Resource: Angelman Syndrome Foundation
Angelman Syndrome Foundation https://www.angelman.org Angelman Syndrome Foundation is a national 501(c)(3) organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman syndrome as possible.
Apple Celebrates Autism Acceptance Month with “Dillan’s Voice”
Autistic high school student Dillan Barmache, has so much to say and people around the world are listening. "Dillan's Voice" can be seen on Apple's website in celebration of Autism Acceptance Month. Apple has chosen Acceptance over Awareness and it's a big deal. Why ? Because 16 year old Dillan Barmache communicates using an iPad, you don't see that in the mainstream media every day. And because Autism Acceptance Month was started by #ActuallyAutistic people. ( You can read more about it's evolution from organizer Paula Durbin-Westby ) The world is listening and it's so exciting. Not being able to speak doesn't mean you don't have a
Holiday Giveaway- ‘The Real Experts’
Ollibean Holiday Giveaway "The Real Experts" The Real Experts : Readings for Parents of Autistic Children edited by Michelle Sutton features essays by Nick Walker, Ally Grace, Emily Paige Ballou, Alyssa Hillary, Cynthia Kim, Kassiane Sibley, Sparrow Rose Jones, Michael Scott Monje Jr., Elizabeth J. Grace, Briannon Lee, Morénike Giwa Onaiwu, and Amy Sequenzia. "How do I help my child to thrive? To be healthy and happy, to fulfill his or her positive potentials, and to grow up to lead a good life? Every parent of an autistic child struggles daily with this question. Just trying to understand an autistic child’s actions, feelings,
“Stimtastic” – Great Resource forChewable Jewelry, Stim Toys and Fidgets
Stimtastic - Chewable Jewelry, Stim Toys and Fidgets. Run by an autistic person, Cynthia Kim, of another resource we love, Musings of an Aspie. Description from the site: Stimtastic is affordable stim toys, chewable jewelry and fidgets for autistic adults and teens as well as individuals with SPD, ADHD/ADD, dyspraxia . . . everyone who stims! Run by an autistic person, Stimtastic celebrates stimming as a natural part of our lives. Every purchase you make at Stimtastic.co supports autistic individuals: 10% of proceeds from sales at Stimtastic.co go back to the autism community in the form of charitable donations and direct giving. All
We love “Love Explosions”
"Love Explosions" by the wonderful Beth Ryan is on our love list. The blog had us at the description - "When the love for your child overwhelms you." You may already be familiar with the enormously popular and helpful FB page - Parenting Autistic Children with Love and Acceptance, which had us at "name" :). Go check them both out.
Holiday Giveaway!
We are so grateful to each and everyone of you who make our community so wonderful. We are celebrating you and the holidays by giving away some of our favorite things. Today's giveaway is our "Inclusion- it's everybody's classroom" mug.
14 Dead in Mass Shooting at San Bernardino Center for People with Disabilites
14 people have been killed at The Inland Regional Center, a non profit that serves children, adults and seniors with disabilities. An additional 14 were injured by the masked shooters . The building is open to the public and it has been reported that another group was hosting a Christmas party on the grounds. Police are currently searching the building and surrounding area for the active shooters who were wearing masks . At least three possible suspects fled in a black SUV and remain at large. If you have any information call 180078CRIME Live Stream
Deaf Teen Filmmakers Interpretation of Phillip Phillips’ “Home”
Acceptance, connection, and belonging. Home. Thank you Deaf Film Camp for making such awesome videos!
Autonomous Press
Autonomous Press (also known as AutPress) is an independent publisher focusing on works about disability, neurodivergence, and the various ways they can intersect with other aspects of identity and lived experience. We are a partnership of disabled workers including writers, poets, artists, musicians, community scholars, and professors. Each partner takes on a share of the work of managing the press and production, and all of our workers are co-owners. Our Mission “Autonomous Press seeks to revolutionize academic access.” But what does that mean? Does it mean access to academic work, so that the public can better understand scholarship? Does it
Take ASAN’S Pledge to Include Autistic Voices
Please join us and take The Autistic Self Advocacy Network's pledge to include Autistic voices in organizations, conferences and panels on autism. Would you support an organization that advocated for women or attend conferences about women if they failed to include women ? Of course not. Then, please, take a minute, sign this pledge and share widely. Join: Colin Meloy, Lead Singer, The Decemberists, Linda Walker Fiddle, Executive Director, Daniel Jordan Fiddle Foundation Mike Elk, Labor Reporter, In These Times Magazine, Steve Silberman, Investigative Reporter and Author, Wired Magazine, Cecilia Breinbauer, Executive Director, Interdisciplinary Council on Developmental and Learning Disorders
![[Image Description: The NeuroFly: top view of a bright blue human brain, with bright blue butterfly wings sprouting out of the sides.]](https://ollibean.org/wp-content/uploads/2015/10/NeuroFly-1-300x202.png)
NEUROCOSMOPOLITANISM
A must, must have resource -NICK WALKER'S NOTES ON NEURODIVERSITY, AUTISM, AND COGNITIVE LIBERTY. NEUROCOSMOPOLITANISM http://neurocosmopolitanism.com
National Catholic Board on Full Inclusion
National Catholic Board of Full Inclusion has a vision of full inclusion in Catholic schools for students with disabilities. Our mission is to inspire schools to begin the process of becoming inclusive, to educate teachers, parents, principals and priests on what it takes to be an inclusive school and to provide the educational research and real life experiences that support it. National Catholic Board of Full Inclusion on Facebook
How Being Included Changed This Boy’s Life
Having opportunities to learn with everyone could access more opportunities for all.
Respectfully Connected: Journeys in Parenting and Neurodivergence
We are all about respect, so of course, Respectfully Connected is a Resource We Love!
Isn’t it a Pity? The Real Problem with Special Needs
The Real Problem with Special Needs We love this TEDx Talk from our friend, Torrie Dunlap, at Kids Included Together on benefits of inclusion and the real "problem" with special needs. Isn’t it a Pity? The Real Problem with Special Needs Torrie Dunlap, CEO, Kids Included Together Feeling Good about Casting Someone with Special Needs in the Show In the early 90s I was a student on this very campus, and actually, on this very stage. I was a drama major who had a dream to change the world through arts education. The world, however, had something different in
LOVED As I Am
We can all use a daily reminder that we are loved, accepted and adored for being exactly who we are. Ollibean Goods of the Day- "LOVED as I am" , "You Are Loved" and "I Am Loved" .
Disability Visibility Project
Ollibean is very proud to be a media partner of the Disability Visibility Project. Please join us in spreading the word about this important project dedicated to "Recording Disability History, One Story at a Time".
Ollibean Goods – Gifts That Celebrate Inclusion and Diversity
Ollibean Goods - gifts that celebrate inclusion and diversity . Ollibean Goods donates 10 % of net proceeds to fund literacy programs and provide iPads for communication .
World’s First Kid-Friendly Wheelchair From Wheelchairs of Hope
It's unacceptable that any child miss out on an education because of not having a wheelchair, and Wheelchairs of Hope is doing something about it. Wheelchairs of Hope is an initiative based on the belief that mobility from early childhood is a gate to education, and that access to education creates a new generation with improved skills, higher self-confidence levels, and more hope for the future. The UN, the WHO, and two Nobel Prize winners are backing the work of Wheelchairs of Hope. With production sites spanning three different regions, Wheelchairs of Hope will be able to guarantee shipment of
The Case for Inclusion on The Inclusive Class Podcast
Check Out Education Podcasts at Blog Talk Radio with The Inclusive Class Podcast on BlogTalkRadio
What’s the Social Model of Disability?
What is the social model of disability and why is it important ?
Pharrell’s “Happy” in Sign Language
Beautiful American Sign Language interpretation of Pharrell Williams's "Happy." An expression of music in ASL composed by Rosa Lee Timm and Azora Telford. The video was produced by a team of Deaf campers & staff from Deaf Film Camp 2014 at Camp Mark Seven. CAST Rosa Lee Timm Azora Telford -- Campers -- (coming soon) -- Teachers -- Bellamie Bachleda Braam Jordaan Bim Ajadi Sophia Ballester Tate Tullier Wayne Betts Jr -- Counselors -- (coming soon) -- Interpreter -- Drisana Levitzke-Gray EXECUTIVE PRODUCER (VIDEO) Convo VIDEO PRODUCER Stacy Lawrence Sophie Sok EDITOR Bim Ajadi CINEMATOGRAPHER/CO-EDITOR Wayne Betts, Jr. VISUAL
More on Inclusion on Ollibean
Information and resources on Inclusion for parents, providers and children with special needs.
ASL University
We love this free American Sign Language resource- ASL University !
Students with Disabilities Excel with High Expectations, Access, and Inclusion
"We know that when students with disabilities are held to high expectations, have access to a robust curriculum in the regular classroom, they excel." Secretary of Education , Arne Duncan Until recently, the Department of Education's primary focus was evaluating states compliance meeting procedural requirements- timelines for evaluations, due process hearings and transition services. Under the new framework, Results-Driven Accountability (RDA), the Department will also include educational results and outcomes for students with disabilities in making each state’s annual determination under the Individuals with Disabilities Education Act (IDEA). “Every child, regardless of income, race, background, or disability can succeed if
Cheryl Jorgensen
Dr. Cheryl Jorgensen's website is an excellent resource for information about inclusive education, best practices, differentiated instruction, universal design, curriculum adaptation, writing standards based IEPs, facilitating social relationships and much more!
Lizzie Velasquez: Inspiring & Empowering a More Positive Online Environment
At only 25, Lizzie Velaquez is a motivational speaker, the subject of an upcoming documentary and author. In her viral TedX Talk, How Do YOU Define Yourself , Lizzie asks the audience to consider what defines them, and whether they're going to choose to give up in the face of negativity from others, or whether they're going to choose to be happy. After finding a video on Youtube which called her the ugliest woman in the world, Lizzie decided she was not going to let someone who had never met her, bully her – much less, define her. Lizzie has
DCMP: Described and Captioned Media Program
Explore the Described and Captioned Media Program (DCMP) Website to learn it promotes and provides equal access to communication and learning for students who are blind, visually impaired, deaf, hard of hearing, or deaf-blind. The DCMP is an idea that works thanks to funding by the U.S. Department of Education and administration by the National Association of the Deaf.
Accessibility Is a Right Not a Privilege
Accessibility is a right not a privilege. 20 posts on Accessibility, Universal Design, and Inclusion It's Time to Go Beyond Access Creating Equal Opportunities For ALL Students to Participate in School Athletics State Obligations UNESCO Accessible Instructional Materials (AIM) Inclusion Is A Right Not A Privilege Paula Kluth on The Inclusive Class Roundtable The National Center on Accessible Instructional Materials Why Would We Want Inclusive Education? Ollibean Spotlight: Kerima Cevik Pay It Forward Activist How AAC and assistive tech make classrooms better for all : Paula Kluth The Case for Inclusion Part 3: Sea Change Access to the
What’s Underneath – Jillian Mercado
Jillian Mercado, the 23 year old model and editor and founder of Manufactured 1987 is featured in StyleLikeU 's "What's Underneath Project". The "What's Underneath Project" has select individuals remove their clothes to honor how style is not the clothes you wear, but rather, what's underneath. Transcript Off camera. StyleLikeU: So you should just talk very freely, don’t edit. Just, you know, we’ll edit and just let yourself just roll. You’ll, whoever ask the question you can talk to. At the end of each question you’ll just take a piece of clothing off. Jillian Mercado Voice: Ok, I have one,
I have Tourette’s. Please tell everyone.
This powerful performance by Jamie Sanders, spoken word poet and actor with Tourette's, covers bullying, shame, self-acceptance and empowerment in the best 150 seconds you'll watch this week.
Resource We Love : YogaKids
We love YogaKids and their foundation Go Give Yoga! Their mission is " to promote peace, health, empowerment and education" . Ok, sign us up!
Why The Lie We’ve Been Sold About Disability Is The Greatest Injustice
Stella Young of Ramp Up explains the Social Model of Disability, Inspiration Porn, and the lie we've been sold about disability in this nine minute TED Talk. Stella Young Transcript I grew up in a very small country town in Victoria. I had a very normal, low key kind of upbringing. I went to school, I hung out with my friends, I fought with my younger sisters. It was all very normal. And when I was 15, a member of my local community approached my parents and wanted to nominate me for a "Community Achievement Award". And my parents
The Importance of Opportunity
Dillan Barmache, a 14 year old autistic student, delivers his powerful 8th grade commencement speech using his iPad and brings the crowd to their feet.
SWIFT on NPR’s “All Things Considered”
by Dr. Mary Schuh: SWIFT Center Recently, National Public Radio’s (NPR) “All Things Considered” aired a story on inclusive education. The story featured Presidio Middle School in San Francisco and SWIFT Filmmaker, Dan Habib. While Presidio Middle School should be applauded for their efforts to educate students with and without disabilities, what was portrayed by NPR would by no means be considered an inclusive school. Students with disabilities placed in a separate basement class learning functional “survival” skills does not make for an inclusive experience. How can students with disabilities learn important “survival skills” such as communication, literacy, following typical
Dan Habib: Disabling Segregation
Dan Habib's Tedx Talk on the importance of inclusion, belonging and disabling segregation. Habib is the creator of the award winning documentaries, Including Samuel, Who Cares About Kelsey, Restraint and Seclusion: Hear Our Stories, Thalia and other disability related subjects . Check out Dan's Tedx Talk on the benefits of inclusive education for students with and without disabilities. Picture yourself back in your grade school classroom. I don't care if it's elementary school, middle school, high school. Just put yourself back there for a second. Look around the classroom. Do you see any kids with and without disabilities studying together
Depositions Related to the Death of 7 Year Old Isabella Herrera
Isabella died on January 26, 2012, a day after choking on a Hillsborough County School bus. Bella, a 7 year old student at Sessums Elementary, drove her power wheelchair onto her Hillsborough County School bus at 2:07 pm. Once on the bus, Isabella, who had a neuromuscular disorder, relied on an aide who was supposed to be trained to position her wheelchair with her head tilted back to allow her to breathe. "They were supposed to be trained by physical therapists at the school to slightly tilt her chair so her head would not bobble," says Isabella's mother, Lisa Herrera.
Hillsborough County Public School Transportation Manager Resigns
John Franklin, the general manager of Hillsborough County's transportation department resigned April 22, 2014. Franklin became manager in 2007 and helped Hillsborough County Public School (HCPS) save millions of dollars by reorganizing the transportation department. HCPS employees have been speaking out about safety issues, low morale, directives not to document safety concerns and unfair treatment by the administration. John Franklin's deposition in the lawsuit brought by the family of 7 year old Isabella Hererra can be read here. Isabella died on January 26, 2012, a day after choking on a Hillsborough County School bus. Bella, a 7 year old student
Help Emily Ladau Win an Adapted Van
Hey guys, we need five minutes of your time. Disability rights advocate, Ollibean contributor, and all around awesome human, Emily Ladau is in a contest to win her first car. Emily recently had quite an adventure getting her driver's license and now she can legally drive! Emily's a wheelchair user and needs an adapted van and equipment which will cost around $70,000. Folks, please take a moment, read her story and vote daily so Emily can win the van she needs in order to drive. You can register to vote via e-mail, but be sure to check your spam folder for the password
Take Action to Keep All Students Safe at School! || Stop Hurting Kids
Stop Hurting Kids needs all supporters of the Keeping All Students Safe Act to take action and urge members of the U.S. Senate to co-sponsor this bill.
Who Cares About Kelsey? We do.
We first saw Who Cares About Kelsey ? at the National Center on Inclusive Education’s Summer Institute and instantly connected to the film's message of empowering students.
Welcome to the Autistic Community
The Autistic Self Advocacy Network and the Autism Now Center have created "Welcome to the Autistic Community! " It is a must read for anyone who wants to learn about autism.
Is Your Child Learning How to Code?
We hope all kids are learning to code. If they aren't being taught programming skills in school, there are so many great sites that can help them get started today.
Life for Lief ~ “See Me As Smart”
“Some people think that kids who are autistic can’t handle getting a transplant. Kids with autism can handle it.” Lief O'Neill
Celebrate Ed Roberts Day 2014 with YO! DISABLED & PROUD
In 2014 YO! Disabled and Proud would like to honor Ed Roberts legacy by posting photos of you and Ed enjoying your independence together.
30 Second Message for Bullies
AAPD's PSA features three real students sharing a simple message: people with disabilities are powerful, self-determined individuals—not victims.
Judith Snow ~ Relationships & Inclusion
"The research shows that when a child who is not academically gifted is included in a regular school, not only do the academics improve across the school, and I did say that, I didn’t say “in the classroom”, I said “across the school”, not only do the academics improve, but drug use and violence goes down."
I Got 99 Problems..Palsy Is Just One- Maysoon Zayid on Ted
“People with disabilities are the largest minority in the world and we are the most under-represented in entertainment.” Maysoon Zayid
2014 Joint Letter to the Sponsors of Autism Speaks
January 6, 2014 To the Sponsors, Donors, and Supporters of Autism Speaks: We, the undersigned organizations representing the disability community, are writing to urge you to end your support for Autism Speaks. We profoundly appreciate your interest in supporting the autism and broader disability communities. Our work is about empowering and supporting people with all disabilities, including adults and children on the autism spectrum, to be recognized as equal citizens in our society and afforded all of the rights and opportunities that implies. Unfortunately, Autism Speaks’ statements and actions do damage to that work and to the lives of autistic
“Weird & Wonderful”
'Weird and Wonderful", a feature-length documentary, tells the story of the disability rights movement from the late 1960s until today.
Worth A Second Look: Haben Girma’s 2010 Speech on 35th Anniversary of IDEA
"One of the treasures of IDEA is that it provides children with disabilities the luxury of just being students. Unfortunately there are still many school districts where students with disabilities are denied their right to an education." Haben Girma
Ollibean and MyVoice Holiday Gift
‘Tis the season and we've teamed up with MyVoice for a special contest featuring TalkRocket Go or RocketKeys- two amazing communication aid apps for iPad, iPhone, and iPod touch. You choose the app that's right for you. To enter, simply subscribe to MyVoice Newsletter here . We will announce the winner on December 23rd. RocketKeys gives a voice to people with ALS, Aphasia, Autism, Brain Injury, Cerebral Palsy, MND, and Parkinson’s, using its customizable keyboards, accessible input, and sentence prediction. TalkRocket Go is the family-friendly communication aid that helps people with Autism, Cerebral Palsy, Stroke, Traumatic Brain Injury, Parkinson’s (and
The Importance of Supports
"If we invested a mere one-tenth of the amount of money that we currently pour into causation into empowering Autistic people to communicate, that young man and hundreds of thousands more like him would be able to communicate their needs to us today. I am not here today to speak for every Autistic person – that’s impossible. What I am here for is to argue for every Autistic person to have the same opportunity to communicate that I have come to enjoy thanks to the support that I have been lucky enough to receive in my life." Ari Ne'eman
Meet the Members of the 2013 National Council on Disability
The National Council on Disability works to further equal opportunity, self-sufficiency, independent living, inclusion and full integration of people with disabilities into the civic, social, and economic fabric of American life.
A Typical Son’s mom on “the r-word” and Chuck Klosterman’s apology
Kari Wagner-Peck ,the author of A Typical Son blog, and twitter friend @atypicalson wrote a letter to find out why Chuck Klosterman , of the Ethicist used the r-word. Kari who is 'like Erma Bombeck - in that I write funny about the ordinary and not so much in that I am angry, I swear a lot, and we have a kid who has Down syndrome' wrote an eloquent, thoughtful letter to Klosterman , reached out to folks on twitter and used social media for social good. Pretty cool. You can read the response from Klosterman here,It's fabulous- CK, sincerely apologizes
An Open Letter to Suzanne Wright, Co-Founder, Autism Speaks
Over the years, though, we have learned that war is no longer a useful metaphor to invoke and apply in the disability community. People with autism, or for that matter other developmental disabilities, are not victims of the predations of some evil actor, nor are their mothers, fathers, sisters and brothers. Instead, we appreciate, as stated in the Developmental Disabilities Act, that “disability is a natural part of the human experience.” Unfortunately, your description of children with autism and their families is polarizing and divisive, creating rifts within a community that can ill afford it in these perilous times. Characterizing
ASAN President Ari Ne’eman on the DOE’s New Stance on Bullying Prevention
Comments from Autistic Self-Advocacy Network President Ari Ne’eman, delivered on August 20th, 2013 during a call with with stakeholders from the education and disability communities on the Department of Education’s new guidance on bullying prevention and IDEA. Presenters on the call included OSEP Director Melody Musgrove and White House Associate Director of Public Engagement Claudia Gordon.
Jobless rate for disabled Americans still high 22 years after landmark law
Twenty-two years after passage of the landmark Americans with Disabilities Act, the employment rate for people with disabilities is still dismally low, and advocates want to change that. “The ADA … has made a difference in the lives of people with disabilities … but [for employment] the needle hasn’t moved,” says Helena Berger, executive vice president of the American Association of People with Disabilities in Washington.
I Am Disabled and I Am Proud
"Polite society often tells us that we need to take the 'dis' out of disability, but maybe... just maybe, we should spend some time putting it back in. Take the "dis" out of disability and you remove the core of what has shaped my life. Disability puts the "D" in diversity, but in order to make that a real difference we've got to own that spot. It took me 35 years to respect and honor that truth. Others shouldn't have to wait that long..." Lawrence Carter-Long
Creating Equal Opportunities For ALL Students to Participate in School Athletics
Educators should use the appropriate equipment properly to ensure that physical education programing for students with students with disabilities is safe, effective, and inclusive. EQUIPMENT Appropriate equipment can help children and youth with disabilities participate in appropriate physical activity. Athletic equipment might need to be modified for safe use by some children and youth with disabilities. For other students with disabilities, specialized equipment may be needed. Activities involving the use of modified or specialized equipment can replace other less safe activities. Treadmills, for example, are effective in providing predictable walking and running conditions, which can be necessary and appropriate for
Don’t Call Me Inspirational
"Disability is not something terrible that needs to be fixed, cured, or made to go away forever. It is a natural part of reality. We ask for acceptance as equal members of society." From the PSA "Your Daily Dosage of Inspiration" by Cheryl Green and Caitlin Wood.
ASL-STEM: Expanding American Sign Language’s Place in the Sciences
The ASL-STEM (Enabling American Sign Language to grow in Science, Technology, Engineering and Mathematics) Forum is up and running! The purpose of ASL-STEM's online community is to bring educators, interpreters, captioners, students, and others together in order to help build ASL's technical vocabulary from the ground up.
How to Ignore the Media and Learn to Love Autism
Here are some suggestions on how to tune out the media's negativity and learn to love autism: 1) Read Jim Sinclair’s “Don’t Mourn for Us”. 2) Tell your parents, family and friends that are close (maybe even your boss) about your child's diagnosis, as you are going to need support. 3) Let go of any preconceived ideas for birthday parties, trips to the supermarket and vacations. Don’t worry if an event doesn't turn out exactly as planned. Sometimes the unexpected is just as wonderful. 4) Discover what motivates your child and learn as much as you can about those topics.
Dr. Caroline Musselwhite Shares Strategies to Promote Literacy for ALL
Dr. Caroline Musselwhite addresses the topic of overall good literacy instruction. She presents information about how to teach students with significant disabilities using fairly common literacy instruction strategies. There are 11 short video posts to help you get started. She discusses the issues of AAC and suggests strategies that are easy to implement and highly effective. Keep Calm and Watch On…
Wanting More and Finding Disability Justice
White House Champion of Change recipient Mia Mingus is writer, organizer, and member of the Bay Area Transformative Justice Collaborative. Disability was always framed as a sad or bad thing, as something unfortunate that happened to me, a tragedy, a flaw. My experience with the medical world was one about “fixing” me and making me more “normal” and less disabled. This of course, echoed my experience of the world at large. I never saw disabled women in the media being desired or living whole complex lives, let alone disabled women of color. The messages always boiled down to: disability is
Having to Prove Competence
But now and then I meet someone who has. They believe they are doing a good thing, a noble thing. They believe they are helping. They believe that the people they are trying to help are living happier lives as a result. They believe this with all their heart. They give words, as though gifts, in grammatically correct sentences, believing people can be trained to say things and do things that will be understood by the majority of the population. They think that if they can force someone to stop moving their hands or legs or twirling bits of string
Concentration Fatigue on Deaf Children
Many deaf children have not been given the space to talk about what impact deafness has on them and to work out strategies to deal with it. Why does advice to teachers talk far more about language and communication, rather than concentration fatigue?
Closed Captioning Helps All Students
"Not only were students talking about how much having the captions helped them as they took notes, their test scores went up," Collins said. During the first year of a 2-year case study, he showed videos without captions to establish a baseline of student comprehension, then in the second year turned on the captions and began to see improvement in comprehension and grades. "During the baseline year, there were a lot of Cs. In the second years, they went from Cs, Ds and Fs to As, Bs and Cs. It was really significant improvement," he said. "We're living in an
14 Year Old Advocates for His Civil Rights
My name is Christian Ranieri and I am a 9th Grader at Northport High School. You should know that I have a developmental disability called Autism. I have come a long way in life as I could not talk in the beginning but now I am able to express my message to you in words. When I was 5 I cried a lot and would throw myself on the floor when I got frustrated. I am proud to say that now I can speak clearly and to the best of my ability try to deal with my frustration in words.
I Care By
If you care, you act. Do something positive to help a young person with emotional challenges.
American Society for Deaf Children
We believe deaf or hard-of-hearing children are entitled to full communication access in their home, school, and community. We also believe that language development, respect for the Deaf, and access to deaf and hard-of-hearing role models are important to assure optimal intellectual, social, and emotional development. We believe that consideration of communication opportunities for deaf and hard-of-hearing children should be based on facts. Research consistently demonstrates that fluency in sign language and English offers deaf children (including those with cochlear implants) and hard-of-hearing children optimal opportunities for social and academic success, and thus both should be part of their language-rich
Autistic Aloha
Amazing resource we love- Autistic Aloha!
Inclusion: The Right Thing for All Students – WNYC
We have reached the tipping point where it is no longer educationally or morally defensible to continue to segregate students with disabilities. We shouldn’t be striving to educate children in the least restrictive environment but rather in the most inclusive one.
Putting Education First by That Crazy Crippled Chick
"First, we must ensure that all children, including and especially those with disabilities, receive a quality education. Inclusion means nothing if a child is not receiving a good education, which is, in fact, the very reason we have schools in the first place. " Cara Liebowitz
How Will the Affordable Care Act Affect People With Disabilities?
The Thinking Person's Guide To Autism interviews Ari Ne'eman of The Autistic Self-Advocacy Network about specific advantages, opportunities, and sticking points of the Affordable Care Act for People with Disabilities
Disability Activist Keith Jones on Community
"So let us remember that when we teach, when we educate, we make policy, we make decisions that we do it with a conscience and that we remember that we are leaving fingerprints on forever." Keith Jones
Who Cares About Kelsey
Kelsey Carroll lived with homelessness, self-mutilation, abuse and ADHD. She was a likely high school dropout — until she encountered an education revolution that’s about empowering, not overpowering, teens with emotional and behavioral disabilities. Kelsey’s story, a story of trying to be seen for her potential rather than her past behavior.
Sign Language Researchers Broaden Science Lexicon
Imagine trying to learn biology without ever using the word “organism.” Or studying to become a botanist when the only way of referring to photosynthesis is to spell the word out, letter by painstaking letter. For deaf students, this game of scientific Password has long been the daily classroom and laboratory experience. Words like “organism” and “photosynthesis” — to say nothing of more obscure and harder-to-spell terms — have no single widely accepted equivalent in sign language. This means that deaf students and their teachers and interpreters must improvise, making it that much harder for the students to excel in
Judith Heumann: Changing the System
Her activism is clearly rooted in a strong sense of justice. Early on she learned that if she wanted to be part of society she was going to have to fight for the right. "I had no choice because, as a disabled person, I was going to either have to get involved with changing the system that limited me or not participate in society," she says. In 2010, Ms. Heumann became the first-ever special adviser for international disability rights at the US State Department. Her job: Promote and protect the rights of people with disabilities internationally and ensure that US
How AAC and assistive tech make classrooms better for all : Paula Kluth
In 2009, I published an article in The Reading Teacher with my colleague, Kelly Chander-Olcott, titled “Why Everyone Benefits from Including Students with Autism in Literacy Classrooms”. One of the points we make in the article is that students with disabilities often bring assistive technology and augmentative communication into classrooms and, therefore, make them richer places to learn. Students with and without disabilities who are in classrooms that use AT and AAC regularly and creatively not only may get access to unique materials, but also get to learn about learning itself. They may be able to generate ideas for using
Rion Paige on X Factor
Rion Paige blew everyone away at the "X Factor" audition. This beautiful, charismatic 13 year old has an absolutely incredible voice and exudes such confidence and poise it’s hard to believe she ‘s only 13. Rion has arthogryposis multiplex congenta which causes joint contractures and vision loss. Rion spoke about her audition on the "X Factor", “Ever since I was little I‘d just try to find a way to get to a microphone, put it in between my knees and try to get it in my foot, put it in my mouth. But sometimes I just get really frustrated whenever
The AbleGamers Foundation
The AbleGamers Foundation, also known as AbleGamers Charity, is a 501(C)(3) nonprofit public charity that aims to improve the overall quality of life for those with disabilities through the power of video games.Video games allow individuals with disabilities to experience situations that may be difficult or limited in the real world, provide social networking opportunities to maintain mental and emotional health, and participate in one of the world’s largest pastimes. With a three-step approach, AbleGamers works and advocates on behalf of the disability community to increase the accessibility of video games and to achieve further inclusion by those who need
Issy Stapleton: Emergency Information and Autistic Community Response
Emergency information is on here, followed by commentary. Emergency information for disabled victims is first, since they are in the most immediate danger. Unfortunately, many disabled victims of violence are at the mercy of their would-be-killers. Emergency information for people who are concerned that they might murder or otherwise injure a disabled person follows. Some links are en español. Read More Here.
5 Ways to Elicit Language from PrAACtical AAC
PrAACtical Suggestions: 5 Ways to Elicit Language Without Asking a Direct Question SLPs love to talk, of course, but sometimes that works against us. Over-prompting. Jumping in to repeat the last question. Re-phrasing the previous comment. Nature abhors a vacuum and sometimes we just can’t stop ourselves.
Modeling, AAC Style
Modeling AAC Style - This is a strategy that is too powerful to ignore! Here’s why Aided Language Input is at the top of our list of skills that all clinicians should master: 1. It expands our sphere of influence 2. Other communication partners will imitate us. 3. If WE use it, then parents and teachers are more likely to as well.
Judith Snow
Judith Snow, MA is a social innovator and an advocate for Inclusion – communities that welcome the participation of a wide diversity of people. Inclusion is an opportunity for EVERYONE!
The Power of Presuming Competence
"Thasya", a mini film by Dan Habib, highlights the power of presuming competence, differentiated instruction and augmentative and alternative communication. Inclusion works.
Transforming Education to Benefit ALL Students
As part of a 5-year, $24.5 million grant awarded by the U.S. DOE , the SWIFT Center was founded to assist districts and their schools to engage in a transformational process, in order to achieve equity and excellence for all students. Research has demonstrated that inclusive education significantly improves academic and behavior outcomes for all children.
Intersection of Law, Education and Civil Rights
As a deaf-blind student with very limited sight and hearing, Haben Girma '13 learned that you must be a self-advocate and come up with creative solutions to the problems you face. If that fails, she says, then the law can be a strong ally.
EveryBody: An Artifact History of Disability in America
The Smithsonian's Web exhibit of the history of people with disabilities in America shown through photos.
Ollibean Baseball Camp
Great week at Ollibean Baseball Camp! Thank you to all the great Ballplayers and Counselors who made it so much fun. We still have some spots for this week- August 12 through 16, 8:30 am to 11:30 am. It's free!
Senator Harkin Delivers Speech in ASL Upon ADA Passage in 1990
Upon passage of the landmark Americans with Disabilities Act (ADA) on July 13th, 1990, Senator Tom Harkin delivered a speech on the Senate floor in American Sign Language. Harkin, whose brother Frank was deaf, was the lead Senate author of the ADA, which was enacted later that year. His speech is the first in American Sign Language to be delivered from the Senate floor.
Deaf Parent Advocates for Communication Supports She Received from Same School 40 Years Ago
Deaf mother goes before Hillsborough County School District Board to advocate for son's necessary services. The 8th largest school district in the country has an operating budget of $ 3 billion. Despite being notified in advance of her attendance, the district was unable to provide any access .
National Disability Leadership Alliance (NDLA)
National Disability Leadership Alliance (NDLA) is a national cross-disability coalition that represents the authentic voice of people with disabilities. NDLA is led by 14 national organizations run by people with disabilities with identifiable grassroots constituencies around the country. The NDLA steering committee includes: ADAPT, the American Association of People with Disabilities, the American Council of the Blind, the Association of Programs for Rural Independent Living, the Autistic Self Advocacy Network, the Hearing Loss Association of America, Little People of America, the National Association of the Deaf, the National Coalition for Mental Health Recovery, the National Council on Independent Living, the
Resource : Yes, That Too
Resource we love- "Yes, That Too" !
ADAPT
ADAPT is a national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom. The ADAPT Youth Summit will take place on in Chicago, Illinois. We are training young people with disabilities on direct action and nonviolent civil disobedience. If you are interested in supporting this year’s event or participating in next year’s group, please email Josue at adaptyouthsummit@yahoo.com.
Disabilty and Civil Rights: Standing On the Right Side of History
"If we were to go back to the 1960s and we were to talk to those leaders who were vehemently against desegregation, we would hear the conviction in their voices of them stating why they believe their decisions and what they were doing to those children were just. Just as I believe that some of you and some of the board members that have spoken believe that their decisions are just. But, I fear that the Hillsborough County School Board is standing on the wrong side of history."
Ollibean Inclusive Baseball Camp August 5-16
Hope you can join us for our 2nd Annual Ollibean Inclusive Baseball Camp at Palma Ceia Little League. 2 sessions August 5- 9, and August 12-16.
The Maryland Coalition for Inclusive Education – 07/12/13
This week, Carol Quirk who is the Co-Executive Director for the Maryland Coalition for Inclusive Education, will return to the podcast. Carol is going to talk, on behalf of the MCIE, about ways in which we can support inclusive education. The Maryland Co
Much Needed Resource: “We Are Like Your Child”
"We are like your child. Your child is like us. And we may have difficulties, we are disabled--but there is no denying that we are also awesome."
The Autistic Self Advocacy Network
The Autistic Self Advocacy Network is a 501(c)(3) nonprofit organization run by and for Autistic people.
Thinking Person’s Guide to Autism
We love Thinking Person's Guide to Autism, a community of autistics, professionals, and parents sharing what you need to know about autism.
The National Center on Inclusive Education Summer Institute
Inclusive education conference with keynotes by Lydia Brown, George Sugai, Dan Habib, JoAnne Malloy. Cheryl Jorgensen, Michael McSheehan, Henry Frost and many more you will not want to miss!
AAC Helps Learners with Complex Communication Needs Reach Their Full Potential
" A lot of these kids end up not reaching their full potential because they suffer from low expectations. People think they don't speak well, so we shouldn't have them in the regular classroom, but a lot of the kids I work with, they're cognitively fine. They're perfectly capable. They just need a viable means of communication to really help them through that." Cathy Binger
Not Impossible: The Story of Daniel
Five years ago (next month) our severely autistic son Daniel had a major breakthrough. This whole world is new to him: standards, peers, comradeship and competition.
Stop Hurting Kids
Join the Stop Hurting Kids campaign to end restraint and seclusion abuse in schools.The easiest way to make a meaningful contribution is to take a stand.
Sarah Hendren Gives Familiar Symbol a New Look
Most people recognize the international symbol for disability: the stick figure seated in a partial circle, drawn in white on a blue background. Many feel that the symbol, which has come to be known as the International Wheelchair Icon, or the International Sign of Access needs a redesign. In 2011, Cambridge, Massachusetts resident Sarah Hendren decided to take on the challenge. “The figure is static, wooden, with the squared-off geometry of machinery. The body is synonymous with the chair,’’ she told The Boston Globe of the current access sign. She also talked about wanting her design to explore ideas of who is
Ariane Zurcher: Non-Speaking Autistic Woman Writes Book
Barb Rentenbach's funny, poignant and beautiful must-read book, I Might Be You: An Exploration of Autism and Connection, is now available as an audiobook.
PrAACtical AAC | Presuming Competence and Using The Least Dangerous Assumption
PrAACtical AAC's latest post on the importance of presuming competence.
Autistic Hoya: Ordinary Lives
When I demand equal access, equal opportunity, equal rights, I'm not insisting on my superiority, innate or acquired. I don't want special treatment. I want to see the removal of cultural paradigms about what types of bodies and minds should be valued and what types of bodies and minds should be deigned for marginalization. I don't want a world that advantages me over you. I want a world where oppressive systems that ultimately hurt everyone have been overcome, dismantled.
2013 Top Ten Signs of Special Ed Advocate Burn Out
Subtitle: Why you may need a trip to a COPAA conference to relax. 1. You thought the OSEP’s MOU on NCLB’s AYP came from CDC and was about another STD. 2. You are were actually able to follow #1. 3. You asked the Advocate Committee to research OCR guidanc
Everyone Communicates
One of our favorite resources for all things AAC!
Families of SMA Awards $150,000 to Investigate New Antisense Therapies for Spinal Muscular Atrophy
Families of SMA is dedicated to creating a treatment and cure for Spinal Muscular Atrophy (SMA) by funding and advancing a comprehensive research program, including drug discovery programs to make practical new therapies. This is the third drug discovery project awarded by Families of SMA in 2013 with a total investment of $400,000. This program will assess the therapeutic potential of second-generation Antisense Oligonucleotides (ASO) sequences for SMA. This funding is being awarded to Co-Principal Investigators Dr. Arthur Burghes at Ohio State University and Dr. Christian Lorson at University of Missouri. Program Description: New Morpholino Antisense Oligonucleotides for the Treatment
Free Your Mind and the Rest Will Follow
Awesome ASL version of En Vogue's 'Free Your Mind'. "Before you can see me you've got to learn how to read me. Free your mind and the rest will follow."
ASL Video “I Knew You Were Trouble”
Great ASL translation of Taylor Swift's song!
Ostracized for Autism
"The reason for this article is to spread awareness about why people shouldn't believe everything they see or hear from powerful people and companies. Respecting authority is great, but believing everything they say may make you a brainwashed, horrible person. Also, this article was written to remind people to treat others how they'd like to be treated, and not act cold to them regardless of how different they are."
Joey Furlong, hospitalized fourth-grader asked to take a standardized test, becomes a symbol in high-stakes testing battle
News that a fourth-grader in the hospital for severe epilepsy was asked to take a standardized test has angered parents and galvanized the anti-standardized testing crowd. As reported in The Washington Post , Joey Furlong was lying in a hospital bed, hoo
Yoga , Naturally Inclusive
Ryan McGraw is a 30-year-old yoga teacher who has cerebral palsy. He doesn't fit the mold, which is fine, because he's molding yoga routines to fit his needs.
National Center on Health, Physical Activity and Disability
Great resource promoting increased participation in physical activity among people of all abilities.
Abuse of Children with Intellectual Disabilities
Children with disabilities of any kind are not identified in crime statistic systems in the U.S., making it difficult to determine their risk for abuse (Sullivan, 2003). A number of weak and small-scale studies found that children with all types of disab
Game Changer: Florida Senate Unanimously Passes Special Education Bill
The Florida Senate unanimously passed Bill 1108 on April 29th.
Autistic Teen Uses Tech to Break Silence
A brilliant 16-year-old boy who has autism is breaking through his silence and making people realize what autistic kids can do. Ido Kedar has difficulty controlling his body, and he cannot talk.
Some special education teachers fear losing jobs
ATLANTA (AP) — Some Atlanta special education teachers say they fear they could lose their jobs if they aren't certified to teach in another subject. Keith Butler helps special education students with math in an Atlanta high school. He said teachers are
Emma’s Hope Book: Accepting Ourselves So We Can Accept Others
Beautiful post from Ariane Zurcher.
Law Would Give Parents Final Say About Special Diploma Track
A proposed law moving quickly through the Legislature would give parents of kids receiving special education services the final say about their child’s placement on a special diploma track.
Neurodiversity in the Classroom: Strength-Based Strategies t – Apr 29,2013
A new concept on human diversity has emerged over the past 10 years that promises to revolutionize the way educators provide services to students with special needs: neurodiversity. Just as we celebrate diversity in nature
Insight into Inclusion: The Language we Use
How do we help our children or students who are perpetually losing things, often running late and seem completely disorganized? Do we re... Teachers love a great resource! Especially a resource that is free and at their fingertips - literally. That's why
Lawsuit alleges school bus aide slapped autistic boy
A north suburban special education school bus aide slapped an autistic student who cannot speak, according to a lawsuit filed by the boy’s mother, who claims she uncovered the alleged abuse after putting a recording device in her son’s backpack. Nabiha Z
Stanford Scientists Demonstrate Brain’s Capacity to Change in Response to Education
"No one is born with the innate ability to recognize numerals."
Boston Marathoners Rick and Dick Hoyt
“We just have to move forward,” said Dick. “We can’t let something like this stop us.”
Wal-Mart Sued for Sexual Harassment & Retaliation of Employee with Developmental Disability
Wal-Mart Stores East, L.P. violated federal law by allowing a male employee at an Akron Walmart store to subject a developmentally disabled female co-worker to sexually inappropriate conduct and then retaliating against her for her opposition
Autistic Hoya: Fighting ableism with ableism doesn’t work
Fighting ableism with ableism doesn't work. In fact, it's just bad policy. Yet that's precisely the tactic that Disability Scoop, "the premier source for developmental disability news," decided to use in its criticism of the latest episode of Glee, in wh
The Most Important Information About AAC Use in the Classroom
Presumption of competence combined with support and collaboration from team members helps the learner with complex communication needs have a voice in the classroom.
Must Have Autism E-book
Great e-book for Autism Acceptance Month !
Autism Acceptance- All Created Equal
John Hussman on the MCIE Blog. "And then love them back. Not for who they might have been without autism, or for who they might be if they were “cured,” but as people who need to be nothing other than who they are, to be loved and accepted."
A Generational Shift in Understanding Life With Down Syndrome
"You cannot know if someone else's life is worth living without asking them and without even knowing them."
Disabled surfers brave the waves in Brazil
Renata Glasner doing her thing in Brazil.
Reason # 202 Why You Should Come to See Wretches & Jabberers Next Weekend..
The incredible soundtrack. J. Ralph, recently nominated for an Academy Award for his song, Before My Time, for the documentary Chasing Ice, composed and performed the songs in this incredible documentary, He is joined by some of the most talented folks in music.
What Reading Self-Advocate Blogs Does
You can have hope.
Boys & Girls Clubs of Tampa Bay Stand Up for Inclusion
Presented and discussed will be the importance of inclusion and friendship for youth with disabilities. The cast and of the acclaimed feature documentary, Wretches & Jabberers will be joined by The National Center on Inclusive Education’s Mary Schuh, PhD, and Tampa advocate, 13 year old, Henry Frost.
Deaf, Blind Sue Over Web Shopping
Anne Taylor uses a Google Nexus 7 tablet at the National Federation of the Blind in Baltimore. Commerce has moved online. Now, the disability lawsuits are following. Advocates for disabled Americans have declared that companies have a legal obligation to
School Says, “No Advanced Classes for Kids with IEPs”
My child has a learning disability. Her teachers want her to enroll in advanced classes. She is eligible based on her test scores and school performance. The School will not let her enroll her because she has an Individualized Education Plan (IEP). What
April and Autism Acceptance at Tampa Theatre
Get your advocacy on. April and Autism Acceptance is in Tampa. The rock stars of disability advocacy- Tracy Thresher and Larry Bissonnette- are back.
Ollibean Art for Change at USF: April. Autism. Advocacy. Acceptance.
A day of inclusive education, community acceptance, and self-advocacy at USF with Academy Award Winning Director and Stars of the Acclaimed Documentary Wretches & Jabberers, NCIE's Mary Schuh, PhD, and Tampa advocate Henry Frost. CARD (The Center for Autism and Related Disorders) at the University of South Florida) will host at USF's Marshall Hall.
Why did Robert Ethan Saylor die?
Where is the public outrage over the death of Robert Ethan Saylor , killed in January while being taken into police custody in Frederick for the crimes of petty larceny and, perhaps, disorderly conduct? Saylor, 26, had Down syndrome, a genetic defect tha
How to talk to a hearing impaired person? Don’t shout
First rule: Look at the hearing-impaired person when you speak.
Need for culturally sensitive treatment for deaf patients with psychiatric disorders
Members of the Deaf community who have mental health problems need culturally sensitive treatment to avoid misdiagnosis and inappropriate treatment, according to a report in the March Journal of Psychiatric Practice. The journal is published by Li
Lawsuit charges Ed Department with violating student privacy rights
The U.S. Education Department is being sued by a nonprofit organization for promoting regulations that are alleged to undercut student privacy and parental consent. The rules allow third parties, including private companies and foundations
Great Resource: Musings of an Aspie
who and what some things about me was 42 when I discovered that I have Asperger’s Syndrome. When I visit the zoo, I always leave thinking that maybe I was a primatologist in another life. Or a monkey. I’ve been my own boss since I was 18. Statistics fascinate me. I own three pairs of running shoes and no dress shoes. Somehow I managed to find the one person in 7 billion who understands me and marry him. And stay married for 25 years. The single most frequent response I got from professors: “I never thought of it that way.” Usually
Autistic People Are Everywhere | Musings of an Aspie
This post is a part of today’s “Autistic people are . . .” flashblog. You may have seen the news this week that Google has promised to eliminate the problematic “Autistic people should” autocompletes in response to last week’s flashblog. They’ve said it will take time to engineer, so while the hateful autocompletes are still appearing, hopefully they’ll soon be gone. We can make a difference by speaking up. ——- Autistic people are everywhere. We sit next to you at school and on the bus. We give your dog his rabies shot, teach your kids, make your latte and sweep
Tiny Grace Notes: Open Heartedness
Because I am a person who prepares special ed teachers and doc students for a living, I meet a lot of people, and a lot of them are parents of kids, and a lot of the kids these parents have are kids with autism. I get to know them over time, and see the wonderful work they do as pre-service teachers, and often keep in touch with what they are doing after they graduate. These are good and loving people, dedicated to life-long learning. This is my general background knowledge of other people’s parents. This is hundreds or maybe by now a thousand-odd of
Child Positive Impact:The Disability-Culture Connection
This study examined mothers' perceptions of the positive impact of having a child with an intellectual disability. Trajectories of positive impact from 7 time points were developed using latent growth modeling and 2 predictors: culture (Anglo, Latino) and child disability status (intellectual disability, typical development). Data were from 219 mothers of children from age 3 to 9 years. Growth trajectories reflected a general decline in positive impact on Anglo mothers. On average, at age 3, Anglo mothers reported significantly lower initial values on positive impact when their children had an intellectual disability, but Latino mothers did not. Across all time points, Latino
Retention is Not a Form of “Specialized Instruction”
The school wanted to retain my son who has an IEP for OT, PT and Speech. They insisted he repeat second grade. I disagreed. Now in third grade, his teachers want to send him back to second grade. They say his writing is not on par with a “normal” third g
What’s the Difference between Reduction in Homework and Shortened Assignments?
By Kori Hamilton and Elizabeth Kessler, professional special educator and NICHCY advisor. Being able to provide ample opportunities for success to all students requires a clear understanding of the needs of each individual student. Every student has a unique learning style, and some students require more help than others. Students who receive special education services have a plan in place to identify the type of support(s) that’s needed. One type of support is an accommodation, which is a change that helps a student overcome or work around the disability. A modification, which is a change in what is being taught
Top 25 Pinterest Boards for Education
Check out these Pinterest boards for education!
The Reality Is Not What We Think
Shocking infographic on the wealth distribution in America.
10-year edition of ‘Riding the Bus’ comes subtler understanding of intellectual disability
Rachel Simon knew that having a sibling who has a serious intellectual disability had changed her life. But she had no idea that writing a book about the experience would change her life again. Recalling those early days, Simon says, “I allowed myself on
‘Switched at Birth’ Goes Silent to Make a Point
"Until hearing people walk a day in our shoes, they will never understand," says a guidance counselor a high school for deaf students in "Switched at Birth."
Time for a Paradigm Shift in Special Education
Thomas Armstrong's piece on neurodiversity and education.
Home Modifications
Not all people begin life with disabilities, but most of us will need some kind of assistance as we experience the normal process of aging. Living at home within a community increases self-esteem, which can improve mental and physical health. Another rea
Feds eye NY school’s treatment of disabled student
NEW ROCHELLE, N.Y. (AP) — The U.S. Department of Justice is investigating an incident in which a disabled student at a suburban New York high school was kept inside as the school was being evacuated during a fire emergency. The Journal News ( http://lohu
Medical Myth Busting – Journal of Medical Toxicology Debunks Autism Treatment
“Despite the absence of data, and in the face of such concerns about absorption and dose..
Pediatricians Say No to Expulsions, Suspensions at Schools
MONDAY, Feb. 25 (HealthDay News) -- Suspending or expelling a child from school should be a rare last resort and not a routine punishment for bullying, drug use or other infractions, according to a new policy statement from the American Academy of Pediat
Man with Autism, Caregiver Shot by Off-Duty Officer
A man with autism and his caregiver were shot by an off-duty Camden police officer, who thought his home was being burglarized, according to the Camden County Prosecutor's Office. NBC10's Katy Zachry talked with investigators who say the 21-year-old man had just been dropped off at his home on the 2800 block of Arthur Avenue by his special needs school in Cherry Hill and was met at his house by his caretaker. Investigators say instead of going to his front door, the 21-year-old with autism went across the street and started banging very loudly on a neighbor's door. Investigators tell
Amid Online Furor, Sheriff Responds to Death of Man With Down Syndrome
WJLA-TV’s coverage of the Robert E. Saylor case in Maryland. Online furor over the death of a 26-year old Maryland man with Down syndrome, who was handcuffed and forced to the ground by sheriff’s deputies in a movie theater, has been so vigorous that a l
The Arc Responds to the Death of Maryland Man with Down syndrome
This is a moment for us not only to mourn, but we must also learn from this tragedy and encourage proper training in our police departments. The Arc is deeply saddened and shocked by the death of Robert Ethan Saylor, a young man with Down syndrome whose
Neurodiversity IS the Next Civil Rights Movement
"When we talk about inclusion what we're talking about is diversity." Audra Zucherman, co-founder, The IDEAL School .The IDEAL School practices full inclusion while nurturing their students abilities to create real change in the world through compassion and self- empowerment.
Family wants answers in son with special needs death
A lawyer for the family of a 26-year-old man with Down syndrome who died while being escorted from a movie theater by security guards says the grieving family is looking for answers after the death was ruled a homicide. Robert Ethan Saylor died Jan. 12 a
It’s Time to Go Beyond Access
Always Keep in Mind the Learning Goal and Keep the Challenge Where It Belongs
What We Must Learn From History About Inclusion
Wretches & Jabberers | Tracy's Blog The big typing of my friends, Kris and Scott, is a compelling argument for inclusion for all people. I met a young film maker, Adrian Esposito at a self- advocacy conference in Albany, NY last fall. Adrian made a film “We Can Shine-From Institutions to Independence.” Jeanette and I connected with Adrian and his Mom. My friends and I recently gathered to watch this history of moving to community life. Dayna and Jeanette looked nervously at each other like it was too much for my young typing pals and me to watch. I think
We Love Emma’s Hope Book
Ariane Zurcher is definitely one of our favorite writers. She writes with exceptional honesty, insight, and beauty.
Ten Things I wish My Teacher and SLP Knew about AAC : Pat Mervine
Pat Mervine has a great website and is the author of "How Katie Got a Voice (and a cool new nickname)" . I wish..... the entire team would be trained in how to program and use my AAC system. My "voice" shouldn't be taken away from me just because an adult is absent or busy. Oh, and a good back-up system would be much appreciated for when my device goes down. my AAC device would be charged (if electronic) and positioned for me to use it all times. Other kids can talk all day -- at recess, lunch, on the bus,
Deaf Teenager Gets AMC to Offer Closed Captioning
Johnny Butchko, 14, is hearing impaired. Tired of being unable to watch a movie at his local theatre, he stood up and got AMC to provide Closed Captioning in Santa Monica. But he's not stopping there.
Abuse and Cover Up of Students with Special Needs In Ohio
Special Education teacher from Kings Local School District accused of seclusion, restraint, physical abuse , verbal and emotional abuse.
Abuse of 7 Year Old with Special Needs Recorded by School Intern
School intern videos abusive physical therapist shoving seven year old with special needs to the ground and saying, "Get down now. I said down. No.Stand up you little b----, stand up."
Squag Interview: Architecture For Kids
Sara Winter of Squag™ interviews, Jorge Raedo of Amag . Amag is an architecture magazine for children 5-10 years old. It is a free Open Educational Resource.
Breaking News from Autistic Hoya: The End of Torture at the JRC?
Massachusetts Governor Deval Patrick filed a motion to vacate (render null) the 1987 settlement agreement that has permitted the Judge Rotenberg Center to use aversives, including the notorious electric shock GED devices.
Appropriate Education for Your Child – 02/15/2013
Unfortunately, our guest Howard Glasser, was unavailable for this morning's show! However, Terri and I managed to fill the 30 minutes (it's not hard!) talking about inclusion and education. During our show, we talked about finding appropriate education f
How Should We Rebuild the U.S. Education System?
Three learning enthusiasts share their blueprints for rebuilding the U.S. education system. In the 2nd century A.D., Roman Emperor Marcus Aurelius penned a series of personal writings and reflections known today as “Meditations.” In Book 1, the emperor s
Planet of The Bind: Why Do Banks Still Lag In Basic Service To Blind Customers?
It seems like a natural: keypads with Braille, audio prompts and the like. And advocates for the seeing-impaired have been working with the industry since 1999 to provide just such adaptations.
Merck Fund Announces Three $1M Grants to Support Translational Research in Developmental Disabilities
Several AUCD network members and George Jesien, Executive Director of AUCD, participated on the scientific advisory committee which helped develop this important grants program with the John Merck Fund. The John Merck Fund announced today the first three
Wright’s Law: Why Schools Usually Say “No!”
My son is going to middle school. Same district, new school, just blocks apart. His 1:1 (same para for 3 years) has been the best thing that has come into his life ever. We want his para to follow him to middle school. The Special Education Director says
Duncan warns Congress on impact of ‘sequestration’
Here is the testimony Education Secretary Arne Duncan gave Thursday before the Senate Appropriations Committee on what could happen to education programs if Congress takes no steps to avert a March 1 deadline for automatic spending cuts, known as the “se
Study tracks leukemia’s genetic evolution, may help predict disease course, tailor care
Catherine Wu, M.D., and colleagues have published a study that shows how gene mutations shift and evolve over time in chronic lymphocytic leukemia (CLL). This evolution, they report, holds the... BOSTON AND CAMBRIDGE, Mass.ÂÂTumors are not factori
What Are Autism Archetypes?
An archetype is a symbol, a single representative of a category. If we think of the word chair, for instance, we often call up an image in our mind. That image, usually a specific type of chair, stands for all chairs in all their different forms. Autism
Bright Not Broken Gifted Kids ADHD and Autism – Feb 14,2013
Chef Dean Neff, Executive Chef at Hugh Acheson's "Five & Ten" highly rated restaurant in Georgia, visits with Olivia Wilder to talk about his culinary career. Bobby Seale co-founder ofThe Black Panther Party was an African-American revolutionary socialis
Love is in the Air – Media Profiles People with Disabilities
Bill’s and Shelley’s path to marriage is not unlike many others who fall in love, lose touch as life takes its turns, and reconnect later in life when the time is right.
Sometimes The Best Way To Communicate With Your Kids Is Not To Say Anything At All
I remembered an article that Anabelle Listic wrote for our blog last week. In it, she described how using sticky notes with positive messages around the house really helped to get her through the winter blues .
A Life Defined Not By Disability, But Love
I love you. You're a good parent, and just because you're disabled doesn't mean that you do anything less for me.
Proximal Femoral Geometry Before and After Varus Rotational Osteotomy in Children With Cerebral Palsy and Neuromuscular Hip Dysplasia
You could be reading the full-text of this article now... Background: Surgical management of hip dysplasia in children with cerebral palsy (CP) usually includes varus rotational osteotomy (VRO) of the proximal femur. Several techniques of VRO (end-to-end
Free iPad Games to Improve Algebra Learning from CAST
CAST released two innovative, research-based educational games that teach essential math reasoning and problem-solving skills.
14th Annual Hannah’s Buddies Charity Classic , March 22-23, 2013
The Hannah's Buddies Charity Classic began in 2000 with John Bell of Widespread Panic deciding to help his goddaughter and tens of thousands of children in their fight against SMA.
Parents ‘Stunned’ to See Disabled Daughter’s Feet Duct-Taped After School
An Indiana couple is looking for answers from their daughter’s former elementary school after the 8-year-old came home from her special-needs program with her shoes duct-taped to her feet and ankles. Nate and Elizabeth Searcy’s daughter, Shay
School looks into duct-taping of student’s shoes
INDIANAPOLIS (AP) — School officials and Child Protective Services are investigating an incident in which the shoes of an 8-year-old Indianapolis girl with Down syndrome were duct-taped to her ankles. The Wayne Township School Corporation has opened an i
Accessible Instructional Materials (AIM)
Great video on Kathleen McClaskey's Scoop It site, UDL- Universal Design for Learning about accessible instructional materials.
Including Students with Food Allergies in the Classroom – 02/08/2013
Food allergies are becoming a very common concern in schools today. According to the Food Allergy and Anaphylaxis Association, approximately 6 million children under the age of 18 have a food allergy. With these numbers of children, schools need ensure t
Deaf teen finds his niche at Richmond school
RICHMOND, Ind. (AP) — The seventh grade has been a whirlwind for Alex Brown . From relocating to Richmond and playing on the Test Intermediate School football team, the 14-year-old has had his share of new experiences. He was even credited with saving so
Autism Acceptance – Leading the Conversation
I want to talk about Autism Acceptance again. I want to talk about Autism Acceptance because soon we will be, again, referred to as tragedies, burdens, afflictions. This will go on, more than usual, for the whole month of April. April is the month chosen
Researchers develop Rx for deafness, impaired balance in mouse model of Usher syndrome
New Orleans, LA Â Jennifer Lentz, PhD, Assistant Professor of Otorhinolaryngology & Biocommunications and a member of the Neuroscience Center of Excellence at LSU Health Sciences Center New Orleans, is the lead author of a paper reporting that hearing an
Grieving Newtown Couple Raise Money for Autism
Josephine Gay's mother could not be with her in her final, harrowing minutes inside Sandy Hook Elementary School. She struggles with it every day, but she has taken comfort from learning that Josephine's aide wrapped her arms and body around her and othe
Asperger’s entry removal from manual decried
With orders now being taken by the American Psychiatric Association for its first updated volume on diagnostics in nearly 20 years -- and no hope for changes in the text -- Long Islanders are dismayed that an Asperger's syndrome entry no longer exists.Ed
NCIE Webinar: Creating Inclusive IEPs
This February 20th webinar will focus on IEPs that target students’ full participation in inclusive general education classrooms and specify the supports needed for success.
Report: NM boy offered to stay with girl in cage
The son of a New Mexico woman accused of locking an 8-year-old girl with developmental disabilities in a wooden cage said he offered to stay with the girl while the rest of the household went out to a movie, authorities said. The boy said he was uncomfor
The Arc Applauds Social Security Administration’s Ending the Use of…
Changing how we talk about people with disabilities is a critical step in promoting and protecting their basic civil and human rights. In an historic change for people with intellectual disabilities (ID), the Social Security Administration (SSA) announce
Bills would strike ‘mental retardation’ from laws
JUNEAU, Alaska (AP) — Two Alaska lawmakers have introduced legislation striking terms like "mentally retarded" from state laws. Sen. Kevin Meyer said "mental retardation" used to be a clinical term used with good intentions. But he said in a news release
Krip-Hop Nation: Music, Advocacy and Education
"Where were the other people who looked like me as a Black disabled young man? With this continuous question of race and disability along with my love of poetry and music, I started to question the arena of music and performance around the representation of musicians with disabilities, especially disabled musicians of color." - Leroy F. Moore, Jr.
‘Impaired Perceptions’ – Photographer Brian Steel Fights Ableism
"The overall message is that you cannot tell what a person is capable of or what their life is like simply by looking at them. " Brian Steel
A Child With Down Syndrome Keeps His Place at the Table
IT’S rare that our daily lives adhere to dramatic form. But as reported on Today.com/Moms (“Waiter hailed as hero after standing up for boy with Down syndrome”), among other places, a little morality play took shape a few days ago in a Houston restaurant
US DOE “Access to Sports for Students with Disabilities Is a Civil Right”
U.S. Education Department is telling schools they must include students with disabilities in sports programs or provide equal alternative options.
Worth Repeating: Ed Roberts’ 504 Sit-In Victory Rally Speech
Editors' Note: Following is the text of a speech by Ed Roberts, one of WID’s founders, at the 504 sit-in victory rally in San Francisco, April 30, 1977. We have chosen to reprint it to celebrate Ed Roberts Day, which was January 23. Ed’s speech captures his spirit, his vision and his commitment to the disability rights movement that was in its infancy in 1977. The San Francisco sit-in, still the longest such action in a U.S. federal building, was part of a national cross-disability protest to force the Carter administration to sign regulations to enable the enforcement of section
MCIE Workshop on Multi-Tiered Systems of Support for Inclusive Education
How RtI Systems Work for Students with Intensive Support Needs With Michael McSheehan!
Stephen Kuusisto: Responding to Euthanasia of Deaf Blind Twins in Belgium
The National Association of the Deaf and the American Association of the Deaf-Blind have released a formal statement on the euthanizing of twins in Belgium who preferred death to becoming deaf-blind. Apparently the Belgians would imagine Helen Keller's l
Jennifer Byde Myers: Autism and the Quest for Knowledge
Great post by Jennifer Byde Myers at jennyalice.com. Jack doesn’t fit the mold. Not the mold for a typical kid, not the one for cerebral palsy, not autism, not ADHD. Whenever we try to "box him up", another piece of him pops out, unexplainable by a typical convention.
Kuusisto on the Fraudulent Writing about Autism at Slate
Stephen Kuusisto on the ableist article about autism and neurodiversity on Slate.
Exploring Empathy
What is this ability to step into someone else’s shoes? To imagine how they feel - and to hurt for them or be happy for them? Host Frank Stasio is joined by a panel of experts to discuss empathy, the trait that makes us uniquely human. Lasana Harris is an assistant professor in psychology and neuroscience at Duke University; Jesse Prinz is a Distinguished Professor of philosophy at the Graduate Center of the City University of New York; Pate Skene is an associate professor of neurobiology at Duke University and a second year law student; and Ralph Savarese is an
Understanding Hearing Ability
What does speech sound like to deaf and hard of hearing children? Do deaf children hear anything? Some deaf children do in fact have no measurable hearing, but most children have some degree of residual or remaining hearing. Every child is unique in the sounds he or she can hear and his or her ability to understand them. No two children are alike. Two children who perform similarly on their hearing tests may understand or use sounds in very different ways. It is important never to assume how a student should or will communicate because of hearing test results. Whether
VIDEO: ‘We just want to be a family’
Two US women who recently adopted Russian orphans have spoken to the BBC of their heartache over changes to Russian law which have prevented them from taking the children out of the country. Rebecca Preece and Jeana Bonner are both mothers of children wi
Motherlode Blog: Solving New York City Bus Strike’s Impact on Special Needs Students Isn’t Simple
New York City’s bus strike is disproportionately affecting one of its most vulnerable populations: children with special needs, whose symptoms or travel limitations can make it extremely challenging for their parents to get them to school using other met
The Inclusive Education of Adults with Autism
This week on The Inclusive Class Podcast, we will be talking about educating adult students with autism. To lead our discussion, will be expert guest, Rhonda Greenhaw. Rhonda J. Greenhaw, MA, BCBA, is a leading clinician and researcher in the field of au
Violent Video Games
“We don’t benefit from ignorance. We don’t benefit from not knowing the science of this epidemic of violence.” Obama said. “Congress should fund research into the effects violent video games have on young minds.” Only a month after the Newtown, CT traged
Inclusion in Oklahoma
Ardmore City Schools has adopted a new program called Inclusion Education for students needing special services. Students, regardless of abilities, are kept in the general education classroom all day. "I believe in it wholeheartedly," said Carolyn Thomas, special services director. "The principal is to educate everybody. The method may be different and a different delivery, but the goal is to educate everybody." Before, students would be pulled out of class each day to receive instruction from the special education teacher. "At first, the students weren't sure and asked to come to my classroom," Knight said. "Now, they don't feel so
Disability on the Florida Senate’s 2013 Agenda
The most important would eliminate the requirement that students enroll in a traditional school before becoming eligible for a McKay scholarship. McKay scholarships allow students with disabilities to use the money for tuition at a private school of their choice. One, SB 226, creates a two-week “disability history and awareness” instruction program starting in the 2014-2015 school year. The bill creates a committee to help the Department of Education design program curriculum. SB 150 creates a “Deaf and Hard-of-Hearing Children’s Educational Bill of Rights,” and requires state and local school officials to recognize the needs of hard-of-hearing students. Another bill,
No Limits: People With Cerebral Palsy v Condescending Tools
No Limits: People With Cerebral Palsy v Condescending Tools.
Grit Media
Grit Media promotes the rights and aspirations of people with disabilities by creating opportunities to be seen and heard in a range of media productions. Our productions bring disability awareness into peoples' homes through the depiction of realistic, compelling and entertaining content, that encourages audiences to see disability as a natural part of life. The organisation provides training opportunities for people with disabilities and aims to encourage the wider media industry to join our battle against a culture of harmful misconception and ignorance about disability. Welcome to Grit Media.
Lawsuit Says Special Needs Student Raped in NYC-area Classroom
A 15 year old special education student was gang-raped in class while a lesson was going on, according to allegations by her mother. The girl attended the Martin De Porres Academy in Elmont, New York, a community on Long Island, and the incident supposed
Team Long Brothers:Inclusion in Sports
"Acceptance. I wanted everyone to treat him with respect and dignity, just like any other child". Jenny Long
Joubert Syndrome Foundation & Related Cerebellar Disorders
Joubert Syndrome is a rare genetic disorder characterized by decreased muscle tone, difficulties with coordination, abnormal eye movements, abnormal breathing pattern and cognitive impairment. These issues are due to abnormal brain development, resulting in decreased size of the cerebellar vermis and other brain abnormalities that appear as the "molar tooth sign" on a brain MRI. Although rare, several hundred individuals with Joubert Syndrome have been reported in the medical literature. Mutations in at least 10 genes cause Joubert Syndrome, accounting for ~50% of patients. Subsets of individuals with Joubert Syndrome can also have polydactyly (extra fingers or toes), as well
More Powerful than Energy and Entropy
Jeffrey Wright to his students ,"There is something a lot greater than energy. There’s something a lot greater than entropy. What’s the greatest thing? Love ."
Team Long Brothers SI Kids SportsKids of the Year
"Maybe people that don't care in the past will care in the future ." Conner Long
Ido In Autismland
We love Ido In Autismland, a blog by Ido a young autistic advocate who types to communicate.
Person-First Language – ‘autistic’ vs. ‘with autism’
There is some debate about using the term ‘autistic child’ vs. ‘child with autism’, the latter being an example of what is typically referred to as ‘person-first language’. As you may have noticed, I typically use ‘autistic’. There are plenty of strong o
Center for Autism and Related Disorders Partners with Paper Clouds…
The Center for Autism and Related Disorders (CARD), the world’s largest provider of effective, early-intensive behavioral intervention for individuals with autism spectrum disorders (ASD), is proud to announce its new product line with Paper Clouds Appar
Self-Advocacy Organizational Development Grantees Announced
In 2011 and 2012, the Administration on Intellectual and Developmental Disabilities (AIDD) supported 9 regional Self-Advocacy Summits in collaboration with the National Association of Councils on Developmental Disabilities (NACDD), the National Disabilit
AUCD 2012 Awards Presented to Outstanding Individuals
Our network members - advocates, trainees, professionals - work to improve the lives of individuals with developmental disabilities and their families. They inform the public, provide services, conduct research, teach the next generation, develop policy,
People Are Watching Mr. Hughley
Mr. Hughley, we think you can do better than using the r-word. You said your son doesn't mind you using the word, but there are so many people that do. Words like the r-word perpetuate negative stereotypes about people with disabilities, please don't use it.
Pushing Past Limitations and Aiming to Inspire
Otis Hampton once walked 40 blocks in Manhattan, and swelled with pride when he reached his destination. Librado Romero/The New York Times Otis Hampton, who was born with cerebral palsy, currently lives in a homeless shelter in Harlem. For the past 100 y
Social Model of Disability
Great animated short on the social model of disability. What are your thoughts?
Pediatricians: Recess Crucial for Development, Academic Success
The move to add more instructional time by eliminating recess could prove to be detrimental to kids in the long run according to a statement released by the American Academy of Pediatrics. ABC News reports that the statement is the latest addition to the
Your brain on Big Bird: Sesame Street helps to reveal patterns of neural development
Using brain scans of children and adults watching Sesame Street, cognitive scientists are learning how children’s brains change as they develop intellectual abilities like reading and math. The novel use of brain imaging during everyday activities like w
Disneyland and autism
I’m stepping outside of my typical green business posts today for another autism-related article. This time, the topic is Disneyland and autism. On December 26, 2012 my husband and I surprised the kids at 5:00 am when we loaded them in the car for a surp
Q&A: IDEA and child care
This 4-page brief explains the basics of the Individuals with Disabilities Education Act (IDEA) to child care providers, including early intervention for children under the age of 3 and special education and related services for school-aged children. It
Awesome Resource : Tiny Grace Notes (AKA Ask an Autistic)
We absolutely love Tiny Grace Notes. Check it out, you will too. Elizabeth (Ibby) Grace is brilliant, kind, and all around wonderful. Got a question about autism? Send it to Dear Ibby! Ibby is an education professor, a researcher, a mom, and Autistic. There is something about Ibby. She is one of those people who are easily able to convey warmth, respect, goodness, and so much information in just in a couple of paragraphs. Read her blog, you'll see. But, carve out some time, you won't read just one.
Attorney Says School District Abuse and Cover Up Was a “Mind-Set”
Parents of special needs students say school district covered up abuse.
My Skilled Companion Dog
We love the ebook "My Skilled Companion Dog" by Samuel Habib. It is a great and very realistic account of getting a CCI ( Canine Companion for Independence) skilled companion dog. Henry also has a CCI skilled companion dog, Denzel. CCI's two week training and matching program was such an extraordinary experience for Henry and me. We completed the course on CCI's Orlando campus, living in a dorm with 6 other families . The kindness and generosity exemplified by everyone involved was so touching ; from the amazing puppy raisers, the volunteers feeding us everyday, the patient and loving staff
Why the Fiscal Cliff Deal Doesn’t Solve Our Education Funding Crisis
As the Washington Post points out, the deal "fails to defuse the prospect of a catastrophic national default two months from now" and it "does not raise the debt ceiling, leaving the Treasury to use what it calls 'extraordinary measures' as long as it ca
TED | TED Playlists | What makes us happy?
What makes us happy? (9 talks) We all want to be happy. But how, exactly, do you go about it? More stuff or less? More choice or less? The answers -- from psychologists, journalists, Buddhist monks -- may surprise you. TED | TED Playlists | What makes us happy?.
Top 10 Guest Blogs of 2012 | Disability.Blog
2012 was an exciting year for Disability.Blog! We expanded existing partnerships and began dynamic new ones with leading disability organizations, such as the Invisible Disabilities Association (IDA). IDA President and Founder Wayne Connell and IDA ambassadors, includingKathe Skinner and Jeff Vankooten, wrote thoughtful posts throughout the year to let our readers know about the importance of recognizing and understanding invisible disabilities, and to offer people living with chronic illness and pain an opportunity to tell their personal stories. Read more here: Top 10 Guest Blogs of 2012 | Disability.Blog.
Raising Rebel Souls
We are huge fans of Raising Rebel Souls. Heather is an incredible writer and advocate, and stood firmly with Henry:) Here's a bit about Raising Rebel Souls: Rebel Mommy: I am Rebel Mommy, also known as Heather. I have been given a lot. I am lucky in love. Yes, my hands are full, yes, I drink too much coffee, yes, my dishes are currently piled up and no, I am not a good housewife, but yes, I am a damn good Mother. I was born to do it. I swear to you, my life before my sons, was just me
Calm and Soft but Full of Energy: Thoughts on “the event of a thread”
We went to see Anne Hamilton's: the event of a thread at the Park Avenue Armory while we were in NY last week. It was absolutely magnificent, I wish we could go back again. Hamilton is brilliant. Our family is full of different tastes, sensory needs and ages and it was a perfect fit for everyone. Henry did an excellent job editing our experience. Henry loved the installation. He said it was "calm and soft but full of energy", "smooth and architectural water crossings " There are benches so if you want to sit down and watch you can,
Consumer Groups File Complaint against Amazon for Not Providing Internet Captioning
December 20, 2012. Today several deaf and hard of hearing consumer groups filed a complaint at the FCC against Amazon for allegedly violating new FCC Internet captioning requirements. These consumers aver that Amazon.com has violated numerous times the F
Abuse reported at group homes in Washington
Listen to the families Abuse in group homes will continue because groups that claim to advocate for people with developmental disabilities (The Arc, Disability Rights Washington and Developmental Disabilities Council) do not listen to the families of the
IEP Team Member Apology: A Template for “Not Knowing It All – After All”
Have you just committed a real faux pas but find yourself at a loss for words to apologize? Perhaps you are a celebrity who needs to apologize for disability-related comment… A teacher who needs to apologize for outrageous classroom mistreatment… Or, a p
Crowdsourcing Site Compiles New Sign Language for Math and Science
A multimedia feature published earlier in December in the New York Times, "Pushing Science's Limits in Sign Language Lexicon," outlines efforts in the United States and Europe to develop sign language versions of specialized terms used in science, techno
James Mattioli, 6
In lieu of flowers, loved ones can donate to a memorial fund, the James R. Mattioli Memorial Fund c/o Newtown Savings Bank, 39 Main Street, Newtown CT 06470.
Olivia Engel, 6
Supporters have set up the Friends of the Engel Family Fund.
Emilie Parker, 6,
Friends and relatives have set up the Emilie Parker Memorial Fund.
Caroline Previdi, 6
Contributions in Caroline's memory may be made to "The Toy Chest", St. Rose of Lima Church, 46 Church Hill Road, Newtown, CT 06470.
Jessica Rekos, 6
Memorial contributions may be made to the Newtown Rotary Sandy Hook School Fund, PO Box 263, Newtown, CT 06482.
Benjamin Wheeler, 6
Donations can also be made to a fund established by the family. Send checks to the Benjamin Wheeler Fund, c/o Trinity Episcopal Church, 36 Main Street, Newtown, CT 06470.
Anne Marie Murphy, 52
Teacher, Anne Marie Murphy, 52, a 14 year resident of Sandy Hook, CT formerly of Katonah, NY died Friday, December 14, 2012 at the Sandy Hook School Tragedy. She was born July 25, 1960 in Mount Kisco, NY, the daughter of Dr. Hugh and Alice McGowan of Katonah and graduated from St. Mary's School in Katonah, John F. Kennedy H.S. in Somers, NY and Southern CT State University with an MS degree in Education. Anne was employed by the Newtown Board of Education as a Teacher at the Sandy Hook Elementary School. New York Cardinal Timothy Dolan gave the homily at
Expert: Asperger’s not linked to violence
Published: Dec. 22, 2012 at 10:07 PM PHILADELPHIA, Dec. 22 (UPI) -- To suggest a tie between Asperger's syndrome and violent, sociopathic tendencies is to undermine the research on autism spectrum disorder, a U.S. expert says. Michelle Rowe, executive di
COPAA Statement on the Newtown Tragedy
The members of Council of Parent Attorneys and Advocates, Inc. (COPAA) work in schools every day with teachers and on behalf of the 7.1 million children with disabilities in the United States. Because of our work, we feel intense, personal pain over the
Autism device hidden in designer vest
With files from the CBC's Chad Pawson A Vancouver entrepreneur's start-up company is hoping to put "the squeeze" on autism. Lisa Fraser, a recent graduate from Vancouver's Emily Carr University, has designed a special medical vest that helps children cop
A mother’s anger: Stop linking autism to violence
Sarah Darer Littman and her son shared their story at a StoryCorps booth in 2006. STORY HIGHLIGHTS Mother of son with Asperger's upset about misinformation spread recently Writer implores journalists to be responsible when reporting on the syndrome "Your
Mind Mysteries
Magnetic resonance image of a brain. The grey C-shaped structure visible at the center of the brain is a corpus callosum. Many born without this structure go undiagnosed for years—only neuroimaging can confirm the agenesis, or failed development, of this brain area. Instead people are diagnosed with disorders such as autism, depression, or ADHD. Sarah Mellnik, a young woman –introduced in Scientific American Mind‘s “The Mystery of the Missed Connection“– who has known about her agenesis of the corpus callosum all of her life explains that in sharing experiences, she and those around her learn that they truly are not alone. “If
FCC Honors Designers of Communications Technology Benefiting People with Disabilities
445 12th Street, S.W. FOR IMMEDIATE RELEASE NEWS MEDIA CONTACT: December 19, 2012 Michael Snyder at (202) 418-0997 E-mail: Michael.Snyder@fcc.gov FCC CHAIRMAN GENACHOWSKI HONORS INNOVATORS IN ACCESSIBILITY COMMUNICATIONS TECHNOLOGY IN CEREMONY TODAY Demo
Happiness is Fireflies
This very sweet video, 'Fireflies' by The Jubilee Project is about two kids that connect in a beautiful way.
Report: State ignoring abuse at group homes
When lawyers for a watchdog group were combing through state files involving people with developmental disabilities, they stumbled onto a disturbing case: A paid caregiver allegedly had assaulted a resident of a state-funded group home. An examination re
Words to Live By
"Not being able to speak is not the same as not having anything to say". Rosemary Crossley
Changing the Paradigm
Sir Ken Robinson on education reform. "Changing Paradigms in Public Education" covers the importance of thinking differently about human capacity , recognizing the benefits of collaborative learning, and changing the culture of our institutions.
What Does Ollibean Mean to You?
Crazy but true, simply wearing an Ollibean tshirt makes bedtime routine happy and fun! Send us a message about why you want one, what Ollibean means to you, and we'll get one to you.
Stephen Wiltshire
We are huge fans of the extraordinarily talented Stephen Wiltshire. Stephen Wiltshire - An Introduction Time lapse of Brisbane Panorama by Stephen Wiltshire
Use of the ICF for Guiding Patient-Reported Outcome Measures
The World Health Organization's International Classification of Functioning, Disability, and Health (ICF) has been adopted by most professional organizations that are concerned with the rehabilitation process, including by the American Speech-Language-He
An Ethnographic Investigation of African American Mothers’ Perceptions of Augmentative and Alternative Communication
The purpose of this study was to investigate fourteen African American mothers' perceptions of the utilization of augmentative and alternative communication (AAC) by their children with autism spectrum disorders (ASD). The authors used ethnographic metho
Hearing disorder could be misdiagnosed as ADHD in kids
Not enough doctors are aware of auditory processing disorder, the Canadian Association of Speech-language Pathologists and Audiologists says. (iStock) A little-known hearing disorder affecting two to three per cent of Canadian children is being misdiagno
Sensory/Movement Differences and Diversity
For a lot of people, the most anticipated books each year are about vampires or girls with great archery skills, but the release I waited for was this book by friends, Martha Leary and Anne Donnellan. I am not exaggerating when I share that their first book, Movement Differences and Diversity in Autism, completely changed how I thought about disability, behavior, and autism. This new volume did not disappoint, and I am now recommending it to everyone in my circle (and now, to all of you)! To me, no other researchers/scholars in autism are doing more than these two women
TPGA’s All Ages Holiday Book Guide
Do you love to give and receive books? We love to give and receive books. So for you and for us, here's a short selection of recommended books by, for, about, and enjoyed by autistic people and their families. If you have additional suggestions for books
Alan Cumming picks 5 unconventional family films
"Any Day Now" follows the struggle of a gay couple in late-1970s Los Angeles to adopt an abandoned teenage boy with Down syndrome. It's not exactly your traditional, old-fashioned family unit. So who better than the film's star, Alan Cumming, to ponder t
Alexis Clarkson: OlliNepal
We should all strive to see the beauty and potential in everything, and everyone, and to me, that is inclusion. "
‘Smartpen’ Pilot Program Helps Students with Disabilities
We often get questions about the legality of using a recording device or pen in class. Parents ask this question when schools tell them “recording devices violate the confidentiality” of other students in the classroom. Digital recorders or recording pen
Shatter the Myths About Autism
"No Myths". Must see PSA by the Autistic Self Advocacy Network and the Dan Merino Foundation. Change the conversation about autism.
Ollibean Photo Shoot, Behind the Scenes
A glimpse behind the scenes with Ollibean Families . Our families include people with and without disabilities - just like life.
Ollibean: All of a kind
The faces of Ollibean are kids with and without disabilities all trying to make the world a better place.
Site helps deaf with signing science terms
Published: Dec. 10, 2012 at 9:43 PM SEATTLE, Dec. 10 (UPI) -- U.S. researchers say an online forum is helping develop sign language versions of specialized terms used in science, technology, engineering and mathematics. Started at the University of Washi
Henry Frost on Inclusion on the Autistic Self Advocacy Network
Henry wrote about inclusion for the Autistic Self Advocacy Network, read the entire article here. Ari Ne'eman, president of the ASAN, had an enormous impact on Henry's decision to speak out about his desire to attend his neighborhood school. "I met Ari at theAutism Summer Institute. I wrote to him about my school and he understood. He helped me advocate for my rights. ASAN helped with the petition. He is also autistic. He is also my friend. I did not read about a person who liked being in a separate school away from their friends learning cooking for life skills
Ollibean Creed
The Ollibean Creed, our parenting true north for raising children with and without disabilities.
Aide at Maryland School for the Deaf charged with sex abuse of minors
Posted at 01:55 PM ET, 12/06/2012 Dec 06, 2012 06:55 PM EST TheWashingtonPost By David Marino-Nachison An aide at the Maryland School for the Deaf’s Columbia campus has been charged with inappropriately touching three girls when they were students at the
Scientists identify molecules in the ear that convert sound into brain signals
IMAGE: Ulrich Mueller, PhD, (center) isa professor in the Department of Cell Biology,director of the Dorris Neuroscience Center at The Scripps Research Institute, and lead author of the Cell paper;Wei... LA JOLLA, CA Â December 6, 2012 Â For scientists w
Use Your Words: Non-Verbal, Speech, and AAC
I see a little girl every week at events that my child attends. She's great. She's nine years old, has a fantastic laugh, and a mischievous sense of humor. She loves puddles, chocolate cake, and apples. She has a small crush on my son. She's also non-ver
Editorial: Disabled Senate rejects U.N. rights treaty
Former Senate Republican leader Bob Dole is wheeled into the Senate on Tuesday.(Photo: CSPAN2 via AP) Dole, a former party leader and a disabled veteran, tried to champion the treaty in the Senate. The opponents persuaded 38 Republican senators to vote n
Which Congressman Is Blocking Bill That Would Protect Kids with Autism?
Legislation aimed at protecting children with autism and other disabilities from being injured in school has stalled in the House of Representatives at the hands of a single member who objects to federal intervention. Minnesota Republican Rep. John Kline
Shouldn’t Every Day Be International Day of Persons with Disabilities?
We are committed to removing barriers to create an inclusive and accessible society for all. Not just on December 3rd, but each and every day.
Can You Hear This?
Take 5 Minutes for a reality check.This video is a must watch for any student that is Deaf or Hard of Hearing, their families, educators, and ALL who work with them.
Autistic Student Wins the Right to Go to School
Henry Frost had a pretty simple goal: he wanted to go to school like any other kid.
International Day of Persons With Disabilities
Theme: Removing barriers to create an inclusive and accessible society for all. How will you take part?
Emily Willingham “Autism Bingo: The Congressional Hearing Version”
Our science editor Emily Willingham live-tweeted Thursday's Congressional autism hearing from the perspective of a scientist, autism parent, critical thinker, and human. She Storified and annotated the experience, turning offensive keywords and laughable
Autism on CSPAN Washington Journal
Hi. My name is Henry Frost. I am a 13 year old Autistic self advocate. I agree with Ari Ne'eman. This is a civil rights issue. Communication and inclusion are basic civil rights. I made this video about civil rights. I made a FB page and petition so I could go to school in my neighborhood. Ari and ASAN helped me advocate. http://www.facebook.com/IStandWithHenry , change.org/henry People all over the world wrote this is a civil right. We want the same things in life. We are not so different. Please watch to understand how much we need support for
Build Your App with Therapy Box
“After numerous requests, we have opened up our service to work with creative speech and language therapists, teachers and organisations who have an idea for an app they would like to deliver. We will make it happen” explains Therapy Box Therapy Box, the
Get Schooled: Jack Black Rocks “Sensitive”
AUTISM IS AWESOMISM . LOVE this video performed by the incredible Wyatt Isaacs (Autism the Musical), Jack Black, Stephen Stills from the Miracle Project Benefit.
CEC Celebrates IDEA’s 37th Anniversary
On November 29, 1975 President Gerald Ford signed into law the Education for All Handicapped Children Act (Public Law 94-142), landmark legislation that forever changed how American’s view individuals with disabilities. Now known as the Individuals with
Longview school suspends use of isolation box
The Longview School District has suspended the use of an isolation box for special education students while it reviews the policy for isolating students who may be a danger to themselves or others. The Longview School District has suspended the use of an
Police Ignored, Mishandled Sex Assaults Reported by Disabled
Patients at California’s board-and-care centers for the developmentally disabled have accused caretakers of molestation and rape 36 times during the past four years, but police assigned to protect them did not complete even the simplest tasks associated
ASAN Statement on Upcoming House Autism Hearing
“We’re profoundly concerned by the decision by the House Committee on Oversight & Government Reform to convene a hearing on autism next week without the inclusion of any Autistic witnesses or representatives from organizations run by Autistic people. Jus
Don’t label people with Down syndrome
Perceptions about Down syndrome have changed in recent years, says David M. Perry, who has a son with this disability. STORY HIGHLIGHTS Ann Coulter's "retard" comment not aimed at Down syndrome, she said David Perry has son with Down syndrome and says cu
Evaluating the Efficacy of the LRE
I attended an IEP meeting recently that really brought home for me the complex nuances of determining what placement, or blend of placement options, represents the Least Restrictive Environment (“LRE”) for an individual student with an IEP. Not only are
After student’s death, Hillsborough school’s ESE aides could not recall missing-child training
Hillsborough County school district investigates a student's death last month at Rodgers Middle School, issues are emerging that go beyond the five suspended special education employees and even their Riverview school. It is unclear if the workers, who earn as little as $11,000 a year and are now on paid leave, were trained in how to react when a student goes missing. Read more from Tampa Bay Times, Marlene Sokol
School board wants answers in wake of student’s death
Two separate investigations are now going on in the Hillsborough School District.
MIND Research Institute Receives $500,000 Grant to Improve Math…
MIND staff working with students in an ST Math lab. We see MIND Research Institute’s ST Math program as having tremendous potential to close the math achievement gap in New York City public schools.... The Dell family foundation grant will fund professio
Nathan Heller: Andrew Solomon’s “Far from the Tree.”
For Megan and Michael, a Los Angeles couple, the crucial turn of parenthood came not in the delivery room but eight months later, when they started to worry that something had gone wrong with their son. The baby, Jacob, didn’t respond to the surrounding
Now, It’s Our Turn!
Tonight, Terri and I had the tables turned on us! It was our turn to be on the "hot seat" when we were featured guests on HuffPost Live. Interviewed by host, Nancy Redd, we appeared live (and on camera - much more stressful than a phone interview!!) to d
CHOP presents new findings on pediatric cardiovascular disease at AHA 2012
Physician-researchers from the Cardiac Center at The Children's Hospital of Philadelphia presented new findings on pediatric cardiovascular disease at the American Heart Association's Scientific Sessions 2012 in Los Angeles. They described racial dispari
The Case for Inclusion Part 3: Sea Change
The longer there is a strong distinction between general and special education the worse it is for students who are labeled with a disability. It perpetuates the language of Us and Them...
Adding the I to IEP: H is at the table
We worked with the wonderful team at H’s Distributed Learning School to update his Individual Education Plan (IEP) and for the first time ever H was there to take part. He wasn’t completely interested – but we built-in other options for him so he could p
Open Letter from a Doctoral Student Who Needs Some Help with her Study
Hi, my name is Christina and I am a doctoral candidate at Grand Canyon University. The title of my dissertation is “Examining the Potential of Using Technology to Improve Academic Performance: The Experience of Autistic Children with E-Readers.” As a for
Paula Kluth on The Inclusive Class Roundtable
Paula Kluth's strategies for teachers who might be reluctant or don't know where to begin with inclusion on The Inclusive Class Roundtable, as well as some of our favorite things from her website, PaulaKluth.com.
Seth’s case: Special-education battles with no end
Posted at 01:09 PM ET, 11/04/2012 Nov 04, 2012 06:09 PM EST TheWashingtonPost Seth turns 9 on Saturday. He is a radiant child who often looks better than he feels. He was born nearly four months prematurely and weighed 15 ounces at birth. He has many med
What I Learned “When Schools Say No to Inclusion “
The guests on the show are leaders in the inclusion community. They all brought something unique to the table, but they had one thing in common- respect and dedication to all learners.
Supporting Students with Learning Disabilities – 11/02/12
Having taught at the primary, secondary and college levels, Dr. Horowitz has also worked as a consultant to school districts throughout the New York City metropolitan region. In addition, he is frequently cities in popular press topics including parentin
Conversations Between Autistic Self-Advocates and Autism Parents – Part 2
Self-Advocate Elizabeth (Ibby) Grace's blog Tiny Grace Notes is subtitled "Ask an Autistic," and that is exactly what people do -- solicit Autistic insights from her. We asked if we could republish a recent conversation Ibby had with Tina, an autism pare
The National Center on Inclusive Education (NCIE)
The National Center on Inclusive Education (NCIE) at the University of New Hampshire’s Institute on Disability is a leader in the transformation of schools so that students of all abilities are successfully learning in their home schools within general education settings. Vision When students with disabilities are provided appropriate instruction and supports, they can learn grade-level general education curriculum, communicate in ways that are commensurate with their same-age peers without disabilities, have meaningful social relationships, and graduate from high school—college and career ready.
Access to the General Curriculum for Students with Disabilities: A Brief Legal Interpretation
Access to the General Curriculum for Students with Disabilities: A Brief Legal Interpretation By Joanne Karger and Charles Hitchcock Introduction The 1997 reauthorization of the Individuals with Disabilities Education Act (IDEA) introduced important changes in the provision of special education services for students with disabilities. One of the most significant changes concerns the requirement that students with disabilities receive access to the general curriculum. Specifically, the new Amendments require that students with disabilities: (1) have access to the general curriculum; (2) be involved in the general curriculum; and (3) progress in the general curriculum. The purpose of this brief is to
Calling People the R word
Trigger Warning: R-slur as an insult, discussion of such (censored except in quotations and in a screen shot.) This is how we begin, sort of: I say sort of because this isn’t really a beginning, it’s a reflection. It’s a reflection of what we as a societ
No Progress. School Says “No Change is Good”?
I’m a sped teacher with a child who has an IEP. The IEP team agreed that my child’s progress in Math will be measured with the KeyMath test. When the school last administered the KeyMath test, her scores dropped! It is not good news when a child’s test s
URMC, Deaf Community, Study How to Improve Research Participation
Documents that explain life-saving medical procedures or how to take part in research can be difficult to understand, but with a $600,000 grant the University of Rochester Medical Center is studying new ways to deliver those messages to deaf patients and
Ann Coulter blasted for using the ‘r-word’
Parents of children with special needs are demanding an apology from conservative political pundit Ann Coulter for calling President Obama the "r-word" after Tuesday's foreign policy debate. Here's the tweet that sparked the outrage: John Franklin Stephe
2 Ohio nurses get probation in malnutrition death
Two Ohio nurses have been sentenced to probation in the malnutrition death of a 14-year-old girl who had cerebral palsy and weighed 28 pounds when she died. Mary Kilby of Miamisburg and Kathryn Williams of Englewood were sentenced in a Dayton courtroom o
Listen to The Inclusive Class Roundtable – 10/26
Inclusive Education, as defined and described by education experts, is a philosophy. It is not a program, nor does it happen in is... Parents of school-age children can often become bewildered by today’s education system and it’s expectations. Its quickl
Special ed in distress A few schools get it right, but complaints and lawsuits are mounting against a troubled program serving 7,000 Seattle students.
Five years ago, a high-profile report found that Seattle's public-school district was decades behind the rest of the country in serving students with disabilities. Today, the problems are even worse. Six special-education directors — and three superinten
Study: Puberty happening sooner in boys
Published: Oct. 20, 2012 at 1:12 PM NEW ORLEANS, Oct. 20 (UPI) -- A study by the American Academy of Pediatrics found boys are entering puberty at earlier ages than they have in the past. The study, which was unveiled Saturday at the organization's natio
Why Won’t the School Provide Homebound Instruction?
My child’s doctor recommended homebound instruction. The school said they had the authority to override that recommendation. Why won’t the school provide homebound services? Issues of homebound are determined in part by state law and state regulations, i
COPAA Announces Keynote and General Session Speakers for 2013 Conference
COPAA is an independent, nonprofit membership organization of special education attorneys, special education advocates, related professionals, and parents/family members. Our primary mission is to secure high quality education services for children with
For collegians with disabilities, success linked to mentoring, self-advocacy
(Phys.org)—A Rutgers study of recent New Jersey college and university graduates with disabilities has found that students attributed their academic success to a combination of possessing such strong personality traits as self-advocacy and perseverance,
Low Eye Contact Is Not Just An Autism Thing
A news story about a Society for Neuroscience conference report on the discovery of “eye cell” neurons that register eye contact says: This new type of neuron was discovered in a Rhesus macaque. If humans have these neurons too, it may be that they are i
Oct 26th The Inclusive Class Podcast Presents a Roundtable Event: “When Schools Say ‘NO’ to Inclusion”
On Friday, October 26, 2012 at 9 AM Eastern Standard Time, The Inclusive Class Podcast proudly presents a one hour long roundtable event on Blog Talk Radio. This event brings together experts in the area of inclusive education to discuss and respond with practical techniques when schools say 'NO' to inclusion.
Th Inclusive Class Roundtable :”When Schools Say ‘NO’ to Inclusion”
This event brings together experts in the area of inclusive education to discuss and respond with practical techniques when schools say 'NO' to inclusion.
Feedback Loop: Autistic Student, Or Student With Autism?
Dean McIntosh criticized our describing Frost as a “student with autism.” The entire adult autistic community has been saying in one loud voice that “…with autism” is not acceptable. Myself and Lydia Brown are just two examples of autistic adults who wri
Justice Department Settles with Florida Bus Companies Over Accessibility Violations
The Justice Department reached four settlement agreements with over-the-road bus companies in Florida in the last month, to ensure that bus transportation is accessible for people with disabilities. The settlements under the Americans with Disabilities A
Wendy’s Franchisee to Settle Lawsuit for Refusing to Hire Applicant with Hearing Disability
DALLAS - CTW L.L.C., a Wendy's franchisee, has agreed to pay $41,500 and provide other significant relief to settle a disability discrimination lawsuit brought by the U.S. Equal Employment Opportunity Commission (EEOC), the agency announced today. The EE
Landmark Decision Promoting Accessible Books for the Blind
Baltimore, Maryland (October 11, 2012): The National Federation of the Blind (NFB) today applauded a decision issued on October 10, 2012, by the U.S. District Court for the Southern District of New York, which permits the distribution of millions of book
New report: Half of schools meeting state’s goal
(10-10) 17:13 PDT -- California schools have been weighed. They have been measured. And depending on who you ask, they have been found wanting or are doing really well. On Thursday, state education officials released the simplified roundup of state tests
Netflix pledges to caption all content by 2014
Netflix will offer closed captions on all TV and movie content by September 2014 as part of a settlement with a deaf Massachusetts viewer who sued the company. The on-demand Internet streaming service agreed to the settlement Tuesday in U.S. District Cou
Diabetic alert dogs save lives
Rebecca Farrar with her diabetic alert dog, Shirley. (Photo: ZUMA Press) Rebecca Farrar was just 4 years old when she became seriously ill and was diagnosed with diabetes. Today, as a Type 1 diabetic, 8-year-old Rebecca’s blood sugar can drop without war
Social Media Helps Student With Autism Find His Voice
Henry Miles Frost and his service dog, Denzel, protest outside a downtown Tampa building during the Republican National Convention. Since he posted the photo to Facebook, he’s found global support in his effort to enroll in his South Tampa neighborhood s
AAPC Publishing Releases Lesson Plan a la Carte: Integrated Planning for Students With Special Needs
Integrate learning objectives with therapeutic supports and necessary modifications right in the classroom. Multiple worlds exist within the educational universe. Integrated planning happens when each of these worlds (teaching, clinical, administrative,
Teen’s death shows gap in autism care, say advocates
Advocates for those with autism say the death of an Edmonton teen this week reveals a serious gap in the province’s mental health system. Jarrett Bortscher, 18, was found dead Wednesday after going missing from his family’s home Sunday. “This kid was an
National Council on Disability (NCD) Releases Report on Rights of Parents with Disabilities & Their Children
WASHINGTON, DC -- On Thursday, September 27, the National Council on Disability (NCD), an independent federal agency, released “Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children” -- a groundbreaking policy study, inf
The Case for Inclusion Part Two: What Does Inclusion Look Like?
It should always be the objective of public education to serve all students no matter what their disability label. It should always be the objective to give the right amount of support for all children.
Almost Half of U.S. Kids With Autism Have Been Bullied
MONDAY, Sept. 3 (HealthDay News) -- Nearly half of U.S. children with an autism spectrum disorder are victims of bullying, a new study finds. "The rate of bullying victimization among adolescents with an autism spectrum disorder is alarmingly high, indic
StateImpact Florida A Finalist For Innovative, Investigative Journalism Award
From our investigation: Tres Whitlock types on the DynaVox tablet that serves as his voice. Whitlock, 17, has cerebral palsy and can’t speak on his own. He tried to enroll in a Hillsborough County charter school, but the school had concerns about the the
I am the 20 % and the RNC
Henry takes his bi-partisan message of inclusion and civil rights for all to the Republican National Convention.
NeoSpeech Text-to-Speech Featured in AAC Speech Application
We believe that NeoSpeech Text-to-Speech will benefit people with speech disabilities to communicate with other people. NeoSpeech, a leader in text-to-speech (TTS) software and speech-enabled solutions, announced today that an Augmentative and Alternativ
A Sensory Garden for Zoë and Oliver
One of Ollibean's contributors, the lovely and amazing, Julie Lohoefener of Bloom Garden Shop, let's us in on some great tips on creating a non-toxic Sensory Garden with your kids.
Looking to November, Disability Advocates Call for Accessible Polling Places
A Federal Court Judge will hear testimony Monday about how to make city polling sites more accessible for people who use wheelchairs or have vision impairments. Earlier this month, U.S. District Judge Deborah Batts ruled there were pervasive barriers at
Dr Thomas Armstrong – Neurodiversity – Aug 27,2012
Call in to speak with the host "Neurodiversity" by Dr Armstrong - Brilliance "Neurodiversity - Discovering the Extraordinary gifts of Autism, ADHD, Dyslexia and other brain differences. This book has it all - what research tells us about the specific str
USC’s Special Ed Infographic
Welcome to Making Special Education Actually Work, the official blog of KPS4Parents. We sincerely hope that this blog proves to enlighten and empower all responsible adults to ensure that all children, regardless of disability, receive a Free and Appropr
Listening to Autism: A letter from Mrs. Teacher Lady
I wanted to thank you for all the hard work you do in not only helping your son through his journey and helping him accept himself, but helping others on their own journey as well. I wanted to share with you a little bit of my story. I have always found
Cognition and behavior: Words bias impressions in autism
Positive response: People with autism are more likely than controls to see as a friend a man making a disgusted expression and saying “You are friendly.” Individuals with autism rely more on words than on facial expressions when interpreting social cues,
National Federation of the Blind Applauds National Council on Disability Report
Dr. Marc Maurer, President of the National Federation of the Blind, said: “We applaud the National Council on Disability for its strong affirmation of the value, equality, and dignity of workers with disabilities, and for its recommendation that Section
Another School year !!
Another school year begins August the 16th for us. My son is a young 1st grader , he will be 6 on August 23rd . But will still be five when school starts . His kindergarten experience wasn’t so great . Before he started school last year I met with the sc
Special needs kids staying in traditional schools
LOS ANGELES The high cost of educating students with special needs is disproportionately falling on traditional public schools as other students increasingly opt for alternatives that aren't always readily open to those requiring special education. The i
Sebastien’s Smile
Sebastien's Smile was created for the sole purpose of raising awareness for Mitochondrial diseases which affect the Setin's son Sebastien.
Henry’s video for his friend Sebastien, please help by sharing
Thursday Henry decided he wanted to write something to help his friend. We decided to video the process, as you can see, typing one letter at a time is a very long and arduous process. It took Henry hours to type and edit that paragraph. It was hard and Henry decided to not to share the parts that were too emotional. Sebastien is one of Henry's best friends, he loves him dearly and he has watched his body get weaker and weaker each day. I am so proud of H for writing this, it was very, very hard for a
Mom seeks heart transplant for autistic son
A Pennsylvania woman whose autistic adult son was not recommended for a heart transplant because of his illness and the complexity of the process, among other factors, said she wants to bring more attention to the decision-making process so that those wi
London 2012 Takes Paralympic Torch Relay to New Heights
The Paralympic Torch Relay is the perfect moment to get your flags back out and get behind the incredible athletes taking part as the excitement builds once again right across the capital • Flames to be created at the summits of the UK’s four highest pea
Did doctor waterboard daughter in experiment?
DOVER, Del. — To many people, Dr. Melvin Morse was a brilliant pediatrician at a renowned children's hospital and a best-selling author who parlayed his research on near-death experiences into appearances on "Larry King Live" and "The Oprah Winfrey Show.
WEBSITE WEDNESDAY: The Accessible Principal
I am so thrilled to share the with you, which is a new blog that was launched this summer by one of the best administrators I have ever met. Marilyn is a school and district leader in a suburb here in Chicago and she has interests ranging from technology
A New Direction for Autism
Social media has been a game changer for artists, bloggers, poets, whiz kids and film makers in the ASD community.
NYC to Integrate Special Ed Students into Regular Classrooms
New York City’s pilot for special education inclusion has moved the district to apply the program to a majority of the schools in the city. The city’s conclusion is that students with special needs should get access to the general education curriculum, n
What is the Timeline for Developing a Section 504 Plan?
My 6 year old daughter had her 3 year reevaluation. She has Childhood Apraxia of Speech and fine motor difficulty. She is doing well academically. At the IEP meeting, one month ago, it was decided that she no longer qualifies for an IEP. The school sugge
Disability in an Ableist World
Disability as a constructed concept is not a commonly understood or propagated idea in the mainstream of an ableist society. The average non-disabled person, and frequently even disabled people who’ve had limited or no exposure to disability rights theor
My autistic son’s step into the wider world — through Facebook
Susan Senator , a writer in Massachusetts, is the author of “The Autism Mom’s Survival Guide” and “Making Peace With Autism.” She blogs at susansenator.com/blog . When my autistic son, Nat, was about 8, we learned that he loved looking at family photos o
Resources and Downloads for Differentiated Instruction
Educators from Mesquite Elementary School, in Tucson, Arizona, have provided these resources for you to use in your own school. Daily collaborative planning time at Mesquite Elementary enables teachers to plan differentiated instruction to address the pr
The Case for Inclusion: Does All Really Mean All?
Tim Villegas of Think Inclusive on the motivation to change from educating students with disabilities in segregated settings to inclusive settings where all means all.
Ollibean Think Tank Member Tim Villegas
My hope is that ThinkInclusive.us can create a bridge between educators, parents, and advocates (including self-advocates) to promote ideas, innovation and inspiration to change our world to be more accepting and value each and every human being.
How to Make Inclusive Practices a Reality For Your School
The new school year is fast approaching and The Inclusive Class Podcast is set to help you prepare! On Friday, August 10, 2012 we will kick off our "Back to School" series which is 3 podcasts that will discuss tips, strategies and resources for helping y
Snacking: The Little Bite That Won’t Hurt You
Ollibean contributor Kristie Salzer talks about the benefits of "refueling" between lunch and dinner to decrease hunger related meltdowns for kids. We love her suggestions of 25 super easy snacks to get you started!
Vitamin D Deficiency In Sick Kids Could Make Them Sicker
If you're an adult, and a relatively healthy one at that, then you've probably been confused in recent years about whether or not you're getting enough vitamin D. Indeed, a series of reports from some of the top medical institutions – including the Insti
Change. It’s Happening Here. Join Us.
So you're probably wondering what the Ollibean movement is all about. And if you weren't, it's definitely in your head now.
“Yee Haw, Howdy, Amen” – When Schools Make Up their Mind in Advance!
IDEA requires Parent Involvement in Placement Decisions and developing an IEP for your child. Pre-selecting programs violates this right.
Researchers discover gene mutations in patients with alternating hemiplegia of childhood
Alternating hemiplegia of childhood (AHC) is a very rare disorder that causes paralysis that freezes one side of the body and then the other in devastating bouts that arise at unpredictable intervals. Seizures, learning disabilities and difficulty walkin
Child mental abuse as harmful as physical assaults
Children made to feel worthless, unloved or unwanted can suffer serious damage, says a report urging pediatricians to be alert to the problem. (iStock) Child psychological abuse can be as damaging as physical assault, but it remains underreported and not
Got Questions? Get answers from our disability-centric community.
We’ve organized Ollibean so members can support each other in a very organic way. You will connect with others based on mutual interest in diffability related content.
What’s Ollibean All About and How Do I Get Started?
Ollibean is a content driven, disability-centric community that unites news and editorial led content with social conversations . How do you get the most out of it? Find out here.
Human rights complaint over Montreal girl forced off bus
The family of a 12-year-old girl who was forced off a public transit bus in Ville St-Laurent, Que., last month is filing a civil rights complaint against Montreal's public transit authority and the Montreal police department. According to a release by th
14th Annual Autism Summer Institute August 6th -8th
Express Yourself: Supporting Communication through the Arts, Advocacy, and Education. Aug 6th -8th. Grappone Conference Center, 70 Constitution Avenue Concord, New Hampshire
Turner Classic Movies Showcases Films About Disability
TCM to Examine Hollywood's Depiction of People with Disabilities in The Projected Image: A History of Disability in Film in October Lawrence Carter-Long Joins TCM's Robert Osborne for Historic Month-Long Film Exploration, Presented in Collaboration with
The Americans with Disabilities Act: CEC Celebrates 22nd Anniversary
On July 26, 2012 the United States will mark the 22nd anniversary of key landmark legislation, the Americans with Disabilities Act, also known as ADA (Public Law, 101-336). Signed into law by President George H.W. Bush, this historic legislation resulted
Self-directed learning helps some students reach goals, study suggests
Students with cognitive and learning disabilities that were taught the fundamentals of self-determination were more likely to access mainstream curricula and achieve their academic and other goals, according to new research by Karrie Shogren, a professor
Insights for autism from tuberous sclerosis complex
Genetic risk: Mustafa Sahin studies tuberous sclerosis, a rare genetic disorder that leads to autism in about half of the cases. Whole-genome sequencing studies published in the past few years suggest that there are somewhere between 100 and 1,000 rare g
Teaching Reading to Children with Special Needs
On Friday July 27, 2012, Nicole and Terri will be interviewing Dr. Kathleen Whitbread about the importance of including children with special needs in reading instruction. In todays schools, children who are deemed incapable of reading, are usually pulle
Insights into How Deaf Brain Processes Touch and Sight
People who are born deaf process the senses of touch and sight differently than those who are born with normal hearing, a new study reports. The finding supports the notion that loss of a sense, such as hearing, affects brain development. Hearing loss th
Community Conversation: Autism and Public Discourse
I agree with you 100%. Is raising my son easy? In no way it is...maybe harder than others, maybe the same, I don't know, I don't raise other's kids. But the constant complaints of parents about how difficult the children are, and I believe mostly so that
Autism, Siblings, and Fairness
Shannon Des Roches Rosa www.Squidalicious.com www.ThinkingAutismGuide.com Thirteen-year-old Iz is a wonderful big sister to Leo, who is just 21 months her junior. This photo is of the two of them at a family reunion earlier this month; she's letting Leo
Bright Not Broken – Dr Fred Volkmar – Yale Child Development – Jul 26,2012
This week we continue our conversation on ASD and DSM-5 with leading autism expert and bestselling author Dr. Fred Volkmar director of The Yale Child Development Center. Dr. Volkmar will address the overall rate of autism (1-88) and the percentage that i
School-Wide PBIS & Teachers Who Bully
One reason, I suspect, is that people are so focused on holding bullies accountable that they’re not focusing on the real causes of bullying. But, that’s a reactive strategy rather than a proactive attempt to prevent bullying in the first place. Addition
Mechanism of CSF drainage benefits unclear in normal pressure hydrocephalus
The beneficial effect of removing cerebrospinal fluid (CSF) from patients with normal pressure hydrocephalus (NPH) is not mediated by reduction of ventricle volume, research suggests. This would be an obvious mechanism, say Niklas Lenfeldt (Umeå Universi
Diencephalic-mesencephalic junction dysplasia: a novel recessive brain malformation
1 Department of Clinical Genetics, Division of Human Genetics and Genome Research, National Research Centre, Cairo 12311, Egypt 2 Department of Radiology, Cairo University, Cairo, Egypt 3 Department of Paediatrics, Seattle Children’s Research Institute,
Dole, Coehlo Urge Congress To Ratify Convention On Rights Of Persons With Disabilities
(The Hill) July 18, 2012 WASHINGTON, DC-- [Excerpt provided by Inclusion Daily Express] As two individuals with disabilities who served in Congress, the passage of the Americans with Disabilities Act in 1990 was not only a proud moment in our careers, it
The physics of autism
People sometimes say that children with autism “march to a different drummer” or “vibrate at a different frequency.” New research analyzing electrical activity in the brain—via electroencephalography, or EEGs—makes it tempting to speculate that these cli
“We Want Respect”: Adults with Intellectual and Developmental Disabilities Address Respect in Research
Abstract Respect is central to ethical guidelines for research. The scientific community has long debated, and at times disagreed on, how to demonstrate respect in research with adults with intellectual and developmental disabilities. To illuminate the v
Florida Alliance for Assistive Services and Technology ( FAAST)
About FAAST Our Mission is to improve the quality of life for all Floridians with disabilities through advocacy and awareness activities that increase access to and acquisition of assistive services and technology. We value each individual's right to achieve their highest potential and the possibilities that can be realized through collaborative efforts focused on the goal of improving life for Floridians with and without disabilities. FAAST has worked with thousands of people with and without disabilities throughout the state to provide: Hands on assistive technology demonstrations and trainings Financing for assistive technology purchases Assistive device lending programs Community outreach to rural and
Global Update: Children With Disabilities Are Victimized More Often
VIKTOR DRACHEV/Agence France Presse, Getty Images Children with disabilities are almost four times more likely to be victims of violence than other children, according to a new report commissioned by the World Health Organization. The report , published
Autism and the Feel-Good Story
When Yvonne Freaney killed her 11-year-old autistic son, she defended herself by saying that he must have wanted to be murdered because "he won't be autistic in heaven." There are some who regard heaven as their ultimate reward even if they have a reason
Ollibean Baseball Camp
Cool camp for kids with Special Needs. It's free and everybody plays. July 16th through August 2, Monday through Thursday,8am to 10 am, at Palma Ceia Little League, Field C, Tampa Fl.
Hydrocephalus Research Conference Highlights
By Paul Gross, Chairman of the HA Board of Directors Dr. David Limbrick addresses attendees about the current state of bio-markers. The third NIH sponsored research conference on hydrocephalus concluded on July 11th and by all accounts was a resounding s
New Law Increases Safety for People with Developmental Disabilities Traveling on School Buses
Trenton, NJ – Taking another important step in the Christie Administration’s commitment to support individuals with developmental disabilities, Acting Governor Kim Guadagno today signed into law legislation that secures school bus safety precautions for
Tennessee Council on Developmental Disabilities
The Council is in the process of completing our annual update to the five-year state plan. This current plan is in effect for federal fiscal years October 1, 2011 through September 30, 2016. The plan is updated and resubmitted to our federal oversight ag
Bullying Prevention State Laws
This new brief focuses on bullying prevention legislation. To date, 47 states have passed legislation requiring schools to take leadership in addressing the problem. This brief provides information on elements of a bullying prevention plan, the school’s
New York State Developmental Disabilities Planning Council
The New York State Developmental Disabilities Planning Council is a Federally-funded New York State Agency working under the direction of the Governor's Office. The DDPC is responsible for developing new ways to improve the delivery of services and suppo
Saliva and pupil size differences in autism show system in overdrive
ScienceDaily (July 12, 2012) University of Kansas researchers have found larger resting pupil size and lower levels of a salivary enzyme associated with the neurotransmitter norepinephrine in children with autism spectrum disorder. However, even though
Support the Convention on the Rights of Persons With Disabilities (CRPD)
The Convention on the Rights of Persons with Disabilities (CRPD) is an international treaty that outlines the obligations of ratifying countries to promote, protect, fulfill, and ensure the rights of persons with disabilities. It embodies the American id
Strong communication between brain and muscle requires both having the protein LRP4
Communication between the brain and muscle must be strong for us to eat, breathe or walk. Now scientists have found that a protein known to be on the surface of muscle cells must be present in both tissues to ensure the conversation is robust. Scientists
Leaders@ED: Alexa Posny, Assistant Secretary for Special Education and Rehabilitative Services
Alexa Posny has had 23 jobs. While she never envisioned a specific career path, every position she held was a stepping stone towards her current position as the Assistant Secretary for Special Education and Rehabilitative Services (OSERS) at the U.S. Dep
Deaf people “feel touch” with hearing part of brain
(LiveScience) Individuals who are born deaf use the "hearing" part of their brain to feel touch and to see objects, suggests new research that highlights the plasticity of the human brain. The new study, detailed online July 11 in The Journal of Neurosci
Inclusive Educational Practices for Students with Special Needs
Studies have shown when kids with disabilities are educated in inclusive settings, the classrooms are better for all of the students.
International Hip Dysplasia Institute
The International Hip Dysplasia Institute (IHDI) is a collaborative, international, not-for-profit effort to improve the health and quality of life of those affected by hip dysplasia. Our goal is to provide education to patients, families, and physicians as the most comprehensive and reliable resource for knowledge about hip dysplasia in its various forms. What is Hip Dysplasia? Hip Dysplasia means that the bones of the hip joint are not aligned correctly. It affects thousands of children and adults each year and is known by many different names: Developmental Dysplasia of the Hip (DDH) Hip Dislocation Congenital Dislocation of the Hip (CDH)
A Letter to Parents of Children with Special Needs
I hope you have an enjoyable and relaxing summer with your family! Don’t forget to keep your child reading, practice some math facts or maybe even keep a journal of your family vacation. It's easy to forget about school for the summer and let the days pa
Special-Ed Students at Greater Risk of Bullying, Being Bullied: Study
TUESDAY, July 3 (HealthDay News) -- Students with visible disabilities and those receiving special education services for behavioral problems are at greater risk of being bullied and of bullying others, according to a new study. These children also are m
ASAN Public Comment on Defining HCBS in 1915i
The Autistic Self Advocacy Network applauds the Centers for Medicare and Medicaid Services’ decision to move forward on regulations defining the scope of settings acceptable under the 1915i state plan option. We concur with CMS that this definition, once
Parents of Malnourished Boy “Caring, Fit”
Victor and Oliafa Ramos may have been misinformed, Grey said, but they were trying to care for their sick child. The little boy was so depleted when he arrived at the hospital, he couldn't walk, according to court documents. He weighed 29 pounds, his sto
Introducing Ollibean Change Leaders
Introducing Ollibean Change Leaders - comprised of the most innovative, passionate doers on the planet. Folks out there blazing a trail for the rest of us, leaders in advocacy, inclusive education, cutting edge medicine, technology, human rights, the arts, disability rights, and philanthropy. They are changing things for people of all abilities. They are the Einsteins, the Ghandis, the Martin Luther Kings, the Helen Kellers of our generation. You’ve probably heard of most of them, and if you haven’t, you will. We all have the power to create real change and make our world a better place, we just have to
With mind-reading speller, free-for-all conversations that are silent and still
Researchers have come up with a device that may enable people who are completely unable to speak or move at all to nevertheless manage unscripted back-and-forth conversation. The key to such silent and still communication is the first real-time, brain-sc
Magnets in iPad2 May Alter Settings on Brain Shunt Devices: Study
TUESDAY, June 26 (HealthDay News) -- Magnets embedded in the Apple iPad 2 can interfere with the settings of magnetically programmable shunt valves, which are critical devices to drain excess fluid from the brains of those with hydrocephalus and other co
Change Leader: Larry Bissonette
Our first Change Leader is artist and disability rights advocate, Larry Bissonnette. Larry's art, writing, presentations, and films are changing perceptions about disability around the world. His quote in Wretches & Jabberers, "More like you than not" says it all.
National Council on Disability (NCD) Honors Life of Justin Dart
Listen to the heart of this old soldier. As with all of us the time comes when body and mind are battered and weary. But I do not go quietly into the night. I do not give up struggling to be a responsible contributor to the sacred continuum of human life
Christine Ashby appointed director of School of Education’s Institute on Communication and Inclusion
School of Education Dean Douglas Biklen has announced the appointment of professor Christine Ashby as director of the Institute on Communication and Inclusion (ICI), effective June 1. The ICI, formerly the Facilitated Communication Institute, conducts re
Cooling Therapy for Birth Disorder Boosts Later Survival
A treatment that cools the bodies of infants who lack sufficient oxygen at birth brings benefits that last for years, a new study confirms. Infants sometimes develop severe oxygen deficiency during the birth process. This condition—known as birth asphyxi
ASAN Public Comment on DSM-5 ASD Criteria
Today is the last day to provide public comment to the American Psychiatric Association (APA) regarding the definition of ASD within the DSM-5, the manual used by physicians and many policymakers to define autism and other disability diagnoses. You can f
Holly Robinson Peete and the Living with Autism Workshop
Holly Robinson Peete describes one of her main goals for HollyRod is to eventually create a St. Jude’s like center for autism where children can receive treatment.
Threats from fellow inmates delay arraignment of woman accused of starving child
A 23-year-old Burien woman accused of starving her 2-month-old son did not appear for arraignment Thursday because of concerns about her safety. Katherine A. Mattern has been held in "protective custody" at the King County Jail since shortly after her Ju
43 arrested in Capitol protest over service cuts
Sacramento -- Hundreds of home care workers and their clients filled the hallways of the state Capitol on Wednesday, shouting and cheering as they made a last-minute push to save the In-Home Supportive Services program from the budget ax. Forty-three peo
U.S. Department of Education Announces New Awards in Technology and Media Services
The U.S. Department of Education’s Office of Special Education Programs has released applications for new awards in Technology and Media Services for Individuals with Disabilities--Models Promoting Young Children's Use of Assistive Technology. The purpos
Chromosome Disorder Outreach, Inc.
Chromosome Disorder Outreach, Inc. is a non–profit organization, founded, supported, and run by parents just like you. Our children are affected by a wide range of chromosome disorders, including deletions, duplications, trisomies, inversions, translocations, and rings. Sometimes these disorders are so unusual that doctors tell us, "You’re the only one out there." But now using our newly introduced web application we have the capability to specifically categorize chromosomal karyotypes and finally begin to understand more about the genes involved in each rare chromosome rearrangement. We hope to eventually improve specifically tailored treatments to help affected individuals.
An Oregon School for Troubled Teens Is Under Scrutiny
On April 28, the U.S. Supreme Court will hear arguments in a case that has caused anguish in the world of special education and children's mental health. The case, Forest Grove v. TA, centers on the question of whether families with a disabled child have
Genetics: 2q21.1 variations link autism, attention deficit
Copy cat: Repeated stretches of DNA on either side of the 2q21.1 genomic region (top and bottom, here) have made it difficult to spot the region in genetic screens. Researchers have found deletions and duplications of a small piece of chromosome 2 in peo
Phonological Awareness and Print Knowledge of Preschool Children With Cochlear Implants [Article]
Correspondence to Sophie E. Ambrose, who is now at the Center for Childhood Deafness, Boys Town National Research Hospital, Omaha, NE: sophie.e.ambrose{at}gmail.com Purpose: To determine whether preschool-age children with cochlear implants have age-appr
One Day without Starbucks for Sebastien and Mitochondrial Disorders
Sebastien is an 11 year old boy, who likes to do things any other 11 year old boy likes to do- play video games, watch sports on tv (especially his favorite player, Lebron James), and play baseball.
Why Do Schools Resist Writing Methodology into IEPs?
Our child has a learning disability and has difficulty reading, writing & spelling. Nobody at the school understands dyslexia or how desperate our child is. We want multi-sensory learning like an Orton Gillingham approach. The school said they get to cho
Hurtful use of the ‘R’ word
We are writing to express our offense at a term used in Robert McCartney’s May 24 Metro column, “ One way or the other, a grim conclusion about Mayor Gray .” In referring to the leadership of D.C. Mayor Vincent C. Gray (D), McCartney stated that he “help
Ohio runner with cerebral palsy, 11, becomes YouTube hit
COLUMBUS, Ohio (AP) – When John Blaine realized 11-year-old Matt Woodrum was struggling through his 400-meter race at school in central Ohio, the physical education teacher felt compelled to walk over and check on the boy. "Matt, you're not going to stop
$1 million suit alleges teacher abused autistic boy
By Chris Roberts, NBCBayArea.com SAN FRANCISCO -- A special education teacher in Redwood City has been hit with a $1 million lawsuit by the mother of a 5-year-old autistic child for allegedly kicking and starving him, according to reports. Nadia Cortez s
National Federation of the Blind
With more than 50,000 members, the National Federation of the Blind is the largest and most influential membership organization of blind people in the United States. The NFB improves blind people's lives through advocacy, education, research, technology, and programs encouraging independence and self-confidence. It is the leading force in the blindness field today and the voice of the nation's blind. In January 2004 the NFB opened the National Federation of the Blind Jernigan Institute, the first research and training center in the United States for the blind led by the blind.
Larry Bissonnette featured on National Geographic
The amazingly talented artist Larry Bissonnette, of Wretches Jabberers, will be featured on an upcoming episode of the National Geographic TV program, Taboo.Check it out.
Matt W’s Field Day Race
Matt ran an amazing race on field day at Worthington, Ohio's Colonial Hills Elementary School. According to the Youtube video, Matt was given the opportunity to sit out, but after watching this kid run, you can see why that wasn't ever an option for him. The strength and determination Matt shows in completing this race is incredible. Matt has cerebral palsy which makes running challenging, but that does not stop him. Love seeing his classmates and teachers encouraging and supporting him all the way to the finish line.
Stop IDEA Funding Cuts!
There could be some big changes awaiting you during the next school year if Congress does not act soon to save programs for children with disabilities such as the Individuals with Disabilities Education Act (IDEA). Many federal programs will automaticall
The Lighter Side: Top 10 Signs of Advocate Overload
–From one of our favorite advocates who loves the 4 seasons in TX – drought, flood, blizzard, & twister, is a COPAA member and a faithful conference attendee. We hope, in spite of “advocate overload,” he made it safely home from Miami. 1. You noticed tha
Thirty national disability organizations blast “Deadly Consequences” segment of the Dr. Phil show
“This segment was such a horrific assault on people with intellectual disabilities that ignoring it would be a dangerous mistake.” According to the letter, the segment “presented the idea that parents should be able to euthanize their children who have i
MindSpec launches new science outreach website: Autism Reading Room
MindSpec proudly announces the public launch of its new science outreach website, Autism Reading Room (http://readingroom.mindspec.org). Autism Reading Room is the first comprehensive online project to build bridges between autism research scientists and
Diffuse White Matter in Brain Linked to Language Impairment, Amplified with Autism
Research published last month in the American Journal of Neuroradiology found anomalies in the connecting neural tissues between two primary language processing centers of the brain in autistic children and children with language impairment. The findings indicate that the differences existed in all participants but were more pronounced when language impairment was a factor for the child.
Carnivores, Carnitine Metabolism, & Autism
It is currently being postulated that the carnitine deficiency is linked to autism and in certain cases carnitine supplements may help.
Supporting Adults With Autism
By Melanie Grayce West Over the last decade, there's been a general increase in awareness of the need to provide tailored services, support and education to children with autism and other developmental disabilities. But there's been less talk about the n
Science-Based Decision-Making in Special Ed
Last month, I wrote an article for Special Education Advisor, a blog operated by some folks located in Chatsworth, CA who are dedicated to helping parents of children with special needs. You can see the article by clicking here. The title of the article
The Setin Family and The Foundation for Mitochondrial Medicine
Sandra and Christophe Setin are parents to 3 great kids, their oldest, Sebastien, was diagnosed with MELAS when he was 3 years old, he is now 11. Sandra is on the Board of FMM, the Foundation for Mitochondrial Medicine and The Pepin Academies. Sandra and Christophe have created a spice, Chef Jean-Christophe's Provencal Meat and Poultry Rub to raise awareness and funds for a much needed cure for mitochondrial diseases. ALL profits go directly to research through The Foundation for Mitochondrial Medicine. Their spice is delicious, Christophe may be the trained chef, but Sandra is also a fabulous cook. Check out their
Report: Disabled Face Transportation Barriers
WASHINGTON, DC -- Two civil rights organizations are highlighting disparities in transportation access for people with disabilities. "Equity in Transportation for People with Disabilities," a report by The American Association of People with Disabilities
Jackson, Miss., schools to no longer handcuff students
JACKSON, Mississippi (AP) — Public schools in Jackson, Mississippi, will no longer handcuff students to poles or other objects and will train staff at its alternative school on better methods of discipline. Mississippi's second-largest school district ag
Are charter schools bad at special ed?
Critics say public charter schools have an unfair advantage over regular public schools because they are less likely to have students with learning disabilities. That is not always true. Consider one D.C. charter management organization, DC Prep, with mo
Does “Eligible for Special Ed” Mean an IEP?
My 15 year old daughter was determined eligible for special education. The special ed teacher was pushing for a 504, I want an IEP. If she qualifies for special education doesn’t that mean she gets an IEP? The answer to your question about an IEP v. a 50
Cycling Study Aims to Improve Movement of Children with Cerebral Palsy
AUSTIN, Texas - (May 23, 2012) - Cycling training is an effective therapy for children with cerebral palsy, a type of brain injury that causes altered development in both children and adults. It is one of the most common movement disorders in children an
Helping Special Education Students, and Paying With His Career
There was no particular moment when Harris Lirtzman decided to blow the whistle, and so close the door on his teaching career. A former deputy state comptroller, he had decided to give public school teaching a midcareer whirl. In 2009, he landed a job as
Assistive Technology – What is UDL, NIMAS, and AIM?
The National Instructional Materials Accessibility Standard (NIMAS) creates a national standard for print materials in accessible formats. Schools and publishers must adhere to these standards when creating educational materials – textbooks, workbooks, a
Many Parents of Kids With Autism Don’t Put Faith in Pediatricians
WEDNESDAY, May 16 (HealthDay News) -- Many parents of children with an autism spectrum disorder don't feel they can turn to their pediatricians for advice on treatments, a new study finds. Likewise, many pediatricians don't think they have the knowledge
iPad gives voice to kids with autism
Sharia Siddiqui uses an iPad to help her communicate. Her father says it's "given her a sense of control she never had." STORY HIGHLIGHTS Touchscreen iPads are giving voice to autistic children, adults Apps for it and other tablets aid those with trouble
Autistic Kids at the Movies: Where Shhhh Isn’t Allowed
On April 10, thousands of children with autism will be able to do something that for many of them was impossible until recently: go to the movies. They'll see How to Train Your Dragon at one of 93 "sensory-friendly" screenings in 47 cities across 30 stat
1 In 3 Autistic Young Adults Lack Jobs, Education
CHICAGO (AP) â One in 3 young adults with autism have no paid job experience, college or technical schooling nearly seven years after high school graduation, a study finds. That's a poorer showing than those with other disabilities including those who ar
Howard graduate caps a four-year fight for access
Britney Wilson graduated Saturday from Howard University in a flourish of collegiate honors: Phi Beta Kappa, summa cum laude. But none of them brought quite the same rush of pride as the shiny new handicapped door-opener that awaited her back at the resi
Marine returns from war to surprise: Son with cerebral palsy walks for the first time
Staff sergeant Jeremy Cooney hugs his son, Michael, after the boy with cerebral palsy surprised his father by walking to him. (CBS) (CBS News) A U.S. Marine serving in Afghanistan traveled thousands of miles home for a reunion with his family, but it was
Growing Old with Autism
Noah Greenfeld, 42, who spent 15 years in a state mental facility, is now in an assisted living home near his parents in Los Angeles. Noah, my younger brother, does not talk. Nor can he dress himself, prepare a meal for himself or wipe himself. He is a 4
Thank you to the best beta testers on the planet
We appreciate the excellent feedback, and are making changes based on the input from our incredible and highly intelligent group of Beta Testers ( parents, kids living with diffability, self-advocates, therapists, educators, physicians, and freedom fighters) Hang on, fasten your seat belts, it might be a little bumpy along the way, but it will be worth it, we promise.
A Daughter With Down Syndrome Is The Perfect Sister
Kelle Hampton is the author of the memoir Bloom: Finding Beauty in the Unexpected. "See that right there?" the obstetrician asked as she glided the sonogram wand across my middle and pointed to a blurry image on the monitor. "It's a girl," she announced.
Sequencing Works in Clinical Setting to Help — Finally — Get a Diagnosis
Advanced high-speed gene-sequencing has been used in the clinical setting to find diagnoses for seven children out of a dozen who were experiencing developmental delays and congenital abnormalities for mysterious reasons. "I thought if we could obtain ev
Kids with cerebral palsy may benefit from video game play
ScienceDaily (May 7, 2012) Like their healthy peers, children with disabilities may spend too much time in front of a video screen. For children with cerebral palsy (CP), this leads to an even greater risk of being overweight or developing health issues
Autistic boy’s mother feels pressured by school
Amanda Edgett said her 10-year-old son is forced by his school to take a 40-minute walk each day at lunch. (CBC) Catherine Derry, a district education council candidate in the upcoming election, said Edgett’s story will sound familiar to many parents of
Comparing General Education to Special Education: What are the Differences?
Students with autism are educated in a variety of settings including general education (GE) and self-contained (SC) classrooms. In GE placements, students are educated with their peers by a general education teacher. In self-contained settings, students
The Coming Special Needs Care Crisis
Eli Toucey (left) has seizures and social issues that make it all but impossible to leave him with a random babysitter. What could really save Hillary Toucey’s life is a personal-care attendant to help with her 7-year-old son, Eli. Dark-haired, fair-skin
Being left out puts youths with special needs at risk for depression
The challenges that come with battling a chronic medical condition or developmental disability are enough to get a young person down. But being left out, ignored or bullied by their peers is the main reason youths with special health care needs report sy
Disability photography: Changing the world one photograph at a time
Researching the subject, I quickly realised that the majority of photographs of disabled people are very negative, and mainly used within charitable organisations. Having lived within a disability world all my life, I already knew that societies’ opinion towards disability is very negative, and that has to change. I knew from that moment on, that this was something that disability was passionate about portraying in a positive light.
Parents Wire Kids To Prove Teachers’ Verbal Abuse
CHERRY HILL, N.J. (AP) — Teachers hurled insults like "bastard," "tard," "damn dumb" and "a hippo in a ballerina suit." A bus driver threatened to slap one child, while a bus monitor told another, "Shut up, you little dog." They were all special needs st
U.S. Department of Education Reaches Agreement with School District on Services for Students with Disabilities
The U.S. Department of Education announced today that its Office for Civil Rights has reached a resolution agreement with the Memphis, Tenn., City Schools on aids and services to students with disabilities. The agreement resolves a compliance review init
SparkNotes – English Lit For Students With Attention Deficit Disorder
SparkNotes Android App Review by AndroidTapp.com | AndroidTapp. My first reaction to this new Android App, which makes English Lit short and to the point, was that I would never allow my kids to read the great works in summary form. We used to call littl
Dr Temple Grandin – Different Not Less – Apr 30,2012
We are honored to have Dr Grandin return for her fifth appearance on The Coffee Klatch. "Different Not Less " the phrase made famous by Dr Grandin's mother Eustacia Cutler in the HBO biopic Thinking In Pictures the story of Temple Grandins life, is the t
Working to Give All Students the Ability to Succeed
Tech-Now, Inc. is one of the many organizations across the country implementing the High School/High Tech Program, which provides young people with all types of disabilities the opportunity to explore jobs or further education leading to technology-relat
How to Use OAR’s Kit for Kids
The rising numbers of students with autism in public schools and the increased attention autism receives in the mainstream media further highlights the importance of student education about the disorder. OAR’s newest resource, the Kit for Kids, is a tool
Todd Drezner: Autism and the Hypothetical Child
Given how many autistic people there are in the world, it's odd how much of the conversation about autism revolves around children who don't exist. The most common such child is the one who is "indistinguishable from his peers." This is the child who will supposedly emerge after successful therapies or treatments for autism leave the child essentially "normal.
The Acceptance Letter
I am proud of you. You are one of the bravest people I know. You will continue working tirelessly on any skill you want to master until you prevail. You are extremely patient with those who care for you. When you get frustrated it is because you’ve tried all avenues to communicate and are not getting through to us. I understand you enough to know I have a good son. A loving son. No mother could ask for more, Thank you for choosing me to help you overcome these challenges. It’s been an incredible adventure so far.
NuclearMitome Test most comprehensive genetic test available for mitochondrial disorders
After almost a year’s worth of clinical use, Transgenomic’s NuclearMitome Test appears to be succeeding in offering doctors a more efficient and complete method for diagnosing people potentially suffering from mitochondrial disorders.
Facebook blocks NC mom’s pictures of Special Olympics event
Diane Cornwell said her seven year old, Cole, who happens to have Down Syndrome had a great time at his first Special Olympics event last Friday. She uploaded an album of 40 pictures to share and says Facebook blocked it for inappropriate content and locked her account.
Struggle over how to evaluate special ed teachers
Lynne Sladky / AP In this April 3, 2012, photo, teacher Bev Campbell, left, holds up stuffed animals in front of student Sebastian Rodriguez in her special education class at Amelia Earhart Elementary School in Hialeah, Fla. More than a dozen states have
U.S. Education Department Reaches Agreement with Memphis City Schools on Aids, Services for Students with Disabilities
The U.S. Department of Education announced today that its Office for Civil Rights has reached a resolution agreement with the Memphis, Tenn., City Schools on aids and services to students with disabilities. The agreement resolves a compliance review init
Educational rights for children with AD/HD: A primer for parents
This primer for parents is aimed at helping parents recognize attention-deficit/hyperactivity disorder (AD/HD) and learn about the two main laws, the Individuals with Disabilities Education Act (IDEA) and Section 504 of the Rehabilitation Act of 1973, th
Sad, But True. Decision-maker v. Equal Participant
My school told me, “You are the expert at home and the district is the expert at school.” I did not agree to my daughter’s IEP. The district refused to allow me to tape record meetings and include my notes with the district’s notes. I filed a state compl
Children With Autism Are Often Targeted By Bullies
Lots of kids get bullied. But kids with autism are especially vulnerable. A new survey by the Interactive Autism Network found that nearly two-thirds of children with autism spectrum disorders have been bullied at some point. And it found that these kids
Inclusive Solutions
Together they have a combined experience of over 50 years experience as educational psychologists working across the UK. Previously as Principal and Senior strategic Educational Psychologists in Nottingham City LEA, they bring a wealth of practical, applied solutions and processes from their work with children and young people with exceptional needs aged between 0-19. Between 2001 and 2008 together they have written several books such as 'Keys to Inclusion' (2011) and published a number of books including: Incurably Human,Seeing the Charade and Dear Parents. Most recently they have set up a Community Interest Company together with Cat Wilson called "A Place in the
Outing The Prejudice: Making The Least Dangerous Assumption
We highly recommend this brilliant article by Zach Rossetti and Carol Tashie on their interpretation of Anne Donnellan's concept of presuming competence, the least dangerous assumption.
RESNA Releases Wheelchair Position Statement
The Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) has issued a position paper titled "The Application of Ultralight Manual Wheelchairs." Developed through RESNA's Special Interest Group on Seating and Wheeled Mobility, the paper highlights that: Wheelchairs should conform to the individual, and not the individual to the chair; Wheelchairs should be as lightweight as possible while also being fully adjustable to meet the individual's needs; and Wheelchairs that are lightweight and adjustable cause the least amount of injury to users and increase functionality.
TEDxPSU – Dr. Joseph Valente – Hearing the Unheard
Dr. Joseph Valente is involved in comprehensive research in childhood studies, comparative and international education, educational anthropology, deaf studies and disability studies.
OT students on reliability of ADA-Compliance Assessment Toolkit
Misericordia University student researchers recently had their findings about the reliability of the Americans with Disabilities Act-Compliance Assessment Toolkit (ADA-CAT) presented at the California State University, Northridge Annual International Tec
Deaf Olympic hopeful uses social media to fight discrimination
Marcus Titus, top U.S. breaststroker, rallied for change and got it. USA Swimming will allow the use of hand signals to accomodate Deaf swimmers at the summer Olympic trials.
Disabled Military Protection Act Allows Military Families to include Special Needs Trusts within the Survivor Benefit Plan
Currently, under the Survivor Benefit Plan (SBP), a military retiree can set aside up to 55 percent of his monthly retirement pay to provide their family members with a monthly stipend, after he or she dies. However, these benefits are counted as income
Subconscious Stereotyping
When it comes to negative stereotypes, your subconscious may not be the best dinner guest.
Upper Limb Therapy in Children With CP
Intensive goal-directed upper limb training programs using either constraint-induced movement therapy (CIMT) or bimanual training (BIM) achieved domain-specific changes in quality of life relating to feelings about functioning and participation and physi
Scoliosis Treatment Might Reduce Need for Surgeries
THURSDAY, April 19 (HealthDay News) -- Magnetically controlled growing rods can treat the spinal disorder scoliosis in children without the need for repeat invasive surgeries, a small new study suggests. Scoliosis is an abnormal curving of the spine that
SchoolBook: Testing Takes Its Toll on Special Needs Students
April 19, 2012, 8:12 a.m. It has been a challenging week for many third through eighth grade public school students in New York City, as they have started their days on Tuesday, Wednesday and Thursday with the federally mandated English Language Arts exa
An Autism Diagnosis in Minutes?
Ask anyone who has taken a psychological exam, words like “rapid,” “accurate,” & “mobile” simply are not ways of describing most clinical diagnostic measures. Luckily, at least for early detection of Autism, a group of doctors from the Center for Biomedical Informatics at Harvard Medical School are looking to change that.
Few Answers In Abuse Probes At Homes For Disabled
Fairview Developmental Center in Costa Mesa, Calif., is a sprawling facility of offices, residential buildings and therapy rooms set between a noisy boulevard and a golf course. Some 400 people with developmental disabilities live at Fairview. And while
The school with more teachers than students
18 April 2012 Last updated at 19:16 ET With autism diagnoses rising more and more parents are plunged into a battle to understand the condition and find their child the right treatment, writes Louis Theroux. Joey Morales-Ward is a 13-year-old kid who liv
Utterly Mark : A Vermonter with autism makes his inner voice heard through film
Mark Utter sits at a computer keyboard with a broad, toothy grin, his eyes closed and head cocked slightly, as though he were listening to a muse whispering in his ear. After a long pause, he opens his eyes and, with slow, deliberate movements, pecks at the keys with a single, outstretched finger.
Inclusive education still best model, says advocate
Gordon Porter says there are now hundreds of specialized teachers and thousands of assistants in the province. (CBC) A long-time advocate for inclusive education maintains it is still the right approach for students with special needs. But Gordon Porter,
Chosen Families
ChosenFamilies.org is a non-profit, charitable organization registered in the Commonwealth of Virginia and approved by the Internal Revenue Service to provide information to parents, family members, religious leaders and the general public on effective solutions to living in families with hidden disabilities. The purpose of ChosenFamilies.org is to help families living with hidden disabilities become fully incorporated into the body of Christ. Our mission is to provide resources, connections and encouragement to families with hidden disabilities and to educate and provide resources to religious leaders as they minister to families with these needs. ChosenFamilies.org is a community where people can
Implications of bringing genome sequencing Into the consulting room
These programs, which were discussed last month at a rare-diseases conference hosted by the Wellcome Trust Sanger Institute near Cambridge, UK, aim to provide a genetic diagnosis that could end years of uncertainty about a child’s disability. “The overarching theme is that genome-based diagnosis is now hitting mainstream medicine,” says Han Brunner, a medical geneticist at the Radboud University Nijmegen Medical Centre in the Netherlands, who leads one of the projects.
Spectrum Society
Mission Spectrum Society’s mission is to support people with disabilities to experience full citizenship and genuine belonging in community. We are committed to continuous learning and improvement through research into leadership and best practice. As a service providing agency, our focus is on strengthening the capacity of individuals and their personal networks, augmenting rather than replacing natural supports. Vision Spectrum Society for Community Living believes that community is enriched by the presence and contributions of its citizens with disabilities. We believe that together we can create a world where all people are valued, their voices heard, their choices respected. Values
The National Center on Accessible Instructional Materials
The National Center on Accessible Instructional Materials! This site serves as a resource to state- and district-level educators, parents, publishers, conversion houses, accessible media producers, and others interested in learning more about and implementing AIM and NIMAS. AIM Center at a Glance For students with sensory, physical, cognitive, or learning differences and their teachers, accessible instructional materials (AIM) may open doors to teaching and learning that ordinary print-based materials have closed. Accessible instructional materials or AIM are specialized formats of curricular content that can be used by and with students who are unable to read or use standard print materials.
Office of Special Education Program’s Discretionary Grants Public Database
The Office of Special Education Programs (OSEP) at the U.S. Department of Education is dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21. To this end, OSEP provides leadership and financial support to assist states and local districts, including funding approximately 1,000 grants and contracts each year. If you'd like to know what grants and contracts OSEP has funded as part of its initiatives to improve results for children with disabilities, you've come to the right place! (If you're looking for OSEP's grants opportunities, we would direct you to OSEP itself, at: www.ed.gov/fund/grant/apply/osep/index.html)
Data Accountability Center (DAC)
This website provides public access to data about children and youth with disabilities served under the Individuals with Disabilities Education Act (IDEA) - Part B and C; technical assistance (TA) materials to support the collection, analysis and reporting of IDEAdata; and the forms and spreadsheets used for collection. DAC was funded in October 2007 by the Office of Special Education Programs (OSEP), U.S. Department of Education to provide information and TA to improve the quality of all state-reported data required by the IDEA. Westat and its subcontractor, Louisiana State University Health Sciences Center–Human Development Center, operate DAC as a 5-year cooperative agreement with
Technical Assistance and Dissemination Network
The Technical Assistance and Dissemination Network (or “TA&D Network”) is a network of approximately 45 Centers (this fluctuates as old projects end or new ones begin) funded by the Office of Special Education Programs (OSEP). These projects provide information and technical assistance to states, schools, educational professionals and families, on topics such as autism, deafness, disproportional representation, dispute resolution, learning disabilities, parenting children with special needs, positive behavior support and transition. The TACC works with the TA&D Network to coordinate and support the work of these projects. ABOUT THE TACC The Technical Assistance Coordination Center (TACC) was formed in 2008 to facilitate coordination, collaboration,
RETHINKING AUTISM – Dana Commandatore
All too often in the world of autism, celebrity and sex appeal are used to promote pseudo-science and personal agenda. Rethinking Autism wants to change minds, change the current media conversation and help give autistic people a more prominent voice in
Neglect probe police arrest three
16 April 2012 Last updated at 13:47 ET Three people have been arrested by police involved in an investigation at a day centre for people with learning disabilities in Cornwall. The John Daniel Centre in Penzance caters for more than 80 people. A 21-year-
‘Seclusion rooms’ for autistic students raise questions
Andrew St. Vincent's parents pose questions around the coffee table as the middle-schooler with autism builds a Lego city. They want to know about the room. "So you were in there by yourself?" his mother asks. "When would you be in that room?" his father
Life After IEPs
Welcome ! If you’re a parent or mentor of a young person with disabilities, Life After IEPs is for you. Whether your child is an elementary student or a high school graduate, you’ll find information, resources, and support you’ll need along the way. A challenging journey There’s joy on the path to adulthood. But it ain’t always easy. Perseverence, grace, and a good sense of humor are needed. It can be a bumpy road. Supports available during the IEP years will end after high school Unfamiliar laws, systems and jargon lie ahead Resources exist, but they’re scattered in
Stereotypes of Children with Disabilities
Stigmatization is one of the greatest obstacles to the successful integration of people with Trisomy 21 (T21 or Down syndrome), the most frequent genetic disorder associated with intellectual disability. Research on attitudes and stereotypes toward these people still focuses on explicit measures subjected to social-desirability biases, and neglects how variability in facial stigmata influences attitudes and stereotyping.
Purple
At Purple, we're dedicated to developing fast, easy and convenient communications solutions and services for Deaf and hard-of-hearing individuals and businesses using a variety of different platforms. As a leading provider of on-site interpreting services, video relay services (VRS), text relay services and video remote interpreting (VRI), Purple has built an excellent reputation for developing products and services that open communications between all people, regardless of differences in abilities, languages and locations. Because of our many innovations and firsts, including Internet relay, wireless relay, mobile communication apps, real local 10-digit number access for video and text relay customers and interpreting
My Valentine by Paul McCartney- Featuring Natalie Portman and Johnny Depp
Paul McCartney Directs His Own 'My Valentine' Videos Featuring Natalie Portman and Johnny Depp using ASL.
Autism Cares Foundation
The Autism Cares Foundation (ACF) was founded by the parents of a child with autism and other concerned parents, professionals and friends. The foundation was started as a means of helping others through the “puzzle” that is autism. At virtually every level, there are “twists and turns” in one’s attempt to reach the answers that many parents are seeking. As the founders discovered with their own child, answers are few, frustrations are many, and there are few places to turn to for answers. It is the intention of the Autism Cares Foundation to assist in “unwinding” the twists and turns
Seahawks GM John Schneider knows: Autism is a family diagnosis
RENTON — Ten-year-old Ben Schneider is a fun kid. He has a great laugh, loves Legos and playing video games. You can hear the pride in his parents' voices when they tell you how smart he is. When Ben was 16 months old, he could arrange the letters of the
Autistic Hoya: End the torture. Make this go viral.
The public must see what the Judge Rotenberg Center is doing. Their experts claimed that the public would not understand the content of this video without "proper context." There is no context that justifies the use of torture against anybody ever. The public has not merely a right but a responsibility to watch this video and share it everywhere.
MyVoice AAC
MyVoice is a new app, available for Apple and Android devices, that helps people with a variety of speech and language challenges communicate more quickly and easily. MyVoice has groundbreaking features like location-awareness, downloadable phrase books and wireless customization from any web browser. With its lifelike voices and beautiful interface, MyVoice is the affordable communication aid app you've been waiting for. MyVoice is changing the world, one voice at a time. It can be a vital aid for children and adults living with: • ALS • Autism Spectrum Disorders • Aphasia, Apraxia, Ataxia, Dysarthria • Brain Cancer • Cerebral Palsy
Teachers Weigh-In: Do We Over Accommodate? Join the Debate…
Read more as teachers debate accommodations for students. Pete & Pam Wright and Advocate Pat Howey join the discussion. Take the poll – then click “read more” to add your comment and join the debate! I teach at a charter school. We feel that if the stude
Alliance for Inclusion in the Arts
The Alliance for Inclusion in the Arts is the nation’s leading advocate for full diversity as a key to the vitality and dynamism of American theatre, film, and television. We promote authentic dialogue about race, culture, and disability that embraces the complexity of underlying social and historical issues.
Watching TV: Even Worse for Kids Than You Think
It's no secret that sedentary behavior contributes to obesity and chronically poor health. But not all sedentary behaviors are created equal, according to a new study that examines the link between blood pressure in children and their choice of inactive
Aspiring to Conquer Crossover Acting Path
It didn’t take much rehearsing for Russell Harvard, who plays the deaf son of a loquacious and argumentative British family in the Off Broadway play “Tribes,” to get inside his character’s skin. Like his character Billy, the 30-year-old actor is himself
Faces of Ollibean- We want to hear from you!
Every week we put the spotlight on another person out there making a difference. Share your story and inspire and motivate others to Be the Change.
Marlo Thomas: The Givers: What Inspires Michael J. Fox? A Very Personal Interview
Unbowed by his disease and still exhibiting his trademark energy, Michael reminded me not only of the single-mindedness that is fundamental to fighting for a cause, but also of the indestructibility of the human spirit -- one that looks at each new day as another chance to enjoy the magic and the gift of life. If only all of us could learn that lesson.
SEN / ICT
The sen / ict directory began life in August 2011 to act as a directory for Special Educational Needs and Information Communication Technology Resources. Companies can showcase their business, the products they produce and services they provide. There are also hundreds of FREE online resources from fun/educational games, activities and printable resources to tools that help disabled adults and children use computers and the internet by adapting and adjusting their technology. The sen / ict directory aims provide a central location for all your favourite resources, as well as introduce you to new ones you might not have found otherwise for your child
Planned and On-The-Spot Curriculum Accommodations in the Inclusive Classroom
The Paraeducator's Toolbox: Practical Strategies to Support Students with Learning and Behavioral Challenges 5.7.2012 9:00 AM - 3:00pm
Deaf children’s gesture mismatches provide clues to learning moments
In a discovery that could help instructors better teach deaf children, a team of University of Chicago researchers has found that a gesture-sign mismatch made while explaining a math problem suggests that a deaf child is experiencing a teachable moment. Teachers also frequently use their own gestures to help students learn. They can illustrate how numbers in an equation can be grouped, for example, to help students understand how to make both sides of an equation have the same value. The deaf child watching the interpreter will then miss any messages that the teacher sends in gesture and not in
Noncoding gene linked to autism
Small player: Moesin, a protein that is involved in brain development, appears to be regulated by a noncoding RNA that has been implicated in autism. Researchers have identified a noncoding RNA, a genetic message that is not translated into a protein, th
Interview Kate Winslet Golden Hat Foundation
Kate Winslet discusses her inspiration for the Golden Hat Foundation.
Kris’ Camp
Kris' Camp is a non-profit organization first established in 1995 as a therapy intensive/respite camp for children with special needs (thus far focusing on children with autism/autistic-like challenges) and their families. It is motivated by three mutually enforcing goals: To provide therapy for special kids, and To provide respite and support for the siblings and parents of special kids. To provide theoretical and hands-on education and training to students, caregivers, and professionals working in the field of autism and other developmental disabilities. The camps are named after Kris Moore (5/30/1988 - 11/9/1993), a wonderful little boy who touched many people
HALO
MISSION Helping Autism Through Learning and Outreach is a non-profit organization supported by parents and professionals nationwide who are dedicated to the use of Soma® Mukhopadhyay's Rapid Prompting Method for improving academic success and communication for persons with autism and similar disorders. http://www.halo-soma.org
AudioBookCloud
AudioBookCloud:Your Online Audio Library is an online audio book library collection of streaming audio books for public libraries. A subscription to AudioBookCloud gives your patrons UNLIMITED remote access to your audio book collection. Like our TumbleBookLibrary and TumbleReadables collections, AudioBookCloud are launched from a link on your library or school website. Your patrons can access the entire collection from any computer with an Internet connection. Your audio are never all checked out, never on hold. As many people can listen to the same book at the same time as you like!!! Here's how it works. Once you have previewed AudioBookCloud and are
TumbleBookLibrary
TumbleBookLibrary is an online collection of TumbleBooks � animated, talking picture books which teach kids the joy of reading in a format they'll love. TumbleBooks are created by adding animation, sound, music and narration to existing picture books in order to produce an electronic picture book which you can read, or have read to you. The TumbleBookLibrary is a collection of licensed titles from children's book publishers such as Simon & Schuster, Chronicle Books, Candlewick Press, Charlesbridge Press, Harcourt, Little Brown, Walker & Company, Lerner Books, and HarperCollins Publishers, amongst others. The TumbleBookLibrary provides enrichment to students who are reading independently with a variety of
TumbleReadables
TumbleReadables is an online collection of read-along titles for elementary, middle school, and high school students which features adjustable online text and complete audio narration. Sentences are highlighted as they are being read and the pages turn automatically. The collection features chapter books, early readers, graphic novels, YA/teen novels, high interest/low level books for both middle school and high school students, plus classics of American and English literature. Read-Alongs are great for emergent, struggling, and reluctant readers, as well as being an excellent tool for ESL. They are also well received by strong and accomplished readers who are excited to follow
Fit Kids Playground
Our mission is to decrease the burden of childhood obesity and its associated potential chronic diseases in the Tampa Bay area. Through parental education, early childhood intervention through fun education and community awareness about the simple steps that can be implemented to teach healthy habits for life, the Tampa Bay community will be healthier for years to come.
Love and Logic ®
What Is Love and Logic All About? The Love and Logic Institute is dedicated to making parenting and teaching fun and rewarding, instead of stressful and chaotic. We provide practical tools and techniques that help adults achieve respectful, healthy relationships with their children. All of our work is based on a psychologically sound parenting and teaching philosophy called Love and Logic. What Is Love and Logic? Children learn the best lessons when they're given a task and allowed to make their own choices (and fail) when the cost of failure is still small. Children's failures must be coupled with love
France’s autism treatment ‘shame’
By Hugh Schofield BBC News, Paris In many countries the standard way of treating autistic children is with behavioural therapy - stimulating and rewarding them to develop the skills they need to function in society - bu
3 genes linked to autism spectrum disorders
Mutations in three new genes have been linked to autism, according to new studies including one with investigators at Mount Sinai School of Medicine. All three studies include lead investigators of the Autism Sequencing Consortium (ASC). The findings, in
OlliNEPAL at the SERC School
OlliNEPAL at the SERC School in Kathmandu
OlliNEPAL team at HDCS, Asha Bal Bikash Sewa (“Children’s Hope Development Service”)
OlliNEPAL team at HDCS, Asha Bal Bikash Sewa ("Children's Hope Development Service")
Asha Bal Bikash Sewa (“Children’s Hope Development Service”)
Asha Bal Bikash Sewa (“ABBS”) is a day care ministry for children with physical and learning difficulties under the age of 16. The ministry was founded by a Norwegian Missionary Family who were living and working in Nepal. They had a severely disabled child who was cared for by a Nepali woman, Tulsa Sharma. Tulsa is now the Co-Ordinator of the ABBS programme. The ministry has grown from a single centre in Dhobighat, attended by three children which opened in 1993, to operating three centres serving approximately ninty five children with dedicated staff and volunteers. Two centres are based in
OlliNEPAL at Kanti Children’s Hospital
OlliNEPAL's Alexis Clarkson at NEPTA sponsored event at Kanti Children's Hospital.
Kanti Children’s Hospital
MISSION To realize the vision, the Board has established its mission as the followings: To support GON plan to cut down children’s death rate by two-third by the year 2015. To be a leader in the field of quality child health education, training and research within the region. To develop professional exchange programs with other like-minded child health institutes within or outside the region. To exchange experience and knowledge with regional, zonal district hospitals and health centers on trainings and research. To provide expertise to government for the development of children’s hospital in the country. To set up a standard
Special Education and Rehabilitation Center for Disabled Children (SERC)
Established in 2009, and located in a peaceful neighborhood of midtown Kathmandu, SERC has a goal of providing most effective education to its students. All our students are either differently able or have individual special education needs. Every pupil in SERC has a specific and complex education needs, and our goal is to provide them with the best possible education methodologies and environment for them to flourish and bring out the best buried deep within. We believe that a perfect match between proper education methodology and rehabilitation therapies is the only way to go ahead. We, at SERC, try to
Nepal Physiotherapy Association (NEPTA)
Nepal Physiotherapy Association (NEPTA), which represents over 120 physiotherapists around Nepal and abroad. NEPTA works with governments and educational bodies to try to ensure that a quality physiotherapy service is available when and where you need it.
Mother pleads guilty in Ohio malnutrition death
CINCINNATI The mother of a 14-year-old girl who had cerebral palsy and weighed 28 pounds when she died last year pleaded guilty to involuntary manslaughter and other charges Friday in southwest Ohio. Angela Norman, 42, of Dayton, entered the pleas in Mon
Shoreham students “experience” autism for a day
Fourth grader Nick Donnelly counted along with the rest of his classmates seated around the small cafeteria table at Miller Avenue School in Shoreham Thursday.When they reached 15, they pulled off the colorful bandanas that covered their eyes. Nick strai
Adults with autism must be a focus
Grim news regarding the prevalence of autism continues to make big headlines ["Keep effort going to unravel autism," Editorial, April 2]. It is jarring and heartbreaking.However, we must remember that autism is not specifically a childhood disorder. My 1
Letter: Adults with autism must be a focus
Grim news regarding the prevalence of autism continues to make big headlines ["Keep effort going to unravel autism," Editorial, April 2]. It is jarring and heartbreaking.However, we must remember that autism is not specifically a childhood disorder. My 1
Another Mom Faces Murder Charge in Child with Cerebral Palsy’s Death
A New York woman has pleaded not guilty to an upgraded charge of second-degree murder in the death last summer of her 8-year-old disabled daughter. Veronica Cirella, of Plainview, was initially charged with manslaughter after authorities said she admitte
2q37 Deletion Syndrome: Searching for Answers
The day after my son Aiden was born, the doctors noticed that his features were different from what they considered “normal”. As a new mom this frightened me, as I did not know or understand what was happening with my brand new baby. A geneticist was qui
Parents charged in death of Texas boy, 10
TEXAS CITY, Texas, April 5 (UPI) -- The parents of a disabled 10-year-old Texas boy whose body was found in a box are now charged in his death, authorities say. Texas City police said Tina Louise Madrid, 42, of Texas City was arrested Wednesday and was h
Hundreds of genes involved in autism, sequencing studies say
New network: Nearly 40 percent of the mutated genes identified in one exome sequencing study of autism are part of an interconnected network of interacting proteins. The largest set of exome sequencing studies, which analyze the protein coding region of
Never give up hope
My son Joey has Autism and Epilepsy. We want the world to know that Autism looks different for every child. Parents can't give up hope; they are the ones that lead the journey their kids are on and it is up to them how successful their kids will be. They
Therapists Address Esophageal Atresia
The Esophageal Atresia Treatment Program at Children's Hospital Boston in Boston, MA, is one of the only programs in the country specifically designed to care for children with this condition. Setting itself apart from the rest, Children's Hospital Bosto
Dysphagia (Swallowing Problems)
Melissa Conrad Stöppler, MD, is a U.S. board-certified Anatomic Pathologist with subspecialty training in the fields of Experimental and Molecular Pathology. Dr. Stöppler's educational background includes a BA with Highest Distinction from the University
Releasing IEE Data Without Parent Consent
I am a private psychologist. I completed an IEE, then turned in the report to the district and parents. We held an IEP meeting to review the results. Can the district request that I release my raw test data, test protocols, and test materials to the scho
Bill Introduced regarding special needs trust
H.R. 4329 -This bill or resolution was assigned to a congressional committee on March 29, 2012, which will consider it before possibly sending it on to the House or Senate as a whole. To amend title 10, United States Code, to provide for the payment of monthly annuities under the Survivor Benefit Plan to a supplemental or special needs trust established for the sole benefit of a disabled dependent child of a participant in the Survivor Benefit Plan.
Recording catches teachers mistreating special needs student
Two Alabama teachers have been put on administrative leave after the mother of a 10-year-old student with cerebral palsy attached an audio recorder to the bottom of his wheelchair and caught them scolding him about drooling, among other things. Jose Sali
HHS Announces New Members of Interagency Autism Coordinating Committee (IACC)
Health and Human Services (HHS) Secretary Kathleen Sebelius announced today that she has invited 15 individuals to serve as public members on the Interagency Autism Coordinating Committee (IACC). The IACC is a federal advisory committee established by th
The Upside of Autism
When it comes to disorders of the mind, our society has a tendency to seek out the safety of clear-cut categories. We want there to be a bright line separating normal from abnormal, health from sickness. Alas, the human brain is a category buster, an org
Communicate with Me | Savarese
Last year Dr. Sanjay Gupta of CNN wanted to talk to me so much that he flew me to New York and got me a room at the fanciest hotel in the city, but ironically at my school, most kids choose not to talk to me at all. Why is that? Recently I surveyed some of my close friends and discovered that most people aren't sure how to talk freely to me, and I greatly decided to use their questions as the basis for this piece.
People With Autism May Be Better at Processing Information
People with autism have an enhanced ability to process information, which may explain the apparently higher-than-average percentage of people with autism who work in the information technology industry according to a team of researchers at the Institute of Cognitive Neuroscience at University College London. Dr. Nilli Lavie, Dr. Anna Remington and Dr. John Swettenham published their findings in the Journal of Abnormal Psychology. "Our study confirms our hypothesis that people with autism have higher perceptual capacity compared to the typical population. This can only be seen once the task becomes more demanding, with more information to process. In the more challenging
Two-Thirds of Kids With Autism Have Been Bullied: Study
FRIDAY, March 30 (HealthDay News) -- Nearly two-thirds of American children with autism have been bullied at some point in their lives, and these kids are bullied three times more often than their siblings without autism, a new survey finds. Bullying occ
School bans disabled girl from using walker
Kristi Roberts was stunned when school officials insisted that her disabled 5-year-old daughter switch to a wheelchair from the walker she’d been using for the previous two years. Little LaKay had battled cerebral palsy and epilepsy since she was born, a
OlliNepal Update – March 29
The Ollibean/OlliNepal team finished up their trekking outside of Pohkara, Nepal and are headed back to Kathmandu for 7 days where they will volunteer at a local school, meet with OLE Nepal ,Kanti Children's Hospital, and SEEDs Nepal. The team's internet access & email has been fairly limited, so we are all exicted hear their reports of working with children with a range of diffabilities and delivering communication tools/tablets. Can't wait to see the pictures and videos!
Kyoto prof rolls out omnidirectional wheelchair
A mechanical engineering professor has taken the wraps off his vehicle that is designed to become a next-generation wheelchair. As its formal name suggests, this is the Personal Mobile Vehicle, or Permoveh for short. Rolling it around at
Outsourcing to the Autistic Rather Than to India
Part of the reason autism has captivated Hollywood movie makers more than other development disabilities is that, for all the difficulties it brings those who have it, it also gives some of them the ability to perform uncanny feats of brainpower: effortl
Eric Dompierre barred from playing basketball with his high school team
Eric never let the fact that he was born with Down Syndrome stop him from playing. But now, he may have to cheer on his team from the bleachers. The association says because he's 19 years old, he isn't allowed to play in his senior year of high school. "I'd be sad if I couldn't play with them and not have them in my life. They want me to play, and I want to play with them," said Eric.
Ollibean Team Arrives in Nepal
The adventure begins! Beautiful start ! Greeted at Nepalese Airport by longtime friend, Topden Lama. Topden brought Tibetan scarves for the group
Helping Rare Disease Patients Find Their Voice
Stephen P. Spielberg, M.D., Ph.D., FDA’s deputy commissioner for medical products and tobacco, talks about lessons learned from the study of rare diseases. Patients often need advocates, and that can be especially true for people with a rare disease, who
National Council on Disability (NCD) Releases New Recommendations & Guidance on Managed Care for People with Disabilities
The National Council on Disability appreciates the need to reform health care and life-long services and supports delivered through Medicare and Medicaid programs to all citizens, including those with disabilities. The role of state agencies is the lynch
Employer Best Practices for Workers with Caregiving Responsibilities
In 2007, EEOC issued guidance explaining the circumstances under which discrimination against workers with caregiving responsibilities might constitute discrimination based on sex, disability or other characteristics protected by federal employment discr
Education Department Awards $24.6 Million in Grants To Support Teacher and Principal Development
U.S. Education Secretary Arne Duncan today announced the award of nearly $24.6 million for three grants to improve student achievement by increasing the effectiveness of teachers and principals. Funded under the Supporting Effective Educators Development
ADA Kits for Hotel Guests with Hearing Loss
Harris Communications makes it easy to be in compliance with the new ADA requirements for deaf and hard of hearing hotel guests. Effective March 15, 2012, the Federal Americans with Disabilities Act (ADA) changed the accessibility requirements for guest
AT&T Accused of Improperly Billing for Service for Deaf
The Justice Department has accused AT&T of knowing that a calling service it offered for the deaf was being used by Nigerian swindlers and others to steal from American merchants. The department, which intervened in a whistle-blower lawsuit in federal co
Student with Down’s Syndrome wins right to challenge high school placement
Belfast's High Court has granted the girl leave to seek a judicial review of the original decision A girl with Down's Syndrome has won the right to challenge the denial of a place at the high school of her family's
People with autism possess greater ability to process information
ScienceDaily (Mar. 22, 2012) People with autism have a greater than normal capacity for processing information even from rapid presentations and are better able to detect information defined as 'critical', according to a study published March 22 in the
Association on University Centers on Disabilities (AUCD)
The Association of University Centers on Disabilities (AUCD) is an incredible resource. The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. The AUCD network includes: 67 University Centers for Excellence in Developmental Disabilities (UCEDD), funded by the Administration on Intellectual Developmental Disabilities (AIDD) 52 Leadership Education in Neurodevelopmental Disabilities (LEND) Programs funded by the Maternal and Child Health Bureau (MCHB) 15 Developmental Disability Research Centers (IDDRC), most of which are funded by the National Institute for Child Health and Development (NICHD) AUCD Program Locations and Network
Whizz-Kidz
Our aim is to ensure that every disabled child has an opportunity to be something special…a kid. There are an estimated 70,000 disabled children and young people in the UK waiting for a wheelchair that fits their young lives. That’s where we come in. Whizz-Kidz provides disabled children with the essential wheelchairs and other mobility equipment they need to lead fun and active childhoods.
Hope Flies: Walk for Abby on Saturday, April 21, 2012
In Honor of Abby Sauerhoefer Date: Saturday, April 21, 2012 Time: Sign-in at 8:30 a.m.; walk starts at 10:00 a.m. Location: Broad Brook Elementary School, 14 Rye Street
NOAH
NOAH is a U.S. based nonprofit, tax-exempt organization that offers information and support to people with albinism, their families and the professionals who work with them. NOAH is operated by its members on a volunteer basis and is funded primarily by dues and contributions of its members. NOAH has also received grants from foundations and organizations for specific projects.
250 children living in nursing homes in Florida should get home care
Five year old Andi lives in a nursing home in Tampa because his family says the state won't pay for 24-hour care that would let him live with his two brothers and parents. A second lawsuit claims several thousand other children could end up in those facilities in Florida because of decisions by the state about their care.
Responding to People with Autism during Emergencies
Author Geoff Crist is the proud parent of a beautiful, energetic, curious, daughter, Sydney (aka Beanie), 11, who was diagnosed with moderate/severe autism when she was 18 months old. He is a career firefighter and nationally registered paramedic, has wo
Obama Signs ‘Thank You’ to Deaf Supporter
President Obama didn’t miss a beat last week when he encountered a group of deaf students along a rope line after his speech at Prince George’s Community College in Maryland. “I am proud of you,” signed Stephon, a 26-year-old coll
Mitochondrial Disease: Jeans for Genes
Many of us struggle with not knowing how we can make an impact on Rare Disease. Whether we are faced with the day-to-day difficulties of a rare disease itself, or we are passerby’s watching others’ demanding fight – many of us find ourselves scratching o
Physical Activity Proves a Vital Function in Cognitive Ability in Recent Studies
Physical activity among today’s youth in the United States has been on a steady decline while learning disorders like attention deficit hyperactivity disorder (ADHD) and others are on the rise. Scientists have yet to draw a direct causal link to physical
World Down Syndrome Day March 21!
Down Syndrome International presents the Global Video Event "LET US IN - I WANT TO LEARN!" in partnership with 68 countries for World Down Syndrome Day 2012.
Autistic Man, Jesse Saperstein Free Falls to End Bullying
Best-selling author, autism advocate and motivational speaker Jesse A. Saperstein is spreading an Anti-Bullying movement across America with his “Free-Falling to End Bullying in 2012” YouTube video hoping to put an end to torment in and out of the classroom.
Jesse A. Saperstein
Jesse A. Saperstein is a best-selling author, autism advocate and motivational speaker. He is considered one of the most respected leaders in the Anti-Bullying movement of his generation. Jesse also has a form of autism called Asperger's syndrome (AS). Individuals with Asperger's are impaired by a profound lack of social skills, common sense, and resistance to change in routine.
Catastrophic failures handling inquiry into report of abuse
In June 2005, Mrs Jenkins, who worked at the day centre as an administrative officer, witnessed one member of staff, referred to as Officer B, "yank" a woman with severe learning disabilities off the ground and push her into a toilet
Autism NOW: The National Autism Resource and Information Center
Autism NOW: The National Autism Resource and Information Center will be a dynamic and interactive, highly visible and effective central point of quality resources and information for individuals with Autism Spectrum Disorders (ASD) and other developmental disabilities, their families, and other targeted key stakeholders.
Police need training on autism
The arrest of an autistic teenager who could face four years in a Michigan prison shows the need to train police on dealing with autistic people, advocates say. In Maxson's case, Dungan said, he only became violent Feb. 9 when officers tried to handcuff him, and he was then stunned with a Taser and pepper-sprayed.
Differentiated Instruction in Today’s Classrooms
The IRIS Center is a national center that provides high-quality resources about students with disabilities for college and university faculty and professional development trainers. Visit IRIS’ website to find free, online, interactive training enhancemen
Understanding how social touch is processed differently by autistic people
A better understanding how social touch is processed differently by autistic and nonautistic people may lead to the development of strategies for family members and loved ones to touch people with autism in a way that soothes and fosters feelings of connection, rather than overwhelms.
Makayla Norman,14, was starved to death last year, attorney general calls for change
The Ohio attorney general is calling for change after learning a girl who starved to death was forgotten by the school system. Makayla Norman, 14, suffered from cerebral palsy and could not feed or care for herself. She died in Marc
iPad Summer Institute
Blog on the topic of assistive technology, eLearning, mind mapping, project management, visual learning, collaborative tools, and educational technology Presenters Brian S. Friedlander, Ph.D. & Christine Besko-Maughan, M.S., ATP July 10, 2012 Enhancing A
Never Lose Hope
Here is a letter to an individual who believed my children wouldn’t be successful. This is living proof that as parents, we are wiser than others who think they know better. I met you last year at a conference. This conference was held by a local organiz
Are These Good Annual Goals?
Is this annual goal written correctly for a high school freshman? Judy will improve reading comprehension skills by using graphic organizers to access the curriculum with 70% accuracy per quarter. 1. Judy will summarize or bullet important information in
University Center for Excellence in Developmental Disabilities (UCEDD) Georgetown University
The mission of the University Center for Excellence in Developmental Disabilities (UCEDD) is to promote self-determination, productivity, independence and inclusion of individuals with developmental and other disabilities across the life span, and in all aspects of community life. The Developmental Disabilities Assistance and Bill of Rights Act of 2000, P.L. 106-402, authorizes the University Centers for Excellence in Developmental Disabilities, Education, Research and Service (UCEDD). The University Centers for Excellence in Developmental Disabilities, Education, Research and Service (UCEDDs) are funded through the Administration on Developmental Disabilities (ADD) to provide leadership, advise federal, state and community policy makers about, and promote opportunities for people
Autistic Student Advocates for Herself, Other Autistics
“Because we see autism and other neurodevelopmental or neurological differences, conditions or disabilities as a natural variation of human diversity in terms of neurological diversity,” Brown says, “that means there’s nothing defective, wrong or diseased or broken. Therefore there’s no reason for a fix or for a cure.”
Nordic Network on Disability Research
NNDR is a multidisciplinary network of disability researchers interested in cultural, societal and environmental dimensions of disability and marginalization. The purpose of NNDR is to advance research and development in the field of disability. NNDR provides a forum for researchers, particularly from the Nordic countries, to meet, present and discuss their research,, as well as encouraging Nordic and international exchange and collaboration. NNDR was established in Fredrikshavn, Denmark in 1997. In just a few years it has grown into a large network of disability researchers, reflecting the growing interest in and importance of disability research in the Nordic countries. The
Kathleen McClaskey
EdTech Evangelist, innovative leader, consultant, presenter and trainer of tools! Truly amazing resources for Founded on the vision that every child should have the opportunity to develop a foundation of 21st Century learning skills, EdTech Associates provides services to empower all students to succeed.
UC Davis MIND Institute
The UC Davis MIND Institute (Medical Investigation of Neurodevelopmental Disorders) is a collaborative international research center, committed to the awareness, understanding, prevention, care, and cure of neurodevelopmental disorders.
National Primary Immunodeficiency Resource Center
INFO4PI is designed for patients and their families, physicians, researchers, government officials, pharmaceutical companies, industry, and the general public to be able to quickly and seamlessly access information on Primary Immunodeficiency diseases and to realize earliest precise diagnoses, appropriate treatments and sometimes cures of the more than 150 different PI diseases affecting more than 10,000,000 children and adults worldwide.
The Center for Courageous Kids
The Center for Courageous Kids, also known as CCK, is a world class medical camp located in Scottsville, KY, serving children and families from across the country who are living with a variety of medical challenges. We are open year round and can host 120 kids at a time. When you add our counselors, volunteers, trained Programs and Medical staff, our mascot, Dr. Cubby the Courageous Lion, and our top notch facility, you start to see just how "We Prescribe Fun!" What makes The Center for Courageous Kids spectacular? *We are a 20 million dollar facility. *Our 168 acre campus encompasses an onsite
The Autistic Global Initiative (AGI)
The Autistic Global Initiative (AGI), a program of ARI, is comprised of a committee of adults diagnosed with autism spectrum conditions. Our members hail from all regions of the United States, representing the broad life span of autistic experience and expression. We are active as professionals and consultants in many fields within the autism community, including education, social work, medicine, employment, fitness and wellness, rehabilitation counseling and the visual and graphic arts.
Understanding Our Differences
In 1978, a group of parents of children with disabilities in Newton, Massachusetts founded Understanding Our Differences (UOD) as a nonprofit organization to increase information, understanding, and acceptance of people with disabilities and individual differences. The Understanding Our Differences disability awareness curriculum has grown rapidly in recent years and has been disseminated to more than 200 schools and youth organizations nationwide. More than 27,000 elementary school students and some 8,000 adult, high school and college students have participated as trained, volunteer instructors. The nationally recognized, award-winning program uses a hands-on, participatory curriculum to foster respect, tolerance, and compassion in elementary
Family launches High Court challenge for inclusion
"This case is about inclusion. "It's about the right to access mainstream education in its fullest form, not some kind of sop to the legislative requirement by saying: 'Here's a mainstream school, you can go to that one'." Her legal team argued that the decision was a breach of human rights and special educational needs legislation. Read more on BBC News
School principal reprimanded told to work from home as a result of physical altercation with student
In April 2011 before a classroom of students and a security camera, Gray became violent with a special education student, according to a written reprimand in his personnel file. “During this incident you escalated the situation, became physically violent, grabbed the child by the shirt, and yanking the child out of the classroom and down the hallway,” reads York’s reprimand.
Deaf children four times more likely to be mistreated at school and have mental health issues
Researchers found that deaf children who cannot make themselves understood within their family are four times more likely to have mental health disorders and more likely to suffer mistreatment at school than deaf children who can communicate with their family members, according to a report published in March 15th issue of The Lancett.
The Lancet:The health of deaf people: communication breakdown
Andrew Alexander discusses how deaf people are often alienated from accessing the UK health-care system and what needs to be done to change this.
New ADA accessibility requirements took effect March 15
For the first time in history public fitness centers, public swimming pools, recreational facilities, parks, golf and mini-golf courses, detention facilities and courtrooms, playrooms and amusement rides must adhere to the governments accessibility requirements. The rules also clarify issues that have come up in the 20 years regarding bathroom dimensions, reach ranges and accesible routes.
Reading Club | ‘Navigating Love and Autism’
On Dec. 26, 2011, the front page of The New York Times featured an extraordinary article. Part of a series by Amy Harmon chronicling the coming of age of a generation of autistic youths, the article, “Navigating Love and Autism,” told the story of Jack R
Best Buddies Friendship Walk, April 21, 2012 : 12:00 pm-4:00 pm
The Best Buddies Friendship Walk is a fun-filled community fundraiser to support your local Best Buddies programs of inclusion. 4/21/2012 12:00 pm - 4:00 pm . Our friendship, integrated employment and leadership programs educate people with and without intellectual and developmental disabilities (IDD) to be advocates for social inclusion in your community. Walk Registration: No Fees Register for the Friendship Walk and begin fundraising for Best Buddies Florida! Cotanchobee Fort Brooke Park 601 Old Water Street Tampa, FL 33602 For more information Participant Registration Form Join Ollibean's Friendship Walk Team
New telemetric system safe and effective for ICP measurement
A new implantable sensor device provides a less-invasive alternative for monitoring pressure within the skull (intracranial pressure, or ICP), suggests a pilot study in Operative Neurosurgery, a quarterly supplement to Neurosurgery, official journal of t
The Center on Human Policy, Law, and Disability Studies
The Center on Human Policy, Law, and Disability Studies (CHPLDS) is an expansion of the Center on Human Policy, which was founded by Dr. Burton Blatt in 1971. The Center is a network of academic programs, centers, student organizations, and affiliated faculty whose research, teaching, and advocacy seeks to promote the rights of people with disabilities locally, nationally, and globally, and to facilitate a critical examination of disability as an aspect of diversity in society.
National Disability Rights Network
NDRN’s mission is to promote the integrity and capacity of the P&A/CAP national network and to advocate for the enactment and vigorous enforcement of laws protecting civil and human rights of people with disabilities. The Protection and Advocacy (P&A) network was created by Congress after the Willowbrook scandal unearthed the horrible conditions in that institution. Read more about the Network's history here. The newly created P&A agencies began to realize that in order to be able to advocate for their clients, they needed a national voice in Washington, DC for their own protection, survival and growth. This was especially true, as soon
TASH Responds to AASA Position Supporting Restraint and Seclusion in Schools | TASH
Last week, the American Association of School Administrators issued an unsubstantiated, ill-informed and reckless report in which it voiced support for restraint and seclusion use on children in our schools. This report gained much attention through e-mail circulation and national news reports. TASH has responded in order to bring clarity and truth to the conversation. http://tash.org/tash-responds-to-aasa-position-supporting-restraint-and-seclusion-in-schools/ via TASH Responds to AASA Position Supporting Restraint and Seclusion in Schools | TASH.
University Center for Excellence in Developmental Disabilities at Georgetown University
The mission of the University Center for Excellence in Developmental Disabilities (UCEDD) is to promote self-determination, productivity, independence and inclusion of individuals with developmental and other disabilities across the life span, and in all aspects of community life.
A dark legacy of forced sterilizations
Sterilization victims seek compensation STORY HIGHLIGHTS California forcibly sterilized 20,000 people from 1909 to 1963 The goal was to rid society of people labeled "feeble-minded" or "defectives" California's response to victims stands in stark contras
Police assaulted boy with autism
Metropolitan Police (Met) officers assaulted a 16-year-old boy with severe autism by forcing him into handcuffs and leg restraints during a school trip, the High Court has ruled. The judge said the boy, now 19, also had his human rights breached. The boy, who also has epilepsy, was subjected to disability discrimination and false imprisonment, it was ruled.
Study may help understanding multiple sensory stimuli processing in autism
“Statistically optimal combination of multiple sensory stimuli has been well documented in humans, but many have been skeptical about this behavior occurring in other species,” said neuroscientist Anne Churchland, who led the study appearing in the March 14 issue of the Journal of Neuroscience. “Our work is the first demonstration of its occurrence in rodents.” People with autism are often unable to choose which sensory stimuli to pay attention to and which to ignore. “By observing this behavior in rodents, we have a chance to explore its neural basis – something that is not feasible to do in people,” Churchland explained.
Help for Families with ASD
Researchers at the University of Utah have created a program that helps children with autism spectrum disorders (ASD) focus on building their skills and utilizing an aptitude for visual-spatial thinking, computers and other electronic media. Cheryl Wrigh
Broad Institute of MIT and Harvard
The Eli and Edythe L. Broad Institute of Harvard and MIT is founded on two core beliefs: This generation has a historic opportunity and responsibility to transform medicine by using systematic approaches in the biological sciences to dramatically accelerate the understanding and treatment of disease. To fulfill this mission, we need new kinds of research institutions, with a deeply collaborative spirit across disciplines and organizations, and having the capacity to tackle ambitious challenges. The Broad Institute is essentially an “experiment” in a new way of doing science, empowering this generation of researchers to: Act nimbly. Encouraging creativity often means moving quickly,
Stephen Hawking to Guest Star on ‘The Big Bang Theory’
It’s a dream come true for “The Big Bang Theory:” world renowned British physicist and cosmologist Stephen Hawking will guest star on the sitcom early next month. A press release put out by CBS said Hawking, 70, will “share his beautiful mind with his most ardent admirer, Sheldon Cooper” on the show’s April 5 episode.
Research on Rare Bone Disorder Reveals New Insights into Autism
“There is growing evidence that many autistic people have related genetic defects, or defects that are exacerbated by this one,” said Yu Yamaguchi, M.D., Ph.D., professor in the Sanford Children’s Health Research Center at Sanford-Burnham. Children with
Don Johnston Announces Snap&Read—A Simple Toolbar That Reads Any Text On-screen
Snap&Read reads text in a Flash website “A lot of districts are striving for Universal Design for Learning, and Snap&Read is a step in the right direction.” - Ruth Ziolkowski, president, Don Johnston Incorporated Don Johnston Incorporated today announced
Institute on Human Development and Disability
The Institute on Human Development and Disabililty (IHDD) has been Georgia’s University Center for Excellence in Disability Research, Education and Service (UCEDD), and ranks as one of The University of Georgia’s oldest continuously-funded federal programs. The IHDD works with people who have disabilities and others, to ensure that all people can achieve their highest capacity and quality of life.
Activists Seek To Curtail Restraining Students
WASHINGTON (AP) — Tens of thousands of students, most of them disabled, are strapped down or physically restrained in school, and disability advocates hope that a new Education Department report detailing the practice of "seclusion and restraint" will sp
Language and autism
More and more researchers, it seems to me, are trying to peek into the minds of children with autism by analyzing how they put together a sentence. Language impairments are one of the most common features of autism. But linguists have long debated the pr
Cellphone Video Provides Proof of Bullying Teacher
A special education student resorted to using his cellphone to record video that proved his teacher was bullying him. Such incidents are, unfortunately, far from uncommon. “Statistically about 1 to 2 percent of teachers are actually involved in bullying
Clinical research: Gut bacteria prevalent in autism
Common colonizer: Sutterella wadsworthensis is present in the intestines of children with autism, where it might displace other beneficial bacteria. A certain type of bacteria is prevalent in the intestines of children who have both autism and gastrointe
The Flutie Family Tackles Autism, National Autism Awareness Month
Doug Flutie Sr., 49, reaches his goals on the field and off. "For whatever reason, people have the feeling I can get things done," the Heisman Trophy winner says. Maybe they remember the former quarterback's famous heart-stopping, last-second Hail Mary p
Deafness penetrates more rapidly and deeply into the brain than previously thought
Portions of a songbird's brain that control how it sings have been shown to decay within 24 hours of the animal losing its hearing. The findings, by researchers at Duke University Medical Center, show that deafness penetrates much more rapidly and deeply
Cognition and behavior: Study probes speech processing
Hidden meaning: Children with autism are less able than controls are to detect the shifts in pitch that can transform a neutral statement into a question. Children with autism activate more brain regions than controls do when listening to tonal inflectio
U.S. report finds inequalities in courses and discipline for minority students
by Sally Holland , CNN (CNN) African-American boys and girls have higher suspension rates than their white or Hispanic peers, according to new data released by the U.S. Department of Education's Office of Civil Rights on Tuesday. The report looks at race
Burton Blatt Institute chairman to testify before National Council on Disability on future of disability law and policy
NCD is an independent federal agency that makes recommendations to the president and U.S. Congress to enhance the quality of life for all Americans with disabilities and their families. The public may join the meeting in a listening-only capacity (with t
Racial disparities found in school arrests
(L to R) Missouri Governor Jay Nixon, U.S. Secretary of Education Arne Duncan, and U.S. Secretary of Homeland Security Janet Napolitano answer questions from students following an earthquake drill at Carnahan High School of the Future in St. Louis on Apr
Special Olympics Coach Accused Of Having Sex With High School Participant
MOUNT PLEASANT, S.C. (AP) — A teaching assistant from Cayce has been charged with having sex with one of his students while in Mount Pleasant for the Special Olympics. Twenty-nine-year-old Cornelius Davis is a special education teaching assistant at Broo
Compression Garments Designed by SPIO Now Offered by Rehabmart.com
“These discrete garments are very comfortable in all types of weather due to the wicking feature of the lightweight and breathable Lycra fabric, and there is no 'break-in' period..." Rehabmart.com, an online e-commerce company that sells rehabilitation a
FREE 2012 Accessible Technology Webinar Series
The Great Lakes and Pacific ADA Centers on behalf of the ADA National Network are pleased to announce the 2012 Accessible Technology Webinar Series.
Report: Minority students face harsher punishments
(03-05) 21:04 PST WASHINGTON, (AP) -- A report to be released Tuesday by the Education Department raises questions about whether students of all races are disciplined evenhandedly in America's schools. An early snapshot of the report says that more than
LADDERS
The LADDERS program is under the direction of Dr. Margaret L. Bauman. Dr. Margaret L. Bauman is a distinguished pediatric neurologist, who is greatly respected for the outstanding clinical care she provides to children and adults, and for her research and teaching on developmental disorders.
A D A Audio Conference Series
The ADA Audio Conference Series provides in-depth information on the Americans with Disabilities Act (ADA). This program is designed to enhance an individual's existing knowledge base or facilitate continued learning regarding regulations and trends under the ADA.
Children’s Hospital of Philadelphia apologizes to Rivera family over kidney transplant flap
(CBS) The Children's Hospital of Philadelphia has apologized to the family of Amelia Rivera, the girl whose family alleged she was denied a life-saving kidney transplant because she was disabled. "As an organization, we regret that we communicated in a m
A Deaf Son Struggles to Be Heard in ‘Tribes’
A family dinner in the beginning of Nina Raine's "Tribes" tells the audience all it needs to know about the crisis of understanding that plagues the characters in this bright and boldly provocative drama. Two parents and three twenty-something children s
National Database for Autism Research
Announcer: Unlocking the mysteries of autism and providing new hope for the families and individuals facing its challenges are missions shared by dedicated scientists across the country and around the globe. But despite an overwhelming need for answers, this disorder has not given up its secrets easily, as illustrated by Nancy Minshew, a leading autism researcher at the University of Pittsburgh. Nancy Minshew: Autism is so complex that there's not going to be one thing.
Judy Endow
Judy Endow, MSW, maintains a private practice in Madison, Wisconsin, providing consultation for families, school districts and other agencies. Besides having autism herself, she is the parent of three now grown sons, one of whom is on the autism spectrum. Judy does workshops and presentations on a variety of autism-related issues, is part of the Wisconsin DPI Statewide Autism Training Team and a board member of both the Autism Society of America, Wisconsin Chapter and the Autism National Committee. In addition, Judy is a member of the Autistic Global Initiative (AGI), a program of Autism Research Institute.
IEP Essentials Webinar
Thank you for supporting our mission. When a child qualifies for special education services, federal law requires the development of an Individualized Education Program. The IEP serves as a roadmap for services, including important information about a ch
Tool for Navigating the Hidden Social Curriculum for Individuals with Autism
Judy Endow is magical in her approach to helping so many living with autism. "Learning the Hidden Curriculum: The Odyssey of One Autistic Adult" is a must-read book for those living with autism, family members and those who want to know more about autism. Even if you think you are right, never argue with a police officer
U.S. Department of Education Announces Overhaul of IDEA Compliance System; More Emphasis on Student Outcomes
On Friday, the U.S. Department of Education, Office of Special Education Programs (OSEP) announced that it will revamp IDEA’s compliance system to better emphasize student outcomes, such as academic performance and graduation rates for students with disa
Large eye-tracking study highlights diversity of autism
Gaze mapping: Researchers measured the amount of time children spent looking at eyes (red), mouths (green), bodies (blue) and objects (yellow) when watching scenes from Welcome to the Dollhouse. Children with autism who have different verbal and intellec
1Voice – Communicating Together
"A world where the voice of every child and adult, however they communicate, is listened to and heard" 1Voice takes a family and social perspective on communication and recognises the great need for adult role models to inspire children and families alike. 1Voice promotes families supporting each other to overcome the isolation that being unable to speak can bring.
Accessible Leeds
Nathan Popple is a 14 year old, self-advocate and editor of Accessible Leeds, this is the description of his incredible site. I have cerebral palsy so I use a wheelchair and I also use a communication aid to help me speak. I am a Whizz Kidz Ambassador and I support the charity 1voice. I believe strongly in fairness and do not think that the world should be able to disable people by not providing access to places.
Boy charts city’s disabled access
Nathan was inspired to create his website after finding access to a bowling alley blocked by stairs. Despite the challenges he faces, Nathan's disability does not stop him from leading a full life. What does occasionally stand in his way is more mundane - steps, staircases and narrow shop aisles.
Medical Champion© Wiffle Ball Tournament August 10th and 11th
With an innovative and fun twist on fundraising, event chairs James Ramos and Derek Alvarez, along with their committee, will host the Fourth Annual Wiffle Ball Tournament on August 10th at the Don CeSar Beach Resort on St. Pete Beach. Join for them for an All American outing... Wiffle Ball Tournament, Last Days of Summer Beach Bash & Barefoot Dance Party. To help an All-American cause... Children with Allergies & Primary Immune Deficiency. Friday, August 10th 4 P.M. - Sunset Pre-registration, Home Run Derby Contest and Beachside Live Music The Don CeSar Beach Resort St Petersburg Beach Saturday, August 11th
Lloyd Coleman, deaf teen composer’s Olympic theme
Lloyd Coleman, 18, who is also visually impaired, recently won a place at London's Royal Academy of Music. "It's called Breaking the Wall because, after Giles and I started talking about marathons and how runners hit the wall and have to overcome humungous challenges, we realised there were parallels with the kind of challenges disabled people face," he said.
KIT – Kids Included Together : Recognizing the Ability in Every Child
Kids Included Together (KIT) is a registered 501(c)(3) non–profit organization founded in San Diego, California in 1997. The mission of Kids Included Together (KIT) is to provide learning opportunities that support recreation, child development and youth enrichment programs to include children with and without disabilities. KIT’s goals are to enrich the lives of all who participate and to increase understanding and acceptance of disabilities as a natural part of life. We invite you to explore our site and learn more about our work with out–of–school time programs across the United States and internationally.
Motor Skills and ASD
Children with autism often have problems developing motor skills, such as running, throwing a ball, or even learning how to write. Scientists didn't know whether those difficulties ran in families or were linked to autism. New research at Washington Univ
The Smart List 2012: 50 people who will change the world
Welcome to the first Wired Smart List. We set out to discover the people who are going to make an impact on our future --by asking today's top achievers who, emerging in their field, they'd most like to have a leisurely lunch or dinner with. So we approached some of the world's brightest minds
Hannah’s Buddies Charity Classic, Support the Fight Against SMA, March 30-31
The Hannah's Buddies Charity Classic began in 2000 with John Bell of Widespread Panic deciding to help his goddaughter Hannah and tens of thousands of children in their fight against SMA. Today, the golf tournament, silent/auction and concert lineup attracts more than 2,000 participants and has raised nearly $2 million for SMA research. What is SMA? Spinal Muscular Atrophy is a neuromuscular disease that affects between 1 in 6,000 and 1 and 20,000 births. Over time, SMA causes muscles to become weak and considerably smaller. On average, 1 in 40 people are genetic carriers. Sponsor/Donate If you are unable to attend the
Williams Syndrome Association
The WSA is the most comprehensive resource for people and families living with Williams syndrome as well as doctors, researchers and educators. The WSA provides resources, support and the latest medical information to help your child today and throughout his/her life. By joining, you’ll become part of the largest organization dedicated to improving the lives of people living with WS. No matter the age or stage of your family member with WS, you are not alone. The WSA offers support and will help you navigate the challenges from diagnosis through adulthood.
State Obligations | UNESCO
Like all human rights, the right to education imposes three levels of obligation on States: The obligation to respect, protect and fulfil each of the “essential features” (availability, accessibility, acceptability, adaptability) of the right to education. The obligation to respect requires States to avoid measures that hinder or prevent the enjoyment of the right to education. The obligation to protect requires States to take measures that prevent third parties from interfering with the enjoyment of the right to education. In turn, the obligation to fulfil incorporates an obligation to facilitate and to provide. Facilitation requires States to take positive measures
Extreme Kids & Crew
Extreme Kids & Crew is a parent-run non profit dedicated to causing a great scene for Brooklyn’s kids with disabilities, their families and friends. They are all about creating a warm and encouraging atmosphere where children and adults of every ability and disability can relax, have fun, and enjoy the experience of being deeply accepted and celebrated for the people that they are. We offer workshops in the arts and movement with insightful and practiced teachers, parent education nights, free family concerts, and much more.
A ‘Fountain’ of Kudos for First-Time Novelist Eliza Factor
The Fort Greene resident is not only about to release her first book, “The Mercury Fountain,” but she wrote the novel while raising three kids — one of them with cerebral palsy and autism — and starting Extreme Kids and Crew, a center catered to the needs of families with disabled children.
2012 Accessible Technology Webinar Series
All sessions are free and scheduled for 2-3:30pm Eastern/1-2:30pm Central/12-1:30pm Mountain/11-12:30pm Pacific utilizing the ElluminateLive! webinar platform. The Great Lakes and Pacific ADA Centers on behalf of the ADA National Network are pleased to announce the 2012 Accessible Technology Webinar Series. Electronic information and communications technology have become essential tools in all areas of our lives and working environments today, and are particularly important to people with disabilities by providing equal access to the workplace and social media. The 2012 webinar series will explore some of the latest technological trends and their accessibility to people with disabilities. Registration is available
Choosing to Have a Child With Down Syndrome
If our culture assumes that across the board, a child with a disability is defective, and a problem best avoided, then we’re encouraging people who want to be parents to make a decision based on bad information. And having an abortion because of bad information is a preventable tragedy.
P2PUSA::Parent to Parent USA
Emotional & Informational support for families of children who have special needs.For over 36 years Parent to Parent programs across the country have been providing emotional and informational support to families of children who have special needs most notably by matching parents seeking support with an experienced, trained 'Support Parent'.
Join the conversation.
What's one misconception you want to change?
Institute on Disabilities at Temple University, University Center for Excellence in Developmental Disabilities
A society where all people are valued and respected, and where all people have the knowledge, opportunity and power to improve their lives and the lives of others. MISSION The Institute on Disabilities leads by example, creating connections and promoting networks within and among communities so that people with disabilities are recognized as integral to the fabric of community life.
The Arc of Pennsylvania
The Arc is the largest advocacy organization in the United States for citizens with intellectual and developmental disabilities, and their families. The Arc of Pennsylvania is the state chapter of The Arc. For more than 60 years, The Arc has been working to include all children and adults with intellectual and developmental disabilities in their community. We promote active citizenship and inclusion in every community setting. The Arc of Pennsylvania has been dedicated to the inclusion of children with disabilities in regular education classrooms since its founding in 1949. Parents wanted to raise their children at home rather than institutionalize
ALEC Equips Emergency Responders to Deal with Autism
In 2007, a child wandered off from his home in Massachusetts early in the morning. Someone called 911 to report the child alone at a bus stop. When firefighters responded, they found that the child was non-verbal. Thanks to the ALEC program, the firefigh
UNESCO | United Nations Educational, Scientific and Cultural Organization
UNESCO works to create the conditions for dialogue among civilizations, cultures and peoples, based upon respect for commonly shared values. It is through this dialogue that the world can achieve global visions of sustainable development encompassing observance of human rights, mutual respect and the alleviation of poverty, all of which are at the heart of UNESCO’S mission and activities. The broad goals and concrete objectives of the international community – as set out in the internationally agreed development goals, including the Millennium Development Goals (MDGs) – underpin all UNESCO’s strategies and activities. Thus UNESCO’s unique competencies in education, the sciences,
Friend 2 Friend Social Learning Society
The Friend 2 Friend Social Learning Society is a British Columbia-based not-for-profit organization formed in 2002 for the purpose of promoting mutually rewarding friendships between children with autism spectrum and related social-communicative disorders and their peers, classmates and siblings. Our goal is to help children develop to the best of their abilities through the play and socialization that results from these friendships. We do this by providing direct services for children by visiting schools and other community settings to explain the sensory and communication challenges of autism spectrum and related disorders. We use a fun and interactive approach while teaching
Landau-Kleffner Syndrome
Landau-Kleffner syndrome, or acquired epileptic aphasia, is a rare childhood disorder of the central nervous system that affects boys two to three times more than girls. The syndrome is characterized by seizures and the gradual or sudden inability to und
Douglas Biklen: “Begin by presuming competence”
"Presuming competence is nothing less than a Hippocratic oath for educators. " Douglas Biklen
The Golden Hat Foundation
The Golden Hat Foundation is a non-profit organization dedicated to eliminating barriers for people with autism around the world, and creating an environment that holds these individuals as intellectually capable. The mission of the Golden Hat Foundation is the establishment of innovative campuses that offer people with autism the opportunity to learn to communicate effectively, receive an education, job training and enjoy recreational activities, all within a supportive social network. When given a suitable education and the means to communicate effectively, people with autism can truly realize their dreams.
On To College : Autism Research Institute
I want to live where I feel safe and free to be myself without the stress of having to act normal. Home is safe because my mom and dad make me feel hopeful that changing people's attitudes toward nonspeaking autists is possible. As I go to college, I am hoping to create a really supportive community of fresh-thinking people who view me as caring and created as equal.
Ralph James Savarese | essayist, poet, scholar, and activist
Ralph James Savarese is the author of Reasonable People: A Memoir of Autism and Adoption (Other Press 2007), which Newsweek called a “real life love story and a passionate manifesto for the rights of people with neurological disabilities.” It won the Independent Publishers Gold Medal in the category of health/medicine/nutrition, and a chapter was selected as a “notable essay” in the Best American Essays series of 2004.
Planet of the Blind: D.J. Savarese, My Friend, Our Ally in Disability Rights
I am a lucky man. Although I bear the emotional scars of a tough childhood—a disability childhood, one with bullying, cruel teachers, lots of loneliness—I have had the startling fortune to meet magnificent people throughout my life.
SPREAD THE WORD TO END THE WORD 03.07.12
Respectful and inclusive language is essential to the movement for the dignity and humanity of people with all disabilities. However, much of society does not recognize the hurtful, dehumanizing and exclusive effects of the word “retard(ed).” It is time to address the minority slur “retard(ed)” and raise the consciousness of society to its hurtful effects.
Bullying and ASD
The Interactive Autism Network (IAN) Project has launched a national survey to study the impact of bullying on children with autism spectrum disorders (ASD). Bullying, a pervasive problem among youth, has attracted the national spotlight over the past ye
I Believe by Will Scheutze
They had no idea how much I know and I didn’t think they believed I was smart. They thought that functional was more important for me to learn than academics. I didn’t like that, so I never did good work and so they thought I couldn’t sort forks. I know how functional is important in life, but nobody knows how important the academics are to me. I just want to be able to learn more and be able to go to college. I think I can do that. My teachers made me believe I can do that. I never believed
The National Institute on Deafness and Other Communication Disorders (NIDCD)
The National Institute on Deafness and Other Communication Disorders (NIDCD) is one of the Institutes that comprise the National Institutes of Health (NIH).NIH is the Federal government's focal point for the support of biomedical research. NIH's mission is to uncover new knowledge that will lead to better health for everyone. Simply described, the goal of NIH research is to acquire new knowledge to help prevent, detect, diagnose, and treat disease and disability. NIH is part of the U.S. Department of Health and Human Services. Established in 1988, NIDCD is mandated to conduct and support biomedical and behavioral research and research training
Dean Biklen honored in Kuwait with UNESCO/Emir Jaber al-Ahmed al-Jaber al-Sabah Prize
The United Nations Educational, Scientific and Cultural Organization (UNESCO) will present Syracuse University's School of Education Dean Douglas Biklen with the 2011 UNESCO/Emir Jaber al-Ahmed al-Jaber al-Sabah Prize, honoring him for his work promoting
CART Interpreting
The Alexander Graham Bell Association for the Deaf and Hard of Hearing (A.G. Bell) filed two amicus briefs within days of each other in federal courts of appeal supporting the right of students who are deaf and hard of hearing to receive Communication Ac
Challenger Division
The Challenger Division was established in 1989 as a separate division of Little League to enable boys and girls with physical and mental challenges, ages 4-18, or up to age 22 if still enrolled in high school, to enjoy the game of baseball along with the millions of other children who participate in this sport worldwide. Today, more than 30,000 children participate in more than 900 Challenger Divisions worldwide.
The Miracle League
The Miracle League is proud to serve over 200,000 children and young adults with disabilities.Presently there are 250 Miracle League Organizations across the country including Puerto Rico, Canada and our newest member in Australia. Our goal is to offer this program to every city in the country so children, young adults and adults alike with special needs around the globe will have this same opportunity to play baseball. The Miracle League believes; “Every Child Deserves A Chance to Play Baseball.” To find a league or start a league
The Inclusive Classroom 02/24 by SpecialNeedsTalkRadio
The Inclusive Classroom 02/24 by SpecialNeedsTalkRadio | Blog Talk Radio.
Genomics, Intellectual Disability, and Autism
During the past decade, advances in genetic research have enabled genomewide discovery of chromosomal copy-number changes and single-nucleotide changes in patients with intellectual disability and autism as well as in those with other disorders. These technological advances — which include array comparative genomic hybridization (CGH), single-nucleotide-polymorphism (SNP) genotyping arrays, and massively parallel sequencing — have transformed the approach to the identification of etiologic genes and genomic rearrangements in the research laboratory and are now being applied in the clinical diagnostic arena.
Mock my pants, not my sister
The following was written by Brian Skotko , MD, MPP, a Physician at Children’s Hospital Boston’s Down Syndrome Program. It’s in response to a feature in GQ magazine that used insensitive language. Go ahead, GQ, and mock my blue whale-emblemed Nantucket-red pants. Laugh if you want at the loud argyles that I prefer to wear with my black suit. I don’t even care if you dismiss the sexy pink polka-dotted tie that I like to wear with my blue-checkered shirt in clinic. But, whatever you do, do not mess with my sister.
Brian Skotko
A Board-certified medical geneticist at Children's Hospital Boston, Massachusetts General Hospital, Brigham & Women's Hospital, and Dana Farber Cancer Institute, Dr. Skotko has dedicated his professional energies toward children with cognitive and development disabilities. He is one of the specialists in theDown Syndrome Program at Children's Hospital Boston. In 2001 he co-authored the national award-winning book, Common Threads: Celebrating Life with Down Syndrome and, most recently, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. He is a graduate of Duke University, Harvard Medical School, and Harvard Kennedy School. Dr. Skotko recently authored major research on how physicians deliver
Trailblazers
Trailblazers is a national network of more than 400 young disabled people who work together on a national and local level to highlight and address the issues that are important to them. We aim to fight the social injustices experienced by young disabled people and to ensure we can gain access to education, employment and the services we require. We are part of the Muscular Dystrophy Campaign, the leading UK charity focusing on muscular dystrophy and other related conditions. Our mission To fight against the social injustices experienced by young people living with muscle disease or a related condition. Our
World Institute on Disability
The mission of the World Institute on Disability (WID) in communities and nations worldwide is to eliminate barriers to full social integration and increase employment, economic security and health care for persons with disabilities.
Think Inclusive — Where education meets advocacy…
Think Inclusive is dedicated to inclusive schools and communities for everyone. Think Inclusive is a wonderful resource that promotes the full and authentic inclusion of people with disabilities in their school and communities through education and advocacy. Think Inclusive's founder, Tim Villegas, has created a bridge between educators, parents, and advocates to promote ideas, innovation and inspiration to change our world to be more accepting and value each and every human being. Check out Tim's guest posts for Ollibean The Case for Inclusion: Does All Really Mean All? , The Case for Inclusion Part Two: What Does Inclusion Look Like?, and The Case for
How to win an Oscar
With speculation mounting about which Hollywood stars will be taking home a much-coveted Academy Award this year, are certain roles more likely to be rewarded with a golden statuette than others? We've looked back at best actor a
Don’t Play Me Pay Me
The Don't Play Me Pay Me campaign seeks to: Actively encourage disabled people to follow their chosen creative career path. Remove the barriers of prejudice that disabled actors face in finding work. Provide a forum for all disabled actors to encourage debate and empower them to have their voice heard and listened to. Encourage programme makers to feature disabled actors in all storylines to reflect real life. Encourage programme makers not to use non-disabled actors (even if a “name” means funding) to portray disabled characters. Encourage advertisers to feature disabled people in all advertising. http://www.dontplaymepayme.com
Partners in Policymaking
Nearly twenty five years ago, the Minnesota Governor's Council on Developmental Disabilities created a ground-breaking, innovative training program called Partners in Policymaking® to teach parents and self-advocates the power of advocacy to change the way people with disabilities are supported, viewed, taught, live and work. During the past two decades, important issues have been confronted and dramatic changes have been made.
Genetics: Different mutations lead to autism in same family
Gene splicing: A deletion within an autism-associated chromosomal region may predispose the DNA to recombination, resulting in a neighboring deletion. Twin brothers who have autism carry a non-inherited duplication that overlaps with 16p11.2, a chromosom
Pathophysiological distortions in time perception and timed performance
Distortions in time perception and timed performance are presented by a number of different neurological and psychiatric conditions (e.g. Parkinson's disease, schizophrenia, attention deficit hyperactivity disorder and autism). As a consequence, the prim
Neural systems for speech and song in autism
Despite language disabilities in autism, music abilities are frequently preserved. Paradoxically, brain regions associated with these functions typically overlap, enabling investigation of neural organization supporting speech and song in autism. Neural
Genomic Study of Disorders of Unknown Etiology
The goal of this study is to gain a better understanding of the genetic cause of complex medical cases in children involving unexplained developmental delay or intellectual disability or birth defects. Enrollment in the study involves evaluation in the G
Laura Shumaker: Financial planning 101 for special needs families
Families with children who have special needs or disabilities face even bigger hurdles than most people when it comes to planning for their financial futures. We actually prefer to bury our heads in the sand (at least my husband and I do) but we shouldn’t.
Special needs system ‘shocking’
The report suggests provision of special needs education is patchy MPs have expressed shock that almost a third of 18-year-olds with special educational needs are not in any form of education, employment or train
Probe: Disabled patient abuse cases overlooked
California has assembled a police force to protect about 1,800 of its most vulnerable patients - men and women with cerebral palsy, severe autism and other mental disabilities who live in state institutions and require round-the-clock monitoring and prot
GCAC Presents: VSA Ohio at the intersection of art and disability
Since its founding in 1986, VSA Ohio has evolved to become a community that helps inspired artists connect with their passions. Bridging arts and disability, their programs and services focus on providing equal opportunity, full participation, independen
Special Ed Teacher Accused of Inappropriate Contact
A male special education teacher at Crenshaw High School who was removed from the classroom three weeks ago amid allegations of inappropriate contact with a child has resigned, the school district confirmed Wednesday. There is an ongoing investigation be
Sign up and Ollibean gives to a child in Nepal. It’s that easy.
Want to help kids in Nepal? We’re making it super easy. For every person that joins our community we will donate $2 to support children in Nepal.You can also enter for a chance to win an iPad**. Now share this with everyone you know and show the world how easy it is to make a difference.
The Greenspan Floortime Course for Parents of Children with Autism, Asperger’s, ADHD, OCD, Anxiety, Aggression, and Sensory Processing Problems is Now Available Online
The Greenspan Floortime Approach™ announces a new video course for parents of children with special needs, now available for a special introductory offer online until May 13, 2012. Parents and professionals can view the course from the comfort of their o
A boy’s talk about his Asperger’s resonates in his school
Since Jack Lebersfeld told the entire sixth grade he has Asperger's syndrome and explained what that meant, his speech has taken on a life of its own that Jack and his parents could have never imagined. Asperger's is one of the autism spectrum disorders
Squag: Social media for teens and tweens with autism | Washington Times Communities
Two years ago, Sara Winter's nephew got in a skirmish at recess and was very upset. Winter suggested that the boy, who is on the autism spectrum, write a note to his parents on her Blackberry to tell them what he was feeling. Astounded by the way he was able to express himself, Winter began searching for software that could help him do so more. Finding none, she eventually created a social networking-style interface for kids on the spectrum called Squag.
Michael Buckholtz on Discrimination
Autistic multi-platinum Record Producer and author, Michael Buckholtz talks about discrimination and how he handles it in this video on Autube.tv.
Aid for Autistic Children Foundation
Aid for Autistic Children Foundation, Inc.™ mission: Reduce the financial burden on poverty stricken and disenfranchised families and caretakers coping with autism, through debt forgiveness, so attention and resources can be focused on creating a proper living and learning environment for their autistic loved one. How the Program Works After thorough evaluation of your completed application and assessment from our board and an independent consumer credit counseling service, the debt forgiveness will directly target the financial burden the family deems most obstructive in allowing them to focus solely on giving their autistic loved one the best tools and skills for
The Coffee Klatch
The Coffee Klatch started on a whim. I often speak and write about the isolation, stigma and confusion of parents raising a special needs child. Many of those parents are on twitter to share information, seek support or find a friendly ear. Twitter is where it all began. It is where I met my incredible team of moderators and thousands of special needs parents. It is where we created a morning chat for parents both newly diagnosed and those who have navigated the muddy waters to meet and share. It became very apparent to me, very quickly, that many of
Genetics Home Reference: DMD-associated dilated cardiomyopathy
DMD-associated dilated cardiomyopathy is a form of heart disease that is caused by mutations in the DMD gene. Dilated cardiomyopathy enlarges and weakens the heart (cardiac) muscle, preventing the heart from pumping blood efficiently. Signs and symptoms
Motor Skills Affected By Autism
Editor's Choice Main Category: Autism Article Date: 21 Feb 2012 - 10:00 PST email to a friend printer friendly opinions Often, children with autism have difficulties developing motor skills, such as throwing a ball, learning how to write, or running. How
Pressure Mapping
Thousands of Americans spend their days in wheelchairs. This adaptive technology has given many people the opportunity to enjoy activities of daily living and be independent in their mobility. But sedentary time spent in a wheelchair has a darker side ef
Autism Diagnosis Often Occurs Later for Black Children
MONDAY, Feb. 20 (HealthDay News) -- Black children with autism tend to be diagnosed later than white children with the disorder, and this delay can lead to longer and more intensive treatment, researchers say. Lack of access to quality, affordable and cu
Deafness triggered by mitochondria glitch
Mitochondria are cellular structures that function as “cellular power plants” because they generate most of the cell’s supply of energy. They contain DNA inherited from one’s mother. Mitochondria determine whether a cell lives or dies via the process of
SoundBite uses vibrations through the teeth to help the hearing impaired
SoundBite is a new hearing device that uses bone conduction through the teeth to help the hearing impaired. SAN ANTONIO -- The newest device on the market for the hearing impaired doesn’t use the ear canal to transmit sound. It uses teeth. Ear Medical Gr
Study: OT, Yoga are Keys to Combating PTSD
Occupational therapy with a focus on yoga could hold the key to reducing the occurrence of Post-Traumatic Stress Disorder (PTSD). A study to be published this month in the American Journal of Occupational Therapy provides evidence that using sensory-enha
Team Hoyt
Team Hoyt is an inspirational story of a father, Dick Hoyt, and his son, Rick, who compete together in marathons and triathlons across the country. Team Hoyt strives to help those who are physically disabled become active members of the community. .
Advocates Incorporated
Advocates is a not-for-profit 501(c)(3) parent-directed organization providing services to individuals with developmental disabilities and their families. As an organization, we were started by parents of children with developmental disabilities with the goal of full inclusion for their children.
Nepal SEEDS
Nepal SEEDS helps people improve their health and welfare by supporting grassroots projects that involve community partnerships in the areas of education, water, health services, and the environment.
New Voices Foundation
New Voices is a short-term, intensive, individualized educational program for elementary-aged children with physical and communicative disabilities. Inclusion in all aspects of school, home and community life with transition back to a local school is our guiding philosophy. New Voices will: · Provide an educational program to increase literacy and communication skills (following the NC Standard Course of Study) · Equip and support students in the most advanced communication technology appropriate to their unique needs · Provide specialized, in-depth assessment and intervention · Provide supplemental healthcare maintenance and support, and ensure each child has a medical home · Maximize student’s
Center for Literacy and Disability Studies at UNC
The Center’s mission is to promote literacy and communication for individuals of all ages with disabilities. It is the belief of the CLDS that disabilities are only one of many factors that influence an individuals ability to learn to read and write and to use print throughout their life and across their living environments.All individuals, regardless of their abilities or disabilities, have the right to an opportunity to learn to read and write in order to increase and enhance their educational opportunities, vocational success, communicative competence, self-empowerment capabilities, and independence.
Former UCLA Student Fights Cuts to Disabled, Elderly
Governor Jerry Brown recently introduced a new state budget calling for deep cuts in many departments. Looking through the huge document, it’s easy to get lost in the fine print -- the line items, the pie charts -- and overlook the people who will actual
Motor Impairments Appear to Be a Characteristic of Autism
FRIDAY, Feb. 17 (HealthDay News) -- Autism itself seems to be responsible for the problems children with the disorder have in developing motor skills such as running, throwing a ball and learning to write, according to a new study. Previously, it wasn't
How mitochondrial DNA defects cause inherited deafness
Yale scientists have discovered the molecular pathway by which maternally inherited deafness appears to occur: Mitochondrial DNA mutations trigger a signaling cascade, resulting in programmed cell death. The study is in the Feb. 17 issue of Cell. ...
Preventing ‘Absence Seizures’ In Children: New Drugs Show Promise
Main Category: Epilepsy Also Included In: Pediatrics / Children's Health; Clinical Trials / Drug Trials Article Date: 17 Feb 2012 - 1:00 PST email to a friend printer friendly opinions A team led by a University of British Columbia professor has develope
Jon Stewart tries to talk to Arne Duncan
Jon Stewart tried to engage Education Secretary Arne Duncan on “The Daily Show ” Thursday night, but the effort was an exercise in the futility of conversing with someone who won’t deviate from his talking points. Duncan was so programmed that Stewart wa
How mitochondrial DNA defects cause inherited deafness
(Medical Xpress) -- Yale scientists have discovered the molecular pathway by which maternally inherited deafness appears to occur: Mitochondrial DNA mutations trigger a signaling cascade, resulting in programmed cell death. The study is in the Feb. 17 is
UNH Institute on Disability Webinar: Writing Standards-Based IEPs with Measurable Objectives
Inclusive Practices in Action: Supporting Students with Disabilities in the Classroom Learn how to write IEPs in a way that connects students with disabilities to the general education curriculum while using measurable goals that meet identified needs. Who Should Attend: General and special education teachers, paraprofessionals, speech language pathologists, case managers, inclusion facilitators, physical and occupational therapists, and others are encouraged to attend. Sponsored by the National Center on Inclusive Education (NCIE) The NCIE at the UNH Institute on Disability (IOD) advances the view that disability is a natural part of the human experience and promotes the inclusion of all
AAPC Publishing Offers a Guide for Parents with Students on the Autism…
Parent’s Guide to College for Students on the Autism Spectrum This practical book is an invaluable guide to evaluating college readiness for students on the autism spectrum. Sending a son or daughter off to college can be a daunting task, but if the chil
African-American children tend to be diagnosed later for autism
The rate of diagnosis for autism spectrum disorders (ASD) is the same among all racial groups — one in 110, according to current estimates. However, a study by a Florida State University researcher has found that African-American children tend to be diag
Deaf debate: Caught between two worlds
16 February 2012 Last updated at 00:38 ET Some deaf people choose implants, but others remain wary The story of deaf teenagers who chose not to have implants offering the "sensation of sound" generated a huge response. Readers touched by the issue share
Hospital apologizes to Amelia Rivera who was denied kidney transplant
Children's Hospital of Philadelphia has issued an apology to the parents of Amelia Rivera, a disabled three-year-old girl who, according to her parents, was initially denied a chance at a kidney transplant because she is “mentally retarded.” In a stateme
New information about IL-6 protein’s role in development of neurological disorders
A UT Dallas study is revealing new information about a key protein's role in the development of epilepsy, autism and other neurological disorders. This work could one day lead to new treatments for the conditions. Dr. Marco Atzori, associate professor in
When nerve meets muscle, biglycan seals the deal
In the absence of the protein biglycan, synapses at neuromuscular junctions in mice began to break up about five weeks after birth, according to a new study led by Brown University researchers. Reintroducing byglycan helped
Expanding Opportunities for People with Disabilities – Fact Sheet on President Obama’s 2013 Budget Proposals
We now face a make-or-break moment for the middle class and those trying to reach it. After decades of eroding middle-class security as those at the very top saw their incomes rise as never before and after a historic recession that plunged our economy i
Transition Planning & the IEP: Through the Doorway to Adult Life
Whether your child is 4 or 14, it's good to think about the future...The focus of this workshop is on the steps parents and students need to consider as they plan for the last years of school and the transition to adult life: personal futures planning; I
Understanding the Individualized Education Program (IEP) Process
Your child’s IEP is the cornerstone of their education. This workshop offers an in-depth look at the evaluation process, qualifying for an IEP, the many components that must be addressed in the IEP document, as well as how progress will be monitored. As
OlliNepal: Why Nepal ?
You can help kids with diffabilities in Nepal. We’re making it super easy. For person that joins our community we will donate $2 to support children in Nepal.You’ll also be entered for a chance to win an iPad at the same time. Now share this with everyone you know and show the world how easy it is to make a difference.
A little bit about us
It's hard to convey all that we want you to know "about us" in a paragraph., hard to explain the million and one reasons we're so passionate about Ollibean and how much we want you involved in our community. We hope this does it. We'd love to hear an "about us" about you. Shoot a video response and send it to us at olli@ollibean.org or post to our youtube account. We'll send an Ollibean tshirt to the first 20.
Details of Obama’s proposed $70B for education
The U.S. Department of Education would receive nearly $70 billion under President Barack Obama’s FY2013 budget, which he presented to Congress on Feb. 13. This is a 2.5 % increase from 2012. Obama's 2013 education budget focuses on STEM initiatives and workforce readiness. “In these tough budget times, the Obama administration is making a clear statement that high-quality education is absolutely critical to rebuilding our economy.If we want to strengthen the American workforce, we must continue to invest in education. U.S. Secretary of Education Arne Duncan
SchoolBook: Do High-Needs Students Affect a School’s Grade?
New York City’s latest plan to reform special education services encourages public school principals to take more of the neediest students. Still, it’s not clear that there’s a link between having a lot of these challenging students and getting a poor grade, contrary to what some critics contend.
Autism affects motor skills, study indicates
Audio available Children with autism often have problems developing motor skills, such as running, throwing a ball or even learning how to write. But scientists have not known whether those difficulties run in families or are linked to autism. New resear
The President’s FY 2013 Budget: What does it mean for Special and Gifted Education?
CEC Calls for a Greater Investment in Core Programs in FY13 Budget: Special and Gifted Education The following is a statement from Deborah A. Ziegler, Associate Executive Director, Policy and Advocacy Services, the Council for Exceptional Children, regar
EpiPens could save lives at school
One day, when Patrick Murphy was 8 months old, a rash and swelling started around his mouth and spread to his body. That's when his mom, Jennifer learned her baby was allergic to dairy products. His reaction is potentially life threatening, it comes on f
Obama ignores special ed, again…
“Fully Funding the Individuals with Disabilities Education Act: Barack Obama has been a strong and consistent advocate for fully funding the Individuals with Disabilities Education Act (IDEA). Congress promised to shoulder 40 percent of each state’s “exc
Obama’s Education Budget Focuses on Teachers and Higher Ed
President Barack Obama’s budget, released Monday, built on the education priorities that he laid out during his State of the Union speech last month: an increased focus on higher education and strengthening the nation’s teaching workforce. For fiscal yea
Procedural Safeguards The Series – Part III
Image via Wikipedia This is the third installment in a multi-part series on procedural safeguards under the federal special education law, the Individuals With Disabilities Education Act. I work a lot in this area, so it is near and dear to my heart. Des
Unified Sports Teams Open Doors for Inclusive Athletics
“Unified has transformed the culture of this school. It was almost as if these kids weren’t noticed before we began doing this. I don’t think anyone realized how powerful they are.” “Our athletes have an unconditional appreciation for other people. They persevere even in the face of being bullied and teased. We can pull back the veil of the unknown and make people real.” Born of the idea that athletic events can be especially transformative when they include individuals who have special needs alongside those who do not, unified programs have existed about two decades. In 2008, with money from
International Conference on Inclusive Education
Able, disabled all people together (ADAPT), a NGO, has organised a five-day 'International Conference on Inclusive Education, the North South Dialogue IV', in Goa from February 19. Dr Mithu Alur, founder chairperson of the organisation. told reporters he
Bullying of Kids With Disabilities – Part II
Bullying remains a hot button issue in special education law. This is the second post in the current series on this topic. Last week I discussed some of the key cases finding that bullying of children with disabilities can be a violation of the Individua
Goalbook – Social IEPs for everyone? Actually, yes
Summary: Goalbook could revolutionize how we approach differentiated instruction and outcome-based education. Four of my five kids have been on IEPs (Individual Education Plans) at one point or another. Two of them still are and I have little doubt that
Choosing Life and Beating the Odds: Accepting Down Syndrome
When my husband and I found out we were having another baby, it was a surprise. This test measures the thickness behind the baby’s neck. That, plus a blood test, tells you if there’s a chance the child has Down syndrome. Like most of my friends, I got th
How Does Autism Rewire The Brain?
Potential clues to how autism miswires the brain are emerging from a study of a rare, purely genetic form of a disorder that affects fewer than 20 people worldwide. Using cutting-edge technology, researchers funded by the National Institutes of Health ha
Loss of innocence befalls Los Angeles families at Miramonte School
STORY HIGHLIGHTS A teacher sexual misconduct scandal forces parents to have difficult talks with kids The scandal is centered at Miramonte Elementary School Working-class Mexican immigrants populate school's neighborhood "It's a conversation that is like
Six Strategies for Differentiated Instruction in Project-Based Learning
Project-Based Learning (PBL) naturally lends itself to differentiated instruction. By design, it is student-centered, student-driven and gives space for teachers to meet the needs of students in a variety of ways. PBL can allow for effective differentiat
CEC Member Brings UDL to the Senate!
For the past few years, George Van Horn, Special Education Director at the Bartholomew Consolidated School Corporation (BCSC) in Colombus, Indiana and current Indiana CEC President has implemented a Universal Design for Learning (UDL) framework across th
Genetics Home Reference: Fanconi anemia
Fanconi anemia is a condition that affects many parts of the body. People with this condition may have bone marrow failure, physical abnormalities, organ defects, and an increased risk of certain cancers. The major function of bone marrow is to produce n
Factors Associated With Self-Concept: Adolescents With Intellectual and Development Disabilities Share their Perspectives
Abstract How one perceives the self is critical to long-term development. The purpose of this study was to explore the self-perceptions of adolescents with intellectual and developmental disabilities. Participants included 51 adolescents with intellectua
Transition Planning for Students With Intellectual Disability, Autism, or Other Disabilities: Data from the National Longitudinal Transition Study-2
Abstract To compare the status of transition planning for students with intellectual disability, autism, or other disabilities, we used data from the National Longitudinal Transition Study-2, a federally funded, national study of the secondary and postsc
Self-Report Computer-Based Survey of Technology Use by People With Intellectual and Developmental Disabilities
Abstract Advancements of technologies in the areas of mobility, hearing and vision, communication, and daily living for people with intellectual and developmental disabilities has the potential to greatly enhance independence and self-determination. Prev
CEC Division on Autism and Developmental Disabilities
The Division on Autism and Developmental Disabilities is an organization composed of persons committed to enhancing the quality of life of individuals, especially children and youth, with autism, intellectual disabilities and other developmental disabilities. The Division seeks to further the knowledge base of the field, thus ensuring the continued advancement of positive educational and life outcomes for those with autism and developmental disabilities.
An Update on Amelia
By Tim Shriver Several weeks ago, I wrote about a young girl named Amelia Rivera who was denied consideration for a kidney transplant at the Children’s Hospital of Philadelphia because she was, according to her doctors, “mentally retarded.” Amelia is now in the process of being considered again for a transplant. Our lesson is that we cannot let Amelia’s story be an isolated call to arms. We must continue to seek change and advocate for the dignity of every human life.
Yoga for Children with ADHD and Autism in Clearwater
I now have new ways to work with a child who had been labeled as dysfunctional, and they are all working! Shakta Kaur Khalsa, yoga teacher and founder of Radiant Child Yoga Program, and Allison Morgan, Occupational Therapist, will co-lead a weekend train
Killing of autistic boy shows need for support for developmental disabilities
An argument about computer use ended with a 15-year-old boy shot dead by police in Calumet City, family and officials said Wednesday. Stephon Watts, who the family said was autistic, was reportedly asked by his father to stop using the computer. Watts' father had been told in the past to call police when he had problems with the teen. He did, and officers responded to the home in the 500 block of Forsythe Avenue in the far south suburb.
More Autism-Friendly Shows Planned For Broadway
NEW YORK (AP) — Two more autism-friendly performances of Broadway musicals will be offered this spring and fall following the success last year of the first showing of a Broadway show specially altered for those diagnosed with the disorder. The Theatre D
Assistive technology solutions fact sheet
The Family Center on Technology and Disability has a new AT fact sheet that provides visual examples of a range of AT products to help parents begin their search for assistive technology. The fact sheet includes basic questions to consider when trying to
Cops: Fla. boy, 11, tried to set special education student on fire with Old Spice body spray
(CBS/WTSP/AP) NEW PORT RICHEY, Fla. - Authorities say an 11-year-old boy cornered a special education student in the bathroom of a Tampa Bay area middle school and tried to set him on fire. According to CBS affiliate WTSP, the police report states that t
Surgery Effective for Tough-to-Treat Epilepsy
TUESDAY, Feb. 7 (HealthDay News) -- Surgery can significantly improve seizure control and quality of life among people with epilepsy, according to a study stretching over 26 years. "This study may be the longest follow-up of epilepsy surgery patients in
E-Learning for Deaf and Hard of Hearing Children
Launched by the St. Joseph Institute for the Deaf (SJI) – an institution with a 175-year history of innovation in deaf education – iHear is the world's first e-learning program created with optimum security measures to ensure privacy and compliance with federal HIPAA regulations and educational FERPA regulations. Hear gives families in rural areas the choice to pursue their child's development of auditory and speech skills without the burdens of extensive travel and cost," says Deborah Wilson, president of SJI. "This access to spoken-language therapy opens the doors for children with hearing impairments to remain on grade-level with their peers
Cops: Autistic boy, 6, left on school bus
A young boy with autism was left Monday morning in the back of a school bus, which departed the school before staff realized he was missing, according to Nassau police, who are investigating the incident.Sean Feldt, 6, was returned to the Cherry Lane Sch
Teacher allegedly kicked student, withheld food
(02-06) 13:36 PST REDWOOD CITY -- A Redwood City special education teacher has been charged with numerous counts of child abuse for allegedly slapping and kicking a 5-year-old student while depriving another of food and twisting his arm, authorities said
Outcry over disabled girl’s transplant care renews eligibility debate
A parent's anguished online plea for an organ transplant for her developmentally disabled daughter and new research on kidney transplantation eligibility among elderly patients have refocused attention on the vexing decisions that face physicians who det
Living outside the hearing world
6 February 2012 Last updated at 06:31 ET By Lucy Wallis BBC News Sara met her boyfriend Asher at a deaf school five years ago For several years cochlear implants have offered some deaf people the chance to have a "sensation of sound". So why would some d
Colin Giving Voice
Colin from Newcastle, "Giving Voice" for RCSLT National Campaign
Dr. Jill Bolte Taylor’s Stroke of Insight
Jill Bolte Taylor This TedTalk by Jill Bolte Taylor is a testimony to the power of presuming competence and importance of a nurturing, positive environment when learning. Neuroanatomist Jill Bolte Taylor woke up one morning and realized she was having a massive stroke. Bolte Taylor details her experience as her left brain slipped away and she was left without language, awareness of time. But, instead of being terrified she was intrigued and serene. As her left brain's stopped functioning she experienced the wonders of her right brain. She was fully present, connected to everything, thought in pictures, was inundated with sensory information
Dr. Jill Bolte Taylor
Dr. Jill Bolte Taylor is a Harvard-trained and published neuroanatomist who experienced a severe hemorrhage in the left hemisphere of her brain in 1996. On the afternoon of this rare form of stroke (AVM), she could not walk, talk, read, write, or recall any of her life. It took eight years for Dr. Jill to completely recover all of her functions and thinking ability. She is the author of the New York Times bestselling memoir My Stroke of Insight: A Brain Scientist's Personal Journey (published in 2008 by Viking Penguin). In 2008, Dr. Jill gave a presentation at the TED
Advocates for Children of New York
At Advocates for Children of New York (AFC), we are dedicated exclusively to protecting every child’s right to an education, focusing on students from low-income backgrounds who are struggling in school or experiencing school discrimination of any kind. For more than 40 years, our staff of attorneys and education specialists have successfully helped hundreds of thousands of families by providing free legal and advocacy services, including representation at school-related hearings and appeals, and teaching families what they need to know to stand up for their children’s educational rights. AFC also works to change education policy so that the public school
Edudemic
Edudemic is a great resource. Edudemic is a great resource for teachers, homeschooling families, and students. They cover how technology positively shapes education and so much more. Edudemic provides innovative, informed, and engaging tech resources. It is a one stop shop to discover and engage with information about the newest technology, data trends, and digital tools available to them in order to enhance education. Check out Edudemic at http://www.edudemic.com
TenMarks | Online Math Program for Grades 2-10
TenMarks was started to create a better way for students to learn - one that focuses on the student and their individual needs, is interactive and engaging, takes advantage of new technologies, and caters to the changes in student expectations and behavior. Their mission is to positively impact the lives of 20 million students in 5 years.
EdTech Associates
Founded on the vision that every child should have the opportunity to develop a foundation of 21st Century learning skills, EdTech Associates provides services to empower all schools and students to succeed. EdTech Associates was established by Kathleen H. McClaskey, M.Ed., a well-respected and recognized professional and innovative leader in educational technology. Kathleen has almost three decades of experience in educational technology with a firm philosophy that technology is a tool that can improve teaching and learning. In her long career, she has been a computer teacher, technology integration specialist, K-12 technology director and graduate instructor for in online and
Apps in Education
Greg Swanson is a Visual Arts teacher who is interested in Computer Integration, Web 2.0 and engaging students in their own learning through innovative technology and collaborative classroom practices. One of the hardest thing with using the iPad in the classroom is finding the time to go through all of the apps in the iTunes Store listed under the education banner. Apps in Education has started to list some of the apps they've found under each of the Key Learning Areas.
Model who has down syndrome made top 10 TODAY stories
By Steve Veres, TODAY.com The results are in! And TODAY's 60th anniversary celebration is the story fans interacted with the most on our Facebook page in January. And perhaps not so shockingly, you guys also loved Matt Lauer and adorable animals (though
Special-needs pupil barred from Israel trip
The father of a 14-year-old King Solomon High School pupil with moderate learning disabilities is "bitterly disappointed" that she is not being allowed to join the Redbridge school's Israel trip. But King Solomon teachers maintain the girl is unsuited to
The RARE List™ – You Must See it to Believe it!
The R.A.R.E. Project (http://RAREproject.org), a leading patient advocacy organization representing the rare disease community, today issued the RARE List™, a stunning 65 page alphabetical listing of roughly 7,000 known rare diseases and disorders. The rare diseases and disorders that comprise the RARE List™ impact 30 million Americans (or 10% of the U.S. population) and an estimated 350 million people worldwide. The RARE List™ was released by the R.A.R.E. Project as part of month long public awareness campaign leading up to World Rare Disease Day on February 29, 2012.
Neural systems for speech and song in autism
Despite language disabilities in autism, music abilities are frequently preserved. Paradoxically, brain regions associated with these functions typically overlap, enabling investigation of neural organization supporting speech and song in autism. Neural
Procedural Safeguards – The Series – Part I
This is the first installment in a multi-part series on procedural safeguards under the federal special education law, the Individuals With Disabilities Education Act. I work a lot in this area, so it is near and dear to my heart. Despite the importance
Inclusion of Blind and Low Vision Children in Regular Schools
This article looks into how the provision of appropriate and adequate resources in education will improve the quality of life of children who are blind and have low vision. It discusses the current provision made for blind/low vision children in The Gamb
38 Disability Organizations Oppose House ESEA Proposal
The organizations oppose the draft Student Success Act because “it abandons accountability for the achievement and learning gains of subgroups of disadvantaged students who for generations have been harmed by low academic expectations.
“Possibilities Series: Abby”
The Possibilities Video Series illustrates the lives of individuals with disabilities who live, work and attend schools in their communities.
Letter from Assistant Secretary for Civil Rights Russlynn Ali
Dear Colleague: This year, we will celebrate the 22nd anniversary of the landmark Americans with Disabilities Act (ADA), 42 U.S.C. §§ 12101-12213. We at the Office for Civil Rights (OCR) in the United States Department of Education (Department) recognize the progress our country has made toward ensuring that educational opportunities are provided free from disability discrimination. As Secretary Arne Duncan has stated, the Department is “strengthening our efforts to ensure that all students, including those with disabilities, have the tools they need to benefit from a world-class education that prepares them for success in college and careers.”1 Pursuant to a
Students with autism learn to relax, focus with yoga
Stawicki, 12, works with his yoga group for about a half-hour. From 7:50 to 8:20 a.m., Stawicki focuses on breathing exercises and yoga poses like his favorites -- the tree and the airplane. Stawicki is one of six students from Parker Middle School's autism support class who gather to practice yoga twice a week. The students have learned about a dozen poses, and organizers said it helps them better control their emotions.
Elad Gevandschnaider, first person with Down syndrome to serve in Israeli Army
Because of his disability Elad, is not required to serve in the Israeli Army, still, he decided to volunteer. It started with two years of national service in a primary school in the southern part of Israel, Beer Sheva, and now Elad has just learned he has been accepted to serve two more years at an Israeli army equipment base. Talk to Elad and he will tell you that the primary reason he has been able to do something that no other special needs person has done in the history of Israel, and he will tell you the story of
“Le Mur” , French analysts who still blame the mother..
Three of the analysts in the shocking "Le Mur" are contesting future US showings and suing filmaker Sopihe Robert in France. They feel they have been unfairly represented in the film. I have seen this film and cannot imagine how they have been misrepresented. There's an abundance of material in the film expousing their archaic and controversial views that prevent so many French with autism from receiving proper treatment. Here are some quotes: "(Dr Aldo Naouri) Most of the time, the symptom of the child is no more no less than the symptom that allotted to have by the maternal unconscious
Deaf education bill is ailing
The bill may have sailed through a key legislative panel, but Del. Richard P. "Dickie" Bell's proposed bill of rights for deaf and hard-of-hearing students is in trouble. After sending the bill on to the House of Delegates Education Committee to approve
SoulTouchin’ Experiences
Keith Jones & SoulTouchin' Experiences SoulTouchin' Experiences is a Resource We Love! SoulTouchin' Experiences is an endeavor founded on the belief that in order to build a stronger community, there must be a heart and soul commitment to those who need assistance in order to begin caring for themselves and in turn caring for others. This is achieved through collaborative partnerships and progressive advocacy efforts, aimed at community empowerment along with systemic policy change for persons with and without disabilities on a local and national leve.l Keith P. Jones, started SoulTouchin' Experiences to bring a perspective to the issues
Autism and the DSM V
The DSM V is the yet (2013) to be published Diagnostic and Statistical Manual, the handbook for diagnosing psychiatric and psychological illness or disorders. The latest iteration was the DSM IV TR (Diagnostic and Statistical Manual Four, Text Revision)
Minnesota Gov’s Council on Dev. Disabilities: Organ Transplants
The Minnesota Governor's Council on Developmental Disabilities Lives Worth Saving: Organ Transplantation and People with Disabilities In 1995, Sandra Jensen was denied a heart/lung transplant. The transplant had been recommended by her attending physician. It was the only way to save her life. The transplant had even been approved by her insurer, MediCal. The problem - two California transplant centers refused to save Sandra's life.The good news - Sandra got her heart and lung transplant. She was the first person with Down Syndrome in the world to do so. With the help of friends and supporters, Sandra attracted national
‘Handicap This!’ dispels myths of cerebral palsy with humor
His first words are a declaration uttered with a sense of urgency. “I have,” he says, “cerebral palsy.” A second man bounds out stage left, introduces himself and adds: “... And I don’t.” So begins a one-of-a-kind reality show starring Mike Berkson, a sharp-witted, movie-obsessed 22-year-old college student, and Tim Wambach, his aide, champion and sidekick.
There’s Nothing ‘Down’ About Having a Child With Down Syndrome
When my friend Jennifer Lister was expecting her third child, I was so happy. She's an amazing person, a fantastic mother. Jennifer and I don't live near each other anymore so we keep up on Facebook and I was so excited to virtually be there as her
Todd Drezner: Nickels, Dimes and ‘High-Functioning’ Autism
As Justin Canha's story shows, the autistic person who needs a lot of support in one area may become a person who needs much less support in that same area. Justin barely spoke before age 10. Now he's verbal. He didn't suddenly change from "low-functioning" to "high-functioning." Rather, he received the support he needed and developed his skills.
What I Learned During My “Sabbatical” at the MIT Media Lab (Part Two)
Why Inventing Technologies for the Disabled is Not Just Right but Smart Business Q. What do a child with autism, an Iraq war-veteran amputee and a senior citizen with Alzheimer’s have in common? (Other than having disabilities that begin with “A.”) A. They are all the early adopters of radical new technologies that will make all our lives better in the future. For my entire career as an entrepreneur, I assumed that developing innovative technologies for people with disabilities, while the “right thing” to do, was not a particularly promising business proposition. Within a year of becoming director of the
What I Learned During My “Sabbatical” at the MIT Media Lab (Part One)
Also, like an academic, I wrote a book during my sabbatical. The book is about the highly unorthodox research and researchers at the Lab, titled “The Sorcerers and Their Apprentices: How the Digital Magicians of the MIT Media Lab are Creating the Innovative Technologies That Will Transform our Lives”. At the Lab, not taking risks is the biggest risk of all. Crazy and wild-eyed ideas and inventions emerge from what appears to be chaos. Some of these seeds survive and grow into innovations that can improve our everyday lives, disrupt industries and even transform society.
Laser Beak Man- Tim Sharp
This is the story of autistic artist Tim Sharp, internationally recognized visual artist and creator of the super-hero character Laser Beak Man. Nominated for the Young Queenslander of the Year Award in 2008 and 2009, Tim works tirelessly for autism groups around the world.
E.A.S.E. Sri Lanka
E.A.S.E. Sri Lanka E.A.S.E. campaigns to educate the public on the rights and the abilities of people with disabilities. They do presentations to interested groups, workshops targeting parents and professionals and disseminate knowledge of alternative communication techniques. Most importantly E.A.S.E. changes people's minds about what is possible for a person with significant disabilities. Chandima is a powerful voice for the hidden competencies of people with disabilities. After his presentation “On Autism” Dr. Shavindra Dias, Psychiatrist and Lecturer, Dept. of Psychiatry, Faculty of Medicine, University of Peradeniya said; “We have been walking in darkness you have enlightened us. You are
Scratch: Create & share your own interactive games, music & art
Scratch is a programming language that makes it easy to create your own interactive stories, animations, games, music, and art -- and share your creations on the web. Scratch As young people create and share Scratch projects, they learn important mathematical and computational ideas, while also learning to think creatively, reason systematically, and work collaboratively. Scratch is developed by the Lifelong Kindergarten Group at the MIT Media Lab, with financial support from the National Science Foundation, Microsoft, Intel Foundation, MacArthur Foundation, Google, Iomega and MIT Media Lab research consortia.
D-PAN Music Video Waiting on the World to Change
Waiting on the world to change.
The dirty little secret about ‘scream rooms’
Now that the dirty little secret about “scream rooms” is out, let’s hope legislators take notice and do something about this psychologically destructive practice employed routinely in special education schools across the state. As a parent of a child with autism who has spent many hours of his elementary school days in the rooms in various schools, I’ll say it straight: This is state-sanctioned, institutionalized child abuse. If I locked my kid in a closet it would be a crime. Yet some schools do it every day.
The Loud Hands Project
Love this video published by the Autistic Self Advocacy Network. Share it, Post it, Donate at http://www.indiegogo.com/The-Loud-Hands-Project?a=351448 so they will make more:)
D-PAN ASL Music Video “We’re Going To Be Friends” by the White Stripes
White Stripes "We're Going To Be Friends" ASL video we love by D-PAN.
The Jazz of Matt Savage, WMUR-TV
Matt's interview on WMUR-TV Channel 9's New Hampshire Chronicle, January 6, 2011 Check out Matt's website for more info http://www.savagerecords.com/
Matt Savage with Bobby Watson- “Big Apple Blues”
Here's a song from Matt's "Welcome Home" CD Release concert in New York at Dizzy's Club Coca-Cola at Jazz at Lincoln Center! Matt Savage on piano ; Bobby Watson is on alto sax, Joris Teepe is on bass, and Peter Retzlaff is on drums. Incredible!
Brick Walls
“Oh, that’s ok! We plan on donating. If we aren’t a match, we come from a large family and someone will donate. We don’t want to be on the list. We will find our own donor.” “Noooo. She—is—not—eligible –because—of—her—quality– of –life—Because—of—her—mental—delays” He says each word very slowly as if I am hard of hearing. “STOP IT NOW!” The anger is taking over. Thank God. Why did it take so long to get here? The social worker is writing some things down.
Florida Charter Schools Failing Students With Disabilities
Tres Whitlock is stuck in a public school where he feels ignored. He wants out. The 17-year-old would-be video game designer researched his options online and found his perfect match – Pivot Charter School. “It’s computer-based and I think I will do better,” he says. But when Whitlock tried to enroll the school he found a series of barriers in his way.
They call me Barney Fife
One out of four people that use accessible parking spaces, should not be using them. One out of four people think it's ok to park in a spot specifically designed and strategically to make it easier for someone who uses a wheelchair to have enough space to actually open the door to their van? Ok to park in a space designated for someone who has a heart condition so they don't have to walk quite as far?
“Miles for Kids’ Smiles” Pediatric Physical Therapy
As a pediatric PT, I often hear requests for "another lap on the tricycle" or "can I go back to my room now? Puhhhleeeease!" But the question of going to Nepal to fulfill one of my life's dreams has only one answer: "YES!" I grew up playing soccer. My family and I dedicated much of my childhood free time to road trips, holiday tournaments and the goal of obtaining a college scholarship to play. I signed with a small, liberal arts university in Alabama. While training preseason, I heard and felt a "POP". I would spend the next 4 years
Charter Schools
Charter schools are an idea dreamed up by an obscure education professor in the 1970s which have grown into a primary alternative to traditional public schools. One in 17 Florida students attended a charter school last year, a number that has increased almost six-fold in a decade. The original charter school model focused on local leaders forming an oversight board and spelling out the school’s mission, goals and methodology in a contract or charter.
ASAN disappointed with President Obama’s choice for committee on disability
The Autistic Self Advocacy Network, the nation's leading advocacy group run by and for Autistic adults, today expressed concern and disappointment over President Obama’s announcement Tuesday of his intent to appoint anti-vaccine activist Peter H. Bell as a member of the President’s Committee for People with Intellectual Disabilities. “Bell’s appointment shows such contrast to the forward motion the Obama administration has shown in the areas of autism and disability as a whole..
Supreme Court Says NO to IDEA Case
In the special education case, Compton Unified School District v. Addison (Case No. 10-886), the justices had asked the U.S. solicitor general's office for its views last April on a question under the federal Individuals with Disabilities Education Act: whether a parent may bring a claim in a due-process hearing that a district violated the law's "child-find" provision.
Laughing At My Nightmare
A local college student suffering from spinal muscular atrophy is telling his life story through a brutally honest blog. You can read the blog, “Laughing At My Nightmare,” here. “Laughing At My Nightmare” is categorized as “local”. This video was license
MetLife Center for Special Needs Planning
MetLife Center for Special Needs PlanningSM is dedicated to helping families secure both lifetime care and quality of life for their dependents with special needs. Our mission is to help families plan for the future of their dependents with special needs, including preserving government benefits and providing insurance and other financial solutions which can help provide lifetime quality care. The planning process begins with a complete review of your dependent's needs, future care plans, assessment of government benefit eligibility, and finally a review of your family's current financial and legal plans. Critical areas that must be addressed are: 1.Government benefit
Protected Tomorrows
Protected Tomorrows founder, Mary Anne Ehlert, CFP, had a successful career in financial planning when she decided to act on her lifelong desire to specialize in serving the families of the disabled. The source of her inspiration was very dear to her heart. Mary Anne herself had come from such a family. Her younger sister, Marcia, to whom she felt especially close, suffered severe mental handicaps due to cerebral palsy. And, although their parents were naturally determined that Marcia should get the best possible care, they had also for years been understandably confused how best to plan and provide for
Children Across Borders
Children Across Borders is a charitable organization that paves the way for children of the world to a brighter future by providing sustained support in the form of education, health, housing, and wellness to under-privileged children while enabling the educational and cultural enlightenment of all children. They create a network of support for under-privileged children around the world by partnering with people and organizations who have chosen to dedicate their lives to helping these children lead healthy, fulfilling lives.Their work is personally driven with adherence to high standards and accountability, leading to a positive impact on our community and country.
Genetics 101 Part 4: What is phenotype?
Discover how your observable traits, or phenotypes, are the result of interactions between your genes and environment.
Genetics 101 Part 2: What are SNPs?
Learn about the variations in human DNA called SNPs, and how they can be used to understand relationships between people.
Genetics 101 Part 1: What are genes?
Find out about the basics of cells, chromosomes, and the genes contained in your DNA.
The Global Genes Project
Rare Disease affects over 350 million people worldwide, and the largest percentage are children. There are over 7,000 rare diseases that have been identified all with very unique needs, but many with little to no support. Although each individual disease may only impact a few, together the impact is in the millions. Rare disease is not so rare. The Global Genes Project is broadly promoting the needs of the rare disease community, engaging the general public, garnering corporate support, under the "unifying symbol of hope" – the blue denim ribbon. The Global Genes Project is a program of R.A.R.E. Project, a
Addi & Cassi Fund
Our names are Addison and Cassidy Hempel and we are 7 year old identical twin girls who live in Reno, Nevada. In October 2007, after a two year medical odyssey, we were diagnosed with a ultra rare and fatal cholesterol disease that affects only 500 people worldwide. The disease is called Niemann Pick Type C (NPC) and the condition is frequently referred to as “Childhood Alzheimer’s.” NPC is ultimately fatal in childhood and we are in a battle for our lives.
Stephen Hawking- Asking big questions about the universe
Professor Stephen Hawking asks some big questions about our universe -- How did the universe begin? How did life begin? Are we alone? -- and discusses how we might go about answering them.
Autism Support Network
The mission of Autism Support Network is conveyed in our tagline: connect, guide and unite. Our goal is to short-cut the uphill battle individuals and families undertake when faced with autism – whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information.
Saving Grace
Addison Lennon met all her early milestones: she sat up on time, crawled on time and walked on time. At about 4 months, however, she had a seizure, and her parents started to worry. By 9 months, her head appeared small for her age. Her neurologist reassured the family that Addison could still be within the lowest 5 percent of the normal range. "We were thinking she was typical," says Kari Lennon, "she would be in that 5 percent." At 15 months, however, Addison had another seizure that was a lot more severe. She had been tested for
Gluten-Free Girl and the Chef
Gluten-Free Girl and the Chef is amazing site with incredible recipes and great writing. Love their love for life!
Jules Gluten Free
In addition to heading product and recipe development at Jules Gluten Free, Jules travels the country speaking to thousands of people annually, teaching cooking classes and educating and inspiring people about her no-compromise approach to living gluten-free.
Chef Jean-Christophe
All proceeds from the sale of our Spice Blend are donated to the Foundation for Mitochondrial Medicine to give hope and a future for all affected by those disorders, including Sebastien. The mission of Chef Jean-Christophe is also a very personal one; his son Sebastien was diagnosed in 2004 with a Mitochondrial Disease. Those diseases have no cure and affect 1 out of 4000 children. The proceeds from the sales of Provencal Meat and Poultry Rub are entirely donated to the Foundation for Mitochondrial Medicine to help find new treatments and save the lives of hundreds of children, including Sebastien’s. As
Fruit of the Vine Organics
We're crazy about Vera Farmen's, Fruit of the Vine. They have the freshest organic fruit and vegetable baskets. Weekly seasonal offerings including recipes, storage instructions and tips. Fresher and more affordable than your local grocer.
Gluten-Free Goddess
We love this site! Karina has amazingly delicious gluten-free recipes all delivered in her wonderfully poetic voice.
Super Healthy Kids
Teaching parents and kids how to eat better, feel better, and live longer. Feeding your kids healthy food can be a challenge, but so rewarding! Amy and Natalie are both nutrition educators who want to make it easier to feed your kids better, in less time, and with less complaint!
Ollibean Heads to Nepal in March
We know how challenging it is in the States for our kids to have the supports they need to get an education and it is 100 times more challenging for our friends in Nepal.
Disability and Abuse Project
The Disability and Abuse Project focuses on individuals with developmental or intellectual disabilities who are victims of sexual, physical, or emotional abuse. This includes all aspects of crime, such as crime victimization, reducing the risk of becoming a victim, support to the individual and family members when crime does occur, as well as providing guidance for psychotherapy and legal support. The project works with those who respond to crime reports, including police and sheriff personnel at all levels (patrol, investigators, detectives, dispatchers), prosecutors, protective services professionals, SANEs, victims advocates, and any others. It provides technical assistance, training programs, and training
Meet Ryan, the six-year-old show-stealer in ads for Target and Nordstrom
With his floppy blonde hair, blue eyes and natural manner front of the camera, it is not difficult to see why Target has cast child model Ryan in its newest childrenswear ad. But the retailer has taken an unusual step in doing so, as the six-year-old suf
This Time Its Personal
Truly student-centered learning has a lot of support in high places in education, but it can’t happen without the right technology infrastructure to drive it. Educators have known for some time now that a one-size-fits-all approach to learning does not l
Boy With Down Syndrome Becoming an Unlikely Ad Star
One young man is making great strides in the modeling world despite what many might see as a significant impediment—he has Down syndrome. His name is Ryan, and he appears on page 9 of the new Target circular, just a few months after making an appearance
It’s OK to make noise at this church service
Church can make some proverbial commands. The Rev. Andrew Butler, seen here in this file photo, is launching a nondenominational worship service for children, particularly those with special needs. But a worship service being offered at
Top Ten Autism Research Achievements of 2011
The young but burgeoning field of autism research continued its exponential rate of discovery in 2011-fueled in no small part by the joint commitment by government health agencies and private organizations to support this vital work. Our Top Ten Autism R
Blogger Shane Burcaw uses humor and honesty to cope with spinal muscular atrophy
Shane Burcaw is like any other 19-year-old college student. He goes to class, hangs out with friends and enjoys going to concerts. What sets him apart from his peers is his ability to use a wry sense of humor to cope with a life-threatening illness. Bu
A rare disease gets a new champion
A hedge fund manager and his battalion of scientists are hunting down a cure for Spinal Muscular Atrophy A new $490 million business deal pits pharmaceutical companies against each other in a race to develop drugs for a rare genetic disease: Spinal Muscular Atrophy (SMA). One in 8,000 babies is born with SMA compared to one in 4,000 born with Cystic Fibrosis, a similar degenerative disease that has garnered much more public attention and fundraising.
Down Syndrome Brings Joy Not Regrets to Individuals and Families
In a series of recently completed surveys, 96 percent of parents expressed no regrets about having a child with Down Syndrome and nearly eight out of 10 said the child had enhanced their lives by teaching them patience, acceptance and flexibility, among other things. Siblings had similar feelings, with 94 percent feeling "pride" about their sibling and 88 percent saying the sibling had made them a "better person." via Down Syndrome Brings Joy Not Regrets for Many Families - MSN Health & Fitness - Kids' Health.
How David Met Sarah, by Anne Kelleher
I wrote How David Met Sarah at my mother's suggestion when she explained that as much as David is interested in reading, it's hard to find stories he likes. He reads at approximately a third grade level but as an adult, David doesn't relate to third grade level stories. It's also hard to find stories that have a hero with which he can identify. via How David Met Sarah.
Amy Julia Becker: Explaining Down Syndrome, To My Daughter, And Myself
A few months back, I mentioned to our daughter Penny that she would be meeting another little boy who had Down syndrome, just like her. She didn't say anything in response, but later on that day, when Penny was at school and William was getting ready for a nap, he said, "Mom, what down syn mean?" via Amy Julia Becker: Explaining Down Syndrome, To My Daughter, And Myself.
Neil Young launches film of storied benefit concerts
(Reuters) - A concert DVD featuring Neil Young and a generation of music icons will launch this month with live screenings across the United States. The movie and related CD collection showcases rare live, acoustic performances by many of music's biggest names, all of whom have played over the past 25 years at the annual Bridge School benefit concerts organized by Young and wife Pegi via Neil Young launches film of storied benefit concerts | Reuters.
Operator of N.Y. Group Homes Thrived Despite Lapses in Care – NYTimes.com
The federation has amassed more citations for serious lapses of care than any other organization in the state licensed to run group homes for developmentally disabled people — those with autism, Down syndrome or cerebral palsy. An analysis by The New York Times of state inspection data from 2004 to 2010 found that the federation had been cited 27 times; via Operator of N.Y. Group Homes Thrived Despite Lapses in Care - NYTimes.com.
Geri Jewell: Geri-ism #2: Unmasking the Real Disabilities
It involves the beating of a 16-year-old girl with cerebral palsy. The perpetrators were the girls' parents -- primarily her father, Judge William Adams, who serves as a family law judge in Texas. It was very graphic and painful to watch, but I forced myself to see the whole thing through. via Geri Jewell: Geri-ism #2: Unmasking the Real Disabilities.
Olivia Rosewood: Top 15 Films About Differently-Abled People
Having a child with special needs, whether it's autism, ADHD/ADD, cerebral palsy, Down Syndrome, or any of the other myriad of extraordinary variations from the norm, is becoming surprisingly... the new normal. It seems that nearly every family I meet is facing some set of challenges that veer from the average expectations of parents via Olivia Rosewood: Top 15 Films About Differently-Abled People (VIDEO).
Senate Introduces Bill Limiting Restraints, Seclusion – On Special Education – Education Week
A U.S. Senate bill filed late last week would limit physical restraint and locked seclusion of students—measures often used with students with disabilities who are considered out of control, harmful to themselves or others, or in need of being calmed. Iowa Democratic Sen. Tom Harkin's "Keeping All Students Safe Act," via Senate Introduces Bill Limiting Restraints, Seclusion - On Special Education - Education Week.
The other side of Down syndrome: DS parents say their children have improved their outlook on life
Matt and Meghan Wilkinson at home playing with their sons. The Wilkinsons say Down syndrome is just a small part of what defines their boys. Twin nineteen-month-old brothers Casey, left, and Connor play at their home in Cuyahoga Falls, Ohio. The twins we
Author, Educator Will Speak on Differentiated Instruction
Carol Ann Tomlinson, the William Clay Parrish Jr. Professor at the University of Virginia's Curry School of Education, will speak on the Knox College campus at 7 p.m. February 9 in Kresge Recital Hall, Ford Center for the Fine Arts. Her lecture is titled
The Family Center on Technology and Disability
The Family Center on Technology and Disability (FCTD) is a resource designed to support organizations and programs that work with families of children and youth with disabilities. We offer a range of information and services on the subject of assistive and instructional technologies. Whether you're an organization, a parent, an educator, or an interested friend, we hope you'll find information that supports you in your efforts to bring the highest quality education to children with disabilities.
RIT Offers National Writing and Arts Competitions for Deaf and Hard-of-Hearing Students
Deaf and hard-of-hearing high school students are encouraged to enter two creative competitions for cash prizes offered by Rochester Institute of Technology (RIT). The first contest is the RIT Digital Arts, Film and Animation Competition for Deaf and Har
Navigating Love and Autism – NYTimes.com
Only since the mid-1990s have a group of socially impaired young people with otherwise normal intelligence and language development been recognized as the neurological cousins of nonverbal autistic children. Because they have a hard time grasping what another is feeling via Navigating Love and Autism - NYTimes.com.
More on Students With Disabilities and the Law
By JOHN O’CONNOR Tres Whitlock is trying to enroll in a charter school. The school has said they can not provide needed services. Last week we ran a story talking to attorneys about what the law requires for students with disabilities. One expert we spoke with, Joy Zabala with the Center for Applied Special Technology, responded to clarify her position.
Information Commonly Unreported in Intervention Effectiveness Studies
Sharon A. Gutman, PhD, OTR, FAOTA, is Editor-in-Chief, American Journal of Occupational Therapy, and Associate Professor, Columbia University, Programs in Occupational Therapy, New York; ajoteditor{at}aota.org Susan L. Murphy, ScD, OTR/L, is Assistant
UNH Institute on Disability Launches Person-Centered Planning Tool
Look Back, Plan Forward, a new website launched by the UNH Institute on Disability, will help individuals with disabilities and people who are aging to capture their life stories in ways that can inform caregivers and service providers about the individual’s history, values, preferences, and support needs during the person-centered planning process. via UNH Institute on Disability | News > Institute on Disability Launches New Online Person-Centered Planning Tool.
The National Early Childhood Technical Assistance Center
NECTAC is the national early childhood technical assistance center supported by the U.S. Department of Education's Office of Special Education Programs (OSEP) to strengthen service systems to ensure that children with disabilities, from birth to 8 years, and their families receive and benefit from high quality, culturally appropriate and family-centered supports and services.
UNH Institute on Disability
The Institute on Disability/UCED (IOD) at the University of New Hampshire was established in 1987 to provide a coherent university-based focus for the improvement of knowledge, policies, and practices related to the lives of persons with disabilities and their families.
Inclusive Schools Network
The Inclusive Schools Network offers a forum for educators, students, family, and community members to share experiences and ideas with each other. It is important for the Inclusive Schools Network to model an inclusive approach in welcoming and valuing all perspectives and opinions regarding the practice of inclusive education. We hope you will communicate with us directly to improve this website and our services to you.
Disability is Natural
The mission of Disability is Natural is to encourage new ways of thinking about developmental disabilities, in the belief that our attitudes drive our actions, and changes in our attitudes and actions can help create a society where all children and adults with developmental disabilities have opportunities to live the lives of their dreams, included in all areas of life.
Broadreach Training and Resources
Norman Kunc and Emma Van der Klift have spent the last 25 years working to ensure that people with disabilities are able to take their rightful place in schools, workplaces, and communities. Although they are well known advocates within the disability rights community, they prefer to think of themselves as modern day storytellers, continuing the long held tradition of using humour and narrative to initiate self-reflection and social change.
Association on University Centers on Disabilities (AUCD)
AUCD envisions a future in which everyone, including people living with developmental and other disabilities, are fully integrated, participating members of their communities. We envision a future in which culturally appropriate supports that lead to independence, productivity, and a satisfying quality of life are universally available across the life span. AUCD's mission is to advance policy and practice for and with people with developmental and other disabilities, their families, and their communities by supporting our members in research, education, and service activities that achieve our vision. AUCD values the participation of people with disabilities, family members, and a culturally diverse
Autism Society
The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. They do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.
Love and Logic
The Love and Logic Institute is dedicated to making parenting and teaching fun and rewarding, instead of stressful and chaotic. They provide practical tools and techniques that help adults achieve respectful, healthy relationships with their children. All of their work is based on a psychologically sound parenting and teaching philosophy called Love and Logic. What Is Love and Logic? Children learn the best lessons when they're given a task and allowed to make their own choices (and fail) when the cost of failure is still small. Children's failures must be coupled with love and empathy from their parents and teachers.
Hannah’s Buddies
The Hannah's Buddies Charity Classic began in 2000 with John Bell of Widespread Panic deciding to help his goddaughter and tens of thousands of children in their fight against SMA. Today, the golf tournament, silent/auction and concert lineup attracts more than 2,000 participants and has raised nearly $2 million for SMA research. Spinal Muscular Atrophy is a neuromuscular disease that affects between 1 in 6,000 and 1 and 20,000 births. Over time, SMA causes muscles to become weak and considerably smaller. On average, 1 in 40 people are genetic carriers.
Fight SMA
Founded in 1991, FightSMA is a US-based international nonprofit organization working to find a cure for spinal muscular atrophy, (SMA), a neuromuscular disease that is the leading inherited killer of children under two.
Foundation for Mitochondrial Medicine
The Foundation for Mitochondrial Medicine pledges to support the development of the most promising mitochondrial disease research and treatments of the many forms of mitochondrial dysfunction. Formed in 2005 and renamed in 2010, their Atlanta-based non-profit organization financially supports the first FDA-approved drug treatments that began in early 2010. Stated simply: they're funding the cures. The foundation's stewards and founders are parents of patients and medical experts. The Foundation for Mitochondrial Medicine was created to accelerate the development of the most viable mitochondrial disease treatments and therapies.
The United Mitochondrial Disease Foundation
The UMDF's mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. The UMDF's website provides the latest news and information about issues relating to mitochondrial disease research and information. The UMDF also holds an annual international symposium that brings together the best physicians and researchers for patients and family members to gain valuable information. The UMDF also provides information about local fundraisers and educational programs. The UMDF advocates on the national level and empowers members to advocate on the local level regarding issues of medical
Mito Action
MitoAction's vision is to create a community of support that reaches every child, adult, and caregiver affected by a mitochondrial disease. Effective awareness and advocacy will guarantee that every patient has access to specialized care and a network of support and information that improves the journey for every individual affected.
Office of Rare Diseases
The ORDR Web site aims to answer questions about rare diseases and the activities of the ORDR for patients, their families, healthcare providers, researchers, educators, students, and anyone with concern for and interest in rare diseases. The site provides information about ORDR-sponsored biomedical research, scientific conferences, and rare and genetic diseases. It also serves as a portal to information on major topics of interest to the rare diseases community.
Hydrocephalus Association
The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. We strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.
Epilepsy Foundation
The Epilepsy Foundation of America® is the national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure.
International Rett Syndrome Association
The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
The Foundation for Children with Microcephaly
The Foundation for Children with Microcephaly is the only 501(c)(3) nonprofit organization in the United States dedicated to helping children and adults diagnosed with Microcephaly, Polymicrogyria, Lissencephaly and other closely related neurological disorders often get overlooked as well.
Squag
Squag [skwag] is an innovative social platform designed specifically for tweens and teens on the autism spectrum. Their goal is to facilitate the opportunity for organic relationships; driven by kids, supported by parents. (What could be better?)
Including Samuel
Before his son Samuel was diagnosed with cerebral palsy, photojournalist Dan Habib rarely thought about the inclusion of people with disabilities. Now he thinks about inclusion every day. Shot and produced over four years, Habib’s award-winning documentary film, Including Samuel, chronicles the Habib family’s efforts to include Samuel in every facet of their lives. The film honestly portrays his family’s hopes and struggles as well as the experiences of four other individuals with disabilities and their families. Including Samuel is a highly personal, passionately photographed film that captures the cultural and systemic barriers to inclusion.
Inclusion Network
This wonderful resource provides resources for Training, Consulting and Networking Facilitators.foster the development of inclusion. The focus is the development of future leadership for inclusion through the creation of focused programs, materials and research that will create a world where Everyone Belongs.
The Inclusive Class
We are crazy about the Inclusive Class! Nicole Eredics is pretty incredible, and her blog and podcasts are informative, interesting, and always just what we need. The inclusive classroom best demonstrates that message as it begins with the belief that all children belong. Each child can demonstrate and achieve success, in various ways, according to their abilities, strengths and areas for growth. Inclusive Class' Livebinder has an abundance of resources.
Paula Kluth: Toward Inclusive Classrooms and Communities
This website is dedicated to promoting inclusive schooling and exploring positive ways of supporting students with autism an other disabilities. Most of Paula Kluth's work involves collaborating with schools to create environments, lessons, and experiences that are inclusive, respectful, and accessible for all learners.
Wrightslaw
Wrightslaw's mission is to provide parents, advocates, educators, and attorneys with accurate, up-to date information about special education law and advocacy so they can be effective catalysts. * Information for parents about their rights and responsibilities * Information for teachers about professional training so they can meet the diverse needs of their students * Information for advocates about laws, regulations, and advocacy strategies * Information for attorneys who want cases, pleadings, and tactics and strategies
Office of Special Education Programs
The Office of Special Education Programs (OSEP) is dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21 by providing leadership and financial support to assist states and local districts. The Individuals with Disabilities Education Act (IDEA) authorizes formula grants to states, and discretionary grants to institutions of higher education and other non-profit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development and parent-training and information centers. The Individuals with Disabilities Education Improvement Act of 2004 was signed into law by President George W. Bush on December 3, 2004. As the nation's special education law, IDEA serves approximately 6.8 million children and
Office of Special Education and Rehabilitative Services
The Office of Special Education and Rehabilitative Services (OSERS) understands the many challenges still facing individuals with disabilities and their families. Therefore, OSERS is committed to improving results and outcomes for people with disabilities of all ages. OSERS supports programs that serve millions of children, youth and adults with disabilities. OSERS is comprised of the Office of the Assistant Secretary (OAS) and three program components: the Office of Special Education Programs (OSEP), theNational Institute on Disability and Rehabilitation Research (NIDRR), and theRehabilitation Services Administration (RSA).
US Department of Education
The mission of the U.S. Department of Education is to promote student achievement and preparation for global competitiveness by fostering educational excellence and ensuring equal access. It engages in four major types of activities: Establishes policies related to federal education funding, administers distribution of funds and monitors their use. Collects data and oversees research on America's schools. Identifies major issues in education and focuses national attention on them. Enforces federal laws prohibiting discrimination in programs that receive federal funds.
US DOE Associations and Organizations Resource Page
The Education Resource Organizations Directory (EROD) contains information on more then 3,000 national, regional and state education organizations and associations. The directory helps you identify and contact these organizations that provide information and assistance on a broad range of education-related topics.
Online Mendelian Inheritance in Man (OMIM)
OMIM is a comprehensive, authoritative, and timely compendium of human genes and genetic phenotypes. The full-text, referenced overviews in OMIM contain information on all known mendelian disorders and over 12,000 genes. OMIM focuses on the relationship between phenotype and genotype. It is updated daily, and the entries contain copious links to other genetics resources.
United States International Council on Disabilities
The U.S. International Council on Disabilities (USICD) is a non-profit, membership, constituent-led organization committed to building bridges between American and international disability communities and cultures. Through a wide range of projects and programs, USICD promotes the inclusion of disability perspectives in U.S. foreign policy and aid and provides opportunities for domestic disability rights organizations to interface with their international counterparts. USICD’s major initiatives leverage a membership that spans organizations and individuals in more than 30 U.S. states and a number of foreign countries. USICD's Board of Directors includes leading experts in domestic and international disability issues.
World Institute on Disability
The mission of the World Institute on Disability (WID) in communities and nations worldwide is to eliminate barriers to full social integration and increase employment, economic security and health care for persons with disabilities. The World Institute on Disability (WID) creates innovative programs and tools; conducts research, public education, training and advocacy campaigns; and provides technical assistance. The World Institute on Disabilities spearheads initiatives in four main categories: health and wellness, employment and benefits, climate change and disaster prep, and international. The Values of the World Institute on Disabilities are listed below. Working toward Equality The World Institute on Disability aspires to work
United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. UCP and its nearly 100 affiliates have a mission to advance the independence, productivity and full citizenship of people with a spectrum of disabilities by providing services and support to children and adults every day—one person and family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities to ensure the inclusion of individuals with disabilities in every facet of society.
Technology & Telecommunications Task Force
The Telecommunications and Technology Task Force, part of the Consortium for Citizens with Disabilities deals with issues related to access to telecommunications and assistive technology in education, employment and independent living.
Spina Bifida Association of America (SBAA)
The Spina Bifida Association (SBA) serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service.
SABE – Self Advocates Becoming Empowered
Self Advocates Becoming Empowered (SABE) is the self-advocacy organization of the United States. Founded in 1990, we have been working hard for the full inclusion of people with developmental disabilities in the community throughout the 50 states and the world for 21 years. Our non-profit advocacy organization is run by a board of self-advocates representing 9 regions of the country.
RESNA
Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) RESNA's goal is "To maximize the health and well being of people with disabilities through technology." The purpose of RESNA is to contribute to the public welfare through scientific, literary, professional and educational activities by supporting the development,dissemination, and utilization of knowledge and practice of rehabilitation and assistive technology in order to achieve the highest quality of life for all citizens.
Rights Task Force
The Rights Task Force is part of The Consortium for Citizens with Disabilities and focuses on civil rights and protections for people with disabilities, and for enforcement of rights provisions by federal agencies. Issues covered include the Americans with Disabilities Act (ADA), Section 504, and protections secured through the Individuals with Disablities Education Act (IDEA)
President’s Committee for People with Intellectual Disabilities
The mission of PCPID is to provide advice and assistance to the President of the United States and the Secretary of Health and Human Services on a broad range of topics that impact people with intellectual disabilities and the field of Intellectual Disabilities. Undergirding the Committee’s mission is the goal to improve the quality of life that is experienced by people with intellectual disabilities, by upholding their full citizenship rights, independence, self-determination, and life-long participation in their respective communities.
Office for Civil Rights
The mission of the Office for Civil Rights is to ensure equal access to education and to promote educational excellence throughout the nation through vigorous enforcement of civil rights. An important responsibility is resolving complaints of discrimination. OCR also provides technical assistance to help institutions achieve voluntary compliance with the civil rights laws that OCR enforces. An important part of OCR's assistance is partnerships designed to develop creative approaches to preventing and addressing discrimination.
NORD – National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
National Information Center for Children & Youth with Disabilities
NICHCY serves the nation as a central source of information on: ■disabilities in children and youth; ■programs and services for infants, children, and youth with disabilities; ■IDEA, the nation’s special education law; and ■research-based information on effective practices for children with disabilities.
National Fragile X Foundation
The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X.
The National Down Syndrome Society
The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.
The National Down Syndrome Congress
The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.The vision of the NDSC is a world with equal rights and opportunities for people with Down syndrome.It is the purpose of the National Down Syndrome Congress to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.
The National Association for the Dually Diagnosed
NADD is a not-for-profit membership association established for professionals, care providers and families to promote understanding of and services for individuals who have developmental disabilities and mental health needs. The mission of NADD is to advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care. NADD's Mission "To advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care."
Will A $35 Product Change Multi-billion-dollar Indian Education System
Education has always been a high priority for the Indian government. Although the percentage of GDP (gross domestic product) spent by India on education lags behind the developed countries, it has increased over the past years. The Right to Education Act
The National Association of Parents with Children in Special Education
The National Association of Parents with Children in Special Education (NAPCSE) is a national membership organization dedicated to rendering all possible support and assistance to parents whose children receive special education services, both in and outside of school. NAPCSE was founded for parents with children with special needs to promote a sense of community and provide a national forum for their ideas.
Disability Rights Education and Defense Fund
The Disability Rights Education and Defense Fund, founded in 1979, is a leading national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities. The mission of the Disability Rights Education and Defense Fund is to advance the civil and human rights of people with disabilities through legal advocacy, training, education, and public policy and legislative development.
Special Olympics International
The Special Olympics mission remains as vital today as it did when the movement was founded in 1968. Through the power of sport, Special Olympics strives to create a better world by fostering the acceptance and inclusion of all people. Mission Statement The mission of Special Olympics is to provide year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in a sharing of gifts, skills and friendship with their families, other Special Olympics athletes and the
Stories From The Road | Chapter Eight | “On Common Ground”
"On Common Ground": While in Houston to speak to teens at "Stand Up! For Inclusion" a conference aimed at inspiring youth to make a difference in the world, Larry takes time to exchange creative ideas with a young artist.
Stories From The Road | Chapter Thirteen | “The End Of The Road”
"The End Of The Road": Larry and Tracy take time to reflect on their spiritual journey of disability awareness as they prepare for the theatrical premiere if their film, "Wretches & Jabberers" in New York City.
Stories From The Road | Chapter Nine | “Lightning Rods”
"Lightning Rods": The Vermonters meet up with Stephen Kuusisto, author of "Planet of the Blind". He interviews Larry and Tracy about the journey they took while making "Wretches & Jabberers" and shares a few insights of his own about his disability.
Stories From The Road | Chapter Ten | “Apple Store Adventures”
"Apple Store Adventures": While in New York City to promote the theatrical release of the film, the Vermonters take an opportunity to visit the Apple Store and try out the new iPad 2.
Stories From The Road | Chapter Seven | “Stand Up! For Inclusion”
"Stand Up! For Inclusion": Larry, Tracy, Harvey & Pascal speak to teens in Houston at the 26th Annual BBYO Lonestar Convention. The theme of this year's convention is "Stand Up! For Inclusion" to inspire youth to make a difference in the world around them.
Stories From The Road | Chapter Twelve | “All That’s Newsworthy”
From our friends at Stories from the Road, "All That's Newsworthy": Larry and Tracy join director Gerardine Wurzburg on the WPIX Channel 11 Morning News to discuss the upcoming theatrical release of their documentary 'Wretches & Jabberers'. The guys get the star treatment as they share their experiences with anchor Jim Watkins.
Stories From The Road | Chapter Eleven | “Teaching The Teachers”
"Teaching The Teachers": The Vermonters are invited to speak at Teachers College at Columbia University. A subway ride brings them to their destination as they find open minds, caring hearts, and an invitation for beer!
Stories From The Road | Chapter Six | “Mile-High Marvels”
"Mile-High Marvels": Larry, Tracy, Harvey & Pascal are asked to speak about their experiences making "Wretches & Jabberers" at the 35th Annual TASH Conference held in Denver, Colorado.
Stories From The Road | Chapter Five | “A Small World After All”
More from the amazing W & J and State of the Art/Dan Curl. "A Small World After All": Tracy invites Finnish friends Henna and Antti to join him at his monthly task force meeting at Community Developmental Services in Barre, VT. Here other people with autism advocate for people with communication challenges, quality of life initiatives, and increase public awareness.
Stories From The Road | Chapter Four | “Breakfast at Larry’s”
From our friends at Wretches & Jabberers, "Breakfast at Larry's": Larry invites visiting international friends Chammi, Antti & Henna to his home for a traditional Vermonter breakfast. With the help of his sister Sally, Larry hosts a meal not soon forgotten!
Stories From The Road | Chapter Three | “Wretches Reunite”Stories From The Road | Chapter Three | “Wretches Reunite”
"Wretches & Jabberers" co-stars from Finland and Sri Lanka descend upon Burlington, Vermont to visit Larry and Tracy and discuss how the film has impacted their lives.
Stories From The Road | Chapter One | “A Night With The Stars”
"A Night With The Stars": Larry, Tracy, Harvey & Pascal take to the road to promote a new documentary titled "Wretches & Jabberers" following their recent "World Intelligence Magnified Tour". Their first stop is Syracuse, NY where they meet with the Disability Cultural Center Initiative at Syracuse University and answer questions about the film.
Stories From The Road | Chapter Two | “Syracuse International Film Festival”
"Syracuse International Film Festival": Larry, Tracy, Harvey & Pascal on the road to promoting "Wretches & Jabberers" following their recent "World Intelligence Magnified Tour". Their second stop was Syracuse, NY is to present the film and their personal narratives at the Syracuse International Film Festival.
60 Minutes: Studying Autism and iPads
Canadian professor Rhonda McEwen studies the use of iPads by autistic children in Toronto's Beverley School. She tells 60 Minutes Lesley Stahl that progress is slow, but learning to "play with language" is the first step.
Apps for Autism on 60 Minutes
People with autism whose condition prevents them from speaking are making breakthroughs with the help of tablet computers and special applications that allow them to communicate, some for the first time. Lesley Stahl reports.
Hearing Loss in the Classroom
Great simulation by Pediatric Audiology Project on what it's like to be hearing impaired in the classroom. It's much harder than you think!
Releasing the Music In Your Head
Dan Ellsey and Tod Macchover on TED Talks, Macchover (the man behind Guitar Hero) of MIT's Media Lab , talks about Hyper Score. Ellsey,a composer with cerebral palsy uses some new tools to write and perform his own beautiful music. Very cool.
On Beauty
We are in love with 'On Beauty" the documentary by Joanna Rudnick. She follows the talented Rick Guidotti as he challenges public perception of difference and beauty through the lives of three exquisite women.
The Miracle Project
Check out this trailer from the Emmy winning documentary, The Miracle Project. We should ALL have the opportunity to perform, participate, and find our gifts. Get involved with The Miracle Project ww.themiracleproject.org.
The Making of Sensitive
From The Miracle Project..the making of "Sensitive", a song about bullies. Wyatt Isaacs sings with Jack Black. Stephen Stills produces it a la sex pistols, with his signature guitar! Learn more about The Miracle Project at www.themiracleproject.org , you will love it as much as we do!
Classroom Simulation of Student Who Is Deaf or Hard of Hearing
An amazing simulation of what speech sounds like for hearing impaired student by the Vermont Center for Deaf and Hard of Hearing, Inc. You will be shocked! This simulation allows you to experience the challenges a hearing impaired student faces in the classroom, with and without a personal FM sytem. We had no idea it was this hard for hearing impaired students to hear what's being said in a typical classroom environment.
Carly Fleischman on 20/20
Carly Fleischmann, on 20/20 in 2009. Carly is diagnosed with autism and types to communicate. She is an incredibly intelligent self-advocate who is helping change how the world sees people who communicate differently. We are huge fans! Please check out her website for more information http://carlysvoice.com.
“The Genetics of SMA” Translated into Spanish.
Families of Spinal Muscular Atrophy Releases “The Genetics of SMA” Care Series Booklet Translated into Spanish.
Institute on Communication and Inclusion
The Institute on Communication and Inclusion (ICI) is a research and training center that is part of the Inclusion Institutes of the School of Education at Syracuse University. Formerly the Facilitated Communication Insitute, our new name - the Institute on Communication and Inclusion - represents a broadened focus developed over the past 20 years, reflecting lines of research, training and public dissemination that focus on school and community inclusion, narratives of disability and ability, and disability rights, as well as research and training on faciltiated communication. Its initiatives stress the important relationship of communication to inclusion. Led by Director
Kit( Kids Included Together)
Kids Included Together (KIT) specializes in providing best practices training for community–based organizations committed to including children with and without disabilities into their recreational, child development and youth development programs. Utilizing a blended learning style with interactive eLearning components, KIT’s services are provided free of charge to its 63 affiliate organizations representing over 304 sites in San Diego County. Since its inception in 1997, Kids Included Together (KIT) has trained over 25,000 youth providers in the best practices of inclusion. Over 15,000 children with disabilities have been co–enrolled with over 265,000 children without disabilities at KIT affiliate sites. 72% of
People First
People First is an organization run by and for people with learning difficulties to raise awareness of and campaign for the rights of people with learning difficulties and to support self advocacy groups across the country. People First promotes the social model of disability. This is a way of thinking about disability that says it is society that needs to change to include disabled people. We should not have to change to fit in with society. We are against the medical model of disability, which is the view that being disabled means there is ‘something wrong’ with you. Doctors and
National Association of the Deaf (NAD)
The NAD is the nation's premier civil rights organization of, by and for deaf and hard of hearing individuals in the United States of America. Established in 1880, the NAD was shaped by deaf leaders who believed in the right of the American deaf community to use sign language, to congregate on issues important to them, and to have its interests represented at the national level. These beliefs remain true to this day, with American Sign Language as a core value. The advocacy scope of the NAD is broad, covering a lifetime and impacting future generations in the areas of
The National Association of Councils on Developmental Disabilities
The National Association of Councils on Developmental Disabilities (NACDD) is a national membership organization representing the 55 State and Territorial Councils on Developmental Disabilities. NACDD is a 501(c) 3 organization with the purpose of promoting and enhancing the outcomes of our member councils in developing and sustaining inclusive communities and self directed services and supports for individuals with developmental disabilities.
National Arts and Disability Center
The National Arts and Disability Center (NADC) is a project of the University of California: their mission is to promote the full inclusion of audiences and artists with disabilities into all facets of the arts community. The NADC is a leading consultant in the arts and disability community, and the only center of its kind. Recipients of our technical assistance include museums, performing arts organizations, art centers, film and television companies and unions, universities and colleges, national publications, disability specific groups, artists with disabilities, arts educators, students, arts administrators and government policy makers.
Muscular Dystrophy Association
The Muscular Dystrophy Association, MDA http://www.mda.org/ MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education. With national headquarters in Tucson, MDA has more than 200 offices across the country, sponsors some 200 hospital-affiliated clinics and supports more than 330 research projects around the world. MDA supports more research on neuromuscular diseases than any other private-sector
Institute for Community Inclusion
The Institute for Community Inclusion offers training, clinical, and employment services, conducts research, and provides assistance to organizations to promote inclusion of people with disabilities in school, work, and community activities. For over 40 years, the Institute for Community Inclusion (ICI) has worked to ensure that people with disabilities have the same opportunity to dream big, and make their dreams a fully included, integrated, and welcomed reality. As a leader not only in Massachusetts, but also nationally and internationally, the Institute for Community Inclusion strives to create a world where all people with disabilities are welcome and fully included in valued roles wherever
Disability.gov
Disability.gov is a federal government website that provides an interactive, community-driven information network of disability-related programs, services, laws and benefits. Through the site, Americans with disabilities, their families, veterans, educators, employers and many others are connected to thousands of resources from federal, state and local government agencies, educational institutions and non-profit organizations.
TASH- Disability Advocacy Worldwide
TASH is an international leader in disability advocacy. Founded in 1975, TASH advocates for human rights and inclusion for people with significant disabilities and support needs – those most vulnerable to segregation, abuse, neglect and institutionalization. TASH works to advance inclusive communities through advocacy, research, professional development, policy, and information and resources for parents, families and self-advocates. The inclusive practices TASH validates through research have been shown to improve outcomes for all people. TASH is governed by a board of directors and is supported by a network of members, volunteers, committees and chapter organizations. The TASH membership includes a diverse
Council of Parent Attorneys and Advocates
The Council of Parent Attorneys and Advocates’ mission is to be a national voice for special education rights and to promote excellence in advocacy. Their primary goal is to secure high quality educational services for children with disabilities. The Council of Parent Attorneys and Advocates (COPAA) is premised on the belief that the key to effective educational programs for children with disabilities is collaboration -as equals- by parents and educators. This is the premise of the Individuals with Disabilities Education Act (IDEA) and Section 504 of the 1973 Rehabilitation Act, the federal statutes that guarantee children with disabilities a free, appropriate
Council for Exceptional Children
The Council for Exceptional Children is an international community of professionals who are the voice and vision of special and gifted education. CEC's mission is to improve, through excellence and advocacy, the education and quality of life for children and youth with exceptionalities and to enhance the engagement of their families. The Council for Exceptional Children is a premier education organization, internationally renowned for its expertise and leadership, working collaboratively with strategic partners to ensure that children and youth with exceptionalities are valued and full participating members of society. As a diverse and vibrant professional community, CEC is a trusted
The Council on Quality and Leadership
The Council on Quality and Leadership is leader for person-centered supports and services for people with disabilities, people with mental illness and older adults. Through our services, publications and public presence, we establish real connections between theory and practice and help organizations and systems take the important step from innovative ideas to everyday action. Our goal is to be partners and mentors to our customers, showing them how they can become even better at ensuring that all people lead lives of dignity and quality.
Consortium for Citizens with Disabilities
The Consortium for Citizens with Disabilities is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The Consortium for Citizens with Disabilities (CCD) envisions an American society in which all individuals, aided by an enabling government, have the freedom and opportunity to exercise individual decisions concerning their own lives, welfare and personal dignity. CCD envisions a society in which communities are fully accessible to all individuals with disabilities and their families, where
Best Buddies International
Best Buddies is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities (IDD). Founded in 1989 by Anthony Kennedy Shriver, Best Buddies is a vibrant, international organization that has grown from one original chapter to almost 1,500 middle school, high school, and college chapters worldwide. Best Buddies programs engage participants in each of the 50 United States, and in 50 countries around the world. Best Buddies’ seven formal programs – Best Buddies Middle Schools, High Schools, Colleges, Citizens, e-Buddies, Jobs
Benefits.gov
Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. The program's mission is to reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information. The site's core function is the eligibility prescreening questionnaire. Answers to the questionnaire are used to evaluate and compare with the eligibility criteria for more than 1,000 Federally-funded benefit and assistance programs. Each program description provides citizens with the next steps to apply for any benefit program of interest.
Autism Support Network
The mission of Autism Support Network is to connect, guide and unite. Their goal is to short-cut the uphill battle individuals and families undertake when faced with autism – whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information. Their support community collectively pools global knowledge and support from all those touched by ASD. Designed as a place by those living with ASD, for those with ASD, and those seeking social connection, peer guidance, and a feeling of community with those that understand.
Autism Society of America
The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. They do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.
Association of Assistive Technology Act Programs
The Association of Assistive Technology Act Programs (ATAP) is a national, member-based organization, comprised of state Assistive Technology Act Programs funded under the Assistive Technology Act (AT Act). ATAP was established in 1997 to provide support to state AT Program members to enhance the effectiveness of AT Programs on the state and local level, and promote the national network of AT Programs. ATAP facilitates the coordination of state AT Programs nationally and provides technical assistance and support to its members. ATAP represents the needs and interests of the state AT Programs and is the national voice of the AT Programs.
The Arc of the United States
The Arc promotes and protects the human rights of people with intellectual and developmental disabilities by actively supporting their full inclusion and participation in the community throughout their lifetimes.People with intellectual and developmental disabilities are entitled to the respect, dignity, equality, safety, and security accorded to other members of society, and are equal before the law. The Arc believes that people with intellectual and developmental disabilities belong in the community and have fundamental moral, civil and constitutional rights to be fully included and actively participate in all aspects of society and supports their self-determination and self-advocacy. People with intellectual and
ADA Portal
The ADA Document Portal Allows users to search a collection of ADA-related documents that have been produced by federal agencies and organizations receiving federal funds.
The Association of University Centers on Disabilities (AUCD)
The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. These programs are located in every U.S. state and territory and are all part of universities or medical centers and serve as a bridge between the university and the community, bringing together the resources of both to achieve meaningful change. AUCD programs also train the next generation of leaders in disability-related research, training, service delivery, and policy advocacy to insure that this essential work continues.
American Association of People with Disabilities
The American Association of People with Disabilities is the nation's largest cross-disability organization. They promote equal opportunity, economic power, independent living, and political participation for people with disabilities. Their members, including people with disabilities and their family, friends, and supporters, represent a powerful force for change. Over 50 million Americans with disabilities and their supporters have the power to achieve full civil rights for all. They are powered by their vision of a community whose voice is heard through the halls of government, in our culture, and in our communities.
Charter Schools Excluding Students with Significant Disabilities in Florida
A new report by the Miami Herald and StateImpact Florida – a National Public Radio initiative - confirms CEC’s ongoing concern that many charter schools are failing to serve students with disabilities, particularly students with significant disabilities
Consortium for Citizens with Disabilities
The Consortium for Citizens with Disabilities is a Coalition of national consumer, advocacy, provider and professional organizations headquartered in Washington, D.C. Since 1973, the CCD has advocated on behalf of people of all ages with physical and mental disabilities and their families. CCD has worked to achieve federal legislation and regulations that assure that the 54 million children and adults with disabilities are fully integrated into the mainstream of society. CCD does this by: Identifying and researching public policy issues, developing testimony and policy recommendations and encouraging innovative solutions to public policy concerns. Educating members of Congress in an effort
Ad Hoc Developmental Disabilities Task Force
The Ad Hoc Developmental Disabilities Task Force monitors the Developmental Disabilities Bill of Rights Act and the administration of the program through the Administration on Developmental Disabilities. The Act is authorized every three years and regulations and policy guidelines are developed based on the statute. The Task Force also reviews other developmental disability related issues.
AAIDD
The American Association on Intellectual & Developmental Disabilities promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.
The Inclusion Movement Around the Globe
There's a great podcast and article about UNICEF in Russia's efforts to foster the right for all children to receive an inclusive education. UNICEF podcast moderator Femi Oke talked to Ms. Elina Lehtomaki, Researcher at the University of Jyväskylä in Finland and a pioneer in the field of inclusive education.
The Gift of Knowledge
It’s been a couple of years now that I’ve been blogging about special education legal issues. Unfortunately, the realities of juggling a busy law practice, a family, and other professional commitments don’t allow me to do it enough, and I continue to ye
Respect: The Joy of Aides
Respect: The Joy of Aides is a new documentary exploring the relationship between people with disabilities and their aides by Eva Sweeney.
Loving Lamposts, A Documentary by Todd Drezner
We love this documentary about autism by Todd Drezner.
WERE $50,000 PER YEAR DC PRIVATE SCHOOL ESE KIDS ILL-SERVED BY DCPS?
Washington Post E.W. — that’s how he is identified in the report — is an 8-year-old diagnosed with trauma and post-traumatic stress whom the District placed at Rock Creek.. That’s the private special education school in upper Northwest closed by OSSE earlier this month after an investigation revealed many problems, including staff members who improperly restrained or isolated exceptional education students. On May 23, according to a Rock Creek employee who came forward to OSSE, E.W. arrived at school without his medication, leaving him “running around aimlessly, knocking over chairs and books, and hitting the wall.” He was placed in a
Autism Now: MacNeil Interviews Director of Education
An extended transcript excerpt of , PBS' Robert MacNeil's interview with Jesse Mojica, director of education policy for the Bronx borough president, on treatment and education for children with autism.
Autism Now : MacNeil Interviews Principal at Autism Charter School
An extended transcript excerpt from Robert MacNeil's interview with Rima Ritholtz, principal of PS 176, charter school in the Bronx can be found on PBS.org. Ritholtz discusses the schooling and treatment options for those with autism. She says approximately 10 out 700 students are able to return to general education.
University Students Design Tray to Fit Most Walkers and Wheelchairs
THE GRAND RAPIDS PRESS At 5 years old, Dakota Tomac wants to do things himself. He doesn’t want his cerebral palsy to require others to carry his book or figure out how he will get his lunch on the table. His independent spirit got a boost with a tool created by Grand Valley State University students, thanks to an idea from a physical therapist at the Kent Intermediate School District. The students made a tray that fits onto Dakota’s walker so he could move around at school and carry his iPad, which helps him communicate. “It’s so
From Skin Cells to Motor Neurons
HARVARD GAZETTE Harvard researchers have succeeded in reprogramming adult mouse skin cells directly into the type of motor neurons damaged in amyotrophic lateral sclerosis (ALS), best known as Lou Gehrig's disease, and spinal muscular atropy (SMA). These new cells, which researchers are calling induced motor neurons (iMNs), can be used to study the development of the paralyzing diseases and to develop treatments for them. “One of the utilities [of this new method for producing motor neurons] is it makes a much more rapid way to grow motor neurons. This could allow us to test very rapidly whether a new therapeutic is
Autism: The Musical
AUTISM: THE MUSICAL counters todays bleak statistics with one womans optimistic pledge to lead a group of autistic children in defying diagnosed expectations by writing, rehearsing and performing their own full-length musical.
Brain’s Synaptic Pruning Continues Into Your 20s
Pasko Rakic at Yale University and colleagues at the University of Zagreb, Croatia, and the VU University Medical Center in Amsterdam, the Netherlands, have now found that the brains of adults in their 20s are still subject to synaptic pruning.
Celiac Disease
Gluten Intolerance and Celiac Disease Gluten Intolerance and Celiac Disease can have similar symptoms. However, gluten intolerance does not classify as an auto-immune disease. A study by the University of Maryland identifies the pathogenic differences of the two disorders. The study also demonstrates that gluten sensitivity and celiac disease are part of a spectrum of gluten-related disorders. Gluten refers to certain proteins found in wheat, rye, and barley. People with Gluten Intolerance and Celiac Disease cannot tolerate the proteins found in foods containing these grains, and eating them can cause serious health problems, including malnourishment, chronic fatigue and damage to the small intestine.
A Mother’s Determination And Next Generation Sequencing
When Noah and Alexis Beery were diagnosed with cerebral palsy at age 2, their parents thought they at last had an answer to the problems that had plagued their twin infants from birth. However, that proved only a way station on a journey to find an answer to the children's problems that combined their mother's determination, the high tech world of next-generation sequencing in the Baylor Human Genome Sequencing Center (HGSC) and the efforts of talented physicians from across the country. When the twins reached age 4, it became apparent to their parents that the diagnosis of cerebral palsy did not match the problems
Sprout
For more information about incredible films related to disabilities, check out Sprout, programs for people with disabilities. Sproutflix features films from around the world that focus on the lives and accomplishments of people with developmental disabilities.
Occupational and Physical Therapy Collaboration
"Occupational therapists and physical therapists function in slightly differing roles depending upon whether services are performed in a clinical or educational setting," explains Samuel Merritt University adjunct instructor Robin Wu, OTR/L. "Other than having an extra set of hands, co-treats cut down on overall treatment time and offer patients a more all-inclusive approach to therapy." According to Samuel Merritt University faculty in the Master of Occupational Therapy (MOT) and Doctor of Physical Therapy (DPT) programs, collaboration between occupational and physical therapists in both the educational and clinical settings ensures high quality and comprehensive care, and contributes to program planning. Collaboration between the various disciplines
Student Software Opens World For Motion Impaired
49-year-old Rick Hoyt has cerebral palsy and communicates using assistive technology. Hoyt has collaborated with Margrit Betke, a College of Arts & Sciences associate professor of computer science, and James Gips, a Boston College professor of computer science and their students. Camera Mouse, is an augmentative communication tool for people with movement and communication challenges. Cameramouse uses a webcam to lock onto and track a chosen section of the user’s face—a nostril or the tip of an eyebrow, for example—and then links that person’s head movement to a cursor on the screen. Chris Kwan and John Magee , graduate students in
Hold My Hand
The documentary,"Hold My Hand", follows Eliza Schaaf, a young woman with Down Syndrome, who was raised under the principle of inclusion. Schaaf was dropped from her ceramics class by Southern Oregon University. SOU sited she required excessive supervision and limited her classmates time for instruction. Schaaf denies this and her classmates signed a petition refuting this fact and asked that she be reinstated. "Hold My Hand",made by four students at Chapman University, Ruby Stocking, Bobby Moser, James Parker, and Virginia Thomasi, looks at the impact of being excluded from her class, but also covers the importance of inclusion for all members of society. Schaaf's website offers
The Affordable Care Act
Senior advisor to the President Valerie Jarrett and Secretary of Health and Human Services Kathleen Sebelius speak to parents, advocates and experts at an Autism Awareness Month Conference.
IDEA Money Watch Responds to Something’s Got to Change
In June 2011, the American Enterprise Institute (AIE) released “Something Has Got to Change: Rethinking Special Education,” a paper that examines special education spending and seeks to offer practical solutions to “tame out-of-control special education spending while serving special-needs students better.” IDEA Money Watch responds to the points AIE brings up. AEI also provided a teleconference during which the paper’s author, Nathan Levenson, presented a brief overview and responded to questions. Full Article at IDEA Money Watch
Best and Worst States for Disability Services
UCP's invaluable analysis of Medicaid for individuals with intellectual and developmental disabilities reports that progress is being made for community inclusion, but every state has room for improvement. According to the report Vermont provides the best services for individuals with disabilities and Missippi provides the worst. There are still approximately 58,000 individuals with intellectual and developmental disabilities living in facilities with 16 or more beds.Too much money is being spent isolating people in these large instititutions and the waiting lists for services has also increased dramatically, up 56% from 2005 to 2009. Top ten states in terms of quality of
The Pearls Project-Teaching Empathy
Students at Ridgewood High School were shown photos of young people with genetic disorders and told not to look away. The unusual lessons are part of a new effort, called the Pearls Project, to promote tolerance and empathy in a school culture where being different can mean social exile. Ridgewood teachers developed it this year in partnership with Positive Exposure, a nonprofit group in New York City founded by Rick Guidotti, a fashion photographer. “Genetic conditions are depicted as images of sickness and sorrow — it’s always a kid up against the wall in a doctor’s office,” Mr. Guidotti said.
Toronto Police Defend Handcuffing a 9 Year Old Child with Autism
CTV reports that a 9 year-old boy with Asperger's Syndrome was handcuffed by police officers responding to 911 calls from Toronto's Fairbank Memorial Day Care Center about an "uncontrollable autistic boy" . Toronto police officers are defending their decision to handcuff the 9 year old child. On July 28th the police received two calls from the day care center where the child was reportedly was throwing chairs, tables, and yes, even paint. Reports say the child was upset after being bullied by other children during lunch about his disability. The school placed him in an empty classroom after
The Importance of Special Needs Trusts
One of the most important move parents of children with special needs can make is to set up a special-needs trust, also known as a supplemental-needs trust. This is crucial, financial planners say, because a child can be denied significant Medicaid and Social Security benefits if more than $2,000 of assets are in his or her name, excluding a residence, car and basic personal items. Proper planning is key for funding for special-needs trusts for children with special needs. Funding for the trusts typically comes mainly from the parents' life insurance. Money can also be placed in a special-needs trust
Computer Based Program May Relieve Some ADHD Symptoms
Children can experience the relief of some symptoms of attention deficit hyperactivity disorder (ADHD) by participating in an intensive memory training program based on software designed to improve their working memory. Researchers at Ohio State University found that the program had a significant impact on many children with ADHD, particularly in the areas of attention, planning, organization, and working memory. The software was developed in Sweden by Cogmed in partnership with the Karolinska Institute. The software comprises 25 progressively more challenging exercises in the form of a computer game to be completed by children with ADHD within five to six weeks
IQ Scores Inaccurate Portrayal Of Intelligence for Individuals with Autism
A discrepancy between IQ scores and performance on academic tests has been identified in 90 percent of high-functioning children with autism. A study at the University of Washington's Autism Center concluded that many children with autism can gain the sense of self-worth associated with academic achievement. Improvements in the diagnosis of autism and the greater incidence of early intervention have resulted in more children ranked in the high-functioning range of the disorder. These children have average or above average IQs and are able to take advantage of regular classroom activities when early interventions are used to improve their social
Handwriting and Autism
New Study Affirms Handwriting Problems Affect Children with Autism into the Teenage Years Researchers at the Kennedy Krieger Institute have found that handwriting problems exhibited by children with autism tend to continue when these children become teenagers. In 2009, the first research study examining the quality of handwriting in children with autism was conducted and discovered that level of motor skills predicted handwriting problems. The new research reveals that, like younger children with autism those aged 12 to 16 also have handwriting problems when compared to normally developing teenagers. In teenagers with autism, however, perceptual reasoning, or the ability
Who’s Leading Your Individualized Education Program (IEP)? The Importance of Self Advocacy – Part 2 of 2
This is Part 2 in a two-part blog post by Emalie Fogg provides guidance and resources for youth on how to get involved and take a lead in their own Individualized Education Program (IEP). When we’re growing up, our families, teachers, and adults make most of the decisions about our lives. As we become teenagers it’s important to start participating in the decision-making so that as we near adulthood, we’re ready to decide things for ourselves. No one knows better than you do what you want for your life today and in the future (your goals), what you’re good at
The brain in myotonic dystrophy 1 and 2: evidence for a predominant white matter disease
Myotonic dystrophy types 1 and 2 are progressive multisystemic disorders with potential brain involvement. We compared 22 myotonic dystrophy type 1 and 22 myotonic dystrophy type 2 clinically and neuropsychologically well-characterized patients and a c
The Advocacy Center
The Advocacy Center empowers individuals with disabilities and their families to advocate for themselves and realize their personal goals. Together we build strong, inclusive communities by increasing the ability of community members to support and value all individuals.
Wretches & Jabberers Tampa Screening
The " World Intelligence Magnified Tour" took Tampa by storm. The screenings of Wretches & Jabberers the weekend of June 10 were an enormous success.
National Council on Disability Report Examines How to Improve Access to Health Care, Special Education and Services for USMC Family Members with Disabilities
WASHINGTON, Nov. 28, 2011 /PRNewswire-USNewswire/ -- On November 28, the National Council on Disability (NCD) will release "United States Marine Corps Exceptional Family Members: How to Improve Access to Health Care, Special Education, and Long-term Supp
Ollibean Art for Change: Wretches & Jabberers Screening and Q & A at Tampa Museum of Art
Ollibean Art for Change: Wretches & Jabberers Screening and Q & A at Tampa Museum of Art from Scott Englert on Vimeo.
Ollibean Art for Change: Wretches & Jabberers Screening and Q & A at Tampa Theatre
Academy Award winner, Gerardine Wurzburg's documentary, "Wretches & Jabberers ", Screening and Q & A at Tampa Theatre . The rockstars of self advocacy, Tracy Thresher and Larry Bissonnette take Tampa by storm, shattering misconceptions of autism and intelligence.
Wretches and Jabberers at Tampa Museum of Art
Academy Award winner, Gerardine Wurzburg's documentary, "Wretches & Jabberers ", Screening and Q & A at Tampa Theatre . The rockstars of self advocacy, Tracy Thresher and Larry Bissonnette take Tampa by storm, shattering misconceptions of autism and intelligence.
Saving Grace: A who-dunit solved with clues from the Middle East
Vector Blog of Children’s Hospital Boston recently family’s experience with a very rare neurological condition called Microcephaly (small head size) with Seizures (MCSZ). The disease had never been seen outside of the Middle East, but researchers at Chil
The King’s Speech
We love this beautiful movie based on the true story of King George VI. After the death of his father King George V (Michael Gambon) and the scandalous abdication of King Edward VIII (Guy Pearce), Bertie (Colin Firth) who has suffered from a debilitating speech impediment all his life, is suddenly crowned King George VI of England. With his country on the brink of war and in desperate need of a leader, his wife, Elizabeth (Helena Bonham Carter), the future Queen Mother, arranges for her husband to see an eccentric speech therapist, Lionel Logue (Geoffrey Rush). After a rough start,
A Few of Our Favorite Things
There are so many products, doctors, therapies, and places out there that can help. Here's a list of some of our favorites. We'd love to know what your Favorites are and why. Shoot us an email at olli@ollibean.org and spread the love.
