Communication, Interaction, and Autism Acceptance
If you've read enough of my writings, you know that I am an activist for the rights of all people - especially Autistic people - to communicate using whatever method it works for each individual. Communication and Autism Acceptance Everybody communicates. Communication doesn't need spoken words. Communication doesn't need words at all. Behavior is communication. Smiles, looks, our bodies - those are used for communication and they are as valid as any word. I can type, and I like to type. Even if typing is exhausting, I still use this method to speak out. Interaction and Autism Acceptance But I
Proudly Autistic by Amy Sequenzia
by Amy Sequenzia Being Proudly Autistic Being proudly Autistic. Being proudly Disabled. Being me. Telling my story because my voice is my own. My story is mine to tell. I define myself. Since I was very young I have had an independent mind. Sometimes - no, many times - for a long time, I was silenced. I was told to comply. I was called names. To many, I didn't have dignity, I didn't deserve dignity. But I persevered. Perseverated. Persisted. Some people saw my humanity. To them, I let myself known. Without words. With smiles. An occasional hug. And
Autism, Social Greetings and Rhetorical Questions
by Judy Endow Autism and Rhetorical Questions Autistic people may not automatically know how to respond to rhetorical social questions such as “How are you?” or automatically reciprocate in social pleasantries such as “good morning.” This is not because they are rude, obnoxious, don’t care, or any of the other assumed reasons people attribute to this behavior. Instead, it is because all social information is not automatically picked up and used by a person with an autistic brain. The autistic brain simply works differently. Even so, autistic people can learn those things their particular brain hasn’t allowed them to automatically
Autism, Death and Mental Health Therapy
by Judy Endow The traumatic event of death is something we all struggle with from time to time over the course of our life. It is no different for autistic people. I am often reminded to be sure to identify exactly what the autistic person is struggling with when it comes to their particular circumstances. I am remembering youngster who had a pet gerbil that died and he didn’t want to part with the beloved gerbil. Three days after the gerbil had passed the pet was still in the little plastic exercise ball, which the youngster was carrying around with
The Hidden Rules of Christmas
by Judy Endow Christmas will soon be here again. There is much about Christmas I love. There are many things about Christmas that took me a very long time to figure out. This is because my autistic brain doesn’t work in a way to automatically allow me to pick up social information that others expect me to know. This expected social knowledge is called the hidden curriculum. It is the information that everybody knows – everybody except people like me! During the Christmas season there are generally more social gatherings to attend than in everyday life. These gatherings are
Autism, Perseveration and Holding onto Thoughts
Autism, Perseveration and Holding onto Thoughts by Judy Endow Like many autistics, all my life I have thought visually. My thinking is comprised of pictures, colors, shapes along with their sound and movement. Given that experience, I have had to learn how to hold onto new thoughts because it doesn’t just happen automatically. This is especially true if I see a novel thought while in a slightly (or more than slightly) elevated emotional state. It doesn’t matter if the emotion is negative or positive. Here is an example: When I am looking forward to an event
A Vibrant Mind Hidden In Plain Sight
Martin Pistorius, author of the New York Times best-seller, Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body delivers one of the most impressive and thought provoking Ted Talks ever. Martin Pistorius' story serves as an urgent call to action to change our assumptions about verbal speech and intellectual capacity. It also reinforces the absolute necessity to treat each human with dignity and respect. How many people are waiting right now for someone to acknowledge their means of communication? How many are waiting for someone to talk to them respectfully and then to listen and watch for subtle movements-
Disabled Lives and Respect
I thought I wouldn't write about this case . I've been following it and the developments have been a sad reminder that disabled people are, in 2015, still seen, talked about and treated as less than human. Emily Brooks has been writing about it and her analysis is so comprehensive, I don't have much to add. But the rhetoric used by people involved in the case is making my heart hurt. If you don't know about it, you can read the articles linked above and here . I will not talk about Anna Stubblefield, if she raped an adult
Assumptions and Ableism
I've recently read an article about how some researches are slowly starting to debunk long held assumptions about autism, Autistics, functioning labels, and how the world needs to provide more appropriate education to “all” Autistics. This is a quote from a researcher (Laurent Mottron): "Early childhood interventions should focus on harnessing strengths, rather than erasing the difference between autistic children and neurotypical kids" Of course, Actually Autistic people have been saying this forever. We have been warning parents about the damages caused by "therapies" that seek to train Autistics to make us look "indistinguishable from our peers” for a long
Autistic Patterns of Thoughts and Emotions
I use the movement of things outside of me for purposes of thinking and of processing feelings. Recently, autistic friends have let me know that most people in the world do not do this and that it is a rather common autistic experience. I have no idea how common so would very much appreciate autistic weigh in here. Thinking My thoughts are all in colors and pictures. Usually there are sounds attached, but not always. To think I need a way for the colors and pictures to move. When my sensory system is calm and integrated the thoughts
Deaf Teen Filmmakers Interpretation of Phillip Phillips’ “Home”
Acceptance, connection, and belonging. Home. Thank you Deaf Film Camp for making such awesome videos!
Uniquely Human Neurotribe
This past summer two new autism books were released within days of each other. Each, of it’s own accord, is a game changer if readership becomes large enough. Together the two books could serve to alter the course of autism history in terms of who is given the stage to tell the autistic story. NeuroTribes: The Legacy of Autism and the Future of Neurodiversity by Steve Silberman does exactly what the title says – lays out lots of history. There are so many interesting parts that I never knew existed that have impacted what we believe we know about autism.
Privacy, and Parental Behavior
I've written about this before: parents of Autistic children sharing very private information about their kids, sharing moments that show the kids being upset, or having meltdowns. These parents share everything publicly, using pictures and videos, the children's real names, even if the children are adults. Some say that they are trying to help other families, by showing the "real face of autism". These are the "martyr parents". Others are very angry "at autism" and say they are doing what any parent who loves their children would do: “fight autism”. These parents call themselves "warriors". Still
Autism, Transition Programs and the Impact of Poverty on Self-Advocacy
I am an autistic woman who has lived both in poverty and as a middle-income person during my adult life. I am noticing how self-advocacy is typically geared toward middle-income status. This could be problematic since many autistic adults live in poverty. Based upon my experience I have come to realize that middle class self-advocacy works fine if in fact you are a middle-income person, but doesn’t work well if you are a poor person. I will explain this more using an example from my life as a poor person versus a middle class person. Dental Experience as
Autism and Changing Classroom Strategies
The field of autism is very new – not even 100 years old yet! This means we are constantly learning new things. We now know that what works for most children to learn does not always work for autistic children. In fact, it can be detrimental to their learning. Those of us in the field of autism will likely need to change the way we deliver help to those who seek it and change the way we teach our students.
On Not Being “Pretty”
My friend Cara wrote this awesome article about being "ugly" disabled. You should click on the link and read it. Go on, I'll wait. Isn't it great? The article got me thinking. Like Cara, I also have cerebral palsy. I sometimes use a transport wheelchair because I have poor balance and I can't stand for too long. When I sit down, my body "flops", or it slowly leans to my right side until I am almost lying down. When it doesn't lean to the side, it tends to relax too much, sliding down the chair. An upright position
Autism and Processing Social Information
My autistic neurology means that I am not good at picking up typical social cues, understanding complex social situations, automatically picking up meanings of idioms, or understanding the hidden curriculum that most others automatically pick up (Endow 2012). This means I often look naïve and gullible. The fact is I AM naïve and gullible when I try to use the social constructs of neuromajority folks to navigate the world around me. When I was younger and deemed “in need of help” that “help” largely involved others trying to teach me to think and act as if I had a
Autism and Stubbornness
I am an autistic woman. Most of my life people have let me know they think I am stubborn and controlling. Over time I have learned to hide the behaviors so people do not think I am stubborn and controlling. I understand you view my stubbornness as a bad thing so I have learned to hide it. Today I would like you to consider that what you label as stubborn and controlling is often a solution to help us manage our anxiety and fear. Whenever we have a fearful or anxious moment – and those moments tend to
Accommodations – They Make All The Difference
Accommodations are important and they work. I should not be making a big deal about it. The ADA is 25 years old. Sadly, getting the accommodations we, disable people need, is often the opposite of simple. If you have been reading my posts, you know that I am very visibly disabled. I am also proud, and I don't try to be someone other than myself. I do require a lot of supports, and once I have them, I can do anything I set up as goals. I have goals, or simply things I want to do, that most people
Using Autistic Strengths to Make Friendships Work
I am an intelligent autistic woman. I manage my own business, have raised three great kids and interface with the world around me with a fair amount of success. Not too shabby considering I lived in an institution as a kid, was homeless as an adult and used public assistance for some years. Today I am content in my life. It is intentional. I have decided not only to be content, but how to intentionally let go of some things that used to bother me. I hope to get better with this over time because it is great feeling
Will Chuck forget?
Will Chuck Forget? Chuck is terrified to go to school. He has stuttering. Others laugh when he says something. He has a breakdown at school. Some boys do feel bad but have no courage to tell and stand up for him. The teacher pretends nothing is wrong. Chuck went missing. Questions: Who is responsible? What can his friends do if he is found? What does it mean to watch and look the other way? Will his teachers take initiative and how? What can his family do? Will Chuck forget? End of the story. I wrote this story when I
Autistic Burnout
Each individual who has an autism spectrum diagnosis got that diagnosis based on deficits. That isn’t good or bad, but rather, simply the way diagnosing works. Diagnostic deficits are based on the social and expected norms exhibited by the majority of people. Deficits are determined by a significant deviation from this majority norm. And, if you deviate far enough from the norm you get a label. If you have a group of deficits that line up with the autism spectrum disorder label then you get that label. Once an individual has the autism label, we begin teaching skills to
Surviving Inclusion: At The Intersection of Minority, Disability and Resegregation
Kerima Çevik on Surviving Inclusion: At The Intersection of Minority, Disability and Resegregation “I see the work of inclusion as probably the last frontier of desegregation. If you read the brief from Brown v Board of Ed, The board of education argued that if we let the blacks be integrated then the next thing you know is that we’ll be letting people with disabilities be integrated.” Joe Petner, Principal, The Haggerty School, Including Samuel NAACP picketing St. Louis schools circa 1950s. Photo credit AARP In October of 2008, we discovered that our son, who was transferred into a full special education
Autism and A Changing Sensory System
Something about autistic sensory difference that I do not see addressed in the literature is the fact that sensory system needs change over time.
Autism and Non-Fluid Speech
I am a speaking autistic woman. Even so, I rarely have fluid access to my speech. Often times I have in mind something I would like to discuss with a friend so as to get their thoughts and ideas on the topic, but even though I know what I want to discuss the words are not available as speaking words. Oh, I know the words – they are in my head – I just cannot get them to come out of my mouth at will. This often poses difficulties for me. One example is when I am with my
Now you know . You cannot unknow .
I told Professor Wurzburg's class in March and April about my life and advocacy for inclusion, communication and civil rights. The class asked me questions and I answered. On April 8 I talked to the class on Skype. "This is good. Princeton thank you for this class. Learning about disability experience and discrimination from people who are disabled is the only real way. I share my experience to change my reality and the reality for my neurodivergent brothers and sisters. No person should experience the abuse. All people deserve respect, inclusion and communication. Now you know . You cannot unknow
Autism and Visual Detail
Because of my autism I often experience sensory overload. Many times this is painful. I have learned that by keeping my sensory system regulated I can avoid some of the pain. Over time, in the process of becoming more regulated, I have found ways to enjoy my unique sensory system. One of the things I enjoy is a degree of beauty I can see in many things around me. I don’t think neurotypical people often see the detail I do. The reason I think this is because when I comment about something beautiful I am seeing others often do not see it. Sometimes
Ableism and Pity. Reject Them, Be Awesome
I have written about how I had to unlearn ableism. I have written about my uncooperative body. I always state how generally happy I am, and that I am comfortable being me. All this is true but frustration shows up, and grows, every time I meet ableism. I meet ableism a lot. Ableism brought forth by pity. Pity directed at me by people who seem to believe I am “trapped” inside my body, that I suffer, or that my life is so hard, they can’t understand how I can even have goals and aspirations.
Autism and Hiring Help
I recently moved. It involved working with a realtor, a banker, and numerous other people. Today I am contemplating sorting out what to put into my new desk drawers and have a literal pile of paperwork from various aspects of my moving adventure. As each person representing each faction of moving began working with me they explained what they would do, how they would do it and the expected outcome. For example, the furniture store guy explained how the sale worked, the ordering and delivery of the furniture and the return policy. I asked my questions which were answered
The Hidden Curriculum About Fat
Just started another diet. I am determined to lose a little weight so as to be healthier. I know I can do this because I have done it nine times already. Each time I have been very successful, but the only problem is that each time I have lost the very same weight after having gained it back from the previous episode of losing it. I know I am not alone in this constant weight struggle. Lots of people lose a bit of weight only to gain it back again. Another thing I am not alone in is liking it
OLLIBEAN : Acceptance, Love, Self-Care: #AutismPositivity2015
Autism Positivity is coming out of April stronger. Tired A little frustrated Spoonless. But stronger. Autism Positivity is rejecting blue lights, casting a red shadow and obscuring the blue puzzle pieces of hate. We continue our #WalkInRed call to action, we are joined by accepting friends, old and new. As Elvis Costello has been singing for decades, even the Angels want to wear the red shoes. Acceptance, Love (and the Angels wearing red shoes) = Positivity Autism Positivity is reclaiming words used to devalue us, and giving them their true meaning. Defiant: standing for what we believe in and for
LOOPS
My body movement speed is not average. It is not in the mean. My thinking speed is. My thinking speed is faster than average. My body takes time to agree to cooperate with my mind. If my body chooses not agree to cooperate my thoughts remain my own. More anxiety less body cooperation. Less body cooperation more anxiety. Less anxiety more body cooperation. More body cooperation less anxiety. Excerpt from Wurzburg Seminar at Princeton University
Scientific Validation of Autistic Humanity
When I was a teenager, the “too much” of life caught up with me. Everything in the world around me was just too much. …too much noise with the varying sounds of the world clamoring to grab my attention, their pitches and tones wildly crashing into each other as if competing for a speed prize on a race track – or so I wished … If only the cacophony of the world outside my skin would at least line up and compete in some orderly fashion – like race cars on a race track – it would then allow
Synesthesia
Synesthesia I am a synesthete. I see colors and movement to music – to all sounds, actually but music makes everything prettier. I also see words, I can feel them. My synesthetic experience has always been beautiful but I never paid extra attention to it. The colors, the movements and the feelings have always been there. Recently, I have been expanding my musical experience, and I am enjoying it greatly. I am paying more attention to what I see, to what I feel. It is hard to explain. I wish I could paint it, but I can’t. So I wrote
Being Comfortable In My Skin
When I shared my post "Celebrating My Life" one commenter pointed out that “very few people are as comfortable in their skins” as I am. This got me thinking about what makes it possible for me to not only be ok being me, but to be proud of who I am. What makes me an unapologetic, unabashed, proud disabled woman? According to followers of the medical model of disability – most doctors and all the self-proclaimed “experts” – I have a long list of “devastating”, “severe” and even tragic deficits and impairments. Their “deficits list” would look like this: Non-speaking
Autism, Sensory Regulation and Movement Fluidity
Many any individuals with classic autism seem to have neurological movement differences. When these movement differences play out in our bodies, it is easy for onlookers to see, as we may get stuck in one position or in repetitive movement. Sometimes there can be difficulty in getting a body movement going, and at other times once our body is in motion, we cannot stop even if we want to. These movement differences can also play out in thoughts, speech, and emotions, areas that are not as readily observable to onlookers, yet can be daily obstacles to outsmart for some of
Celebrating My Life
Celebrating My Life Amy Sequenzia won't stop celebrating her autistic, disabled life. le I am writing this prompted by something John Elder Robison (I will refer to him by his initials, JER) wrote about Autism Awareness/Acceptance Month, in particular this quote: “We may have gifts too, but disability remains the basis for diagnosis. Some autistic people are rendered non-speaking by their condition, and I can’t imagine who would celebrate that. Others live with significant medical complications like epilepsy. I’ve yet to meet anyone who celebrates that either.” I commented that JER does not have to “imagine”. I am here, I celebrate being non-speaking, I celebrate
Autism and Stuck Emotions
It has taken most my lifetime for me to begin figuring out stuck emotions in relationship to my autism. In discussing this with other autistic adults I have discovered many share this problem. Some describe the stuck emotions as being shut down. There are variations of experience, but there seems to be a shared experience of stuck emotions in autistics. Everyone I have discussed this with agrees that stuck emotions are quite difficult to deal with and, in fact, have led to much misunderstanding and sometimes to psychiatric hospitalizations. Even though I have been talking to other autistics about this
I Don’t Want Your Awareness
I don’t want Autism Awareness. Actually, I fear Autism Awareness because it only makes the world fear, hate and ignore us, one blue light, one puzzle piece at a time.
Autism, Inflexibility and Diversity
A universal assumption about autism is that autistic people tend to be inflexible and it is NOT GOOD to be inflexible. Let’s take a look at that assumption. Neuro majority people talk a lot about the inflexibility and the rigidity of autistic people. Seems like they get stuck in that train of thought. Isn’t it quite a narrow perception to believe that everyone should be just like you and should conform to your ways? And yet, as an autistic, if I want to get anywhere in the world I need do just that - to conform to the ways of
I Paint to Share My Autistic Experience
I started painting with acrylics in 2012. I wanted to use that medium to illustrate aspects of my autism. To date I have written several articles and books along with speaking in three countries about aspects of autism. Painting is one more way to explain some of the nuances of autism to those who might be interested. Painting allows me to show perceptions of the world that I see with my eyes as delivered through the neurology of my autism. I match up what I see with the colors and movements of paint on canvas paper. I have not taken classes
“Autistic People Should…”
Feb. 23, 2013 was this flash blog day. Autistics were asked to complete the phrase "Autistic people should..." as a way to make a positive difference in light of the suggestions given by search engines when that phrase is typed in the search bar. This was my contribution: Autistic people should take and keep a seat on the bus, just like Rosa Parks did in 1955 when fighting for social justice for blacks. I was born in 1955. I am glad black people no longer have to fight so hard for the chance to be seen as part of the
Being
My life through the years I've been listening to this It's enough to bring out tears I need it to immediately cease. They talk about my existence About my right to be I'm running out of patience I know who I am, I am me. Cure, treat, fix, change Words that hurt deep in my soul If I do all that they demand My essence is lost, nowhere to go. They know what to say to scare They do this intentionally But now it is my turn to dare I'm not backing down silently Not backing
#AutismSpeaks10 – Time to Shut Up
Autism Speaks asked us to tell how our lives have been touched by the organization’s “advocacy”. Autism Speaks should have known better. The party belongs to Autistics now.
Outsmarting the Hard of Autism to Attend Live Theater
I love musicals and other live theater performances. About five years ago I googled the name of the performing arts theater in my town along with “season tickets” and was delighted to discover the possibility for a whole new adventure! My friend Marilyn and her adult son Jimmy (who also likes musicals and has autism) decided they would like to do this too. Each year I am the person who sends out the information on shows and orders the tickets for all three of us. Along the way we had to outsmart the hard of our autism and figure out
Five Reasons You Need to Read ‘Ghost Boy’ by Martin Pistorius
For over ten years Martin Pistorius was trapped in his own body, fully cognizant, but unable to speak or move. He was surrounded by people who believed he was incapable of thinking and tried desperately to get just one person to notice. His story serves as a wake-up call for all of us to drastically change our assumptions about speech and intellectual capacity as well as the need to radically reform expectations and treatment of people with complex communication needs.
How Being Included Changed This Boy’s Life
Having opportunities to learn with everyone could access more opportunities for all.
High-Functioning or Low-Functioning?
In this life I am missing the ability to go out into the world and just be accepted for my natural autistic self. I must inhibit so many of my natural responses just to fit in enough for others to allow me a place in the world. I have discovered that to have a place in this world I need to fit into it in a way that makes sense to the majority. For me, this isn't a good or a bad thing - just merely the way it is. Fitting into the world is something I need to balance
Respectfully Connected: Journeys in Parenting and Neurodivergence
We are all about respect, so of course, Respectfully Connected is a Resource We Love!
Autistic Meltdown or Temper Tantrum?
Autistic meltdowns and temper tantrums are not the same thing. Autistic meltdowns typically occur as a response to being overwhelmed.
Isn’t it a Pity? The Real Problem with Special Needs
The Real Problem with Special Needs We love this TEDx Talk from our friend, Torrie Dunlap, at Kids Included Together on benefits of inclusion and the real "problem" with special needs. Isn’t it a Pity? The Real Problem with Special Needs Torrie Dunlap, CEO, Kids Included Together Feeling Good about Casting Someone with Special Needs in the Show In the early 90s I was a student on this very campus, and actually, on this very stage. I was a drama major who had a dream to change the world through arts education. The world, however, had something different in
The Pseudo Logic of “Not Autistic Enough”
Recently, I was told by a parent of a child on the autism spectrum that I am "not significantly enough affected by autism to be able to understand real autism" and therefore should stop speaking out about autism. Some aspects of my personal history (Endow, 2009) that you may find interesting include: Was nonverbal for some time Had self-injurious behaviors Lived in an institution for some years of my childhood Lived in two different groups homes Diagnosed with classic autism I understand that as a parent of a child with significant needs you may look at me and look
In Sidewalk Cracks: Authentic Relationships
In Sidewalk Cracks: Authentic Relationships In life we play on sidewalk squares. You on your NT sidewalk square You jump to my square to help me out (and so does everyone else) That I need all the help you can give. You teach me to copy your ways. I jump to your square and copy you. You are happy because I am learning To copy your ways in the world. All I have is you helping me And me copying your ways. Is it a wonder the feeling of alien predominates? There is more to jumping over the sidewalk crack.
Autism and the Importance of Stabilization
As an autism consultant I am often asked how I sort out what to do when I see an autistic client who is struggling in school or in life. As an autistic person I know first hand if stabilization needs are not met, regardless of the supports in place an autistic person will struggle. Stabilization consists of three areas that interplay – internal and external regulation in the context of a positive relationship. Internal Regulation ~ Sensory Diet Internal regulation has many components, but for stabilization I look at the sensory system. When a person has an autism neurology
An Autistic Weighs in on Friendship
I am a professional person who works as an autism consultant to various school districts when I am not speaking and writing. I have an autism neurology myself so I enjoy the privilege of being able to see and experience autism from a variety of viewpoints. One thing that greatly pains me is the continuing wrong assumptions professional people make about autistics and how those wrong assumptions often get interpreted as fact.
Autism and Holiday Schedules
Autism and Holiday Schedules by Judy Endow As an autistic getting through the holiday time can be quite tricky. As an autistic parent with children who had different needs it was even trickier. Routine and structure can go a long way! They anchor the days that can otherwise be perceived by an autism neurology as totally chaotic, which in turn, often leads to being overwhelmed and experiencing meltdowns. 1. Start by creating a visual schedule. You can simply use paper and pencil or use an iPad or computer to make your visual schedule. Words can
Ollibean Goods – Gifts That Celebrate Inclusion and Diversity
Ollibean Goods - gifts that celebrate inclusion and diversity . Ollibean Goods donates 10 % of net proceeds to fund literacy programs and provide iPads for communication .
Autism and Sorting Out Sensory Snags
All my life I have been easily overwhelmed by sound and motion. I can hear things nobody else even notices such as the hum of electric devices that are plugged in even when the appliance or device is not in use such as the coffee maker on my kitchen counter. I can hear fluorescent lights hum, the steady grind of ventilation systems in buildings and the crackling from inside my television when it is muted. When I am in the midst of much movement I tend to get dizzy. This is really distracting because I am in busy places when
Communication Supports for Speaking Autistics?
As an autistic, I know first hand how my communication abilities are different from the neuro-majority people around me. Most people do not understand my differences because I can speak. On the surface my communication abilities appear normal. This make it very difficult for people to understand when I need accommodations they are just that – accommodations – not personal preferences. For example, even though I can speak to crowds of thousands of people my neurology does not permit me to engage in telephone conference calls in a meaningful way. The most I can do is listen, but after a
Why I Don’t Like “Awareness”
Awareness campaigns of disabilities are only effective if they are planned and run primarily by the groups that are the subjects of the campaign. This is because such campaigns are not “awareness”, but “acceptance” campaigns. We welcome support, with focus on respect, equality and access. We don’t need “awareness” of deficits and tragic rhetoric.
Autism and Eye Contact
A challenge I am continually faced with as an autistic adult is the misinformed presumption and resulting behavior of neurotypical people when I do not look at them the in way they expect, want or demand of me. It is challenging because society has put the onus on me to change. Often it does not matter to others why I am different. They just want me to stop being different. Recently I was told directly, “If you want to be treated like a real person then act like one!” Eye contact can be hard for autistics for a variety of
World’s First Kid-Friendly Wheelchair From Wheelchairs of Hope
It's unacceptable that any child miss out on an education because of not having a wheelchair, and Wheelchairs of Hope is doing something about it. Wheelchairs of Hope is an initiative based on the belief that mobility from early childhood is a gate to education, and that access to education creates a new generation with improved skills, higher self-confidence levels, and more hope for the future. The UN, the WHO, and two Nobel Prize winners are backing the work of Wheelchairs of Hope. With production sites spanning three different regions, Wheelchairs of Hope will be able to guarantee shipment of
Autism, Differences and Murder
Ever since the not guilty verdict in the George Zimmerman trial and more recently, after a police officer shot and killed Michael Brown, I have been and continue to be very much afraid in the pit of my stomach. The not guilty verdict and the dragging on of the no fault attitude in Michael Brown’s shooting underlines the fact that in our society it is perfectly ok to track down, shoot and kill someone perceived to be acting different. We fear people who are different from us. Differences come in many forms. If you are White then someone Black is
Speeding, Autism and No Ticket Issued!
In the past few years I have had two encounters with the police while driving my car. The first time I pulled into a school parking lot, answered an email on my Blackberry, gathered my stuff together and let out a little scream, as I didn’t expect to see a police officer standing at my car door! “Good afternoon officer. How might I help you?” I inquired, knowing that it is very important to always be polite to a police officer. “Do you know why I am stopping you?” “No, I do not,” I replied honestly. “Do you know the
Attitudes – Information and Education
This is especially directed at parents, family members and all who spend a lot of time with disabled children. It also applies to adults, even if the way things happen when an adult is diagnosed or needs supports are different from how they happen with children. But we, disabled adults, also deserve to have supportive and informed people assisting us in navigating and participating in the world. When a child is diagnosed with a disability, or born disabled, it is said that parents, and family members, grieve. That's probably because the general perception of any disability is a negative one.
Visuals and Back to School Transitions
Our kids went back to school this month and likely many families are still struggling with the transition. It often seems that as the newness wears off, the getting-down-to-business-struggles begin. Autistic students have a particularly challenging time because their neurology does not permit them to automatically organize the world around them. Teachers and parents can support a child with autism to become more organized. For many it is an essential accommodation so they can be in a place to learn. Autistic students are often visual learners. This means that even though they may be verbal, as stress increases comprehension of
ALL Students Should Be Safe at School
I spoke at Hillsborough County School District's board meeting on September 9, 2014 to address safety concerns for students with disabilities after Tamya Johson, a nine year old student on the autism spectrum was left sleeping on her school bus. The day after this meeting, September 10, Hillsborough School Bus Crash sends 21 people to the hospital. Transcript Mrs Elia, Board members, I’ve come to speak to you today to offer my help and the community’s help to do whatever we need to do to ensure all students are safe in our schools. Being safe while at school is the
The Case for Inclusion on The Inclusive Class Podcast
Check Out Education Podcasts at Blog Talk Radio with The Inclusive Class Podcast on BlogTalkRadio
How To Outsmart “Inflexible Thinking”
Because of my autism I have an autistic thinking style. One characteristic often attributed to me is “inflexible thinking.” Flexibility in thinking has to do with being able to adapt when circumstances change by adjusting or shifting from one expectation to another. This has never been easy for me, but I have learned how to live more comfortably with my autistic thinking style in a world where flexibility is much more highly valued than my inborn trait. First, I had to accept my own autism and the fact that I think differently (Endow, 2009). Self-acceptance doesn’t come easily for most
The Impact of 250 Words on Literacy
Ollibean Literacy Lifehacks : Tools for parents and care providers without education backgrounds to easily provide literacy instruction. Sign up for our free Flashcards of the 250 Words that represent over two-thirds of captioned television.
Pharrell’s “Happy” in Sign Language
Beautiful American Sign Language interpretation of Pharrell Williams's "Happy." An expression of music in ASL composed by Rosa Lee Timm and Azora Telford. The video was produced by a team of Deaf campers & staff from Deaf Film Camp 2014 at Camp Mark Seven. CAST Rosa Lee Timm Azora Telford -- Campers -- (coming soon) -- Teachers -- Bellamie Bachleda Braam Jordaan Bim Ajadi Sophia Ballester Tate Tullier Wayne Betts Jr -- Counselors -- (coming soon) -- Interpreter -- Drisana Levitzke-Gray EXECUTIVE PRODUCER (VIDEO) Convo VIDEO PRODUCER Stacy Lawrence Sophie Sok EDITOR Bim Ajadi CINEMATOGRAPHER/CO-EDITOR Wayne Betts, Jr. VISUAL
Get Your Happy On
Love this video by Tina and Paul Sirimarco. Tina is an ASL interpreter and has been teaching her husband to sign. The videos they have created are so free spirited and joyful that they're really fun to watch. About Paul and Tina : Yup, it's official. They're adorable. "Don't Go Breaking My Heart" is just as much fun to watch.
Attitudes – Introduction
When you are disabled there is a lot going against you. Not that disability is the worst thing someone can experience. It is not. Disability can be hard and some things can be very difficult to deal with. Some of us need medication and managing this can be difficult; some of us experience pain and this can be energy draining; others might have trouble with sensory processing; some might even need hospitalization from time to time. Different disabilities require different approaches, and different types of accommodations. What non-disabled people should remember is that we either learn how to live as
Supporting Autistic Relationships
As an autistic my connections to other people are perceived visually. In fact, I often need to have a concrete visual available in order to be able to think about my friends. A challenge I am often faced with is the erroneous presumption and resulting behavior of neuro-majority people when I need a visual in order to maintain a relationship. Many Autistics Are Visual Thinkers For those of us who are visual thinkers it seems logical that visuals would play an important part in developing relationships with others and in maintaining those relationships over time. In fact, many of us
ASL University
We love this free American Sign Language resource- ASL University !
250 Words Represent Over Two-Thirds of Captioned Television
"There are more than 500,000 words in the English language, but a person who masters only 250 words will recognize more than two-thirds of all words shown in television captions—provided the 250 words are those that are most frequently used. Equally dramatic, a beginning reader could be taught just 10 words—the, you, to, a, I, and, of, in, it, that—and then recognize more than one out of every five words. Mastery of the top 79 words means being able to read half of all words captioned." Source: Perspectives in Education and Deafness, Volume 16, Number 1, September/October 1997 Henry and
Students with Disabilities Excel with High Expectations, Access, and Inclusion
"We know that when students with disabilities are held to high expectations, have access to a robust curriculum in the regular classroom, they excel." Secretary of Education , Arne Duncan Until recently, the Department of Education's primary focus was evaluating states compliance meeting procedural requirements- timelines for evaluations, due process hearings and transition services. Under the new framework, Results-Driven Accountability (RDA), the Department will also include educational results and outcomes for students with disabilities in making each state’s annual determination under the Individuals with Disabilities Education Act (IDEA). “Every child, regardless of income, race, background, or disability can succeed if
Cheryl Jorgensen
Dr. Cheryl Jorgensen's website is an excellent resource for information about inclusive education, best practices, differentiated instruction, universal design, curriculum adaptation, writing standards based IEPs, facilitating social relationships and much more!
Lizzie Velasquez: Inspiring & Empowering a More Positive Online Environment
At only 25, Lizzie Velaquez is a motivational speaker, the subject of an upcoming documentary and author. In her viral TedX Talk, How Do YOU Define Yourself , Lizzie asks the audience to consider what defines them, and whether they're going to choose to give up in the face of negativity from others, or whether they're going to choose to be happy. After finding a video on Youtube which called her the ugliest woman in the world, Lizzie decided she was not going to let someone who had never met her, bully her – much less, define her. Lizzie has
Creating Visuals Instantly for Unpredictable Activities
As an adult with autism, knowing what will happen during each day is important to me. For children, who have much less life experience, it is often a deal breaker in terms of them being able to participate in life around them. Using visual schedules supports this need both at school and on ordinary days at home, but what about those times when life gets hectic or when spontaneity is in order? Why Visuals Work Having an autism neurology means that neither internal regulation (physical, sensory, emotions) nor external regulation (making sense of the world around us) just happens! We
On Disparity in Education: The Risks and Bravery of Being First
Being one of the first or the only students with any discernible divergence in any characteristic is dangerous, difficult, and involves tremendous courage. Over 50 years ago, at the beginning of a school year, the Little Rock Nine walked with angry white mobs behind them into their local high school to exercise their right to a public education with their white peers. Initially, the Arkansas national guard blocked their entrance by order of the Arkansas governor. Eventually, President Eisenhower ordered my stepfather's unit, the 101 airborne division, excluding my stepfather and all black soldiers, to escort the students to and
Fractured Vision: One Autistic Phenomenon
I started painting with acrylics in 2012. I wanted to use that medium to illustrate aspects of my autism. To date I have written several articles and books along with speaking in three countries about aspects of autism. Painting is one more way to explain some of the nuances of autism to those who might be interested. Painting allows me to show perceptions of the world that I see with my eyes as delivered through the neurology of my autism. I match up what I see with the colors and movements of paint on canvas paper. I have not taken classes
An Odyssey: Learning the Hidden Curriculum
Learning the hidden curriculum social rules of society remains a struggle for autistics long after they grow up. For example, even though I am an almost 60-year-old woman with autism, over the past few years, I have learned a lot of new-to-me hidden curriculum items. The hidden curriculum refers to all the social information that everybody seems to know but isn’t directly taught to anybody. Here’s an example: Don’t scratch your privates really means don’t let anybody see you scratch your privates. Guessing at Hidden Curriculum Rules Once I amassed a volume of hidden curriculum items I began being able
Autism and Thinking with Colors
I think in colors. My thinking colors have sound and movement. When I hear spoken words my neurology automatically goes for the match. When I was a girl, I heard the saying, “I got the world by the tail.” Immediately, the matching pictures of tail started popping up in my head. It’s like having a personal version of Google Images. The initial picture search produced a variety of tails of animals. Then, there came the images of the ground mist I saw each morning when I went outdoors after breakfast. I assigned the world tail words I heard to this
Accessibility Is a Right Not a Privilege
Accessibility is a right not a privilege. 20 posts on Accessibility, Universal Design, and Inclusion It's Time to Go Beyond Access Creating Equal Opportunities For ALL Students to Participate in School Athletics State Obligations UNESCO Accessible Instructional Materials (AIM) Inclusion Is A Right Not A Privilege Paula Kluth on The Inclusive Class Roundtable The National Center on Accessible Instructional Materials Why Would We Want Inclusive Education? Ollibean Spotlight: Kerima Cevik Pay It Forward Activist How AAC and assistive tech make classrooms better for all : Paula Kluth The Case for Inclusion Part 3: Sea Change Access to the
What’s Underneath – Jillian Mercado
Jillian Mercado, the 23 year old model and editor and founder of Manufactured 1987 is featured in StyleLikeU 's "What's Underneath Project". The "What's Underneath Project" has select individuals remove their clothes to honor how style is not the clothes you wear, but rather, what's underneath. Transcript Off camera. StyleLikeU: So you should just talk very freely, don’t edit. Just, you know, we’ll edit and just let yourself just roll. You’ll, whoever ask the question you can talk to. At the end of each question you’ll just take a piece of clothing off. Jillian Mercado Voice: Ok, I have one,
I have Tourette’s. Please tell everyone.
This powerful performance by Jamie Sanders, spoken word poet and actor with Tourette's, covers bullying, shame, self-acceptance and empowerment in the best 150 seconds you'll watch this week.
Resource We Love : YogaKids
We love YogaKids and their foundation Go Give Yoga! Their mission is " to promote peace, health, empowerment and education" . Ok, sign us up!
Autism, Growing Up and Defining Friends
As an autistic, I have difficulties in the social arena in a multitude of ways. This was especially true during my growing up years. Even today as an adult, automatic social understanding is not my strong suit. I am, however, able to continually learn new things that enable me to do and be all I want in this world. Today, in my professional work I am able to provide some input to a variety of organizations and schools in regards to individuals with an autism label. One thing I consistently see regardless of where I go is the practice of
The Benefits of Real Food
Guest post from Chasing the Spring's Dani Johnson on the life changing benefits of a blenderized diet made for her daughter. We were drawn to the great recipes Dani shares as well as her experience of learning from adult g-tube users.
Autism, Airports and Lifelong Learning
For most of my life airports have befuddled me. It didn’t so much matter earlier in my life because the only time I used an airport was to go to visit my parents in another state. Back then, before we had the heightened security of today, people were allowed to meet passengers as they stepped off the plane which allowed me to simply follow them through the airport without needing to concern myself with the confusion all around me. In My 40’s Then, airport security changed. People picking up passengers could no longer go through the security checkpoint. I
Autism and Psychiatric Diagnoses
At different times during my growing up and even during my adult years autism wasn’t something people knew much about. I often came in front of mental health professionals. It is important to know that if you go to a mental health professional or take your child to a mental health professional in all probability you will walk out with a diagnosis of a mental condition as found in the DSM-5 – otherwise known as the Diagnostic and Statistical Manual of Mental Health Disorders In my adult life I obtained a master’s degree in social work. I did clinical work
@sesameworkshop This Autistic Wants to Say
Today we #EducateSesame and ask Sesame Workshop to listen to Autistics, to respond to our concerns and to end their partnership with Autism Speaks.
Is Autism a Disability or a Difference?
So many ideas in the larger autism community often become a debate. As an autistic this black-or-white, choose-your-side sort of thinking is very neurologically friendly to me. I like clear choices. But I also believe we are often unwittingly duped into believing we need to choose a side only because the idea is presented as a dichotomous choice. “Is autism a disability or a difference?” is one of these questions posed as a dichotomous choice in the autism community. The way the question is posed gives the impression that there is one correct answer. When Autism is a “Difference” Many
Autistic Pride
I am proud of being Autistic And of my Autistic friends I am proud of young Autistics Who have Autistic pride They amaze me I am proud of young Autistics Who are discovering themselves They are learning to understand the world Through creative Autistic eyes They make me smile Young Autistics showering us with love Bonding, sharing, exploring and laughing With words, gestures and looks Their Autistic selves leading the way They lead their own way Henry stands up for his right to be We follow his lead and stand with him He teaches the meaning of never giving up
Why The Lie We’ve Been Sold About Disability Is The Greatest Injustice
Stella Young of Ramp Up explains the Social Model of Disability, Inspiration Porn, and the lie we've been sold about disability in this nine minute TED Talk. Stella Young Transcript I grew up in a very small country town in Victoria. I had a very normal, low key kind of upbringing. I went to school, I hung out with my friends, I fought with my younger sisters. It was all very normal. And when I was 15, a member of my local community approached my parents and wanted to nominate me for a "Community Achievement Award". And my parents
The Importance of Opportunity
Dillan Barmache, a 14 year old autistic student, delivers his powerful 8th grade commencement speech using his iPad and brings the crowd to their feet.
Losing an Autism Diagnosis
I am an almost 60-year-old autistic woman who can navigate the world in a way that surprises some people when they find out I have autism. My teen years were spent in an institution because people did not know what to do with my “behaviors” or with me. Today I am a self-employed author, speaker, consultant and artist with a master’s degree in Social Work. Question: Did I lose my autism diagnosis? Official Answer: Yes and No No, an Autism Diagnosis Cannot Be “Lost” Technically, once a person is diagnosed with anything that diagnosis becomes part of their medical records.
Henry
Some call him a kid Others say he is a young man But whatever you call him You need to know this: He is courageous Brave and resilient He will fight and he will win It can be a fight for his rights When enemies come disguised as condescension It can be a fight for his dreams He will mobilize an army of friends To Stand With Him He is an example to many He showed other students the possibilities Henry does not fight for himself He is changing perceptions, changing the world Henry is a leader
Cry Me a River, Katrina Percy. Justice for LB!
I originally wrote this piece for the blog 107daysofaction.wordpress.com. I asked for permission to reprint it to help raise awareness on this side of the Atlantic about the story. If you'd like to get involved with Justice for LB and 107 Days of Action, please click here. I've recently been made aware of the story of the death of a young autistic man in the UK that's not getting any press that I'm aware of in the U.S. or Canada. I'd like to tell you Connor Sparrowhawk's story. Connor Sparrowhawk, known as "Laughing Boy" or "LB" to his friends and
April is Over!
Another April has passed – big sigh of relief! As an autistic I have a love/hate relationship with April – the AUTISM month. I love that increasingly more people over time have become aware of autism. I hate that Autism Awareness month contributes daily to many negative stereotypes of autism, most of it by people meaning to do something good on behalf of autism. As an autistic, I am meant to be grateful to all these wonderful people who are sacrificing their time, talent and money to be helpful to people like me. Some of the time I am grateful, but
FDA Advisory Panel Recommends Banning Aversive Shock Therapy at the Judge Rotenberg Center
Thursday, April 24, was a day that I'd been waiting for that day for a long time. An FDA advisory panel finally got to thoroughly hear both sides of the story of what goes on at the Judge Rotenberg Center, and to deliberate, based on testimony, whether what happens to the students there needs to be stopped. And they made the right decision. I just hope that they act on it quickly. I found out about the Judge Rotenberg Center by accident two years ago, doing some research for another post on my blog. I came across an article about
Skunk Hair, Autism and Social Understanding
There is a saying, “love makes the world go round,” but for real it is NOT love. Instead, it is hidden curriculum that makes the world go round! Hidden curriculum is all that social information that most people know even though they were never actually taught it. An example is the rule “don’t pick your nose” with the hidden curriculum being it is perfectly fine to pick your nose as long as nobody sees you doing it. Many people with autism have difficulty with hidden curriculum. Their brains are not wired to allow them to automatically pick up this untaught,
Young Autistics Making Me Happy – Expressions of PosAutivity: #AutismPositivity2014
This poem is for my young friends: Evie, Ty, Max, Fallon, Mu, Jack, Emma, H., Philip, Oliver, Brooke, Henry, Miri, Cody, MissG, MasterL, and many others I cannot name here but I know are going to grow up to change the conversation. You make me very happy!
SWIFT on NPR’s “All Things Considered”
by Dr. Mary Schuh: SWIFT Center Recently, National Public Radio’s (NPR) “All Things Considered” aired a story on inclusive education. The story featured Presidio Middle School in San Francisco and SWIFT Filmmaker, Dan Habib. While Presidio Middle School should be applauded for their efforts to educate students with and without disabilities, what was portrayed by NPR would by no means be considered an inclusive school. Students with disabilities placed in a separate basement class learning functional “survival” skills does not make for an inclusive experience. How can students with disabilities learn important “survival skills” such as communication, literacy, following typical
Inclusion – How it Works Best for This Autistic
As an autistic, I sometimes feel boxed in by the best practice strategy of inclusion. Please don’t get me wrong – inclusive education is a very good thing! Historically, people with disabilities were not given access to public education. Then, over time, laws changed. Today we have special ed classrooms in our schools and the progressive schools practice inclusion. Today’s Inclusive Education Inclusion means that all the students get to learn in the general ed environment. Instruction is differentiated while physical, sensory, emotional and every other need of each student is taken into consideration so that all students learn together,
Dan Habib: Disabling Segregation
Dan Habib's Tedx Talk on the importance of inclusion, belonging and disabling segregation. Habib is the creator of the award winning documentaries, Including Samuel, Who Cares About Kelsey, Restraint and Seclusion: Hear Our Stories, Thalia and other disability related subjects . Check out Dan's Tedx Talk on the benefits of inclusive education for students with and without disabilities. Picture yourself back in your grade school classroom. I don't care if it's elementary school, middle school, high school. Just put yourself back there for a second. Look around the classroom. Do you see any kids with and without disabilities studying together
Hillsborough County Public School Transportation Manager Resigns
John Franklin, the general manager of Hillsborough County's transportation department resigned April 22, 2014. Franklin became manager in 2007 and helped Hillsborough County Public School (HCPS) save millions of dollars by reorganizing the transportation department. HCPS employees have been speaking out about safety issues, low morale, directives not to document safety concerns and unfair treatment by the administration. John Franklin's deposition in the lawsuit brought by the family of 7 year old Isabella Hererra can be read here. Isabella died on January 26, 2012, a day after choking on a Hillsborough County School bus. Bella, a 7 year old student
More Than An Autism Diagnosis
I am an adult with autism. My thinking is visual rather than word-based. Autism gifts me with a literal and concrete way of thinking. My thoughts are all in full moving color. You can read about this and about my life in my book called Paper Words, Discovering and Living With My Autism. (Endow, 2009a) “Always, I have a front row seat to watch the show! Each color, with its infinite variety of hues and brightness, has its own movement patterns and sound combinations. Even though spoken words are the medium most often used by people to communicate with me, I
Musings from an Autism Outsider – Seeing the Full Spectrum
When I started writing about disabilities, I’d been working with disabled people for over fifteen years. I’d been in schools and agencies as the numbers of autistic people requiring support had started to rise. I’d heard the projections from the experts about how the numbers were going to continue to rise. And, in my most recent job, I’d had to tell several families with autistic teenagers that the agency for which I worked wouldn’t be able to support them, as we only supported individuals with intellectual disabilities. I knew that autism was a spectrum disorder. But I’d really only seen
Sesame Street, This is an Autistic Speaking
Sesame Street knew nobody was missing, or lacking, anything. I was perfect! Everyone is perfect! But in real life, as I grew older, doctors and teachers convinced everyone that I was too broken to be worthy of any effort toward education and a future. Nobody saw me the way I was seen by my friends at Sesame Street.
Parents – Acceptance Starts at Home
Parents, home is the single most important place for our children to feel accepted. We must embrace ALL of our children with love and acceptance for being exactly who they are. Home is the first place our kids learn about being accepted and accepting others. It is our responsibility and privilege as parents to create a nurturing environment where each child feels valued, safe, loved and whole. Our children are always listening and picking up on our feelings and attitudes. They're listening to how we speak to them, about them, and closely watching how we react to other people who
What Good Does Autism Awareness Do? It Doesn’t
I know most people want to do the right thing and believe “Autism Awareness” helps. But it doesn’t and it is time for some blunt truths, it is past time to stop walking in circles and move forward with Autism Acceptance.
Treat Others As THEY Want to Be Treated
I was taught to treat other people the way I want to be treated. This works out great when I am with autistic friends because we share an autistic neurology. It does not always work out well when I am with everyone else who populates this world from a neuro-majority place of being. Therefore, the onus has been on me to figure this out for myself. It has taken many decades, but I have finally worked it out in a way that allows me to live more comfortable in a world largely populated by folks who do not share my
#DearFutureMom Video Spreads Awesome Message From People with Down Syndrome
by Emily Ladau Have you seen this #DearFutureMom Video? We love it here at Ollibean and in honor of World Down Syndrome Day, we think it's definitely worth a moment of your time to watch. It's a great reminder of why people of all abilities must work together to celebrate and advocate for the rights, inclusion and well being of people with Down syndrome today and every day - because we are all people just the same.
“Sucking It Up” To Pass as Non-Autistic
Image description : Blue square with back text:"I look forward to autistics having everyday lives with things so many take for granted – going to school, being part of the community, having meaningful jobs with living wages along with meaningful relationships. Judy Endow on Ollibean It is a lot of work to look non-autistic, and yet, looking non-autistic is the ticket to sit at many tables. It is not right, and yet, I choose to expend a great deal of energy inhibiting my autistic ways for the sake of sitting at some of society’s tables. Employment is one such table.
Help Emily Ladau Win an Adapted Van
Hey guys, we need five minutes of your time. Disability rights advocate, Ollibean contributor, and all around awesome human, Emily Ladau is in a contest to win her first car. Emily recently had quite an adventure getting her driver's license and now she can legally drive! Emily's a wheelchair user and needs an adapted van and equipment which will cost around $70,000. Folks, please take a moment, read her story and vote daily so Emily can win the van she needs in order to drive. You can register to vote via e-mail, but be sure to check your spam folder for the password
Stop Combating Me – Why I Am Against Euthanasia
Today is “Stop Combating Me” flashblog. We are not the enemy but the way legislation is written puts us in real danger.
Being Disabled and in the Hospital
Being disabled and in hospitals is always scary because our lives is not valued as the lives of non-disabled. I was, in a way, lucky but the policies still need a lot of improvement.
Crossing Sign Conundrums
Over the course of my life I have seen many kinds of crossing signs. When I go to a college campus I drive past a wildlife sanctuary where a duck crossing sign is posted. Each spring mama ducks line up near their sign and lead their babies across the road while the cars waited. There were lots of ducks and some days the wait for motorists can be up to ten minutes. Every winter when I drive along a county highway to visit a friend I see a snowmobile crossing sign. A snowmobile trail is on one side of the
Kids’ Mobility Devices Just Got Cooler
A Fun Alternative to Children's Mobility Devices
Over 50, Autistic & Still Learning!
Yesterday I went to the Genius Bar at the Apple Store near my house with my laptop. It reminded me of just how far I have come in regards to technology in a few short years. It is hard to believe that I lived a half century on this planet before becoming versed in sending and receiving email! In 2005, my oldest, David, set up a Hotmail account for me and taught me how to do email. I had read an autism book and wanted to email the author. In a few months I had a few more people to
Who Cares About Kelsey? We do.
We first saw Who Cares About Kelsey ? at the National Center on Inclusive Education’s Summer Institute and instantly connected to the film's message of empowering students.
Autism, Accommodation, and Double Standards
There are some particularly insidious double standards at work here. It's time to put an end to them.
I’m Not the One Who Is Lost
I am thinking you will understand more when you see the feeling . The feeling on my side.
Love Not Fear
Love Not Fear. Henry Frost on Autism Acceptance Two Houses a story of Autism Acceptance. There are two houses. There are two boys that live in these houses. Each house inside has one family living. Each member of each family has different ways of being. House Number One One house has the family that tells the boy he is loved . The family is not a family without the boy. All of the family members are loved as they are. They are loved for being. The boy is loved as he is. He is educated. He is respected. He
Who Should Speak For The Disability Community? – Think Inclusive
In a recent post for Think Inclusive, self-advocate Emily Ladau explores the idea of advocate-allies who work with self-advocates towards disability rights. She emphasizes the importance of putting the voices of self-advocates at the forefront of disability advocacy movements: "Don’t get me wrong – allies, or what I refer to as advocate-allies, are incredibly important to advocacy efforts. “Ally” implies being supportive, while “advocate-ally” paints a more accurate picture of people who join in along with self-advocates. And true advocate-allies deserve the utmost respect. But a real advocate-ally is someone who doesn’t overshadow the voices and efforts of the people
Chalk Word Lines of Separation
Words are used in many ways Sometimes they are my friends Others sometimes use their words That sound like love and friend Extending from them To me But in reality These words only sound like love and friend But in the end the sound of them Does not ring true and good And is not of love and friend But instead these words draw lines Dividing Their group of US From my group of THEM Society says it is ok In fact it is perfectly fine And noble Even though self-serving Entirely acceptable To divide out those THEMs From USes
Love, Not Fear
Today is “Love, Not Fear” flashblog. We write about the beauty of being, living, sharing and experience Autism, an Autistic life.
Welcome to the Autistic Community
The Autistic Self Advocacy Network and the Autism Now Center have created "Welcome to the Autistic Community! " It is a must read for anyone who wants to learn about autism.
A Mother’s Open Letter To President Obama and Secretary Perez
February 10, 2014 President Barack Obama The White House 1600 Pennsylvania Avenue,NW Washington, DC 20500 The Honorable Thomas Perez Secretary of Labor U.S. Department of Labor 200 Constitution Ave.,NW Washington, DC 20210 Dear Mr President and Secretary Perez, Thank you for all that you are doing to ensure workers are paid fair wages with your upcoming executive order to increase the minimum wage to $10.10 for government contractors. I implore you to include workers with disabilities, workers currently making sub-minimum wages under the antiquated Fair Labor Standards Act, 14 (c), in this executive order. After the State of the Union address,
Is Your Child Learning How to Code?
We hope all kids are learning to code. If they aren't being taught programming skills in school, there are so many great sites that can help them get started today.
A Message to Suzanne Wright and Autism Speaks
I will soon write about posAutive messages but I had to write this first. I know my rights and I will fight against oppression at the same time that I spread the messages of acceptance and respect.
Assigned Friends Outcome
I was taught to say, “Thank you for being my friend.” So I say it. I was told to smile like I mean it. So I smile. I know I am supposed to feel grateful That you are my friend That you took the class On how to be a peer mentor to me – The good friends way – A pal for six weeks You have been defined You are a good person For giving up your spot At the popular kids’ lunch table To earn the community service hours You need for graduation By eating lunch with me,
Life for Lief ~ “See Me As Smart”
“Some people think that kids who are autistic can’t handle getting a transplant. Kids with autism can handle it.” Lief O'Neill
The Scarlet A: Why I Don’t Want My ID to Broadcast My Autism
A few days ago I read the article 'Law Allowing Autism to be Listed on IDs Moves Through Legislature'.
Walk In My Shoes
I want you to walk in my shoes Not because I want you to feel what it means To be disabled But because I want you to understand How it feels to be excluded I would like to see you walk in my shoes Not because I need your pity I don’t need it I don’t want it I want you to experience The uselessness of feeling pity for others Like me I would like to see you walk in my shoes And experience what I feel When my rights are denied When I am silenced Ignored Mocked Bullied Abused
Celebrate Ed Roberts Day 2014 with YO! DISABLED & PROUD
In 2014 YO! Disabled and Proud would like to honor Ed Roberts legacy by posting photos of you and Ed enjoying your independence together.
30 Second Message for Bullies
AAPD's PSA features three real students sharing a simple message: people with disabilities are powerful, self-determined individuals—not victims.
Judith Snow ~ Relationships & Inclusion
"The research shows that when a child who is not academically gifted is included in a regular school, not only do the academics improve across the school, and I did say that, I didn’t say “in the classroom”, I said “across the school”, not only do the academics improve, but drug use and violence goes down."
2014 Joint Letter to the Sponsors of Autism Speaks
January 6, 2014 To the Sponsors, Donors, and Supporters of Autism Speaks: We, the undersigned organizations representing the disability community, are writing to urge you to end your support for Autism Speaks. We profoundly appreciate your interest in supporting the autism and broader disability communities. Our work is about empowering and supporting people with all disabilities, including adults and children on the autism spectrum, to be recognized as equal citizens in our society and afforded all of the rights and opportunities that implies. Unfortunately, Autism Speaks’ statements and actions do damage to that work and to the lives of autistic
Are You a Bully in Sheep’s Clothing?
On Dec. 16, 2013 I wrote a blog titled “Autistics Can BE Friends” and posted the link on social media sites. Regardless of how often or how many of us autistics write about why many of us choose to call ourselves autistic many in academia and in the medical fields continue on to let us know we “should not” be doing this. I am including in this blog a public conversation I had with a Linked In reader on this matter. The entire conversation had nothing to do with the blog I had posted – only the fact that I
Hopes
I might be too optimistic for the reality, but I need HOPE to be able to keep demanding the rights taken away from me, just because I am me.
Doll Diversity Isn’t Just Child’s Play – Dolls with Disabilities
As a little girl, I had a doll collection that took over nearly every inch of toy storage space in my room. I loved them all, especially my two most prized dolls - a My Twinn Doll and a My American Girl Doll, both made to look "just like me." And there was a indeed a striking resemblance between me and the dolls. We had matching brown hair, brown eyes, glasses, and even a matching freckle above our lips. There's just one thing that didn't quite match: my dolls stood upright in their plastic doll stands while I sat in
Pro Infirmis Mannequins Video Shows Bodily Diversity is Beautiful
A trip to the mall bombards me with unattainable ideals of “perfection” everywhere I turn. Mannequins of one standard body shape and size taunt me in each store I enter, all of them wearing clothing that won’t look anything on me like it does on them. Their plastic bodies are tall and thin; I am less than 5 feet with more than my fair share of curves. They stand in casual poses; I am sitting in my wheelchair. To me, mannequins are not always inviting displays. Instead, they’re nothing more than sculptures of a supposedly idyllic body type that I
Remember
Between my activism and the end of the year celebrations, I want to make time to remember my brothers and sisters that can no longer smile.
“Weird & Wonderful”
'Weird and Wonderful", a feature-length documentary, tells the story of the disability rights movement from the late 1960s until today.
Ollibean and MyVoice Holiday Gift
‘Tis the season and we've teamed up with MyVoice for a special contest featuring TalkRocket Go or RocketKeys- two amazing communication aid apps for iPad, iPhone, and iPod touch. You choose the app that's right for you. To enter, simply subscribe to MyVoice Newsletter here . We will announce the winner on December 23rd. RocketKeys gives a voice to people with ALS, Aphasia, Autism, Brain Injury, Cerebral Palsy, MND, and Parkinson’s, using its customizable keyboards, accessible input, and sentence prediction. TalkRocket Go is the family-friendly communication aid that helps people with Autism, Cerebral Palsy, Stroke, Traumatic Brain Injury, Parkinson’s (and
Out of the Goodness of Your Heart
I have nothing against the goodness in the hearts of other people. However, I would like to explain how it feels to be on the receiving end when I am befriended out of the goodness of your heart. First of all this doesn’t a friendship make because authentic friendships are reciprocal. This means that giving and receiving go both ways. The benefits are mutual. When you befriend me out of the goodness of your heart - and then tell me so - I understand that you are assuming the role of a kind benevolent person while I am perceived as
Real Consequences
Autism Speaks has been hurting autistics for too long. We are fighting back and we are stronger. It is time to say things like they are. This post is because I feel offended by people defending hateful speech.
Helping the Poor and Disabled
Will your attitude draw circles of holiday meaningfulness where you include yourself in what already is or will your attitude draw lines that allow you to help those poor and disabled people on the other side?
Meet the Members of the 2013 National Council on Disability
The National Council on Disability works to further equal opportunity, self-sufficiency, independent living, inclusion and full integration of people with disabilities into the civic, social, and economic fabric of American life.
Supporting United States Ratification of the U.N. Convention on the Rights of Persons with Disabilities – Why Every Voice Counts!
CALLING ALL SENATORS .It’s time for the U.S. To take their seat at the table In support of global disability rights . RATIFY THE CRPD I have a confession to make: I can only vaguely recall skimming the e-mails that made their way to my inbox in late November and early December last year that called upon the disability community to contact their senators in support of U.S. ratification of the U.N. Convention on the Rights of Persons with Disabilities (CRPD). It's not that I didn't realize the importance; I just thought to myself "Oh, I should help.
A Typical Son’s mom on “the r-word” and Chuck Klosterman’s apology
Kari Wagner-Peck ,the author of A Typical Son blog, and twitter friend @atypicalson wrote a letter to find out why Chuck Klosterman , of the Ethicist used the r-word. Kari who is 'like Erma Bombeck - in that I write funny about the ordinary and not so much in that I am angry, I swear a lot, and we have a kid who has Down syndrome' wrote an eloquent, thoughtful letter to Klosterman , reached out to folks on twitter and used social media for social good. Pretty cool. You can read the response from Klosterman here,It's fabulous- CK, sincerely apologizes
All the people saw my intelligence. No test first.
My family saw. I had hopeful times . Tracy invited me home to Vermont to learn . I went to ICI to learn. All the people saw my intelligence . No test first. It was very free. I never had many people understand. To wait. To listen. Not outside home. I did not want to go back to people unknowing. I read more words from typers watching my movie to feel community. Full presentation here
This Is Autism by Amy Sequenzia
Today we are flashblogging to counter Autism Speaks’ wrong view of autism. We are showing what autism really is. We speak for ourselves, even if Autism Speaks refuses to listen. The rest of the world will.
This Is Autism by Henry Frost
Best place for all autistic people, all disabled not disabled people, all families to speak together. Speak together for acceptance, inclusion, communication, and rights for all people. I am thinking when you look closely, this is what autism is.
You are not wrong.
Know you are not a burden or trouble for being. You are a person who has every right to be. A family that is saying love but saying you are so hard so wrong for not being as they wanted. The family is wrong. Not You. A school segregating is wrong. Not You.There are many if the disability community that are here for you.
Inclusion, Communication and Civil Rights
"Learning is easy when the teacher knows you can learn. " Henry Frost
Jobless rate for disabled Americans still high 22 years after landmark law
Twenty-two years after passage of the landmark Americans with Disabilities Act, the employment rate for people with disabilities is still dismally low, and advocates want to change that. “The ADA … has made a difference in the lives of people with disabilities … but [for employment] the needle hasn’t moved,” says Helena Berger, executive vice president of the American Association of People with Disabilities in Washington.
I Am Disabled and I Am Proud
"Polite society often tells us that we need to take the 'dis' out of disability, but maybe... just maybe, we should spend some time putting it back in. Take the "dis" out of disability and you remove the core of what has shaped my life. Disability puts the "D" in diversity, but in order to make that a real difference we've got to own that spot. It took me 35 years to respect and honor that truth. Others shouldn't have to wait that long..." Lawrence Carter-Long
Creating Equal Opportunities For ALL Students to Participate in School Athletics
Educators should use the appropriate equipment properly to ensure that physical education programing for students with students with disabilities is safe, effective, and inclusive. EQUIPMENT Appropriate equipment can help children and youth with disabilities participate in appropriate physical activity. Athletic equipment might need to be modified for safe use by some children and youth with disabilities. For other students with disabilities, specialized equipment may be needed. Activities involving the use of modified or specialized equipment can replace other less safe activities. Treadmills, for example, are effective in providing predictable walking and running conditions, which can be necessary and appropriate for
Words for Autistics Speaking Day By Judy Endow
It isn't right that autistics are in the position of needing other people to allow us our place in this world. We need to be able to take our own ticket when others refuse to give it to us. It is wrong that we have to be dependent on the benevolence of others and at their whim to merely being granted permission to participate in everyday life on planet earth. People need to learn about inclusion. Autistics need to learn to steal tickets when others can't be depended upon - some teachers in schools I consult to still don't "believe
I ALREADY AM A HUMAN BEING
I do not know if you have ever thought of it this way, but it is a step up that today autistics have the opportunity extended to prove themselves human. As bad as that is and wrong in ever so many ways it is a step up from 50 years ago when I was a kid and we were not even given any chances to try to convince anybody of our worthiness as a human being much less our intelligence. It is all so wrong and such a slow moving shift it is sometimes difficult to remain positive. This past
Autistics Speaking Day – My Fingers Speak
Today is Autistics Speaking Day, a day to remind the world that we actually speak every day, even if we do it with our fingers.
Dr. Caroline Musselwhite Shares Strategies to Promote Literacy for ALL
Dr. Caroline Musselwhite addresses the topic of overall good literacy instruction. She presents information about how to teach students with significant disabilities using fairly common literacy instruction strategies. There are 11 short video posts to help you get started. She discusses the issues of AAC and suggests strategies that are easy to implement and highly effective. Keep Calm and Watch On…
How It Helps
I wrote about Presumption of Competence before, and how it is important for all of us. This time I write about how it feels and how my life changed because I was assumed to be competent.
From “Severe and Low Functioning” to “Kind of a Big Deal”
Some people consider it so abhorrent to entertain the possibility of having a child with autism they are willing to do a sperm screening that allows doctors to selectively choose only sperm that will produce female children to impregnate the mother. Since there are currently four times as many autistic boys than autistic girls the thinking is that only allowing sperm that will result in girl babies at least reduces the risk of autism. Read the article Baby Sex Checks here. There are ever so many areas to address in this article and others have done so here , and here, but
Closed Captioning Helps All Students
"Not only were students talking about how much having the captions helped them as they took notes, their test scores went up," Collins said. During the first year of a 2-year case study, he showed videos without captions to establish a baseline of student comprehension, then in the second year turned on the captions and began to see improvement in comprehension and grades. "During the baseline year, there were a lot of Cs. In the second years, they went from Cs, Ds and Fs to As, Bs and Cs. It was really significant improvement," he said. "We're living in an
14 Year Old Advocates for His Civil Rights
My name is Christian Ranieri and I am a 9th Grader at Northport High School. You should know that I have a developmental disability called Autism. I have come a long way in life as I could not talk in the beginning but now I am able to express my message to you in words. When I was 5 I cried a lot and would throw myself on the floor when I got frustrated. I am proud to say that now I can speak clearly and to the best of my ability try to deal with my frustration in words.
American Society for Deaf Children
We believe deaf or hard-of-hearing children are entitled to full communication access in their home, school, and community. We also believe that language development, respect for the Deaf, and access to deaf and hard-of-hearing role models are important to assure optimal intellectual, social, and emotional development. We believe that consideration of communication opportunities for deaf and hard-of-hearing children should be based on facts. Research consistently demonstrates that fluency in sign language and English offers deaf children (including those with cochlear implants) and hard-of-hearing children optimal opportunities for social and academic success, and thus both should be part of their language-rich
Open Letter To Jon Stewart
When I met Jon Stewart I was very disappointed by his lack of knowledge and sensitivity toward autism. During a recent interview, while still a bit condescending, his views seem to have evolved. This is my open letter to him.
Autistic Aloha
Amazing resource we love- Autistic Aloha!
Don’t Mix Up Empathy and Civil Rights
Many times in the autism community parents of autistic children do not like autistic adults weighing in on situations that have to do with their autistic children. I am an autistic adult and often have parents telling me that I should not judge situations if I have not lived it – the “until-you-walk-a-mile-in-their-shoes” is told to me nearly every week as I post the latest news articles along with my comments on social media.
Inclusion: The Right Thing for All Students – WNYC
We have reached the tipping point where it is no longer educationally or morally defensible to continue to segregate students with disabilities. We shouldn’t be striving to educate children in the least restrictive environment but rather in the most inclusive one.
Putting Education First by That Crazy Crippled Chick
"First, we must ensure that all children, including and especially those with disabilities, receive a quality education. Inclusion means nothing if a child is not receiving a good education, which is, in fact, the very reason we have schools in the first place. " Cara Liebowitz
Disability Activist Keith Jones on Community
"So let us remember that when we teach, when we educate, we make policy, we make decisions that we do it with a conscience and that we remember that we are leaving fingerprints on forever." Keith Jones
Who Cares About Kelsey
Kelsey Carroll lived with homelessness, self-mutilation, abuse and ADHD. She was a likely high school dropout — until she encountered an education revolution that’s about empowering, not overpowering, teens with emotional and behavioral disabilities. Kelsey’s story, a story of trying to be seen for her potential rather than her past behavior.
Sign Language Researchers Broaden Science Lexicon
Imagine trying to learn biology without ever using the word “organism.” Or studying to become a botanist when the only way of referring to photosynthesis is to spell the word out, letter by painstaking letter. For deaf students, this game of scientific Password has long been the daily classroom and laboratory experience. Words like “organism” and “photosynthesis” — to say nothing of more obscure and harder-to-spell terms — have no single widely accepted equivalent in sign language. This means that deaf students and their teachers and interpreters must improvise, making it that much harder for the students to excel in
How AAC and assistive tech make classrooms better for all : Paula Kluth
In 2009, I published an article in The Reading Teacher with my colleague, Kelly Chander-Olcott, titled “Why Everyone Benefits from Including Students with Autism in Literacy Classrooms”. One of the points we make in the article is that students with disabilities often bring assistive technology and augmentative communication into classrooms and, therefore, make them richer places to learn. Students with and without disabilities who are in classrooms that use AT and AAC regularly and creatively not only may get access to unique materials, but also get to learn about learning itself. They may be able to generate ideas for using
Rion Paige on X Factor
Rion Paige blew everyone away at the "X Factor" audition. This beautiful, charismatic 13 year old has an absolutely incredible voice and exudes such confidence and poise it’s hard to believe she ‘s only 13. Rion has arthogryposis multiplex congenta which causes joint contractures and vision loss. Rion spoke about her audition on the "X Factor", “Ever since I was little I‘d just try to find a way to get to a microphone, put it in between my knees and try to get it in my foot, put it in my mouth. But sometimes I just get really frustrated whenever
The AbleGamers Foundation
The AbleGamers Foundation, also known as AbleGamers Charity, is a 501(C)(3) nonprofit public charity that aims to improve the overall quality of life for those with disabilities through the power of video games.Video games allow individuals with disabilities to experience situations that may be difficult or limited in the real world, provide social networking opportunities to maintain mental and emotional health, and participate in one of the world’s largest pastimes. With a three-step approach, AbleGamers works and advocates on behalf of the disability community to increase the accessibility of video games and to achieve further inclusion by those who need
11 Year Old Jacob On The Right Thing To DO
I said a long time ago that I would not only be an real student In a school that supports me but also a self advocate for those lost in segregated settings echoing the dreaded lives of people in the world that are like me without the right supports.
I am a person.
Ask me. Don't prompt me. Talk to me. Don't prompt me. Have courage.
Issy Stapleton: Emergency Information and Autistic Community Response
Emergency information is on here, followed by commentary. Emergency information for disabled victims is first, since they are in the most immediate danger. Unfortunately, many disabled victims of violence are at the mercy of their would-be-killers. Emergency information for people who are concerned that they might murder or otherwise injure a disabled person follows. Some links are en español. Read More Here.
Dear Issy
You don't know me but I have seen your pictures. You don't know me but I know parts of your story. Soon you will wake up and a lot will have changed. You will be in a hospital because your mother did something terrible to you. I know you love your mom and things are going to be very confusing because people are going to say things that will not make sense. And you will not be able to see or talk to your mom. This is a good thing, and you will understand it later. But I don’t want
Again, We Mourn
My soul hurts and I am naming names. And I am saying, if you have a drop of sympathy for the murderers, or almost murderers, you have blood on your hands too.
5 Ways to Elicit Language from PrAACtical AAC
PrAACtical Suggestions: 5 Ways to Elicit Language Without Asking a Direct Question SLPs love to talk, of course, but sometimes that works against us. Over-prompting. Jumping in to repeat the last question. Re-phrasing the previous comment. Nature abhors a vacuum and sometimes we just can’t stop ourselves.
Modeling, AAC Style
Modeling AAC Style - This is a strategy that is too powerful to ignore! Here’s why Aided Language Input is at the top of our list of skills that all clinicians should master: 1. It expands our sphere of influence 2. Other communication partners will imitate us. 3. If WE use it, then parents and teachers are more likely to as well.
Judith Snow
Judith Snow, MA is a social innovator and an advocate for Inclusion – communities that welcome the participation of a wide diversity of people. Inclusion is an opportunity for EVERYONE!
The Reality Behind Those Walls
The Judge Rotenberg Center is recruiting disabled students in the Midwest to be legally tortured with electric shocks. Help us stop this inhumane treatment of disabled people.
The Power of Presuming Competence
"Thasya", a mini film by Dan Habib, highlights the power of presuming competence, differentiated instruction and augmentative and alternative communication. Inclusion works.
Transforming Education to Benefit ALL Students
As part of a 5-year, $24.5 million grant awarded by the U.S. DOE , the SWIFT Center was founded to assist districts and their schools to engage in a transformational process, in order to achieve equity and excellence for all students. Research has demonstrated that inclusive education significantly improves academic and behavior outcomes for all children.
Thank You, Ed Roberts
"And we’re going to develop leadership, that has a fundamental difference and that is, it's inclusive . It believes in people, and in our strengths together . And we are going to change our society. " Ed Roberts
Intersection of Law, Education and Civil Rights
As a deaf-blind student with very limited sight and hearing, Haben Girma '13 learned that you must be a self-advocate and come up with creative solutions to the problems you face. If that fails, she says, then the law can be a strong ally.
We Are Not In Our Own World
We need to be careful about how we think about and talk about people with disabilities. One example is the reference that those who are autistic or deaf or blind or have some sort of movement differences are “in their own world.”
I Fall and I Rise Again
My life is in constant motion So different from a few years ago Back then I could not easily climb The wobbly ladders put in front of me I would rise and immediately fall Today I fall, I fall and I rise again The wobbly ladder still there I found my way around it I see words guiding my way I find hands that support my journey No longer I rise and fall I fall and I rise again My life like the ladder Not always in firm ground But friends won't let me down They will reach out and
Man with Down Syndrome owns “The World’s Friendliest Restaurant”
Tim Harris has a great deal to be proud of. "Tim The Man" to those who know him, he's accomplished more in his 27 years than some people accomplish in an entire lifetime. A Special Olympian, he has dozens of gold medals. He's lived on a sailboat and is well-known in the Bahamas as an excellent sailor and fisherman. He graduated from Eastern New Mexico University in 2008 with certificates in food service, office skills, and restaurant hosting. He's now living independently, and really enjoying the fact that he can walk to work - the restaurant that he owns is
EveryBody: An Artifact History of Disability in America
The Smithsonian's Web exhibit of the history of people with disabilities in America shown through photos.
Being Where I Can Simply Be
After a three-day conference, I needed to sleep. I needed to sleep because I was dreamy, trying to keep the feeling of being in a place where I can be myself and also be a little bit like a star. Also, building community.
Senator Harkin Delivers Speech in ASL Upon ADA Passage in 1990
Upon passage of the landmark Americans with Disabilities Act (ADA) on July 13th, 1990, Senator Tom Harkin delivered a speech on the Senate floor in American Sign Language. Harkin, whose brother Frank was deaf, was the lead Senate author of the ADA, which was enacted later that year. His speech is the first in American Sign Language to be delivered from the Senate floor.
Deaf Parent Advocates for Communication Supports She Received from Same School 40 Years Ago
Deaf mother goes before Hillsborough County School District Board to advocate for son's necessary services. The 8th largest school district in the country has an operating budget of $ 3 billion. Despite being notified in advance of her attendance, the district was unable to provide any access .
National Disability Leadership Alliance (NDLA)
National Disability Leadership Alliance (NDLA) is a national cross-disability coalition that represents the authentic voice of people with disabilities. NDLA is led by 14 national organizations run by people with disabilities with identifiable grassroots constituencies around the country. The NDLA steering committee includes: ADAPT, the American Association of People with Disabilities, the American Council of the Blind, the Association of Programs for Rural Independent Living, the Autistic Self Advocacy Network, the Hearing Loss Association of America, Little People of America, the National Association of the Deaf, the National Coalition for Mental Health Recovery, the National Council on Independent Living, the
Resource : Yes, That Too
Resource we love- "Yes, That Too" !
ADAPT
ADAPT is a national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom. The ADAPT Youth Summit will take place on in Chicago, Illinois. We are training young people with disabilities on direct action and nonviolent civil disobedience. If you are interested in supporting this year’s event or participating in next year’s group, please email Josue at adaptyouthsummit@yahoo.com.
J.Cole Writes Apology Letter to Autism Speaks
J.Cole offended many over the lyrics "I’m artistic, you is autistic, retarded" in his Jodeci Freestyle rap number. He was called on this. The Anti-Bullying Alliance created a petition and asked for a formal apology from each rapper, as well as the offending words be removed from the song. Read the original article and letter on Complex Music here http://www.complex.com/music/2013/07/jcole-writes-apology-letter-autism-speaks. Kuddos to J.Cole for writing an apology letter that sounds sincere. The disheartening thing about his letter is that it is addressed to Autism Speaks. J. Cole offended autistic people, not an organization – in this case an organization that
Senator’s Call for Transition Action Plan An Excellent Idea
Democrat Senator Robert Menendez of New Jersey has introduced a bill focused on transition services for students with developmental disabilities who are transitioning to post-high school life. The legislation, known as the Assistance in Gaining Experience, Independence and Navigation Act of 2013, or the AGE-IN Act, calls for: - Funding for research to determination the best ways to support students with developmental disabilities who are about to leave school. - Creation of a nation strategic plan focused on transition planning for students with developmental disabilities. - Grants to train "transition navigators" to assist students with developmental disabilities to plan for
Disabilty and Civil Rights: Standing On the Right Side of History
"If we were to go back to the 1960s and we were to talk to those leaders who were vehemently against desegregation, we would hear the conviction in their voices of them stating why they believe their decisions and what they were doing to those children were just. Just as I believe that some of you and some of the board members that have spoken believe that their decisions are just. But, I fear that the Hillsborough County School Board is standing on the wrong side of history."
Inclusion is a right not a privilege.
Inclusion is not only socially just, but research shows it improves academic outcomes for all students.
I Am Here To Make A Difference For My People
"I am here to make a difference for my people. I hope that you listen to what I have to say. I want people like you to stop judging me." Tres Whitlock
Sensory Tool Kit or Purse ?
Notebooks, silly putty, colored pencils, a favorite book.. I did many of these suggestions with all three of my kids when they were little. A mom carries around ever so many things in her purse to entertain kids in public places. However, if the kid has been diagnosed with autism you call all the junk in your purse a sensory tool kit. The difference here is if the kid is not on the spectrum it is a nice diversion and helps keep him better behaved. If the kid is on the spectrum the regulation offered by the stuff in your purse is
Seattle Children’s Hospital Pulls Bus Ads After Community Outrage
“Autism is a disability, but it is not a disease. It is not a life-threatening illness,” said Matt Young, co-leader of ASAN-WA. “The idea it’s a state to be wiped out has much negative impact on our lives.”
Advocacy Groups Call for Autistic Teen’s Killers to Be Charged With Hate Crime
How does it make you feel when you hear a story about a mother killing her child? Does hearing that the child had a disability change how you feel? For some people, it does. It changes how they feel enough so that they'll start speaking as if they support the parent's actions, citing unbearable stress and lack of supports and not being able to take the pain to see of seeing a child with disabilities in pain. We heard the media and public talk about this in Canada when Robert Latimer put his 12-year-old daughter Tracy, who had cerebral palsy,
The Presumption of Competence
Presumption of competence is more than an abstract idea. It has real and concrete effects. Here is one: it is better than a makeover.
Ollibean Spotlight: Renee Salas
" Talk to people with disabilities. As many as you can: Adults, adolescents, kids. These people are the real experts on disabilities. These are the people that can tell you what life with a disability is like." Renee Salas
Much Needed Resource: “We Are Like Your Child”
"We are like your child. Your child is like us. And we may have difficulties, we are disabled--but there is no denying that we are also awesome."
Because I Stood With Henry
Because I stood with Henry I am happier today and you should too. Henry not only got his rights, he proved that presumption of competence should be the default for every student.
The Autistic Self Advocacy Network
The Autistic Self Advocacy Network is a 501(c)(3) nonprofit organization run by and for Autistic people.
Thinking Person’s Guide to Autism
We love Thinking Person's Guide to Autism, a community of autistics, professionals, and parents sharing what you need to know about autism.
Untitled
This is not directed at anyone in particular. It is about several people I’ve met throughout my life. I sometimes need to remind myself that being me means following my own agenda and not pleasing the ones who will not be part of my story.
AAC Helps Learners with Complex Communication Needs Reach Their Full Potential
" A lot of these kids end up not reaching their full potential because they suffer from low expectations. People think they don't speak well, so we shouldn't have them in the regular classroom, but a lot of the kids I work with, they're cognitively fine. They're perfectly capable. They just need a viable means of communication to really help them through that." Cathy Binger
America, the CPRD, and the Global Plight of Disabled Children
A new United Nations report, "The State of the World's Children", finds that children with disabilities are the least likely to receive health care or go to school and are among the most vulnerable to violence, abuse and neglect. With the most recent data available suggesting that 1 in 20 children aged 14 or younger (approximately 93 000 000) has a disability. it's clear that we're in the middle of a child welfare crisis. Not so, according to United States Senators who failed to ratify a United Nations convention designed to ban discrimination on the basis of disability and to
Not Impossible: The Story of Daniel
Five years ago (next month) our severely autistic son Daniel had a major breakthrough. This whole world is new to him: standards, peers, comradeship and competition.
Stop Hurting Kids
Join the Stop Hurting Kids campaign to end restraint and seclusion abuse in schools.The easiest way to make a meaningful contribution is to take a stand.
Sarah Hendren Gives Familiar Symbol a New Look
Most people recognize the international symbol for disability: the stick figure seated in a partial circle, drawn in white on a blue background. Many feel that the symbol, which has come to be known as the International Wheelchair Icon, or the International Sign of Access needs a redesign. In 2011, Cambridge, Massachusetts resident Sarah Hendren decided to take on the challenge. “The figure is static, wooden, with the squared-off geometry of machinery. The body is synonymous with the chair,’’ she told The Boston Globe of the current access sign. She also talked about wanting her design to explore ideas of who is
Ariane Zurcher: Non-Speaking Autistic Woman Writes Book
Barb Rentenbach's funny, poignant and beautiful must-read book, I Might Be You: An Exploration of Autism and Connection, is now available as an audiobook.
Hi @KatieCouric I am #autistic & would like to talk to you about #inclusion, #communication & #civilrights #KatieAutismChat
Katie Couric will have a Twitter Chat with Autism Speaks on Wednesday May 29th at 1pm EST . Autistic people should be in the chat. hashtag #KatieAutismChat. This is my message. Hi @katiecouric I am #autistic & would like to talk to you about #inclusion, #communication & #civilrights #KatieAutismChat .
PrAACtical AAC | Presuming Competence and Using The Least Dangerous Assumption
PrAACtical AAC's latest post on the importance of presuming competence.
Amy Sequenzia: Does it matter?
Should it matter that some of us are labeled intellectually disabled? Read the definitions, look at us in a realistic way and ask yourself; Does it matter? Aren’t we all worthy?
Autistic Hoya: Ordinary Lives
When I demand equal access, equal opportunity, equal rights, I'm not insisting on my superiority, innate or acquired. I don't want special treatment. I want to see the removal of cultural paradigms about what types of bodies and minds should be valued and what types of bodies and minds should be deigned for marginalization. I don't want a world that advantages me over you. I want a world where oppressive systems that ultimately hurt everyone have been overcome, dismantled.
Believing in Your Child and Why It Matters
"No one affects a child's day, dreams and future like a mother. Of course we are never perfect, but perfect is never the goal." Tonya Whitlock
Donna Posont’s “Birding-By-Ear” Course Allows Blind People to “See The Unseen”
Donna Posont is living proof that you don't have to be able to see well to go bird-watching. Donna Posont is a field guide in Michigan who leads a group of blind birdwatchers and helps them recognize birds through sound. / CBS News The Field Services Director for Opportunities Unlimited for the Blind, Donna Posont runs a "birding by ear" class in Dearborn, Michigan for people who are blind or who have low vision. Instruction begins inside, where participants memorize bird calls through learning words that have been assigned to birds' chirps and screeches. Armed with a repertoire of bird
2013 Top Ten Signs of Special Ed Advocate Burn Out
Subtitle: Why you may need a trip to a COPAA conference to relax. 1. You thought the OSEP’s MOU on NCLB’s AYP came from CDC and was about another STD. 2. You are were actually able to follow #1. 3. You asked the Advocate Committee to research OCR guidanc
Mother
This is for every person who embodies the meaning of motherhood. This is for the ones who nurture and protect, who never consider their lives more important than the lives of the ones being nourished, educated, protected and loved.
Everyone Communicates
One of our favorite resources for all things AAC!
Families of SMA Awards $150,000 to Investigate New Antisense Therapies for Spinal Muscular Atrophy
Families of SMA is dedicated to creating a treatment and cure for Spinal Muscular Atrophy (SMA) by funding and advancing a comprehensive research program, including drug discovery programs to make practical new therapies. This is the third drug discovery project awarded by Families of SMA in 2013 with a total investment of $400,000. This program will assess the therapeutic potential of second-generation Antisense Oligonucleotides (ASO) sequences for SMA. This funding is being awarded to Co-Principal Investigators Dr. Arthur Burghes at Ohio State University and Dr. Christian Lorson at University of Missouri. Program Description: New Morpholino Antisense Oligonucleotides for the Treatment
Free Your Mind and the Rest Will Follow
Awesome ASL version of En Vogue's 'Free Your Mind'. "Before you can see me you've got to learn how to read me. Free your mind and the rest will follow."
ASL Video “I Knew You Were Trouble”
Great ASL translation of Taylor Swift's song!
Childhood Disability Rate Jumps Over 16% in Last Decade
According to findings presented at the Pediatric Academic Societies annual meeting, the prevalence of disability in children has jumped more than 16 percent in 10 years. The reason for this rise in disability prevalence is unclear, although, according to Disability Scoop, researchers believe it’s due to “increased diagnosis of neurodevelopmental and mental health conditions.” Researchers identified the rise in disability prevalence by comparing data from the National Health Interview Survey collected in 2009-2010 to those collected in 2001-2002. The National Health Interview Survey, conducted by the U.S. Centers for Disease Control and Prevention, is a poll of more than 100,000
Ostracized for Autism
"The reason for this article is to spread awareness about why people shouldn't believe everything they see or hear from powerful people and companies. Respecting authority is great, but believing everything they say may make you a brainwashed, horrible person. Also, this article was written to remind people to treat others how they'd like to be treated, and not act cold to them regardless of how different they are."
Joey Furlong, hospitalized fourth-grader asked to take a standardized test, becomes a symbol in high-stakes testing battle
News that a fourth-grader in the hospital for severe epilepsy was asked to take a standardized test has angered parents and galvanized the anti-standardized testing crowd. As reported in The Washington Post , Joey Furlong was lying in a hospital bed, hoo
Yoga , Naturally Inclusive
Ryan McGraw is a 30-year-old yoga teacher who has cerebral palsy. He doesn't fit the mold, which is fine, because he's molding yoga routines to fit his needs.
National Center on Health, Physical Activity and Disability
Great resource promoting increased participation in physical activity among people of all abilities.
Abuse of Children with Intellectual Disabilities
Children with disabilities of any kind are not identified in crime statistic systems in the U.S., making it difficult to determine their risk for abuse (Sullivan, 2003). A number of weak and small-scale studies found that children with all types of disab
Game Changer: Florida Senate Unanimously Passes Special Education Bill
The Florida Senate unanimously passed Bill 1108 on April 29th.
I celebrate 1000 Ausome Things #AutismPositivity2013
People are ausome. Every kind of ausome. just look. you will see.
Autistic Teen Uses Tech to Break Silence
A brilliant 16-year-old boy who has autism is breaking through his silence and making people realize what autistic kids can do. Ido Kedar has difficulty controlling his body, and he cannot talk.
Some special education teachers fear losing jobs
ATLANTA (AP) — Some Atlanta special education teachers say they fear they could lose their jobs if they aren't certified to teach in another subject. Keith Butler helps special education students with math in an Atlanta high school. He said teachers are
Dave Jacka: Up, Up and Away!
Dave Jacka just began his quest to become the first quadriplegic to fly solo around Australia. Family and friends saw the 44-year-old Fairfield resident off from the airport in Tooradin, Australia on April 28. A wheelchair user since a car accident 25 years ago, Jacka only has a small amount of control of his shoulder, wrist and bicep. He never gave up on his childhood dream of learning to fly, however, starting lessons with a pilot in 2006. He controls the plane by sucking and blowing into a tube, and makes use of enlarged switches and levers in a modified
Emma’s Hope Book: Accepting Ourselves So We Can Accept Others
Beautiful post from Ariane Zurcher.
Law Would Give Parents Final Say About Special Diploma Track
A proposed law moving quickly through the Legislature would give parents of kids receiving special education services the final say about their child’s placement on a special diploma track.
Shouldn’t New Disability Awareness Course Be Mandatory for Police?
Kudos to New York State for making train-the-trainer disability sensitivity training available to its law enforcement officers as of April 2013, with the stipulation that police officers that take the course must take it back to their respective police agencies. But why not make the training mandatory instead of just "available"? The First Responders Disability Awareness Training Course augments the very basic curriculum in disability sensitivity offered to New York state police officers as part of their core training: 14 hours on mental illness, but only two on autism, Alzheimer’s disease, and blindness and deafness , and none on intellectual
Neurodiversity in the Classroom: Strength-Based Strategies t – Apr 29,2013
A new concept on human diversity has emerged over the past 10 years that promises to revolutionize the way educators provide services to students with special needs: neurodiversity. Just as we celebrate diversity in nature
Insight into Inclusion: The Language we Use
How do we help our children or students who are perpetually losing things, often running late and seem completely disorganized? Do we re... Teachers love a great resource! Especially a resource that is free and at their fingertips - literally. That's why
Lawsuit alleges school bus aide slapped autistic boy
A north suburban special education school bus aide slapped an autistic student who cannot speak, according to a lawsuit filed by the boy’s mother, who claims she uncovered the alleged abuse after putting a recording device in her son’s backpack. Nabiha Z
Stanford Scientists Demonstrate Brain’s Capacity to Change in Response to Education
"No one is born with the innate ability to recognize numerals."
Boston Marathoners Rick and Dick Hoyt
“We just have to move forward,” said Dick. “We can’t let something like this stop us.”
“The Story of Luke” Brings Autism to the Big Screen
But my question is, where are autistic people in the creation of the movie and the movie itself? The representation of autism and disability in film should include the actual voices of autistic people.
Listen Up
Listen Up! the PSA from the Autistic Self Advocacy Network and Autism Acceptance Month has been released!
Wal-Mart Sued for Sexual Harassment & Retaliation of Employee with Developmental Disability
Wal-Mart Stores East, L.P. violated federal law by allowing a male employee at an Akron Walmart store to subject a developmentally disabled female co-worker to sexually inappropriate conduct and then retaliating against her for her opposition
Autistic Hoya: Fighting ableism with ableism doesn’t work
Fighting ableism with ableism doesn't work. In fact, it's just bad policy. Yet that's precisely the tactic that Disability Scoop, "the premier source for developmental disability news," decided to use in its criticism of the latest episode of Glee, in wh
Must Have Autism E-book
Great e-book for Autism Acceptance Month !
Autism Acceptance- All Created Equal
John Hussman on the MCIE Blog. "And then love them back. Not for who they might have been without autism, or for who they might be if they were “cured,” but as people who need to be nothing other than who they are, to be loved and accepted."
A Generational Shift in Understanding Life With Down Syndrome
"You cannot know if someone else's life is worth living without asking them and without even knowing them."
Autism Acceptance Month
"Acceptance is an action." Autism Acceptance Month from the brilliant folks at ASAN, is beyond incredible. We could read the About page again and again- and probably will. Check it out. Take the Pledge. What is Autism Acceptance Month? Autism Acceptance Month is about challenging ignorance, prejudice, fear, and hysteria about autism and autistic people. Autism Acceptance Month spreads the word that autism is both a neurological disability and a natural part of human diversity, and centers the voices of autistic people in the conversation about us. Autism Acceptance Month promotes acceptance of autistic people as family members, sons, daughters, spouses, friends, classmates, co-workers,
Pain in My Brain
The one thing in my life I would like to cure.
Disabled surfers brave the waves in Brazil
Renata Glasner doing her thing in Brazil.
Reason # 202 Why You Should Come to See Wretches & Jabberers Next Weekend..
The incredible soundtrack. J. Ralph, recently nominated for an Academy Award for his song, Before My Time, for the documentary Chasing Ice, composed and performed the songs in this incredible documentary, He is joined by some of the most talented folks in music.
What Reading Self-Advocate Blogs Does
You can have hope.
Boys & Girls Clubs of Tampa Bay Stand Up for Inclusion
Presented and discussed will be the importance of inclusion and friendship for youth with disabilities. The cast and of the acclaimed feature documentary, Wretches & Jabberers will be joined by The National Center on Inclusive Education’s Mary Schuh, PhD, and Tampa advocate, 13 year old, Henry Frost.
Deaf, Blind Sue Over Web Shopping
Anne Taylor uses a Google Nexus 7 tablet at the National Federation of the Blind in Baltimore. Commerce has moved online. Now, the disability lawsuits are following. Advocates for disabled Americans have declared that companies have a legal obligation to
School Says, “No Advanced Classes for Kids with IEPs”
My child has a learning disability. Her teachers want her to enroll in advanced classes. She is eligible based on her test scores and school performance. The School will not let her enroll her because she has an Individualized Education Plan (IEP). What
April and Autism Acceptance at Tampa Theatre
Get your advocacy on. April and Autism Acceptance is in Tampa. The rock stars of disability advocacy- Tracy Thresher and Larry Bissonnette- are back.
Why did Robert Ethan Saylor die?
Where is the public outrage over the death of Robert Ethan Saylor , killed in January while being taken into police custody in Frederick for the crimes of petty larceny and, perhaps, disorderly conduct? Saylor, 26, had Down syndrome, a genetic defect tha
How to talk to a hearing impaired person? Don’t shout
First rule: Look at the hearing-impaired person when you speak.
Need for culturally sensitive treatment for deaf patients with psychiatric disorders
Members of the Deaf community who have mental health problems need culturally sensitive treatment to avoid misdiagnosis and inappropriate treatment, according to a report in the March Journal of Psychiatric Practice. The journal is published by Li
Lawsuit charges Ed Department with violating student privacy rights
The U.S. Education Department is being sued by a nonprofit organization for promoting regulations that are alleged to undercut student privacy and parental consent. The rules allow third parties, including private companies and foundations
Great Resource: Musings of an Aspie
who and what some things about me was 42 when I discovered that I have Asperger’s Syndrome. When I visit the zoo, I always leave thinking that maybe I was a primatologist in another life. Or a monkey. I’ve been my own boss since I was 18. Statistics fascinate me. I own three pairs of running shoes and no dress shoes. Somehow I managed to find the one person in 7 billion who understands me and marry him. And stay married for 25 years. The single most frequent response I got from professors: “I never thought of it that way.” Usually
Tiny Grace Notes: Open Heartedness
Because I am a person who prepares special ed teachers and doc students for a living, I meet a lot of people, and a lot of them are parents of kids, and a lot of the kids these parents have are kids with autism. I get to know them over time, and see the wonderful work they do as pre-service teachers, and often keep in touch with what they are doing after they graduate. These are good and loving people, dedicated to life-long learning. This is my general background knowledge of other people’s parents. This is hundreds or maybe by now a thousand-odd of
Child Positive Impact:The Disability-Culture Connection
This study examined mothers' perceptions of the positive impact of having a child with an intellectual disability. Trajectories of positive impact from 7 time points were developed using latent growth modeling and 2 predictors: culture (Anglo, Latino) and child disability status (intellectual disability, typical development). Data were from 219 mothers of children from age 3 to 9 years. Growth trajectories reflected a general decline in positive impact on Anglo mothers. On average, at age 3, Anglo mothers reported significantly lower initial values on positive impact when their children had an intellectual disability, but Latino mothers did not. Across all time points, Latino
Retention is Not a Form of “Specialized Instruction”
The school wanted to retain my son who has an IEP for OT, PT and Speech. They insisted he repeat second grade. I disagreed. Now in third grade, his teachers want to send him back to second grade. They say his writing is not on par with a “normal” third g
What’s the Difference between Reduction in Homework and Shortened Assignments?
By Kori Hamilton and Elizabeth Kessler, professional special educator and NICHCY advisor. Being able to provide ample opportunities for success to all students requires a clear understanding of the needs of each individual student. Every student has a unique learning style, and some students require more help than others. Students who receive special education services have a plan in place to identify the type of support(s) that’s needed. One type of support is an accommodation, which is a change that helps a student overcome or work around the disability. A modification, which is a change in what is being taught
People With Locked-In Syndrome Happier Than We Assumed
Locked-in syndrome leaves people awake and aware, but unlikely able to move or talk. But does it leave them unhappy? The largest study of locked-in syndrome to date says, "Not necessarily." Locked-in syndrome is caused by major brain injury, often from some sort of accident. People that have locked-in syndrome are usually totally paralyzed and move their eyes to communicate. It sounds like a very difficult existence, but a "surprising number" of people in the study reported being happy in spite of their disabilities. Researcher Dr. Steven Laureys of Belgium's University of Liege and his colleagues sent a survey to
Sexual Assault and Ableism in Martin de Porres Academy
K.J. told police that she said "No" and "Stop" when the three ninth grade boys sexually assaulted her. She had to be physically assaulted to keep from escaping. But, because K.J. and her attackers were labeled with IQs below 50 the sex is considered "consensual".
Top 25 Pinterest Boards for Education
Check out these Pinterest boards for education!
The Reality Is Not What We Think
Shocking infographic on the wealth distribution in America.
10-year edition of ‘Riding the Bus’ comes subtler understanding of intellectual disability
Rachel Simon knew that having a sibling who has a serious intellectual disability had changed her life. But she had no idea that writing a book about the experience would change her life again. Recalling those early days, Simon says, “I allowed myself on
‘Switched at Birth’ Goes Silent to Make a Point
"Until hearing people walk a day in our shoes, they will never understand," says a guidance counselor a high school for deaf students in "Switched at Birth."
Autistic People Are
Autistic people are people. Autistic people are complex. Autistic people are happy. Autistic people are kind. Autistic people are accepting. Autistic people are helpful. Autistic people are mentors. Autistic people are doctors. Autistic people are engineers. Autistic people are writers. Autistic people are leaders. Autistic people are accountants. Autistic people are heros. Autistic people are artists. Autistic people are models. Autistic people are film makers. Autistic people are backpackers. Autistic people are musicians. Autistic people are teachers. Autistic people are sherpas. Autistic people are trainers. Autistic people are neighbors. Autistic people are brothers. Autistic people are sisters. Autistic people are
Time for a Paradigm Shift in Special Education
Thomas Armstrong's piece on neurodiversity and education.
Home Modifications
Not all people begin life with disabilities, but most of us will need some kind of assistance as we experience the normal process of aging. Living at home within a community increases self-esteem, which can improve mental and physical health. Another rea
Feds eye NY school’s treatment of disabled student
NEW ROCHELLE, N.Y. (AP) — The U.S. Department of Justice is investigating an incident in which a disabled student at a suburban New York high school was kept inside as the school was being evacuated during a fire emergency. The Journal News ( http://lohu
Medical Myth Busting – Journal of Medical Toxicology Debunks Autism Treatment
“Despite the absence of data, and in the face of such concerns about absorption and dose..
“Loud Hands – Autistic People, Speaking” A Review
The title of the book should be enough for anyone who wants to know, know more or know anything, about autism and Autistics to buy it and read it.
Pediatricians Say No to Expulsions, Suspensions at Schools
MONDAY, Feb. 25 (HealthDay News) -- Suspending or expelling a child from school should be a rare last resort and not a routine punishment for bullying, drug use or other infractions, according to a new policy statement from the American Academy of Pediat
Autistic People Should
This is part of "Autistic People Should" flash blog.
Man with Autism, Caregiver Shot by Off-Duty Officer
A man with autism and his caregiver were shot by an off-duty Camden police officer, who thought his home was being burglarized, according to the Camden County Prosecutor's Office. NBC10's Katy Zachry talked with investigators who say the 21-year-old man had just been dropped off at his home on the 2800 block of Arthur Avenue by his special needs school in Cherry Hill and was met at his house by his caretaker. Investigators say instead of going to his front door, the 21-year-old with autism went across the street and started banging very loudly on a neighbor's door. Investigators tell
Amid Online Furor, Sheriff Responds to Death of Man With Down Syndrome
WJLA-TV’s coverage of the Robert E. Saylor case in Maryland. Online furor over the death of a 26-year old Maryland man with Down syndrome, who was handcuffed and forced to the ground by sheriff’s deputies in a movie theater, has been so vigorous that a l
Neurodiversity IS the Next Civil Rights Movement
"When we talk about inclusion what we're talking about is diversity." Audra Zucherman, co-founder, The IDEAL School .The IDEAL School practices full inclusion while nurturing their students abilities to create real change in the world through compassion and self- empowerment.
It’s Time to Go Beyond Access
Always Keep in Mind the Learning Goal and Keep the Challenge Where It Belongs
We Love Emma’s Hope Book
Ariane Zurcher is definitely one of our favorite writers. She writes with exceptional honesty, insight, and beauty.
Ten Things I wish My Teacher and SLP Knew about AAC : Pat Mervine
Pat Mervine has a great website and is the author of "How Katie Got a Voice (and a cool new nickname)" . I wish..... the entire team would be trained in how to program and use my AAC system. My "voice" shouldn't be taken away from me just because an adult is absent or busy. Oh, and a good back-up system would be much appreciated for when my device goes down. my AAC device would be charged (if electronic) and positioned for me to use it all times. Other kids can talk all day -- at recess, lunch, on the bus,
Deaf Teenager Gets AMC to Offer Closed Captioning
Johnny Butchko, 14, is hearing impaired. Tired of being unable to watch a movie at his local theatre, he stood up and got AMC to provide Closed Captioning in Santa Monica. But he's not stopping there.
Abuse and Cover Up of Students with Special Needs In Ohio
Special Education teacher from Kings Local School District accused of seclusion, restraint, physical abuse , verbal and emotional abuse.
Abuse of 7 Year Old with Special Needs Recorded by School Intern
School intern videos abusive physical therapist shoving seven year old with special needs to the ground and saying, "Get down now. I said down. No.Stand up you little b----, stand up."
Squag Interview: Architecture For Kids
Sara Winter of Squag™ interviews, Jorge Raedo of Amag . Amag is an architecture magazine for children 5-10 years old. It is a free Open Educational Resource.
Breaking News from Autistic Hoya: The End of Torture at the JRC?
Massachusetts Governor Deval Patrick filed a motion to vacate (render null) the 1987 settlement agreement that has permitted the Judge Rotenberg Center to use aversives, including the notorious electric shock GED devices.
Appropriate Education for Your Child – 02/15/2013
Unfortunately, our guest Howard Glasser, was unavailable for this morning's show! However, Terri and I managed to fill the 30 minutes (it's not hard!) talking about inclusion and education. During our show, we talked about finding appropriate education f
How Should We Rebuild the U.S. Education System?
Three learning enthusiasts share their blueprints for rebuilding the U.S. education system. In the 2nd century A.D., Roman Emperor Marcus Aurelius penned a series of personal writings and reflections known today as “Meditations.” In Book 1, the emperor s
Sara Winter,Founder of Squag™ Had Me at :)
Sara Winter answers our Change Leader Questionairre. Sara is the founder of Squag™ - a wonderful curated, online space that offers kids on the autism spectrum as well as other disabilities (and their siblings) a safe, beautiful corner of the web.
Planet of The Bind: Why Do Banks Still Lag In Basic Service To Blind Customers?
It seems like a natural: keypads with Braille, audio prompts and the like. And advocates for the seeing-impaired have been working with the industry since 1999 to provide just such adaptations.
Merck Fund Announces Three $1M Grants to Support Translational Research in Developmental Disabilities
Several AUCD network members and George Jesien, Executive Director of AUCD, participated on the scientific advisory committee which helped develop this important grants program with the John Merck Fund. The John Merck Fund announced today the first three
Wright’s Law: Why Schools Usually Say “No!”
My son is going to middle school. Same district, new school, just blocks apart. His 1:1 (same para for 3 years) has been the best thing that has come into his life ever. We want his para to follow him to middle school. The Special Education Director says
Duncan warns Congress on impact of ‘sequestration’
Here is the testimony Education Secretary Arne Duncan gave Thursday before the Senate Appropriations Committee on what could happen to education programs if Congress takes no steps to avert a March 1 deadline for automatic spending cuts, known as the “se
Study tracks leukemia’s genetic evolution, may help predict disease course, tailor care
Catherine Wu, M.D., and colleagues have published a study that shows how gene mutations shift and evolve over time in chronic lymphocytic leukemia (CLL). This evolution, they report, holds the... BOSTON AND CAMBRIDGE, Mass.ÂÂTumors are not factori
What Are Autism Archetypes?
An archetype is a symbol, a single representative of a category. If we think of the word chair, for instance, we often call up an image in our mind. That image, usually a specific type of chair, stands for all chairs in all their different forms. Autism
Bright Not Broken Gifted Kids ADHD and Autism – Feb 14,2013
Chef Dean Neff, Executive Chef at Hugh Acheson's "Five & Ten" highly rated restaurant in Georgia, visits with Olivia Wilder to talk about his culinary career. Bobby Seale co-founder ofThe Black Panther Party was an African-American revolutionary socialis
I Feel Tired
Some parents understand that autism is a natural part of some children’s lives and they fight the societal attitudes toward autistics. That’s love. Some parents don’t, and they fight, and hurt, their own children. This is not love and is one of the things that make me very tired.
Love is in the Air – Media Profiles People with Disabilities
Bill’s and Shelley’s path to marriage is not unlike many others who fall in love, lose touch as life takes its turns, and reconnect later in life when the time is right.
A Life Defined Not By Disability, But Love
I love you. You're a good parent, and just because you're disabled doesn't mean that you do anything less for me.
Proximal Femoral Geometry Before and After Varus Rotational Osteotomy in Children With Cerebral Palsy and Neuromuscular Hip Dysplasia
You could be reading the full-text of this article now... Background: Surgical management of hip dysplasia in children with cerebral palsy (CP) usually includes varus rotational osteotomy (VRO) of the proximal femur. Several techniques of VRO (end-to-end
Free iPad Games to Improve Algebra Learning from CAST
CAST released two innovative, research-based educational games that teach essential math reasoning and problem-solving skills.
14th Annual Hannah’s Buddies Charity Classic , March 22-23, 2013
The Hannah's Buddies Charity Classic began in 2000 with John Bell of Widespread Panic deciding to help his goddaughter and tens of thousands of children in their fight against SMA.
Parents ‘Stunned’ to See Disabled Daughter’s Feet Duct-Taped After School
An Indiana couple is looking for answers from their daughter’s former elementary school after the 8-year-old came home from her special-needs program with her shoes duct-taped to her feet and ankles. Nate and Elizabeth Searcy’s daughter, Shay
School looks into duct-taping of student’s shoes
INDIANAPOLIS (AP) — School officials and Child Protective Services are investigating an incident in which the shoes of an 8-year-old Indianapolis girl with Down syndrome were duct-taped to her ankles. The Wayne Township School Corporation has opened an i
Accessible Instructional Materials (AIM)
Great video on Kathleen McClaskey's Scoop It site, UDL- Universal Design for Learning about accessible instructional materials.
Including Students with Food Allergies in the Classroom – 02/08/2013
Food allergies are becoming a very common concern in schools today. According to the Food Allergy and Anaphylaxis Association, approximately 6 million children under the age of 18 have a food allergy. With these numbers of children, schools need ensure t
Deaf teen finds his niche at Richmond school
RICHMOND, Ind. (AP) — The seventh grade has been a whirlwind for Alex Brown . From relocating to Richmond and playing on the Test Intermediate School football team, the 14-year-old has had his share of new experiences. He was even credited with saving so
Autism Acceptance – Leading the Conversation
I want to talk about Autism Acceptance again. I want to talk about Autism Acceptance because soon we will be, again, referred to as tragedies, burdens, afflictions. This will go on, more than usual, for the whole month of April. April is the month chosen
Researchers develop Rx for deafness, impaired balance in mouse model of Usher syndrome
New Orleans, LA Â Jennifer Lentz, PhD, Assistant Professor of Otorhinolaryngology & Biocommunications and a member of the Neuroscience Center of Excellence at LSU Health Sciences Center New Orleans, is the lead author of a paper reporting that hearing an
Grieving Newtown Couple Raise Money for Autism
Josephine Gay's mother could not be with her in her final, harrowing minutes inside Sandy Hook Elementary School. She struggles with it every day, but she has taken comfort from learning that Josephine's aide wrapped her arms and body around her and othe
Asperger’s entry removal from manual decried
With orders now being taken by the American Psychiatric Association for its first updated volume on diagnostics in nearly 20 years -- and no hope for changes in the text -- Long Islanders are dismayed that an Asperger's syndrome entry no longer exists.Ed
Report: NM boy offered to stay with girl in cage
The son of a New Mexico woman accused of locking an 8-year-old girl with developmental disabilities in a wooden cage said he offered to stay with the girl while the rest of the household went out to a movie, authorities said. The boy said he was uncomfor
The Arc Applauds Social Security Administration’s Ending the Use of…
Changing how we talk about people with disabilities is a critical step in promoting and protecting their basic civil and human rights. In an historic change for people with intellectual disabilities (ID), the Social Security Administration (SSA) announce
Bills would strike ‘mental retardation’ from laws
JUNEAU, Alaska (AP) — Two Alaska lawmakers have introduced legislation striking terms like "mentally retarded" from state laws. Sen. Kevin Meyer said "mental retardation" used to be a clinical term used with good intentions. But he said in a news release
Krip-Hop Nation: Music, Advocacy and Education
"Where were the other people who looked like me as a Black disabled young man? With this continuous question of race and disability along with my love of poetry and music, I started to question the arena of music and performance around the representation of musicians with disabilities, especially disabled musicians of color." - Leroy F. Moore, Jr.
‘Impaired Perceptions’ – Photographer Brian Steel Fights Ableism
"The overall message is that you cannot tell what a person is capable of or what their life is like simply by looking at them. " Brian Steel
A Child With Down Syndrome Keeps His Place at the Table
IT’S rare that our daily lives adhere to dramatic form. But as reported on Today.com/Moms (“Waiter hailed as hero after standing up for boy with Down syndrome”), among other places, a little morality play took shape a few days ago in a Houston restaurant
US DOE “Access to Sports for Students with Disabilities Is a Civil Right”
U.S. Education Department is telling schools they must include students with disabilities in sports programs or provide equal alternative options.
The Inclusive Class: Supporting Students with Learning Disabilities
Nicole and Terri are looking forward to interviewing Dr. Sheldon Horowitz about ways classrooms can support children with learning disabilities.
MCIE Workshop on Multi-Tiered Systems of Support for Inclusive Education
How RtI Systems Work for Students with Intensive Support Needs With Michael McSheehan!
Stephen Kuusisto: Responding to Euthanasia of Deaf Blind Twins in Belgium
The National Association of the Deaf and the American Association of the Deaf-Blind have released a formal statement on the euthanizing of twins in Belgium who preferred death to becoming deaf-blind. Apparently the Belgians would imagine Helen Keller's l
Advice from Someone Who Has Been There
I love Larry Bissonnette- artist and disability rights activist. If you have seen Wretches & Jabberers or My Life as an Artist, or seen Larry present- I'm sure you are right there with me. His paintings are extraordinary, his words brilliant, and his wit and personality beyond wonderful. He is an exceptional person I feel privledged to call friend. We have been lucky enough to spend a lot of time with Larry; a weekend at our home in Tampa, a week in Vermont (where we were able to visit Larry's studio and watch him create his paintings) and numerous conferences
Jennifer Byde Myers: Autism and the Quest for Knowledge
Great post by Jennifer Byde Myers at jennyalice.com. Jack doesn’t fit the mold. Not the mold for a typical kid, not the one for cerebral palsy, not autism, not ADHD. Whenever we try to "box him up", another piece of him pops out, unexplainable by a typical convention.
When Autistics Grade Other Autistics
“If you judge a fish by its ability to climb a tree…”We know how functioning labels are not helpful, despite being largely used by neurotypicals. But some autistics also grade members of our community and I want to understand why.
Exploring Empathy
What is this ability to step into someone else’s shoes? To imagine how they feel - and to hurt for them or be happy for them? Host Frank Stasio is joined by a panel of experts to discuss empathy, the trait that makes us uniquely human. Lasana Harris is an assistant professor in psychology and neuroscience at Duke University; Jesse Prinz is a Distinguished Professor of philosophy at the Graduate Center of the City University of New York; Pate Skene is an associate professor of neurobiology at Duke University and a second year law student; and Ralph Savarese is an
Understanding Hearing Ability
What does speech sound like to deaf and hard of hearing children? Do deaf children hear anything? Some deaf children do in fact have no measurable hearing, but most children have some degree of residual or remaining hearing. Every child is unique in the sounds he or she can hear and his or her ability to understand them. No two children are alike. Two children who perform similarly on their hearing tests may understand or use sounds in very different ways. It is important never to assume how a student should or will communicate because of hearing test results. Whether
VIDEO: ‘We just want to be a family’
Two US women who recently adopted Russian orphans have spoken to the BBC of their heartache over changes to Russian law which have prevented them from taking the children out of the country. Rebecca Preece and Jeana Bonner are both mothers of children wi
Motherlode Blog: Solving New York City Bus Strike’s Impact on Special Needs Students Isn’t Simple
New York City’s bus strike is disproportionately affecting one of its most vulnerable populations: children with special needs, whose symptoms or travel limitations can make it extremely challenging for their parents to get them to school using other met
The Inclusive Education of Adults with Autism
This week on The Inclusive Class Podcast, we will be talking about educating adult students with autism. To lead our discussion, will be expert guest, Rhonda Greenhaw. Rhonda J. Greenhaw, MA, BCBA, is a leading clinician and researcher in the field of au
Violent Video Games
“We don’t benefit from ignorance. We don’t benefit from not knowing the science of this epidemic of violence.” Obama said. “Congress should fund research into the effects violent video games have on young minds.” Only a month after the Newtown, CT traged
Disability on the Florida Senate’s 2013 Agenda
The most important would eliminate the requirement that students enroll in a traditional school before becoming eligible for a McKay scholarship. McKay scholarships allow students with disabilities to use the money for tuition at a private school of their choice. One, SB 226, creates a two-week “disability history and awareness” instruction program starting in the 2014-2015 school year. The bill creates a committee to help the Department of Education design program curriculum. SB 150 creates a “Deaf and Hard-of-Hearing Children’s Educational Bill of Rights,” and requires state and local school officials to recognize the needs of hard-of-hearing students. Another bill,
No Limits: People With Cerebral Palsy v Condescending Tools
No Limits: People With Cerebral Palsy v Condescending Tools.
Lawsuit Says Special Needs Student Raped in NYC-area Classroom
A 15 year old special education student was gang-raped in class while a lesson was going on, according to allegations by her mother. The girl attended the Martin De Porres Academy in Elmont, New York, a community on Long Island, and the incident supposed
Joubert Syndrome Foundation & Related Cerebellar Disorders
Joubert Syndrome is a rare genetic disorder characterized by decreased muscle tone, difficulties with coordination, abnormal eye movements, abnormal breathing pattern and cognitive impairment. These issues are due to abnormal brain development, resulting in decreased size of the cerebellar vermis and other brain abnormalities that appear as the "molar tooth sign" on a brain MRI. Although rare, several hundred individuals with Joubert Syndrome have been reported in the medical literature. Mutations in at least 10 genes cause Joubert Syndrome, accounting for ~50% of patients. Subsets of individuals with Joubert Syndrome can also have polydactyly (extra fingers or toes), as well
More Powerful than Energy and Entropy
Jeffrey Wright to his students ,"There is something a lot greater than energy. There’s something a lot greater than entropy. What’s the greatest thing? Love ."
Team Long Brothers SI Kids SportsKids of the Year
"Maybe people that don't care in the past will care in the future ." Conner Long
Ido In Autismland
We love Ido In Autismland, a blog by Ido a young autistic advocate who types to communicate.
Person-First Language – ‘autistic’ vs. ‘with autism’
There is some debate about using the term ‘autistic child’ vs. ‘child with autism’, the latter being an example of what is typically referred to as ‘person-first language’. As you may have noticed, I typically use ‘autistic’. There are plenty of strong o
Center for Autism and Related Disorders Partners with Paper Clouds…
The Center for Autism and Related Disorders (CARD), the world’s largest provider of effective, early-intensive behavioral intervention for individuals with autism spectrum disorders (ASD), is proud to announce its new product line with Paper Clouds Appar
Self-Advocacy Organizational Development Grantees Announced
In 2011 and 2012, the Administration on Intellectual and Developmental Disabilities (AIDD) supported 9 regional Self-Advocacy Summits in collaboration with the National Association of Councils on Developmental Disabilities (NACDD), the National Disabilit
AUCD 2012 Awards Presented to Outstanding Individuals
Our network members - advocates, trainees, professionals - work to improve the lives of individuals with developmental disabilities and their families. They inform the public, provide services, conduct research, teach the next generation, develop policy,
People Are Watching Mr. Hughley
Mr. Hughley, we think you can do better than using the r-word. You said your son doesn't mind you using the word, but there are so many people that do. Words like the r-word perpetuate negative stereotypes about people with disabilities, please don't use it.
Pushing Past Limitations and Aiming to Inspire
Otis Hampton once walked 40 blocks in Manhattan, and swelled with pride when he reached his destination. Librado Romero/The New York Times Otis Hampton, who was born with cerebral palsy, currently lives in a homeless shelter in Harlem. For the past 100 y
Social Model of Disability
Great animated short on the social model of disability. What are your thoughts?
Labels
I am autistic. I choose to use this because of community. Not to tell you what I am or what I am not. This is my choice.
I Am Autistic and I Know What Autism Is
Autism is not a set of deficits. Autism is complex and all of us can self-advocate despite the difficulties we might face. Autism is life. I am Autistic, I self-advocate and I am happy.
Pediatricians: Recess Crucial for Development, Academic Success
The move to add more instructional time by eliminating recess could prove to be detrimental to kids in the long run according to a statement released by the American Academy of Pediatrics. ABC News reports that the statement is the latest addition to the
Your brain on Big Bird: Sesame Street helps to reveal patterns of neural development
Using brain scans of children and adults watching Sesame Street, cognitive scientists are learning how children’s brains change as they develop intellectual abilities like reading and math. The novel use of brain imaging during everyday activities like w
Disneyland and autism
I’m stepping outside of my typical green business posts today for another autism-related article. This time, the topic is Disneyland and autism. On December 26, 2012 my husband and I surprised the kids at 5:00 am when we loaded them in the car for a surp
Q&A: IDEA and child care
This 4-page brief explains the basics of the Individuals with Disabilities Education Act (IDEA) to child care providers, including early intervention for children under the age of 3 and special education and related services for school-aged children. It
Awesome Resource : Tiny Grace Notes (AKA Ask an Autistic)
We absolutely love Tiny Grace Notes. Check it out, you will too. Elizabeth (Ibby) Grace is brilliant, kind, and all around wonderful. Got a question about autism? Send it to Dear Ibby! Ibby is an education professor, a researcher, a mom, and Autistic. There is something about Ibby. She is one of those people who are easily able to convey warmth, respect, goodness, and so much information in just in a couple of paragraphs. Read her blog, you'll see. But, carve out some time, you won't read just one.
Attorney Says School District Abuse and Cover Up Was a “Mind-Set”
Parents of special needs students say school district covered up abuse.
My Skilled Companion Dog
We love the ebook "My Skilled Companion Dog" by Samuel Habib. It is a great and very realistic account of getting a CCI ( Canine Companion for Independence) skilled companion dog. Henry also has a CCI skilled companion dog, Denzel. CCI's two week training and matching program was such an extraordinary experience for Henry and me. We completed the course on CCI's Orlando campus, living in a dorm with 6 other families . The kindness and generosity exemplified by everyone involved was so touching ; from the amazing puppy raisers, the volunteers feeding us everyday, the patient and loving staff
Why the Fiscal Cliff Deal Doesn’t Solve Our Education Funding Crisis
As the Washington Post points out, the deal "fails to defuse the prospect of a catastrophic national default two months from now" and it "does not raise the debt ceiling, leaving the Treasury to use what it calls 'extraordinary measures' as long as it ca
TED | TED Playlists | What makes us happy?
What makes us happy? (9 talks) We all want to be happy. But how, exactly, do you go about it? More stuff or less? More choice or less? The answers -- from psychologists, journalists, Buddhist monks -- may surprise you. TED | TED Playlists | What makes us happy?.
Top 10 Guest Blogs of 2012 | Disability.Blog
2012 was an exciting year for Disability.Blog! We expanded existing partnerships and began dynamic new ones with leading disability organizations, such as the Invisible Disabilities Association (IDA). IDA President and Founder Wayne Connell and IDA ambassadors, includingKathe Skinner and Jeff Vankooten, wrote thoughtful posts throughout the year to let our readers know about the importance of recognizing and understanding invisible disabilities, and to offer people living with chronic illness and pain an opportunity to tell their personal stories. Read more here: Top 10 Guest Blogs of 2012 | Disability.Blog.
Raising Rebel Souls
We are huge fans of Raising Rebel Souls. Heather is an incredible writer and advocate, and stood firmly with Henry:) Here's a bit about Raising Rebel Souls: Rebel Mommy: I am Rebel Mommy, also known as Heather. I have been given a lot. I am lucky in love. Yes, my hands are full, yes, I drink too much coffee, yes, my dishes are currently piled up and no, I am not a good housewife, but yes, I am a damn good Mother. I was born to do it. I swear to you, my life before my sons, was just me
Calm and Soft but Full of Energy: Thoughts on “the event of a thread”
We went to see Anne Hamilton's: the event of a thread at the Park Avenue Armory while we were in NY last week. It was absolutely magnificent, I wish we could go back again. Hamilton is brilliant. Our family is full of different tastes, sensory needs and ages and it was a perfect fit for everyone. Henry did an excellent job editing our experience. Henry loved the installation. He said it was "calm and soft but full of energy", "smooth and architectural water crossings " There are benches so if you want to sit down and watch you can,
Consumer Groups File Complaint against Amazon for Not Providing Internet Captioning
December 20, 2012. Today several deaf and hard of hearing consumer groups filed a complaint at the FCC against Amazon for allegedly violating new FCC Internet captioning requirements. These consumers aver that Amazon.com has violated numerous times the F
Abuse reported at group homes in Washington
Listen to the families Abuse in group homes will continue because groups that claim to advocate for people with developmental disabilities (The Arc, Disability Rights Washington and Developmental Disabilities Council) do not listen to the families of the
IEP Team Member Apology: A Template for “Not Knowing It All – After All”
Have you just committed a real faux pas but find yourself at a loss for words to apologize? Perhaps you are a celebrity who needs to apologize for disability-related comment… A teacher who needs to apologize for outrageous classroom mistreatment… Or, a p
It is About Respect
Respect for one another is one basic quality if we want to have meaningful conversations and relationships with other human beings. The ableism that disabled people experience is a form of disrespect.
Crowdsourcing Site Compiles New Sign Language for Math and Science
A multimedia feature published earlier in December in the New York Times, "Pushing Science's Limits in Sign Language Lexicon," outlines efforts in the United States and Europe to develop sign language versions of specialized terms used in science, techno
Christmas Wish for Children and Teachers of Sandy Hook
We wanted to do something that would specifically honor some of the passions and characteristics the victims families described.
Letter from National Council on Disability (NCD) to the President Following Newtown Tragedy
December 20, 2012 The President The White House 1600 Pennsylvania Avenue NW Washington, DC 20500 Dear Mr. President: On behalf of the National Council on Disability (NCD), an independent federal agency, and in response to your recent national call to act
30 Ways to Support Sandy Hook Families Now
The victims and families have been and will continue to be in our thoughts and prayers. We've compiled a list of the ways to honor and remember these children and adults who were taken far too early. Remember. Honor. Celebrate. The children and teachers of Sandy Hook. Josephine Gay, 6 Donations may be made to Joey’s Fund in her name through the Doug Flutie, Jr. Foundation for Autism. The proceeds of this fund will help families raising autistic children. Daniel Barden, 6 Donations may be made to Sandy Hook School Support Fund, c/o Newtown Savings Bank, 39 Main
Rachel D’Avino, 29
In lieu of flowers, memorial donations may be made to Autism Speaks, 1 East 33rd Street, 4th floor, New York, NY 10016.
Jack Pinto, 6
Jack will forever be remembered for the immeasurable joy he brought to all who had the pleasure of knowing him, a joy whose wide reach belied his six short years.
Allison Wyatt , 6
Anyone who wishes to help the family can make donations to two accounts, to the Allison Wyatt Memorial Fund and another private funs for her sister Lauren.
Jesse Lewis ,6
In lieu of flowers, please make donations to: Voice for Joanie Inc., 5 Glenwood Rd, New Milford, CT 06776 voiceforjoanie.org
Grace McDonnell, 7,
In Lieu of Flowers the family requests that you consider making a donation to the Grace Memorial fund at the Fairfield County Community Foundation.
Ana Grace Márquez-Greene, 6
Donations in Ana's memory may be made to The Ana Grace Márquez-Greene Music Scholarship Fund or The Ana Grace Márquez-Greene Family Therapy Fund.
Dylan Hockley, 6
The Dylan Hockley Memorial Fund has been established in honor of Dylan. The fund will be used to benefit children with autism and other special needs.
Victoria Soto, 27
The family has requested in lieu of flowers that donations be made to the Victoria L. Soto Memorial Fund for Education.
Chase Kowalski, 7
In lieu of flowers please make a donation to the Chase Kowalksi Scholarship Fund, c/o Peoples Bank, 470 Monroe Tpke., Monroe, CT 06468.
Catherine Hubbard, 6,
In lieu of flowers the family is requesting donations be made to the Newtown Animal Center, PO Box 475, Newtown, CT 06470.
Dawn Hochsprung, 47
Dawn Hochsprung's family have established a scholarship fund in her name to benefit graduates of her alma mater, Naugatuck (CT) High School, The Dawn Lafferty Hochsprung Memorial Fund.
Mary Sherlach, 56
In lieu of flowers, memorial contributions may be made to the Fairfield County Community Foundation, Fund for Health and Wellness.
Avielle Richman, 6
The family is making arrangements for a memorial fund for those who wish to contribute. Her mother's high school classmates have established a memorial account in Avielle’s memory.
Lauren Rousseau, 30
Danbury High School has established a scholarship in memory of alumna Lauren Rousseau. Send donations to the Lauren Rousseau Memorial Scholarship, Danbury High School, 43 Clapboard Road, Danbury, CT 06811.
Daniel Barden, 7,
In lieu of flowers, donations may be made in Daniel's name to the Sandy Hook School Support Fund and The Barden Family Fund.
James Mattioli, 6
In lieu of flowers, loved ones can donate to a memorial fund, the James R. Mattioli Memorial Fund c/o Newtown Savings Bank, 39 Main Street, Newtown CT 06470.
Olivia Engel, 6
Supporters have set up the Friends of the Engel Family Fund.
Emilie Parker, 6,
Friends and relatives have set up the Emilie Parker Memorial Fund.
Caroline Previdi, 6
Contributions in Caroline's memory may be made to "The Toy Chest", St. Rose of Lima Church, 46 Church Hill Road, Newtown, CT 06470.
Jessica Rekos, 6
Memorial contributions may be made to the Newtown Rotary Sandy Hook School Fund, PO Box 263, Newtown, CT 06482.
Benjamin Wheeler, 6
Donations can also be made to a fund established by the family. Send checks to the Benjamin Wheeler Fund, c/o Trinity Episcopal Church, 36 Main Street, Newtown, CT 06470.
Anne Marie Murphy, 52
Teacher, Anne Marie Murphy, 52, a 14 year resident of Sandy Hook, CT formerly of Katonah, NY died Friday, December 14, 2012 at the Sandy Hook School Tragedy. She was born July 25, 1960 in Mount Kisco, NY, the daughter of Dr. Hugh and Alice McGowan of Katonah and graduated from St. Mary's School in Katonah, John F. Kennedy H.S. in Somers, NY and Southern CT State University with an MS degree in Education. Anne was employed by the Newtown Board of Education as a Teacher at the Sandy Hook Elementary School. New York Cardinal Timothy Dolan gave the homily at
Expert: Asperger’s not linked to violence
Published: Dec. 22, 2012 at 10:07 PM PHILADELPHIA, Dec. 22 (UPI) -- To suggest a tie between Asperger's syndrome and violent, sociopathic tendencies is to undermine the research on autism spectrum disorder, a U.S. expert says. Michelle Rowe, executive di
COPAA Statement on the Newtown Tragedy
The members of Council of Parent Attorneys and Advocates, Inc. (COPAA) work in schools every day with teachers and on behalf of the 7.1 million children with disabilities in the United States. Because of our work, we feel intense, personal pain over the
Autism device hidden in designer vest
With files from the CBC's Chad Pawson A Vancouver entrepreneur's start-up company is hoping to put "the squeeze" on autism. Lisa Fraser, a recent graduate from Vancouver's Emily Carr University, has designed a special medical vest that helps children cop
A mother’s anger: Stop linking autism to violence
Sarah Darer Littman and her son shared their story at a StoryCorps booth in 2006. STORY HIGHLIGHTS Mother of son with Asperger's upset about misinformation spread recently Writer implores journalists to be responsible when reporting on the syndrome "Your
FCC Honors Designers of Communications Technology Benefiting People with Disabilities
445 12th Street, S.W. FOR IMMEDIATE RELEASE NEWS MEDIA CONTACT: December 19, 2012 Michael Snyder at (202) 418-0997 E-mail: Michael.Snyder@fcc.gov FCC CHAIRMAN GENACHOWSKI HONORS INNOVATORS IN ACCESSIBILITY COMMUNICATIONS TECHNOLOGY IN CEREMONY TODAY Demo
My Top Ten
These are the top 10, now top 18 things I need for teachers, therapists, doctors, friends and family to know.
My iPad Is Not a Toy
Please never refer to my iPad as a toy. It is not. It is my voice. Imagine if you could not speak with your mouth how important your iPad voice would be.
Happiness is Fireflies
This very sweet video, 'Fireflies' by The Jubilee Project is about two kids that connect in a beautiful way.
Standing Together for Inclusion
Standing together for inclusion, communication and civil rights. Please include all kids in your classroom.
Report: State ignoring abuse at group homes
When lawyers for a watchdog group were combing through state files involving people with developmental disabilities, they stumbled onto a disturbing case: A paid caregiver allegedly had assaulted a resident of a state-funded group home. An examination re
Changing the Paradigm
Sir Ken Robinson on education reform. "Changing Paradigms in Public Education" covers the importance of thinking differently about human capacity , recognizing the benefits of collaborative learning, and changing the culture of our institutions.
What Does Ollibean Mean to You?
Crazy but true, simply wearing an Ollibean tshirt makes bedtime routine happy and fun! Send us a message about why you want one, what Ollibean means to you, and we'll get one to you.
Stephen Wiltshire
We are huge fans of the extraordinarily talented Stephen Wiltshire. Stephen Wiltshire - An Introduction Time lapse of Brisbane Panorama by Stephen Wiltshire
Use of the ICF for Guiding Patient-Reported Outcome Measures
The World Health Organization's International Classification of Functioning, Disability, and Health (ICF) has been adopted by most professional organizations that are concerned with the rehabilitation process, including by the American Speech-Language-He
An Ethnographic Investigation of African American Mothers’ Perceptions of Augmentative and Alternative Communication
The purpose of this study was to investigate fourteen African American mothers' perceptions of the utilization of augmentative and alternative communication (AAC) by their children with autism spectrum disorders (ASD). The authors used ethnographic metho
Hearing disorder could be misdiagnosed as ADHD in kids
Not enough doctors are aware of auditory processing disorder, the Canadian Association of Speech-language Pathologists and Audiologists says. (iStock) A little-known hearing disorder affecting two to three per cent of Canadian children is being misdiagno
Sensory/Movement Differences and Diversity
For a lot of people, the most anticipated books each year are about vampires or girls with great archery skills, but the release I waited for was this book by friends, Martha Leary and Anne Donnellan. I am not exaggerating when I share that their first book, Movement Differences and Diversity in Autism, completely changed how I thought about disability, behavior, and autism. This new volume did not disappoint, and I am now recommending it to everyone in my circle (and now, to all of you)! To me, no other researchers/scholars in autism are doing more than these two women
TPGA’s All Ages Holiday Book Guide
Do you love to give and receive books? We love to give and receive books. So for you and for us, here's a short selection of recommended books by, for, about, and enjoyed by autistic people and their families. If you have additional suggestions for books
UNH IOD Standing With Henry
But after watching Wretches and Jabberers, a film about autism and self-advocacy, Henry’s way of interacting with the world changed radically. He realized that he had a voice, could use it, and had a right to participate in discussions about his education and life.
Alan Cumming picks 5 unconventional family films
"Any Day Now" follows the struggle of a gay couple in late-1970s Los Angeles to adopt an abandoned teenage boy with Down syndrome. It's not exactly your traditional, old-fashioned family unit. So who better than the film's star, Alan Cumming, to ponder t
Alexis Clarkson: OlliNepal
We should all strive to see the beauty and potential in everything, and everyone, and to me, that is inclusion. "
‘Smartpen’ Pilot Program Helps Students with Disabilities
We often get questions about the legality of using a recording device or pen in class. Parents ask this question when schools tell them “recording devices violate the confidentiality” of other students in the classroom. Digital recorders or recording pen
Shatter the Myths About Autism
"No Myths". Must see PSA by the Autistic Self Advocacy Network and the Dan Merino Foundation. Change the conversation about autism.
Ollibean: All of a kind
The faces of Ollibean are kids with and without disabilities all trying to make the world a better place.
Site helps deaf with signing science terms
Published: Dec. 10, 2012 at 9:43 PM SEATTLE, Dec. 10 (UPI) -- U.S. researchers say an online forum is helping develop sign language versions of specialized terms used in science, technology, engineering and mathematics. Started at the University of Washi
Henry Frost on Inclusion on the Autistic Self Advocacy Network
Henry wrote about inclusion for the Autistic Self Advocacy Network, read the entire article here. Ari Ne'eman, president of the ASAN, had an enormous impact on Henry's decision to speak out about his desire to attend his neighborhood school. "I met Ari at theAutism Summer Institute. I wrote to him about my school and he understood. He helped me advocate for my rights. ASAN helped with the petition. He is also autistic. He is also my friend. I did not read about a person who liked being in a separate school away from their friends learning cooking for life skills
Aide at Maryland School for the Deaf charged with sex abuse of minors
Posted at 01:55 PM ET, 12/06/2012 Dec 06, 2012 06:55 PM EST TheWashingtonPost By David Marino-Nachison An aide at the Maryland School for the Deaf’s Columbia campus has been charged with inappropriately touching three girls when they were students at the
Scientists identify molecules in the ear that convert sound into brain signals
IMAGE: Ulrich Mueller, PhD, (center) isa professor in the Department of Cell Biology,director of the Dorris Neuroscience Center at The Scripps Research Institute, and lead author of the Cell paper;Wei... LA JOLLA, CA Â December 6, 2012 Â For scientists w
Use Your Words: Non-Verbal, Speech, and AAC
I see a little girl every week at events that my child attends. She's great. She's nine years old, has a fantastic laugh, and a mischievous sense of humor. She loves puddles, chocolate cake, and apples. She has a small crush on my son. She's also non-ver
Editorial: Disabled Senate rejects U.N. rights treaty
Former Senate Republican leader Bob Dole is wheeled into the Senate on Tuesday.(Photo: CSPAN2 via AP) Dole, a former party leader and a disabled veteran, tried to champion the treaty in the Senate. The opponents persuaded 38 Republican senators to vote n
Which Congressman Is Blocking Bill That Would Protect Kids with Autism?
Legislation aimed at protecting children with autism and other disabilities from being injured in school has stalled in the House of Representatives at the hands of a single member who objects to federal intervention. Minnesota Republican Rep. John Kline
Shouldn’t Every Day Be International Day of Persons with Disabilities?
We are committed to removing barriers to create an inclusive and accessible society for all. Not just on December 3rd, but each and every day.
I Am
How do you talk to someone who uses AAC?
Autistic Student Wins the Right to Go to School
Henry Frost had a pretty simple goal: he wanted to go to school like any other kid.
Emily Willingham “Autism Bingo: The Congressional Hearing Version”
Our science editor Emily Willingham live-tweeted Thursday's Congressional autism hearing from the perspective of a scientist, autism parent, critical thinker, and human. She Storified and annotated the experience, turning offensive keywords and laughable
Autism on CSPAN Washington Journal
Hi. My name is Henry Frost. I am a 13 year old Autistic self advocate. I agree with Ari Ne'eman. This is a civil rights issue. Communication and inclusion are basic civil rights. I made this video about civil rights. I made a FB page and petition so I could go to school in my neighborhood. Ari and ASAN helped me advocate. http://www.facebook.com/IStandWithHenry , change.org/henry People all over the world wrote this is a civil right. We want the same things in life. We are not so different. Please watch to understand how much we need support for
Build Your App with Therapy Box
“After numerous requests, we have opened up our service to work with creative speech and language therapists, teachers and organisations who have an idea for an app they would like to deliver. We will make it happen” explains Therapy Box Therapy Box, the
Get Schooled: Jack Black Rocks “Sensitive”
AUTISM IS AWESOMISM . LOVE this video performed by the incredible Wyatt Isaacs (Autism the Musical), Jack Black, Stephen Stills from the Miracle Project Benefit.
CEC Celebrates IDEA’s 37th Anniversary
On November 29, 1975 President Gerald Ford signed into law the Education for All Handicapped Children Act (Public Law 94-142), landmark legislation that forever changed how American’s view individuals with disabilities. Now known as the Individuals with
Longview school suspends use of isolation box
The Longview School District has suspended the use of an isolation box for special education students while it reviews the policy for isolating students who may be a danger to themselves or others. The Longview School District has suspended the use of an
Police Ignored, Mishandled Sex Assaults Reported by Disabled
Patients at California’s board-and-care centers for the developmentally disabled have accused caretakers of molestation and rape 36 times during the past four years, but police assigned to protect them did not complete even the simplest tasks associated
ASAN Statement on Upcoming House Autism Hearing
“We’re profoundly concerned by the decision by the House Committee on Oversight & Government Reform to convene a hearing on autism next week without the inclusion of any Autistic witnesses or representatives from organizations run by Autistic people. Jus
Inclusion in Tampa
' With a little help from his friends'. Henry's inclusion is truly a group effort led by this determined 13 year old self advocate .
Don’t label people with Down syndrome
Perceptions about Down syndrome have changed in recent years, says David M. Perry, who has a son with this disability. STORY HIGHLIGHTS Ann Coulter's "retard" comment not aimed at Down syndrome, she said David Perry has son with Down syndrome and says cu
Evaluating the Efficacy of the LRE
I attended an IEP meeting recently that really brought home for me the complex nuances of determining what placement, or blend of placement options, represents the Least Restrictive Environment (“LRE”) for an individual student with an IEP. Not only are
After student’s death, Hillsborough school’s ESE aides could not recall missing-child training
Hillsborough County school district investigates a student's death last month at Rodgers Middle School, issues are emerging that go beyond the five suspended special education employees and even their Riverview school. It is unclear if the workers, who earn as little as $11,000 a year and are now on paid leave, were trained in how to react when a student goes missing. Read more from Tampa Bay Times, Marlene Sokol
School board wants answers in wake of student’s death
Two separate investigations are now going on in the Hillsborough School District.
Amy Sequenzia: I, Too, Want to Understand.
Why would a parent of an autistic child decide that it is better not to listen to other autistics? Why? I, Too, Want to Understand.
MIND Research Institute Receives $500,000 Grant to Improve Math…
MIND staff working with students in an ST Math lab. We see MIND Research Institute’s ST Math program as having tremendous potential to close the math achievement gap in New York City public schools.... The Dell family foundation grant will fund professio
Nathan Heller: Andrew Solomon’s “Far from the Tree.”
For Megan and Michael, a Los Angeles couple, the crucial turn of parenthood came not in the delivery room but eight months later, when they started to worry that something had gone wrong with their son. The baby, Jacob, didn’t respond to the surrounding
Now, It’s Our Turn!
Tonight, Terri and I had the tables turned on us! It was our turn to be on the "hot seat" when we were featured guests on HuffPost Live. Interviewed by host, Nancy Redd, we appeared live (and on camera - much more stressful than a phone interview!!) to d
CHOP presents new findings on pediatric cardiovascular disease at AHA 2012
Physician-researchers from the Cardiac Center at The Children's Hospital of Philadelphia presented new findings on pediatric cardiovascular disease at the American Heart Association's Scientific Sessions 2012 in Los Angeles. They described racial dispari
The Case for Inclusion Part 3: Sea Change
The longer there is a strong distinction between general and special education the worse it is for students who are labeled with a disability. It perpetuates the language of Us and Them...
Adding the I to IEP: H is at the table
We worked with the wonderful team at H’s Distributed Learning School to update his Individual Education Plan (IEP) and for the first time ever H was there to take part. He wasn’t completely interested – but we built-in other options for him so he could p
Open Letter from a Doctoral Student Who Needs Some Help with her Study
Hi, my name is Christina and I am a doctoral candidate at Grand Canyon University. The title of my dissertation is “Examining the Potential of Using Technology to Improve Academic Performance: The Experience of Autistic Children with E-Readers.” As a for
Paula Kluth on The Inclusive Class Roundtable
Paula Kluth's strategies for teachers who might be reluctant or don't know where to begin with inclusion on The Inclusive Class Roundtable, as well as some of our favorite things from her website, PaulaKluth.com.
Seth’s case: Special-education battles with no end
Posted at 01:09 PM ET, 11/04/2012 Nov 04, 2012 06:09 PM EST TheWashingtonPost Seth turns 9 on Saturday. He is a radiant child who often looks better than he feels. He was born nearly four months prematurely and weighed 15 ounces at birth. He has many med
What I Learned “When Schools Say No to Inclusion “
The guests on the show are leaders in the inclusion community. They all brought something unique to the table, but they had one thing in common- respect and dedication to all learners.
Supporting Students with Learning Disabilities – 11/02/12
Having taught at the primary, secondary and college levels, Dr. Horowitz has also worked as a consultant to school districts throughout the New York City metropolitan region. In addition, he is frequently cities in popular press topics including parentin
Amy Sequenzia: To You, Young Autistic Friend
Autistic advocate and poet Amy Sequenzia's message of acceptance and respect for young autistics for 2012 Autistics Speaking Day. "There is nothing wrong with being who you are. You are perfect in your uniqueness."
Conversations Between Autistic Self-Advocates and Autism Parents – Part 2
Self-Advocate Elizabeth (Ibby) Grace's blog Tiny Grace Notes is subtitled "Ask an Autistic," and that is exactly what people do -- solicit Autistic insights from her. We asked if we could republish a recent conversation Ibby had with Tina, an autism pare
The National Center on Inclusive Education (NCIE)
The National Center on Inclusive Education (NCIE) at the University of New Hampshire’s Institute on Disability is a leader in the transformation of schools so that students of all abilities are successfully learning in their home schools within general education settings. Vision When students with disabilities are provided appropriate instruction and supports, they can learn grade-level general education curriculum, communicate in ways that are commensurate with their same-age peers without disabilities, have meaningful social relationships, and graduate from high school—college and career ready.
Access to the General Curriculum for Students with Disabilities: A Brief Legal Interpretation
Access to the General Curriculum for Students with Disabilities: A Brief Legal Interpretation By Joanne Karger and Charles Hitchcock Introduction The 1997 reauthorization of the Individuals with Disabilities Education Act (IDEA) introduced important changes in the provision of special education services for students with disabilities. One of the most significant changes concerns the requirement that students with disabilities receive access to the general curriculum. Specifically, the new Amendments require that students with disabilities: (1) have access to the general curriculum; (2) be involved in the general curriculum; and (3) progress in the general curriculum. The purpose of this brief is to
Calling People the R word
Trigger Warning: R-slur as an insult, discussion of such (censored except in quotations and in a screen shot.) This is how we begin, sort of: I say sort of because this isn’t really a beginning, it’s a reflection. It’s a reflection of what we as a societ
No Progress. School Says “No Change is Good”?
I’m a sped teacher with a child who has an IEP. The IEP team agreed that my child’s progress in Math will be measured with the KeyMath test. When the school last administered the KeyMath test, her scores dropped! It is not good news when a child’s test s
URMC, Deaf Community, Study How to Improve Research Participation
Documents that explain life-saving medical procedures or how to take part in research can be difficult to understand, but with a $600,000 grant the University of Rochester Medical Center is studying new ways to deliver those messages to deaf patients and
Ann Coulter blasted for using the ‘r-word’
Parents of children with special needs are demanding an apology from conservative political pundit Ann Coulter for calling President Obama the "r-word" after Tuesday's foreign policy debate. Here's the tweet that sparked the outrage: John Franklin Stephe
2 Ohio nurses get probation in malnutrition death
Two Ohio nurses have been sentenced to probation in the malnutrition death of a 14-year-old girl who had cerebral palsy and weighed 28 pounds when she died. Mary Kilby of Miamisburg and Kathryn Williams of Englewood were sentenced in a Dayton courtroom o
Listen to The Inclusive Class Roundtable – 10/26
Inclusive Education, as defined and described by education experts, is a philosophy. It is not a program, nor does it happen in is... Parents of school-age children can often become bewildered by today’s education system and it’s expectations. Its quickl
Special ed in distress A few schools get it right, but complaints and lawsuits are mounting against a troubled program serving 7,000 Seattle students.
Five years ago, a high-profile report found that Seattle's public-school district was decades behind the rest of the country in serving students with disabilities. Today, the problems are even worse. Six special-education directors — and three superinten
Study: Puberty happening sooner in boys
Published: Oct. 20, 2012 at 1:12 PM NEW ORLEANS, Oct. 20 (UPI) -- A study by the American Academy of Pediatrics found boys are entering puberty at earlier ages than they have in the past. The study, which was unveiled Saturday at the organization's natio
Why Won’t the School Provide Homebound Instruction?
My child’s doctor recommended homebound instruction. The school said they had the authority to override that recommendation. Why won’t the school provide homebound services? Issues of homebound are determined in part by state law and state regulations, i
COPAA Announces Keynote and General Session Speakers for 2013 Conference
COPAA is an independent, nonprofit membership organization of special education attorneys, special education advocates, related professionals, and parents/family members. Our primary mission is to secure high quality education services for children with
For collegians with disabilities, success linked to mentoring, self-advocacy
(Phys.org)—A Rutgers study of recent New Jersey college and university graduates with disabilities has found that students attributed their academic success to a combination of possessing such strong personality traits as self-advocacy and perseverance,
Low Eye Contact Is Not Just An Autism Thing
A news story about a Society for Neuroscience conference report on the discovery of “eye cell” neurons that register eye contact says: This new type of neuron was discovered in a Rhesus macaque. If humans have these neurons too, it may be that they are i
Oct 26th The Inclusive Class Podcast Presents a Roundtable Event: “When Schools Say ‘NO’ to Inclusion”
On Friday, October 26, 2012 at 9 AM Eastern Standard Time, The Inclusive Class Podcast proudly presents a one hour long roundtable event on Blog Talk Radio. This event brings together experts in the area of inclusive education to discuss and respond with practical techniques when schools say 'NO' to inclusion.
Th Inclusive Class Roundtable :”When Schools Say ‘NO’ to Inclusion”
This event brings together experts in the area of inclusive education to discuss and respond with practical techniques when schools say 'NO' to inclusion.
Supporting Young Autistics
We hope that young autistics today will be proud of themselves and without shame. The message that boy received at that moment was the opposite of acceptance. It was ableist and it came from someone who is part of our own community.
Inclusive Education: It’s Great If You Can Get It
Inclusive schools need to become a reality for all students across the nation regardless of abilities, socio-economic background and geographic location. Unfortunately, many school districts do not see the inclusive classroom as the Least Restrictive Environment and an appropriate placement for children with special needs. Thus, what one child has free and appropriate access to, another one doesn’t. And then inclusion , which has been proven by experts to be the gold standard of special education, becomes an ideal situation…if you can get it. The lack of universal practice of inclusive education in our school system creates an overall discord in
Feedback Loop: Autistic Student, Or Student With Autism?
Dean McIntosh criticized our describing Frost as a “student with autism.” The entire adult autistic community has been saying in one loud voice that “…with autism” is not acceptable. Myself and Lydia Brown are just two examples of autistic adults who wri
Justice Department Settles with Florida Bus Companies Over Accessibility Violations
The Justice Department reached four settlement agreements with over-the-road bus companies in Florida in the last month, to ensure that bus transportation is accessible for people with disabilities. The settlements under the Americans with Disabilities A
Wendy’s Franchisee to Settle Lawsuit for Refusing to Hire Applicant with Hearing Disability
DALLAS - CTW L.L.C., a Wendy's franchisee, has agreed to pay $41,500 and provide other significant relief to settle a disability discrimination lawsuit brought by the U.S. Equal Employment Opportunity Commission (EEOC), the agency announced today. The EE
Landmark Decision Promoting Accessible Books for the Blind
Baltimore, Maryland (October 11, 2012): The National Federation of the Blind (NFB) today applauded a decision issued on October 10, 2012, by the U.S. District Court for the Southern District of New York, which permits the distribution of millions of book
Why is a 13 year old protesting in order to go TO school?
How did we get here? How did we get to a point that our 13 year old son has to fight for the rights that are already his under federal law? How did we get to a place where a pretty reserved kid has the courage, the will, to do this?
New report: Half of schools meeting state’s goal
(10-10) 17:13 PDT -- California schools have been weighed. They have been measured. And depending on who you ask, they have been found wanting or are doing really well. On Thursday, state education officials released the simplified roundup of state tests
Netflix pledges to caption all content by 2014
Netflix will offer closed captions on all TV and movie content by September 2014 as part of a settlement with a deaf Massachusetts viewer who sued the company. The on-demand Internet streaming service agreed to the settlement Tuesday in U.S. District Cou
Diabetic alert dogs save lives
Rebecca Farrar with her diabetic alert dog, Shirley. (Photo: ZUMA Press) Rebecca Farrar was just 4 years old when she became seriously ill and was diagnosed with diabetes. Today, as a Type 1 diabetic, 8-year-old Rebecca’s blood sugar can drop without war
Social Media Helps Student With Autism Find His Voice
Henry Miles Frost and his service dog, Denzel, protest outside a downtown Tampa building during the Republican National Convention. Since he posted the photo to Facebook, he’s found global support in his effort to enroll in his South Tampa neighborhood s
AAPC Publishing Releases Lesson Plan a la Carte: Integrated Planning for Students With Special Needs
Integrate learning objectives with therapeutic supports and necessary modifications right in the classroom. Multiple worlds exist within the educational universe. Integrated planning happens when each of these worlds (teaching, clinical, administrative,
Teen’s death shows gap in autism care, say advocates
Advocates for those with autism say the death of an Edmonton teen this week reveals a serious gap in the province’s mental health system. Jarrett Bortscher, 18, was found dead Wednesday after going missing from his family’s home Sunday. “This kid was an
National Council on Disability (NCD) Releases Report on Rights of Parents with Disabilities & Their Children
WASHINGTON, DC -- On Thursday, September 27, the National Council on Disability (NCD), an independent federal agency, released “Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children” -- a groundbreaking policy study, inf
The Case for Inclusion Part Two: What Does Inclusion Look Like?
It should always be the objective of public education to serve all students no matter what their disability label. It should always be the objective to give the right amount of support for all children.
Bureaucrats
You look at me But you don’t see me You talk about me but not to me You think you know all about me But you deny my humanity You think I don’t have wishes You believe I don’t have plans You don’t respect my basic rights According to you I should be grateful That I have a place to sleep That I have three meals a day If I say I want to go out You ignore me To you I am only a burden Too disabled to have an opinion To you I don’t count as a person
Presume My Competence
Really, this is number one. Please presume my competence.
Focus on My Strengths
#4 Please focus on My Strengths. I have many. We all do.
I Stand With Henry
What Henry is doing is advocating for his rights, at the same time that he reminds us of our own rights and about how far we still have to go.
Top 10 Things Autistic Self Advocate Needs Teachers to Know : # 3
Top ten things I want you to know. Number 3: Please talk directly to me, not to my support person.
Almost Half of U.S. Kids With Autism Have Been Bullied
MONDAY, Sept. 3 (HealthDay News) -- Nearly half of U.S. children with an autism spectrum disorder are victims of bullying, a new study finds. "The rate of bullying victimization among adolescents with an autism spectrum disorder is alarmingly high, indic
Autistic Student’s Top 10 List for Teachers of Students with Special Needs #2
Top ten things Autistic student wants teachers, therapists and friends to know about students with special needs... they may be shocking to some of you, but hopefully to most they are exactly what you expect. Here's number 2.
A Sister Stands with Her Brother: I Am Heard, I Am Important, and I Am Included
No one wants to be the excluded one, the one to stand alone in silence, the one left out of the conversation. No one wants to be forgotten. So why are some individuals treated this way? Luckily it just takes one person to stand up and include, and the rest will follow. Be that person, take a stand, make a difference.
A Poem About Pain
Other people have written better articulated articles about the same things I write in this poem. It is hard for me to elaborate beyond the words in the poem. It could have easily been me in some cases, it can happen to any of us.
StateImpact Florida A Finalist For Innovative, Investigative Journalism Award
From our investigation: Tres Whitlock types on the DynaVox tablet that serves as his voice. Whitlock, 17, has cerebral palsy and can’t speak on his own. He tried to enroll in a Hillsborough County charter school, but the school had concerns about the the
I am the 20 % and the RNC
Henry takes his bi-partisan message of inclusion and civil rights for all to the Republican National Convention.
A Sensory Garden for Zoë and Oliver
One of Ollibean's contributors, the lovely and amazing, Julie Lohoefener of Bloom Garden Shop, let's us in on some great tips on creating a non-toxic Sensory Garden with your kids.
Looking to November, Disability Advocates Call for Accessible Polling Places
A Federal Court Judge will hear testimony Monday about how to make city polling sites more accessible for people who use wheelchairs or have vision impairments. Earlier this month, U.S. District Judge Deborah Batts ruled there were pervasive barriers at
Dr Thomas Armstrong – Neurodiversity – Aug 27,2012
Call in to speak with the host "Neurodiversity" by Dr Armstrong - Brilliance "Neurodiversity - Discovering the Extraordinary gifts of Autism, ADHD, Dyslexia and other brain differences. This book has it all - what research tells us about the specific str
USC’s Special Ed Infographic
Welcome to Making Special Education Actually Work, the official blog of KPS4Parents. We sincerely hope that this blog proves to enlighten and empower all responsible adults to ensure that all children, regardless of disability, receive a Free and Appropr
Listening to Autism: A letter from Mrs. Teacher Lady
I wanted to thank you for all the hard work you do in not only helping your son through his journey and helping him accept himself, but helping others on their own journey as well. I wanted to share with you a little bit of my story. I have always found
Cognition and behavior: Words bias impressions in autism
Positive response: People with autism are more likely than controls to see as a friend a man making a disgusted expression and saying “You are friendly.” Individuals with autism rely more on words than on facial expressions when interpreting social cues,
My Civil Rights
Inclusion, Martin Luther King, Jr, The Civil Rights Acts of 1964 and education.
National Federation of the Blind Applauds National Council on Disability Report
Dr. Marc Maurer, President of the National Federation of the Blind, said: “We applaud the National Council on Disability for its strong affirmation of the value, equality, and dignity of workers with disabilities, and for its recommendation that Section
First Day of School
Today is the first time that Henry has not had a First day of School. He is not allowed to go to his neighborhood school that is about 200 yards from our home.
Amy Sequenzia : Friendship and Respect
It is a mistaken idea that we, autistics, lack empathy. It is also a myth that we are not social. My friends and I, we understand and respect differences. And we understand that we all have a lot to contribute, in a diversity of manners.
Another School year !!
Another school year begins August the 16th for us. My son is a young 1st grader , he will be 6 on August 23rd . But will still be five when school starts . His kindergarten experience wasn’t so great . Before he started school last year I met with the sc
Special needs kids staying in traditional schools
LOS ANGELES The high cost of educating students with special needs is disproportionately falling on traditional public schools as other students increasingly opt for alternatives that aren't always readily open to those requiring special education. The i
My Video for Day without Starbucks for Sebastien
My video to help raise money for "Day Without Starbucks for Sebastien" . Sebastien is my friend. He has MELAS, a mitochondrial disease that is hurting him. Please help.
Sebastien’s Smile
Sebastien's Smile was created for the sole purpose of raising awareness for Mitochondrial diseases which affect the Setin's son Sebastien.
Henry’s video for his friend Sebastien, please help by sharing
Thursday Henry decided he wanted to write something to help his friend. We decided to video the process, as you can see, typing one letter at a time is a very long and arduous process. It took Henry hours to type and edit that paragraph. It was hard and Henry decided to not to share the parts that were too emotional. Sebastien is one of Henry's best friends, he loves him dearly and he has watched his body get weaker and weaker each day. I am so proud of H for writing this, it was very, very hard for a
Amy Sequenzia: “Storm”
"Storm" a poem by autistic self-advocate Amy Sequenzia.
Ollibean Talks to Ray Ellis, director of “Certain Proof: A Question of Worth”
"All of these children have one thing in common. They were always having to prove themselves, over and over and over again." Ray Ellis
Mom seeks heart transplant for autistic son
A Pennsylvania woman whose autistic adult son was not recommended for a heart transplant because of his illness and the complexity of the process, among other factors, said she wants to bring more attention to the decision-making process so that those wi
London 2012 Takes Paralympic Torch Relay to New Heights
The Paralympic Torch Relay is the perfect moment to get your flags back out and get behind the incredible athletes taking part as the excitement builds once again right across the capital • Flames to be created at the summits of the UK’s four highest pea
Did doctor waterboard daughter in experiment?
DOVER, Del. — To many people, Dr. Melvin Morse was a brilliant pediatrician at a renowned children's hospital and a best-selling author who parlayed his research on near-death experiences into appearances on "Larry King Live" and "The Oprah Winfrey Show.
WEBSITE WEDNESDAY: The Accessible Principal
I am so thrilled to share the with you, which is a new blog that was launched this summer by one of the best administrators I have ever met. Marilyn is a school and district leader in a suburb here in Chicago and she has interests ranging from technology
Ollibean Mama Spotlight
Connect and learn with other parents like Tonya who presume competence and celebrate their children for being exactly who they are. #allofakind
NYC to Integrate Special Ed Students into Regular Classrooms
New York City’s pilot for special education inclusion has moved the district to apply the program to a majority of the schools in the city. The city’s conclusion is that students with special needs should get access to the general education curriculum, n
What is the Timeline for Developing a Section 504 Plan?
My 6 year old daughter had her 3 year reevaluation. She has Childhood Apraxia of Speech and fine motor difficulty. She is doing well academically. At the IEP meeting, one month ago, it was decided that she no longer qualifies for an IEP. The school sugge
Disability in an Ableist World
Disability as a constructed concept is not a commonly understood or propagated idea in the mainstream of an ableist society. The average non-disabled person, and frequently even disabled people who’ve had limited or no exposure to disability rights theor
My autistic son’s step into the wider world — through Facebook
Susan Senator , a writer in Massachusetts, is the author of “The Autism Mom’s Survival Guide” and “Making Peace With Autism.” She blogs at susansenator.com/blog . When my autistic son, Nat, was about 8, we learned that he loved looking at family photos o
Resources and Downloads for Differentiated Instruction
Educators from Mesquite Elementary School, in Tucson, Arizona, have provided these resources for you to use in your own school. Daily collaborative planning time at Mesquite Elementary enables teachers to plan differentiated instruction to address the pr
The Case for Inclusion: Does All Really Mean All?
Tim Villegas of Think Inclusive on the motivation to change from educating students with disabilities in segregated settings to inclusive settings where all means all.
Ollibean Think Tank Member Tim Villegas
My hope is that ThinkInclusive.us can create a bridge between educators, parents, and advocates (including self-advocates) to promote ideas, innovation and inspiration to change our world to be more accepting and value each and every human being.
How to Make Inclusive Practices a Reality For Your School
The new school year is fast approaching and The Inclusive Class Podcast is set to help you prepare! On Friday, August 10, 2012 we will kick off our "Back to School" series which is 3 podcasts that will discuss tips, strategies and resources for helping y
Change Leader: Amy Sequenzia
"Presume competence. The same way I want people to assume I am competent, I also assume that others are competent".
Snacking: The Little Bite That Won’t Hurt You
Ollibean contributor Kristie Salzer talks about the benefits of "refueling" between lunch and dinner to decrease hunger related meltdowns for kids. We love her suggestions of 25 super easy snacks to get you started!
Vitamin D Deficiency In Sick Kids Could Make Them Sicker
If you're an adult, and a relatively healthy one at that, then you've probably been confused in recent years about whether or not you're getting enough vitamin D. Indeed, a series of reports from some of the top medical institutions – including the Insti
Amy Sequenzia:Dear Mainstream Media
I am an autistic woman, non-speaking and I have many needs.Yes, dear mainstream media, I am the autistic supposedly too “low-functioning” to deserve to be heard. You pity me and you ignore the facts.
Change. It’s Happening Here. Join Us.
So you're probably wondering what the Ollibean movement is all about. And if you weren't, it's definitely in your head now.
“Yee Haw, Howdy, Amen” – When Schools Make Up their Mind in Advance!
IDEA requires Parent Involvement in Placement Decisions and developing an IEP for your child. Pre-selecting programs violates this right.
Researchers discover gene mutations in patients with alternating hemiplegia of childhood
Alternating hemiplegia of childhood (AHC) is a very rare disorder that causes paralysis that freezes one side of the body and then the other in devastating bouts that arise at unpredictable intervals. Seizures, learning disabilities and difficulty walkin
Child mental abuse as harmful as physical assaults
Children made to feel worthless, unloved or unwanted can suffer serious damage, says a report urging pediatricians to be alert to the problem. (iStock) Child psychological abuse can be as damaging as physical assault, but it remains underreported and not
Change Leader: Richard Attfield
Richard Attfield, a contributing author to "Autism and the Myth of the Person Alone", is passionate about the rights of children with disability labels to have equal access to education and communication supports.
Human rights complaint over Montreal girl forced off bus
The family of a 12-year-old girl who was forced off a public transit bus in Ville St-Laurent, Que., last month is filing a civil rights complaint against Montreal's public transit authority and the Montreal police department. According to a release by th
Change Leader Questionairre: Richard Attfield
Change you would you like to see in your lifetime? "The end of discrimination towards children/people with disability labels. And the human right of communication implemented fairly. " Richard Attfield
Turner Classic Movies Showcases Films About Disability
TCM to Examine Hollywood's Depiction of People with Disabilities in The Projected Image: A History of Disability in Film in October Lawrence Carter-Long Joins TCM's Robert Osborne for Historic Month-Long Film Exploration, Presented in Collaboration with
The Americans with Disabilities Act: CEC Celebrates 22nd Anniversary
On July 26, 2012 the United States will mark the 22nd anniversary of key landmark legislation, the Americans with Disabilities Act, also known as ADA (Public Law, 101-336). Signed into law by President George H.W. Bush, this historic legislation resulted
Self-directed learning helps some students reach goals, study suggests
Students with cognitive and learning disabilities that were taught the fundamentals of self-determination were more likely to access mainstream curricula and achieve their academic and other goals, according to new research by Karrie Shogren, a professor
Insights for autism from tuberous sclerosis complex
Genetic risk: Mustafa Sahin studies tuberous sclerosis, a rare genetic disorder that leads to autism in about half of the cases. Whole-genome sequencing studies published in the past few years suggest that there are somewhere between 100 and 1,000 rare g
Teaching Reading to Children with Special Needs
On Friday July 27, 2012, Nicole and Terri will be interviewing Dr. Kathleen Whitbread about the importance of including children with special needs in reading instruction. In todays schools, children who are deemed incapable of reading, are usually pulle
Insights into How Deaf Brain Processes Touch and Sight
People who are born deaf process the senses of touch and sight differently than those who are born with normal hearing, a new study reports. The finding supports the notion that loss of a sense, such as hearing, affects brain development. Hearing loss th
Community Conversation: Autism and Public Discourse
I agree with you 100%. Is raising my son easy? In no way it is...maybe harder than others, maybe the same, I don't know, I don't raise other's kids. But the constant complaints of parents about how difficult the children are, and I believe mostly so that
Autism, Siblings, and Fairness
Shannon Des Roches Rosa www.Squidalicious.com www.ThinkingAutismGuide.com Thirteen-year-old Iz is a wonderful big sister to Leo, who is just 21 months her junior. This photo is of the two of them at a family reunion earlier this month; she's letting Leo
Bright Not Broken – Dr Fred Volkmar – Yale Child Development – Jul 26,2012
This week we continue our conversation on ASD and DSM-5 with leading autism expert and bestselling author Dr. Fred Volkmar director of The Yale Child Development Center. Dr. Volkmar will address the overall rate of autism (1-88) and the percentage that i
School-Wide PBIS & Teachers Who Bully
One reason, I suspect, is that people are so focused on holding bullies accountable that they’re not focusing on the real causes of bullying. But, that’s a reactive strategy rather than a proactive attempt to prevent bullying in the first place. Addition
Diencephalic-mesencephalic junction dysplasia: a novel recessive brain malformation
1 Department of Clinical Genetics, Division of Human Genetics and Genome Research, National Research Centre, Cairo 12311, Egypt 2 Department of Radiology, Cairo University, Cairo, Egypt 3 Department of Paediatrics, Seattle Children’s Research Institute,
Dole, Coehlo Urge Congress To Ratify Convention On Rights Of Persons With Disabilities
(The Hill) July 18, 2012 WASHINGTON, DC-- [Excerpt provided by Inclusion Daily Express] As two individuals with disabilities who served in Congress, the passage of the Americans with Disabilities Act in 1990 was not only a proud moment in our careers, it
The physics of autism
People sometimes say that children with autism “march to a different drummer” or “vibrate at a different frequency.” New research analyzing electrical activity in the brain—via electroencephalography, or EEGs—makes it tempting to speculate that these cli
“We Want Respect”: Adults with Intellectual and Developmental Disabilities Address Respect in Research
Abstract Respect is central to ethical guidelines for research. The scientific community has long debated, and at times disagreed on, how to demonstrate respect in research with adults with intellectual and developmental disabilities. To illuminate the v
Ollibean Think Tank Member Amy Sequenzia
Amy Sequenzia is a poet and autistic self-advocate. Her writing is as beautiful and powerful as she is. She is an extraordinary voice in the disability rights community .
Florida Alliance for Assistive Services and Technology ( FAAST)
About FAAST Our Mission is to improve the quality of life for all Floridians with disabilities through advocacy and awareness activities that increase access to and acquisition of assistive services and technology. We value each individual's right to achieve their highest potential and the possibilities that can be realized through collaborative efforts focused on the goal of improving life for Floridians with and without disabilities. FAAST has worked with thousands of people with and without disabilities throughout the state to provide: Hands on assistive technology demonstrations and trainings Financing for assistive technology purchases Assistive device lending programs Community outreach to rural and
Global Update: Children With Disabilities Are Victimized More Often
VIKTOR DRACHEV/Agence France Presse, Getty Images Children with disabilities are almost four times more likely to be victims of violence than other children, according to a new report commissioned by the World Health Organization. The report , published
Autism and the Feel-Good Story
When Yvonne Freaney killed her 11-year-old autistic son, she defended herself by saying that he must have wanted to be murdered because "he won't be autistic in heaven." There are some who regard heaven as their ultimate reward even if they have a reason
Ollibean Baseball Camp
Cool camp for kids with Special Needs. It's free and everybody plays. July 16th through August 2, Monday through Thursday,8am to 10 am, at Palma Ceia Little League, Field C, Tampa Fl.
Why Would We Want Inclusive Education?
Why would we separate, segregate and alienate children from one another while at the same time teach them to look after the world around them, respect differences and take a stand at injustice?
New Law Increases Safety for People with Developmental Disabilities Traveling on School Buses
Trenton, NJ – Taking another important step in the Christie Administration’s commitment to support individuals with developmental disabilities, Acting Governor Kim Guadagno today signed into law legislation that secures school bus safety precautions for
Tennessee Council on Developmental Disabilities
The Council is in the process of completing our annual update to the five-year state plan. This current plan is in effect for federal fiscal years October 1, 2011 through September 30, 2016. The plan is updated and resubmitted to our federal oversight ag
Bullying Prevention State Laws
This new brief focuses on bullying prevention legislation. To date, 47 states have passed legislation requiring schools to take leadership in addressing the problem. This brief provides information on elements of a bullying prevention plan, the school’s
Perfect Ballet Slippers from Linge Shoes
We are obsessed with these ballet slippers from Linge Shoes. We get the skinny from designer/entrepreneur Whitney Evans about her exquisite shoes- perfect for moms and daughters alike.
New York State Developmental Disabilities Planning Council
The New York State Developmental Disabilities Planning Council is a Federally-funded New York State Agency working under the direction of the Governor's Office. The DDPC is responsible for developing new ways to improve the delivery of services and suppo
Saliva and pupil size differences in autism show system in overdrive
ScienceDaily (July 12, 2012) University of Kansas researchers have found larger resting pupil size and lower levels of a salivary enzyme associated with the neurotransmitter norepinephrine in children with autism spectrum disorder. However, even though
Amy Sequenzia: “Just Me”
Amy Sequenzia writes about rejecting society's many labels. Perceptions such as “super spectacular” autistic and “low-functioning” are equally harmful .
Support the Convention on the Rights of Persons With Disabilities (CRPD)
The Convention on the Rights of Persons with Disabilities (CRPD) is an international treaty that outlines the obligations of ratifying countries to promote, protect, fulfill, and ensure the rights of persons with disabilities. It embodies the American id
Strong communication between brain and muscle requires both having the protein LRP4
Communication between the brain and muscle must be strong for us to eat, breathe or walk. Now scientists have found that a protein known to be on the surface of muscle cells must be present in both tissues to ensure the conversation is robust. Scientists
Leaders@ED: Alexa Posny, Assistant Secretary for Special Education and Rehabilitative Services
Alexa Posny has had 23 jobs. While she never envisioned a specific career path, every position she held was a stepping stone towards her current position as the Assistant Secretary for Special Education and Rehabilitative Services (OSERS) at the U.S. Dep
Deaf people “feel touch” with hearing part of brain
(LiveScience) Individuals who are born deaf use the "hearing" part of their brain to feel touch and to see objects, suggests new research that highlights the plasticity of the human brain. The new study, detailed online July 11 in The Journal of Neurosci
Ollibean Baseball Camp July 10th – Aug 2nd
Ollibean Baseball Camp info! From July 10th through August 2nd , 8am to 10am free baseball camp for kids with special needs at Palma Ceia Little League. The amazing sister and brother team of Katie and Sam Martin have put together a great baseball camp for Ollibean ! Thanks to our friends and Challenger League Leaders and Palma Ceia Little League, camp will take place at PCLL Field C this Tues July 10 (from 8am to 10 am ) through August 2nd!! You do not have to attend the entire time but you are certainly welcome to. It is free and
Change Leader: Dr. Charles Price
If you could change one thing about the world, what would it be? "More acceptance, tolerance and understanding. Everyone is trying to get through life the best way they know how. Some are dysfunctional while others are externally successful. Not everything is as it seems on the surface".
Inclusive Educational Practices for Students with Special Needs
Studies have shown when kids with disabilities are educated in inclusive settings, the classrooms are better for all of the students.
International Hip Dysplasia Institute
The International Hip Dysplasia Institute (IHDI) is a collaborative, international, not-for-profit effort to improve the health and quality of life of those affected by hip dysplasia. Our goal is to provide education to patients, families, and physicians as the most comprehensive and reliable resource for knowledge about hip dysplasia in its various forms. What is Hip Dysplasia? Hip Dysplasia means that the bones of the hip joint are not aligned correctly. It affects thousands of children and adults each year and is known by many different names: Developmental Dysplasia of the Hip (DDH) Hip Dislocation Congenital Dislocation of the Hip (CDH)
A Letter to Parents of Children with Special Needs
I hope you have an enjoyable and relaxing summer with your family! Don’t forget to keep your child reading, practice some math facts or maybe even keep a journal of your family vacation. It's easy to forget about school for the summer and let the days pa
Introducing Ollibean Think Tank Member Nicole Eredics
We are very proud to introduce Ollibean Think Tank member, Nicole Eredics of the Inclusive Class . We know you are going to learn as much from Nicole as we have. She is kind, extremely knowledgeable, and beyond lovely. She really is the consummate teacher. Listen to any one of her podcasts or read her blogs and you'll see what we mean. Nicole is very committed to inclusion and we are grateful to have her share her knowledge with us. Welcome, Nicole! Hello! I’m Nicole Eredics and I’m an Elementary Teacher who has spent over 15 years teaching in an inclusive school
Special-Ed Students at Greater Risk of Bullying, Being Bullied: Study
TUESDAY, July 3 (HealthDay News) -- Students with visible disabilities and those receiving special education services for behavioral problems are at greater risk of being bullied and of bullying others, according to a new study. These children also are m
Dinosaur Claw: Physical Therapy for Cerebral Palsy
"Helping Hands" at Rice University have developed Dino-Might, a controller/game designed for patients with cerebral palsy to use for physical therapy.
Jedd Hafer of Love and Logic ® answers your parenting questions
We recently had the pleasure of speaking with Jedd Hafer, of Love & Logic® and asked him some of our questions. Jed's one of those people that you start talking to and feel like you've known him forever.
ASAN Public Comment on Defining HCBS in 1915i
The Autistic Self Advocacy Network applauds the Centers for Medicare and Medicaid Services’ decision to move forward on regulations defining the scope of settings acceptable under the 1915i state plan option. We concur with CMS that this definition, once
Parents of Malnourished Boy “Caring, Fit”
Victor and Oliafa Ramos may have been misinformed, Grey said, but they were trying to care for their sick child. The little boy was so depleted when he arrived at the hospital, he couldn't walk, according to court documents. He weighed 29 pounds, his sto
With mind-reading speller, free-for-all conversations that are silent and still
Researchers have come up with a device that may enable people who are completely unable to speak or move at all to nevertheless manage unscripted back-and-forth conversation. The key to such silent and still communication is the first real-time, brain-sc
Change Leader: Larry Bissonette
Our first Change Leader is artist and disability rights advocate, Larry Bissonnette. Larry's art, writing, presentations, and films are changing perceptions about disability around the world. His quote in Wretches & Jabberers, "More like you than not" says it all.
National Council on Disability (NCD) Honors Life of Justin Dart
Listen to the heart of this old soldier. As with all of us the time comes when body and mind are battered and weary. But I do not go quietly into the night. I do not give up struggling to be a responsible contributor to the sacred continuum of human life
Amy Sequenzia: Happy to be Myself
Respect, understanding, acceptance.Things that make me happy.Respect, understanding, acceptance. These things make me grow.
Christine Ashby appointed director of School of Education’s Institute on Communication and Inclusion
School of Education Dean Douglas Biklen has announced the appointment of professor Christine Ashby as director of the Institute on Communication and Inclusion (ICI), effective June 1. The ICI, formerly the Facilitated Communication Institute, conducts re
Cooling Therapy for Birth Disorder Boosts Later Survival
A treatment that cools the bodies of infants who lack sufficient oxygen at birth brings benefits that last for years, a new study confirms. Infants sometimes develop severe oxygen deficiency during the birth process. This condition—known as birth asphyxi
Happy Father’s Day to all of the amazing dads presuming competence
Happy Father's Day to all of the amazing dads and stepdads raising children who do things differently- who love and appreciate them for exactly who they are. Thank you for setting a great example every day, for treating your children with respect, so your child expects that same respect from others. Thank you for believing in your child's capabilities, for seeing their strengths, so they grow up seeing their own and expecting others to do the same. Thank you for advocating for your child’s rights, for showing them their rights are worth advocating for. Thank you for fostering your child's
ASAN Public Comment on DSM-5 ASD Criteria
Today is the last day to provide public comment to the American Psychiatric Association (APA) regarding the definition of ASD within the DSM-5, the manual used by physicians and many policymakers to define autism and other disability diagnoses. You can f
Holly Robinson Peete and the Living with Autism Workshop
Holly Robinson Peete describes one of her main goals for HollyRod is to eventually create a St. Jude’s like center for autism where children can receive treatment.
Threats from fellow inmates delay arraignment of woman accused of starving child
A 23-year-old Burien woman accused of starving her 2-month-old son did not appear for arraignment Thursday because of concerns about her safety. Katherine A. Mattern has been held in "protective custody" at the King County Jail since shortly after her Ju
43 arrested in Capitol protest over service cuts
Sacramento -- Hundreds of home care workers and their clients filled the hallways of the state Capitol on Wednesday, shouting and cheering as they made a last-minute push to save the In-Home Supportive Services program from the budget ax. Forty-three peo
Chromosome Disorder Outreach, Inc.
Chromosome Disorder Outreach, Inc. is a non–profit organization, founded, supported, and run by parents just like you. Our children are affected by a wide range of chromosome disorders, including deletions, duplications, trisomies, inversions, translocations, and rings. Sometimes these disorders are so unusual that doctors tell us, "You’re the only one out there." But now using our newly introduced web application we have the capability to specifically categorize chromosomal karyotypes and finally begin to understand more about the genes involved in each rare chromosome rearrangement. We hope to eventually improve specifically tailored treatments to help affected individuals.
Everything’s fine, he’s doing great and other half-truths
Writing about Sebastien and the Setins for One Day without Starbucks for Sebastien and Mitochondrial Disorders, made me think about how difficult it can be to talk about your child's very serious medical issues, even with good friends. I have many dear friends who have children that are currently living with or have had life threatening issues. Every single one of those kids and their families, make it look easy. So easy, in fact, that some people don't realize how hard it can be for many kids - going to a million doctors appointments, the surgeries, not feeling well. Often, it's hard
Top 3 FAQs About Inclusive Education
Parents naturally want what is best for their child, particularly when it comes to education. If a parent is not very familiar with inclusive education or had a child in an inclusive school, they have many questions and concerns. While too numerous to list, here is the top 3 frequently asked questions about inclusive education: Why isn’t there an inclusion program in my child’s school? Inclusive education is not considered a program that can be offered by schools. Inclusive education is a philosophy that the entire school district must believe in and support. The belief that all children should have
An Oregon School for Troubled Teens Is Under Scrutiny
On April 28, the U.S. Supreme Court will hear arguments in a case that has caused anguish in the world of special education and children's mental health. The case, Forest Grove v. TA, centers on the question of whether families with a disabled child have
Amy Sequenzia: Respect How I Choose to Speak
I type my words because I am non-speaking. One of my disabilities, or one characteristic of my disability, is that my body does not move like my brain wants. That of course, includes my arm. And I use my arm, my hand and my fingers to communicate. I also need the support of someone to help me coordinate and synchronize my brain and my finger. I need to define support. It is the physical support of helping me type slower than my brain works, being able, at the same time, to feel my movement, knowing when to let go, when
Genetics: 2q21.1 variations link autism, attention deficit
Copy cat: Repeated stretches of DNA on either side of the 2q21.1 genomic region (top and bottom, here) have made it difficult to spot the region in genetic screens. Researchers have found deletions and duplications of a small piece of chromosome 2 in peo
Phonological Awareness and Print Knowledge of Preschool Children With Cochlear Implants [Article]
Correspondence to Sophie E. Ambrose, who is now at the Center for Childhood Deafness, Boys Town National Research Hospital, Omaha, NE: sophie.e.ambrose{at}gmail.com Purpose: To determine whether preschool-age children with cochlear implants have age-appr
One Day without Starbucks for Sebastien and Mitochondrial Disorders
Sebastien is an 11 year old boy, who likes to do things any other 11 year old boy likes to do- play video games, watch sports on tv (especially his favorite player, Lebron James), and play baseball.
Why Do Schools Resist Writing Methodology into IEPs?
Our child has a learning disability and has difficulty reading, writing & spelling. Nobody at the school understands dyslexia or how desperate our child is. We want multi-sensory learning like an Orton Gillingham approach. The school said they get to cho
Hurtful use of the ‘R’ word
We are writing to express our offense at a term used in Robert McCartney’s May 24 Metro column, “ One way or the other, a grim conclusion about Mayor Gray .” In referring to the leadership of D.C. Mayor Vincent C. Gray (D), McCartney stated that he “help
Ohio runner with cerebral palsy, 11, becomes YouTube hit
COLUMBUS, Ohio (AP) – When John Blaine realized 11-year-old Matt Woodrum was struggling through his 400-meter race at school in central Ohio, the physical education teacher felt compelled to walk over and check on the boy. "Matt, you're not going to stop
$1 million suit alleges teacher abused autistic boy
By Chris Roberts, NBCBayArea.com SAN FRANCISCO -- A special education teacher in Redwood City has been hit with a $1 million lawsuit by the mother of a 5-year-old autistic child for allegedly kicking and starving him, according to reports. Nadia Cortez s
National Federation of the Blind
With more than 50,000 members, the National Federation of the Blind is the largest and most influential membership organization of blind people in the United States. The NFB improves blind people's lives through advocacy, education, research, technology, and programs encouraging independence and self-confidence. It is the leading force in the blindness field today and the voice of the nation's blind. In January 2004 the NFB opened the National Federation of the Blind Jernigan Institute, the first research and training center in the United States for the blind led by the blind.
Larry Bissonnette featured on National Geographic
The amazingly talented artist Larry Bissonnette, of Wretches Jabberers, will be featured on an upcoming episode of the National Geographic TV program, Taboo.Check it out.
Matt W’s Field Day Race
Matt ran an amazing race on field day at Worthington, Ohio's Colonial Hills Elementary School. According to the Youtube video, Matt was given the opportunity to sit out, but after watching this kid run, you can see why that wasn't ever an option for him. The strength and determination Matt shows in completing this race is incredible. Matt has cerebral palsy which makes running challenging, but that does not stop him. Love seeing his classmates and teachers encouraging and supporting him all the way to the finish line.
Stop IDEA Funding Cuts!
There could be some big changes awaiting you during the next school year if Congress does not act soon to save programs for children with disabilities such as the Individuals with Disabilities Education Act (IDEA). Many federal programs will automaticall
The Lighter Side: Top 10 Signs of Advocate Overload
–From one of our favorite advocates who loves the 4 seasons in TX – drought, flood, blizzard, & twister, is a COPAA member and a faithful conference attendee. We hope, in spite of “advocate overload,” he made it safely home from Miami. 1. You noticed tha
Thirty national disability organizations blast “Deadly Consequences” segment of the Dr. Phil show
“This segment was such a horrific assault on people with intellectual disabilities that ignoring it would be a dangerous mistake.” According to the letter, the segment “presented the idea that parents should be able to euthanize their children who have i
MindSpec launches new science outreach website: Autism Reading Room
MindSpec proudly announces the public launch of its new science outreach website, Autism Reading Room (http://readingroom.mindspec.org). Autism Reading Room is the first comprehensive online project to build bridges between autism research scientists and
Diffuse White Matter in Brain Linked to Language Impairment, Amplified with Autism
Research published last month in the American Journal of Neuroradiology found anomalies in the connecting neural tissues between two primary language processing centers of the brain in autistic children and children with language impairment. The findings indicate that the differences existed in all participants but were more pronounced when language impairment was a factor for the child.
Supporting Adults With Autism
By Melanie Grayce West Over the last decade, there's been a general increase in awareness of the need to provide tailored services, support and education to children with autism and other developmental disabilities. But there's been less talk about the n
Science-Based Decision-Making in Special Ed
Last month, I wrote an article for Special Education Advisor, a blog operated by some folks located in Chatsworth, CA who are dedicated to helping parents of children with special needs. You can see the article by clicking here. The title of the article
The Setin Family and The Foundation for Mitochondrial Medicine
Sandra and Christophe Setin are parents to 3 great kids, their oldest, Sebastien, was diagnosed with MELAS when he was 3 years old, he is now 11. Sandra is on the Board of FMM, the Foundation for Mitochondrial Medicine and The Pepin Academies. Sandra and Christophe have created a spice, Chef Jean-Christophe's Provencal Meat and Poultry Rub to raise awareness and funds for a much needed cure for mitochondrial diseases. ALL profits go directly to research through The Foundation for Mitochondrial Medicine. Their spice is delicious, Christophe may be the trained chef, but Sandra is also a fabulous cook. Check out their
Report: Disabled Face Transportation Barriers
WASHINGTON, DC -- Two civil rights organizations are highlighting disparities in transportation access for people with disabilities. "Equity in Transportation for People with Disabilities," a report by The American Association of People with Disabilities
Jackson, Miss., schools to no longer handcuff students
JACKSON, Mississippi (AP) — Public schools in Jackson, Mississippi, will no longer handcuff students to poles or other objects and will train staff at its alternative school on better methods of discipline. Mississippi's second-largest school district ag
Are charter schools bad at special ed?
Critics say public charter schools have an unfair advantage over regular public schools because they are less likely to have students with learning disabilities. That is not always true. Consider one D.C. charter management organization, DC Prep, with mo
Does “Eligible for Special Ed” Mean an IEP?
My 15 year old daughter was determined eligible for special education. The special ed teacher was pushing for a 504, I want an IEP. If she qualifies for special education doesn’t that mean she gets an IEP? The answer to your question about an IEP v. a 50
Cycling Study Aims to Improve Movement of Children with Cerebral Palsy
AUSTIN, Texas - (May 23, 2012) - Cycling training is an effective therapy for children with cerebral palsy, a type of brain injury that causes altered development in both children and adults. It is one of the most common movement disorders in children an
Helping Special Education Students, and Paying With His Career
There was no particular moment when Harris Lirtzman decided to blow the whistle, and so close the door on his teaching career. A former deputy state comptroller, he had decided to give public school teaching a midcareer whirl. In 2009, he landed a job as
Assistive Technology – What is UDL, NIMAS, and AIM?
The National Instructional Materials Accessibility Standard (NIMAS) creates a national standard for print materials in accessible formats. Schools and publishers must adhere to these standards when creating educational materials – textbooks, workbooks, a
Many Parents of Kids With Autism Don’t Put Faith in Pediatricians
WEDNESDAY, May 16 (HealthDay News) -- Many parents of children with an autism spectrum disorder don't feel they can turn to their pediatricians for advice on treatments, a new study finds. Likewise, many pediatricians don't think they have the knowledge
iPad gives voice to kids with autism
Sharia Siddiqui uses an iPad to help her communicate. Her father says it's "given her a sense of control she never had." STORY HIGHLIGHTS Touchscreen iPads are giving voice to autistic children, adults Apps for it and other tablets aid those with trouble
Autistic Kids at the Movies: Where Shhhh Isn’t Allowed
On April 10, thousands of children with autism will be able to do something that for many of them was impossible until recently: go to the movies. They'll see How to Train Your Dragon at one of 93 "sensory-friendly" screenings in 47 cities across 30 stat
1 In 3 Autistic Young Adults Lack Jobs, Education
CHICAGO (AP) â One in 3 young adults with autism have no paid job experience, college or technical schooling nearly seven years after high school graduation, a study finds. That's a poorer showing than those with other disabilities including those who ar
Howard graduate caps a four-year fight for access
Britney Wilson graduated Saturday from Howard University in a flourish of collegiate honors: Phi Beta Kappa, summa cum laude. But none of them brought quite the same rush of pride as the shiny new handicapped door-opener that awaited her back at the resi
Marine returns from war to surprise: Son with cerebral palsy walks for the first time
Staff sergeant Jeremy Cooney hugs his son, Michael, after the boy with cerebral palsy surprised his father by walking to him. (CBS) (CBS News) A U.S. Marine serving in Afghanistan traveled thousands of miles home for a reunion with his family, but it was
Growing Old with Autism
Noah Greenfeld, 42, who spent 15 years in a state mental facility, is now in an assisted living home near his parents in Los Angeles. Noah, my younger brother, does not talk. Nor can he dress himself, prepare a meal for himself or wipe himself. He is a 4
Thank you to the best beta testers on the planet
We appreciate the excellent feedback, and are making changes based on the input from our incredible and highly intelligent group of Beta Testers ( parents, kids living with diffability, self-advocates, therapists, educators, physicians, and freedom fighters) Hang on, fasten your seat belts, it might be a little bumpy along the way, but it will be worth it, we promise.
A Daughter With Down Syndrome Is The Perfect Sister
Kelle Hampton is the author of the memoir Bloom: Finding Beauty in the Unexpected. "See that right there?" the obstetrician asked as she glided the sonogram wand across my middle and pointed to a blurry image on the monitor. "It's a girl," she announced.
Sequencing Works in Clinical Setting to Help — Finally — Get a Diagnosis
Advanced high-speed gene-sequencing has been used in the clinical setting to find diagnoses for seven children out of a dozen who were experiencing developmental delays and congenital abnormalities for mysterious reasons. "I thought if we could obtain ev
Autism Speaks: Time to Listen by Autistic Self-Advocate Amy Sequenzia
Autism Speaks: Time to Listen by Autistic Self-Advocate Amy Sequenzia
Kids with cerebral palsy may benefit from video game play
ScienceDaily (May 7, 2012) Like their healthy peers, children with disabilities may spend too much time in front of a video screen. For children with cerebral palsy (CP), this leads to an even greater risk of being overweight or developing health issues
Autistic boy’s mother feels pressured by school
Amanda Edgett said her 10-year-old son is forced by his school to take a 40-minute walk each day at lunch. (CBC) Catherine Derry, a district education council candidate in the upcoming election, said Edgett’s story will sound familiar to many parents of
Comparing General Education to Special Education: What are the Differences?
Students with autism are educated in a variety of settings including general education (GE) and self-contained (SC) classrooms. In GE placements, students are educated with their peers by a general education teacher. In self-contained settings, students
The Coming Special Needs Care Crisis
Eli Toucey (left) has seizures and social issues that make it all but impossible to leave him with a random babysitter. What could really save Hillary Toucey’s life is a personal-care attendant to help with her 7-year-old son, Eli. Dark-haired, fair-skin
Being left out puts youths with special needs at risk for depression
The challenges that come with battling a chronic medical condition or developmental disability are enough to get a young person down. But being left out, ignored or bullied by their peers is the main reason youths with special health care needs report sy
Disability photography: Changing the world one photograph at a time
Researching the subject, I quickly realised that the majority of photographs of disabled people are very negative, and mainly used within charitable organisations. Having lived within a disability world all my life, I already knew that societies’ opinion towards disability is very negative, and that has to change. I knew from that moment on, that this was something that disability was passionate about portraying in a positive light.
Parents Wire Kids To Prove Teachers’ Verbal Abuse
CHERRY HILL, N.J. (AP) — Teachers hurled insults like "bastard," "tard," "damn dumb" and "a hippo in a ballerina suit." A bus driver threatened to slap one child, while a bus monitor told another, "Shut up, you little dog." They were all special needs st
U.S. Department of Education Reaches Agreement with School District on Services for Students with Disabilities
The U.S. Department of Education announced today that its Office for Civil Rights has reached a resolution agreement with the Memphis, Tenn., City Schools on aids and services to students with disabilities. The agreement resolves a compliance review init
SparkNotes – English Lit For Students With Attention Deficit Disorder
SparkNotes Android App Review by AndroidTapp.com | AndroidTapp. My first reaction to this new Android App, which makes English Lit short and to the point, was that I would never allow my kids to read the great works in summary form. We used to call littl
Dr Temple Grandin – Different Not Less – Apr 30,2012
We are honored to have Dr Grandin return for her fifth appearance on The Coffee Klatch. "Different Not Less " the phrase made famous by Dr Grandin's mother Eustacia Cutler in the HBO biopic Thinking In Pictures the story of Temple Grandins life, is the t
Working to Give All Students the Ability to Succeed
Tech-Now, Inc. is one of the many organizations across the country implementing the High School/High Tech Program, which provides young people with all types of disabilities the opportunity to explore jobs or further education leading to technology-relat
How to Use OAR’s Kit for Kids
The rising numbers of students with autism in public schools and the increased attention autism receives in the mainstream media further highlights the importance of student education about the disorder. OAR’s newest resource, the Kit for Kids, is a tool
Todd Drezner: Autism and the Hypothetical Child
Given how many autistic people there are in the world, it's odd how much of the conversation about autism revolves around children who don't exist. The most common such child is the one who is "indistinguishable from his peers." This is the child who will supposedly emerge after successful therapies or treatments for autism leave the child essentially "normal.
NuclearMitome Test most comprehensive genetic test available for mitochondrial disorders
After almost a year’s worth of clinical use, Transgenomic’s NuclearMitome Test appears to be succeeding in offering doctors a more efficient and complete method for diagnosing people potentially suffering from mitochondrial disorders.
Facebook blocks NC mom’s pictures of Special Olympics event
Diane Cornwell said her seven year old, Cole, who happens to have Down Syndrome had a great time at his first Special Olympics event last Friday. She uploaded an album of 40 pictures to share and says Facebook blocked it for inappropriate content and locked her account.
Struggle over how to evaluate special ed teachers
Lynne Sladky / AP In this April 3, 2012, photo, teacher Bev Campbell, left, holds up stuffed animals in front of student Sebastian Rodriguez in her special education class at Amelia Earhart Elementary School in Hialeah, Fla. More than a dozen states have
U.S. Education Department Reaches Agreement with Memphis City Schools on Aids, Services for Students with Disabilities
The U.S. Department of Education announced today that its Office for Civil Rights has reached a resolution agreement with the Memphis, Tenn., City Schools on aids and services to students with disabilities. The agreement resolves a compliance review init
Educational rights for children with AD/HD: A primer for parents
This primer for parents is aimed at helping parents recognize attention-deficit/hyperactivity disorder (AD/HD) and learn about the two main laws, the Individuals with Disabilities Education Act (IDEA) and Section 504 of the Rehabilitation Act of 1973, th
Sad, But True. Decision-maker v. Equal Participant
My school told me, “You are the expert at home and the district is the expert at school.” I did not agree to my daughter’s IEP. The district refused to allow me to tape record meetings and include my notes with the district’s notes. I filed a state compl
Children With Autism Are Often Targeted By Bullies
Lots of kids get bullied. But kids with autism are especially vulnerable. A new survey by the Interactive Autism Network found that nearly two-thirds of children with autism spectrum disorders have been bullied at some point. And it found that these kids
Inclusive Solutions
Together they have a combined experience of over 50 years experience as educational psychologists working across the UK. Previously as Principal and Senior strategic Educational Psychologists in Nottingham City LEA, they bring a wealth of practical, applied solutions and processes from their work with children and young people with exceptional needs aged between 0-19. Between 2001 and 2008 together they have written several books such as 'Keys to Inclusion' (2011) and published a number of books including: Incurably Human,Seeing the Charade and Dear Parents. Most recently they have set up a Community Interest Company together with Cat Wilson called "A Place in the
Outing The Prejudice: Making The Least Dangerous Assumption
We highly recommend this brilliant article by Zach Rossetti and Carol Tashie on their interpretation of Anne Donnellan's concept of presuming competence, the least dangerous assumption.
RESNA Releases Wheelchair Position Statement
The Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) has issued a position paper titled "The Application of Ultralight Manual Wheelchairs." Developed through RESNA's Special Interest Group on Seating and Wheeled Mobility, the paper highlights that: Wheelchairs should conform to the individual, and not the individual to the chair; Wheelchairs should be as lightweight as possible while also being fully adjustable to meet the individual's needs; and Wheelchairs that are lightweight and adjustable cause the least amount of injury to users and increase functionality.
TEDxPSU – Dr. Joseph Valente – Hearing the Unheard
Dr. Joseph Valente is involved in comprehensive research in childhood studies, comparative and international education, educational anthropology, deaf studies and disability studies.
OT students on reliability of ADA-Compliance Assessment Toolkit
Misericordia University student researchers recently had their findings about the reliability of the Americans with Disabilities Act-Compliance Assessment Toolkit (ADA-CAT) presented at the California State University, Northridge Annual International Tec
Deaf Olympic hopeful uses social media to fight discrimination
Marcus Titus, top U.S. breaststroker, rallied for change and got it. USA Swimming will allow the use of hand signals to accomodate Deaf swimmers at the summer Olympic trials.
Disabled Military Protection Act Allows Military Families to include Special Needs Trusts within the Survivor Benefit Plan
Currently, under the Survivor Benefit Plan (SBP), a military retiree can set aside up to 55 percent of his monthly retirement pay to provide their family members with a monthly stipend, after he or she dies. However, these benefits are counted as income
Subconscious Stereotyping
When it comes to negative stereotypes, your subconscious may not be the best dinner guest.
Upper Limb Therapy in Children With CP
Intensive goal-directed upper limb training programs using either constraint-induced movement therapy (CIMT) or bimanual training (BIM) achieved domain-specific changes in quality of life relating to feelings about functioning and participation and physi
SchoolBook: Testing Takes Its Toll on Special Needs Students
April 19, 2012, 8:12 a.m. It has been a challenging week for many third through eighth grade public school students in New York City, as they have started their days on Tuesday, Wednesday and Thursday with the federally mandated English Language Arts exa
An Autism Diagnosis in Minutes?
Ask anyone who has taken a psychological exam, words like “rapid,” “accurate,” & “mobile” simply are not ways of describing most clinical diagnostic measures. Luckily, at least for early detection of Autism, a group of doctors from the Center for Biomedical Informatics at Harvard Medical School are looking to change that.
Presuming Competence
This issue is very important to me because so many events and breakthroughs in my life happened because I was presumed to be competent. On the other hand, some events in my life were not so good because of a presumption of incompetence. The message of presumption of competence is of encouragement and acceptance. The presumption of incompetence sends a negative message, a message that says no matter how much one tries, success is out of reach. For disabled people, especially the ones who need more support, who can’t communicate through speech or who have other communication difficulties, this negative
Few Answers In Abuse Probes At Homes For Disabled
Fairview Developmental Center in Costa Mesa, Calif., is a sprawling facility of offices, residential buildings and therapy rooms set between a noisy boulevard and a golf course. Some 400 people with developmental disabilities live at Fairview. And while
The school with more teachers than students
18 April 2012 Last updated at 19:16 ET With autism diagnoses rising more and more parents are plunged into a battle to understand the condition and find their child the right treatment, writes Louis Theroux. Joey Morales-Ward is a 13-year-old kid who liv
Utterly Mark : A Vermonter with autism makes his inner voice heard through film
Mark Utter sits at a computer keyboard with a broad, toothy grin, his eyes closed and head cocked slightly, as though he were listening to a muse whispering in his ear. After a long pause, he opens his eyes and, with slow, deliberate movements, pecks at the keys with a single, outstretched finger.
Inclusive education still best model, says advocate
Gordon Porter says there are now hundreds of specialized teachers and thousands of assistants in the province. (CBC) A long-time advocate for inclusive education maintains it is still the right approach for students with special needs. But Gordon Porter,
Chosen Families
ChosenFamilies.org is a non-profit, charitable organization registered in the Commonwealth of Virginia and approved by the Internal Revenue Service to provide information to parents, family members, religious leaders and the general public on effective solutions to living in families with hidden disabilities. The purpose of ChosenFamilies.org is to help families living with hidden disabilities become fully incorporated into the body of Christ. Our mission is to provide resources, connections and encouragement to families with hidden disabilities and to educate and provide resources to religious leaders as they minister to families with these needs. ChosenFamilies.org is a community where people can
Implications of bringing genome sequencing Into the consulting room
These programs, which were discussed last month at a rare-diseases conference hosted by the Wellcome Trust Sanger Institute near Cambridge, UK, aim to provide a genetic diagnosis that could end years of uncertainty about a child’s disability. “The overarching theme is that genome-based diagnosis is now hitting mainstream medicine,” says Han Brunner, a medical geneticist at the Radboud University Nijmegen Medical Centre in the Netherlands, who leads one of the projects.
Spectrum Society
Mission Spectrum Society’s mission is to support people with disabilities to experience full citizenship and genuine belonging in community. We are committed to continuous learning and improvement through research into leadership and best practice. As a service providing agency, our focus is on strengthening the capacity of individuals and their personal networks, augmenting rather than replacing natural supports. Vision Spectrum Society for Community Living believes that community is enriched by the presence and contributions of its citizens with disabilities. We believe that together we can create a world where all people are valued, their voices heard, their choices respected. Values
Data Accountability Center (DAC)
This website provides public access to data about children and youth with disabilities served under the Individuals with Disabilities Education Act (IDEA) - Part B and C; technical assistance (TA) materials to support the collection, analysis and reporting of IDEAdata; and the forms and spreadsheets used for collection. DAC was funded in October 2007 by the Office of Special Education Programs (OSEP), U.S. Department of Education to provide information and TA to improve the quality of all state-reported data required by the IDEA. Westat and its subcontractor, Louisiana State University Health Sciences Center–Human Development Center, operate DAC as a 5-year cooperative agreement with
Technical Assistance and Dissemination Network
The Technical Assistance and Dissemination Network (or “TA&D Network”) is a network of approximately 45 Centers (this fluctuates as old projects end or new ones begin) funded by the Office of Special Education Programs (OSEP). These projects provide information and technical assistance to states, schools, educational professionals and families, on topics such as autism, deafness, disproportional representation, dispute resolution, learning disabilities, parenting children with special needs, positive behavior support and transition. The TACC works with the TA&D Network to coordinate and support the work of these projects. ABOUT THE TACC The Technical Assistance Coordination Center (TACC) was formed in 2008 to facilitate coordination, collaboration,
RETHINKING AUTISM – Dana Commandatore
All too often in the world of autism, celebrity and sex appeal are used to promote pseudo-science and personal agenda. Rethinking Autism wants to change minds, change the current media conversation and help give autistic people a more prominent voice in
Neglect probe police arrest three
16 April 2012 Last updated at 13:47 ET Three people have been arrested by police involved in an investigation at a day centre for people with learning disabilities in Cornwall. The John Daniel Centre in Penzance caters for more than 80 people. A 21-year-
‘Seclusion rooms’ for autistic students raise questions
Andrew St. Vincent's parents pose questions around the coffee table as the middle-schooler with autism builds a Lego city. They want to know about the room. "So you were in there by yourself?" his mother asks. "When would you be in that room?" his father
Life After IEPs
Welcome ! If you’re a parent or mentor of a young person with disabilities, Life After IEPs is for you. Whether your child is an elementary student or a high school graduate, you’ll find information, resources, and support you’ll need along the way. A challenging journey There’s joy on the path to adulthood. But it ain’t always easy. Perseverence, grace, and a good sense of humor are needed. It can be a bumpy road. Supports available during the IEP years will end after high school Unfamiliar laws, systems and jargon lie ahead Resources exist, but they’re scattered in
Stereotypes of Children with Disabilities
Stigmatization is one of the greatest obstacles to the successful integration of people with Trisomy 21 (T21 or Down syndrome), the most frequent genetic disorder associated with intellectual disability. Research on attitudes and stereotypes toward these people still focuses on explicit measures subjected to social-desirability biases, and neglects how variability in facial stigmata influences attitudes and stereotyping.
Purple
At Purple, we're dedicated to developing fast, easy and convenient communications solutions and services for Deaf and hard-of-hearing individuals and businesses using a variety of different platforms. As a leading provider of on-site interpreting services, video relay services (VRS), text relay services and video remote interpreting (VRI), Purple has built an excellent reputation for developing products and services that open communications between all people, regardless of differences in abilities, languages and locations. Because of our many innovations and firsts, including Internet relay, wireless relay, mobile communication apps, real local 10-digit number access for video and text relay customers and interpreting
My Valentine by Paul McCartney- Featuring Natalie Portman and Johnny Depp
Paul McCartney Directs His Own 'My Valentine' Videos Featuring Natalie Portman and Johnny Depp using ASL.
Autism Cares Foundation
The Autism Cares Foundation (ACF) was founded by the parents of a child with autism and other concerned parents, professionals and friends. The foundation was started as a means of helping others through the “puzzle” that is autism. At virtually every level, there are “twists and turns” in one’s attempt to reach the answers that many parents are seeking. As the founders discovered with their own child, answers are few, frustrations are many, and there are few places to turn to for answers. It is the intention of the Autism Cares Foundation to assist in “unwinding” the twists and turns
Seahawks GM John Schneider knows: Autism is a family diagnosis
RENTON — Ten-year-old Ben Schneider is a fun kid. He has a great laugh, loves Legos and playing video games. You can hear the pride in his parents' voices when they tell you how smart he is. When Ben was 16 months old, he could arrange the letters of the
Autistic Hoya: End the torture. Make this go viral.
The public must see what the Judge Rotenberg Center is doing. Their experts claimed that the public would not understand the content of this video without "proper context." There is no context that justifies the use of torture against anybody ever. The public has not merely a right but a responsibility to watch this video and share it everywhere.
Teachers Weigh-In: Do We Over Accommodate? Join the Debate…
Read more as teachers debate accommodations for students. Pete & Pam Wright and Advocate Pat Howey join the discussion. Take the poll – then click “read more” to add your comment and join the debate! I teach at a charter school. We feel that if the stude
Watching TV: Even Worse for Kids Than You Think
It's no secret that sedentary behavior contributes to obesity and chronically poor health. But not all sedentary behaviors are created equal, according to a new study that examines the link between blood pressure in children and their choice of inactive
Aspiring to Conquer Crossover Acting Path
It didn’t take much rehearsing for Russell Harvard, who plays the deaf son of a loquacious and argumentative British family in the Off Broadway play “Tribes,” to get inside his character’s skin. Like his character Billy, the 30-year-old actor is himself
Faces of Ollibean- We want to hear from you!
Every week we put the spotlight on another person out there making a difference. Share your story and inspire and motivate others to Be the Change.
Marlo Thomas: The Givers: What Inspires Michael J. Fox? A Very Personal Interview
Unbowed by his disease and still exhibiting his trademark energy, Michael reminded me not only of the single-mindedness that is fundamental to fighting for a cause, but also of the indestructibility of the human spirit -- one that looks at each new day as another chance to enjoy the magic and the gift of life. If only all of us could learn that lesson.
SEN / ICT
The sen / ict directory began life in August 2011 to act as a directory for Special Educational Needs and Information Communication Technology Resources. Companies can showcase their business, the products they produce and services they provide. There are also hundreds of FREE online resources from fun/educational games, activities and printable resources to tools that help disabled adults and children use computers and the internet by adapting and adjusting their technology. The sen / ict directory aims provide a central location for all your favourite resources, as well as introduce you to new ones you might not have found otherwise for your child
Planned and On-The-Spot Curriculum Accommodations in the Inclusive Classroom
The Paraeducator's Toolbox: Practical Strategies to Support Students with Learning and Behavioral Challenges 5.7.2012 9:00 AM - 3:00pm
Deaf children’s gesture mismatches provide clues to learning moments
In a discovery that could help instructors better teach deaf children, a team of University of Chicago researchers has found that a gesture-sign mismatch made while explaining a math problem suggests that a deaf child is experiencing a teachable moment. Teachers also frequently use their own gestures to help students learn. They can illustrate how numbers in an equation can be grouped, for example, to help students understand how to make both sides of an equation have the same value. The deaf child watching the interpreter will then miss any messages that the teacher sends in gesture and not in
Noncoding gene linked to autism
Small player: Moesin, a protein that is involved in brain development, appears to be regulated by a noncoding RNA that has been implicated in autism. Researchers have identified a noncoding RNA, a genetic message that is not translated into a protein, th
Interview Kate Winslet Golden Hat Foundation
Kate Winslet discusses her inspiration for the Golden Hat Foundation.
TumbleBookLibrary
TumbleBookLibrary is an online collection of TumbleBooks � animated, talking picture books which teach kids the joy of reading in a format they'll love. TumbleBooks are created by adding animation, sound, music and narration to existing picture books in order to produce an electronic picture book which you can read, or have read to you. The TumbleBookLibrary is a collection of licensed titles from children's book publishers such as Simon & Schuster, Chronicle Books, Candlewick Press, Charlesbridge Press, Harcourt, Little Brown, Walker & Company, Lerner Books, and HarperCollins Publishers, amongst others. The TumbleBookLibrary provides enrichment to students who are reading independently with a variety of
Love and Logic ®
What Is Love and Logic All About? The Love and Logic Institute is dedicated to making parenting and teaching fun and rewarding, instead of stressful and chaotic. We provide practical tools and techniques that help adults achieve respectful, healthy relationships with their children. All of our work is based on a psychologically sound parenting and teaching philosophy called Love and Logic. What Is Love and Logic? Children learn the best lessons when they're given a task and allowed to make their own choices (and fail) when the cost of failure is still small. Children's failures must be coupled with love
France’s autism treatment ‘shame’
By Hugh Schofield BBC News, Paris In many countries the standard way of treating autistic children is with behavioural therapy - stimulating and rewarding them to develop the skills they need to function in society - bu
OlliNEPAL at the SERC School
OlliNEPAL at the SERC School in Kathmandu
Kanti Children’s Hospital
MISSION To realize the vision, the Board has established its mission as the followings: To support GON plan to cut down children’s death rate by two-third by the year 2015. To be a leader in the field of quality child health education, training and research within the region. To develop professional exchange programs with other like-minded child health institutes within or outside the region. To exchange experience and knowledge with regional, zonal district hospitals and health centers on trainings and research. To provide expertise to government for the development of children’s hospital in the country. To set up a standard
Mother pleads guilty in Ohio malnutrition death
CINCINNATI The mother of a 14-year-old girl who had cerebral palsy and weighed 28 pounds when she died last year pleaded guilty to involuntary manslaughter and other charges Friday in southwest Ohio. Angela Norman, 42, of Dayton, entered the pleas in Mon
Shoreham students “experience” autism for a day
Fourth grader Nick Donnelly counted along with the rest of his classmates seated around the small cafeteria table at Miller Avenue School in Shoreham Thursday.When they reached 15, they pulled off the colorful bandanas that covered their eyes. Nick strai
Letter: Adults with autism must be a focus
Grim news regarding the prevalence of autism continues to make big headlines ["Keep effort going to unravel autism," Editorial, April 2]. It is jarring and heartbreaking.However, we must remember that autism is not specifically a childhood disorder. My 1
Adults with autism must be a focus
Grim news regarding the prevalence of autism continues to make big headlines ["Keep effort going to unravel autism," Editorial, April 2]. It is jarring and heartbreaking.However, we must remember that autism is not specifically a childhood disorder. My 1
Another Mom Faces Murder Charge in Child with Cerebral Palsy’s Death
A New York woman has pleaded not guilty to an upgraded charge of second-degree murder in the death last summer of her 8-year-old disabled daughter. Veronica Cirella, of Plainview, was initially charged with manslaughter after authorities said she admitte
2q37 Deletion Syndrome: Searching for Answers
The day after my son Aiden was born, the doctors noticed that his features were different from what they considered “normal”. As a new mom this frightened me, as I did not know or understand what was happening with my brand new baby. A geneticist was qui
Parents charged in death of Texas boy, 10
TEXAS CITY, Texas, April 5 (UPI) -- The parents of a disabled 10-year-old Texas boy whose body was found in a box are now charged in his death, authorities say. Texas City police said Tina Louise Madrid, 42, of Texas City was arrested Wednesday and was h
Epidemic, Awareness and Us, Autistics
By now everyone knows about the new numbers on autism diagnosis. And we have already seen the media jumping in the alarmist train: IT IS AN EPIDEMIC! My friend and I decided to look up some definitions for this word that has been used to classify me. This is what I found in one on line dictionary: epidemic noun a widespread occurrence of an infectious disease in a community at a particular time: a flu epidemic. a disease occurring in such a way. a sudden, widespread occurrence of a particular undesirable phenomenon: an epidemic of violent crime. Am I a
Hundreds of genes involved in autism, sequencing studies say
New network: Nearly 40 percent of the mutated genes identified in one exome sequencing study of autism are part of an interconnected network of interacting proteins. The largest set of exome sequencing studies, which analyze the protein coding region of
Never give up hope
My son Joey has Autism and Epilepsy. We want the world to know that Autism looks different for every child. Parents can't give up hope; they are the ones that lead the journey their kids are on and it is up to them how successful their kids will be. They
Therapists Address Esophageal Atresia
The Esophageal Atresia Treatment Program at Children's Hospital Boston in Boston, MA, is one of the only programs in the country specifically designed to care for children with this condition. Setting itself apart from the rest, Children's Hospital Bosto
Dysphagia (Swallowing Problems)
Melissa Conrad Stöppler, MD, is a U.S. board-certified Anatomic Pathologist with subspecialty training in the fields of Experimental and Molecular Pathology. Dr. Stöppler's educational background includes a BA with Highest Distinction from the University
Releasing IEE Data Without Parent Consent
I am a private psychologist. I completed an IEE, then turned in the report to the district and parents. We held an IEP meeting to review the results. Can the district request that I release my raw test data, test protocols, and test materials to the scho
Bill Introduced regarding special needs trust
H.R. 4329 -This bill or resolution was assigned to a congressional committee on March 29, 2012, which will consider it before possibly sending it on to the House or Senate as a whole. To amend title 10, United States Code, to provide for the payment of monthly annuities under the Survivor Benefit Plan to a supplemental or special needs trust established for the sole benefit of a disabled dependent child of a participant in the Survivor Benefit Plan.
Recording catches teachers mistreating special needs student
Two Alabama teachers have been put on administrative leave after the mother of a 10-year-old student with cerebral palsy attached an audio recorder to the bottom of his wheelchair and caught them scolding him about drooling, among other things. Jose Sali
HHS Announces New Members of Interagency Autism Coordinating Committee (IACC)
Health and Human Services (HHS) Secretary Kathleen Sebelius announced today that she has invited 15 individuals to serve as public members on the Interagency Autism Coordinating Committee (IACC). The IACC is a federal advisory committee established by th
The Upside of Autism
When it comes to disorders of the mind, our society has a tendency to seek out the safety of clear-cut categories. We want there to be a bright line separating normal from abnormal, health from sickness. Alas, the human brain is a category buster, an org
Communicate with Me | Savarese
Last year Dr. Sanjay Gupta of CNN wanted to talk to me so much that he flew me to New York and got me a room at the fanciest hotel in the city, but ironically at my school, most kids choose not to talk to me at all. Why is that? Recently I surveyed some of my close friends and discovered that most people aren't sure how to talk freely to me, and I greatly decided to use their questions as the basis for this piece.
Two-Thirds of Kids With Autism Have Been Bullied: Study
FRIDAY, March 30 (HealthDay News) -- Nearly two-thirds of American children with autism have been bullied at some point in their lives, and these kids are bullied three times more often than their siblings without autism, a new survey finds. Bullying occ
School bans disabled girl from using walker
Kristi Roberts was stunned when school officials insisted that her disabled 5-year-old daughter switch to a wheelchair from the walker she’d been using for the previous two years. Little LaKay had battled cerebral palsy and epilepsy since she was born, a
OlliNepal Update – March 29
The Ollibean/OlliNepal team finished up their trekking outside of Pohkara, Nepal and are headed back to Kathmandu for 7 days where they will volunteer at a local school, meet with OLE Nepal ,Kanti Children's Hospital, and SEEDs Nepal. The team's internet access & email has been fairly limited, so we are all exicted hear their reports of working with children with a range of diffabilities and delivering communication tools/tablets. Can't wait to see the pictures and videos!
Outsourcing to the Autistic Rather Than to India
Part of the reason autism has captivated Hollywood movie makers more than other development disabilities is that, for all the difficulties it brings those who have it, it also gives some of them the ability to perform uncanny feats of brainpower: effortl
Eric Dompierre barred from playing basketball with his high school team
Eric never let the fact that he was born with Down Syndrome stop him from playing. But now, he may have to cheer on his team from the bleachers. The association says because he's 19 years old, he isn't allowed to play in his senior year of high school. "I'd be sad if I couldn't play with them and not have them in my life. They want me to play, and I want to play with them," said Eric.
Ollibean Team Arrives in Nepal
The adventure begins! Beautiful start ! Greeted at Nepalese Airport by longtime friend, Topden Lama. Topden brought Tibetan scarves for the group
Helping Rare Disease Patients Find Their Voice
Stephen P. Spielberg, M.D., Ph.D., FDA’s deputy commissioner for medical products and tobacco, talks about lessons learned from the study of rare diseases. Patients often need advocates, and that can be especially true for people with a rare disease, who
Employer Best Practices for Workers with Caregiving Responsibilities
In 2007, EEOC issued guidance explaining the circumstances under which discrimination against workers with caregiving responsibilities might constitute discrimination based on sex, disability or other characteristics protected by federal employment discr
Education Department Awards $24.6 Million in Grants To Support Teacher and Principal Development
U.S. Education Secretary Arne Duncan today announced the award of nearly $24.6 million for three grants to improve student achievement by increasing the effectiveness of teachers and principals. Funded under the Supporting Effective Educators Development
ADA Kits for Hotel Guests with Hearing Loss
Harris Communications makes it easy to be in compliance with the new ADA requirements for deaf and hard of hearing hotel guests. Effective March 15, 2012, the Federal Americans with Disabilities Act (ADA) changed the accessibility requirements for guest
AT&T Accused of Improperly Billing for Service for Deaf
The Justice Department has accused AT&T of knowing that a calling service it offered for the deaf was being used by Nigerian swindlers and others to steal from American merchants. The department, which intervened in a whistle-blower lawsuit in federal co
Student with Down’s Syndrome wins right to challenge high school placement
Belfast's High Court has granted the girl leave to seek a judicial review of the original decision A girl with Down's Syndrome has won the right to challenge the denial of a place at the high school of her family's
People with autism possess greater ability to process information
ScienceDaily (Mar. 22, 2012) People with autism have a greater than normal capacity for processing information even from rapid presentations and are better able to detect information defined as 'critical', according to a study published March 22 in the
Whizz-Kidz
Our aim is to ensure that every disabled child has an opportunity to be something special…a kid. There are an estimated 70,000 disabled children and young people in the UK waiting for a wheelchair that fits their young lives. That’s where we come in. Whizz-Kidz provides disabled children with the essential wheelchairs and other mobility equipment they need to lead fun and active childhoods.
Hope Flies: Walk for Abby on Saturday, April 21, 2012
In Honor of Abby Sauerhoefer Date: Saturday, April 21, 2012 Time: Sign-in at 8:30 a.m.; walk starts at 10:00 a.m. Location: Broad Brook Elementary School, 14 Rye Street
NOAH
NOAH is a U.S. based nonprofit, tax-exempt organization that offers information and support to people with albinism, their families and the professionals who work with them. NOAH is operated by its members on a volunteer basis and is funded primarily by dues and contributions of its members. NOAH has also received grants from foundations and organizations for specific projects.
250 children living in nursing homes in Florida should get home care
Five year old Andi lives in a nursing home in Tampa because his family says the state won't pay for 24-hour care that would let him live with his two brothers and parents. A second lawsuit claims several thousand other children could end up in those facilities in Florida because of decisions by the state about their care.
Responding to People with Autism during Emergencies
Author Geoff Crist is the proud parent of a beautiful, energetic, curious, daughter, Sydney (aka Beanie), 11, who was diagnosed with moderate/severe autism when she was 18 months old. He is a career firefighter and nationally registered paramedic, has wo
Obama Signs ‘Thank You’ to Deaf Supporter
President Obama didn’t miss a beat last week when he encountered a group of deaf students along a rope line after his speech at Prince George’s Community College in Maryland. “I am proud of you,” signed Stephon, a 26-year-old coll
Mitochondrial Disease: Jeans for Genes
Many of us struggle with not knowing how we can make an impact on Rare Disease. Whether we are faced with the day-to-day difficulties of a rare disease itself, or we are passerby’s watching others’ demanding fight – many of us find ourselves scratching o
Physical Activity Proves a Vital Function in Cognitive Ability in Recent Studies
Physical activity among today’s youth in the United States has been on a steady decline while learning disorders like attention deficit hyperactivity disorder (ADHD) and others are on the rise. Scientists have yet to draw a direct causal link to physical
World Down Syndrome Day March 21!
Down Syndrome International presents the Global Video Event "LET US IN - I WANT TO LEARN!" in partnership with 68 countries for World Down Syndrome Day 2012.
Autistic Man, Jesse Saperstein Free Falls to End Bullying
Best-selling author, autism advocate and motivational speaker Jesse A. Saperstein is spreading an Anti-Bullying movement across America with his “Free-Falling to End Bullying in 2012” YouTube video hoping to put an end to torment in and out of the classroom.
Jesse A. Saperstein
Jesse A. Saperstein is a best-selling author, autism advocate and motivational speaker. He is considered one of the most respected leaders in the Anti-Bullying movement of his generation. Jesse also has a form of autism called Asperger's syndrome (AS). Individuals with Asperger's are impaired by a profound lack of social skills, common sense, and resistance to change in routine.
Catastrophic failures handling inquiry into report of abuse
In June 2005, Mrs Jenkins, who worked at the day centre as an administrative officer, witnessed one member of staff, referred to as Officer B, "yank" a woman with severe learning disabilities off the ground and push her into a toilet
Autism NOW: The National Autism Resource and Information Center
Autism NOW: The National Autism Resource and Information Center will be a dynamic and interactive, highly visible and effective central point of quality resources and information for individuals with Autism Spectrum Disorders (ASD) and other developmental disabilities, their families, and other targeted key stakeholders.
Police need training on autism
The arrest of an autistic teenager who could face four years in a Michigan prison shows the need to train police on dealing with autistic people, advocates say. In Maxson's case, Dungan said, he only became violent Feb. 9 when officers tried to handcuff him, and he was then stunned with a Taser and pepper-sprayed.
Lives Not Worth Living : by Amy Sequenzia
The title of this blog is an expression seen in many blogs written by disabilities advocates and self-advocates. Wasn’t his life worth living? Isn’t mine or the lives of all disabled people? The murder of 22 year-old autistic George Hodgins prompted the latest, very strong protests from the autistic community against the media coverage focused on the “reasons” for the killing, while ignoring George’s, the victim, life.
Differentiated Instruction in Today’s Classrooms
The IRIS Center is a national center that provides high-quality resources about students with disabilities for college and university faculty and professional development trainers. Visit IRIS’ website to find free, online, interactive training enhancemen
Understanding how social touch is processed differently by autistic people
A better understanding how social touch is processed differently by autistic and nonautistic people may lead to the development of strategies for family members and loved ones to touch people with autism in a way that soothes and fosters feelings of connection, rather than overwhelms.
Makayla Norman,14, was starved to death last year, attorney general calls for change
The Ohio attorney general is calling for change after learning a girl who starved to death was forgotten by the school system. Makayla Norman, 14, suffered from cerebral palsy and could not feed or care for herself. She died in Marc
iPad Summer Institute
Blog on the topic of assistive technology, eLearning, mind mapping, project management, visual learning, collaborative tools, and educational technology Presenters Brian S. Friedlander, Ph.D. & Christine Besko-Maughan, M.S., ATP July 10, 2012 Enhancing A
Never Lose Hope
Here is a letter to an individual who believed my children wouldn’t be successful. This is living proof that as parents, we are wiser than others who think they know better. I met you last year at a conference. This conference was held by a local organiz
Are These Good Annual Goals?
Is this annual goal written correctly for a high school freshman? Judy will improve reading comprehension skills by using graphic organizers to access the curriculum with 70% accuracy per quarter. 1. Judy will summarize or bullet important information in
University Center for Excellence in Developmental Disabilities (UCEDD) Georgetown University
The mission of the University Center for Excellence in Developmental Disabilities (UCEDD) is to promote self-determination, productivity, independence and inclusion of individuals with developmental and other disabilities across the life span, and in all aspects of community life. The Developmental Disabilities Assistance and Bill of Rights Act of 2000, P.L. 106-402, authorizes the University Centers for Excellence in Developmental Disabilities, Education, Research and Service (UCEDD). The University Centers for Excellence in Developmental Disabilities, Education, Research and Service (UCEDDs) are funded through the Administration on Developmental Disabilities (ADD) to provide leadership, advise federal, state and community policy makers about, and promote opportunities for people
Autistic Student Advocates for Herself, Other Autistics
“Because we see autism and other neurodevelopmental or neurological differences, conditions or disabilities as a natural variation of human diversity in terms of neurological diversity,” Brown says, “that means there’s nothing defective, wrong or diseased or broken. Therefore there’s no reason for a fix or for a cure.”
National Primary Immunodeficiency Resource Center
INFO4PI is designed for patients and their families, physicians, researchers, government officials, pharmaceutical companies, industry, and the general public to be able to quickly and seamlessly access information on Primary Immunodeficiency diseases and to realize earliest precise diagnoses, appropriate treatments and sometimes cures of the more than 150 different PI diseases affecting more than 10,000,000 children and adults worldwide.
The Center for Courageous Kids
The Center for Courageous Kids, also known as CCK, is a world class medical camp located in Scottsville, KY, serving children and families from across the country who are living with a variety of medical challenges. We are open year round and can host 120 kids at a time. When you add our counselors, volunteers, trained Programs and Medical staff, our mascot, Dr. Cubby the Courageous Lion, and our top notch facility, you start to see just how "We Prescribe Fun!" What makes The Center for Courageous Kids spectacular? *We are a 20 million dollar facility. *Our 168 acre campus encompasses an onsite
The Autistic Global Initiative (AGI)
The Autistic Global Initiative (AGI), a program of ARI, is comprised of a committee of adults diagnosed with autism spectrum conditions. Our members hail from all regions of the United States, representing the broad life span of autistic experience and expression. We are active as professionals and consultants in many fields within the autism community, including education, social work, medicine, employment, fitness and wellness, rehabilitation counseling and the visual and graphic arts.
Understanding Our Differences
In 1978, a group of parents of children with disabilities in Newton, Massachusetts founded Understanding Our Differences (UOD) as a nonprofit organization to increase information, understanding, and acceptance of people with disabilities and individual differences. The Understanding Our Differences disability awareness curriculum has grown rapidly in recent years and has been disseminated to more than 200 schools and youth organizations nationwide. More than 27,000 elementary school students and some 8,000 adult, high school and college students have participated as trained, volunteer instructors. The nationally recognized, award-winning program uses a hands-on, participatory curriculum to foster respect, tolerance, and compassion in elementary
School principal reprimanded told to work from home as a result of physical altercation with student
In April 2011 before a classroom of students and a security camera, Gray became violent with a special education student, according to a written reprimand in his personnel file. “During this incident you escalated the situation, became physically violent, grabbed the child by the shirt, and yanking the child out of the classroom and down the hallway,” reads York’s reprimand.
Deaf children four times more likely to be mistreated at school and have mental health issues
Researchers found that deaf children who cannot make themselves understood within their family are four times more likely to have mental health disorders and more likely to suffer mistreatment at school than deaf children who can communicate with their family members, according to a report published in March 15th issue of The Lancett.
The Lancet:The health of deaf people: communication breakdown
Andrew Alexander discusses how deaf people are often alienated from accessing the UK health-care system and what needs to be done to change this.
New ADA accessibility requirements took effect March 15
For the first time in history public fitness centers, public swimming pools, recreational facilities, parks, golf and mini-golf courses, detention facilities and courtrooms, playrooms and amusement rides must adhere to the governments accessibility requirements. The rules also clarify issues that have come up in the 20 years regarding bathroom dimensions, reach ranges and accesible routes.
Reading Club | ‘Navigating Love and Autism’
On Dec. 26, 2011, the front page of The New York Times featured an extraordinary article. Part of a series by Amy Harmon chronicling the coming of age of a generation of autistic youths, the article, “Navigating Love and Autism,” told the story of Jack R
Best Buddies Friendship Walk, April 21, 2012 : 12:00 pm-4:00 pm
The Best Buddies Friendship Walk is a fun-filled community fundraiser to support your local Best Buddies programs of inclusion. 4/21/2012 12:00 pm - 4:00 pm . Our friendship, integrated employment and leadership programs educate people with and without intellectual and developmental disabilities (IDD) to be advocates for social inclusion in your community. Walk Registration: No Fees Register for the Friendship Walk and begin fundraising for Best Buddies Florida! Cotanchobee Fort Brooke Park 601 Old Water Street Tampa, FL 33602 For more information Participant Registration Form Join Ollibean's Friendship Walk Team
The Center on Human Policy, Law, and Disability Studies
The Center on Human Policy, Law, and Disability Studies (CHPLDS) is an expansion of the Center on Human Policy, which was founded by Dr. Burton Blatt in 1971. The Center is a network of academic programs, centers, student organizations, and affiliated faculty whose research, teaching, and advocacy seeks to promote the rights of people with disabilities locally, nationally, and globally, and to facilitate a critical examination of disability as an aspect of diversity in society.
National Disability Rights Network
NDRN’s mission is to promote the integrity and capacity of the P&A/CAP national network and to advocate for the enactment and vigorous enforcement of laws protecting civil and human rights of people with disabilities. The Protection and Advocacy (P&A) network was created by Congress after the Willowbrook scandal unearthed the horrible conditions in that institution. Read more about the Network's history here. The newly created P&A agencies began to realize that in order to be able to advocate for their clients, they needed a national voice in Washington, DC for their own protection, survival and growth. This was especially true, as soon
TASH Responds to AASA Position Supporting Restraint and Seclusion in Schools | TASH
Last week, the American Association of School Administrators issued an unsubstantiated, ill-informed and reckless report in which it voiced support for restraint and seclusion use on children in our schools. This report gained much attention through e-mail circulation and national news reports. TASH has responded in order to bring clarity and truth to the conversation. http://tash.org/tash-responds-to-aasa-position-supporting-restraint-and-seclusion-in-schools/ via TASH Responds to AASA Position Supporting Restraint and Seclusion in Schools | TASH.
University Center for Excellence in Developmental Disabilities at Georgetown University
The mission of the University Center for Excellence in Developmental Disabilities (UCEDD) is to promote self-determination, productivity, independence and inclusion of individuals with developmental and other disabilities across the life span, and in all aspects of community life.
A dark legacy of forced sterilizations
Sterilization victims seek compensation STORY HIGHLIGHTS California forcibly sterilized 20,000 people from 1909 to 1963 The goal was to rid society of people labeled "feeble-minded" or "defectives" California's response to victims stands in stark contras
Police assaulted boy with autism
Metropolitan Police (Met) officers assaulted a 16-year-old boy with severe autism by forcing him into handcuffs and leg restraints during a school trip, the High Court has ruled. The judge said the boy, now 19, also had his human rights breached. The boy, who also has epilepsy, was subjected to disability discrimination and false imprisonment, it was ruled.
Study may help understanding multiple sensory stimuli processing in autism
“Statistically optimal combination of multiple sensory stimuli has been well documented in humans, but many have been skeptical about this behavior occurring in other species,” said neuroscientist Anne Churchland, who led the study appearing in the March 14 issue of the Journal of Neuroscience. “Our work is the first demonstration of its occurrence in rodents.” People with autism are often unable to choose which sensory stimuli to pay attention to and which to ignore. “By observing this behavior in rodents, we have a chance to explore its neural basis – something that is not feasible to do in people,” Churchland explained.
Help for Families with ASD
Researchers at the University of Utah have created a program that helps children with autism spectrum disorders (ASD) focus on building their skills and utilizing an aptitude for visual-spatial thinking, computers and other electronic media. Cheryl Wrigh
Stephen Hawking to Guest Star on ‘The Big Bang Theory’
It’s a dream come true for “The Big Bang Theory:” world renowned British physicist and cosmologist Stephen Hawking will guest star on the sitcom early next month. A press release put out by CBS said Hawking, 70, will “share his beautiful mind with his most ardent admirer, Sheldon Cooper” on the show’s April 5 episode.
Research on Rare Bone Disorder Reveals New Insights into Autism
“There is growing evidence that many autistic people have related genetic defects, or defects that are exacerbated by this one,” said Yu Yamaguchi, M.D., Ph.D., professor in the Sanford Children’s Health Research Center at Sanford-Burnham. Children with
Institute on Human Development and Disability
The Institute on Human Development and Disabililty (IHDD) has been Georgia’s University Center for Excellence in Disability Research, Education and Service (UCEDD), and ranks as one of The University of Georgia’s oldest continuously-funded federal programs. The IHDD works with people who have disabilities and others, to ensure that all people can achieve their highest capacity and quality of life.
Acceptance
Welcome new Ollibean writer, Amy Sequenzia! We know you're going to love her blog and her poems........ "Accepting myself is an on going process. A few days ago I wrote a poem about acceptance. It is easier for me, sometimes, to write about my life in verses. But after I write about what bothers me in verses and stanzas, I can talk about it in any format. I freed myself when I wrote the poem. In a way, I accepted myself a little more." It is very hard to have confidence in my abilities when all my life, when people
Activists Seek To Curtail Restraining Students
WASHINGTON (AP) — Tens of thousands of students, most of them disabled, are strapped down or physically restrained in school, and disability advocates hope that a new Education Department report detailing the practice of "seclusion and restraint" will sp
Language and autism
More and more researchers, it seems to me, are trying to peek into the minds of children with autism by analyzing how they put together a sentence. Language impairments are one of the most common features of autism. But linguists have long debated the pr
Cellphone Video Provides Proof of Bullying Teacher
A special education student resorted to using his cellphone to record video that proved his teacher was bullying him. Such incidents are, unfortunately, far from uncommon. “Statistically about 1 to 2 percent of teachers are actually involved in bullying
Clinical research: Gut bacteria prevalent in autism
Common colonizer: Sutterella wadsworthensis is present in the intestines of children with autism, where it might displace other beneficial bacteria. A certain type of bacteria is prevalent in the intestines of children who have both autism and gastrointe
The Flutie Family Tackles Autism, National Autism Awareness Month
Doug Flutie Sr., 49, reaches his goals on the field and off. "For whatever reason, people have the feeling I can get things done," the Heisman Trophy winner says. Maybe they remember the former quarterback's famous heart-stopping, last-second Hail Mary p
Deafness penetrates more rapidly and deeply into the brain than previously thought
Portions of a songbird's brain that control how it sings have been shown to decay within 24 hours of the animal losing its hearing. The findings, by researchers at Duke University Medical Center, show that deafness penetrates much more rapidly and deeply
Cognition and behavior: Study probes speech processing
Hidden meaning: Children with autism are less able than controls are to detect the shifts in pitch that can transform a neutral statement into a question. Children with autism activate more brain regions than controls do when listening to tonal inflectio
Burton Blatt Institute chairman to testify before National Council on Disability on future of disability law and policy
NCD is an independent federal agency that makes recommendations to the president and U.S. Congress to enhance the quality of life for all Americans with disabilities and their families. The public may join the meeting in a listening-only capacity (with t
Racial disparities found in school arrests
(L to R) Missouri Governor Jay Nixon, U.S. Secretary of Education Arne Duncan, and U.S. Secretary of Homeland Security Janet Napolitano answer questions from students following an earthquake drill at Carnahan High School of the Future in St. Louis on Apr
Special Olympics Coach Accused Of Having Sex With High School Participant
MOUNT PLEASANT, S.C. (AP) — A teaching assistant from Cayce has been charged with having sex with one of his students while in Mount Pleasant for the Special Olympics. Twenty-nine-year-old Cornelius Davis is a special education teaching assistant at Broo
FREE 2012 Accessible Technology Webinar Series
The Great Lakes and Pacific ADA Centers on behalf of the ADA National Network are pleased to announce the 2012 Accessible Technology Webinar Series.
Report: Minority students face harsher punishments
(03-05) 21:04 PST WASHINGTON, (AP) -- A report to be released Tuesday by the Education Department raises questions about whether students of all races are disciplined evenhandedly in America's schools. An early snapshot of the report says that more than
LADDERS
The LADDERS program is under the direction of Dr. Margaret L. Bauman. Dr. Margaret L. Bauman is a distinguished pediatric neurologist, who is greatly respected for the outstanding clinical care she provides to children and adults, and for her research and teaching on developmental disorders.
A D A Audio Conference Series
The ADA Audio Conference Series provides in-depth information on the Americans with Disabilities Act (ADA). This program is designed to enhance an individual's existing knowledge base or facilitate continued learning regarding regulations and trends under the ADA.
Children’s Hospital of Philadelphia apologizes to Rivera family over kidney transplant flap
(CBS) The Children's Hospital of Philadelphia has apologized to the family of Amelia Rivera, the girl whose family alleged she was denied a life-saving kidney transplant because she was disabled. "As an organization, we regret that we communicated in a m
A Deaf Son Struggles to Be Heard in ‘Tribes’
A family dinner in the beginning of Nina Raine's "Tribes" tells the audience all it needs to know about the crisis of understanding that plagues the characters in this bright and boldly provocative drama. Two parents and three twenty-something children s
National Database for Autism Research
Announcer: Unlocking the mysteries of autism and providing new hope for the families and individuals facing its challenges are missions shared by dedicated scientists across the country and around the globe. But despite an overwhelming need for answers, this disorder has not given up its secrets easily, as illustrated by Nancy Minshew, a leading autism researcher at the University of Pittsburgh. Nancy Minshew: Autism is so complex that there's not going to be one thing.
Judy Endow
Judy Endow, MSW, maintains a private practice in Madison, Wisconsin, providing consultation for families, school districts and other agencies. Besides having autism herself, she is the parent of three now grown sons, one of whom is on the autism spectrum. Judy does workshops and presentations on a variety of autism-related issues, is part of the Wisconsin DPI Statewide Autism Training Team and a board member of both the Autism Society of America, Wisconsin Chapter and the Autism National Committee. In addition, Judy is a member of the Autistic Global Initiative (AGI), a program of Autism Research Institute.
IEP Essentials Webinar
Thank you for supporting our mission. When a child qualifies for special education services, federal law requires the development of an Individualized Education Program. The IEP serves as a roadmap for services, including important information about a ch
Tool for Navigating the Hidden Social Curriculum for Individuals with Autism
Judy Endow is magical in her approach to helping so many living with autism. "Learning the Hidden Curriculum: The Odyssey of One Autistic Adult" is a must-read book for those living with autism, family members and those who want to know more about autism. Even if you think you are right, never argue with a police officer
U.S. Department of Education Announces Overhaul of IDEA Compliance System; More Emphasis on Student Outcomes
On Friday, the U.S. Department of Education, Office of Special Education Programs (OSEP) announced that it will revamp IDEA’s compliance system to better emphasize student outcomes, such as academic performance and graduation rates for students with disa
Large eye-tracking study highlights diversity of autism
Gaze mapping: Researchers measured the amount of time children spent looking at eyes (red), mouths (green), bodies (blue) and objects (yellow) when watching scenes from Welcome to the Dollhouse. Children with autism who have different verbal and intellec
Accessible Leeds
Nathan Popple is a 14 year old, self-advocate and editor of Accessible Leeds, this is the description of his incredible site. I have cerebral palsy so I use a wheelchair and I also use a communication aid to help me speak. I am a Whizz Kidz Ambassador and I support the charity 1voice. I believe strongly in fairness and do not think that the world should be able to disable people by not providing access to places.
Boy charts city’s disabled access
Nathan was inspired to create his website after finding access to a bowling alley blocked by stairs. Despite the challenges he faces, Nathan's disability does not stop him from leading a full life. What does occasionally stand in his way is more mundane - steps, staircases and narrow shop aisles.
Medical Champion© Wiffle Ball Tournament August 10th and 11th
With an innovative and fun twist on fundraising, event chairs James Ramos and Derek Alvarez, along with their committee, will host the Fourth Annual Wiffle Ball Tournament on August 10th at the Don CeSar Beach Resort on St. Pete Beach. Join for them for an All American outing... Wiffle Ball Tournament, Last Days of Summer Beach Bash & Barefoot Dance Party. To help an All-American cause... Children with Allergies & Primary Immune Deficiency. Friday, August 10th 4 P.M. - Sunset Pre-registration, Home Run Derby Contest and Beachside Live Music The Don CeSar Beach Resort St Petersburg Beach Saturday, August 11th
Lloyd Coleman, deaf teen composer’s Olympic theme
Lloyd Coleman, 18, who is also visually impaired, recently won a place at London's Royal Academy of Music. "It's called Breaking the Wall because, after Giles and I started talking about marathons and how runners hit the wall and have to overcome humungous challenges, we realised there were parallels with the kind of challenges disabled people face," he said.
KIT – Kids Included Together : Recognizing the Ability in Every Child
Kids Included Together (KIT) is a registered 501(c)(3) non–profit organization founded in San Diego, California in 1997. The mission of Kids Included Together (KIT) is to provide learning opportunities that support recreation, child development and youth enrichment programs to include children with and without disabilities. KIT’s goals are to enrich the lives of all who participate and to increase understanding and acceptance of disabilities as a natural part of life. We invite you to explore our site and learn more about our work with out–of–school time programs across the United States and internationally.
Motor Skills and ASD
Children with autism often have problems developing motor skills, such as running, throwing a ball, or even learning how to write. Scientists didn't know whether those difficulties ran in families or were linked to autism. New research at Washington Univ
Hannah’s Buddies Charity Classic, Support the Fight Against SMA, March 30-31
The Hannah's Buddies Charity Classic began in 2000 with John Bell of Widespread Panic deciding to help his goddaughter Hannah and tens of thousands of children in their fight against SMA. Today, the golf tournament, silent/auction and concert lineup attracts more than 2,000 participants and has raised nearly $2 million for SMA research. What is SMA? Spinal Muscular Atrophy is a neuromuscular disease that affects between 1 in 6,000 and 1 and 20,000 births. Over time, SMA causes muscles to become weak and considerably smaller. On average, 1 in 40 people are genetic carriers. Sponsor/Donate If you are unable to attend the
Williams Syndrome Association
The WSA is the most comprehensive resource for people and families living with Williams syndrome as well as doctors, researchers and educators. The WSA provides resources, support and the latest medical information to help your child today and throughout his/her life. By joining, you’ll become part of the largest organization dedicated to improving the lives of people living with WS. No matter the age or stage of your family member with WS, you are not alone. The WSA offers support and will help you navigate the challenges from diagnosis through adulthood.
State Obligations | UNESCO
Like all human rights, the right to education imposes three levels of obligation on States: The obligation to respect, protect and fulfil each of the “essential features” (availability, accessibility, acceptability, adaptability) of the right to education. The obligation to respect requires States to avoid measures that hinder or prevent the enjoyment of the right to education. The obligation to protect requires States to take measures that prevent third parties from interfering with the enjoyment of the right to education. In turn, the obligation to fulfil incorporates an obligation to facilitate and to provide. Facilitation requires States to take positive measures
Extreme Kids & Crew
Extreme Kids & Crew is a parent-run non profit dedicated to causing a great scene for Brooklyn’s kids with disabilities, their families and friends. They are all about creating a warm and encouraging atmosphere where children and adults of every ability and disability can relax, have fun, and enjoy the experience of being deeply accepted and celebrated for the people that they are. We offer workshops in the arts and movement with insightful and practiced teachers, parent education nights, free family concerts, and much more.
A ‘Fountain’ of Kudos for First-Time Novelist Eliza Factor
The Fort Greene resident is not only about to release her first book, “The Mercury Fountain,” but she wrote the novel while raising three kids — one of them with cerebral palsy and autism — and starting Extreme Kids and Crew, a center catered to the needs of families with disabled children.
2012 Accessible Technology Webinar Series
All sessions are free and scheduled for 2-3:30pm Eastern/1-2:30pm Central/12-1:30pm Mountain/11-12:30pm Pacific utilizing the ElluminateLive! webinar platform. The Great Lakes and Pacific ADA Centers on behalf of the ADA National Network are pleased to announce the 2012 Accessible Technology Webinar Series. Electronic information and communications technology have become essential tools in all areas of our lives and working environments today, and are particularly important to people with disabilities by providing equal access to the workplace and social media. The 2012 webinar series will explore some of the latest technological trends and their accessibility to people with disabilities. Registration is available
Choosing to Have a Child With Down Syndrome
If our culture assumes that across the board, a child with a disability is defective, and a problem best avoided, then we’re encouraging people who want to be parents to make a decision based on bad information. And having an abortion because of bad information is a preventable tragedy.
ALEC Equips Emergency Responders to Deal with Autism
In 2007, a child wandered off from his home in Massachusetts early in the morning. Someone called 911 to report the child alone at a bus stop. When firefighters responded, they found that the child was non-verbal. Thanks to the ALEC program, the firefigh
UNESCO | United Nations Educational, Scientific and Cultural Organization
UNESCO works to create the conditions for dialogue among civilizations, cultures and peoples, based upon respect for commonly shared values. It is through this dialogue that the world can achieve global visions of sustainable development encompassing observance of human rights, mutual respect and the alleviation of poverty, all of which are at the heart of UNESCO’S mission and activities. The broad goals and concrete objectives of the international community – as set out in the internationally agreed development goals, including the Millennium Development Goals (MDGs) – underpin all UNESCO’s strategies and activities. Thus UNESCO’s unique competencies in education, the sciences,
Landau-Kleffner Syndrome
Landau-Kleffner syndrome, or acquired epileptic aphasia, is a rare childhood disorder of the central nervous system that affects boys two to three times more than girls. The syndrome is characterized by seizures and the gradual or sudden inability to und
Douglas Biklen: “Begin by presuming competence”
"Presuming competence is nothing less than a Hippocratic oath for educators. " Douglas Biklen
The Golden Hat Foundation
The Golden Hat Foundation is a non-profit organization dedicated to eliminating barriers for people with autism around the world, and creating an environment that holds these individuals as intellectually capable. The mission of the Golden Hat Foundation is the establishment of innovative campuses that offer people with autism the opportunity to learn to communicate effectively, receive an education, job training and enjoy recreational activities, all within a supportive social network. When given a suitable education and the means to communicate effectively, people with autism can truly realize their dreams.
On To College : Autism Research Institute
I want to live where I feel safe and free to be myself without the stress of having to act normal. Home is safe because my mom and dad make me feel hopeful that changing people's attitudes toward nonspeaking autists is possible. As I go to college, I am hoping to create a really supportive community of fresh-thinking people who view me as caring and created as equal.
Ralph James Savarese | essayist, poet, scholar, and activist
Ralph James Savarese is the author of Reasonable People: A Memoir of Autism and Adoption (Other Press 2007), which Newsweek called a “real life love story and a passionate manifesto for the rights of people with neurological disabilities.” It won the Independent Publishers Gold Medal in the category of health/medicine/nutrition, and a chapter was selected as a “notable essay” in the Best American Essays series of 2004.
Planet of the Blind: D.J. Savarese, My Friend, Our Ally in Disability Rights
I am a lucky man. Although I bear the emotional scars of a tough childhood—a disability childhood, one with bullying, cruel teachers, lots of loneliness—I have had the startling fortune to meet magnificent people throughout my life.
SPREAD THE WORD TO END THE WORD 03.07.12
Respectful and inclusive language is essential to the movement for the dignity and humanity of people with all disabilities. However, much of society does not recognize the hurtful, dehumanizing and exclusive effects of the word “retard(ed).” It is time to address the minority slur “retard(ed)” and raise the consciousness of society to its hurtful effects.
Bullying and ASD
The Interactive Autism Network (IAN) Project has launched a national survey to study the impact of bullying on children with autism spectrum disorders (ASD). Bullying, a pervasive problem among youth, has attracted the national spotlight over the past ye
I Believe by Will Scheutze
They had no idea how much I know and I didn’t think they believed I was smart. They thought that functional was more important for me to learn than academics. I didn’t like that, so I never did good work and so they thought I couldn’t sort forks. I know how functional is important in life, but nobody knows how important the academics are to me. I just want to be able to learn more and be able to go to college. I think I can do that. My teachers made me believe I can do that. I never believed
The National Institute on Deafness and Other Communication Disorders (NIDCD)
The National Institute on Deafness and Other Communication Disorders (NIDCD) is one of the Institutes that comprise the National Institutes of Health (NIH).NIH is the Federal government's focal point for the support of biomedical research. NIH's mission is to uncover new knowledge that will lead to better health for everyone. Simply described, the goal of NIH research is to acquire new knowledge to help prevent, detect, diagnose, and treat disease and disability. NIH is part of the U.S. Department of Health and Human Services. Established in 1988, NIDCD is mandated to conduct and support biomedical and behavioral research and research training
Dean Biklen honored in Kuwait with UNESCO/Emir Jaber al-Ahmed al-Jaber al-Sabah Prize
The United Nations Educational, Scientific and Cultural Organization (UNESCO) will present Syracuse University's School of Education Dean Douglas Biklen with the 2011 UNESCO/Emir Jaber al-Ahmed al-Jaber al-Sabah Prize, honoring him for his work promoting
CART Interpreting
The Alexander Graham Bell Association for the Deaf and Hard of Hearing (A.G. Bell) filed two amicus briefs within days of each other in federal courts of appeal supporting the right of students who are deaf and hard of hearing to receive Communication Ac
Challenger Division
The Challenger Division was established in 1989 as a separate division of Little League to enable boys and girls with physical and mental challenges, ages 4-18, or up to age 22 if still enrolled in high school, to enjoy the game of baseball along with the millions of other children who participate in this sport worldwide. Today, more than 30,000 children participate in more than 900 Challenger Divisions worldwide.
The Miracle League
The Miracle League is proud to serve over 200,000 children and young adults with disabilities.Presently there are 250 Miracle League Organizations across the country including Puerto Rico, Canada and our newest member in Australia. Our goal is to offer this program to every city in the country so children, young adults and adults alike with special needs around the globe will have this same opportunity to play baseball. The Miracle League believes; “Every Child Deserves A Chance to Play Baseball.” To find a league or start a league
The Inclusive Classroom 02/24 by SpecialNeedsTalkRadio
The Inclusive Classroom 02/24 by SpecialNeedsTalkRadio | Blog Talk Radio.
Genomics, Intellectual Disability, and Autism
During the past decade, advances in genetic research have enabled genomewide discovery of chromosomal copy-number changes and single-nucleotide changes in patients with intellectual disability and autism as well as in those with other disorders. These technological advances — which include array comparative genomic hybridization (CGH), single-nucleotide-polymorphism (SNP) genotyping arrays, and massively parallel sequencing — have transformed the approach to the identification of etiologic genes and genomic rearrangements in the research laboratory and are now being applied in the clinical diagnostic arena.
Mock my pants, not my sister
The following was written by Brian Skotko , MD, MPP, a Physician at Children’s Hospital Boston’s Down Syndrome Program. It’s in response to a feature in GQ magazine that used insensitive language. Go ahead, GQ, and mock my blue whale-emblemed Nantucket-red pants. Laugh if you want at the loud argyles that I prefer to wear with my black suit. I don’t even care if you dismiss the sexy pink polka-dotted tie that I like to wear with my blue-checkered shirt in clinic. But, whatever you do, do not mess with my sister.
Brian Skotko
A Board-certified medical geneticist at Children's Hospital Boston, Massachusetts General Hospital, Brigham & Women's Hospital, and Dana Farber Cancer Institute, Dr. Skotko has dedicated his professional energies toward children with cognitive and development disabilities. He is one of the specialists in theDown Syndrome Program at Children's Hospital Boston. In 2001 he co-authored the national award-winning book, Common Threads: Celebrating Life with Down Syndrome and, most recently, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. He is a graduate of Duke University, Harvard Medical School, and Harvard Kennedy School. Dr. Skotko recently authored major research on how physicians deliver
Trailblazers
Trailblazers is a national network of more than 400 young disabled people who work together on a national and local level to highlight and address the issues that are important to them. We aim to fight the social injustices experienced by young disabled people and to ensure we can gain access to education, employment and the services we require. We are part of the Muscular Dystrophy Campaign, the leading UK charity focusing on muscular dystrophy and other related conditions. Our mission To fight against the social injustices experienced by young people living with muscle disease or a related condition. Our
How to win an Oscar
With speculation mounting about which Hollywood stars will be taking home a much-coveted Academy Award this year, are certain roles more likely to be rewarded with a golden statuette than others? We've looked back at best actor a
Don’t Play Me Pay Me
The Don't Play Me Pay Me campaign seeks to: Actively encourage disabled people to follow their chosen creative career path. Remove the barriers of prejudice that disabled actors face in finding work. Provide a forum for all disabled actors to encourage debate and empower them to have their voice heard and listened to. Encourage programme makers to feature disabled actors in all storylines to reflect real life. Encourage programme makers not to use non-disabled actors (even if a “name” means funding) to portray disabled characters. Encourage advertisers to feature disabled people in all advertising. http://www.dontplaymepayme.com
Partners in Policymaking
Nearly twenty five years ago, the Minnesota Governor's Council on Developmental Disabilities created a ground-breaking, innovative training program called Partners in Policymaking® to teach parents and self-advocates the power of advocacy to change the way people with disabilities are supported, viewed, taught, live and work. During the past two decades, important issues have been confronted and dramatic changes have been made.
Neural systems for speech and song in autism
Despite language disabilities in autism, music abilities are frequently preserved. Paradoxically, brain regions associated with these functions typically overlap, enabling investigation of neural organization supporting speech and song in autism. Neural
Pathophysiological distortions in time perception and timed performance
Distortions in time perception and timed performance are presented by a number of different neurological and psychiatric conditions (e.g. Parkinson's disease, schizophrenia, attention deficit hyperactivity disorder and autism). As a consequence, the prim
Genomic Study of Disorders of Unknown Etiology
The goal of this study is to gain a better understanding of the genetic cause of complex medical cases in children involving unexplained developmental delay or intellectual disability or birth defects. Enrollment in the study involves evaluation in the G
Probe: Disabled patient abuse cases overlooked
California has assembled a police force to protect about 1,800 of its most vulnerable patients - men and women with cerebral palsy, severe autism and other mental disabilities who live in state institutions and require round-the-clock monitoring and prot
GCAC Presents: VSA Ohio at the intersection of art and disability
Since its founding in 1986, VSA Ohio has evolved to become a community that helps inspired artists connect with their passions. Bridging arts and disability, their programs and services focus on providing equal opportunity, full participation, independen
Sign up and Ollibean gives to a child in Nepal. It’s that easy.
Want to help kids in Nepal? We’re making it super easy. For every person that joins our community we will donate $2 to support children in Nepal.You can also enter for a chance to win an iPad**. Now share this with everyone you know and show the world how easy it is to make a difference.
The Greenspan Floortime Course for Parents of Children with Autism, Asperger’s, ADHD, OCD, Anxiety, Aggression, and Sensory Processing Problems is Now Available Online
The Greenspan Floortime Approach™ announces a new video course for parents of children with special needs, now available for a special introductory offer online until May 13, 2012. Parents and professionals can view the course from the comfort of their o
A boy’s talk about his Asperger’s resonates in his school
Since Jack Lebersfeld told the entire sixth grade he has Asperger's syndrome and explained what that meant, his speech has taken on a life of its own that Jack and his parents could have never imagined. Asperger's is one of the autism spectrum disorders
Squag: Social media for teens and tweens with autism | Washington Times Communities
Two years ago, Sara Winter's nephew got in a skirmish at recess and was very upset. Winter suggested that the boy, who is on the autism spectrum, write a note to his parents on her Blackberry to tell them what he was feeling. Astounded by the way he was able to express himself, Winter began searching for software that could help him do so more. Finding none, she eventually created a social networking-style interface for kids on the spectrum called Squag.
Michael Buckholtz on Discrimination
Autistic multi-platinum Record Producer and author, Michael Buckholtz talks about discrimination and how he handles it in this video on Autube.tv.
Aid for Autistic Children Foundation
Aid for Autistic Children Foundation, Inc.™ mission: Reduce the financial burden on poverty stricken and disenfranchised families and caretakers coping with autism, through debt forgiveness, so attention and resources can be focused on creating a proper living and learning environment for their autistic loved one. How the Program Works After thorough evaluation of your completed application and assessment from our board and an independent consumer credit counseling service, the debt forgiveness will directly target the financial burden the family deems most obstructive in allowing them to focus solely on giving their autistic loved one the best tools and skills for
The Coffee Klatch
The Coffee Klatch started on a whim. I often speak and write about the isolation, stigma and confusion of parents raising a special needs child. Many of those parents are on twitter to share information, seek support or find a friendly ear. Twitter is where it all began. It is where I met my incredible team of moderators and thousands of special needs parents. It is where we created a morning chat for parents both newly diagnosed and those who have navigated the muddy waters to meet and share. It became very apparent to me, very quickly, that many of
Genetics Home Reference: DMD-associated dilated cardiomyopathy
DMD-associated dilated cardiomyopathy is a form of heart disease that is caused by mutations in the DMD gene. Dilated cardiomyopathy enlarges and weakens the heart (cardiac) muscle, preventing the heart from pumping blood efficiently. Signs and symptoms
Motor Skills Affected By Autism
Editor's Choice Main Category: Autism Article Date: 21 Feb 2012 - 10:00 PST email to a friend printer friendly opinions Often, children with autism have difficulties developing motor skills, such as throwing a ball, learning how to write, or running. How
Autism Diagnosis Often Occurs Later for Black Children
MONDAY, Feb. 20 (HealthDay News) -- Black children with autism tend to be diagnosed later than white children with the disorder, and this delay can lead to longer and more intensive treatment, researchers say. Lack of access to quality, affordable and cu
Deafness triggered by mitochondria glitch
Mitochondria are cellular structures that function as “cellular power plants” because they generate most of the cell’s supply of energy. They contain DNA inherited from one’s mother. Mitochondria determine whether a cell lives or dies via the process of
SoundBite uses vibrations through the teeth to help the hearing impaired
SoundBite is a new hearing device that uses bone conduction through the teeth to help the hearing impaired. SAN ANTONIO -- The newest device on the market for the hearing impaired doesn’t use the ear canal to transmit sound. It uses teeth. Ear Medical Gr
Study: OT, Yoga are Keys to Combating PTSD
Occupational therapy with a focus on yoga could hold the key to reducing the occurrence of Post-Traumatic Stress Disorder (PTSD). A study to be published this month in the American Journal of Occupational Therapy provides evidence that using sensory-enha
Team Hoyt
Team Hoyt is an inspirational story of a father, Dick Hoyt, and his son, Rick, who compete together in marathons and triathlons across the country. Team Hoyt strives to help those who are physically disabled become active members of the community. .
Advocates Incorporated
Advocates is a not-for-profit 501(c)(3) parent-directed organization providing services to individuals with developmental disabilities and their families. As an organization, we were started by parents of children with developmental disabilities with the goal of full inclusion for their children.
New Voices Foundation
New Voices is a short-term, intensive, individualized educational program for elementary-aged children with physical and communicative disabilities. Inclusion in all aspects of school, home and community life with transition back to a local school is our guiding philosophy. New Voices will: · Provide an educational program to increase literacy and communication skills (following the NC Standard Course of Study) · Equip and support students in the most advanced communication technology appropriate to their unique needs · Provide specialized, in-depth assessment and intervention · Provide supplemental healthcare maintenance and support, and ensure each child has a medical home · Maximize student’s
Former UCLA Student Fights Cuts to Disabled, Elderly
Governor Jerry Brown recently introduced a new state budget calling for deep cuts in many departments. Looking through the huge document, it’s easy to get lost in the fine print -- the line items, the pie charts -- and overlook the people who will actual
Motor Impairments Appear to Be a Characteristic of Autism
FRIDAY, Feb. 17 (HealthDay News) -- Autism itself seems to be responsible for the problems children with the disorder have in developing motor skills such as running, throwing a ball and learning to write, according to a new study. Previously, it wasn't
How mitochondrial DNA defects cause inherited deafness
Yale scientists have discovered the molecular pathway by which maternally inherited deafness appears to occur: Mitochondrial DNA mutations trigger a signaling cascade, resulting in programmed cell death. The study is in the Feb. 17 issue of Cell. ...
Preventing ‘Absence Seizures’ In Children: New Drugs Show Promise
Main Category: Epilepsy Also Included In: Pediatrics / Children's Health; Clinical Trials / Drug Trials Article Date: 17 Feb 2012 - 1:00 PST email to a friend printer friendly opinions A team led by a University of British Columbia professor has develope
Jon Stewart tries to talk to Arne Duncan
Jon Stewart tried to engage Education Secretary Arne Duncan on “The Daily Show ” Thursday night, but the effort was an exercise in the futility of conversing with someone who won’t deviate from his talking points. Duncan was so programmed that Stewart wa
How mitochondrial DNA defects cause inherited deafness
(Medical Xpress) -- Yale scientists have discovered the molecular pathway by which maternally inherited deafness appears to occur: Mitochondrial DNA mutations trigger a signaling cascade, resulting in programmed cell death. The study is in the Feb. 17 is
AAPC Publishing Offers a Guide for Parents with Students on the Autism…
Parent’s Guide to College for Students on the Autism Spectrum This practical book is an invaluable guide to evaluating college readiness for students on the autism spectrum. Sending a son or daughter off to college can be a daunting task, but if the chil
African-American children tend to be diagnosed later for autism
The rate of diagnosis for autism spectrum disorders (ASD) is the same among all racial groups — one in 110, according to current estimates. However, a study by a Florida State University researcher has found that African-American children tend to be diag
Deaf debate: Caught between two worlds
16 February 2012 Last updated at 00:38 ET Some deaf people choose implants, but others remain wary The story of deaf teenagers who chose not to have implants offering the "sensation of sound" generated a huge response. Readers touched by the issue share
Hospital apologizes to Amelia Rivera who was denied kidney transplant
Children's Hospital of Philadelphia has issued an apology to the parents of Amelia Rivera, a disabled three-year-old girl who, according to her parents, was initially denied a chance at a kidney transplant because she is “mentally retarded.” In a stateme
New information about IL-6 protein’s role in development of neurological disorders
A UT Dallas study is revealing new information about a key protein's role in the development of epilepsy, autism and other neurological disorders. This work could one day lead to new treatments for the conditions. Dr. Marco Atzori, associate professor in
When nerve meets muscle, biglycan seals the deal
In the absence of the protein biglycan, synapses at neuromuscular junctions in mice began to break up about five weeks after birth, according to a new study led by Brown University researchers. Reintroducing byglycan helped
Understanding the Individualized Education Program (IEP) Process
Your child’s IEP is the cornerstone of their education. This workshop offers an in-depth look at the evaluation process, qualifying for an IEP, the many components that must be addressed in the IEP document, as well as how progress will be monitored. As
Transition Planning & the IEP: Through the Doorway to Adult Life
Whether your child is 4 or 14, it's good to think about the future...The focus of this workshop is on the steps parents and students need to consider as they plan for the last years of school and the transition to adult life: personal futures planning; I
OlliNepal: Why Nepal ?
You can help kids with diffabilities in Nepal. We’re making it super easy. For person that joins our community we will donate $2 to support children in Nepal.You’ll also be entered for a chance to win an iPad at the same time. Now share this with everyone you know and show the world how easy it is to make a difference.
A little bit about us
It's hard to convey all that we want you to know "about us" in a paragraph., hard to explain the million and one reasons we're so passionate about Ollibean and how much we want you involved in our community. We hope this does it. We'd love to hear an "about us" about you. Shoot a video response and send it to us at olli@ollibean.org or post to our youtube account. We'll send an Ollibean tshirt to the first 20.
Autism affects motor skills, study indicates
Audio available Children with autism often have problems developing motor skills, such as running, throwing a ball or even learning how to write. But scientists have not known whether those difficulties run in families or are linked to autism. New resear
Obama ignores special ed, again…
“Fully Funding the Individuals with Disabilities Education Act: Barack Obama has been a strong and consistent advocate for fully funding the Individuals with Disabilities Education Act (IDEA). Congress promised to shoulder 40 percent of each state’s “exc
International Conference on Inclusive Education
Able, disabled all people together (ADAPT), a NGO, has organised a five-day 'International Conference on Inclusive Education, the North South Dialogue IV', in Goa from February 19. Dr Mithu Alur, founder chairperson of the organisation. told reporters he
Goalbook – Social IEPs for everyone? Actually, yes
Summary: Goalbook could revolutionize how we approach differentiated instruction and outcome-based education. Four of my five kids have been on IEPs (Individual Education Plans) at one point or another. Two of them still are and I have little doubt that
Choosing Life and Beating the Odds: Accepting Down Syndrome
When my husband and I found out we were having another baby, it was a surprise. This test measures the thickness behind the baby’s neck. That, plus a blood test, tells you if there’s a chance the child has Down syndrome. Like most of my friends, I got th
How Does Autism Rewire The Brain?
Potential clues to how autism miswires the brain are emerging from a study of a rare, purely genetic form of a disorder that affects fewer than 20 people worldwide. Using cutting-edge technology, researchers funded by the National Institutes of Health ha
Six Strategies for Differentiated Instruction in Project-Based Learning
Project-Based Learning (PBL) naturally lends itself to differentiated instruction. By design, it is student-centered, student-driven and gives space for teachers to meet the needs of students in a variety of ways. PBL can allow for effective differentiat
Genetics Home Reference: Fanconi anemia
Fanconi anemia is a condition that affects many parts of the body. People with this condition may have bone marrow failure, physical abnormalities, organ defects, and an increased risk of certain cancers. The major function of bone marrow is to produce n
Self-Report Computer-Based Survey of Technology Use by People With Intellectual and Developmental Disabilities
Abstract Advancements of technologies in the areas of mobility, hearing and vision, communication, and daily living for people with intellectual and developmental disabilities has the potential to greatly enhance independence and self-determination. Prev
Transition Planning for Students With Intellectual Disability, Autism, or Other Disabilities: Data from the National Longitudinal Transition Study-2
Abstract To compare the status of transition planning for students with intellectual disability, autism, or other disabilities, we used data from the National Longitudinal Transition Study-2, a federally funded, national study of the secondary and postsc
Factors Associated With Self-Concept: Adolescents With Intellectual and Development Disabilities Share their Perspectives
Abstract How one perceives the self is critical to long-term development. The purpose of this study was to explore the self-perceptions of adolescents with intellectual and developmental disabilities. Participants included 51 adolescents with intellectua
CEC Division on Autism and Developmental Disabilities
The Division on Autism and Developmental Disabilities is an organization composed of persons committed to enhancing the quality of life of individuals, especially children and youth, with autism, intellectual disabilities and other developmental disabilities. The Division seeks to further the knowledge base of the field, thus ensuring the continued advancement of positive educational and life outcomes for those with autism and developmental disabilities.
An Update on Amelia
By Tim Shriver Several weeks ago, I wrote about a young girl named Amelia Rivera who was denied consideration for a kidney transplant at the Children’s Hospital of Philadelphia because she was, according to her doctors, “mentally retarded.” Amelia is now in the process of being considered again for a transplant. Our lesson is that we cannot let Amelia’s story be an isolated call to arms. We must continue to seek change and advocate for the dignity of every human life.
Yoga for Children with ADHD and Autism in Clearwater
I now have new ways to work with a child who had been labeled as dysfunctional, and they are all working! Shakta Kaur Khalsa, yoga teacher and founder of Radiant Child Yoga Program, and Allison Morgan, Occupational Therapist, will co-lead a weekend train
Killing of autistic boy shows need for support for developmental disabilities
An argument about computer use ended with a 15-year-old boy shot dead by police in Calumet City, family and officials said Wednesday. Stephon Watts, who the family said was autistic, was reportedly asked by his father to stop using the computer. Watts' father had been told in the past to call police when he had problems with the teen. He did, and officers responded to the home in the 500 block of Forsythe Avenue in the far south suburb.
More Autism-Friendly Shows Planned For Broadway
NEW YORK (AP) — Two more autism-friendly performances of Broadway musicals will be offered this spring and fall following the success last year of the first showing of a Broadway show specially altered for those diagnosed with the disorder. The Theatre D
E-Learning for Deaf and Hard of Hearing Children
Launched by the St. Joseph Institute for the Deaf (SJI) – an institution with a 175-year history of innovation in deaf education – iHear is the world's first e-learning program created with optimum security measures to ensure privacy and compliance with federal HIPAA regulations and educational FERPA regulations. Hear gives families in rural areas the choice to pursue their child's development of auditory and speech skills without the burdens of extensive travel and cost," says Deborah Wilson, president of SJI. "This access to spoken-language therapy opens the doors for children with hearing impairments to remain on grade-level with their peers
Cops: Autistic boy, 6, left on school bus
A young boy with autism was left Monday morning in the back of a school bus, which departed the school before staff realized he was missing, according to Nassau police, who are investigating the incident.Sean Feldt, 6, was returned to the Cherry Lane Sch
Outcry over disabled girl’s transplant care renews eligibility debate
A parent's anguished online plea for an organ transplant for her developmentally disabled daughter and new research on kidney transplantation eligibility among elderly patients have refocused attention on the vexing decisions that face physicians who det
Living outside the hearing world
6 February 2012 Last updated at 06:31 ET By Lucy Wallis BBC News Sara met her boyfriend Asher at a deaf school five years ago For several years cochlear implants have offered some deaf people the chance to have a "sensation of sound". So why would some d
Colin Giving Voice
Colin from Newcastle, "Giving Voice" for RCSLT National Campaign
Dr. Jill Bolte Taylor’s Stroke of Insight
Jill Bolte Taylor This TedTalk by Jill Bolte Taylor is a testimony to the power of presuming competence and importance of a nurturing, positive environment when learning. Neuroanatomist Jill Bolte Taylor woke up one morning and realized she was having a massive stroke. Bolte Taylor details her experience as her left brain slipped away and she was left without language, awareness of time. But, instead of being terrified she was intrigued and serene. As her left brain's stopped functioning she experienced the wonders of her right brain. She was fully present, connected to everything, thought in pictures, was inundated with sensory information
Dr. Jill Bolte Taylor
Dr. Jill Bolte Taylor is a Harvard-trained and published neuroanatomist who experienced a severe hemorrhage in the left hemisphere of her brain in 1996. On the afternoon of this rare form of stroke (AVM), she could not walk, talk, read, write, or recall any of her life. It took eight years for Dr. Jill to completely recover all of her functions and thinking ability. She is the author of the New York Times bestselling memoir My Stroke of Insight: A Brain Scientist's Personal Journey (published in 2008 by Viking Penguin). In 2008, Dr. Jill gave a presentation at the TED
Model who has down syndrome made top 10 TODAY stories
By Steve Veres, TODAY.com The results are in! And TODAY's 60th anniversary celebration is the story fans interacted with the most on our Facebook page in January. And perhaps not so shockingly, you guys also loved Matt Lauer and adorable animals (though
Special-needs pupil barred from Israel trip
The father of a 14-year-old King Solomon High School pupil with moderate learning disabilities is "bitterly disappointed" that she is not being allowed to join the Redbridge school's Israel trip. But King Solomon teachers maintain the girl is unsuited to
Neural systems for speech and song in autism
Despite language disabilities in autism, music abilities are frequently preserved. Paradoxically, brain regions associated with these functions typically overlap, enabling investigation of neural organization supporting speech and song in autism. Neural
Amy Sequenzia “Be Proud of Who You Are”
"Feeling sorry for our disabilities means not accepting ourselves. I feel sorry because disabilities rights are still lacking, not because I am disabled. My message is, hopefully, about our strength and similarities". Amy Sequenzia
38 Disability Organizations Oppose House ESEA Proposal
The organizations oppose the draft Student Success Act because “it abandons accountability for the achievement and learning gains of subgroups of disadvantaged students who for generations have been harmed by low academic expectations.
“Possibilities Series: Abby”
The Possibilities Video Series illustrates the lives of individuals with disabilities who live, work and attend schools in their communities.
Students with autism learn to relax, focus with yoga
Stawicki, 12, works with his yoga group for about a half-hour. From 7:50 to 8:20 a.m., Stawicki focuses on breathing exercises and yoga poses like his favorites -- the tree and the airplane. Stawicki is one of six students from Parker Middle School's autism support class who gather to practice yoga twice a week. The students have learned about a dozen poses, and organizers said it helps them better control their emotions.
Creators of Halo & Star Wars Renew Student’s Dream after Charter School Rejection
Self-advocate Tres Whitlock on how the NPR story, "Florida Charter Schools Failing Disabled Students" has impacted him.
Elad Gevandschnaider, first person with Down syndrome to serve in Israeli Army
Because of his disability Elad, is not required to serve in the Israeli Army, still, he decided to volunteer. It started with two years of national service in a primary school in the southern part of Israel, Beer Sheva, and now Elad has just learned he has been accepted to serve two more years at an Israeli army equipment base. Talk to Elad and he will tell you that the primary reason he has been able to do something that no other special needs person has done in the history of Israel, and he will tell you the story of
My Voice, My Life : A Poem by Amy Sequenzia
This powerful poem from the book "MY VOICE, Autism, Life and Dreams" by self-advocate Amy Sequenzia says so much. We were fortunate enough to get to know Amy at ICI's Summer Institute at MIT and are very grateful to her for allowing us to publish "My Voice, My Life" here. If you are interested in purchasing a copy of Amy's book, you can find her on Facebook. My Voice, My Life Look at me. Go ahead, take a good look. What do you see? Weird? Silly? Pitiful? Can’t do anything? You might feel sorry for me You might pity me
Todd Drezner: Nickels, Dimes and ‘High-Functioning’ Autism
As Justin Canha's story shows, the autistic person who needs a lot of support in one area may become a person who needs much less support in that same area. Justin barely spoke before age 10. Now he's verbal. He didn't suddenly change from "low-functioning" to "high-functioning." Rather, he received the support he needed and developed his skills.
What I Learned During My “Sabbatical” at the MIT Media Lab (Part Two)
Why Inventing Technologies for the Disabled is Not Just Right but Smart Business Q. What do a child with autism, an Iraq war-veteran amputee and a senior citizen with Alzheimer’s have in common? (Other than having disabilities that begin with “A.”) A. They are all the early adopters of radical new technologies that will make all our lives better in the future. For my entire career as an entrepreneur, I assumed that developing innovative technologies for people with disabilities, while the “right thing” to do, was not a particularly promising business proposition. Within a year of becoming director of the
What I Learned During My “Sabbatical” at the MIT Media Lab (Part One)
Also, like an academic, I wrote a book during my sabbatical. The book is about the highly unorthodox research and researchers at the Lab, titled “The Sorcerers and Their Apprentices: How the Digital Magicians of the MIT Media Lab are Creating the Innovative Technologies That Will Transform our Lives”. At the Lab, not taking risks is the biggest risk of all. Crazy and wild-eyed ideas and inventions emerge from what appears to be chaos. Some of these seeds survive and grow into innovations that can improve our everyday lives, disrupt industries and even transform society.
Laser Beak Man- Tim Sharp
This is the story of autistic artist Tim Sharp, internationally recognized visual artist and creator of the super-hero character Laser Beak Man. Nominated for the Young Queenslander of the Year Award in 2008 and 2009, Tim works tirelessly for autism groups around the world.
D-PAN Music Video Waiting on the World to Change
Waiting on the world to change.
The Loud Hands Project
Love this video published by the Autistic Self Advocacy Network. Share it, Post it, Donate at http://www.indiegogo.com/The-Loud-Hands-Project?a=351448 so they will make more:)
D-PAN ASL Music Video “We’re Going To Be Friends” by the White Stripes
White Stripes "We're Going To Be Friends" ASL video we love by D-PAN.
The Jazz of Matt Savage, WMUR-TV
Matt's interview on WMUR-TV Channel 9's New Hampshire Chronicle, January 6, 2011 Check out Matt's website for more info http://www.savagerecords.com/
Matt Savage with Bobby Watson- “Big Apple Blues”
Here's a song from Matt's "Welcome Home" CD Release concert in New York at Dizzy's Club Coca-Cola at Jazz at Lincoln Center! Matt Savage on piano ; Bobby Watson is on alto sax, Joris Teepe is on bass, and Peter Retzlaff is on drums. Incredible!
Brick Walls
“Oh, that’s ok! We plan on donating. If we aren’t a match, we come from a large family and someone will donate. We don’t want to be on the list. We will find our own donor.” “Noooo. She—is—not—eligible –because—of—her—quality– of –life—Because—of—her—mental—delays” He says each word very slowly as if I am hard of hearing. “STOP IT NOW!” The anger is taking over. Thank God. Why did it take so long to get here? The social worker is writing some things down.
Florida Charter Schools Failing Students With Disabilities
Tres Whitlock is stuck in a public school where he feels ignored. He wants out. The 17-year-old would-be video game designer researched his options online and found his perfect match – Pivot Charter School. “It’s computer-based and I think I will do better,” he says. But when Whitlock tried to enroll the school he found a series of barriers in his way.
They call me Barney Fife
One out of four people that use accessible parking spaces, should not be using them. One out of four people think it's ok to park in a spot specifically designed and strategically to make it easier for someone who uses a wheelchair to have enough space to actually open the door to their van? Ok to park in a space designated for someone who has a heart condition so they don't have to walk quite as far?
“Miles for Kids’ Smiles” Pediatric Physical Therapy
As a pediatric PT, I often hear requests for "another lap on the tricycle" or "can I go back to my room now? Puhhhleeeease!" But the question of going to Nepal to fulfill one of my life's dreams has only one answer: "YES!" I grew up playing soccer. My family and I dedicated much of my childhood free time to road trips, holiday tournaments and the goal of obtaining a college scholarship to play. I signed with a small, liberal arts university in Alabama. While training preseason, I heard and felt a "POP". I would spend the next 4 years
Charter Schools
Charter schools are an idea dreamed up by an obscure education professor in the 1970s which have grown into a primary alternative to traditional public schools. One in 17 Florida students attended a charter school last year, a number that has increased almost six-fold in a decade. The original charter school model focused on local leaders forming an oversight board and spelling out the school’s mission, goals and methodology in a contract or charter.
ASAN disappointed with President Obama’s choice for committee on disability
The Autistic Self Advocacy Network, the nation's leading advocacy group run by and for Autistic adults, today expressed concern and disappointment over President Obama’s announcement Tuesday of his intent to appoint anti-vaccine activist Peter H. Bell as a member of the President’s Committee for People with Intellectual Disabilities. “Bell’s appointment shows such contrast to the forward motion the Obama administration has shown in the areas of autism and disability as a whole..
Supreme Court Says NO to IDEA Case
In the special education case, Compton Unified School District v. Addison (Case No. 10-886), the justices had asked the U.S. solicitor general's office for its views last April on a question under the federal Individuals with Disabilities Education Act: whether a parent may bring a claim in a due-process hearing that a district violated the law's "child-find" provision.
MetLife Center for Special Needs Planning
MetLife Center for Special Needs PlanningSM is dedicated to helping families secure both lifetime care and quality of life for their dependents with special needs. Our mission is to help families plan for the future of their dependents with special needs, including preserving government benefits and providing insurance and other financial solutions which can help provide lifetime quality care. The planning process begins with a complete review of your dependent's needs, future care plans, assessment of government benefit eligibility, and finally a review of your family's current financial and legal plans. Critical areas that must be addressed are: 1.Government benefit
Protected Tomorrows
Protected Tomorrows founder, Mary Anne Ehlert, CFP, had a successful career in financial planning when she decided to act on her lifelong desire to specialize in serving the families of the disabled. The source of her inspiration was very dear to her heart. Mary Anne herself had come from such a family. Her younger sister, Marcia, to whom she felt especially close, suffered severe mental handicaps due to cerebral palsy. And, although their parents were naturally determined that Marcia should get the best possible care, they had also for years been understandably confused how best to plan and provide for
Children Across Borders
Children Across Borders is a charitable organization that paves the way for children of the world to a brighter future by providing sustained support in the form of education, health, housing, and wellness to under-privileged children while enabling the educational and cultural enlightenment of all children. They create a network of support for under-privileged children around the world by partnering with people and organizations who have chosen to dedicate their lives to helping these children lead healthy, fulfilling lives.Their work is personally driven with adherence to high standards and accountability, leading to a positive impact on our community and country.
Genetics 101 Part 4: What is phenotype?
Discover how your observable traits, or phenotypes, are the result of interactions between your genes and environment.
Genetics 101 Part 2: What are SNPs?
Learn about the variations in human DNA called SNPs, and how they can be used to understand relationships between people.
Genetics 101 Part 1: What are genes?
Find out about the basics of cells, chromosomes, and the genes contained in your DNA.
The Global Genes Project
Rare Disease affects over 350 million people worldwide, and the largest percentage are children. There are over 7,000 rare diseases that have been identified all with very unique needs, but many with little to no support. Although each individual disease may only impact a few, together the impact is in the millions. Rare disease is not so rare. The Global Genes Project is broadly promoting the needs of the rare disease community, engaging the general public, garnering corporate support, under the "unifying symbol of hope" – the blue denim ribbon. The Global Genes Project is a program of R.A.R.E. Project, a
Addi & Cassi Fund
Our names are Addison and Cassidy Hempel and we are 7 year old identical twin girls who live in Reno, Nevada. In October 2007, after a two year medical odyssey, we were diagnosed with a ultra rare and fatal cholesterol disease that affects only 500 people worldwide. The disease is called Niemann Pick Type C (NPC) and the condition is frequently referred to as “Childhood Alzheimer’s.” NPC is ultimately fatal in childhood and we are in a battle for our lives.
Stephen Hawking- Asking big questions about the universe
Professor Stephen Hawking asks some big questions about our universe -- How did the universe begin? How did life begin? Are we alone? -- and discusses how we might go about answering them.
Autism Support Network
The mission of Autism Support Network is conveyed in our tagline: connect, guide and unite. Our goal is to short-cut the uphill battle individuals and families undertake when faced with autism – whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information.
Saving Grace
Addison Lennon met all her early milestones: she sat up on time, crawled on time and walked on time. At about 4 months, however, she had a seizure, and her parents started to worry. By 9 months, her head appeared small for her age. Her neurologist reassured the family that Addison could still be within the lowest 5 percent of the normal range. "We were thinking she was typical," says Kari Lennon, "she would be in that 5 percent." At 15 months, however, Addison had another seizure that was a lot more severe. She had been tested for
Super Healthy Kids
Teaching parents and kids how to eat better, feel better, and live longer. Feeding your kids healthy food can be a challenge, but so rewarding! Amy and Natalie are both nutrition educators who want to make it easier to feed your kids better, in less time, and with less complaint!
Ollibean Heads to Nepal in March
We know how challenging it is in the States for our kids to have the supports they need to get an education and it is 100 times more challenging for our friends in Nepal.
Disability and Abuse Project
The Disability and Abuse Project focuses on individuals with developmental or intellectual disabilities who are victims of sexual, physical, or emotional abuse. This includes all aspects of crime, such as crime victimization, reducing the risk of becoming a victim, support to the individual and family members when crime does occur, as well as providing guidance for psychotherapy and legal support. The project works with those who respond to crime reports, including police and sheriff personnel at all levels (patrol, investigators, detectives, dispatchers), prosecutors, protective services professionals, SANEs, victims advocates, and any others. It provides technical assistance, training programs, and training
Meet Ryan, the six-year-old show-stealer in ads for Target and Nordstrom
With his floppy blonde hair, blue eyes and natural manner front of the camera, it is not difficult to see why Target has cast child model Ryan in its newest childrenswear ad. But the retailer has taken an unusual step in doing so, as the six-year-old suf
Boy With Down Syndrome Becoming an Unlikely Ad Star
One young man is making great strides in the modeling world despite what many might see as a significant impediment—he has Down syndrome. His name is Ryan, and he appears on page 9 of the new Target circular, just a few months after making an appearance
It’s OK to make noise at this church service
Church can make some proverbial commands. The Rev. Andrew Butler, seen here in this file photo, is launching a nondenominational worship service for children, particularly those with special needs. But a worship service being offered at
Top Ten Autism Research Achievements of 2011
The young but burgeoning field of autism research continued its exponential rate of discovery in 2011-fueled in no small part by the joint commitment by government health agencies and private organizations to support this vital work. Our Top Ten Autism R
Blogger Shane Burcaw uses humor and honesty to cope with spinal muscular atrophy
Shane Burcaw is like any other 19-year-old college student. He goes to class, hangs out with friends and enjoys going to concerts. What sets him apart from his peers is his ability to use a wry sense of humor to cope with a life-threatening illness. Bu
A rare disease gets a new champion
A hedge fund manager and his battalion of scientists are hunting down a cure for Spinal Muscular Atrophy A new $490 million business deal pits pharmaceutical companies against each other in a race to develop drugs for a rare genetic disease: Spinal Muscular Atrophy (SMA). One in 8,000 babies is born with SMA compared to one in 4,000 born with Cystic Fibrosis, a similar degenerative disease that has garnered much more public attention and fundraising.
Down Syndrome Brings Joy Not Regrets to Individuals and Families
In a series of recently completed surveys, 96 percent of parents expressed no regrets about having a child with Down Syndrome and nearly eight out of 10 said the child had enhanced their lives by teaching them patience, acceptance and flexibility, among other things. Siblings had similar feelings, with 94 percent feeling "pride" about their sibling and 88 percent saying the sibling had made them a "better person." via Down Syndrome Brings Joy Not Regrets for Many Families - MSN Health & Fitness - Kids' Health.
Amy Julia Becker: Explaining Down Syndrome, To My Daughter, And Myself
A few months back, I mentioned to our daughter Penny that she would be meeting another little boy who had Down syndrome, just like her. She didn't say anything in response, but later on that day, when Penny was at school and William was getting ready for a nap, he said, "Mom, what down syn mean?" via Amy Julia Becker: Explaining Down Syndrome, To My Daughter, And Myself.
Neil Young launches film of storied benefit concerts
(Reuters) - A concert DVD featuring Neil Young and a generation of music icons will launch this month with live screenings across the United States. The movie and related CD collection showcases rare live, acoustic performances by many of music's biggest names, all of whom have played over the past 25 years at the annual Bridge School benefit concerts organized by Young and wife Pegi via Neil Young launches film of storied benefit concerts | Reuters.
Operator of N.Y. Group Homes Thrived Despite Lapses in Care – NYTimes.com
The federation has amassed more citations for serious lapses of care than any other organization in the state licensed to run group homes for developmentally disabled people — those with autism, Down syndrome or cerebral palsy. An analysis by The New York Times of state inspection data from 2004 to 2010 found that the federation had been cited 27 times; via Operator of N.Y. Group Homes Thrived Despite Lapses in Care - NYTimes.com.
Geri Jewell: Geri-ism #2: Unmasking the Real Disabilities
It involves the beating of a 16-year-old girl with cerebral palsy. The perpetrators were the girls' parents -- primarily her father, Judge William Adams, who serves as a family law judge in Texas. It was very graphic and painful to watch, but I forced myself to see the whole thing through. via Geri Jewell: Geri-ism #2: Unmasking the Real Disabilities.
Olivia Rosewood: Top 15 Films About Differently-Abled People
Having a child with special needs, whether it's autism, ADHD/ADD, cerebral palsy, Down Syndrome, or any of the other myriad of extraordinary variations from the norm, is becoming surprisingly... the new normal. It seems that nearly every family I meet is facing some set of challenges that veer from the average expectations of parents via Olivia Rosewood: Top 15 Films About Differently-Abled People (VIDEO).
Senate Introduces Bill Limiting Restraints, Seclusion – On Special Education – Education Week
A U.S. Senate bill filed late last week would limit physical restraint and locked seclusion of students—measures often used with students with disabilities who are considered out of control, harmful to themselves or others, or in need of being calmed. Iowa Democratic Sen. Tom Harkin's "Keeping All Students Safe Act," via Senate Introduces Bill Limiting Restraints, Seclusion - On Special Education - Education Week.
The other side of Down syndrome: DS parents say their children have improved their outlook on life
Matt and Meghan Wilkinson at home playing with their sons. The Wilkinsons say Down syndrome is just a small part of what defines their boys. Twin nineteen-month-old brothers Casey, left, and Connor play at their home in Cuyahoga Falls, Ohio. The twins we
The Family Center on Technology and Disability
The Family Center on Technology and Disability (FCTD) is a resource designed to support organizations and programs that work with families of children and youth with disabilities. We offer a range of information and services on the subject of assistive and instructional technologies. Whether you're an organization, a parent, an educator, or an interested friend, we hope you'll find information that supports you in your efforts to bring the highest quality education to children with disabilities.
UNH Institute on Disability Launches Person-Centered Planning Tool
Look Back, Plan Forward, a new website launched by the UNH Institute on Disability, will help individuals with disabilities and people who are aging to capture their life stories in ways that can inform caregivers and service providers about the individual’s history, values, preferences, and support needs during the person-centered planning process. via UNH Institute on Disability | News > Institute on Disability Launches New Online Person-Centered Planning Tool.
The National Early Childhood Technical Assistance Center
NECTAC is the national early childhood technical assistance center supported by the U.S. Department of Education's Office of Special Education Programs (OSEP) to strengthen service systems to ensure that children with disabilities, from birth to 8 years, and their families receive and benefit from high quality, culturally appropriate and family-centered supports and services.
UNH Institute on Disability
The Institute on Disability/UCED (IOD) at the University of New Hampshire was established in 1987 to provide a coherent university-based focus for the improvement of knowledge, policies, and practices related to the lives of persons with disabilities and their families.
Inclusive Schools Network
The Inclusive Schools Network offers a forum for educators, students, family, and community members to share experiences and ideas with each other. It is important for the Inclusive Schools Network to model an inclusive approach in welcoming and valuing all perspectives and opinions regarding the practice of inclusive education. We hope you will communicate with us directly to improve this website and our services to you.
Disability is Natural
The mission of Disability is Natural is to encourage new ways of thinking about developmental disabilities, in the belief that our attitudes drive our actions, and changes in our attitudes and actions can help create a society where all children and adults with developmental disabilities have opportunities to live the lives of their dreams, included in all areas of life.
Broadreach Training and Resources
Norman Kunc and Emma Van der Klift have spent the last 25 years working to ensure that people with disabilities are able to take their rightful place in schools, workplaces, and communities. Although they are well known advocates within the disability rights community, they prefer to think of themselves as modern day storytellers, continuing the long held tradition of using humour and narrative to initiate self-reflection and social change.
Association on University Centers on Disabilities (AUCD)
AUCD envisions a future in which everyone, including people living with developmental and other disabilities, are fully integrated, participating members of their communities. We envision a future in which culturally appropriate supports that lead to independence, productivity, and a satisfying quality of life are universally available across the life span. AUCD's mission is to advance policy and practice for and with people with developmental and other disabilities, their families, and their communities by supporting our members in research, education, and service activities that achieve our vision. AUCD values the participation of people with disabilities, family members, and a culturally diverse
Autism Society
The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. They do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.
Hannah’s Buddies
The Hannah's Buddies Charity Classic began in 2000 with John Bell of Widespread Panic deciding to help his goddaughter and tens of thousands of children in their fight against SMA. Today, the golf tournament, silent/auction and concert lineup attracts more than 2,000 participants and has raised nearly $2 million for SMA research. Spinal Muscular Atrophy is a neuromuscular disease that affects between 1 in 6,000 and 1 and 20,000 births. Over time, SMA causes muscles to become weak and considerably smaller. On average, 1 in 40 people are genetic carriers.
Fight SMA
Founded in 1991, FightSMA is a US-based international nonprofit organization working to find a cure for spinal muscular atrophy, (SMA), a neuromuscular disease that is the leading inherited killer of children under two.
Foundation for Mitochondrial Medicine
The Foundation for Mitochondrial Medicine pledges to support the development of the most promising mitochondrial disease research and treatments of the many forms of mitochondrial dysfunction. Formed in 2005 and renamed in 2010, their Atlanta-based non-profit organization financially supports the first FDA-approved drug treatments that began in early 2010. Stated simply: they're funding the cures. The foundation's stewards and founders are parents of patients and medical experts. The Foundation for Mitochondrial Medicine was created to accelerate the development of the most viable mitochondrial disease treatments and therapies.
The United Mitochondrial Disease Foundation
The UMDF's mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. The UMDF's website provides the latest news and information about issues relating to mitochondrial disease research and information. The UMDF also holds an annual international symposium that brings together the best physicians and researchers for patients and family members to gain valuable information. The UMDF also provides information about local fundraisers and educational programs. The UMDF advocates on the national level and empowers members to advocate on the local level regarding issues of medical
Mito Action
MitoAction's vision is to create a community of support that reaches every child, adult, and caregiver affected by a mitochondrial disease. Effective awareness and advocacy will guarantee that every patient has access to specialized care and a network of support and information that improves the journey for every individual affected.
Office of Rare Diseases
The ORDR Web site aims to answer questions about rare diseases and the activities of the ORDR for patients, their families, healthcare providers, researchers, educators, students, and anyone with concern for and interest in rare diseases. The site provides information about ORDR-sponsored biomedical research, scientific conferences, and rare and genetic diseases. It also serves as a portal to information on major topics of interest to the rare diseases community.
Hydrocephalus Association
The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. We strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.
Epilepsy Foundation
The Epilepsy Foundation of America® is the national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure.
International Rett Syndrome Association
The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
The Foundation for Children with Microcephaly
The Foundation for Children with Microcephaly is the only 501(c)(3) nonprofit organization in the United States dedicated to helping children and adults diagnosed with Microcephaly, Polymicrogyria, Lissencephaly and other closely related neurological disorders often get overlooked as well.
Squag
Squag [skwag] is an innovative social platform designed specifically for tweens and teens on the autism spectrum. Their goal is to facilitate the opportunity for organic relationships; driven by kids, supported by parents. (What could be better?)
Including Samuel
Before his son Samuel was diagnosed with cerebral palsy, photojournalist Dan Habib rarely thought about the inclusion of people with disabilities. Now he thinks about inclusion every day. Shot and produced over four years, Habib’s award-winning documentary film, Including Samuel, chronicles the Habib family’s efforts to include Samuel in every facet of their lives. The film honestly portrays his family’s hopes and struggles as well as the experiences of four other individuals with disabilities and their families. Including Samuel is a highly personal, passionately photographed film that captures the cultural and systemic barriers to inclusion.
Inclusion Network
This wonderful resource provides resources for Training, Consulting and Networking Facilitators.foster the development of inclusion. The focus is the development of future leadership for inclusion through the creation of focused programs, materials and research that will create a world where Everyone Belongs.
The Inclusive Class
We are crazy about the Inclusive Class! Nicole Eredics is pretty incredible, and her blog and podcasts are informative, interesting, and always just what we need. The inclusive classroom best demonstrates that message as it begins with the belief that all children belong. Each child can demonstrate and achieve success, in various ways, according to their abilities, strengths and areas for growth. Inclusive Class' Livebinder has an abundance of resources.
Paula Kluth: Toward Inclusive Classrooms and Communities
This website is dedicated to promoting inclusive schooling and exploring positive ways of supporting students with autism an other disabilities. Most of Paula Kluth's work involves collaborating with schools to create environments, lessons, and experiences that are inclusive, respectful, and accessible for all learners.
Wrightslaw
Wrightslaw's mission is to provide parents, advocates, educators, and attorneys with accurate, up-to date information about special education law and advocacy so they can be effective catalysts. * Information for parents about their rights and responsibilities * Information for teachers about professional training so they can meet the diverse needs of their students * Information for advocates about laws, regulations, and advocacy strategies * Information for attorneys who want cases, pleadings, and tactics and strategies
Office of Special Education Programs
The Office of Special Education Programs (OSEP) is dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21 by providing leadership and financial support to assist states and local districts. The Individuals with Disabilities Education Act (IDEA) authorizes formula grants to states, and discretionary grants to institutions of higher education and other non-profit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development and parent-training and information centers. The Individuals with Disabilities Education Improvement Act of 2004 was signed into law by President George W. Bush on December 3, 2004. As the nation's special education law, IDEA serves approximately 6.8 million children and
Office of Special Education and Rehabilitative Services
The Office of Special Education and Rehabilitative Services (OSERS) understands the many challenges still facing individuals with disabilities and their families. Therefore, OSERS is committed to improving results and outcomes for people with disabilities of all ages. OSERS supports programs that serve millions of children, youth and adults with disabilities. OSERS is comprised of the Office of the Assistant Secretary (OAS) and three program components: the Office of Special Education Programs (OSEP), theNational Institute on Disability and Rehabilitation Research (NIDRR), and theRehabilitation Services Administration (RSA).
US DOE Associations and Organizations Resource Page
The Education Resource Organizations Directory (EROD) contains information on more then 3,000 national, regional and state education organizations and associations. The directory helps you identify and contact these organizations that provide information and assistance on a broad range of education-related topics.
Online Mendelian Inheritance in Man (OMIM)
OMIM is a comprehensive, authoritative, and timely compendium of human genes and genetic phenotypes. The full-text, referenced overviews in OMIM contain information on all known mendelian disorders and over 12,000 genes. OMIM focuses on the relationship between phenotype and genotype. It is updated daily, and the entries contain copious links to other genetics resources.
United States International Council on Disabilities
The U.S. International Council on Disabilities (USICD) is a non-profit, membership, constituent-led organization committed to building bridges between American and international disability communities and cultures. Through a wide range of projects and programs, USICD promotes the inclusion of disability perspectives in U.S. foreign policy and aid and provides opportunities for domestic disability rights organizations to interface with their international counterparts. USICD’s major initiatives leverage a membership that spans organizations and individuals in more than 30 U.S. states and a number of foreign countries. USICD's Board of Directors includes leading experts in domestic and international disability issues.
United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. UCP and its nearly 100 affiliates have a mission to advance the independence, productivity and full citizenship of people with a spectrum of disabilities by providing services and support to children and adults every day—one person and family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities to ensure the inclusion of individuals with disabilities in every facet of society.
Technology & Telecommunications Task Force
The Telecommunications and Technology Task Force, part of the Consortium for Citizens with Disabilities deals with issues related to access to telecommunications and assistive technology in education, employment and independent living.
Spina Bifida Association of America (SBAA)
The Spina Bifida Association (SBA) serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service.
RESNA
Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) RESNA's goal is "To maximize the health and well being of people with disabilities through technology." The purpose of RESNA is to contribute to the public welfare through scientific, literary, professional and educational activities by supporting the development,dissemination, and utilization of knowledge and practice of rehabilitation and assistive technology in order to achieve the highest quality of life for all citizens.
Rights Task Force
The Rights Task Force is part of The Consortium for Citizens with Disabilities and focuses on civil rights and protections for people with disabilities, and for enforcement of rights provisions by federal agencies. Issues covered include the Americans with Disabilities Act (ADA), Section 504, and protections secured through the Individuals with Disablities Education Act (IDEA)
President’s Committee for People with Intellectual Disabilities
The mission of PCPID is to provide advice and assistance to the President of the United States and the Secretary of Health and Human Services on a broad range of topics that impact people with intellectual disabilities and the field of Intellectual Disabilities. Undergirding the Committee’s mission is the goal to improve the quality of life that is experienced by people with intellectual disabilities, by upholding their full citizenship rights, independence, self-determination, and life-long participation in their respective communities.
Office for Civil Rights
The mission of the Office for Civil Rights is to ensure equal access to education and to promote educational excellence throughout the nation through vigorous enforcement of civil rights. An important responsibility is resolving complaints of discrimination. OCR also provides technical assistance to help institutions achieve voluntary compliance with the civil rights laws that OCR enforces. An important part of OCR's assistance is partnerships designed to develop creative approaches to preventing and addressing discrimination.
NORD – National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
National Information Center for Children & Youth with Disabilities
NICHCY serves the nation as a central source of information on: ■disabilities in children and youth; ■programs and services for infants, children, and youth with disabilities; ■IDEA, the nation’s special education law; and ■research-based information on effective practices for children with disabilities.
National Fragile X Foundation
The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X.
The National Down Syndrome Society
The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.
The National Down Syndrome Congress
The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.The vision of the NDSC is a world with equal rights and opportunities for people with Down syndrome.It is the purpose of the National Down Syndrome Congress to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.
The National Association for the Dually Diagnosed
NADD is a not-for-profit membership association established for professionals, care providers and families to promote understanding of and services for individuals who have developmental disabilities and mental health needs. The mission of NADD is to advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care. NADD's Mission "To advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care."
The National Association of Parents with Children in Special Education
The National Association of Parents with Children in Special Education (NAPCSE) is a national membership organization dedicated to rendering all possible support and assistance to parents whose children receive special education services, both in and outside of school. NAPCSE was founded for parents with children with special needs to promote a sense of community and provide a national forum for their ideas.
Disability Rights Education and Defense Fund
The Disability Rights Education and Defense Fund, founded in 1979, is a leading national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities. The mission of the Disability Rights Education and Defense Fund is to advance the civil and human rights of people with disabilities through legal advocacy, training, education, and public policy and legislative development.
Special Olympics International
The Special Olympics mission remains as vital today as it did when the movement was founded in 1968. Through the power of sport, Special Olympics strives to create a better world by fostering the acceptance and inclusion of all people. Mission Statement The mission of Special Olympics is to provide year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in a sharing of gifts, skills and friendship with their families, other Special Olympics athletes and the
Stories From The Road | Chapter Eight | “On Common Ground”
"On Common Ground": While in Houston to speak to teens at "Stand Up! For Inclusion" a conference aimed at inspiring youth to make a difference in the world, Larry takes time to exchange creative ideas with a young artist.
Stories From The Road | Chapter Thirteen | “The End Of The Road”
"The End Of The Road": Larry and Tracy take time to reflect on their spiritual journey of disability awareness as they prepare for the theatrical premiere if their film, "Wretches & Jabberers" in New York City.
Stories From The Road | Chapter Nine | “Lightning Rods”
"Lightning Rods": The Vermonters meet up with Stephen Kuusisto, author of "Planet of the Blind". He interviews Larry and Tracy about the journey they took while making "Wretches & Jabberers" and shares a few insights of his own about his disability.
Stories From The Road | Chapter Ten | “Apple Store Adventures”
"Apple Store Adventures": While in New York City to promote the theatrical release of the film, the Vermonters take an opportunity to visit the Apple Store and try out the new iPad 2.
Stories From The Road | Chapter Seven | “Stand Up! For Inclusion”
"Stand Up! For Inclusion": Larry, Tracy, Harvey & Pascal speak to teens in Houston at the 26th Annual BBYO Lonestar Convention. The theme of this year's convention is "Stand Up! For Inclusion" to inspire youth to make a difference in the world around them.
Stories From The Road | Chapter Twelve | “All That’s Newsworthy”
From our friends at Stories from the Road, "All That's Newsworthy": Larry and Tracy join director Gerardine Wurzburg on the WPIX Channel 11 Morning News to discuss the upcoming theatrical release of their documentary 'Wretches & Jabberers'. The guys get the star treatment as they share their experiences with anchor Jim Watkins.
Stories From The Road | Chapter Eleven | “Teaching The Teachers”
"Teaching The Teachers": The Vermonters are invited to speak at Teachers College at Columbia University. A subway ride brings them to their destination as they find open minds, caring hearts, and an invitation for beer!
Stories From The Road | Chapter Six | “Mile-High Marvels”
"Mile-High Marvels": Larry, Tracy, Harvey & Pascal are asked to speak about their experiences making "Wretches & Jabberers" at the 35th Annual TASH Conference held in Denver, Colorado.
Stories From The Road | Chapter Five | “A Small World After All”
More from the amazing W & J and State of the Art/Dan Curl. "A Small World After All": Tracy invites Finnish friends Henna and Antti to join him at his monthly task force meeting at Community Developmental Services in Barre, VT. Here other people with autism advocate for people with communication challenges, quality of life initiatives, and increase public awareness.
Stories From The Road | Chapter Four | “Breakfast at Larry’s”
From our friends at Wretches & Jabberers, "Breakfast at Larry's": Larry invites visiting international friends Chammi, Antti & Henna to his home for a traditional Vermonter breakfast. With the help of his sister Sally, Larry hosts a meal not soon forgotten!
Stories From The Road | Chapter Three | “Wretches Reunite”Stories From The Road | Chapter Three | “Wretches Reunite”
"Wretches & Jabberers" co-stars from Finland and Sri Lanka descend upon Burlington, Vermont to visit Larry and Tracy and discuss how the film has impacted their lives.
Stories From The Road | Chapter One | “A Night With The Stars”
"A Night With The Stars": Larry, Tracy, Harvey & Pascal take to the road to promote a new documentary titled "Wretches & Jabberers" following their recent "World Intelligence Magnified Tour". Their first stop is Syracuse, NY where they meet with the Disability Cultural Center Initiative at Syracuse University and answer questions about the film.
Stories From The Road | Chapter Two | “Syracuse International Film Festival”
"Syracuse International Film Festival": Larry, Tracy, Harvey & Pascal on the road to promoting "Wretches & Jabberers" following their recent "World Intelligence Magnified Tour". Their second stop was Syracuse, NY is to present the film and their personal narratives at the Syracuse International Film Festival.
60 Minutes: Studying Autism and iPads
Canadian professor Rhonda McEwen studies the use of iPads by autistic children in Toronto's Beverley School. She tells 60 Minutes Lesley Stahl that progress is slow, but learning to "play with language" is the first step.
Apps for Autism on 60 Minutes
People with autism whose condition prevents them from speaking are making breakthroughs with the help of tablet computers and special applications that allow them to communicate, some for the first time. Lesley Stahl reports.
Hearing Loss in the Classroom
Great simulation by Pediatric Audiology Project on what it's like to be hearing impaired in the classroom. It's much harder than you think!
Releasing the Music In Your Head
Dan Ellsey and Tod Macchover on TED Talks, Macchover (the man behind Guitar Hero) of MIT's Media Lab , talks about Hyper Score. Ellsey,a composer with cerebral palsy uses some new tools to write and perform his own beautiful music. Very cool.
On Beauty
We are in love with 'On Beauty" the documentary by Joanna Rudnick. She follows the talented Rick Guidotti as he challenges public perception of difference and beauty through the lives of three exquisite women.
The Miracle Project
Check out this trailer from the Emmy winning documentary, The Miracle Project. We should ALL have the opportunity to perform, participate, and find our gifts. Get involved with The Miracle Project ww.themiracleproject.org.
The Making of Sensitive
From The Miracle Project..the making of "Sensitive", a song about bullies. Wyatt Isaacs sings with Jack Black. Stephen Stills produces it a la sex pistols, with his signature guitar! Learn more about The Miracle Project at www.themiracleproject.org , you will love it as much as we do!
Classroom Simulation of Student Who Is Deaf or Hard of Hearing
An amazing simulation of what speech sounds like for hearing impaired student by the Vermont Center for Deaf and Hard of Hearing, Inc. You will be shocked! This simulation allows you to experience the challenges a hearing impaired student faces in the classroom, with and without a personal FM sytem. We had no idea it was this hard for hearing impaired students to hear what's being said in a typical classroom environment.
Carly Fleischman on 20/20
Carly Fleischmann, on 20/20 in 2009. Carly is diagnosed with autism and types to communicate. She is an incredibly intelligent self-advocate who is helping change how the world sees people who communicate differently. We are huge fans! Please check out her website for more information http://carlysvoice.com.
“The Genetics of SMA” Translated into Spanish.
Families of Spinal Muscular Atrophy Releases “The Genetics of SMA” Care Series Booklet Translated into Spanish.
Institute on Communication and Inclusion
The Institute on Communication and Inclusion (ICI) is a research and training center that is part of the Inclusion Institutes of the School of Education at Syracuse University. Formerly the Facilitated Communication Insitute, our new name - the Institute on Communication and Inclusion - represents a broadened focus developed over the past 20 years, reflecting lines of research, training and public dissemination that focus on school and community inclusion, narratives of disability and ability, and disability rights, as well as research and training on faciltiated communication. Its initiatives stress the important relationship of communication to inclusion. Led by Director
Kit( Kids Included Together)
Kids Included Together (KIT) specializes in providing best practices training for community–based organizations committed to including children with and without disabilities into their recreational, child development and youth development programs. Utilizing a blended learning style with interactive eLearning components, KIT’s services are provided free of charge to its 63 affiliate organizations representing over 304 sites in San Diego County. Since its inception in 1997, Kids Included Together (KIT) has trained over 25,000 youth providers in the best practices of inclusion. Over 15,000 children with disabilities have been co–enrolled with over 265,000 children without disabilities at KIT affiliate sites. 72% of
People First
People First is an organization run by and for people with learning difficulties to raise awareness of and campaign for the rights of people with learning difficulties and to support self advocacy groups across the country. People First promotes the social model of disability. This is a way of thinking about disability that says it is society that needs to change to include disabled people. We should not have to change to fit in with society. We are against the medical model of disability, which is the view that being disabled means there is ‘something wrong’ with you. Doctors and
National Association of the Deaf (NAD)
The NAD is the nation's premier civil rights organization of, by and for deaf and hard of hearing individuals in the United States of America. Established in 1880, the NAD was shaped by deaf leaders who believed in the right of the American deaf community to use sign language, to congregate on issues important to them, and to have its interests represented at the national level. These beliefs remain true to this day, with American Sign Language as a core value. The advocacy scope of the NAD is broad, covering a lifetime and impacting future generations in the areas of
The National Association of Councils on Developmental Disabilities
The National Association of Councils on Developmental Disabilities (NACDD) is a national membership organization representing the 55 State and Territorial Councils on Developmental Disabilities. NACDD is a 501(c) 3 organization with the purpose of promoting and enhancing the outcomes of our member councils in developing and sustaining inclusive communities and self directed services and supports for individuals with developmental disabilities.
National Arts and Disability Center
The National Arts and Disability Center (NADC) is a project of the University of California: their mission is to promote the full inclusion of audiences and artists with disabilities into all facets of the arts community. The NADC is a leading consultant in the arts and disability community, and the only center of its kind. Recipients of our technical assistance include museums, performing arts organizations, art centers, film and television companies and unions, universities and colleges, national publications, disability specific groups, artists with disabilities, arts educators, students, arts administrators and government policy makers.
Disability.gov
Disability.gov is a federal government website that provides an interactive, community-driven information network of disability-related programs, services, laws and benefits. Through the site, Americans with disabilities, their families, veterans, educators, employers and many others are connected to thousands of resources from federal, state and local government agencies, educational institutions and non-profit organizations.
TASH- Disability Advocacy Worldwide
TASH is an international leader in disability advocacy. Founded in 1975, TASH advocates for human rights and inclusion for people with significant disabilities and support needs – those most vulnerable to segregation, abuse, neglect and institutionalization. TASH works to advance inclusive communities through advocacy, research, professional development, policy, and information and resources for parents, families and self-advocates. The inclusive practices TASH validates through research have been shown to improve outcomes for all people. TASH is governed by a board of directors and is supported by a network of members, volunteers, committees and chapter organizations. The TASH membership includes a diverse
Council for Exceptional Children
The Council for Exceptional Children is an international community of professionals who are the voice and vision of special and gifted education. CEC's mission is to improve, through excellence and advocacy, the education and quality of life for children and youth with exceptionalities and to enhance the engagement of their families. The Council for Exceptional Children is a premier education organization, internationally renowned for its expertise and leadership, working collaboratively with strategic partners to ensure that children and youth with exceptionalities are valued and full participating members of society. As a diverse and vibrant professional community, CEC is a trusted
The Council on Quality and Leadership
The Council on Quality and Leadership is leader for person-centered supports and services for people with disabilities, people with mental illness and older adults. Through our services, publications and public presence, we establish real connections between theory and practice and help organizations and systems take the important step from innovative ideas to everyday action. Our goal is to be partners and mentors to our customers, showing them how they can become even better at ensuring that all people lead lives of dignity and quality.
Consortium for Citizens with Disabilities
The Consortium for Citizens with Disabilities is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The Consortium for Citizens with Disabilities (CCD) envisions an American society in which all individuals, aided by an enabling government, have the freedom and opportunity to exercise individual decisions concerning their own lives, welfare and personal dignity. CCD envisions a society in which communities are fully accessible to all individuals with disabilities and their families, where
Best Buddies International
Best Buddies is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities (IDD). Founded in 1989 by Anthony Kennedy Shriver, Best Buddies is a vibrant, international organization that has grown from one original chapter to almost 1,500 middle school, high school, and college chapters worldwide. Best Buddies programs engage participants in each of the 50 United States, and in 50 countries around the world. Best Buddies’ seven formal programs – Best Buddies Middle Schools, High Schools, Colleges, Citizens, e-Buddies, Jobs
Benefits.gov
Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. The program's mission is to reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information. The site's core function is the eligibility prescreening questionnaire. Answers to the questionnaire are used to evaluate and compare with the eligibility criteria for more than 1,000 Federally-funded benefit and assistance programs. Each program description provides citizens with the next steps to apply for any benefit program of interest.
Autism Support Network
The mission of Autism Support Network is to connect, guide and unite. Their goal is to short-cut the uphill battle individuals and families undertake when faced with autism – whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information. Their support community collectively pools global knowledge and support from all those touched by ASD. Designed as a place by those living with ASD, for those with ASD, and those seeking social connection, peer guidance, and a feeling of community with those that understand.
Autism Society of America
The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. They do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.
Association of Assistive Technology Act Programs
The Association of Assistive Technology Act Programs (ATAP) is a national, member-based organization, comprised of state Assistive Technology Act Programs funded under the Assistive Technology Act (AT Act). ATAP was established in 1997 to provide support to state AT Program members to enhance the effectiveness of AT Programs on the state and local level, and promote the national network of AT Programs. ATAP facilitates the coordination of state AT Programs nationally and provides technical assistance and support to its members. ATAP represents the needs and interests of the state AT Programs and is the national voice of the AT Programs.
The Arc of the United States
The Arc promotes and protects the human rights of people with intellectual and developmental disabilities by actively supporting their full inclusion and participation in the community throughout their lifetimes.People with intellectual and developmental disabilities are entitled to the respect, dignity, equality, safety, and security accorded to other members of society, and are equal before the law. The Arc believes that people with intellectual and developmental disabilities belong in the community and have fundamental moral, civil and constitutional rights to be fully included and actively participate in all aspects of society and supports their self-determination and self-advocacy. People with intellectual and
ADA Portal
The ADA Document Portal Allows users to search a collection of ADA-related documents that have been produced by federal agencies and organizations receiving federal funds.
American Association of People with Disabilities
The American Association of People with Disabilities is the nation's largest cross-disability organization. They promote equal opportunity, economic power, independent living, and political participation for people with disabilities. Their members, including people with disabilities and their family, friends, and supporters, represent a powerful force for change. Over 50 million Americans with disabilities and their supporters have the power to achieve full civil rights for all. They are powered by their vision of a community whose voice is heard through the halls of government, in our culture, and in our communities.
Charter Schools Excluding Students with Significant Disabilities in Florida
A new report by the Miami Herald and StateImpact Florida – a National Public Radio initiative - confirms CEC’s ongoing concern that many charter schools are failing to serve students with disabilities, particularly students with significant disabilities
Consortium for Citizens with Disabilities
The Consortium for Citizens with Disabilities is a Coalition of national consumer, advocacy, provider and professional organizations headquartered in Washington, D.C. Since 1973, the CCD has advocated on behalf of people of all ages with physical and mental disabilities and their families. CCD has worked to achieve federal legislation and regulations that assure that the 54 million children and adults with disabilities are fully integrated into the mainstream of society. CCD does this by: Identifying and researching public policy issues, developing testimony and policy recommendations and encouraging innovative solutions to public policy concerns. Educating members of Congress in an effort
Ad Hoc Developmental Disabilities Task Force
The Ad Hoc Developmental Disabilities Task Force monitors the Developmental Disabilities Bill of Rights Act and the administration of the program through the Administration on Developmental Disabilities. The Act is authorized every three years and regulations and policy guidelines are developed based on the statute. The Task Force also reviews other developmental disability related issues.
AAIDD
The American Association on Intellectual & Developmental Disabilities promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.
The Gift of Knowledge
It’s been a couple of years now that I’ve been blogging about special education legal issues. Unfortunately, the realities of juggling a busy law practice, a family, and other professional commitments don’t allow me to do it enough, and I continue to ye
Autism Now: MacNeil Interviews Director of Education
An extended transcript excerpt of , PBS' Robert MacNeil's interview with Jesse Mojica, director of education policy for the Bronx borough president, on treatment and education for children with autism.
Autism Now : MacNeil Interviews Principal at Autism Charter School
An extended transcript excerpt from Robert MacNeil's interview with Rima Ritholtz, principal of PS 176, charter school in the Bronx can be found on PBS.org. Ritholtz discusses the schooling and treatment options for those with autism. She says approximately 10 out 700 students are able to return to general education.
Sprout
For more information about incredible films related to disabilities, check out Sprout, programs for people with disabilities. Sproutflix features films from around the world that focus on the lives and accomplishments of people with developmental disabilities.
Certain Proof – A Question of Worth
Certain Proof: A Question of Worth is a feature documentary about three children living with significant communication and physical disabilities, who struggle against the public schools in an emotional battle to prove their worth.
Hold My Hand
The documentary,"Hold My Hand", follows Eliza Schaaf, a young woman with Down Syndrome, who was raised under the principle of inclusion. Schaaf was dropped from her ceramics class by Southern Oregon University. SOU sited she required excessive supervision and limited her classmates time for instruction. Schaaf denies this and her classmates signed a petition refuting this fact and asked that she be reinstated. "Hold My Hand",made by four students at Chapman University, Ruby Stocking, Bobby Moser, James Parker, and Virginia Thomasi, looks at the impact of being excluded from her class, but also covers the importance of inclusion for all members of society. Schaaf's website offers
The Affordable Care Act
Senior advisor to the President Valerie Jarrett and Secretary of Health and Human Services Kathleen Sebelius speak to parents, advocates and experts at an Autism Awareness Month Conference.
Best and Worst States for Disability Services
UCP's invaluable analysis of Medicaid for individuals with intellectual and developmental disabilities reports that progress is being made for community inclusion, but every state has room for improvement. According to the report Vermont provides the best services for individuals with disabilities and Missippi provides the worst. There are still approximately 58,000 individuals with intellectual and developmental disabilities living in facilities with 16 or more beds.Too much money is being spent isolating people in these large instititutions and the waiting lists for services has also increased dramatically, up 56% from 2005 to 2009. Top ten states in terms of quality of
The Pearls Project-Teaching Empathy
Students at Ridgewood High School were shown photos of young people with genetic disorders and told not to look away. The unusual lessons are part of a new effort, called the Pearls Project, to promote tolerance and empathy in a school culture where being different can mean social exile. Ridgewood teachers developed it this year in partnership with Positive Exposure, a nonprofit group in New York City founded by Rick Guidotti, a fashion photographer. “Genetic conditions are depicted as images of sickness and sorrow — it’s always a kid up against the wall in a doctor’s office,” Mr. Guidotti said.
Toronto Police Defend Handcuffing a 9 Year Old Child with Autism
CTV reports that a 9 year-old boy with Asperger's Syndrome was handcuffed by police officers responding to 911 calls from Toronto's Fairbank Memorial Day Care Center about an "uncontrollable autistic boy" . Toronto police officers are defending their decision to handcuff the 9 year old child. On July 28th the police received two calls from the day care center where the child was reportedly was throwing chairs, tables, and yes, even paint. Reports say the child was upset after being bullied by other children during lunch about his disability. The school placed him in an empty classroom after
Thank You, Steve Jobs
Thank you Steve Jobs for thinking differently so that so many others may express their thoughts. Apple's products have changed the lives of so many people with disabilities - CP, autism, dyspraxia, motor planning issues, developmental delays, neuromuscular disorders, expressive language disorders, vision impairments. My son uses his iPad and iPod as a communication device, a way to surf the internet, watch youtube, and connect with friends. Until Apple came out with the ipod, the choices in AAC devices were very expensive ( the ones we looked at were between $5,000 and $8,000 and heavy- too heavy for someone that
Computer Based Program May Relieve Some ADHD Symptoms
Children can experience the relief of some symptoms of attention deficit hyperactivity disorder (ADHD) by participating in an intensive memory training program based on software designed to improve their working memory. Researchers at Ohio State University found that the program had a significant impact on many children with ADHD, particularly in the areas of attention, planning, organization, and working memory. The software was developed in Sweden by Cogmed in partnership with the Karolinska Institute. The software comprises 25 progressively more challenging exercises in the form of a computer game to be completed by children with ADHD within five to six weeks
IQ Scores Inaccurate Portrayal Of Intelligence for Individuals with Autism
A discrepancy between IQ scores and performance on academic tests has been identified in 90 percent of high-functioning children with autism. A study at the University of Washington's Autism Center concluded that many children with autism can gain the sense of self-worth associated with academic achievement. Improvements in the diagnosis of autism and the greater incidence of early intervention have resulted in more children ranked in the high-functioning range of the disorder. These children have average or above average IQs and are able to take advantage of regular classroom activities when early interventions are used to improve their social
The brain in myotonic dystrophy 1 and 2: evidence for a predominant white matter disease
Myotonic dystrophy types 1 and 2 are progressive multisystemic disorders with potential brain involvement. We compared 22 myotonic dystrophy type 1 and 22 myotonic dystrophy type 2 clinically and neuropsychologically well-characterized patients and a c
The Advocacy Center
The Advocacy Center empowers individuals with disabilities and their families to advocate for themselves and realize their personal goals. Together we build strong, inclusive communities by increasing the ability of community members to support and value all individuals.
Wretches & Jabberers Tampa Screening
The " World Intelligence Magnified Tour" took Tampa by storm. The screenings of Wretches & Jabberers the weekend of June 10 were an enormous success.
Ollibean Art for Change: Wretches & Jabberers Screening and Q & A at Tampa Theatre
Academy Award winner, Gerardine Wurzburg's documentary, "Wretches & Jabberers ", Screening and Q & A at Tampa Theatre . The rockstars of self advocacy, Tracy Thresher and Larry Bissonnette take Tampa by storm, shattering misconceptions of autism and intelligence.
Wretches and Jabberers at Tampa Museum of Art
Academy Award winner, Gerardine Wurzburg's documentary, "Wretches & Jabberers ", Screening and Q & A at Tampa Theatre . The rockstars of self advocacy, Tracy Thresher and Larry Bissonnette take Tampa by storm, shattering misconceptions of autism and intelligence.
The King’s Speech
We love this beautiful movie based on the true story of King George VI. After the death of his father King George V (Michael Gambon) and the scandalous abdication of King Edward VIII (Guy Pearce), Bertie (Colin Firth) who has suffered from a debilitating speech impediment all his life, is suddenly crowned King George VI of England. With his country on the brink of war and in desperate need of a leader, his wife, Elizabeth (Helena Bonham Carter), the future Queen Mother, arranges for her husband to see an eccentric speech therapist, Lionel Logue (Geoffrey Rush). After a rough start,
A Few of Our Favorite Things
There are so many products, doctors, therapies, and places out there that can help. Here's a list of some of our favorites. We'd love to know what your Favorites are and why. Shoot us an email at olli@ollibean.org and spread the love.
