We love “Love Explosions”
"Love Explosions" by the wonderful Beth Ryan is on our love list. The blog had us at the description - "When the love for your child overwhelms you." You may already be familiar with the enormously popular and helpful FB page - Parenting Autistic Children with Love and Acceptance, which had us at "name" :). Go check them both out.
Fear, Anxiety and Autistic “Behavior”
When it comes to autism and "behaviors" it's better to understand and work with -- not on--the autistic person who is employing the behavior.
Autism and Public Perception
Autism and Public Perception by Judy Endow Today we have added something to our public perception of autism. Historically that perception has been one of an isolated small child rocking or head banging, oblivious to the rest of the world. Even though that perception is wrong, it is the public perception. There is an addition to that perception in the past few years. It seems society has added an adult image of autism. It is another false image, but never-the-less, quickly becoming an accepted public image of what it means to be an adult autistic. Unfortunately for
A Vibrant Mind Hidden In Plain Sight
Martin Pistorius, author of the New York Times best-seller, Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body delivers one of the most impressive and thought provoking Ted Talks ever. Martin Pistorius' story serves as an urgent call to action to change our assumptions about verbal speech and intellectual capacity. It also reinforces the absolute necessity to treat each human with dignity and respect. How many people are waiting right now for someone to acknowledge their means of communication? How many are waiting for someone to talk to them respectfully and then to listen and watch for subtle movements-
Good Morning America: Called Out
As an autistic person I have my share of differences. Any time I am a way that the majority of people are not it is labeled “a difference.” Growing up and continuing on in adult life I learned that in general society does not consider my differences a good thing. In fact, it has often been considered good sport to poke fun of me for my differences. This happens to all people who deviate from the coveted standard of “normal.” Any difference is teased, mocked and ridiculed. If you are a larger or smaller, taller or shorter, faster or slower,
Assumptions and Ableism
I've recently read an article about how some researches are slowly starting to debunk long held assumptions about autism, Autistics, functioning labels, and how the world needs to provide more appropriate education to “all” Autistics. This is a quote from a researcher (Laurent Mottron): "Early childhood interventions should focus on harnessing strengths, rather than erasing the difference between autistic children and neurotypical kids" Of course, Actually Autistic people have been saying this forever. We have been warning parents about the damages caused by "therapies" that seek to train Autistics to make us look "indistinguishable from our peers” for a long
Autistic Patterns of Thoughts and Emotions
I use the movement of things outside of me for purposes of thinking and of processing feelings. Recently, autistic friends have let me know that most people in the world do not do this and that it is a rather common autistic experience. I have no idea how common so would very much appreciate autistic weigh in here. Thinking My thoughts are all in colors and pictures. Usually there are sounds attached, but not always. To think I need a way for the colors and pictures to move. When my sensory system is calm and integrated the thoughts
Uniquely Human Neurotribe
This past summer two new autism books were released within days of each other. Each, of it’s own accord, is a game changer if readership becomes large enough. Together the two books could serve to alter the course of autism history in terms of who is given the stage to tell the autistic story. NeuroTribes: The Legacy of Autism and the Future of Neurodiversity by Steve Silberman does exactly what the title says – lays out lots of history. There are so many interesting parts that I never knew existed that have impacted what we believe we know about autism.
Privacy, and Parental Behavior
I've written about this before: parents of Autistic children sharing very private information about their kids, sharing moments that show the kids being upset, or having meltdowns. These parents share everything publicly, using pictures and videos, the children's real names, even if the children are adults. Some say that they are trying to help other families, by showing the "real face of autism". These are the "martyr parents". Others are very angry "at autism" and say they are doing what any parent who loves their children would do: “fight autism”. These parents call themselves "warriors". Still
Autism, Transition Programs and the Impact of Poverty on Self-Advocacy
I am an autistic woman who has lived both in poverty and as a middle-income person during my adult life. I am noticing how self-advocacy is typically geared toward middle-income status. This could be problematic since many autistic adults live in poverty. Based upon my experience I have come to realize that middle class self-advocacy works fine if in fact you are a middle-income person, but doesn’t work well if you are a poor person. I will explain this more using an example from my life as a poor person versus a middle class person. Dental Experience as
Visual Accommodations and Blessings of My Autism
The visual sensory aspects of the way autism plays out for me most of the time means that I get too much information delivered – things are too big, too bright, too bold – typically too much to endure all day. Practically, this means I need to accommodate my sensory system in a variety of ways. Let’s take but one example from my life where visual overload is a pretty constant problem. Here are some things I have found helpful: Environmental Accommodations for Overhead Lights Most of the time I simply do what I need unless it
Autism and Changing Classroom Strategies
The field of autism is very new – not even 100 years old yet! This means we are constantly learning new things. We now know that what works for most children to learn does not always work for autistic children. In fact, it can be detrimental to their learning. Those of us in the field of autism will likely need to change the way we deliver help to those who seek it and change the way we teach our students.
On Not Being “Pretty”
My friend Cara wrote this awesome article about being "ugly" disabled. You should click on the link and read it. Go on, I'll wait. Isn't it great? The article got me thinking. Like Cara, I also have cerebral palsy. I sometimes use a transport wheelchair because I have poor balance and I can't stand for too long. When I sit down, my body "flops", or it slowly leans to my right side until I am almost lying down. When it doesn't lean to the side, it tends to relax too much, sliding down the chair. An upright position
Autism and Processing Social Information
My autistic neurology means that I am not good at picking up typical social cues, understanding complex social situations, automatically picking up meanings of idioms, or understanding the hidden curriculum that most others automatically pick up (Endow 2012). This means I often look naïve and gullible. The fact is I AM naïve and gullible when I try to use the social constructs of neuromajority folks to navigate the world around me. When I was younger and deemed “in need of help” that “help” largely involved others trying to teach me to think and act as if I had a
Autism and Stubbornness
I am an autistic woman. Most of my life people have let me know they think I am stubborn and controlling. Over time I have learned to hide the behaviors so people do not think I am stubborn and controlling. I understand you view my stubbornness as a bad thing so I have learned to hide it. Today I would like you to consider that what you label as stubborn and controlling is often a solution to help us manage our anxiety and fear. Whenever we have a fearful or anxious moment – and those moments tend to
Accommodations – They Make All The Difference
Accommodations are important and they work. I should not be making a big deal about it. The ADA is 25 years old. Sadly, getting the accommodations we, disable people need, is often the opposite of simple. If you have been reading my posts, you know that I am very visibly disabled. I am also proud, and I don't try to be someone other than myself. I do require a lot of supports, and once I have them, I can do anything I set up as goals. I have goals, or simply things I want to do, that most people
Using Autistic Strengths to Make Friendships Work
I am an intelligent autistic woman. I manage my own business, have raised three great kids and interface with the world around me with a fair amount of success. Not too shabby considering I lived in an institution as a kid, was homeless as an adult and used public assistance for some years. Today I am content in my life. It is intentional. I have decided not only to be content, but how to intentionally let go of some things that used to bother me. I hope to get better with this over time because it is great feeling
Will Chuck forget?
Will Chuck Forget? Chuck is terrified to go to school. He has stuttering. Others laugh when he says something. He has a breakdown at school. Some boys do feel bad but have no courage to tell and stand up for him. The teacher pretends nothing is wrong. Chuck went missing. Questions: Who is responsible? What can his friends do if he is found? What does it mean to watch and look the other way? Will his teachers take initiative and how? What can his family do? Will Chuck forget? End of the story. I wrote this story when I
Autistic Burnout
Each individual who has an autism spectrum diagnosis got that diagnosis based on deficits. That isn’t good or bad, but rather, simply the way diagnosing works. Diagnostic deficits are based on the social and expected norms exhibited by the majority of people. Deficits are determined by a significant deviation from this majority norm. And, if you deviate far enough from the norm you get a label. If you have a group of deficits that line up with the autism spectrum disorder label then you get that label. Once an individual has the autism label, we begin teaching skills to
Surviving Inclusion: At The Intersection of Minority, Disability and Resegregation
Kerima Çevik on Surviving Inclusion: At The Intersection of Minority, Disability and Resegregation “I see the work of inclusion as probably the last frontier of desegregation. If you read the brief from Brown v Board of Ed, The board of education argued that if we let the blacks be integrated then the next thing you know is that we’ll be letting people with disabilities be integrated.” Joe Petner, Principal, The Haggerty School, Including Samuel NAACP picketing St. Louis schools circa 1950s. Photo credit AARP In October of 2008, we discovered that our son, who was transferred into a full special education
Autism and A Changing Sensory System
Something about autistic sensory difference that I do not see addressed in the literature is the fact that sensory system needs change over time.
Autism and Non-Fluid Speech
I am a speaking autistic woman. Even so, I rarely have fluid access to my speech. Often times I have in mind something I would like to discuss with a friend so as to get their thoughts and ideas on the topic, but even though I know what I want to discuss the words are not available as speaking words. Oh, I know the words – they are in my head – I just cannot get them to come out of my mouth at will. This often poses difficulties for me. One example is when I am with my
Now you know . You cannot unknow .
I told Professor Wurzburg's class in March and April about my life and advocacy for inclusion, communication and civil rights. The class asked me questions and I answered. On April 8 I talked to the class on Skype. "This is good. Princeton thank you for this class. Learning about disability experience and discrimination from people who are disabled is the only real way. I share my experience to change my reality and the reality for my neurodivergent brothers and sisters. No person should experience the abuse. All people deserve respect, inclusion and communication. Now you know . You cannot unknow
Autism and Visual Detail
Because of my autism I often experience sensory overload. Many times this is painful. I have learned that by keeping my sensory system regulated I can avoid some of the pain. Over time, in the process of becoming more regulated, I have found ways to enjoy my unique sensory system. One of the things I enjoy is a degree of beauty I can see in many things around me. I don’t think neurotypical people often see the detail I do. The reason I think this is because when I comment about something beautiful I am seeing others often do not see it. Sometimes
Ableism and Pity. Reject Them, Be Awesome
I have written about how I had to unlearn ableism. I have written about my uncooperative body. I always state how generally happy I am, and that I am comfortable being me. All this is true but frustration shows up, and grows, every time I meet ableism. I meet ableism a lot. Ableism brought forth by pity. Pity directed at me by people who seem to believe I am “trapped” inside my body, that I suffer, or that my life is so hard, they can’t understand how I can even have goals and aspirations.
Autism and Hiring Help
I recently moved. It involved working with a realtor, a banker, and numerous other people. Today I am contemplating sorting out what to put into my new desk drawers and have a literal pile of paperwork from various aspects of my moving adventure. As each person representing each faction of moving began working with me they explained what they would do, how they would do it and the expected outcome. For example, the furniture store guy explained how the sale worked, the ordering and delivery of the furniture and the return policy. I asked my questions which were answered
The Hidden Curriculum About Fat
Just started another diet. I am determined to lose a little weight so as to be healthier. I know I can do this because I have done it nine times already. Each time I have been very successful, but the only problem is that each time I have lost the very same weight after having gained it back from the previous episode of losing it. I know I am not alone in this constant weight struggle. Lots of people lose a bit of weight only to gain it back again. Another thing I am not alone in is liking it
OLLIBEAN : Acceptance, Love, Self-Care: #AutismPositivity2015
Autism Positivity is coming out of April stronger. Tired A little frustrated Spoonless. But stronger. Autism Positivity is rejecting blue lights, casting a red shadow and obscuring the blue puzzle pieces of hate. We continue our #WalkInRed call to action, we are joined by accepting friends, old and new. As Elvis Costello has been singing for decades, even the Angels want to wear the red shoes. Acceptance, Love (and the Angels wearing red shoes) = Positivity Autism Positivity is reclaiming words used to devalue us, and giving them their true meaning. Defiant: standing for what we believe in and for
LOOPS
My body movement speed is not average. It is not in the mean. My thinking speed is. My thinking speed is faster than average. My body takes time to agree to cooperate with my mind. If my body chooses not agree to cooperate my thoughts remain my own. More anxiety less body cooperation. Less body cooperation more anxiety. Less anxiety more body cooperation. More body cooperation less anxiety. Excerpt from Wurzburg Seminar at Princeton University
On Surviving Inclusion
On Surviving Inclusion by Kerima Cevik Three young Black soldiers, bubbling over with the news that the Civil Rights act was just signed into law, and ready to demand a front door entrance and equal treatment everywhere rushed around places where people of color were formerly unseen and unheard. Image is of the first page of the Civil Rights Act of 1964. Credit National Archives. I cannot impart on you what this moment in time meant to them. Imagine being told all your life that you were less than others. Imagine approaching your local supermarket
Scientific Validation of Autistic Humanity
When I was a teenager, the “too much” of life caught up with me. Everything in the world around me was just too much. …too much noise with the varying sounds of the world clamoring to grab my attention, their pitches and tones wildly crashing into each other as if competing for a speed prize on a race track – or so I wished … If only the cacophony of the world outside my skin would at least line up and compete in some orderly fashion – like race cars on a race track – it would then allow
Being Comfortable In My Skin
When I shared my post "Celebrating My Life" one commenter pointed out that “very few people are as comfortable in their skins” as I am. This got me thinking about what makes it possible for me to not only be ok being me, but to be proud of who I am. What makes me an unapologetic, unabashed, proud disabled woman? According to followers of the medical model of disability – most doctors and all the self-proclaimed “experts” – I have a long list of “devastating”, “severe” and even tragic deficits and impairments. Their “deficits list” would look like this: Non-speaking
Autism, Sensory Regulation and Movement Fluidity
Many any individuals with classic autism seem to have neurological movement differences. When these movement differences play out in our bodies, it is easy for onlookers to see, as we may get stuck in one position or in repetitive movement. Sometimes there can be difficulty in getting a body movement going, and at other times once our body is in motion, we cannot stop even if we want to. These movement differences can also play out in thoughts, speech, and emotions, areas that are not as readily observable to onlookers, yet can be daily obstacles to outsmart for some of
Celebrating My Life
Celebrating My Life Amy Sequenzia won't stop celebrating her autistic, disabled life. le I am writing this prompted by something John Elder Robison (I will refer to him by his initials, JER) wrote about Autism Awareness/Acceptance Month, in particular this quote: “We may have gifts too, but disability remains the basis for diagnosis. Some autistic people are rendered non-speaking by their condition, and I can’t imagine who would celebrate that. Others live with significant medical complications like epilepsy. I’ve yet to meet anyone who celebrates that either.” I commented that JER does not have to “imagine”. I am here, I celebrate being non-speaking, I celebrate
Autism and Stuck Emotions
It has taken most my lifetime for me to begin figuring out stuck emotions in relationship to my autism. In discussing this with other autistic adults I have discovered many share this problem. Some describe the stuck emotions as being shut down. There are variations of experience, but there seems to be a shared experience of stuck emotions in autistics. Everyone I have discussed this with agrees that stuck emotions are quite difficult to deal with and, in fact, have led to much misunderstanding and sometimes to psychiatric hospitalizations. Even though I have been talking to other autistics about this
The Reason I Blog
This blog (The Autism Wars), and all the other blogs and projects associated with it, are for my autistic son, Mustafa. But this blog is actually not talking about him without him or about daily life with him with some rare exceptions for times when his daily displays of empathy, kindness, and love towards me move me to write. When I say it is for my son, I mean it is part of my activism and my exploration of what it means to try and ally myself to his cause. This cause is something that too many of us are aware of
I Don’t Want Your Awareness
I don’t want Autism Awareness. Actually, I fear Autism Awareness because it only makes the world fear, hate and ignore us, one blue light, one puzzle piece at a time.
Take ASAN’S Pledge to Include Autistic Voices
Please join us and take The Autistic Self Advocacy Network's pledge to include Autistic voices in organizations, conferences and panels on autism. Would you support an organization that advocated for women or attend conferences about women if they failed to include women ? Of course not. Then, please, take a minute, sign this pledge and share widely. Join: Colin Meloy, Lead Singer, The Decemberists, Linda Walker Fiddle, Executive Director, Daniel Jordan Fiddle Foundation Mike Elk, Labor Reporter, In These Times Magazine, Steve Silberman, Investigative Reporter and Author, Wired Magazine, Cecilia Breinbauer, Executive Director, Interdisciplinary Council on Developmental and Learning Disorders
Autism, Inflexibility and Diversity
A universal assumption about autism is that autistic people tend to be inflexible and it is NOT GOOD to be inflexible. Let’s take a look at that assumption. Neuro majority people talk a lot about the inflexibility and the rigidity of autistic people. Seems like they get stuck in that train of thought. Isn’t it quite a narrow perception to believe that everyone should be just like you and should conform to your ways? And yet, as an autistic, if I want to get anywhere in the world I need do just that - to conform to the ways of
Uncontainable Presence
You are anywhere You are anytime Daring and enticing Changes unexpectedly predictable The obstinate constant I see your bright presence Piercing my eyes Crawling into my brain The pain comes swiftly And then, the deafening silence My body shakes in your presence Uncontrollable moves A dance of two wills The music is mute Rhythmically disordered Darkness and pain I'm lost in a sea of dread Forlorn as you carefully exit Leaving behind misery I tremble as the silence roars As the pummeling beat of you presence leaves The sky cracks open in blue A blissful fatigue Exhausted excitement But your
I Paint to Share My Autistic Experience
I started painting with acrylics in 2012. I wanted to use that medium to illustrate aspects of my autism. To date I have written several articles and books along with speaking in three countries about aspects of autism. Painting is one more way to explain some of the nuances of autism to those who might be interested. Painting allows me to show perceptions of the world that I see with my eyes as delivered through the neurology of my autism. I match up what I see with the colors and movements of paint on canvas paper. I have not taken classes
“Autistic People Should…”
Feb. 23, 2013 was this flash blog day. Autistics were asked to complete the phrase "Autistic people should..." as a way to make a positive difference in light of the suggestions given by search engines when that phrase is typed in the search bar. This was my contribution: Autistic people should take and keep a seat on the bus, just like Rosa Parks did in 1955 when fighting for social justice for blacks. I was born in 1955. I am glad black people no longer have to fight so hard for the chance to be seen as part of the
Being
My life through the years I've been listening to this It's enough to bring out tears I need it to immediately cease. They talk about my existence About my right to be I'm running out of patience I know who I am, I am me. Cure, treat, fix, change Words that hurt deep in my soul If I do all that they demand My essence is lost, nowhere to go. They know what to say to scare They do this intentionally But now it is my turn to dare I'm not backing down silently Not backing
The Quiet Key to This School’s Success
What do you do when you become the principal of a school with the lowest academic performance and the highest rate of suspension, absenteeism, and teacher turn over? Nothing. Nothing for 15 minutes twice a day to be exact. In 2003, James Dierkean, the innovative principal of Visitacion Valley Middle School in San Francisco, decided to try something unconventional to mitigate the negative impacts that stress was causing for his students and staff. He launched a meditation program. Specifically, a Transcendental Meditation (TM) program called Quiet Time. Principal Dierke and his staff, with the help
Outsmarting the Hard of Autism to Attend Live Theater
I love musicals and other live theater performances. About five years ago I googled the name of the performing arts theater in my town along with “season tickets” and was delighted to discover the possibility for a whole new adventure! My friend Marilyn and her adult son Jimmy (who also likes musicals and has autism) decided they would like to do this too. Each year I am the person who sends out the information on shows and orders the tickets for all three of us. Along the way we had to outsmart the hard of our autism and figure out
Five Reasons You Need to Read ‘Ghost Boy’ by Martin Pistorius
For over ten years Martin Pistorius was trapped in his own body, fully cognizant, but unable to speak or move. He was surrounded by people who believed he was incapable of thinking and tried desperately to get just one person to notice. His story serves as a wake-up call for all of us to drastically change our assumptions about speech and intellectual capacity as well as the need to radically reform expectations and treatment of people with complex communication needs.
How Being Included Changed This Boy’s Life
Having opportunities to learn with everyone could access more opportunities for all.
High-Functioning or Low-Functioning?
In this life I am missing the ability to go out into the world and just be accepted for my natural autistic self. I must inhibit so many of my natural responses just to fit in enough for others to allow me a place in the world. I have discovered that to have a place in this world I need to fit into it in a way that makes sense to the majority. For me, this isn't a good or a bad thing - just merely the way it is. Fitting into the world is something I need to balance
Respectfully Connected: Journeys in Parenting and Neurodivergence
We are all about respect, so of course, Respectfully Connected is a Resource We Love!
Drop, Settle + Train
The Supreme Court has a case that affects all disabled people, and the decision can be very damaging for us. We need to trust the police, and the police must “Connect, Respect, Protect” disabled people as they do with all people, not command, advance, hurt , kill.
Autistic Pride
This week someone asked me if I was proud to be autistic. It made me think about pride in general and about the term autistic pride. In general, feeling proud of myself is not something that is front and foremost in my life. When I think of who I am, words like female, adult, Dutch, heterosexual, white and autistic come to mind. None of these things are anything I am proud of or not proud of – they are simply words that describe me. I think of it as a launching pad. This is my originating place from where I
Talking to Autism “Advocacy” Organizations
I had the opportunity to speak, as a public comment, during a meeting of the Autism Society, Florida Chapter. It applies mostly to the National leadership because I think it is past time for some things to change. What I said might not have pleased everyone, and it might have made some angry. But I stand by the words - compliance is not my goal. It needed to be said though, not only to the Autism Society but to all organizations that say they “advocate” for autism. If an organization wants to help, it should not advocate for things Autistics
Autistic Meltdown or Temper Tantrum?
Autistic meltdowns and temper tantrums are not the same thing. Autistic meltdowns typically occur as a response to being overwhelmed.
The Pseudo Logic of “Not Autistic Enough”
Recently, I was told by a parent of a child on the autism spectrum that I am "not significantly enough affected by autism to be able to understand real autism" and therefore should stop speaking out about autism. Some aspects of my personal history (Endow, 2009) that you may find interesting include: Was nonverbal for some time Had self-injurious behaviors Lived in an institution for some years of my childhood Lived in two different groups homes Diagnosed with classic autism I understand that as a parent of a child with significant needs you may look at me and look
In Sidewalk Cracks: Authentic Relationships
In Sidewalk Cracks: Authentic Relationships In life we play on sidewalk squares. You on your NT sidewalk square You jump to my square to help me out (and so does everyone else) That I need all the help you can give. You teach me to copy your ways. I jump to your square and copy you. You are happy because I am learning To copy your ways in the world. All I have is you helping me And me copying your ways. Is it a wonder the feeling of alien predominates? There is more to jumping over the sidewalk crack.
Autism and the Importance of Stabilization
As an autism consultant I am often asked how I sort out what to do when I see an autistic client who is struggling in school or in life. As an autistic person I know first hand if stabilization needs are not met, regardless of the supports in place an autistic person will struggle. Stabilization consists of three areas that interplay – internal and external regulation in the context of a positive relationship. Internal Regulation ~ Sensory Diet Internal regulation has many components, but for stabilization I look at the sensory system. When a person has an autism neurology
#FreeNeli
by Amy Sequenzia Reginald "Neli" Latson was an 18 year-old Autistic high school student, a good student, a wrestler, when he was arrested while waiting for the library he often visited to open. Neli was, as teen fashion dictates, wearing a hoodie. He is black, and as bigotry, discrimination and ignorance dictate, he was profiled and reported as a criminal, "possibly carrying a gun". He did not "comply" with the officer who approached him, already with baseless suspicion, since there was no gun. An altercation sent Neli to jail, trial and prison. He served his time, and
LOVED As I Am
We can all use a daily reminder that we are loved, accepted and adored for being exactly who we are. Ollibean Goods of the Day- "LOVED as I am" , "You Are Loved" and "I Am Loved" .
An Autistic Weighs in on Friendship
I am a professional person who works as an autism consultant to various school districts when I am not speaking and writing. I have an autism neurology myself so I enjoy the privilege of being able to see and experience autism from a variety of viewpoints. One thing that greatly pains me is the continuing wrong assumptions professional people make about autistics and how those wrong assumptions often get interpreted as fact.
Autism and Holiday Schedules
Autism and Holiday Schedules by Judy Endow As an autistic getting through the holiday time can be quite tricky. As an autistic parent with children who had different needs it was even trickier. Routine and structure can go a long way! They anchor the days that can otherwise be perceived by an autism neurology as totally chaotic, which in turn, often leads to being overwhelmed and experiencing meltdowns. 1. Start by creating a visual schedule. You can simply use paper and pencil or use an iPad or computer to make your visual schedule. Words can
Ollibean Goods – Gifts That Celebrate Inclusion and Diversity
Ollibean Goods - gifts that celebrate inclusion and diversity . Ollibean Goods donates 10 % of net proceeds to fund literacy programs and provide iPads for communication .
Autism and Sorting Out Sensory Snags
All my life I have been easily overwhelmed by sound and motion. I can hear things nobody else even notices such as the hum of electric devices that are plugged in even when the appliance or device is not in use such as the coffee maker on my kitchen counter. I can hear fluorescent lights hum, the steady grind of ventilation systems in buildings and the crackling from inside my television when it is muted. When I am in the midst of much movement I tend to get dizzy. This is really distracting because I am in busy places when
Communication Supports for Speaking Autistics?
As an autistic, I know first hand how my communication abilities are different from the neuro-majority people around me. Most people do not understand my differences because I can speak. On the surface my communication abilities appear normal. This make it very difficult for people to understand when I need accommodations they are just that – accommodations – not personal preferences. For example, even though I can speak to crowds of thousands of people my neurology does not permit me to engage in telephone conference calls in a meaningful way. The most I can do is listen, but after a
Why I Don’t Like “Awareness”
Awareness campaigns of disabilities are only effective if they are planned and run primarily by the groups that are the subjects of the campaign. This is because such campaigns are not “awareness”, but “acceptance” campaigns. We welcome support, with focus on respect, equality and access. We don’t need “awareness” of deficits and tragic rhetoric.
Autism and Eye Contact
A challenge I am continually faced with as an autistic adult is the misinformed presumption and resulting behavior of neurotypical people when I do not look at them the in way they expect, want or demand of me. It is challenging because society has put the onus on me to change. Often it does not matter to others why I am different. They just want me to stop being different. Recently I was told directly, “If you want to be treated like a real person then act like one!” Eye contact can be hard for autistics for a variety of
Autism, Differences and Murder
Ever since the not guilty verdict in the George Zimmerman trial and more recently, after a police officer shot and killed Michael Brown, I have been and continue to be very much afraid in the pit of my stomach. The not guilty verdict and the dragging on of the no fault attitude in Michael Brown’s shooting underlines the fact that in our society it is perfectly ok to track down, shoot and kill someone perceived to be acting different. We fear people who are different from us. Differences come in many forms. If you are White then someone Black is
Speeding, Autism and No Ticket Issued!
In the past few years I have had two encounters with the police while driving my car. The first time I pulled into a school parking lot, answered an email on my Blackberry, gathered my stuff together and let out a little scream, as I didn’t expect to see a police officer standing at my car door! “Good afternoon officer. How might I help you?” I inquired, knowing that it is very important to always be polite to a police officer. “Do you know why I am stopping you?” “No, I do not,” I replied honestly. “Do you know the
Visuals and Back to School Transitions
Our kids went back to school this month and likely many families are still struggling with the transition. It often seems that as the newness wears off, the getting-down-to-business-struggles begin. Autistic students have a particularly challenging time because their neurology does not permit them to automatically organize the world around them. Teachers and parents can support a child with autism to become more organized. For many it is an essential accommodation so they can be in a place to learn. Autistic students are often visual learners. This means that even though they may be verbal, as stress increases comprehension of
The Case for Inclusion on The Inclusive Class Podcast
Check Out Education Podcasts at Blog Talk Radio with The Inclusive Class Podcast on BlogTalkRadio
How To Outsmart “Inflexible Thinking”
Because of my autism I have an autistic thinking style. One characteristic often attributed to me is “inflexible thinking.” Flexibility in thinking has to do with being able to adapt when circumstances change by adjusting or shifting from one expectation to another. This has never been easy for me, but I have learned how to live more comfortably with my autistic thinking style in a world where flexibility is much more highly valued than my inborn trait. First, I had to accept my own autism and the fact that I think differently (Endow, 2009). Self-acceptance doesn’t come easily for most
The Impact of 250 Words on Literacy
Ollibean Literacy Lifehacks : Tools for parents and care providers without education backgrounds to easily provide literacy instruction. Sign up for our free Flashcards of the 250 Words that represent over two-thirds of captioned television.
More on Inclusion on Ollibean
Information and resources on Inclusion for parents, providers and children with special needs.
Supporting Autistic Relationships
As an autistic my connections to other people are perceived visually. In fact, I often need to have a concrete visual available in order to be able to think about my friends. A challenge I am often faced with is the erroneous presumption and resulting behavior of neuro-majority people when I need a visual in order to maintain a relationship. Many Autistics Are Visual Thinkers For those of us who are visual thinkers it seems logical that visuals would play an important part in developing relationships with others and in maintaining those relationships over time. In fact, many of us
250 Words Represent Over Two-Thirds of Captioned Television
"There are more than 500,000 words in the English language, but a person who masters only 250 words will recognize more than two-thirds of all words shown in television captions—provided the 250 words are those that are most frequently used. Equally dramatic, a beginning reader could be taught just 10 words—the, you, to, a, I, and, of, in, it, that—and then recognize more than one out of every five words. Mastery of the top 79 words means being able to read half of all words captioned." Source: Perspectives in Education and Deafness, Volume 16, Number 1, September/October 1997 Henry and
Students with Disabilities Excel with High Expectations, Access, and Inclusion
"We know that when students with disabilities are held to high expectations, have access to a robust curriculum in the regular classroom, they excel." Secretary of Education , Arne Duncan Until recently, the Department of Education's primary focus was evaluating states compliance meeting procedural requirements- timelines for evaluations, due process hearings and transition services. Under the new framework, Results-Driven Accountability (RDA), the Department will also include educational results and outcomes for students with disabilities in making each state’s annual determination under the Individuals with Disabilities Education Act (IDEA). “Every child, regardless of income, race, background, or disability can succeed if
Creating Visuals Instantly for Unpredictable Activities
As an adult with autism, knowing what will happen during each day is important to me. For children, who have much less life experience, it is often a deal breaker in terms of them being able to participate in life around them. Using visual schedules supports this need both at school and on ordinary days at home, but what about those times when life gets hectic or when spontaneity is in order? Why Visuals Work Having an autism neurology means that neither internal regulation (physical, sensory, emotions) nor external regulation (making sense of the world around us) just happens! We
On Disparity in Education: The Risks and Bravery of Being First
Being one of the first or the only students with any discernible divergence in any characteristic is dangerous, difficult, and involves tremendous courage. Over 50 years ago, at the beginning of a school year, the Little Rock Nine walked with angry white mobs behind them into their local high school to exercise their right to a public education with their white peers. Initially, the Arkansas national guard blocked their entrance by order of the Arkansas governor. Eventually, President Eisenhower ordered my stepfather's unit, the 101 airborne division, excluding my stepfather and all black soldiers, to escort the students to and
An Odyssey: Learning the Hidden Curriculum
Learning the hidden curriculum social rules of society remains a struggle for autistics long after they grow up. For example, even though I am an almost 60-year-old woman with autism, over the past few years, I have learned a lot of new-to-me hidden curriculum items. The hidden curriculum refers to all the social information that everybody seems to know but isn’t directly taught to anybody. Here’s an example: Don’t scratch your privates really means don’t let anybody see you scratch your privates. Guessing at Hidden Curriculum Rules Once I amassed a volume of hidden curriculum items I began being able
Autism and Thinking with Colors
I think in colors. My thinking colors have sound and movement. When I hear spoken words my neurology automatically goes for the match. When I was a girl, I heard the saying, “I got the world by the tail.” Immediately, the matching pictures of tail started popping up in my head. It’s like having a personal version of Google Images. The initial picture search produced a variety of tails of animals. Then, there came the images of the ground mist I saw each morning when I went outdoors after breakfast. I assigned the world tail words I heard to this
Accessibility Is a Right Not a Privilege
Accessibility is a right not a privilege. 20 posts on Accessibility, Universal Design, and Inclusion It's Time to Go Beyond Access Creating Equal Opportunities For ALL Students to Participate in School Athletics State Obligations UNESCO Accessible Instructional Materials (AIM) Inclusion Is A Right Not A Privilege Paula Kluth on The Inclusive Class Roundtable The National Center on Accessible Instructional Materials Why Would We Want Inclusive Education? Ollibean Spotlight: Kerima Cevik Pay It Forward Activist How AAC and assistive tech make classrooms better for all : Paula Kluth The Case for Inclusion Part 3: Sea Change Access to the
Autism, Growing Up and Defining Friends
As an autistic, I have difficulties in the social arena in a multitude of ways. This was especially true during my growing up years. Even today as an adult, automatic social understanding is not my strong suit. I am, however, able to continually learn new things that enable me to do and be all I want in this world. Today, in my professional work I am able to provide some input to a variety of organizations and schools in regards to individuals with an autism label. One thing I consistently see regardless of where I go is the practice of
Autism, Airports and Lifelong Learning
For most of my life airports have befuddled me. It didn’t so much matter earlier in my life because the only time I used an airport was to go to visit my parents in another state. Back then, before we had the heightened security of today, people were allowed to meet passengers as they stepped off the plane which allowed me to simply follow them through the airport without needing to concern myself with the confusion all around me. In My 40’s Then, airport security changed. People picking up passengers could no longer go through the security checkpoint. I
Autism and Psychiatric Diagnoses
At different times during my growing up and even during my adult years autism wasn’t something people knew much about. I often came in front of mental health professionals. It is important to know that if you go to a mental health professional or take your child to a mental health professional in all probability you will walk out with a diagnosis of a mental condition as found in the DSM-5 – otherwise known as the Diagnostic and Statistical Manual of Mental Health Disorders In my adult life I obtained a master’s degree in social work. I did clinical work
Is Autism a Disability or a Difference?
So many ideas in the larger autism community often become a debate. As an autistic this black-or-white, choose-your-side sort of thinking is very neurologically friendly to me. I like clear choices. But I also believe we are often unwittingly duped into believing we need to choose a side only because the idea is presented as a dichotomous choice. “Is autism a disability or a difference?” is one of these questions posed as a dichotomous choice in the autism community. The way the question is posed gives the impression that there is one correct answer. When Autism is a “Difference” Many
The Importance of Opportunity
Dillan Barmache, a 14 year old autistic student, delivers his powerful 8th grade commencement speech using his iPad and brings the crowd to their feet.
Losing an Autism Diagnosis
I am an almost 60-year-old autistic woman who can navigate the world in a way that surprises some people when they find out I have autism. My teen years were spent in an institution because people did not know what to do with my “behaviors” or with me. Today I am a self-employed author, speaker, consultant and artist with a master’s degree in Social Work. Question: Did I lose my autism diagnosis? Official Answer: Yes and No No, an Autism Diagnosis Cannot Be “Lost” Technically, once a person is diagnosed with anything that diagnosis becomes part of their medical records.
Henry
Some call him a kid Others say he is a young man But whatever you call him You need to know this: He is courageous Brave and resilient He will fight and he will win It can be a fight for his rights When enemies come disguised as condescension It can be a fight for his dreams He will mobilize an army of friends To Stand With Him He is an example to many He showed other students the possibilities Henry does not fight for himself He is changing perceptions, changing the world Henry is a leader
Cry Me a River, Katrina Percy. Justice for LB!
I originally wrote this piece for the blog 107daysofaction.wordpress.com. I asked for permission to reprint it to help raise awareness on this side of the Atlantic about the story. If you'd like to get involved with Justice for LB and 107 Days of Action, please click here. I've recently been made aware of the story of the death of a young autistic man in the UK that's not getting any press that I'm aware of in the U.S. or Canada. I'd like to tell you Connor Sparrowhawk's story. Connor Sparrowhawk, known as "Laughing Boy" or "LB" to his friends and
April is Over!
Another April has passed – big sigh of relief! As an autistic I have a love/hate relationship with April – the AUTISM month. I love that increasingly more people over time have become aware of autism. I hate that Autism Awareness month contributes daily to many negative stereotypes of autism, most of it by people meaning to do something good on behalf of autism. As an autistic, I am meant to be grateful to all these wonderful people who are sacrificing their time, talent and money to be helpful to people like me. Some of the time I am grateful, but
FDA Advisory Panel Recommends Banning Aversive Shock Therapy at the Judge Rotenberg Center
Thursday, April 24, was a day that I'd been waiting for that day for a long time. An FDA advisory panel finally got to thoroughly hear both sides of the story of what goes on at the Judge Rotenberg Center, and to deliberate, based on testimony, whether what happens to the students there needs to be stopped. And they made the right decision. I just hope that they act on it quickly. I found out about the Judge Rotenberg Center by accident two years ago, doing some research for another post on my blog. I came across an article about
Skunk Hair, Autism and Social Understanding
There is a saying, “love makes the world go round,” but for real it is NOT love. Instead, it is hidden curriculum that makes the world go round! Hidden curriculum is all that social information that most people know even though they were never actually taught it. An example is the rule “don’t pick your nose” with the hidden curriculum being it is perfectly fine to pick your nose as long as nobody sees you doing it. Many people with autism have difficulty with hidden curriculum. Their brains are not wired to allow them to automatically pick up this untaught,
Inclusion – How it Works Best for This Autistic
As an autistic, I sometimes feel boxed in by the best practice strategy of inclusion. Please don’t get me wrong – inclusive education is a very good thing! Historically, people with disabilities were not given access to public education. Then, over time, laws changed. Today we have special ed classrooms in our schools and the progressive schools practice inclusion. Today’s Inclusive Education Inclusion means that all the students get to learn in the general ed environment. Instruction is differentiated while physical, sensory, emotional and every other need of each student is taken into consideration so that all students learn together,
More Than An Autism Diagnosis
I am an adult with autism. My thinking is visual rather than word-based. Autism gifts me with a literal and concrete way of thinking. My thoughts are all in full moving color. You can read about this and about my life in my book called Paper Words, Discovering and Living With My Autism. (Endow, 2009a) “Always, I have a front row seat to watch the show! Each color, with its infinite variety of hues and brightness, has its own movement patterns and sound combinations. Even though spoken words are the medium most often used by people to communicate with me, I
Sesame Street, This is an Autistic Speaking
Sesame Street knew nobody was missing, or lacking, anything. I was perfect! Everyone is perfect! But in real life, as I grew older, doctors and teachers convinced everyone that I was too broken to be worthy of any effort toward education and a future. Nobody saw me the way I was seen by my friends at Sesame Street.
Goodnight Autism Puzzle Pieces
You may like lighting it up blue or using puzzle pieces as a symbol of autism awareness. I personally no longer like either of these things for lots of reasons and I post various blogs and articles about these topics in social media venues. My opinion, even though it may differ from yours, does NOT mean my autism is preventing me from understanding your point of view. It simply means we have different points of view. Yesterday I had a conversation in social media with a woman who explained all the reasons the puzzle piece symbolism was important to her
Parents – Acceptance Starts at Home
Parents, home is the single most important place for our children to feel accepted. We must embrace ALL of our children with love and acceptance for being exactly who they are. Home is the first place our kids learn about being accepted and accepting others. It is our responsibility and privilege as parents to create a nurturing environment where each child feels valued, safe, loved and whole. Our children are always listening and picking up on our feelings and attitudes. They're listening to how we speak to them, about them, and closely watching how we react to other people who
What Good Does Autism Awareness Do? It Doesn’t
I know most people want to do the right thing and believe “Autism Awareness” helps. But it doesn’t and it is time for some blunt truths, it is past time to stop walking in circles and move forward with Autism Acceptance.
Treat Others As THEY Want to Be Treated
I was taught to treat other people the way I want to be treated. This works out great when I am with autistic friends because we share an autistic neurology. It does not always work out well when I am with everyone else who populates this world from a neuro-majority place of being. Therefore, the onus has been on me to figure this out for myself. It has taken many decades, but I have finally worked it out in a way that allows me to live more comfortable in a world largely populated by folks who do not share my
“Sucking It Up” To Pass as Non-Autistic
Image description : Blue square with back text:"I look forward to autistics having everyday lives with things so many take for granted – going to school, being part of the community, having meaningful jobs with living wages along with meaningful relationships. Judy Endow on Ollibean It is a lot of work to look non-autistic, and yet, looking non-autistic is the ticket to sit at many tables. It is not right, and yet, I choose to expend a great deal of energy inhibiting my autistic ways for the sake of sitting at some of society’s tables. Employment is one such table.
Stop Combating Me – Why I Am Against Euthanasia
Today is “Stop Combating Me” flashblog. We are not the enemy but the way legislation is written puts us in real danger.
Being Disabled and in the Hospital
Being disabled and in hospitals is always scary because our lives is not valued as the lives of non-disabled. I was, in a way, lucky but the policies still need a lot of improvement.
Crossing Sign Conundrums
Over the course of my life I have seen many kinds of crossing signs. When I go to a college campus I drive past a wildlife sanctuary where a duck crossing sign is posted. Each spring mama ducks line up near their sign and lead their babies across the road while the cars waited. There were lots of ducks and some days the wait for motorists can be up to ten minutes. Every winter when I drive along a county highway to visit a friend I see a snowmobile crossing sign. A snowmobile trail is on one side of the
Take Action to Keep All Students Safe at School! || Stop Hurting Kids
Stop Hurting Kids needs all supporters of the Keeping All Students Safe Act to take action and urge members of the U.S. Senate to co-sponsor this bill.
Over 50, Autistic & Still Learning!
Yesterday I went to the Genius Bar at the Apple Store near my house with my laptop. It reminded me of just how far I have come in regards to technology in a few short years. It is hard to believe that I lived a half century on this planet before becoming versed in sending and receiving email! In 2005, my oldest, David, set up a Hotmail account for me and taught me how to do email. I had read an autism book and wanted to email the author. In a few months I had a few more people to
Who Cares About Kelsey? We do.
We first saw Who Cares About Kelsey ? at the National Center on Inclusive Education’s Summer Institute and instantly connected to the film's message of empowering students.
I’m Not the One Who Is Lost
I am thinking you will understand more when you see the feeling . The feeling on my side.
Chalk Word Lines of Separation
Words are used in many ways Sometimes they are my friends Others sometimes use their words That sound like love and friend Extending from them To me But in reality These words only sound like love and friend But in the end the sound of them Does not ring true and good And is not of love and friend But instead these words draw lines Dividing Their group of US From my group of THEM Society says it is ok In fact it is perfectly fine And noble Even though self-serving Entirely acceptable To divide out those THEMs From USes
Love, Not Fear
Today is “Love, Not Fear” flashblog. We write about the beauty of being, living, sharing and experience Autism, an Autistic life.
Welcome to the Autistic Community
The Autistic Self Advocacy Network and the Autism Now Center have created "Welcome to the Autistic Community! " It is a must read for anyone who wants to learn about autism.
Musings of An Autism Outsider: Realizing How Much I Didn’t Know
I felt like an outsider taking first steps into a world that I hadn’t realized existed. An autism outsider.
Is Your Child Learning How to Code?
We hope all kids are learning to code. If they aren't being taught programming skills in school, there are so many great sites that can help them get started today.
Assigned Friends Outcome
I was taught to say, “Thank you for being my friend.” So I say it. I was told to smile like I mean it. So I smile. I know I am supposed to feel grateful That you are my friend That you took the class On how to be a peer mentor to me – The good friends way – A pal for six weeks You have been defined You are a good person For giving up your spot At the popular kids’ lunch table To earn the community service hours You need for graduation By eating lunch with me,
Life for Lief ~ “See Me As Smart”
“Some people think that kids who are autistic can’t handle getting a transplant. Kids with autism can handle it.” Lief O'Neill
The Scarlet A: Why I Don’t Want My ID to Broadcast My Autism
A few days ago I read the article 'Law Allowing Autism to be Listed on IDs Moves Through Legislature'.
Walk In My Shoes
I want you to walk in my shoes Not because I want you to feel what it means To be disabled But because I want you to understand How it feels to be excluded I would like to see you walk in my shoes Not because I need your pity I don’t need it I don’t want it I want you to experience The uselessness of feeling pity for others Like me I would like to see you walk in my shoes And experience what I feel When my rights are denied When I am silenced Ignored Mocked Bullied Abused
2014 Joint Letter to the Sponsors of Autism Speaks
January 6, 2014 To the Sponsors, Donors, and Supporters of Autism Speaks: We, the undersigned organizations representing the disability community, are writing to urge you to end your support for Autism Speaks. We profoundly appreciate your interest in supporting the autism and broader disability communities. Our work is about empowering and supporting people with all disabilities, including adults and children on the autism spectrum, to be recognized as equal citizens in our society and afforded all of the rights and opportunities that implies. Unfortunately, Autism Speaks’ statements and actions do damage to that work and to the lives of autistic
Are You a Bully in Sheep’s Clothing?
On Dec. 16, 2013 I wrote a blog titled “Autistics Can BE Friends” and posted the link on social media sites. Regardless of how often or how many of us autistics write about why many of us choose to call ourselves autistic many in academia and in the medical fields continue on to let us know we “should not” be doing this. I am including in this blog a public conversation I had with a Linked In reader on this matter. The entire conversation had nothing to do with the blog I had posted – only the fact that I
Hopes
I might be too optimistic for the reality, but I need HOPE to be able to keep demanding the rights taken away from me, just because I am me.
Remember
Between my activism and the end of the year celebrations, I want to make time to remember my brothers and sisters that can no longer smile.
Autistics Can BE Friends
Just like people in the neuro majority do not automatically understand social norms of autistics so it is that autistics do not automatically understand the social norms of the neuro majority. This is not complicated. Our different neurologies sort us out to have different norms when it comes to behaviors around friendships. As a society we seem to operate on an assumption that the social ways of the majority are the right ways. We do not think about this or talk about this. We all define the standard by a majority rules mentality. Then, anyone who deviates from this standard
Ollibean and MyVoice Holiday Gift
‘Tis the season and we've teamed up with MyVoice for a special contest featuring TalkRocket Go or RocketKeys- two amazing communication aid apps for iPad, iPhone, and iPod touch. You choose the app that's right for you. To enter, simply subscribe to MyVoice Newsletter here . We will announce the winner on December 23rd. RocketKeys gives a voice to people with ALS, Aphasia, Autism, Brain Injury, Cerebral Palsy, MND, and Parkinson’s, using its customizable keyboards, accessible input, and sentence prediction. TalkRocket Go is the family-friendly communication aid that helps people with Autism, Cerebral Palsy, Stroke, Traumatic Brain Injury, Parkinson’s (and
Out of the Goodness of Your Heart
I have nothing against the goodness in the hearts of other people. However, I would like to explain how it feels to be on the receiving end when I am befriended out of the goodness of your heart. First of all this doesn’t a friendship make because authentic friendships are reciprocal. This means that giving and receiving go both ways. The benefits are mutual. When you befriend me out of the goodness of your heart - and then tell me so - I understand that you are assuming the role of a kind benevolent person while I am perceived as
Real Consequences
Autism Speaks has been hurting autistics for too long. We are fighting back and we are stronger. It is time to say things like they are. This post is because I feel offended by people defending hateful speech.
The Importance of Supports
"If we invested a mere one-tenth of the amount of money that we currently pour into causation into empowering Autistic people to communicate, that young man and hundreds of thousands more like him would be able to communicate their needs to us today. I am not here today to speak for every Autistic person – that’s impossible. What I am here for is to argue for every Autistic person to have the same opportunity to communicate that I have come to enjoy thanks to the support that I have been lucky enough to receive in my life." Ari Ne'eman
Helping the Poor and Disabled
Will your attitude draw circles of holiday meaningfulness where you include yourself in what already is or will your attitude draw lines that allow you to help those poor and disabled people on the other side?
Meet the Members of the 2013 National Council on Disability
The National Council on Disability works to further equal opportunity, self-sufficiency, independent living, inclusion and full integration of people with disabilities into the civic, social, and economic fabric of American life.
Supporting United States Ratification of the U.N. Convention on the Rights of Persons with Disabilities – Why Every Voice Counts!
CALLING ALL SENATORS .It’s time for the U.S. To take their seat at the table In support of global disability rights . RATIFY THE CRPD I have a confession to make: I can only vaguely recall skimming the e-mails that made their way to my inbox in late November and early December last year that called upon the disability community to contact their senators in support of U.S. ratification of the U.N. Convention on the Rights of Persons with Disabilities (CRPD). It's not that I didn't realize the importance; I just thought to myself "Oh, I should help.
All the people saw my intelligence. No test first.
My family saw. I had hopeful times . Tracy invited me home to Vermont to learn . I went to ICI to learn. All the people saw my intelligence . No test first. It was very free. I never had many people understand. To wait. To listen. Not outside home. I did not want to go back to people unknowing. I read more words from typers watching my movie to feel community. Full presentation here
This Is Autism by Amy Sequenzia
Today we are flashblogging to counter Autism Speaks’ wrong view of autism. We are showing what autism really is. We speak for ourselves, even if Autism Speaks refuses to listen. The rest of the world will.
This Is Autism by Henry Frost
Best place for all autistic people, all disabled not disabled people, all families to speak together. Speak together for acceptance, inclusion, communication, and rights for all people. I am thinking when you look closely, this is what autism is.
You are not wrong.
Know you are not a burden or trouble for being. You are a person who has every right to be. A family that is saying love but saying you are so hard so wrong for not being as they wanted. The family is wrong. Not You. A school segregating is wrong. Not You.There are many if the disability community that are here for you.
Inclusion, Communication and Civil Rights
"Learning is easy when the teacher knows you can learn. " Henry Frost
ASAN President Ari Ne’eman on the DOE’s New Stance on Bullying Prevention
Comments from Autistic Self-Advocacy Network President Ari Ne’eman, delivered on August 20th, 2013 during a call with with stakeholders from the education and disability communities on the Department of Education’s new guidance on bullying prevention and IDEA. Presenters on the call included OSEP Director Melody Musgrove and White House Associate Director of Public Engagement Claudia Gordon.
Jobless rate for disabled Americans still high 22 years after landmark law
Twenty-two years after passage of the landmark Americans with Disabilities Act, the employment rate for people with disabilities is still dismally low, and advocates want to change that. “The ADA … has made a difference in the lives of people with disabilities … but [for employment] the needle hasn’t moved,” says Helena Berger, executive vice president of the American Association of People with Disabilities in Washington.
I Am Disabled and I Am Proud
"Polite society often tells us that we need to take the 'dis' out of disability, but maybe... just maybe, we should spend some time putting it back in. Take the "dis" out of disability and you remove the core of what has shaped my life. Disability puts the "D" in diversity, but in order to make that a real difference we've got to own that spot. It took me 35 years to respect and honor that truth. Others shouldn't have to wait that long..." Lawrence Carter-Long
Words for Autistics Speaking Day By Judy Endow
It isn't right that autistics are in the position of needing other people to allow us our place in this world. We need to be able to take our own ticket when others refuse to give it to us. It is wrong that we have to be dependent on the benevolence of others and at their whim to merely being granted permission to participate in everyday life on planet earth. People need to learn about inclusion. Autistics need to learn to steal tickets when others can't be depended upon - some teachers in schools I consult to still don't "believe
Autistics Speaking Day – My Fingers Speak
Today is Autistics Speaking Day, a day to remind the world that we actually speak every day, even if we do it with our fingers.
How to Ignore the Media and Learn to Love Autism
Here are some suggestions on how to tune out the media's negativity and learn to love autism: 1) Read Jim Sinclair’s “Don’t Mourn for Us”. 2) Tell your parents, family and friends that are close (maybe even your boss) about your child's diagnosis, as you are going to need support. 3) Let go of any preconceived ideas for birthday parties, trips to the supermarket and vacations. Don’t worry if an event doesn't turn out exactly as planned. Sometimes the unexpected is just as wonderful. 4) Discover what motivates your child and learn as much as you can about those topics.
Dr. Caroline Musselwhite Shares Strategies to Promote Literacy for ALL
Dr. Caroline Musselwhite addresses the topic of overall good literacy instruction. She presents information about how to teach students with significant disabilities using fairly common literacy instruction strategies. There are 11 short video posts to help you get started. She discusses the issues of AAC and suggests strategies that are easy to implement and highly effective. Keep Calm and Watch On…
How It Helps
I wrote about Presumption of Competence before, and how it is important for all of us. This time I write about how it feels and how my life changed because I was assumed to be competent.
Having to Prove Competence
But now and then I meet someone who has. They believe they are doing a good thing, a noble thing. They believe they are helping. They believe that the people they are trying to help are living happier lives as a result. They believe this with all their heart. They give words, as though gifts, in grammatically correct sentences, believing people can be trained to say things and do things that will be understood by the majority of the population. They think that if they can force someone to stop moving their hands or legs or twirling bits of string
From “Severe and Low Functioning” to “Kind of a Big Deal”
Some people consider it so abhorrent to entertain the possibility of having a child with autism they are willing to do a sperm screening that allows doctors to selectively choose only sperm that will produce female children to impregnate the mother. Since there are currently four times as many autistic boys than autistic girls the thinking is that only allowing sperm that will result in girl babies at least reduces the risk of autism. Read the article Baby Sex Checks here. There are ever so many areas to address in this article and others have done so here , and here, but
Closed Captioning Helps All Students
"Not only were students talking about how much having the captions helped them as they took notes, their test scores went up," Collins said. During the first year of a 2-year case study, he showed videos without captions to establish a baseline of student comprehension, then in the second year turned on the captions and began to see improvement in comprehension and grades. "During the baseline year, there were a lot of Cs. In the second years, they went from Cs, Ds and Fs to As, Bs and Cs. It was really significant improvement," he said. "We're living in an
14 Year Old Advocates for His Civil Rights
My name is Christian Ranieri and I am a 9th Grader at Northport High School. You should know that I have a developmental disability called Autism. I have come a long way in life as I could not talk in the beginning but now I am able to express my message to you in words. When I was 5 I cried a lot and would throw myself on the floor when I got frustrated. I am proud to say that now I can speak clearly and to the best of my ability try to deal with my frustration in words.
Open Letter To Jon Stewart
When I met Jon Stewart I was very disappointed by his lack of knowledge and sensitivity toward autism. During a recent interview, while still a bit condescending, his views seem to have evolved. This is my open letter to him.
Autistic Aloha
Amazing resource we love- Autistic Aloha!
Don’t Mix Up Empathy and Civil Rights
Many times in the autism community parents of autistic children do not like autistic adults weighing in on situations that have to do with their autistic children. I am an autistic adult and often have parents telling me that I should not judge situations if I have not lived it – the “until-you-walk-a-mile-in-their-shoes” is told to me nearly every week as I post the latest news articles along with my comments on social media.
Putting Education First by That Crazy Crippled Chick
"First, we must ensure that all children, including and especially those with disabilities, receive a quality education. Inclusion means nothing if a child is not receiving a good education, which is, in fact, the very reason we have schools in the first place. " Cara Liebowitz
How Will the Affordable Care Act Affect People With Disabilities?
The Thinking Person's Guide To Autism interviews Ari Ne'eman of The Autistic Self-Advocacy Network about specific advantages, opportunities, and sticking points of the Affordable Care Act for People with Disabilities
Disability Activist Keith Jones on Community
"So let us remember that when we teach, when we educate, we make policy, we make decisions that we do it with a conscience and that we remember that we are leaving fingerprints on forever." Keith Jones
How AAC and assistive tech make classrooms better for all : Paula Kluth
In 2009, I published an article in The Reading Teacher with my colleague, Kelly Chander-Olcott, titled “Why Everyone Benefits from Including Students with Autism in Literacy Classrooms”. One of the points we make in the article is that students with disabilities often bring assistive technology and augmentative communication into classrooms and, therefore, make them richer places to learn. Students with and without disabilities who are in classrooms that use AT and AAC regularly and creatively not only may get access to unique materials, but also get to learn about learning itself. They may be able to generate ideas for using
The AbleGamers Foundation
The AbleGamers Foundation, also known as AbleGamers Charity, is a 501(C)(3) nonprofit public charity that aims to improve the overall quality of life for those with disabilities through the power of video games.Video games allow individuals with disabilities to experience situations that may be difficult or limited in the real world, provide social networking opportunities to maintain mental and emotional health, and participate in one of the world’s largest pastimes. With a three-step approach, AbleGamers works and advocates on behalf of the disability community to increase the accessibility of video games and to achieve further inclusion by those who need
11 Year Old Jacob On The Right Thing To DO
I said a long time ago that I would not only be an real student In a school that supports me but also a self advocate for those lost in segregated settings echoing the dreaded lives of people in the world that are like me without the right supports.
Issy Stapleton: Emergency Information and Autistic Community Response
Emergency information is on here, followed by commentary. Emergency information for disabled victims is first, since they are in the most immediate danger. Unfortunately, many disabled victims of violence are at the mercy of their would-be-killers. Emergency information for people who are concerned that they might murder or otherwise injure a disabled person follows. Some links are en español. Read More Here.
Dear Issy
You don't know me but I have seen your pictures. You don't know me but I know parts of your story. Soon you will wake up and a lot will have changed. You will be in a hospital because your mother did something terrible to you. I know you love your mom and things are going to be very confusing because people are going to say things that will not make sense. And you will not be able to see or talk to your mom. This is a good thing, and you will understand it later. But I don’t want
Again, We Mourn
My soul hurts and I am naming names. And I am saying, if you have a drop of sympathy for the murderers, or almost murderers, you have blood on your hands too.
Person First Attitude Trumps Language
Am I a person with autism or autistic? Does it matter? And why?
5 Ways to Elicit Language from PrAACtical AAC
PrAACtical Suggestions: 5 Ways to Elicit Language Without Asking a Direct Question SLPs love to talk, of course, but sometimes that works against us. Over-prompting. Jumping in to repeat the last question. Re-phrasing the previous comment. Nature abhors a vacuum and sometimes we just can’t stop ourselves.
Modeling, AAC Style
Modeling AAC Style - This is a strategy that is too powerful to ignore! Here’s why Aided Language Input is at the top of our list of skills that all clinicians should master: 1. It expands our sphere of influence 2. Other communication partners will imitate us. 3. If WE use it, then parents and teachers are more likely to as well.
The Reality Behind Those Walls
The Judge Rotenberg Center is recruiting disabled students in the Midwest to be legally tortured with electric shocks. Help us stop this inhumane treatment of disabled people.
The Power of Presuming Competence
"Thasya", a mini film by Dan Habib, highlights the power of presuming competence, differentiated instruction and augmentative and alternative communication. Inclusion works.
Transforming Education to Benefit ALL Students
As part of a 5-year, $24.5 million grant awarded by the U.S. DOE , the SWIFT Center was founded to assist districts and their schools to engage in a transformational process, in order to achieve equity and excellence for all students. Research has demonstrated that inclusive education significantly improves academic and behavior outcomes for all children.
We Are Not In Our Own World
We need to be careful about how we think about and talk about people with disabilities. One example is the reference that those who are autistic or deaf or blind or have some sort of movement differences are “in their own world.”
I Fall and I Rise Again
My life is in constant motion So different from a few years ago Back then I could not easily climb The wobbly ladders put in front of me I would rise and immediately fall Today I fall, I fall and I rise again The wobbly ladder still there I found my way around it I see words guiding my way I find hands that support my journey No longer I rise and fall I fall and I rise again My life like the ladder Not always in firm ground But friends won't let me down They will reach out and
Being Where I Can Simply Be
After a three-day conference, I needed to sleep. I needed to sleep because I was dreamy, trying to keep the feeling of being in a place where I can be myself and also be a little bit like a star. Also, building community.
J.Cole Writes Apology Letter to Autism Speaks
J.Cole offended many over the lyrics "I’m artistic, you is autistic, retarded" in his Jodeci Freestyle rap number. He was called on this. The Anti-Bullying Alliance created a petition and asked for a formal apology from each rapper, as well as the offending words be removed from the song. Read the original article and letter on Complex Music here http://www.complex.com/music/2013/07/jcole-writes-apology-letter-autism-speaks. Kuddos to J.Cole for writing an apology letter that sounds sincere. The disheartening thing about his letter is that it is addressed to Autism Speaks. J. Cole offended autistic people, not an organization – in this case an organization that
Senator’s Call for Transition Action Plan An Excellent Idea
Democrat Senator Robert Menendez of New Jersey has introduced a bill focused on transition services for students with developmental disabilities who are transitioning to post-high school life. The legislation, known as the Assistance in Gaining Experience, Independence and Navigation Act of 2013, or the AGE-IN Act, calls for: - Funding for research to determination the best ways to support students with developmental disabilities who are about to leave school. - Creation of a nation strategic plan focused on transition planning for students with developmental disabilities. - Grants to train "transition navigators" to assist students with developmental disabilities to plan for
Inclusion is a right not a privilege.
Inclusion is not only socially just, but research shows it improves academic outcomes for all students.
I Am Here To Make A Difference For My People
"I am here to make a difference for my people. I hope that you listen to what I have to say. I want people like you to stop judging me." Tres Whitlock
Seattle Children’s Hospital Pulls Bus Ads After Community Outrage
“Autism is a disability, but it is not a disease. It is not a life-threatening illness,” said Matt Young, co-leader of ASAN-WA. “The idea it’s a state to be wiped out has much negative impact on our lives.”
Advocacy Groups Call for Autistic Teen’s Killers to Be Charged With Hate Crime
How does it make you feel when you hear a story about a mother killing her child? Does hearing that the child had a disability change how you feel? For some people, it does. It changes how they feel enough so that they'll start speaking as if they support the parent's actions, citing unbearable stress and lack of supports and not being able to take the pain to see of seeing a child with disabilities in pain. We heard the media and public talk about this in Canada when Robert Latimer put his 12-year-old daughter Tracy, who had cerebral palsy,
The Presumption of Competence
Presumption of competence is more than an abstract idea. It has real and concrete effects. Here is one: it is better than a makeover.
Ollibean Inclusive Baseball Camp August 5-16
Hope you can join us for our 2nd Annual Ollibean Inclusive Baseball Camp at Palma Ceia Little League. 2 sessions August 5- 9, and August 12-16.
The Maryland Coalition for Inclusive Education – 07/12/13
This week, Carol Quirk who is the Co-Executive Director for the Maryland Coalition for Inclusive Education, will return to the podcast. Carol is going to talk, on behalf of the MCIE, about ways in which we can support inclusive education. The Maryland Co
Ollibean Spotlight: Renee Salas
" Talk to people with disabilities. As many as you can: Adults, adolescents, kids. These people are the real experts on disabilities. These are the people that can tell you what life with a disability is like." Renee Salas
Ollibean Spotlight: Kerima Cevik Pay It Forward Activist
"Equal access, level playing field, dignity, respect for my son and all his community. No separate classrooms separate doors or isolation from others. See I’m a woman of color. When I began my education you could still see the Colored Only bathrooms in the Deep South. If you put my son in one room and say he is not good enough to be where the law says he should be, with his peers, then red flags of segregation fly up at me. Many parents of color feel the wrongness of it organically, but they have been convinced that their neurodiverse children are not good enough for their neighborhood school and that their children are a distraction or threat to typical children in some way. The different operating system in their child’s brain throws them off, particularly when maladaptive behaviors are in the mix. It leaves them feeling guilty, helpless, afraid their kids will come to harm, and they listen to anyone, even if their gut tells them the advice is unjust. I am and advocate of Universal Design for Learning. I think my son can be with his peers in age as well as ability and everyone can benefit." Kerima Cevik
Because I Stood With Henry
Because I stood with Henry I am happier today and you should too. Henry not only got his rights, he proved that presumption of competence should be the default for every student.
The Autistic Self Advocacy Network
The Autistic Self Advocacy Network is a 501(c)(3) nonprofit organization run by and for Autistic people.
Thinking Person’s Guide to Autism
We love Thinking Person's Guide to Autism, a community of autistics, professionals, and parents sharing what you need to know about autism.
The Need to Reassess the Sheltered Workshop
An emerging story in Rhode Island is raising discussion about sheltered workshop environments for people with intellectual disabilities and the culture of discrimination that they create. Discrimination? Yes. These environments, originally intended to ensure that people with intellectual disabilities had work to do and and a safe place in which to do it, have become the exact opposite. They're also created a culture where it's permissible to not only view people with intellectual disabilities in extremely outdated ways and to treat them accordingly. The most recent story that's brought these issues to the public's attention revolves around a a school
Untitled
This is not directed at anyone in particular. It is about several people I’ve met throughout my life. I sometimes need to remind myself that being me means following my own agenda and not pleasing the ones who will not be part of my story.
People With Disabilities Practically Absent from Marketing Campaigns
ABC.com reports that despite sporadic appearances in the media and marketing campaigns, people with disabilities are still largely absent, and that many people feel that marketers in particular are losing out because of it. Blaming the absence of people with disabilities in marketing campaigns on "a combination of ignorance, caution, and fear," advocates feel that a concentrated campaign to have people with disabilities included in advertising is necessary, similar to past campaigns to have minorities included in advertising. 57 000 000 Americans have a disability, and as a group their spending power is $200 to $500 billion. They're definitely a
Not Impossible: The Story of Daniel
Five years ago (next month) our severely autistic son Daniel had a major breakthrough. This whole world is new to him: standards, peers, comradeship and competition.
Ariane Zurcher: Non-Speaking Autistic Woman Writes Book
Barb Rentenbach's funny, poignant and beautiful must-read book, I Might Be You: An Exploration of Autism and Connection, is now available as an audiobook.
Hi @KatieCouric I am #autistic & would like to talk to you about #inclusion, #communication & #civilrights #KatieAutismChat
Katie Couric will have a Twitter Chat with Autism Speaks on Wednesday May 29th at 1pm EST . Autistic people should be in the chat. hashtag #KatieAutismChat. This is my message. Hi @katiecouric I am #autistic & would like to talk to you about #inclusion, #communication & #civilrights #KatieAutismChat .
Amy Sequenzia: Does it matter?
Should it matter that some of us are labeled intellectually disabled? Read the definitions, look at us in a realistic way and ask yourself; Does it matter? Aren’t we all worthy?
Autistic Hoya: Ordinary Lives
When I demand equal access, equal opportunity, equal rights, I'm not insisting on my superiority, innate or acquired. I don't want special treatment. I want to see the removal of cultural paradigms about what types of bodies and minds should be valued and what types of bodies and minds should be deigned for marginalization. I don't want a world that advantages me over you. I want a world where oppressive systems that ultimately hurt everyone have been overcome, dismantled.
2013 Top Ten Signs of Special Ed Advocate Burn Out
Subtitle: Why you may need a trip to a COPAA conference to relax. 1. You thought the OSEP’s MOU on NCLB’s AYP came from CDC and was about another STD. 2. You are were actually able to follow #1. 3. You asked the Advocate Committee to research OCR guidanc
Mother
This is for every person who embodies the meaning of motherhood. This is for the ones who nurture and protect, who never consider their lives more important than the lives of the ones being nourished, educated, protected and loved.
Everyone Communicates
One of our favorite resources for all things AAC!
Ostracized for Autism
"The reason for this article is to spread awareness about why people shouldn't believe everything they see or hear from powerful people and companies. Respecting authority is great, but believing everything they say may make you a brainwashed, horrible person. Also, this article was written to remind people to treat others how they'd like to be treated, and not act cold to them regardless of how different they are."
Happy Mother’s Day Week : Turn It Up to 11
It's that time of year .... Mother's Day Week! Is there a song that makes you think about why you love being a mom? Or a song that just reminds you of your family? Share it here.
National Center on Health, Physical Activity and Disability
Great resource promoting increased participation in physical activity among people of all abilities.
Abuse of Children with Intellectual Disabilities
Children with disabilities of any kind are not identified in crime statistic systems in the U.S., making it difficult to determine their risk for abuse (Sullivan, 2003). A number of weak and small-scale studies found that children with all types of disab
Game Changer: Florida Senate Unanimously Passes Special Education Bill
The Florida Senate unanimously passed Bill 1108 on April 29th.
I celebrate 1000 Ausome Things #AutismPositivity2013
People are ausome. Every kind of ausome. just look. you will see.
Autistic Teen Uses Tech to Break Silence
A brilliant 16-year-old boy who has autism is breaking through his silence and making people realize what autistic kids can do. Ido Kedar has difficulty controlling his body, and he cannot talk.
Some special education teachers fear losing jobs
ATLANTA (AP) — Some Atlanta special education teachers say they fear they could lose their jobs if they aren't certified to teach in another subject. Keith Butler helps special education students with math in an Atlanta high school. He said teachers are
Emma’s Hope Book: Accepting Ourselves So We Can Accept Others
Beautiful post from Ariane Zurcher.
Law Would Give Parents Final Say About Special Diploma Track
A proposed law moving quickly through the Legislature would give parents of kids receiving special education services the final say about their child’s placement on a special diploma track.
Standing With Ashley
I stand with Ashley because she is part of our community, she is brave and she survived brutality.I stand with Ashley because I hope to show her, one day, that the joy of belonging to our caring community trumps the memories of pain.
Shouldn’t New Disability Awareness Course Be Mandatory for Police?
Kudos to New York State for making train-the-trainer disability sensitivity training available to its law enforcement officers as of April 2013, with the stipulation that police officers that take the course must take it back to their respective police agencies. But why not make the training mandatory instead of just "available"? The First Responders Disability Awareness Training Course augments the very basic curriculum in disability sensitivity offered to New York state police officers as part of their core training: 14 hours on mental illness, but only two on autism, Alzheimer’s disease, and blindness and deafness , and none on intellectual
Insight into Inclusion: The Language we Use
How do we help our children or students who are perpetually losing things, often running late and seem completely disorganized? Do we re... Teachers love a great resource! Especially a resource that is free and at their fingertips - literally. That's why
Lawsuit alleges school bus aide slapped autistic boy
A north suburban special education school bus aide slapped an autistic student who cannot speak, according to a lawsuit filed by the boy’s mother, who claims she uncovered the alleged abuse after putting a recording device in her son’s backpack. Nabiha Z
“The Story of Luke” Brings Autism to the Big Screen
But my question is, where are autistic people in the creation of the movie and the movie itself? The representation of autism and disability in film should include the actual voices of autistic people.
Listen Up
Listen Up! the PSA from the Autistic Self Advocacy Network and Autism Acceptance Month has been released!
The Most Important Information About AAC Use in the Classroom
Presumption of competence combined with support and collaboration from team members helps the learner with complex communication needs have a voice in the classroom.
Must Have Autism E-book
Great e-book for Autism Acceptance Month !
Autism Acceptance- All Created Equal
John Hussman on the MCIE Blog. "And then love them back. Not for who they might have been without autism, or for who they might be if they were “cured,” but as people who need to be nothing other than who they are, to be loved and accepted."
A Generational Shift in Understanding Life With Down Syndrome
"You cannot know if someone else's life is worth living without asking them and without even knowing them."
Autism Acceptance Month
"Acceptance is an action." Autism Acceptance Month from the brilliant folks at ASAN, is beyond incredible. We could read the About page again and again- and probably will. Check it out. Take the Pledge. What is Autism Acceptance Month? Autism Acceptance Month is about challenging ignorance, prejudice, fear, and hysteria about autism and autistic people. Autism Acceptance Month spreads the word that autism is both a neurological disability and a natural part of human diversity, and centers the voices of autistic people in the conversation about us. Autism Acceptance Month promotes acceptance of autistic people as family members, sons, daughters, spouses, friends, classmates, co-workers,
Reason # 202 Why You Should Come to See Wretches & Jabberers Next Weekend..
The incredible soundtrack. J. Ralph, recently nominated for an Academy Award for his song, Before My Time, for the documentary Chasing Ice, composed and performed the songs in this incredible documentary, He is joined by some of the most talented folks in music.
What Reading Self-Advocate Blogs Does
You can have hope.
Boys & Girls Clubs of Tampa Bay Stand Up for Inclusion
Presented and discussed will be the importance of inclusion and friendship for youth with disabilities. The cast and of the acclaimed feature documentary, Wretches & Jabberers will be joined by The National Center on Inclusive Education’s Mary Schuh, PhD, and Tampa advocate, 13 year old, Henry Frost.
School Says, “No Advanced Classes for Kids with IEPs”
My child has a learning disability. Her teachers want her to enroll in advanced classes. She is eligible based on her test scores and school performance. The School will not let her enroll her because she has an Individualized Education Plan (IEP). What
April and Autism Acceptance at Tampa Theatre
Get your advocacy on. April and Autism Acceptance is in Tampa. The rock stars of disability advocacy- Tracy Thresher and Larry Bissonnette- are back.
Ollibean Art for Change at USF: April. Autism. Advocacy. Acceptance.
A day of inclusive education, community acceptance, and self-advocacy at USF with Academy Award Winning Director and Stars of the Acclaimed Documentary Wretches & Jabberers, NCIE's Mary Schuh, PhD, and Tampa advocate Henry Frost. CARD (The Center for Autism and Related Disorders) at the University of South Florida) will host at USF's Marshall Hall.
Lawsuit charges Ed Department with violating student privacy rights
The U.S. Education Department is being sued by a nonprofit organization for promoting regulations that are alleged to undercut student privacy and parental consent. The rules allow third parties, including private companies and foundations
Great Resource: Musings of an Aspie
who and what some things about me was 42 when I discovered that I have Asperger’s Syndrome. When I visit the zoo, I always leave thinking that maybe I was a primatologist in another life. Or a monkey. I’ve been my own boss since I was 18. Statistics fascinate me. I own three pairs of running shoes and no dress shoes. Somehow I managed to find the one person in 7 billion who understands me and marry him. And stay married for 25 years. The single most frequent response I got from professors: “I never thought of it that way.” Usually
Autistic People Are Everywhere | Musings of an Aspie
This post is a part of today’s “Autistic people are . . .” flashblog. You may have seen the news this week that Google has promised to eliminate the problematic “Autistic people should” autocompletes in response to last week’s flashblog. They’ve said it will take time to engineer, so while the hateful autocompletes are still appearing, hopefully they’ll soon be gone. We can make a difference by speaking up. ——- Autistic people are everywhere. We sit next to you at school and on the bus. We give your dog his rabies shot, teach your kids, make your latte and sweep
Retention is Not a Form of “Specialized Instruction”
The school wanted to retain my son who has an IEP for OT, PT and Speech. They insisted he repeat second grade. I disagreed. Now in third grade, his teachers want to send him back to second grade. They say his writing is not on par with a “normal” third g
Top 25 Pinterest Boards for Education
Check out these Pinterest boards for education!
Autistic People Are
Autistic people are people. Autistic people are complex. Autistic people are happy. Autistic people are kind. Autistic people are accepting. Autistic people are helpful. Autistic people are mentors. Autistic people are doctors. Autistic people are engineers. Autistic people are writers. Autistic people are leaders. Autistic people are accountants. Autistic people are heros. Autistic people are artists. Autistic people are models. Autistic people are film makers. Autistic people are backpackers. Autistic people are musicians. Autistic people are teachers. Autistic people are sherpas. Autistic people are trainers. Autistic people are neighbors. Autistic people are brothers. Autistic people are sisters. Autistic people are
‘Autistic People Are’ by Amy Sequenzia
Autistic People Are Awesome! Autistic People are the real experts on autism. Autistic people are not more complicated than non-autistics. Autistic people are misunderstood and mischaracterized by non-autistics. Autistic people are artistic and we don’t need speech to show our talents. Autistic people are your friends your co-workers your children. Autistic people are parents siblings grandparents. Autistic people are not tragedies we are not burdens. Autistic people are not sufferers because of autism we suffer discrimination from non-autistics. Autistic people are “different but not less”. Autistic people are not “Rain
Time for a Paradigm Shift in Special Education
Thomas Armstrong's piece on neurodiversity and education.
Home Modifications
Not all people begin life with disabilities, but most of us will need some kind of assistance as we experience the normal process of aging. Living at home within a community increases self-esteem, which can improve mental and physical health. Another rea
Medical Myth Busting – Journal of Medical Toxicology Debunks Autism Treatment
“Despite the absence of data, and in the face of such concerns about absorption and dose..
“Loud Hands – Autistic People, Speaking” A Review
The title of the book should be enough for anyone who wants to know, know more or know anything, about autism and Autistics to buy it and read it.
Man with Autism, Caregiver Shot by Off-Duty Officer
A man with autism and his caregiver were shot by an off-duty Camden police officer, who thought his home was being burglarized, according to the Camden County Prosecutor's Office. NBC10's Katy Zachry talked with investigators who say the 21-year-old man had just been dropped off at his home on the 2800 block of Arthur Avenue by his special needs school in Cherry Hill and was met at his house by his caretaker. Investigators say instead of going to his front door, the 21-year-old with autism went across the street and started banging very loudly on a neighbor's door. Investigators tell
Neurodiversity IS the Next Civil Rights Movement
"When we talk about inclusion what we're talking about is diversity." Audra Zucherman, co-founder, The IDEAL School .The IDEAL School practices full inclusion while nurturing their students abilities to create real change in the world through compassion and self- empowerment.
We Love Emma’s Hope Book
Ariane Zurcher is definitely one of our favorite writers. She writes with exceptional honesty, insight, and beauty.
Ten Things I wish My Teacher and SLP Knew about AAC : Pat Mervine
Pat Mervine has a great website and is the author of "How Katie Got a Voice (and a cool new nickname)" . I wish..... the entire team would be trained in how to program and use my AAC system. My "voice" shouldn't be taken away from me just because an adult is absent or busy. Oh, and a good back-up system would be much appreciated for when my device goes down. my AAC device would be charged (if electronic) and positioned for me to use it all times. Other kids can talk all day -- at recess, lunch, on the bus,
Squag Interview: Architecture For Kids
Sara Winter of Squag™ interviews, Jorge Raedo of Amag . Amag is an architecture magazine for children 5-10 years old. It is a free Open Educational Resource.
Breaking News from Autistic Hoya: The End of Torture at the JRC?
Massachusetts Governor Deval Patrick filed a motion to vacate (render null) the 1987 settlement agreement that has permitted the Judge Rotenberg Center to use aversives, including the notorious electric shock GED devices.
Appropriate Education for Your Child – 02/15/2013
Unfortunately, our guest Howard Glasser, was unavailable for this morning's show! However, Terri and I managed to fill the 30 minutes (it's not hard!) talking about inclusion and education. During our show, we talked about finding appropriate education f
Merck Fund Announces Three $1M Grants to Support Translational Research in Developmental Disabilities
Several AUCD network members and George Jesien, Executive Director of AUCD, participated on the scientific advisory committee which helped develop this important grants program with the John Merck Fund. The John Merck Fund announced today the first three
Wright’s Law: Why Schools Usually Say “No!”
My son is going to middle school. Same district, new school, just blocks apart. His 1:1 (same para for 3 years) has been the best thing that has come into his life ever. We want his para to follow him to middle school. The Special Education Director says
What Are Autism Archetypes?
An archetype is a symbol, a single representative of a category. If we think of the word chair, for instance, we often call up an image in our mind. That image, usually a specific type of chair, stands for all chairs in all their different forms. Autism
Bright Not Broken Gifted Kids ADHD and Autism – Feb 14,2013
Chef Dean Neff, Executive Chef at Hugh Acheson's "Five & Ten" highly rated restaurant in Georgia, visits with Olivia Wilder to talk about his culinary career. Bobby Seale co-founder ofThe Black Panther Party was an African-American revolutionary socialis
I Feel Tired
Some parents understand that autism is a natural part of some children’s lives and they fight the societal attitudes toward autistics. That’s love. Some parents don’t, and they fight, and hurt, their own children. This is not love and is one of the things that make me very tired.
Sometimes The Best Way To Communicate With Your Kids Is Not To Say Anything At All
I remembered an article that Anabelle Listic wrote for our blog last week. In it, she described how using sticky notes with positive messages around the house really helped to get her through the winter blues .
Accessible Instructional Materials (AIM)
Great video on Kathleen McClaskey's Scoop It site, UDL- Universal Design for Learning about accessible instructional materials.
Autism Acceptance – Leading the Conversation
I want to talk about Autism Acceptance again. I want to talk about Autism Acceptance because soon we will be, again, referred to as tragedies, burdens, afflictions. This will go on, more than usual, for the whole month of April. April is the month chosen
Grieving Newtown Couple Raise Money for Autism
Josephine Gay's mother could not be with her in her final, harrowing minutes inside Sandy Hook Elementary School. She struggles with it every day, but she has taken comfort from learning that Josephine's aide wrapped her arms and body around her and othe
Asperger’s entry removal from manual decried
With orders now being taken by the American Psychiatric Association for its first updated volume on diagnostics in nearly 20 years -- and no hope for changes in the text -- Long Islanders are dismayed that an Asperger's syndrome entry no longer exists.Ed
The Inclusive Class: Supporting Students with Learning Disabilities
Nicole and Terri are looking forward to interviewing Dr. Sheldon Horowitz about ways classrooms can support children with learning disabilities.
Jennifer Byde Myers: Autism and the Quest for Knowledge
Great post by Jennifer Byde Myers at jennyalice.com. Jack doesn’t fit the mold. Not the mold for a typical kid, not the one for cerebral palsy, not autism, not ADHD. Whenever we try to "box him up", another piece of him pops out, unexplainable by a typical convention.
When Autistics Grade Other Autistics
“If you judge a fish by its ability to climb a tree…”We know how functioning labels are not helpful, despite being largely used by neurotypicals. But some autistics also grade members of our community and I want to understand why.
Kuusisto on the Fraudulent Writing about Autism at Slate
Stephen Kuusisto on the ableist article about autism and neurodiversity on Slate.
The Inclusive Education of Adults with Autism
This week on The Inclusive Class Podcast, we will be talking about educating adult students with autism. To lead our discussion, will be expert guest, Rhonda Greenhaw. Rhonda J. Greenhaw, MA, BCBA, is a leading clinician and researcher in the field of au
Grit Media
Grit Media promotes the rights and aspirations of people with disabilities by creating opportunities to be seen and heard in a range of media productions. Our productions bring disability awareness into peoples' homes through the depiction of realistic, compelling and entertaining content, that encourages audiences to see disability as a natural part of life. The organisation provides training opportunities for people with disabilities and aims to encourage the wider media industry to join our battle against a culture of harmful misconception and ignorance about disability. Welcome to Grit Media.
Ido In Autismland
We love Ido In Autismland, a blog by Ido a young autistic advocate who types to communicate.
Person-First Language – ‘autistic’ vs. ‘with autism’
There is some debate about using the term ‘autistic child’ vs. ‘child with autism’, the latter being an example of what is typically referred to as ‘person-first language’. As you may have noticed, I typically use ‘autistic’. There are plenty of strong o
Center for Autism and Related Disorders Partners with Paper Clouds…
The Center for Autism and Related Disorders (CARD), the world’s largest provider of effective, early-intensive behavioral intervention for individuals with autism spectrum disorders (ASD), is proud to announce its new product line with Paper Clouds Appar
Social Model of Disability
Great animated short on the social model of disability. What are your thoughts?
Labels
I am autistic. I choose to use this because of community. Not to tell you what I am or what I am not. This is my choice.
I Am Autistic and I Know What Autism Is
Autism is not a set of deficits. Autism is complex and all of us can self-advocate despite the difficulties we might face. Autism is life. I am Autistic, I self-advocate and I am happy.
Your brain on Big Bird: Sesame Street helps to reveal patterns of neural development
Using brain scans of children and adults watching Sesame Street, cognitive scientists are learning how children’s brains change as they develop intellectual abilities like reading and math. The novel use of brain imaging during everyday activities like w
Disneyland and autism
I’m stepping outside of my typical green business posts today for another autism-related article. This time, the topic is Disneyland and autism. On December 26, 2012 my husband and I surprised the kids at 5:00 am when we loaded them in the car for a surp
Q&A: IDEA and child care
This 4-page brief explains the basics of the Individuals with Disabilities Education Act (IDEA) to child care providers, including early intervention for children under the age of 3 and special education and related services for school-aged children. It
Awesome Resource : Tiny Grace Notes (AKA Ask an Autistic)
We absolutely love Tiny Grace Notes. Check it out, you will too. Elizabeth (Ibby) Grace is brilliant, kind, and all around wonderful. Got a question about autism? Send it to Dear Ibby! Ibby is an education professor, a researcher, a mom, and Autistic. There is something about Ibby. She is one of those people who are easily able to convey warmth, respect, goodness, and so much information in just in a couple of paragraphs. Read her blog, you'll see. But, carve out some time, you won't read just one.
Raising Rebel Souls
We are huge fans of Raising Rebel Souls. Heather is an incredible writer and advocate, and stood firmly with Henry:) Here's a bit about Raising Rebel Souls: Rebel Mommy: I am Rebel Mommy, also known as Heather. I have been given a lot. I am lucky in love. Yes, my hands are full, yes, I drink too much coffee, yes, my dishes are currently piled up and no, I am not a good housewife, but yes, I am a damn good Mother. I was born to do it. I swear to you, my life before my sons, was just me
Calm and Soft but Full of Energy: Thoughts on “the event of a thread”
We went to see Anne Hamilton's: the event of a thread at the Park Avenue Armory while we were in NY last week. It was absolutely magnificent, I wish we could go back again. Hamilton is brilliant. Our family is full of different tastes, sensory needs and ages and it was a perfect fit for everyone. Henry did an excellent job editing our experience. Henry loved the installation. He said it was "calm and soft but full of energy", "smooth and architectural water crossings " There are benches so if you want to sit down and watch you can,
IEP Team Member Apology: A Template for “Not Knowing It All – After All”
Have you just committed a real faux pas but find yourself at a loss for words to apologize? Perhaps you are a celebrity who needs to apologize for disability-related comment… A teacher who needs to apologize for outrageous classroom mistreatment… Or, a p
Letter from National Council on Disability (NCD) to the President Following Newtown Tragedy
December 20, 2012 The President The White House 1600 Pennsylvania Avenue NW Washington, DC 20500 Dear Mr. President: On behalf of the National Council on Disability (NCD), an independent federal agency, and in response to your recent national call to act
Expert: Asperger’s not linked to violence
Published: Dec. 22, 2012 at 10:07 PM PHILADELPHIA, Dec. 22 (UPI) -- To suggest a tie between Asperger's syndrome and violent, sociopathic tendencies is to undermine the research on autism spectrum disorder, a U.S. expert says. Michelle Rowe, executive di
COPAA Statement on the Newtown Tragedy
The members of Council of Parent Attorneys and Advocates, Inc. (COPAA) work in schools every day with teachers and on behalf of the 7.1 million children with disabilities in the United States. Because of our work, we feel intense, personal pain over the
Autism device hidden in designer vest
With files from the CBC's Chad Pawson A Vancouver entrepreneur's start-up company is hoping to put "the squeeze" on autism. Lisa Fraser, a recent graduate from Vancouver's Emily Carr University, has designed a special medical vest that helps children cop
A mother’s anger: Stop linking autism to violence
Sarah Darer Littman and her son shared their story at a StoryCorps booth in 2006. STORY HIGHLIGHTS Mother of son with Asperger's upset about misinformation spread recently Writer implores journalists to be responsible when reporting on the syndrome "Your
FCC Honors Designers of Communications Technology Benefiting People with Disabilities
445 12th Street, S.W. FOR IMMEDIATE RELEASE NEWS MEDIA CONTACT: December 19, 2012 Michael Snyder at (202) 418-0997 E-mail: Michael.Snyder@fcc.gov FCC CHAIRMAN GENACHOWSKI HONORS INNOVATORS IN ACCESSIBILITY COMMUNICATIONS TECHNOLOGY IN CEREMONY TODAY Demo
My Top Ten
These are the top 10, now top 18 things I need for teachers, therapists, doctors, friends and family to know.
My iPad Is Not a Toy
Please never refer to my iPad as a toy. It is not. It is my voice. Imagine if you could not speak with your mouth how important your iPad voice would be.
Happiness is Fireflies
This very sweet video, 'Fireflies' by The Jubilee Project is about two kids that connect in a beautiful way.
Standing Together for Inclusion
Standing together for inclusion, communication and civil rights. Please include all kids in your classroom.
Changing the Paradigm
Sir Ken Robinson on education reform. "Changing Paradigms in Public Education" covers the importance of thinking differently about human capacity , recognizing the benefits of collaborative learning, and changing the culture of our institutions.
Stephen Wiltshire
We are huge fans of the extraordinarily talented Stephen Wiltshire. Stephen Wiltshire - An Introduction Time lapse of Brisbane Panorama by Stephen Wiltshire
An Ethnographic Investigation of African American Mothers’ Perceptions of Augmentative and Alternative Communication
The purpose of this study was to investigate fourteen African American mothers' perceptions of the utilization of augmentative and alternative communication (AAC) by their children with autism spectrum disorders (ASD). The authors used ethnographic metho
Sensory/Movement Differences and Diversity
For a lot of people, the most anticipated books each year are about vampires or girls with great archery skills, but the release I waited for was this book by friends, Martha Leary and Anne Donnellan. I am not exaggerating when I share that their first book, Movement Differences and Diversity in Autism, completely changed how I thought about disability, behavior, and autism. This new volume did not disappoint, and I am now recommending it to everyone in my circle (and now, to all of you)! To me, no other researchers/scholars in autism are doing more than these two women
TPGA’s All Ages Holiday Book Guide
Do you love to give and receive books? We love to give and receive books. So for you and for us, here's a short selection of recommended books by, for, about, and enjoyed by autistic people and their families. If you have additional suggestions for books
‘Smartpen’ Pilot Program Helps Students with Disabilities
We often get questions about the legality of using a recording device or pen in class. Parents ask this question when schools tell them “recording devices violate the confidentiality” of other students in the classroom. Digital recorders or recording pen
Shatter the Myths About Autism
"No Myths". Must see PSA by the Autistic Self Advocacy Network and the Dan Merino Foundation. Change the conversation about autism.
Ollibean: All of a kind
The faces of Ollibean are kids with and without disabilities all trying to make the world a better place.
Henry Frost on Inclusion on the Autistic Self Advocacy Network
Henry wrote about inclusion for the Autistic Self Advocacy Network, read the entire article here. Ari Ne'eman, president of the ASAN, had an enormous impact on Henry's decision to speak out about his desire to attend his neighborhood school. "I met Ari at theAutism Summer Institute. I wrote to him about my school and he understood. He helped me advocate for my rights. ASAN helped with the petition. He is also autistic. He is also my friend. I did not read about a person who liked being in a separate school away from their friends learning cooking for life skills
Use Your Words: Non-Verbal, Speech, and AAC
I see a little girl every week at events that my child attends. She's great. She's nine years old, has a fantastic laugh, and a mischievous sense of humor. She loves puddles, chocolate cake, and apples. She has a small crush on my son. She's also non-ver
Which Congressman Is Blocking Bill That Would Protect Kids with Autism?
Legislation aimed at protecting children with autism and other disabilities from being injured in school has stalled in the House of Representatives at the hands of a single member who objects to federal intervention. Minnesota Republican Rep. John Kline
Autistic Student Wins the Right to Go to School
Henry Frost had a pretty simple goal: he wanted to go to school like any other kid.
Emily Willingham “Autism Bingo: The Congressional Hearing Version”
Our science editor Emily Willingham live-tweeted Thursday's Congressional autism hearing from the perspective of a scientist, autism parent, critical thinker, and human. She Storified and annotated the experience, turning offensive keywords and laughable
Autism on CSPAN Washington Journal
Hi. My name is Henry Frost. I am a 13 year old Autistic self advocate. I agree with Ari Ne'eman. This is a civil rights issue. Communication and inclusion are basic civil rights. I made this video about civil rights. I made a FB page and petition so I could go to school in my neighborhood. Ari and ASAN helped me advocate. http://www.facebook.com/IStandWithHenry , change.org/henry People all over the world wrote this is a civil right. We want the same things in life. We are not so different. Please watch to understand how much we need support for
Build Your App with Therapy Box
“After numerous requests, we have opened up our service to work with creative speech and language therapists, teachers and organisations who have an idea for an app they would like to deliver. We will make it happen” explains Therapy Box Therapy Box, the
Get Schooled: Jack Black Rocks “Sensitive”
AUTISM IS AWESOMISM . LOVE this video performed by the incredible Wyatt Isaacs (Autism the Musical), Jack Black, Stephen Stills from the Miracle Project Benefit.
CEC Celebrates IDEA’s 37th Anniversary
On November 29, 1975 President Gerald Ford signed into law the Education for All Handicapped Children Act (Public Law 94-142), landmark legislation that forever changed how American’s view individuals with disabilities. Now known as the Individuals with
Longview school suspends use of isolation box
The Longview School District has suspended the use of an isolation box for special education students while it reviews the policy for isolating students who may be a danger to themselves or others. The Longview School District has suspended the use of an
ASAN Statement on Upcoming House Autism Hearing
“We’re profoundly concerned by the decision by the House Committee on Oversight & Government Reform to convene a hearing on autism next week without the inclusion of any Autistic witnesses or representatives from organizations run by Autistic people. Jus
Inclusion in Tampa
' With a little help from his friends'. Henry's inclusion is truly a group effort led by this determined 13 year old self advocate .
Evaluating the Efficacy of the LRE
I attended an IEP meeting recently that really brought home for me the complex nuances of determining what placement, or blend of placement options, represents the Least Restrictive Environment (“LRE”) for an individual student with an IEP. Not only are
Amy Sequenzia: I, Too, Want to Understand.
Why would a parent of an autistic child decide that it is better not to listen to other autistics? Why? I, Too, Want to Understand.
Now, It’s Our Turn!
Tonight, Terri and I had the tables turned on us! It was our turn to be on the "hot seat" when we were featured guests on HuffPost Live. Interviewed by host, Nancy Redd, we appeared live (and on camera - much more stressful than a phone interview!!) to d
CHOP presents new findings on pediatric cardiovascular disease at AHA 2012
Physician-researchers from the Cardiac Center at The Children's Hospital of Philadelphia presented new findings on pediatric cardiovascular disease at the American Heart Association's Scientific Sessions 2012 in Los Angeles. They described racial dispari
The Case for Inclusion Part 3: Sea Change
The longer there is a strong distinction between general and special education the worse it is for students who are labeled with a disability. It perpetuates the language of Us and Them...
Adding the I to IEP: H is at the table
We worked with the wonderful team at H’s Distributed Learning School to update his Individual Education Plan (IEP) and for the first time ever H was there to take part. He wasn’t completely interested – but we built-in other options for him so he could p
Open Letter from a Doctoral Student Who Needs Some Help with her Study
Hi, my name is Christina and I am a doctoral candidate at Grand Canyon University. The title of my dissertation is “Examining the Potential of Using Technology to Improve Academic Performance: The Experience of Autistic Children with E-Readers.” As a for
Paula Kluth on The Inclusive Class Roundtable
Paula Kluth's strategies for teachers who might be reluctant or don't know where to begin with inclusion on The Inclusive Class Roundtable, as well as some of our favorite things from her website, PaulaKluth.com.
Supporting Students with Learning Disabilities – 11/02/12
Having taught at the primary, secondary and college levels, Dr. Horowitz has also worked as a consultant to school districts throughout the New York City metropolitan region. In addition, he is frequently cities in popular press topics including parentin
Amy Sequenzia: To You, Young Autistic Friend
Autistic advocate and poet Amy Sequenzia's message of acceptance and respect for young autistics for 2012 Autistics Speaking Day. "There is nothing wrong with being who you are. You are perfect in your uniqueness."
Conversations Between Autistic Self-Advocates and Autism Parents – Part 2
Self-Advocate Elizabeth (Ibby) Grace's blog Tiny Grace Notes is subtitled "Ask an Autistic," and that is exactly what people do -- solicit Autistic insights from her. We asked if we could republish a recent conversation Ibby had with Tina, an autism pare
Listen to The Inclusive Class Roundtable – 10/26
Inclusive Education, as defined and described by education experts, is a philosophy. It is not a program, nor does it happen in is... Parents of school-age children can often become bewildered by today’s education system and it’s expectations. Its quickl
Special ed in distress A few schools get it right, but complaints and lawsuits are mounting against a troubled program serving 7,000 Seattle students.
Five years ago, a high-profile report found that Seattle's public-school district was decades behind the rest of the country in serving students with disabilities. Today, the problems are even worse. Six special-education directors — and three superinten
Why Won’t the School Provide Homebound Instruction?
My child’s doctor recommended homebound instruction. The school said they had the authority to override that recommendation. Why won’t the school provide homebound services? Issues of homebound are determined in part by state law and state regulations, i
COPAA Announces Keynote and General Session Speakers for 2013 Conference
COPAA is an independent, nonprofit membership organization of special education attorneys, special education advocates, related professionals, and parents/family members. Our primary mission is to secure high quality education services for children with
Low Eye Contact Is Not Just An Autism Thing
A news story about a Society for Neuroscience conference report on the discovery of “eye cell” neurons that register eye contact says: This new type of neuron was discovered in a Rhesus macaque. If humans have these neurons too, it may be that they are i
Supporting Young Autistics
We hope that young autistics today will be proud of themselves and without shame. The message that boy received at that moment was the opposite of acceptance. It was ableist and it came from someone who is part of our own community.
Feedback Loop: Autistic Student, Or Student With Autism?
Dean McIntosh criticized our describing Frost as a “student with autism.” The entire adult autistic community has been saying in one loud voice that “…with autism” is not acceptable. Myself and Lydia Brown are just two examples of autistic adults who wri
Why is a 13 year old protesting in order to go TO school?
How did we get here? How did we get to a point that our 13 year old son has to fight for the rights that are already his under federal law? How did we get to a place where a pretty reserved kid has the courage, the will, to do this?
Social Media Helps Student With Autism Find His Voice
Henry Miles Frost and his service dog, Denzel, protest outside a downtown Tampa building during the Republican National Convention. Since he posted the photo to Facebook, he’s found global support in his effort to enroll in his South Tampa neighborhood s
AAPC Publishing Releases Lesson Plan a la Carte: Integrated Planning for Students With Special Needs
Integrate learning objectives with therapeutic supports and necessary modifications right in the classroom. Multiple worlds exist within the educational universe. Integrated planning happens when each of these worlds (teaching, clinical, administrative,
Teen’s death shows gap in autism care, say advocates
Advocates for those with autism say the death of an Edmonton teen this week reveals a serious gap in the province’s mental health system. Jarrett Bortscher, 18, was found dead Wednesday after going missing from his family’s home Sunday. “This kid was an
National Council on Disability (NCD) Releases Report on Rights of Parents with Disabilities & Their Children
WASHINGTON, DC -- On Thursday, September 27, the National Council on Disability (NCD), an independent federal agency, released “Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children” -- a groundbreaking policy study, inf
The Case for Inclusion Part Two: What Does Inclusion Look Like?
It should always be the objective of public education to serve all students no matter what their disability label. It should always be the objective to give the right amount of support for all children.
Bureaucrats
You look at me But you don’t see me You talk about me but not to me You think you know all about me But you deny my humanity You think I don’t have wishes You believe I don’t have plans You don’t respect my basic rights According to you I should be grateful That I have a place to sleep That I have three meals a day If I say I want to go out You ignore me To you I am only a burden Too disabled to have an opinion To you I don’t count as a person
Presume My Competence
Really, this is number one. Please presume my competence.
Focus on My Strengths
#4 Please focus on My Strengths. I have many. We all do.
I Stand With Henry
What Henry is doing is advocating for his rights, at the same time that he reminds us of our own rights and about how far we still have to go.
Top 10 Things Autistic Self Advocate Needs Teachers to Know : # 3
Top ten things I want you to know. Number 3: Please talk directly to me, not to my support person.
Almost Half of U.S. Kids With Autism Have Been Bullied
MONDAY, Sept. 3 (HealthDay News) -- Nearly half of U.S. children with an autism spectrum disorder are victims of bullying, a new study finds. "The rate of bullying victimization among adolescents with an autism spectrum disorder is alarmingly high, indic
Autistic Student’s Top 10 List for Teachers of Students with Special Needs #2
Top ten things Autistic student wants teachers, therapists and friends to know about students with special needs... they may be shocking to some of you, but hopefully to most they are exactly what you expect. Here's number 2.
A Poem About Pain
Other people have written better articulated articles about the same things I write in this poem. It is hard for me to elaborate beyond the words in the poem. It could have easily been me in some cases, it can happen to any of us.
NeoSpeech Text-to-Speech Featured in AAC Speech Application
We believe that NeoSpeech Text-to-Speech will benefit people with speech disabilities to communicate with other people. NeoSpeech, a leader in text-to-speech (TTS) software and speech-enabled solutions, announced today that an Augmentative and Alternativ
A Sensory Garden for Zoë and Oliver
One of Ollibean's contributors, the lovely and amazing, Julie Lohoefener of Bloom Garden Shop, let's us in on some great tips on creating a non-toxic Sensory Garden with your kids.
Dr Thomas Armstrong – Neurodiversity – Aug 27,2012
Call in to speak with the host "Neurodiversity" by Dr Armstrong - Brilliance "Neurodiversity - Discovering the Extraordinary gifts of Autism, ADHD, Dyslexia and other brain differences. This book has it all - what research tells us about the specific str
USC’s Special Ed Infographic
Welcome to Making Special Education Actually Work, the official blog of KPS4Parents. We sincerely hope that this blog proves to enlighten and empower all responsible adults to ensure that all children, regardless of disability, receive a Free and Appropr
Listening to Autism: A letter from Mrs. Teacher Lady
I wanted to thank you for all the hard work you do in not only helping your son through his journey and helping him accept himself, but helping others on their own journey as well. I wanted to share with you a little bit of my story. I have always found
Cognition and behavior: Words bias impressions in autism
Positive response: People with autism are more likely than controls to see as a friend a man making a disgusted expression and saying “You are friendly.” Individuals with autism rely more on words than on facial expressions when interpreting social cues,
National Federation of the Blind Applauds National Council on Disability Report
Dr. Marc Maurer, President of the National Federation of the Blind, said: “We applaud the National Council on Disability for its strong affirmation of the value, equality, and dignity of workers with disabilities, and for its recommendation that Section
Amy Sequenzia : Friendship and Respect
It is a mistaken idea that we, autistics, lack empathy. It is also a myth that we are not social. My friends and I, we understand and respect differences. And we understand that we all have a lot to contribute, in a diversity of manners.
Another School year !!
Another school year begins August the 16th for us. My son is a young 1st grader , he will be 6 on August 23rd . But will still be five when school starts . His kindergarten experience wasn’t so great . Before he started school last year I met with the sc
Special needs kids staying in traditional schools
LOS ANGELES The high cost of educating students with special needs is disproportionately falling on traditional public schools as other students increasingly opt for alternatives that aren't always readily open to those requiring special education. The i
My Video for Day without Starbucks for Sebastien
My video to help raise money for "Day Without Starbucks for Sebastien" . Sebastien is my friend. He has MELAS, a mitochondrial disease that is hurting him. Please help.
Sebastien’s Smile
Sebastien's Smile was created for the sole purpose of raising awareness for Mitochondrial diseases which affect the Setin's son Sebastien.
Henry’s video for his friend Sebastien, please help by sharing
Thursday Henry decided he wanted to write something to help his friend. We decided to video the process, as you can see, typing one letter at a time is a very long and arduous process. It took Henry hours to type and edit that paragraph. It was hard and Henry decided to not to share the parts that were too emotional. Sebastien is one of Henry's best friends, he loves him dearly and he has watched his body get weaker and weaker each day. I am so proud of H for writing this, it was very, very hard for a
Amy Sequenzia: “Storm”
"Storm" a poem by autistic self-advocate Amy Sequenzia.
Ollibean Talks to Ray Ellis, director of “Certain Proof: A Question of Worth”
"All of these children have one thing in common. They were always having to prove themselves, over and over and over again." Ray Ellis
Mom seeks heart transplant for autistic son
A Pennsylvania woman whose autistic adult son was not recommended for a heart transplant because of his illness and the complexity of the process, among other factors, said she wants to bring more attention to the decision-making process so that those wi
WEBSITE WEDNESDAY: The Accessible Principal
I am so thrilled to share the with you, which is a new blog that was launched this summer by one of the best administrators I have ever met. Marilyn is a school and district leader in a suburb here in Chicago and she has interests ranging from technology
Ollibean Mama Spotlight
Connect and learn with other parents like Tonya who presume competence and celebrate their children for being exactly who they are. #allofakind
NYC to Integrate Special Ed Students into Regular Classrooms
New York City’s pilot for special education inclusion has moved the district to apply the program to a majority of the schools in the city. The city’s conclusion is that students with special needs should get access to the general education curriculum, n
What is the Timeline for Developing a Section 504 Plan?
My 6 year old daughter had her 3 year reevaluation. She has Childhood Apraxia of Speech and fine motor difficulty. She is doing well academically. At the IEP meeting, one month ago, it was decided that she no longer qualifies for an IEP. The school sugge
My autistic son’s step into the wider world — through Facebook
Susan Senator , a writer in Massachusetts, is the author of “The Autism Mom’s Survival Guide” and “Making Peace With Autism.” She blogs at susansenator.com/blog . When my autistic son, Nat, was about 8, we learned that he loved looking at family photos o
Resources and Downloads for Differentiated Instruction
Educators from Mesquite Elementary School, in Tucson, Arizona, have provided these resources for you to use in your own school. Daily collaborative planning time at Mesquite Elementary enables teachers to plan differentiated instruction to address the pr
The Case for Inclusion: Does All Really Mean All?
Tim Villegas of Think Inclusive on the motivation to change from educating students with disabilities in segregated settings to inclusive settings where all means all.
Ollibean Think Tank Member Tim Villegas
My hope is that ThinkInclusive.us can create a bridge between educators, parents, and advocates (including self-advocates) to promote ideas, innovation and inspiration to change our world to be more accepting and value each and every human being.
How to Make Inclusive Practices a Reality For Your School
The new school year is fast approaching and The Inclusive Class Podcast is set to help you prepare! On Friday, August 10, 2012 we will kick off our "Back to School" series which is 3 podcasts that will discuss tips, strategies and resources for helping y
Change Leader: Amy Sequenzia
"Presume competence. The same way I want people to assume I am competent, I also assume that others are competent".
Snacking: The Little Bite That Won’t Hurt You
Ollibean contributor Kristie Salzer talks about the benefits of "refueling" between lunch and dinner to decrease hunger related meltdowns for kids. We love her suggestions of 25 super easy snacks to get you started!
Amy Sequenzia:Dear Mainstream Media
I am an autistic woman, non-speaking and I have many needs.Yes, dear mainstream media, I am the autistic supposedly too “low-functioning” to deserve to be heard. You pity me and you ignore the facts.
“Yee Haw, Howdy, Amen” – When Schools Make Up their Mind in Advance!
IDEA requires Parent Involvement in Placement Decisions and developing an IEP for your child. Pre-selecting programs violates this right.
Got Questions? Get answers from our disability-centric community.
We’ve organized Ollibean so members can support each other in a very organic way. You will connect with others based on mutual interest in diffability related content.
Change Leader: Richard Attfield
Richard Attfield, a contributing author to "Autism and the Myth of the Person Alone", is passionate about the rights of children with disability labels to have equal access to education and communication supports.
Change Leader Questionairre: Richard Attfield
Change you would you like to see in your lifetime? "The end of discrimination towards children/people with disability labels. And the human right of communication implemented fairly. " Richard Attfield
14th Annual Autism Summer Institute August 6th -8th
Express Yourself: Supporting Communication through the Arts, Advocacy, and Education. Aug 6th -8th. Grappone Conference Center, 70 Constitution Avenue Concord, New Hampshire
Self-directed learning helps some students reach goals, study suggests
Students with cognitive and learning disabilities that were taught the fundamentals of self-determination were more likely to access mainstream curricula and achieve their academic and other goals, according to new research by Karrie Shogren, a professor
Insights for autism from tuberous sclerosis complex
Genetic risk: Mustafa Sahin studies tuberous sclerosis, a rare genetic disorder that leads to autism in about half of the cases. Whole-genome sequencing studies published in the past few years suggest that there are somewhere between 100 and 1,000 rare g
Teaching Reading to Children with Special Needs
On Friday July 27, 2012, Nicole and Terri will be interviewing Dr. Kathleen Whitbread about the importance of including children with special needs in reading instruction. In todays schools, children who are deemed incapable of reading, are usually pulle
Community Conversation: Autism and Public Discourse
I agree with you 100%. Is raising my son easy? In no way it is...maybe harder than others, maybe the same, I don't know, I don't raise other's kids. But the constant complaints of parents about how difficult the children are, and I believe mostly so that
Autism, Siblings, and Fairness
Shannon Des Roches Rosa www.Squidalicious.com www.ThinkingAutismGuide.com Thirteen-year-old Iz is a wonderful big sister to Leo, who is just 21 months her junior. This photo is of the two of them at a family reunion earlier this month; she's letting Leo
School-Wide PBIS & Teachers Who Bully
One reason, I suspect, is that people are so focused on holding bullies accountable that they’re not focusing on the real causes of bullying. But, that’s a reactive strategy rather than a proactive attempt to prevent bullying in the first place. Addition
The physics of autism
People sometimes say that children with autism “march to a different drummer” or “vibrate at a different frequency.” New research analyzing electrical activity in the brain—via electroencephalography, or EEGs—makes it tempting to speculate that these cli
“We Want Respect”: Adults with Intellectual and Developmental Disabilities Address Respect in Research
Abstract Respect is central to ethical guidelines for research. The scientific community has long debated, and at times disagreed on, how to demonstrate respect in research with adults with intellectual and developmental disabilities. To illuminate the v
Ollibean Think Tank Member Amy Sequenzia
Amy Sequenzia is a poet and autistic self-advocate. Her writing is as beautiful and powerful as she is. She is an extraordinary voice in the disability rights community .
Florida Alliance for Assistive Services and Technology ( FAAST)
About FAAST Our Mission is to improve the quality of life for all Floridians with disabilities through advocacy and awareness activities that increase access to and acquisition of assistive services and technology. We value each individual's right to achieve their highest potential and the possibilities that can be realized through collaborative efforts focused on the goal of improving life for Floridians with and without disabilities. FAAST has worked with thousands of people with and without disabilities throughout the state to provide: Hands on assistive technology demonstrations and trainings Financing for assistive technology purchases Assistive device lending programs Community outreach to rural and
Autism and the Feel-Good Story
When Yvonne Freaney killed her 11-year-old autistic son, she defended herself by saying that he must have wanted to be murdered because "he won't be autistic in heaven." There are some who regard heaven as their ultimate reward even if they have a reason
Ollibean Baseball Camp
Cool camp for kids with Special Needs. It's free and everybody plays. July 16th through August 2, Monday through Thursday,8am to 10 am, at Palma Ceia Little League, Field C, Tampa Fl.
Why Would We Want Inclusive Education?
Why would we separate, segregate and alienate children from one another while at the same time teach them to look after the world around them, respect differences and take a stand at injustice?
Tennessee Council on Developmental Disabilities
The Council is in the process of completing our annual update to the five-year state plan. This current plan is in effect for federal fiscal years October 1, 2011 through September 30, 2016. The plan is updated and resubmitted to our federal oversight ag
Bullying Prevention State Laws
This new brief focuses on bullying prevention legislation. To date, 47 states have passed legislation requiring schools to take leadership in addressing the problem. This brief provides information on elements of a bullying prevention plan, the school’s
Saliva and pupil size differences in autism show system in overdrive
ScienceDaily (July 12, 2012) University of Kansas researchers have found larger resting pupil size and lower levels of a salivary enzyme associated with the neurotransmitter norepinephrine in children with autism spectrum disorder. However, even though
Amy Sequenzia: “Just Me”
Amy Sequenzia writes about rejecting society's many labels. Perceptions such as “super spectacular” autistic and “low-functioning” are equally harmful .
Leaders@ED: Alexa Posny, Assistant Secretary for Special Education and Rehabilitative Services
Alexa Posny has had 23 jobs. While she never envisioned a specific career path, every position she held was a stepping stone towards her current position as the Assistant Secretary for Special Education and Rehabilitative Services (OSERS) at the U.S. Dep
Change Leader: Dr. Charles Price
If you could change one thing about the world, what would it be? "More acceptance, tolerance and understanding. Everyone is trying to get through life the best way they know how. Some are dysfunctional while others are externally successful. Not everything is as it seems on the surface".
Inclusive Educational Practices for Students with Special Needs
Studies have shown when kids with disabilities are educated in inclusive settings, the classrooms are better for all of the students.
A Letter to Parents of Children with Special Needs
I hope you have an enjoyable and relaxing summer with your family! Don’t forget to keep your child reading, practice some math facts or maybe even keep a journal of your family vacation. It's easy to forget about school for the summer and let the days pa
Introducing Ollibean Think Tank Member Nicole Eredics
We are very proud to introduce Ollibean Think Tank member, Nicole Eredics of the Inclusive Class . We know you are going to learn as much from Nicole as we have. She is kind, extremely knowledgeable, and beyond lovely. She really is the consummate teacher. Listen to any one of her podcasts or read her blogs and you'll see what we mean. Nicole is very committed to inclusion and we are grateful to have her share her knowledge with us. Welcome, Nicole! Hello! I’m Nicole Eredics and I’m an Elementary Teacher who has spent over 15 years teaching in an inclusive school
Special-Ed Students at Greater Risk of Bullying, Being Bullied: Study
TUESDAY, July 3 (HealthDay News) -- Students with visible disabilities and those receiving special education services for behavioral problems are at greater risk of being bullied and of bullying others, according to a new study. These children also are m
Jedd Hafer of Love and Logic ® answers your parenting questions
We recently had the pleasure of speaking with Jedd Hafer, of Love & Logic® and asked him some of our questions. Jed's one of those people that you start talking to and feel like you've known him forever.
ASAN Public Comment on Defining HCBS in 1915i
The Autistic Self Advocacy Network applauds the Centers for Medicare and Medicaid Services’ decision to move forward on regulations defining the scope of settings acceptable under the 1915i state plan option. We concur with CMS that this definition, once
Introducing Ollibean Change Leaders
Introducing Ollibean Change Leaders - comprised of the most innovative, passionate doers on the planet. Folks out there blazing a trail for the rest of us, leaders in advocacy, inclusive education, cutting edge medicine, technology, human rights, the arts, disability rights, and philanthropy. They are changing things for people of all abilities. They are the Einsteins, the Ghandis, the Martin Luther Kings, the Helen Kellers of our generation. You’ve probably heard of most of them, and if you haven’t, you will. We all have the power to create real change and make our world a better place, we just have to
Change Leader: Larry Bissonette
Our first Change Leader is artist and disability rights advocate, Larry Bissonnette. Larry's art, writing, presentations, and films are changing perceptions about disability around the world. His quote in Wretches & Jabberers, "More like you than not" says it all.
National Council on Disability (NCD) Honors Life of Justin Dart
Listen to the heart of this old soldier. As with all of us the time comes when body and mind are battered and weary. But I do not go quietly into the night. I do not give up struggling to be a responsible contributor to the sacred continuum of human life
Amy Sequenzia: Happy to be Myself
Respect, understanding, acceptance.Things that make me happy.Respect, understanding, acceptance. These things make me grow.
Christine Ashby appointed director of School of Education’s Institute on Communication and Inclusion
School of Education Dean Douglas Biklen has announced the appointment of professor Christine Ashby as director of the Institute on Communication and Inclusion (ICI), effective June 1. The ICI, formerly the Facilitated Communication Institute, conducts re
ASAN Public Comment on DSM-5 ASD Criteria
Today is the last day to provide public comment to the American Psychiatric Association (APA) regarding the definition of ASD within the DSM-5, the manual used by physicians and many policymakers to define autism and other disability diagnoses. You can f
Holly Robinson Peete and the Living with Autism Workshop
Holly Robinson Peete describes one of her main goals for HollyRod is to eventually create a St. Jude’s like center for autism where children can receive treatment.
U.S. Department of Education Announces New Awards in Technology and Media Services
The U.S. Department of Education’s Office of Special Education Programs has released applications for new awards in Technology and Media Services for Individuals with Disabilities--Models Promoting Young Children's Use of Assistive Technology. The purpos
Amy Sequenzia: Respect How I Choose to Speak
I type my words because I am non-speaking. One of my disabilities, or one characteristic of my disability, is that my body does not move like my brain wants. That of course, includes my arm. And I use my arm, my hand and my fingers to communicate. I also need the support of someone to help me coordinate and synchronize my brain and my finger. I need to define support. It is the physical support of helping me type slower than my brain works, being able, at the same time, to feel my movement, knowing when to let go, when
Genetics: 2q21.1 variations link autism, attention deficit
Copy cat: Repeated stretches of DNA on either side of the 2q21.1 genomic region (top and bottom, here) have made it difficult to spot the region in genetic screens. Researchers have found deletions and duplications of a small piece of chromosome 2 in peo
One Day without Starbucks for Sebastien and Mitochondrial Disorders
Sebastien is an 11 year old boy, who likes to do things any other 11 year old boy likes to do- play video games, watch sports on tv (especially his favorite player, Lebron James), and play baseball.
$1 million suit alleges teacher abused autistic boy
By Chris Roberts, NBCBayArea.com SAN FRANCISCO -- A special education teacher in Redwood City has been hit with a $1 million lawsuit by the mother of a 5-year-old autistic child for allegedly kicking and starving him, according to reports. Nadia Cortez s
Larry Bissonnette featured on National Geographic
The amazingly talented artist Larry Bissonnette, of Wretches Jabberers, will be featured on an upcoming episode of the National Geographic TV program, Taboo.Check it out.
Stop IDEA Funding Cuts!
There could be some big changes awaiting you during the next school year if Congress does not act soon to save programs for children with disabilities such as the Individuals with Disabilities Education Act (IDEA). Many federal programs will automaticall
MindSpec launches new science outreach website: Autism Reading Room
MindSpec proudly announces the public launch of its new science outreach website, Autism Reading Room (http://readingroom.mindspec.org). Autism Reading Room is the first comprehensive online project to build bridges between autism research scientists and
Diffuse White Matter in Brain Linked to Language Impairment, Amplified with Autism
Research published last month in the American Journal of Neuroradiology found anomalies in the connecting neural tissues between two primary language processing centers of the brain in autistic children and children with language impairment. The findings indicate that the differences existed in all participants but were more pronounced when language impairment was a factor for the child.
Carnivores, Carnitine Metabolism, & Autism
It is currently being postulated that the carnitine deficiency is linked to autism and in certain cases carnitine supplements may help.
Supporting Adults With Autism
By Melanie Grayce West Over the last decade, there's been a general increase in awareness of the need to provide tailored services, support and education to children with autism and other developmental disabilities. But there's been less talk about the n
Science-Based Decision-Making in Special Ed
Last month, I wrote an article for Special Education Advisor, a blog operated by some folks located in Chatsworth, CA who are dedicated to helping parents of children with special needs. You can see the article by clicking here. The title of the article
Jackson, Miss., schools to no longer handcuff students
JACKSON, Mississippi (AP) — Public schools in Jackson, Mississippi, will no longer handcuff students to poles or other objects and will train staff at its alternative school on better methods of discipline. Mississippi's second-largest school district ag
Videos games as therapy?
Video games may not be as bad for us as our mothers told us. The latest foray into the virtual realm stems from the Archives of Physical Medicine and Rehabilitation, citing that targeted rehabilitation of patients with Cerebral Palsy can be achieved through the use of active video games (Nintendo Wii, Xbox 360 Kinect, Playstation Move, etc.).
Are charter schools bad at special ed?
Critics say public charter schools have an unfair advantage over regular public schools because they are less likely to have students with learning disabilities. That is not always true. Consider one D.C. charter management organization, DC Prep, with mo
Helping Special Education Students, and Paying With His Career
There was no particular moment when Harris Lirtzman decided to blow the whistle, and so close the door on his teaching career. A former deputy state comptroller, he had decided to give public school teaching a midcareer whirl. In 2009, he landed a job as
Assistive Technology – What is UDL, NIMAS, and AIM?
The National Instructional Materials Accessibility Standard (NIMAS) creates a national standard for print materials in accessible formats. Schools and publishers must adhere to these standards when creating educational materials – textbooks, workbooks, a
Many Parents of Kids With Autism Don’t Put Faith in Pediatricians
WEDNESDAY, May 16 (HealthDay News) -- Many parents of children with an autism spectrum disorder don't feel they can turn to their pediatricians for advice on treatments, a new study finds. Likewise, many pediatricians don't think they have the knowledge
iPad gives voice to kids with autism
Sharia Siddiqui uses an iPad to help her communicate. Her father says it's "given her a sense of control she never had." STORY HIGHLIGHTS Touchscreen iPads are giving voice to autistic children, adults Apps for it and other tablets aid those with trouble
Autistic Kids at the Movies: Where Shhhh Isn’t Allowed
On April 10, thousands of children with autism will be able to do something that for many of them was impossible until recently: go to the movies. They'll see How to Train Your Dragon at one of 93 "sensory-friendly" screenings in 47 cities across 30 stat
1 In 3 Autistic Young Adults Lack Jobs, Education
CHICAGO (AP) â One in 3 young adults with autism have no paid job experience, college or technical schooling nearly seven years after high school graduation, a study finds. That's a poorer showing than those with other disabilities including those who ar
Growing Old with Autism
Noah Greenfeld, 42, who spent 15 years in a state mental facility, is now in an assisted living home near his parents in Los Angeles. Noah, my younger brother, does not talk. Nor can he dress himself, prepare a meal for himself or wipe himself. He is a 4
Thank you to the best beta testers on the planet
We appreciate the excellent feedback, and are making changes based on the input from our incredible and highly intelligent group of Beta Testers ( parents, kids living with diffability, self-advocates, therapists, educators, physicians, and freedom fighters) Hang on, fasten your seat belts, it might be a little bumpy along the way, but it will be worth it, we promise.
Autism Speaks: Time to Listen by Autistic Self-Advocate Amy Sequenzia
Autism Speaks: Time to Listen by Autistic Self-Advocate Amy Sequenzia
Autistic boy’s mother feels pressured by school
Amanda Edgett said her 10-year-old son is forced by his school to take a 40-minute walk each day at lunch. (CBC) Catherine Derry, a district education council candidate in the upcoming election, said Edgett’s story will sound familiar to many parents of
Comparing General Education to Special Education: What are the Differences?
Students with autism are educated in a variety of settings including general education (GE) and self-contained (SC) classrooms. In GE placements, students are educated with their peers by a general education teacher. In self-contained settings, students
The Coming Special Needs Care Crisis
Eli Toucey (left) has seizures and social issues that make it all but impossible to leave him with a random babysitter. What could really save Hillary Toucey’s life is a personal-care attendant to help with her 7-year-old son, Eli. Dark-haired, fair-skin
Being left out puts youths with special needs at risk for depression
The challenges that come with battling a chronic medical condition or developmental disability are enough to get a young person down. But being left out, ignored or bullied by their peers is the main reason youths with special health care needs report sy
Parents Wire Kids To Prove Teachers’ Verbal Abuse
CHERRY HILL, N.J. (AP) — Teachers hurled insults like "bastard," "tard," "damn dumb" and "a hippo in a ballerina suit." A bus driver threatened to slap one child, while a bus monitor told another, "Shut up, you little dog." They were all special needs st
U.S. Department of Education Reaches Agreement with School District on Services for Students with Disabilities
The U.S. Department of Education announced today that its Office for Civil Rights has reached a resolution agreement with the Memphis, Tenn., City Schools on aids and services to students with disabilities. The agreement resolves a compliance review init
Dr Temple Grandin – Different Not Less – Apr 30,2012
We are honored to have Dr Grandin return for her fifth appearance on The Coffee Klatch. "Different Not Less " the phrase made famous by Dr Grandin's mother Eustacia Cutler in the HBO biopic Thinking In Pictures the story of Temple Grandins life, is the t
Working to Give All Students the Ability to Succeed
Tech-Now, Inc. is one of the many organizations across the country implementing the High School/High Tech Program, which provides young people with all types of disabilities the opportunity to explore jobs or further education leading to technology-relat
How to Use OAR’s Kit for Kids
The rising numbers of students with autism in public schools and the increased attention autism receives in the mainstream media further highlights the importance of student education about the disorder. OAR’s newest resource, the Kit for Kids, is a tool
Todd Drezner: Autism and the Hypothetical Child
Given how many autistic people there are in the world, it's odd how much of the conversation about autism revolves around children who don't exist. The most common such child is the one who is "indistinguishable from his peers." This is the child who will supposedly emerge after successful therapies or treatments for autism leave the child essentially "normal.
Struggle over how to evaluate special ed teachers
Lynne Sladky / AP In this April 3, 2012, photo, teacher Bev Campbell, left, holds up stuffed animals in front of student Sebastian Rodriguez in her special education class at Amelia Earhart Elementary School in Hialeah, Fla. More than a dozen states have
Children With Autism Are Often Targeted By Bullies
Lots of kids get bullied. But kids with autism are especially vulnerable. A new survey by the Interactive Autism Network found that nearly two-thirds of children with autism spectrum disorders have been bullied at some point. And it found that these kids
Outing The Prejudice: Making The Least Dangerous Assumption
We highly recommend this brilliant article by Zach Rossetti and Carol Tashie on their interpretation of Anne Donnellan's concept of presuming competence, the least dangerous assumption.
Deaf Olympic hopeful uses social media to fight discrimination
Marcus Titus, top U.S. breaststroker, rallied for change and got it. USA Swimming will allow the use of hand signals to accomodate Deaf swimmers at the summer Olympic trials.
Disabled Military Protection Act Allows Military Families to include Special Needs Trusts within the Survivor Benefit Plan
Currently, under the Survivor Benefit Plan (SBP), a military retiree can set aside up to 55 percent of his monthly retirement pay to provide their family members with a monthly stipend, after he or she dies. However, these benefits are counted as income
Subconscious Stereotyping
When it comes to negative stereotypes, your subconscious may not be the best dinner guest.
SchoolBook: Testing Takes Its Toll on Special Needs Students
April 19, 2012, 8:12 a.m. It has been a challenging week for many third through eighth grade public school students in New York City, as they have started their days on Tuesday, Wednesday and Thursday with the federally mandated English Language Arts exa
An Autism Diagnosis in Minutes?
Ask anyone who has taken a psychological exam, words like “rapid,” “accurate,” & “mobile” simply are not ways of describing most clinical diagnostic measures. Luckily, at least for early detection of Autism, a group of doctors from the Center for Biomedical Informatics at Harvard Medical School are looking to change that.
Presuming Competence
This issue is very important to me because so many events and breakthroughs in my life happened because I was presumed to be competent. On the other hand, some events in my life were not so good because of a presumption of incompetence. The message of presumption of competence is of encouragement and acceptance. The presumption of incompetence sends a negative message, a message that says no matter how much one tries, success is out of reach. For disabled people, especially the ones who need more support, who can’t communicate through speech or who have other communication difficulties, this negative
The school with more teachers than students
18 April 2012 Last updated at 19:16 ET With autism diagnoses rising more and more parents are plunged into a battle to understand the condition and find their child the right treatment, writes Louis Theroux. Joey Morales-Ward is a 13-year-old kid who liv
Utterly Mark : A Vermonter with autism makes his inner voice heard through film
Mark Utter sits at a computer keyboard with a broad, toothy grin, his eyes closed and head cocked slightly, as though he were listening to a muse whispering in his ear. After a long pause, he opens his eyes and, with slow, deliberate movements, pecks at the keys with a single, outstretched finger.
Inclusive education still best model, says advocate
Gordon Porter says there are now hundreds of specialized teachers and thousands of assistants in the province. (CBC) A long-time advocate for inclusive education maintains it is still the right approach for students with special needs. But Gordon Porter,
Chosen Families
ChosenFamilies.org is a non-profit, charitable organization registered in the Commonwealth of Virginia and approved by the Internal Revenue Service to provide information to parents, family members, religious leaders and the general public on effective solutions to living in families with hidden disabilities. The purpose of ChosenFamilies.org is to help families living with hidden disabilities become fully incorporated into the body of Christ. Our mission is to provide resources, connections and encouragement to families with hidden disabilities and to educate and provide resources to religious leaders as they minister to families with these needs. ChosenFamilies.org is a community where people can
Implications of bringing genome sequencing Into the consulting room
These programs, which were discussed last month at a rare-diseases conference hosted by the Wellcome Trust Sanger Institute near Cambridge, UK, aim to provide a genetic diagnosis that could end years of uncertainty about a child’s disability. “The overarching theme is that genome-based diagnosis is now hitting mainstream medicine,” says Han Brunner, a medical geneticist at the Radboud University Nijmegen Medical Centre in the Netherlands, who leads one of the projects.
Spectrum Society
Mission Spectrum Society’s mission is to support people with disabilities to experience full citizenship and genuine belonging in community. We are committed to continuous learning and improvement through research into leadership and best practice. As a service providing agency, our focus is on strengthening the capacity of individuals and their personal networks, augmenting rather than replacing natural supports. Vision Spectrum Society for Community Living believes that community is enriched by the presence and contributions of its citizens with disabilities. We believe that together we can create a world where all people are valued, their voices heard, their choices respected. Values
The National Center on Accessible Instructional Materials
The National Center on Accessible Instructional Materials! This site serves as a resource to state- and district-level educators, parents, publishers, conversion houses, accessible media producers, and others interested in learning more about and implementing AIM and NIMAS. AIM Center at a Glance For students with sensory, physical, cognitive, or learning differences and their teachers, accessible instructional materials (AIM) may open doors to teaching and learning that ordinary print-based materials have closed. Accessible instructional materials or AIM are specialized formats of curricular content that can be used by and with students who are unable to read or use standard print materials.
Office of Special Education Program’s Discretionary Grants Public Database
The Office of Special Education Programs (OSEP) at the U.S. Department of Education is dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21. To this end, OSEP provides leadership and financial support to assist states and local districts, including funding approximately 1,000 grants and contracts each year. If you'd like to know what grants and contracts OSEP has funded as part of its initiatives to improve results for children with disabilities, you've come to the right place! (If you're looking for OSEP's grants opportunities, we would direct you to OSEP itself, at: www.ed.gov/fund/grant/apply/osep/index.html)
Data Accountability Center (DAC)
This website provides public access to data about children and youth with disabilities served under the Individuals with Disabilities Education Act (IDEA) - Part B and C; technical assistance (TA) materials to support the collection, analysis and reporting of IDEAdata; and the forms and spreadsheets used for collection. DAC was funded in October 2007 by the Office of Special Education Programs (OSEP), U.S. Department of Education to provide information and TA to improve the quality of all state-reported data required by the IDEA. Westat and its subcontractor, Louisiana State University Health Sciences Center–Human Development Center, operate DAC as a 5-year cooperative agreement with
Technical Assistance and Dissemination Network
The Technical Assistance and Dissemination Network (or “TA&D Network”) is a network of approximately 45 Centers (this fluctuates as old projects end or new ones begin) funded by the Office of Special Education Programs (OSEP). These projects provide information and technical assistance to states, schools, educational professionals and families, on topics such as autism, deafness, disproportional representation, dispute resolution, learning disabilities, parenting children with special needs, positive behavior support and transition. The TACC works with the TA&D Network to coordinate and support the work of these projects. ABOUT THE TACC The Technical Assistance Coordination Center (TACC) was formed in 2008 to facilitate coordination, collaboration,
RETHINKING AUTISM – Dana Commandatore
All too often in the world of autism, celebrity and sex appeal are used to promote pseudo-science and personal agenda. Rethinking Autism wants to change minds, change the current media conversation and help give autistic people a more prominent voice in
‘Seclusion rooms’ for autistic students raise questions
Andrew St. Vincent's parents pose questions around the coffee table as the middle-schooler with autism builds a Lego city. They want to know about the room. "So you were in there by yourself?" his mother asks. "When would you be in that room?" his father
Life After IEPs
Welcome ! If you’re a parent or mentor of a young person with disabilities, Life After IEPs is for you. Whether your child is an elementary student or a high school graduate, you’ll find information, resources, and support you’ll need along the way. A challenging journey There’s joy on the path to adulthood. But it ain’t always easy. Perseverence, grace, and a good sense of humor are needed. It can be a bumpy road. Supports available during the IEP years will end after high school Unfamiliar laws, systems and jargon lie ahead Resources exist, but they’re scattered in
Stereotypes of Children with Disabilities
Stigmatization is one of the greatest obstacles to the successful integration of people with Trisomy 21 (T21 or Down syndrome), the most frequent genetic disorder associated with intellectual disability. Research on attitudes and stereotypes toward these people still focuses on explicit measures subjected to social-desirability biases, and neglects how variability in facial stigmata influences attitudes and stereotyping.
My Valentine by Paul McCartney- Featuring Natalie Portman and Johnny Depp
Paul McCartney Directs His Own 'My Valentine' Videos Featuring Natalie Portman and Johnny Depp using ASL.
Seahawks GM John Schneider knows: Autism is a family diagnosis
RENTON — Ten-year-old Ben Schneider is a fun kid. He has a great laugh, loves Legos and playing video games. You can hear the pride in his parents' voices when they tell you how smart he is. When Ben was 16 months old, he could arrange the letters of the
Autistic Hoya: End the torture. Make this go viral.
The public must see what the Judge Rotenberg Center is doing. Their experts claimed that the public would not understand the content of this video without "proper context." There is no context that justifies the use of torture against anybody ever. The public has not merely a right but a responsibility to watch this video and share it everywhere.
MyVoice AAC
MyVoice is a new app, available for Apple and Android devices, that helps people with a variety of speech and language challenges communicate more quickly and easily. MyVoice has groundbreaking features like location-awareness, downloadable phrase books and wireless customization from any web browser. With its lifelike voices and beautiful interface, MyVoice is the affordable communication aid app you've been waiting for. MyVoice is changing the world, one voice at a time. It can be a vital aid for children and adults living with: • ALS • Autism Spectrum Disorders • Aphasia, Apraxia, Ataxia, Dysarthria • Brain Cancer • Cerebral Palsy
Teachers Weigh-In: Do We Over Accommodate? Join the Debate…
Read more as teachers debate accommodations for students. Pete & Pam Wright and Advocate Pat Howey join the discussion. Take the poll – then click “read more” to add your comment and join the debate! I teach at a charter school. We feel that if the stude
Watching TV: Even Worse for Kids Than You Think
It's no secret that sedentary behavior contributes to obesity and chronically poor health. But not all sedentary behaviors are created equal, according to a new study that examines the link between blood pressure in children and their choice of inactive
Marlo Thomas: The Givers: What Inspires Michael J. Fox? A Very Personal Interview
Unbowed by his disease and still exhibiting his trademark energy, Michael reminded me not only of the single-mindedness that is fundamental to fighting for a cause, but also of the indestructibility of the human spirit -- one that looks at each new day as another chance to enjoy the magic and the gift of life. If only all of us could learn that lesson.
Noncoding gene linked to autism
Small player: Moesin, a protein that is involved in brain development, appears to be regulated by a noncoding RNA that has been implicated in autism. Researchers have identified a noncoding RNA, a genetic message that is not translated into a protein, th
HALO
MISSION Helping Autism Through Learning and Outreach is a non-profit organization supported by parents and professionals nationwide who are dedicated to the use of Soma® Mukhopadhyay's Rapid Prompting Method for improving academic success and communication for persons with autism and similar disorders. http://www.halo-soma.org
AudioBookCloud
AudioBookCloud:Your Online Audio Library is an online audio book library collection of streaming audio books for public libraries. A subscription to AudioBookCloud gives your patrons UNLIMITED remote access to your audio book collection. Like our TumbleBookLibrary and TumbleReadables collections, AudioBookCloud are launched from a link on your library or school website. Your patrons can access the entire collection from any computer with an Internet connection. Your audio are never all checked out, never on hold. As many people can listen to the same book at the same time as you like!!! Here's how it works. Once you have previewed AudioBookCloud and are
3 genes linked to autism spectrum disorders
Mutations in three new genes have been linked to autism, according to new studies including one with investigators at Mount Sinai School of Medicine. All three studies include lead investigators of the Autism Sequencing Consortium (ASC). The findings, in
Asha Bal Bikash Sewa (“Children’s Hope Development Service”)
Asha Bal Bikash Sewa (“ABBS”) is a day care ministry for children with physical and learning difficulties under the age of 16. The ministry was founded by a Norwegian Missionary Family who were living and working in Nepal. They had a severely disabled child who was cared for by a Nepali woman, Tulsa Sharma. Tulsa is now the Co-Ordinator of the ABBS programme. The ministry has grown from a single centre in Dhobighat, attended by three children which opened in 1993, to operating three centres serving approximately ninty five children with dedicated staff and volunteers. Two centres are based in
Special Education and Rehabilitation Center for Disabled Children (SERC)
Established in 2009, and located in a peaceful neighborhood of midtown Kathmandu, SERC has a goal of providing most effective education to its students. All our students are either differently able or have individual special education needs. Every pupil in SERC has a specific and complex education needs, and our goal is to provide them with the best possible education methodologies and environment for them to flourish and bring out the best buried deep within. We believe that a perfect match between proper education methodology and rehabilitation therapies is the only way to go ahead. We, at SERC, try to
Shoreham students “experience” autism for a day
Fourth grader Nick Donnelly counted along with the rest of his classmates seated around the small cafeteria table at Miller Avenue School in Shoreham Thursday.When they reached 15, they pulled off the colorful bandanas that covered their eyes. Nick strai
Adults with autism must be a focus
Grim news regarding the prevalence of autism continues to make big headlines ["Keep effort going to unravel autism," Editorial, April 2]. It is jarring and heartbreaking.However, we must remember that autism is not specifically a childhood disorder. My 1
Epidemic, Awareness and Us, Autistics
By now everyone knows about the new numbers on autism diagnosis. And we have already seen the media jumping in the alarmist train: IT IS AN EPIDEMIC! My friend and I decided to look up some definitions for this word that has been used to classify me. This is what I found in one on line dictionary: epidemic noun a widespread occurrence of an infectious disease in a community at a particular time: a flu epidemic. a disease occurring in such a way. a sudden, widespread occurrence of a particular undesirable phenomenon: an epidemic of violent crime. Am I a
Hundreds of genes involved in autism, sequencing studies say
New network: Nearly 40 percent of the mutated genes identified in one exome sequencing study of autism are part of an interconnected network of interacting proteins. The largest set of exome sequencing studies, which analyze the protein coding region of
Therapists Address Esophageal Atresia
The Esophageal Atresia Treatment Program at Children's Hospital Boston in Boston, MA, is one of the only programs in the country specifically designed to care for children with this condition. Setting itself apart from the rest, Children's Hospital Bosto
Releasing IEE Data Without Parent Consent
I am a private psychologist. I completed an IEE, then turned in the report to the district and parents. We held an IEP meeting to review the results. Can the district request that I release my raw test data, test protocols, and test materials to the scho
Bill Introduced regarding special needs trust
H.R. 4329 -This bill or resolution was assigned to a congressional committee on March 29, 2012, which will consider it before possibly sending it on to the House or Senate as a whole. To amend title 10, United States Code, to provide for the payment of monthly annuities under the Survivor Benefit Plan to a supplemental or special needs trust established for the sole benefit of a disabled dependent child of a participant in the Survivor Benefit Plan.
HHS Announces New Members of Interagency Autism Coordinating Committee (IACC)
Health and Human Services (HHS) Secretary Kathleen Sebelius announced today that she has invited 15 individuals to serve as public members on the Interagency Autism Coordinating Committee (IACC). The IACC is a federal advisory committee established by th
The Upside of Autism
When it comes to disorders of the mind, our society has a tendency to seek out the safety of clear-cut categories. We want there to be a bright line separating normal from abnormal, health from sickness. Alas, the human brain is a category buster, an org
Two-Thirds of Kids With Autism Have Been Bullied: Study
FRIDAY, March 30 (HealthDay News) -- Nearly two-thirds of American children with autism have been bullied at some point in their lives, and these kids are bullied three times more often than their siblings without autism, a new survey finds. Bullying occ
OlliNepal Update – March 29
The Ollibean/OlliNepal team finished up their trekking outside of Pohkara, Nepal and are headed back to Kathmandu for 7 days where they will volunteer at a local school, meet with OLE Nepal ,Kanti Children's Hospital, and SEEDs Nepal. The team's internet access & email has been fairly limited, so we are all exicted hear their reports of working with children with a range of diffabilities and delivering communication tools/tablets. Can't wait to see the pictures and videos!
Kyoto prof rolls out omnidirectional wheelchair
A mechanical engineering professor has taken the wraps off his vehicle that is designed to become a next-generation wheelchair. As its formal name suggests, this is the Personal Mobile Vehicle, or Permoveh for short. Rolling it around at
Outsourcing to the Autistic Rather Than to India
Part of the reason autism has captivated Hollywood movie makers more than other development disabilities is that, for all the difficulties it brings those who have it, it also gives some of them the ability to perform uncanny feats of brainpower: effortl
People with autism possess greater ability to process information
ScienceDaily (Mar. 22, 2012) People with autism have a greater than normal capacity for processing information even from rapid presentations and are better able to detect information defined as 'critical', according to a study published March 22 in the
Responding to People with Autism during Emergencies
Author Geoff Crist is the proud parent of a beautiful, energetic, curious, daughter, Sydney (aka Beanie), 11, who was diagnosed with moderate/severe autism when she was 18 months old. He is a career firefighter and nationally registered paramedic, has wo
Jesse A. Saperstein
Jesse A. Saperstein is a best-selling author, autism advocate and motivational speaker. He is considered one of the most respected leaders in the Anti-Bullying movement of his generation. Jesse also has a form of autism called Asperger's syndrome (AS). Individuals with Asperger's are impaired by a profound lack of social skills, common sense, and resistance to change in routine.
Police need training on autism
The arrest of an autistic teenager who could face four years in a Michigan prison shows the need to train police on dealing with autistic people, advocates say. In Maxson's case, Dungan said, he only became violent Feb. 9 when officers tried to handcuff him, and he was then stunned with a Taser and pepper-sprayed.
Lives Not Worth Living : by Amy Sequenzia
The title of this blog is an expression seen in many blogs written by disabilities advocates and self-advocates. Wasn’t his life worth living? Isn’t mine or the lives of all disabled people? The murder of 22 year-old autistic George Hodgins prompted the latest, very strong protests from the autistic community against the media coverage focused on the “reasons” for the killing, while ignoring George’s, the victim, life.
Differentiated Instruction in Today’s Classrooms
The IRIS Center is a national center that provides high-quality resources about students with disabilities for college and university faculty and professional development trainers. Visit IRIS’ website to find free, online, interactive training enhancemen
Understanding how social touch is processed differently by autistic people
A better understanding how social touch is processed differently by autistic and nonautistic people may lead to the development of strategies for family members and loved ones to touch people with autism in a way that soothes and fosters feelings of connection, rather than overwhelms.
iPad Summer Institute
Blog on the topic of assistive technology, eLearning, mind mapping, project management, visual learning, collaborative tools, and educational technology Presenters Brian S. Friedlander, Ph.D. & Christine Besko-Maughan, M.S., ATP July 10, 2012 Enhancing A
Never Lose Hope
Here is a letter to an individual who believed my children wouldn’t be successful. This is living proof that as parents, we are wiser than others who think they know better. I met you last year at a conference. This conference was held by a local organiz
Are These Good Annual Goals?
Is this annual goal written correctly for a high school freshman? Judy will improve reading comprehension skills by using graphic organizers to access the curriculum with 70% accuracy per quarter. 1. Judy will summarize or bullet important information in
The Autistic Global Initiative (AGI)
The Autistic Global Initiative (AGI), a program of ARI, is comprised of a committee of adults diagnosed with autism spectrum conditions. Our members hail from all regions of the United States, representing the broad life span of autistic experience and expression. We are active as professionals and consultants in many fields within the autism community, including education, social work, medicine, employment, fitness and wellness, rehabilitation counseling and the visual and graphic arts.
School principal reprimanded told to work from home as a result of physical altercation with student
In April 2011 before a classroom of students and a security camera, Gray became violent with a special education student, according to a written reprimand in his personnel file. “During this incident you escalated the situation, became physically violent, grabbed the child by the shirt, and yanking the child out of the classroom and down the hallway,” reads York’s reprimand.
New ADA accessibility requirements took effect March 15
For the first time in history public fitness centers, public swimming pools, recreational facilities, parks, golf and mini-golf courses, detention facilities and courtrooms, playrooms and amusement rides must adhere to the governments accessibility requirements. The rules also clarify issues that have come up in the 20 years regarding bathroom dimensions, reach ranges and accesible routes.
Reading Club | ‘Navigating Love and Autism’
On Dec. 26, 2011, the front page of The New York Times featured an extraordinary article. Part of a series by Amy Harmon chronicling the coming of age of a generation of autistic youths, the article, “Navigating Love and Autism,” told the story of Jack R
Best Buddies Friendship Walk, April 21, 2012 : 12:00 pm-4:00 pm
The Best Buddies Friendship Walk is a fun-filled community fundraiser to support your local Best Buddies programs of inclusion. 4/21/2012 12:00 pm - 4:00 pm . Our friendship, integrated employment and leadership programs educate people with and without intellectual and developmental disabilities (IDD) to be advocates for social inclusion in your community. Walk Registration: No Fees Register for the Friendship Walk and begin fundraising for Best Buddies Florida! Cotanchobee Fort Brooke Park 601 Old Water Street Tampa, FL 33602 For more information Participant Registration Form Join Ollibean's Friendship Walk Team
National Disability Rights Network
NDRN’s mission is to promote the integrity and capacity of the P&A/CAP national network and to advocate for the enactment and vigorous enforcement of laws protecting civil and human rights of people with disabilities. The Protection and Advocacy (P&A) network was created by Congress after the Willowbrook scandal unearthed the horrible conditions in that institution. Read more about the Network's history here. The newly created P&A agencies began to realize that in order to be able to advocate for their clients, they needed a national voice in Washington, DC for their own protection, survival and growth. This was especially true, as soon
University Center for Excellence in Developmental Disabilities at Georgetown University
The mission of the University Center for Excellence in Developmental Disabilities (UCEDD) is to promote self-determination, productivity, independence and inclusion of individuals with developmental and other disabilities across the life span, and in all aspects of community life.
Police assaulted boy with autism
Metropolitan Police (Met) officers assaulted a 16-year-old boy with severe autism by forcing him into handcuffs and leg restraints during a school trip, the High Court has ruled. The judge said the boy, now 19, also had his human rights breached. The boy, who also has epilepsy, was subjected to disability discrimination and false imprisonment, it was ruled.
Study may help understanding multiple sensory stimuli processing in autism
“Statistically optimal combination of multiple sensory stimuli has been well documented in humans, but many have been skeptical about this behavior occurring in other species,” said neuroscientist Anne Churchland, who led the study appearing in the March 14 issue of the Journal of Neuroscience. “Our work is the first demonstration of its occurrence in rodents.” People with autism are often unable to choose which sensory stimuli to pay attention to and which to ignore. “By observing this behavior in rodents, we have a chance to explore its neural basis – something that is not feasible to do in people,” Churchland explained.
Help for Families with ASD
Researchers at the University of Utah have created a program that helps children with autism spectrum disorders (ASD) focus on building their skills and utilizing an aptitude for visual-spatial thinking, computers and other electronic media. Cheryl Wrigh
Broad Institute of MIT and Harvard
The Eli and Edythe L. Broad Institute of Harvard and MIT is founded on two core beliefs: This generation has a historic opportunity and responsibility to transform medicine by using systematic approaches in the biological sciences to dramatically accelerate the understanding and treatment of disease. To fulfill this mission, we need new kinds of research institutions, with a deeply collaborative spirit across disciplines and organizations, and having the capacity to tackle ambitious challenges. The Broad Institute is essentially an “experiment” in a new way of doing science, empowering this generation of researchers to: Act nimbly. Encouraging creativity often means moving quickly,
Research on Rare Bone Disorder Reveals New Insights into Autism
“There is growing evidence that many autistic people have related genetic defects, or defects that are exacerbated by this one,” said Yu Yamaguchi, M.D., Ph.D., professor in the Sanford Children’s Health Research Center at Sanford-Burnham. Children with
Don Johnston Announces Snap&Read—A Simple Toolbar That Reads Any Text On-screen
Snap&Read reads text in a Flash website “A lot of districts are striving for Universal Design for Learning, and Snap&Read is a step in the right direction.” - Ruth Ziolkowski, president, Don Johnston Incorporated Don Johnston Incorporated today announced
Acceptance
Welcome new Ollibean writer, Amy Sequenzia! We know you're going to love her blog and her poems........ "Accepting myself is an on going process. A few days ago I wrote a poem about acceptance. It is easier for me, sometimes, to write about my life in verses. But after I write about what bothers me in verses and stanzas, I can talk about it in any format. I freed myself when I wrote the poem. In a way, I accepted myself a little more." It is very hard to have confidence in my abilities when all my life, when people
Activists Seek To Curtail Restraining Students
WASHINGTON (AP) — Tens of thousands of students, most of them disabled, are strapped down or physically restrained in school, and disability advocates hope that a new Education Department report detailing the practice of "seclusion and restraint" will sp
Language and autism
More and more researchers, it seems to me, are trying to peek into the minds of children with autism by analyzing how they put together a sentence. Language impairments are one of the most common features of autism. But linguists have long debated the pr
Cellphone Video Provides Proof of Bullying Teacher
A special education student resorted to using his cellphone to record video that proved his teacher was bullying him. Such incidents are, unfortunately, far from uncommon. “Statistically about 1 to 2 percent of teachers are actually involved in bullying
Clinical research: Gut bacteria prevalent in autism
Common colonizer: Sutterella wadsworthensis is present in the intestines of children with autism, where it might displace other beneficial bacteria. A certain type of bacteria is prevalent in the intestines of children who have both autism and gastrointe
The Flutie Family Tackles Autism, National Autism Awareness Month
Doug Flutie Sr., 49, reaches his goals on the field and off. "For whatever reason, people have the feeling I can get things done," the Heisman Trophy winner says. Maybe they remember the former quarterback's famous heart-stopping, last-second Hail Mary p
Cognition and behavior: Study probes speech processing
Hidden meaning: Children with autism are less able than controls are to detect the shifts in pitch that can transform a neutral statement into a question. Children with autism activate more brain regions than controls do when listening to tonal inflectio
Burton Blatt Institute chairman to testify before National Council on Disability on future of disability law and policy
NCD is an independent federal agency that makes recommendations to the president and U.S. Congress to enhance the quality of life for all Americans with disabilities and their families. The public may join the meeting in a listening-only capacity (with t
Special Olympics Coach Accused Of Having Sex With High School Participant
MOUNT PLEASANT, S.C. (AP) — A teaching assistant from Cayce has been charged with having sex with one of his students while in Mount Pleasant for the Special Olympics. Twenty-nine-year-old Cornelius Davis is a special education teaching assistant at Broo
Compression Garments Designed by SPIO Now Offered by Rehabmart.com
“These discrete garments are very comfortable in all types of weather due to the wicking feature of the lightweight and breathable Lycra fabric, and there is no 'break-in' period..." Rehabmart.com, an online e-commerce company that sells rehabilitation a
LADDERS
The LADDERS program is under the direction of Dr. Margaret L. Bauman. Dr. Margaret L. Bauman is a distinguished pediatric neurologist, who is greatly respected for the outstanding clinical care she provides to children and adults, and for her research and teaching on developmental disorders.
Children’s Hospital of Philadelphia apologizes to Rivera family over kidney transplant flap
(CBS) The Children's Hospital of Philadelphia has apologized to the family of Amelia Rivera, the girl whose family alleged she was denied a life-saving kidney transplant because she was disabled. "As an organization, we regret that we communicated in a m
National Database for Autism Research
Announcer: Unlocking the mysteries of autism and providing new hope for the families and individuals facing its challenges are missions shared by dedicated scientists across the country and around the globe. But despite an overwhelming need for answers, this disorder has not given up its secrets easily, as illustrated by Nancy Minshew, a leading autism researcher at the University of Pittsburgh. Nancy Minshew: Autism is so complex that there's not going to be one thing.
Judy Endow
Judy Endow, MSW, maintains a private practice in Madison, Wisconsin, providing consultation for families, school districts and other agencies. Besides having autism herself, she is the parent of three now grown sons, one of whom is on the autism spectrum. Judy does workshops and presentations on a variety of autism-related issues, is part of the Wisconsin DPI Statewide Autism Training Team and a board member of both the Autism Society of America, Wisconsin Chapter and the Autism National Committee. In addition, Judy is a member of the Autistic Global Initiative (AGI), a program of Autism Research Institute.
Tool for Navigating the Hidden Social Curriculum for Individuals with Autism
Judy Endow is magical in her approach to helping so many living with autism. "Learning the Hidden Curriculum: The Odyssey of One Autistic Adult" is a must-read book for those living with autism, family members and those who want to know more about autism. Even if you think you are right, never argue with a police officer
U.S. Department of Education Announces Overhaul of IDEA Compliance System; More Emphasis on Student Outcomes
On Friday, the U.S. Department of Education, Office of Special Education Programs (OSEP) announced that it will revamp IDEA’s compliance system to better emphasize student outcomes, such as academic performance and graduation rates for students with disa
Large eye-tracking study highlights diversity of autism
Gaze mapping: Researchers measured the amount of time children spent looking at eyes (red), mouths (green), bodies (blue) and objects (yellow) when watching scenes from Welcome to the Dollhouse. Children with autism who have different verbal and intellec
1Voice – Communicating Together
"A world where the voice of every child and adult, however they communicate, is listened to and heard" 1Voice takes a family and social perspective on communication and recognises the great need for adult role models to inspire children and families alike. 1Voice promotes families supporting each other to overcome the isolation that being unable to speak can bring.
Lloyd Coleman, deaf teen composer’s Olympic theme
Lloyd Coleman, 18, who is also visually impaired, recently won a place at London's Royal Academy of Music. "It's called Breaking the Wall because, after Giles and I started talking about marathons and how runners hit the wall and have to overcome humungous challenges, we realised there were parallels with the kind of challenges disabled people face," he said.
KIT – Kids Included Together : Recognizing the Ability in Every Child
Kids Included Together (KIT) is a registered 501(c)(3) non–profit organization founded in San Diego, California in 1997. The mission of Kids Included Together (KIT) is to provide learning opportunities that support recreation, child development and youth enrichment programs to include children with and without disabilities. KIT’s goals are to enrich the lives of all who participate and to increase understanding and acceptance of disabilities as a natural part of life. We invite you to explore our site and learn more about our work with out–of–school time programs across the United States and internationally.
Motor Skills and ASD
Children with autism often have problems developing motor skills, such as running, throwing a ball, or even learning how to write. Scientists didn't know whether those difficulties ran in families or were linked to autism. New research at Washington Univ
State Obligations | UNESCO
Like all human rights, the right to education imposes three levels of obligation on States: The obligation to respect, protect and fulfil each of the “essential features” (availability, accessibility, acceptability, adaptability) of the right to education. The obligation to respect requires States to avoid measures that hinder or prevent the enjoyment of the right to education. The obligation to protect requires States to take measures that prevent third parties from interfering with the enjoyment of the right to education. In turn, the obligation to fulfil incorporates an obligation to facilitate and to provide. Facilitation requires States to take positive measures
Extreme Kids & Crew
Extreme Kids & Crew is a parent-run non profit dedicated to causing a great scene for Brooklyn’s kids with disabilities, their families and friends. They are all about creating a warm and encouraging atmosphere where children and adults of every ability and disability can relax, have fun, and enjoy the experience of being deeply accepted and celebrated for the people that they are. We offer workshops in the arts and movement with insightful and practiced teachers, parent education nights, free family concerts, and much more.
A ‘Fountain’ of Kudos for First-Time Novelist Eliza Factor
The Fort Greene resident is not only about to release her first book, “The Mercury Fountain,” but she wrote the novel while raising three kids — one of them with cerebral palsy and autism — and starting Extreme Kids and Crew, a center catered to the needs of families with disabled children.
2012 Accessible Technology Webinar Series
All sessions are free and scheduled for 2-3:30pm Eastern/1-2:30pm Central/12-1:30pm Mountain/11-12:30pm Pacific utilizing the ElluminateLive! webinar platform. The Great Lakes and Pacific ADA Centers on behalf of the ADA National Network are pleased to announce the 2012 Accessible Technology Webinar Series. Electronic information and communications technology have become essential tools in all areas of our lives and working environments today, and are particularly important to people with disabilities by providing equal access to the workplace and social media. The 2012 webinar series will explore some of the latest technological trends and their accessibility to people with disabilities. Registration is available
P2PUSA::Parent to Parent USA
Emotional & Informational support for families of children who have special needs.For over 36 years Parent to Parent programs across the country have been providing emotional and informational support to families of children who have special needs most notably by matching parents seeking support with an experienced, trained 'Support Parent'.
Institute on Disabilities at Temple University, University Center for Excellence in Developmental Disabilities
A society where all people are valued and respected, and where all people have the knowledge, opportunity and power to improve their lives and the lives of others. MISSION The Institute on Disabilities leads by example, creating connections and promoting networks within and among communities so that people with disabilities are recognized as integral to the fabric of community life.
The Arc of Pennsylvania
The Arc is the largest advocacy organization in the United States for citizens with intellectual and developmental disabilities, and their families. The Arc of Pennsylvania is the state chapter of The Arc. For more than 60 years, The Arc has been working to include all children and adults with intellectual and developmental disabilities in their community. We promote active citizenship and inclusion in every community setting. The Arc of Pennsylvania has been dedicated to the inclusion of children with disabilities in regular education classrooms since its founding in 1949. Parents wanted to raise their children at home rather than institutionalize
ALEC Equips Emergency Responders to Deal with Autism
In 2007, a child wandered off from his home in Massachusetts early in the morning. Someone called 911 to report the child alone at a bus stop. When firefighters responded, they found that the child was non-verbal. Thanks to the ALEC program, the firefigh
Friend 2 Friend Social Learning Society
The Friend 2 Friend Social Learning Society is a British Columbia-based not-for-profit organization formed in 2002 for the purpose of promoting mutually rewarding friendships between children with autism spectrum and related social-communicative disorders and their peers, classmates and siblings. Our goal is to help children develop to the best of their abilities through the play and socialization that results from these friendships. We do this by providing direct services for children by visiting schools and other community settings to explain the sensory and communication challenges of autism spectrum and related disorders. We use a fun and interactive approach while teaching
Douglas Biklen: “Begin by presuming competence”
"Presuming competence is nothing less than a Hippocratic oath for educators. " Douglas Biklen
The Golden Hat Foundation
The Golden Hat Foundation is a non-profit organization dedicated to eliminating barriers for people with autism around the world, and creating an environment that holds these individuals as intellectually capable. The mission of the Golden Hat Foundation is the establishment of innovative campuses that offer people with autism the opportunity to learn to communicate effectively, receive an education, job training and enjoy recreational activities, all within a supportive social network. When given a suitable education and the means to communicate effectively, people with autism can truly realize their dreams.
Ralph James Savarese | essayist, poet, scholar, and activist
Ralph James Savarese is the author of Reasonable People: A Memoir of Autism and Adoption (Other Press 2007), which Newsweek called a “real life love story and a passionate manifesto for the rights of people with neurological disabilities.” It won the Independent Publishers Gold Medal in the category of health/medicine/nutrition, and a chapter was selected as a “notable essay” in the Best American Essays series of 2004.
SPREAD THE WORD TO END THE WORD 03.07.12
Respectful and inclusive language is essential to the movement for the dignity and humanity of people with all disabilities. However, much of society does not recognize the hurtful, dehumanizing and exclusive effects of the word “retard(ed).” It is time to address the minority slur “retard(ed)” and raise the consciousness of society to its hurtful effects.
Bullying and ASD
The Interactive Autism Network (IAN) Project has launched a national survey to study the impact of bullying on children with autism spectrum disorders (ASD). Bullying, a pervasive problem among youth, has attracted the national spotlight over the past ye
I Believe by Will Scheutze
They had no idea how much I know and I didn’t think they believed I was smart. They thought that functional was more important for me to learn than academics. I didn’t like that, so I never did good work and so they thought I couldn’t sort forks. I know how functional is important in life, but nobody knows how important the academics are to me. I just want to be able to learn more and be able to go to college. I think I can do that. My teachers made me believe I can do that. I never believed
Dean Biklen honored in Kuwait with UNESCO/Emir Jaber al-Ahmed al-Jaber al-Sabah Prize
The United Nations Educational, Scientific and Cultural Organization (UNESCO) will present Syracuse University's School of Education Dean Douglas Biklen with the 2011 UNESCO/Emir Jaber al-Ahmed al-Jaber al-Sabah Prize, honoring him for his work promoting
Genomics, Intellectual Disability, and Autism
During the past decade, advances in genetic research have enabled genomewide discovery of chromosomal copy-number changes and single-nucleotide changes in patients with intellectual disability and autism as well as in those with other disorders. These technological advances — which include array comparative genomic hybridization (CGH), single-nucleotide-polymorphism (SNP) genotyping arrays, and massively parallel sequencing — have transformed the approach to the identification of etiologic genes and genomic rearrangements in the research laboratory and are now being applied in the clinical diagnostic arena.
Genetics: Different mutations lead to autism in same family
Gene splicing: A deletion within an autism-associated chromosomal region may predispose the DNA to recombination, resulting in a neighboring deletion. Twin brothers who have autism carry a non-inherited duplication that overlaps with 16p11.2, a chromosom
Neural systems for speech and song in autism
Despite language disabilities in autism, music abilities are frequently preserved. Paradoxically, brain regions associated with these functions typically overlap, enabling investigation of neural organization supporting speech and song in autism. Neural
Special Ed Teacher Accused of Inappropriate Contact
A male special education teacher at Crenshaw High School who was removed from the classroom three weeks ago amid allegations of inappropriate contact with a child has resigned, the school district confirmed Wednesday. There is an ongoing investigation be
Sign up and Ollibean gives to a child in Nepal. It’s that easy.
Want to help kids in Nepal? We’re making it super easy. For every person that joins our community we will donate $2 to support children in Nepal.You can also enter for a chance to win an iPad**. Now share this with everyone you know and show the world how easy it is to make a difference.
A boy’s talk about his Asperger’s resonates in his school
Since Jack Lebersfeld told the entire sixth grade he has Asperger's syndrome and explained what that meant, his speech has taken on a life of its own that Jack and his parents could have never imagined. Asperger's is one of the autism spectrum disorders
Squag: Social media for teens and tweens with autism | Washington Times Communities
Two years ago, Sara Winter's nephew got in a skirmish at recess and was very upset. Winter suggested that the boy, who is on the autism spectrum, write a note to his parents on her Blackberry to tell them what he was feeling. Astounded by the way he was able to express himself, Winter began searching for software that could help him do so more. Finding none, she eventually created a social networking-style interface for kids on the spectrum called Squag.
Michael Buckholtz on Discrimination
Autistic multi-platinum Record Producer and author, Michael Buckholtz talks about discrimination and how he handles it in this video on Autube.tv.
Aid for Autistic Children Foundation
Aid for Autistic Children Foundation, Inc.™ mission: Reduce the financial burden on poverty stricken and disenfranchised families and caretakers coping with autism, through debt forgiveness, so attention and resources can be focused on creating a proper living and learning environment for their autistic loved one. How the Program Works After thorough evaluation of your completed application and assessment from our board and an independent consumer credit counseling service, the debt forgiveness will directly target the financial burden the family deems most obstructive in allowing them to focus solely on giving their autistic loved one the best tools and skills for
Motor Skills Affected By Autism
Editor's Choice Main Category: Autism Article Date: 21 Feb 2012 - 10:00 PST email to a friend printer friendly opinions Often, children with autism have difficulties developing motor skills, such as throwing a ball, learning how to write, or running. How
Autism Diagnosis Often Occurs Later for Black Children
MONDAY, Feb. 20 (HealthDay News) -- Black children with autism tend to be diagnosed later than white children with the disorder, and this delay can lead to longer and more intensive treatment, researchers say. Lack of access to quality, affordable and cu
Advocates Incorporated
Advocates is a not-for-profit 501(c)(3) parent-directed organization providing services to individuals with developmental disabilities and their families. As an organization, we were started by parents of children with developmental disabilities with the goal of full inclusion for their children.
Motor Impairments Appear to Be a Characteristic of Autism
FRIDAY, Feb. 17 (HealthDay News) -- Autism itself seems to be responsible for the problems children with the disorder have in developing motor skills such as running, throwing a ball and learning to write, according to a new study. Previously, it wasn't
AAPC Publishing Offers a Guide for Parents with Students on the Autism…
Parent’s Guide to College for Students on the Autism Spectrum This practical book is an invaluable guide to evaluating college readiness for students on the autism spectrum. Sending a son or daughter off to college can be a daunting task, but if the chil
African-American children tend to be diagnosed later for autism
The rate of diagnosis for autism spectrum disorders (ASD) is the same among all racial groups — one in 110, according to current estimates. However, a study by a Florida State University researcher has found that African-American children tend to be diag
Hospital apologizes to Amelia Rivera who was denied kidney transplant
Children's Hospital of Philadelphia has issued an apology to the parents of Amelia Rivera, a disabled three-year-old girl who, according to her parents, was initially denied a chance at a kidney transplant because she is “mentally retarded.” In a stateme
New information about IL-6 protein’s role in development of neurological disorders
A UT Dallas study is revealing new information about a key protein's role in the development of epilepsy, autism and other neurological disorders. This work could one day lead to new treatments for the conditions. Dr. Marco Atzori, associate professor in
OlliNepal: Why Nepal ?
You can help kids with diffabilities in Nepal. We’re making it super easy. For person that joins our community we will donate $2 to support children in Nepal.You’ll also be entered for a chance to win an iPad at the same time. Now share this with everyone you know and show the world how easy it is to make a difference.
A little bit about us
It's hard to convey all that we want you to know "about us" in a paragraph., hard to explain the million and one reasons we're so passionate about Ollibean and how much we want you involved in our community. We hope this does it. We'd love to hear an "about us" about you. Shoot a video response and send it to us at olli@ollibean.org or post to our youtube account. We'll send an Ollibean tshirt to the first 20.
Autism affects motor skills, study indicates
Audio available Children with autism often have problems developing motor skills, such as running, throwing a ball or even learning how to write. But scientists have not known whether those difficulties run in families or are linked to autism. New resear
CEC Division on Autism and Developmental Disabilities
The Division on Autism and Developmental Disabilities is an organization composed of persons committed to enhancing the quality of life of individuals, especially children and youth, with autism, intellectual disabilities and other developmental disabilities. The Division seeks to further the knowledge base of the field, thus ensuring the continued advancement of positive educational and life outcomes for those with autism and developmental disabilities.
Killing of autistic boy shows need for support for developmental disabilities
An argument about computer use ended with a 15-year-old boy shot dead by police in Calumet City, family and officials said Wednesday. Stephon Watts, who the family said was autistic, was reportedly asked by his father to stop using the computer. Watts' father had been told in the past to call police when he had problems with the teen. He did, and officers responded to the home in the 500 block of Forsythe Avenue in the far south suburb.
More Autism-Friendly Shows Planned For Broadway
NEW YORK (AP) — Two more autism-friendly performances of Broadway musicals will be offered this spring and fall following the success last year of the first showing of a Broadway show specially altered for those diagnosed with the disorder. The Theatre D
Cops: Autistic boy, 6, left on school bus
A young boy with autism was left Monday morning in the back of a school bus, which departed the school before staff realized he was missing, according to Nassau police, who are investigating the incident.Sean Feldt, 6, was returned to the Cherry Lane Sch
Advocates for Children of New York
At Advocates for Children of New York (AFC), we are dedicated exclusively to protecting every child’s right to an education, focusing on students from low-income backgrounds who are struggling in school or experiencing school discrimination of any kind. For more than 40 years, our staff of attorneys and education specialists have successfully helped hundreds of thousands of families by providing free legal and advocacy services, including representation at school-related hearings and appeals, and teaching families what they need to know to stand up for their children’s educational rights. AFC also works to change education policy so that the public school
TenMarks | Online Math Program for Grades 2-10
TenMarks was started to create a better way for students to learn - one that focuses on the student and their individual needs, is interactive and engaging, takes advantage of new technologies, and caters to the changes in student expectations and behavior. Their mission is to positively impact the lives of 20 million students in 5 years.
EdTech Associates
Founded on the vision that every child should have the opportunity to develop a foundation of 21st Century learning skills, EdTech Associates provides services to empower all schools and students to succeed. EdTech Associates was established by Kathleen H. McClaskey, M.Ed., a well-respected and recognized professional and innovative leader in educational technology. Kathleen has almost three decades of experience in educational technology with a firm philosophy that technology is a tool that can improve teaching and learning. In her long career, she has been a computer teacher, technology integration specialist, K-12 technology director and graduate instructor for in online and
Apps in Education
Greg Swanson is a Visual Arts teacher who is interested in Computer Integration, Web 2.0 and engaging students in their own learning through innovative technology and collaborative classroom practices. One of the hardest thing with using the iPad in the classroom is finding the time to go through all of the apps in the iTunes Store listed under the education banner. Apps in Education has started to list some of the apps they've found under each of the Key Learning Areas.
Neural systems for speech and song in autism
Despite language disabilities in autism, music abilities are frequently preserved. Paradoxically, brain regions associated with these functions typically overlap, enabling investigation of neural organization supporting speech and song in autism. Neural
Amy Sequenzia “Be Proud of Who You Are”
"Feeling sorry for our disabilities means not accepting ourselves. I feel sorry because disabilities rights are still lacking, not because I am disabled. My message is, hopefully, about our strength and similarities". Amy Sequenzia
“Le Mur” , French analysts who still blame the mother..
Three of the analysts in the shocking "Le Mur" are contesting future US showings and suing filmaker Sopihe Robert in France. They feel they have been unfairly represented in the film. I have seen this film and cannot imagine how they have been misrepresented. There's an abundance of material in the film expousing their archaic and controversial views that prevent so many French with autism from receiving proper treatment. Here are some quotes: "(Dr Aldo Naouri) Most of the time, the symptom of the child is no more no less than the symptom that allotted to have by the maternal unconscious
My Voice, My Life : A Poem by Amy Sequenzia
This powerful poem from the book "MY VOICE, Autism, Life and Dreams" by self-advocate Amy Sequenzia says so much. We were fortunate enough to get to know Amy at ICI's Summer Institute at MIT and are very grateful to her for allowing us to publish "My Voice, My Life" here. If you are interested in purchasing a copy of Amy's book, you can find her on Facebook. My Voice, My Life Look at me. Go ahead, take a good look. What do you see? Weird? Silly? Pitiful? Can’t do anything? You might feel sorry for me You might pity me
Todd Drezner: Nickels, Dimes and ‘High-Functioning’ Autism
As Justin Canha's story shows, the autistic person who needs a lot of support in one area may become a person who needs much less support in that same area. Justin barely spoke before age 10. Now he's verbal. He didn't suddenly change from "low-functioning" to "high-functioning." Rather, he received the support he needed and developed his skills.
What I Learned During My “Sabbatical” at the MIT Media Lab (Part Two)
Why Inventing Technologies for the Disabled is Not Just Right but Smart Business Q. What do a child with autism, an Iraq war-veteran amputee and a senior citizen with Alzheimer’s have in common? (Other than having disabilities that begin with “A.”) A. They are all the early adopters of radical new technologies that will make all our lives better in the future. For my entire career as an entrepreneur, I assumed that developing innovative technologies for people with disabilities, while the “right thing” to do, was not a particularly promising business proposition. Within a year of becoming director of the
What I Learned During My “Sabbatical” at the MIT Media Lab (Part One)
Also, like an academic, I wrote a book during my sabbatical. The book is about the highly unorthodox research and researchers at the Lab, titled “The Sorcerers and Their Apprentices: How the Digital Magicians of the MIT Media Lab are Creating the Innovative Technologies That Will Transform our Lives”. At the Lab, not taking risks is the biggest risk of all. Crazy and wild-eyed ideas and inventions emerge from what appears to be chaos. Some of these seeds survive and grow into innovations that can improve our everyday lives, disrupt industries and even transform society.
The Loud Hands Project
Love this video published by the Autistic Self Advocacy Network. Share it, Post it, Donate at http://www.indiegogo.com/The-Loud-Hands-Project?a=351448 so they will make more:)
The Jazz of Matt Savage, WMUR-TV
Matt's interview on WMUR-TV Channel 9's New Hampshire Chronicle, January 6, 2011 Check out Matt's website for more info http://www.savagerecords.com/
Matt Savage with Bobby Watson- “Big Apple Blues”
Here's a song from Matt's "Welcome Home" CD Release concert in New York at Dizzy's Club Coca-Cola at Jazz at Lincoln Center! Matt Savage on piano ; Bobby Watson is on alto sax, Joris Teepe is on bass, and Peter Retzlaff is on drums. Incredible!
“Miles for Kids’ Smiles” Pediatric Physical Therapy
As a pediatric PT, I often hear requests for "another lap on the tricycle" or "can I go back to my room now? Puhhhleeeease!" But the question of going to Nepal to fulfill one of my life's dreams has only one answer: "YES!" I grew up playing soccer. My family and I dedicated much of my childhood free time to road trips, holiday tournaments and the goal of obtaining a college scholarship to play. I signed with a small, liberal arts university in Alabama. While training preseason, I heard and felt a "POP". I would spend the next 4 years
ASAN disappointed with President Obama’s choice for committee on disability
The Autistic Self Advocacy Network, the nation's leading advocacy group run by and for Autistic adults, today expressed concern and disappointment over President Obama’s announcement Tuesday of his intent to appoint anti-vaccine activist Peter H. Bell as a member of the President’s Committee for People with Intellectual Disabilities. “Bell’s appointment shows such contrast to the forward motion the Obama administration has shown in the areas of autism and disability as a whole..
Autism Support Network
The mission of Autism Support Network is conveyed in our tagline: connect, guide and unite. Our goal is to short-cut the uphill battle individuals and families undertake when faced with autism – whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information.
Gluten-Free Girl and the Chef
Gluten-Free Girl and the Chef is amazing site with incredible recipes and great writing. Love their love for life!
Jules Gluten Free
In addition to heading product and recipe development at Jules Gluten Free, Jules travels the country speaking to thousands of people annually, teaching cooking classes and educating and inspiring people about her no-compromise approach to living gluten-free.
Gluten-Free Goddess
We love this site! Karina has amazingly delicious gluten-free recipes all delivered in her wonderfully poetic voice.
Operator of N.Y. Group Homes Thrived Despite Lapses in Care – NYTimes.com
The federation has amassed more citations for serious lapses of care than any other organization in the state licensed to run group homes for developmentally disabled people — those with autism, Down syndrome or cerebral palsy. An analysis by The New York Times of state inspection data from 2004 to 2010 found that the federation had been cited 27 times; via Operator of N.Y. Group Homes Thrived Despite Lapses in Care - NYTimes.com.
Senate Introduces Bill Limiting Restraints, Seclusion – On Special Education – Education Week
A U.S. Senate bill filed late last week would limit physical restraint and locked seclusion of students—measures often used with students with disabilities who are considered out of control, harmful to themselves or others, or in need of being calmed. Iowa Democratic Sen. Tom Harkin's "Keeping All Students Safe Act," via Senate Introduces Bill Limiting Restraints, Seclusion - On Special Education - Education Week.
The Family Center on Technology and Disability
The Family Center on Technology and Disability (FCTD) is a resource designed to support organizations and programs that work with families of children and youth with disabilities. We offer a range of information and services on the subject of assistive and instructional technologies. Whether you're an organization, a parent, an educator, or an interested friend, we hope you'll find information that supports you in your efforts to bring the highest quality education to children with disabilities.
The National Early Childhood Technical Assistance Center
NECTAC is the national early childhood technical assistance center supported by the U.S. Department of Education's Office of Special Education Programs (OSEP) to strengthen service systems to ensure that children with disabilities, from birth to 8 years, and their families receive and benefit from high quality, culturally appropriate and family-centered supports and services.
UNH Institute on Disability
The Institute on Disability/UCED (IOD) at the University of New Hampshire was established in 1987 to provide a coherent university-based focus for the improvement of knowledge, policies, and practices related to the lives of persons with disabilities and their families.
Inclusive Schools Network
The Inclusive Schools Network offers a forum for educators, students, family, and community members to share experiences and ideas with each other. It is important for the Inclusive Schools Network to model an inclusive approach in welcoming and valuing all perspectives and opinions regarding the practice of inclusive education. We hope you will communicate with us directly to improve this website and our services to you.
Disability is Natural
The mission of Disability is Natural is to encourage new ways of thinking about developmental disabilities, in the belief that our attitudes drive our actions, and changes in our attitudes and actions can help create a society where all children and adults with developmental disabilities have opportunities to live the lives of their dreams, included in all areas of life.
Broadreach Training and Resources
Norman Kunc and Emma Van der Klift have spent the last 25 years working to ensure that people with disabilities are able to take their rightful place in schools, workplaces, and communities. Although they are well known advocates within the disability rights community, they prefer to think of themselves as modern day storytellers, continuing the long held tradition of using humour and narrative to initiate self-reflection and social change.
Association on University Centers on Disabilities (AUCD)
AUCD envisions a future in which everyone, including people living with developmental and other disabilities, are fully integrated, participating members of their communities. We envision a future in which culturally appropriate supports that lead to independence, productivity, and a satisfying quality of life are universally available across the life span. AUCD's mission is to advance policy and practice for and with people with developmental and other disabilities, their families, and their communities by supporting our members in research, education, and service activities that achieve our vision. AUCD values the participation of people with disabilities, family members, and a culturally diverse
Autism Society
The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. They do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.
Love and Logic
The Love and Logic Institute is dedicated to making parenting and teaching fun and rewarding, instead of stressful and chaotic. They provide practical tools and techniques that help adults achieve respectful, healthy relationships with their children. All of their work is based on a psychologically sound parenting and teaching philosophy called Love and Logic. What Is Love and Logic? Children learn the best lessons when they're given a task and allowed to make their own choices (and fail) when the cost of failure is still small. Children's failures must be coupled with love and empathy from their parents and teachers.
International Rett Syndrome Association
The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
Squag
Squag [skwag] is an innovative social platform designed specifically for tweens and teens on the autism spectrum. Their goal is to facilitate the opportunity for organic relationships; driven by kids, supported by parents. (What could be better?)
Including Samuel
Before his son Samuel was diagnosed with cerebral palsy, photojournalist Dan Habib rarely thought about the inclusion of people with disabilities. Now he thinks about inclusion every day. Shot and produced over four years, Habib’s award-winning documentary film, Including Samuel, chronicles the Habib family’s efforts to include Samuel in every facet of their lives. The film honestly portrays his family’s hopes and struggles as well as the experiences of four other individuals with disabilities and their families. Including Samuel is a highly personal, passionately photographed film that captures the cultural and systemic barriers to inclusion.
Inclusion Network
This wonderful resource provides resources for Training, Consulting and Networking Facilitators.foster the development of inclusion. The focus is the development of future leadership for inclusion through the creation of focused programs, materials and research that will create a world where Everyone Belongs.
The Inclusive Class
We are crazy about the Inclusive Class! Nicole Eredics is pretty incredible, and her blog and podcasts are informative, interesting, and always just what we need. The inclusive classroom best demonstrates that message as it begins with the belief that all children belong. Each child can demonstrate and achieve success, in various ways, according to their abilities, strengths and areas for growth. Inclusive Class' Livebinder has an abundance of resources.
Paula Kluth: Toward Inclusive Classrooms and Communities
This website is dedicated to promoting inclusive schooling and exploring positive ways of supporting students with autism an other disabilities. Most of Paula Kluth's work involves collaborating with schools to create environments, lessons, and experiences that are inclusive, respectful, and accessible for all learners.
Wrightslaw
Wrightslaw's mission is to provide parents, advocates, educators, and attorneys with accurate, up-to date information about special education law and advocacy so they can be effective catalysts. * Information for parents about their rights and responsibilities * Information for teachers about professional training so they can meet the diverse needs of their students * Information for advocates about laws, regulations, and advocacy strategies * Information for attorneys who want cases, pleadings, and tactics and strategies
Office of Special Education Programs
The Office of Special Education Programs (OSEP) is dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21 by providing leadership and financial support to assist states and local districts. The Individuals with Disabilities Education Act (IDEA) authorizes formula grants to states, and discretionary grants to institutions of higher education and other non-profit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development and parent-training and information centers. The Individuals with Disabilities Education Improvement Act of 2004 was signed into law by President George W. Bush on December 3, 2004. As the nation's special education law, IDEA serves approximately 6.8 million children and
Office of Special Education and Rehabilitative Services
The Office of Special Education and Rehabilitative Services (OSERS) understands the many challenges still facing individuals with disabilities and their families. Therefore, OSERS is committed to improving results and outcomes for people with disabilities of all ages. OSERS supports programs that serve millions of children, youth and adults with disabilities. OSERS is comprised of the Office of the Assistant Secretary (OAS) and three program components: the Office of Special Education Programs (OSEP), theNational Institute on Disability and Rehabilitation Research (NIDRR), and theRehabilitation Services Administration (RSA).
US DOE Associations and Organizations Resource Page
The Education Resource Organizations Directory (EROD) contains information on more then 3,000 national, regional and state education organizations and associations. The directory helps you identify and contact these organizations that provide information and assistance on a broad range of education-related topics.
United States International Council on Disabilities
The U.S. International Council on Disabilities (USICD) is a non-profit, membership, constituent-led organization committed to building bridges between American and international disability communities and cultures. Through a wide range of projects and programs, USICD promotes the inclusion of disability perspectives in U.S. foreign policy and aid and provides opportunities for domestic disability rights organizations to interface with their international counterparts. USICD’s major initiatives leverage a membership that spans organizations and individuals in more than 30 U.S. states and a number of foreign countries. USICD's Board of Directors includes leading experts in domestic and international disability issues.
Technology & Telecommunications Task Force
The Telecommunications and Technology Task Force, part of the Consortium for Citizens with Disabilities deals with issues related to access to telecommunications and assistive technology in education, employment and independent living.
SABE – Self Advocates Becoming Empowered
Self Advocates Becoming Empowered (SABE) is the self-advocacy organization of the United States. Founded in 1990, we have been working hard for the full inclusion of people with developmental disabilities in the community throughout the 50 states and the world for 21 years. Our non-profit advocacy organization is run by a board of self-advocates representing 9 regions of the country.
RESNA
Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) RESNA's goal is "To maximize the health and well being of people with disabilities through technology." The purpose of RESNA is to contribute to the public welfare through scientific, literary, professional and educational activities by supporting the development,dissemination, and utilization of knowledge and practice of rehabilitation and assistive technology in order to achieve the highest quality of life for all citizens.
President’s Committee for People with Intellectual Disabilities
The mission of PCPID is to provide advice and assistance to the President of the United States and the Secretary of Health and Human Services on a broad range of topics that impact people with intellectual disabilities and the field of Intellectual Disabilities. Undergirding the Committee’s mission is the goal to improve the quality of life that is experienced by people with intellectual disabilities, by upholding their full citizenship rights, independence, self-determination, and life-long participation in their respective communities.
Office for Civil Rights
The mission of the Office for Civil Rights is to ensure equal access to education and to promote educational excellence throughout the nation through vigorous enforcement of civil rights. An important responsibility is resolving complaints of discrimination. OCR also provides technical assistance to help institutions achieve voluntary compliance with the civil rights laws that OCR enforces. An important part of OCR's assistance is partnerships designed to develop creative approaches to preventing and addressing discrimination.
National Information Center for Children & Youth with Disabilities
NICHCY serves the nation as a central source of information on: ■disabilities in children and youth; ■programs and services for infants, children, and youth with disabilities; ■IDEA, the nation’s special education law; and ■research-based information on effective practices for children with disabilities.
National Fragile X Foundation
The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X.
The National Association for the Dually Diagnosed
NADD is a not-for-profit membership association established for professionals, care providers and families to promote understanding of and services for individuals who have developmental disabilities and mental health needs. The mission of NADD is to advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care. NADD's Mission "To advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care."
The National Association of Parents with Children in Special Education
The National Association of Parents with Children in Special Education (NAPCSE) is a national membership organization dedicated to rendering all possible support and assistance to parents whose children receive special education services, both in and outside of school. NAPCSE was founded for parents with children with special needs to promote a sense of community and provide a national forum for their ideas.
Disability Rights Education and Defense Fund
The Disability Rights Education and Defense Fund, founded in 1979, is a leading national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities. The mission of the Disability Rights Education and Defense Fund is to advance the civil and human rights of people with disabilities through legal advocacy, training, education, and public policy and legislative development.
Special Olympics International
The Special Olympics mission remains as vital today as it did when the movement was founded in 1968. Through the power of sport, Special Olympics strives to create a better world by fostering the acceptance and inclusion of all people. Mission Statement The mission of Special Olympics is to provide year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in a sharing of gifts, skills and friendship with their families, other Special Olympics athletes and the
Stories From The Road | Chapter Seven | “Stand Up! For Inclusion”
"Stand Up! For Inclusion": Larry, Tracy, Harvey & Pascal speak to teens in Houston at the 26th Annual BBYO Lonestar Convention. The theme of this year's convention is "Stand Up! For Inclusion" to inspire youth to make a difference in the world around them.
Stories From The Road | Chapter Twelve | “All That’s Newsworthy”
From our friends at Stories from the Road, "All That's Newsworthy": Larry and Tracy join director Gerardine Wurzburg on the WPIX Channel 11 Morning News to discuss the upcoming theatrical release of their documentary 'Wretches & Jabberers'. The guys get the star treatment as they share their experiences with anchor Jim Watkins.
Stories From The Road | Chapter Eleven | “Teaching The Teachers”
"Teaching The Teachers": The Vermonters are invited to speak at Teachers College at Columbia University. A subway ride brings them to their destination as they find open minds, caring hearts, and an invitation for beer!
Stories From The Road | Chapter Six | “Mile-High Marvels”
"Mile-High Marvels": Larry, Tracy, Harvey & Pascal are asked to speak about their experiences making "Wretches & Jabberers" at the 35th Annual TASH Conference held in Denver, Colorado.
Stories From The Road | Chapter Five | “A Small World After All”
More from the amazing W & J and State of the Art/Dan Curl. "A Small World After All": Tracy invites Finnish friends Henna and Antti to join him at his monthly task force meeting at Community Developmental Services in Barre, VT. Here other people with autism advocate for people with communication challenges, quality of life initiatives, and increase public awareness.
Stories From The Road | Chapter Four | “Breakfast at Larry’s”
From our friends at Wretches & Jabberers, "Breakfast at Larry's": Larry invites visiting international friends Chammi, Antti & Henna to his home for a traditional Vermonter breakfast. With the help of his sister Sally, Larry hosts a meal not soon forgotten!
Stories From The Road | Chapter Three | “Wretches Reunite”Stories From The Road | Chapter Three | “Wretches Reunite”
"Wretches & Jabberers" co-stars from Finland and Sri Lanka descend upon Burlington, Vermont to visit Larry and Tracy and discuss how the film has impacted their lives.
Stories From The Road | Chapter One | “A Night With The Stars”
"A Night With The Stars": Larry, Tracy, Harvey & Pascal take to the road to promote a new documentary titled "Wretches & Jabberers" following their recent "World Intelligence Magnified Tour". Their first stop is Syracuse, NY where they meet with the Disability Cultural Center Initiative at Syracuse University and answer questions about the film.
Stories From The Road | Chapter Two | “Syracuse International Film Festival”
"Syracuse International Film Festival": Larry, Tracy, Harvey & Pascal on the road to promoting "Wretches & Jabberers" following their recent "World Intelligence Magnified Tour". Their second stop was Syracuse, NY is to present the film and their personal narratives at the Syracuse International Film Festival.
The Miracle Project
Check out this trailer from the Emmy winning documentary, The Miracle Project. We should ALL have the opportunity to perform, participate, and find our gifts. Get involved with The Miracle Project ww.themiracleproject.org.
The Making of Sensitive
From The Miracle Project..the making of "Sensitive", a song about bullies. Wyatt Isaacs sings with Jack Black. Stephen Stills produces it a la sex pistols, with his signature guitar! Learn more about The Miracle Project at www.themiracleproject.org , you will love it as much as we do!
Carly Fleischman on 20/20
Carly Fleischmann, on 20/20 in 2009. Carly is diagnosed with autism and types to communicate. She is an incredibly intelligent self-advocate who is helping change how the world sees people who communicate differently. We are huge fans! Please check out her website for more information http://carlysvoice.com.
Institute on Communication and Inclusion
The Institute on Communication and Inclusion (ICI) is a research and training center that is part of the Inclusion Institutes of the School of Education at Syracuse University. Formerly the Facilitated Communication Insitute, our new name - the Institute on Communication and Inclusion - represents a broadened focus developed over the past 20 years, reflecting lines of research, training and public dissemination that focus on school and community inclusion, narratives of disability and ability, and disability rights, as well as research and training on faciltiated communication. Its initiatives stress the important relationship of communication to inclusion. Led by Director
Kit( Kids Included Together)
Kids Included Together (KIT) specializes in providing best practices training for community–based organizations committed to including children with and without disabilities into their recreational, child development and youth development programs. Utilizing a blended learning style with interactive eLearning components, KIT’s services are provided free of charge to its 63 affiliate organizations representing over 304 sites in San Diego County. Since its inception in 1997, Kids Included Together (KIT) has trained over 25,000 youth providers in the best practices of inclusion. Over 15,000 children with disabilities have been co–enrolled with over 265,000 children without disabilities at KIT affiliate sites. 72% of
People First
People First is an organization run by and for people with learning difficulties to raise awareness of and campaign for the rights of people with learning difficulties and to support self advocacy groups across the country. People First promotes the social model of disability. This is a way of thinking about disability that says it is society that needs to change to include disabled people. We should not have to change to fit in with society. We are against the medical model of disability, which is the view that being disabled means there is ‘something wrong’ with you. Doctors and
The National Association of Councils on Developmental Disabilities
The National Association of Councils on Developmental Disabilities (NACDD) is a national membership organization representing the 55 State and Territorial Councils on Developmental Disabilities. NACDD is a 501(c) 3 organization with the purpose of promoting and enhancing the outcomes of our member councils in developing and sustaining inclusive communities and self directed services and supports for individuals with developmental disabilities.
National Arts and Disability Center
The National Arts and Disability Center (NADC) is a project of the University of California: their mission is to promote the full inclusion of audiences and artists with disabilities into all facets of the arts community. The NADC is a leading consultant in the arts and disability community, and the only center of its kind. Recipients of our technical assistance include museums, performing arts organizations, art centers, film and television companies and unions, universities and colleges, national publications, disability specific groups, artists with disabilities, arts educators, students, arts administrators and government policy makers.
Disability.gov
Disability.gov is a federal government website that provides an interactive, community-driven information network of disability-related programs, services, laws and benefits. Through the site, Americans with disabilities, their families, veterans, educators, employers and many others are connected to thousands of resources from federal, state and local government agencies, educational institutions and non-profit organizations.
TASH- Disability Advocacy Worldwide
TASH is an international leader in disability advocacy. Founded in 1975, TASH advocates for human rights and inclusion for people with significant disabilities and support needs – those most vulnerable to segregation, abuse, neglect and institutionalization. TASH works to advance inclusive communities through advocacy, research, professional development, policy, and information and resources for parents, families and self-advocates. The inclusive practices TASH validates through research have been shown to improve outcomes for all people. TASH is governed by a board of directors and is supported by a network of members, volunteers, committees and chapter organizations. The TASH membership includes a diverse
Council for Exceptional Children
The Council for Exceptional Children is an international community of professionals who are the voice and vision of special and gifted education. CEC's mission is to improve, through excellence and advocacy, the education and quality of life for children and youth with exceptionalities and to enhance the engagement of their families. The Council for Exceptional Children is a premier education organization, internationally renowned for its expertise and leadership, working collaboratively with strategic partners to ensure that children and youth with exceptionalities are valued and full participating members of society. As a diverse and vibrant professional community, CEC is a trusted
The Council on Quality and Leadership
The Council on Quality and Leadership is leader for person-centered supports and services for people with disabilities, people with mental illness and older adults. Through our services, publications and public presence, we establish real connections between theory and practice and help organizations and systems take the important step from innovative ideas to everyday action. Our goal is to be partners and mentors to our customers, showing them how they can become even better at ensuring that all people lead lives of dignity and quality.
Consortium for Citizens with Disabilities
The Consortium for Citizens with Disabilities is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The Consortium for Citizens with Disabilities (CCD) envisions an American society in which all individuals, aided by an enabling government, have the freedom and opportunity to exercise individual decisions concerning their own lives, welfare and personal dignity. CCD envisions a society in which communities are fully accessible to all individuals with disabilities and their families, where
Best Buddies International
Best Buddies is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities (IDD). Founded in 1989 by Anthony Kennedy Shriver, Best Buddies is a vibrant, international organization that has grown from one original chapter to almost 1,500 middle school, high school, and college chapters worldwide. Best Buddies programs engage participants in each of the 50 United States, and in 50 countries around the world. Best Buddies’ seven formal programs – Best Buddies Middle Schools, High Schools, Colleges, Citizens, e-Buddies, Jobs
Benefits.gov
Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. The program's mission is to reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information. The site's core function is the eligibility prescreening questionnaire. Answers to the questionnaire are used to evaluate and compare with the eligibility criteria for more than 1,000 Federally-funded benefit and assistance programs. Each program description provides citizens with the next steps to apply for any benefit program of interest.
Autism Support Network
The mission of Autism Support Network is to connect, guide and unite. Their goal is to short-cut the uphill battle individuals and families undertake when faced with autism – whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information. Their support community collectively pools global knowledge and support from all those touched by ASD. Designed as a place by those living with ASD, for those with ASD, and those seeking social connection, peer guidance, and a feeling of community with those that understand.
Association of Assistive Technology Act Programs
The Association of Assistive Technology Act Programs (ATAP) is a national, member-based organization, comprised of state Assistive Technology Act Programs funded under the Assistive Technology Act (AT Act). ATAP was established in 1997 to provide support to state AT Program members to enhance the effectiveness of AT Programs on the state and local level, and promote the national network of AT Programs. ATAP facilitates the coordination of state AT Programs nationally and provides technical assistance and support to its members. ATAP represents the needs and interests of the state AT Programs and is the national voice of the AT Programs.
The Arc of the United States
The Arc promotes and protects the human rights of people with intellectual and developmental disabilities by actively supporting their full inclusion and participation in the community throughout their lifetimes.People with intellectual and developmental disabilities are entitled to the respect, dignity, equality, safety, and security accorded to other members of society, and are equal before the law. The Arc believes that people with intellectual and developmental disabilities belong in the community and have fundamental moral, civil and constitutional rights to be fully included and actively participate in all aspects of society and supports their self-determination and self-advocacy. People with intellectual and
ADA Portal
The ADA Document Portal Allows users to search a collection of ADA-related documents that have been produced by federal agencies and organizations receiving federal funds.
American Association of People with Disabilities
The American Association of People with Disabilities is the nation's largest cross-disability organization. They promote equal opportunity, economic power, independent living, and political participation for people with disabilities. Their members, including people with disabilities and their family, friends, and supporters, represent a powerful force for change. Over 50 million Americans with disabilities and their supporters have the power to achieve full civil rights for all. They are powered by their vision of a community whose voice is heard through the halls of government, in our culture, and in our communities.
Charter Schools Excluding Students with Significant Disabilities in Florida
A new report by the Miami Herald and StateImpact Florida – a National Public Radio initiative - confirms CEC’s ongoing concern that many charter schools are failing to serve students with disabilities, particularly students with significant disabilities
Ad Hoc Developmental Disabilities Task Force
The Ad Hoc Developmental Disabilities Task Force monitors the Developmental Disabilities Bill of Rights Act and the administration of the program through the Administration on Developmental Disabilities. The Act is authorized every three years and regulations and policy guidelines are developed based on the statute. The Task Force also reviews other developmental disability related issues.
AAIDD
The American Association on Intellectual & Developmental Disabilities promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.
Autism Now: MacNeil Interviews Director of Education
An extended transcript excerpt of , PBS' Robert MacNeil's interview with Jesse Mojica, director of education policy for the Bronx borough president, on treatment and education for children with autism.
Autism Now : MacNeil Interviews Principal at Autism Charter School
An extended transcript excerpt from Robert MacNeil's interview with Rima Ritholtz, principal of PS 176, charter school in the Bronx can be found on PBS.org. Ritholtz discusses the schooling and treatment options for those with autism. She says approximately 10 out 700 students are able to return to general education.
Certain Proof – A Question of Worth
Certain Proof: A Question of Worth is a feature documentary about three children living with significant communication and physical disabilities, who struggle against the public schools in an emotional battle to prove their worth.
Toronto Police Defend Handcuffing a 9 Year Old Child with Autism
CTV reports that a 9 year-old boy with Asperger's Syndrome was handcuffed by police officers responding to 911 calls from Toronto's Fairbank Memorial Day Care Center about an "uncontrollable autistic boy" . Toronto police officers are defending their decision to handcuff the 9 year old child. On July 28th the police received two calls from the day care center where the child was reportedly was throwing chairs, tables, and yes, even paint. Reports say the child was upset after being bullied by other children during lunch about his disability. The school placed him in an empty classroom after
Thank You, Steve Jobs
Thank you Steve Jobs for thinking differently so that so many others may express their thoughts. Apple's products have changed the lives of so many people with disabilities - CP, autism, dyspraxia, motor planning issues, developmental delays, neuromuscular disorders, expressive language disorders, vision impairments. My son uses his iPad and iPod as a communication device, a way to surf the internet, watch youtube, and connect with friends. Until Apple came out with the ipod, the choices in AAC devices were very expensive ( the ones we looked at were between $5,000 and $8,000 and heavy- too heavy for someone that
Computer Based Program May Relieve Some ADHD Symptoms
Children can experience the relief of some symptoms of attention deficit hyperactivity disorder (ADHD) by participating in an intensive memory training program based on software designed to improve their working memory. Researchers at Ohio State University found that the program had a significant impact on many children with ADHD, particularly in the areas of attention, planning, organization, and working memory. The software was developed in Sweden by Cogmed in partnership with the Karolinska Institute. The software comprises 25 progressively more challenging exercises in the form of a computer game to be completed by children with ADHD within five to six weeks
IQ Scores Inaccurate Portrayal Of Intelligence for Individuals with Autism
A discrepancy between IQ scores and performance on academic tests has been identified in 90 percent of high-functioning children with autism. A study at the University of Washington's Autism Center concluded that many children with autism can gain the sense of self-worth associated with academic achievement. Improvements in the diagnosis of autism and the greater incidence of early intervention have resulted in more children ranked in the high-functioning range of the disorder. These children have average or above average IQs and are able to take advantage of regular classroom activities when early interventions are used to improve their social
Wretches & Jabberers Tampa Screening
The " World Intelligence Magnified Tour" took Tampa by storm. The screenings of Wretches & Jabberers the weekend of June 10 were an enormous success.
Ollibean Art for Change: Wretches & Jabberers Screening and Q & A at Tampa Museum of Art
Ollibean Art for Change: Wretches & Jabberers Screening and Q & A at Tampa Museum of Art from Scott Englert on Vimeo.
