affects between 1 in 6,000 and 1 and 20,000 births. Over time, SMA causes muscles to become weak and considerably smaller. On average, 1 in 40 people are genetic carriers. Sponsor/Donate If you are unable to attend the
Williams Syndrome Association
The WSA is the most comprehensive resource for people and families living with Williams syndrome as well as doctors, researchers and educators. The WSA provides resources, support and the latest medical information to help your child today and throughout his/her life. By joining, you’ll become part of the largest organization dedicated to improving the lives of people living with WS. No matter the age or stage of your family member with WS, you are not alone. The WSA offers support and will help you navigate the challenges from diagnosis through adulthood.
Extreme Kids & Crew
Extreme Kids & Crew is a parent-run non profit dedicated to causing a great scene for Brooklyn’s kids with disabilities, their families and friends. They are all about creating a warm and encouraging atmosphere where children and adults of every ability and disability can relax, have fun, and enjoy the experience of being deeply accepted and celebrated for the people that they are. We offer workshops in the arts and movement with insightful and practiced teachers, parent education nights, free family concerts, and much more.
A ‘Fountain’ of Kudos for First-Time Novelist Eliza Factor
The Fort Greene resident is not only about to release her first book, “The Mercury Fountain,” but she wrote the novel while raising three kids — one of them with cerebral palsy and autism — and starting Extreme Kids and Crew, a center catered to the needs of families with disabled children.
UNESCO | United Nations Educational, Scientific and Cultural Organization
UNESCO works to create the conditions for dialogue among civilizations, cultures and peoples, based upon respect for commonly shared values. It is through this dialogue that the world can achieve global visions of sustainable development encompassing observance of human rights, mutual respect and the alleviation of poverty, all of which are at the heart of UNESCO’S mission and activities. The broad goals and concrete objectives of the international community – as set out in the internationally agreed development goals, including the Millennium Development Goals (MDGs) – underpin all UNESCO’s strategies and activities. Thus UNESCO’s unique competencies in education, the sciences,
Friend 2 Friend Social Learning Society
The Friend 2 Friend Social Learning Society is a British Columbia-based not-for-profit organization formed in 2002 for the purpose of promoting mutually rewarding friendships between children with autism spectrum and related social-communicative disorders and their peers, classmates and siblings. Our goal is to help children develop to the best of their abilities through the play and socialization that results from these friendships. We do this by providing direct services for children by visiting schools and other community settings to explain the sensory and communication challenges of autism spectrum and related disorders. We use a fun and interactive approach while teaching
Ralph James Savarese | essayist, poet, scholar, and activist
Ralph James Savarese is the author of Reasonable People: A Memoir of Autism and Adoption (Other Press 2007), which Newsweek called a “real life love story and a passionate manifesto for the rights of people with neurological disabilities.” It won the Independent Publishers Gold Medal in the category of health/medicine/nutrition, and a chapter was selected as a “notable essay” in the Best American Essays series of 2004.
SPREAD THE WORD TO END THE WORD 03.07.12
Respectful and inclusive language is essential to the movement for the dignity and humanity of people with all disabilities. However, much of society does not recognize the hurtful, dehumanizing and exclusive effects of the word “retard(ed).” It is time to address the minority slur “retard(ed)” and raise the consciousness of society to its hurtful effects.
Bullying and ASD
The Interactive Autism Network (IAN) Project has launched a national survey to study the impact of bullying on children with autism spectrum disorders (ASD). Bullying, a pervasive problem among youth, has attracted the national spotlight over the past ye
I Believe by Will Scheutze
They had no idea how much I know and I didn’t think they believed I was smart. They thought that functional was more important for me to learn than academics. I didn’t like that, so I never did good work and so they thought I couldn’t sort forks. I know how functional is important in life, but nobody knows how important the academics are to me. I just want to be able to learn more and be able to go to college. I think I can do that. My teachers made me believe I can do that. I never believed
Challenger Division
The Challenger Division was established in 1989 as a separate division of Little League to enable boys and girls with physical and mental challenges, ages 4-18, or up to age 22 if still enrolled in high school, to enjoy the game of baseball along with the millions of other children who participate in this sport worldwide. Today, more than 30,000 children participate in more than 900 Challenger Divisions worldwide.
Mock my pants, not my sister
The following was written by Brian Skotko , MD, MPP, a Physician at Children’s Hospital Boston’s Down Syndrome Program. It’s in response to a feature in GQ magazine that used insensitive language. Go ahead, GQ, and mock my blue whale-emblemed Nantucket-red pants. Laugh if you want at the loud argyles that I prefer to wear with my black suit. I don’t even care if you dismiss the sexy pink polka-dotted tie that I like to wear with my blue-checkered shirt in clinic. But, whatever you do, do not mess with my sister.
Brian Skotko
A Board-certified medical geneticist at Children's Hospital Boston, Massachusetts General Hospital, Brigham & Women's Hospital, and Dana Farber Cancer Institute, Dr. Skotko has dedicated his professional energies toward children with cognitive and development disabilities. He is one of the specialists in theDown Syndrome Program at Children's Hospital Boston. In 2001 he co-authored the national award-winning book, Common Threads: Celebrating Life with Down Syndrome and, most recently, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. He is a graduate of Duke University, Harvard Medical School, and Harvard Kennedy School. Dr. Skotko recently authored major research on how physicians deliver
Don’t Play Me Pay Me
The Don't Play Me Pay Me campaign seeks to: Actively encourage disabled people to follow their chosen creative career path. Remove the barriers of prejudice that disabled actors face in finding work. Provide a forum for all disabled actors to encourage debate and empower them to have their voice heard and listened to. Encourage programme makers to feature disabled actors in all storylines to reflect real life. Encourage programme makers not to use non-disabled actors (even if a “name” means funding) to portray disabled characters. Encourage advertisers to feature disabled people in all advertising. http://www.dontplaymepayme.com
GCAC Presents: VSA Ohio at the intersection of art and disability
Since its founding in 1986, VSA Ohio has evolved to become a community that helps inspired artists connect with their passions. Bridging arts and disability, their programs and services focus on providing equal opportunity, full participation, independen
Sign up and Ollibean gives to a child in Nepal. It’s that easy.
Want to help kids in Nepal? We’re making it super easy. For every person that joins our community we will donate $2 to support children in Nepal.You can also enter for a chance to win an iPad**. Now share this with everyone you know and show the world how easy it is to make a difference.
A boy’s talk about his Asperger’s resonates in his school
Since Jack Lebersfeld told the entire sixth grade he has Asperger's syndrome and explained what that meant, his speech has taken on a life of its own that Jack and his parents could have never imagined. Asperger's is one of the autism spectrum disorders
Squag: Social media for teens and tweens with autism | Washington Times Communities
Two years ago, Sara Winter's nephew got in a skirmish at recess and was very upset. Winter suggested that the boy, who is on the autism spectrum, write a note to his parents on her Blackberry to tell them what he was feeling. Astounded by the way he was able to express himself, Winter began searching for software that could help him do so more. Finding none, she eventually created a social networking-style interface for kids on the spectrum called Squag.
The Coffee Klatch
The Coffee Klatch started on a whim. I often speak and write about the isolation, stigma and confusion of parents raising a special needs child. Many of those parents are on twitter to share information, seek support or find a friendly ear. Twitter is where it all began. It is where I met my incredible team of moderators and thousands of special needs parents. It is where we created a morning chat for parents both newly diagnosed and those who have navigated the muddy waters to meet and share. It became very apparent to me, very quickly, that many of
Team Hoyt
Team Hoyt is an inspirational story of a father, Dick Hoyt, and his son, Rick, who compete together in marathons and triathlons across the country. Team Hoyt strives to help those who are physically disabled become active members of the community. .
Self-Report Computer-Based Survey of Technology Use by People With Intellectual and Developmental Disabilities
Abstract Advancements of technologies in the areas of mobility, hearing and vision, communication, and daily living for people with intellectual and developmental disabilities has the potential to greatly enhance independence and self-determination. Prev
Factors Associated With Self-Concept: Adolescents With Intellectual and Development Disabilities Share their Perspectives
Abstract How one perceives the self is critical to long-term development. The purpose of this study was to explore the self-perceptions of adolescents with intellectual and developmental disabilities. Participants included 51 adolescents with intellectua
Yoga for Children with ADHD and Autism in Clearwater
I now have new ways to work with a child who had been labeled as dysfunctional, and they are all working! Shakta Kaur Khalsa, yoga teacher and founder of Radiant Child Yoga Program, and Allison Morgan, Occupational Therapist, will co-lead a weekend train
“Possibilities Series: Abby”
The Possibilities Video Series illustrates the lives of individuals with disabilities who live, work and attend schools in their communities.
Creators of Halo & Star Wars Renew Student’s Dream after Charter School Rejection
Self-advocate Tres Whitlock on how the NPR story, "Florida Charter Schools Failing Disabled Students" has impacted him.
There’s Nothing ‘Down’ About Having a Child With Down Syndrome
When my friend Jennifer Lister was expecting her third child, I was so happy. She's an amazing person, a fantastic mother. Jennifer and I don't live near each other anymore so we keep up on Facebook and I was so excited to virtually be there as her
My Voice, My Life : A Poem by Amy Sequenzia
This powerful poem from the book "MY VOICE, Autism, Life and Dreams" by self-advocate Amy Sequenzia says so much. We were fortunate enough to get to know Amy at ICI's Summer Institute at MIT and are very grateful to her for allowing us to publish "My Voice, My Life" here. If you are interested in purchasing a copy of Amy's book, you can find her on Facebook. My Voice, My Life Look at me. Go ahead, take a good look. What do you see? Weird? Silly? Pitiful? Can’t do anything? You might feel sorry for me You might pity me
Todd Drezner: Nickels, Dimes and ‘High-Functioning’ Autism
As Justin Canha's story shows, the autistic person who needs a lot of support in one area may become a person who needs much less support in that same area. Justin barely spoke before age 10. Now he's verbal. He didn't suddenly change from "low-functioning" to "high-functioning." Rather, he received the support he needed and developed his skills.
What I Learned During My “Sabbatical” at the MIT Media Lab (Part Two)
Why Inventing Technologies for the Disabled is Not Just Right but Smart Business Q. What do a child with autism, an Iraq war-veteran amputee and a senior citizen with Alzheimer’s have in common? (Other than having disabilities that begin with “A.”) A. They are all the early adopters of radical new technologies that will make all our lives better in the future. For my entire career as an entrepreneur, I assumed that developing innovative technologies for people with disabilities, while the “right thing” to do, was not a particularly promising business proposition. Within a year of becoming director of the
What I Learned During My “Sabbatical” at the MIT Media Lab (Part One)
Also, like an academic, I wrote a book during my sabbatical. The book is about the highly unorthodox research and researchers at the Lab, titled “The Sorcerers and Their Apprentices: How the Digital Magicians of the MIT Media Lab are Creating the Innovative Technologies That Will Transform our Lives”. At the Lab, not taking risks is the biggest risk of all. Crazy and wild-eyed ideas and inventions emerge from what appears to be chaos. Some of these seeds survive and grow into innovations that can improve our everyday lives, disrupt industries and even transform society.
D-PAN ASL Music Video “We’re Going To Be Friends” by the White Stripes
White Stripes "We're Going To Be Friends" ASL video we love by D-PAN.
Matt Savage with Bobby Watson- “Big Apple Blues”
Here's a song from Matt's "Welcome Home" CD Release concert in New York at Dizzy's Club Coca-Cola at Jazz at Lincoln Center! Matt Savage on piano ; Bobby Watson is on alto sax, Joris Teepe is on bass, and Peter Retzlaff is on drums. Incredible!
Brick Walls
“Oh, that’s ok! We plan on donating. If we aren’t a match, we come from a large family and someone will donate. We don’t want to be on the list. We will find our own donor.” “Noooo. She—is—not—eligible –because—of—her—quality– of –life—Because—of—her—mental—delays” He says each word very slowly as if I am hard of hearing. “STOP IT NOW!” The anger is taking over. Thank God. Why did it take so long to get here? The social worker is writing some things down.
They call me Barney Fife
One out of four people that use accessible parking spaces, should not be using them. One out of four people think it's ok to park in a spot specifically designed and strategically to make it easier for someone who uses a wheelchair to have enough space to actually open the door to their van? Ok to park in a space designated for someone who has a heart condition so they don't have to walk quite as far?
“Miles for Kids’ Smiles” Pediatric Physical Therapy
As a pediatric PT, I often hear requests for "another lap on the tricycle" or "can I go back to my room now? Puhhhleeeease!" But the question of going to Nepal to fulfill one of my life's dreams has only one answer: "YES!" I grew up playing soccer. My family and I dedicated much of my childhood free time to road trips, holiday tournaments and the goal of obtaining a college scholarship to play. I signed with a small, liberal arts university in Alabama. While training preseason, I heard and felt a "POP". I would spend the next 4 years
MetLife Center for Special Needs Planning
MetLife Center for Special Needs PlanningSM is dedicated to helping families secure both lifetime care and quality of life for their dependents with special needs. Our mission is to help families plan for the future of their dependents with special needs, including preserving government benefits and providing insurance and other financial solutions which can help provide lifetime quality care. The planning process begins with a complete review of your dependent's needs, future care plans, assessment of government benefit eligibility, and finally a review of your family's current financial and legal plans. Critical areas that must be addressed are: 1.Government benefit
Children Across Borders
Children Across Borders is a charitable organization that paves the way for children of the world to a brighter future by providing sustained support in the form of education, health, housing, and wellness to under-privileged children while enabling the educational and cultural enlightenment of all children. They create a network of support for under-privileged children around the world by partnering with people and organizations who have chosen to dedicate their lives to helping these children lead healthy, fulfilling lives.Their work is personally driven with adherence to high standards and accountability, leading to a positive impact on our community and country.
Stephen Hawking- Asking big questions about the universe
Professor Stephen Hawking asks some big questions about our universe -- How did the universe begin? How did life begin? Are we alone? -- and discusses how we might go about answering them.
Autism Support Network
The mission of Autism Support Network is conveyed in our tagline: connect, guide and unite. Our goal is to short-cut the uphill battle individuals and families undertake when faced with autism – whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information.
Jules Gluten Free
In addition to heading product and recipe development at Jules Gluten Free, Jules travels the country speaking to thousands of people annually, teaching cooking classes and educating and inspiring people about her no-compromise approach to living gluten-free.
Chef Jean-Christophe
All proceeds from the sale of our Spice Blend are donated to the Foundation for Mitochondrial Medicine to give hope and a future for all affected by those disorders, including Sebastien. The mission of Chef Jean-Christophe is also a very personal one; his son Sebastien was diagnosed in 2004 with a Mitochondrial Disease. Those diseases have no cure and affect 1 out of 4000 children. The proceeds from the sales of Provencal Meat and Poultry Rub are entirely donated to the Foundation for Mitochondrial Medicine to help find new treatments and save the lives of hundreds of children, including Sebastien’s. As
Fruit of the Vine Organics
We're crazy about Vera Farmen's, Fruit of the Vine. They have the freshest organic fruit and vegetable baskets. Weekly seasonal offerings including recipes, storage instructions and tips. Fresher and more affordable than your local grocer.
Gluten-Free Goddess
We love this site! Karina has amazingly delicious gluten-free recipes all delivered in her wonderfully poetic voice.
Ollibean Heads to Nepal in March
We know how challenging it is in the States for our kids to have the supports they need to get an education and it is 100 times more challenging for our friends in Nepal.
Down Syndrome Brings Joy Not Regrets to Individuals and Families
In a series of recently completed surveys, 96 percent of parents expressed no regrets about having a child with Down Syndrome and nearly eight out of 10 said the child had enhanced their lives by teaching them patience, acceptance and flexibility, among other things. Siblings had similar feelings, with 94 percent feeling "pride" about their sibling and 88 percent saying the sibling had made them a "better person." via Down Syndrome Brings Joy Not Regrets for Many Families - MSN Health & Fitness - Kids' Health.
How David Met Sarah, by Anne Kelleher
I wrote How David Met Sarah at my mother's suggestion when she explained that as much as David is interested in reading, it's hard to find stories he likes. He reads at approximately a third grade level but as an adult, David doesn't relate to third grade level stories. It's also hard to find stories that have a hero with which he can identify. via How David Met Sarah.
Amy Julia Becker: Explaining Down Syndrome, To My Daughter, And Myself
A few months back, I mentioned to our daughter Penny that she would be meeting another little boy who had Down syndrome, just like her. She didn't say anything in response, but later on that day, when Penny was at school and William was getting ready for a nap, he said, "Mom, what down syn mean?" via Amy Julia Becker: Explaining Down Syndrome, To My Daughter, And Myself.
Special Olympics International
The Special Olympics mission remains as vital today as it did when the movement was founded in 1968. Through the power of sport, Special Olympics strives to create a better world by fostering the acceptance and inclusion of all people. Mission Statement The mission of Special Olympics is to provide year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in a sharing of gifts, skills and friendship with their families, other Special Olympics athletes and the
Stories From The Road | Chapter Thirteen | “The End Of The Road”
"The End Of The Road": Larry and Tracy take time to reflect on their spiritual journey of disability awareness as they prepare for the theatrical premiere if their film, "Wretches & Jabberers" in New York City.
On Beauty
We are in love with 'On Beauty" the documentary by Joanna Rudnick. She follows the talented Rick Guidotti as he challenges public perception of difference and beauty through the lives of three exquisite women.
National Arts and Disability Center
The National Arts and Disability Center (NADC) is a project of the University of California: their mission is to promote the full inclusion of audiences and artists with disabilities into all facets of the arts community. The NADC is a leading consultant in the arts and disability community, and the only center of its kind. Recipients of our technical assistance include museums, performing arts organizations, art centers, film and television companies and unions, universities and colleges, national publications, disability specific groups, artists with disabilities, arts educators, students, arts administrators and government policy makers.
Best Buddies International
Best Buddies is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities (IDD). Founded in 1989 by Anthony Kennedy Shriver, Best Buddies is a vibrant, international organization that has grown from one original chapter to almost 1,500 middle school, high school, and college chapters worldwide. Best Buddies programs engage participants in each of the 50 United States, and in 50 countries around the world. Best Buddies’ seven formal programs – Best Buddies Middle Schools, High Schools, Colleges, Citizens, e-Buddies, Jobs
Autism Society of America
The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. They do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.
The Arc of the United States
The Arc promotes and protects the human rights of people with intellectual and developmental disabilities by actively supporting their full inclusion and participation in the community throughout their lifetimes.People with intellectual and developmental disabilities are entitled to the respect, dignity, equality, safety, and security accorded to other members of society, and are equal before the law. The Arc believes that people with intellectual and developmental disabilities belong in the community and have fundamental moral, civil and constitutional rights to be fully included and actively participate in all aspects of society and supports their self-determination and self-advocacy. People with intellectual and
Hold My Hand
The documentary,"Hold My Hand", follows Eliza Schaaf, a young woman with Down Syndrome, who was raised under the principle of inclusion. Schaaf was dropped from her ceramics class by Southern Oregon University. SOU sited she required excessive supervision and limited her classmates time for instruction. Schaaf denies this and her classmates signed a petition refuting this fact and asked that she be reinstated. "Hold My Hand",made by four students at Chapman University, Ruby Stocking, Bobby Moser, James Parker, and Virginia Thomasi, looks at the impact of being excluded from her class, but also covers the importance of inclusion for all members of society. Schaaf's website offers
The Pearls Project-Teaching Empathy
Students at Ridgewood High School were shown photos of young people with genetic disorders and told not to look away. The unusual lessons are part of a new effort, called the Pearls Project, to promote tolerance and empathy in a school culture where being different can mean social exile. Ridgewood teachers developed it this year in partnership with Positive Exposure, a nonprofit group in New York City founded by Rick Guidotti, a fashion photographer. “Genetic conditions are depicted as images of sickness and sorrow — it’s always a kid up against the wall in a doctor’s office,” Mr. Guidotti said.
Thank You, Steve Jobs
Thank you Steve Jobs for thinking differently so that so many others may express their thoughts. Apple's products have changed the lives of so many people with disabilities - CP, autism, dyspraxia, motor planning issues, developmental delays, neuromuscular disorders, expressive language disorders, vision impairments. My son uses his iPad and iPod as a communication device, a way to surf the internet, watch youtube, and connect with friends. Until Apple came out with the ipod, the choices in AAC devices were very expensive ( the ones we looked at were between $5,000 and $8,000 and heavy- too heavy for someone that
Wretches & Jabberers Tampa Screening
The " World Intelligence Magnified Tour" took Tampa by storm. The screenings of Wretches & Jabberers the weekend of June 10 were an enormous success.
Ollibean Art for Change: Wretches & Jabberers Screening and Q & A at Tampa Theatre
Academy Award winner, Gerardine Wurzburg's documentary, "Wretches & Jabberers ", Screening and Q & A at Tampa Theatre . The rockstars of self advocacy, Tracy Thresher and Larry Bissonnette take Tampa by storm, shattering misconceptions of autism and intelligence.
